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Shammon has an excellent site. She has some great interviews

with doctors that people have consistently found to be the best in

the country and whose patients write to praise. These interviews are

very educational. Her book is also excellent and goes into many

aspects of hypothyroidism and what new research has shown and what

has helped people and what the tests all mean.

I have found so much good information there in the past and keep

going to her site for things. She has a great letter from a patient

to her doctor on treating with Armour and so many other good

articles and medical updates. She has a top doctor list with names

of doctors all over the country that people have had good

experiences with. I just think it is the best thyroid information

site out there.

If I'd listened to my doctors over the years, I'd be dead by now.

Tish

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Thanks for the info, Tish! Can't hurt to take a look at the site.

> Shammon has an excellent site. She has some great interviews

> with doctors that people have consistently found to be the best in

> the country and whose patients write to praise. These interviews

are

> very educational. Her book is also excellent and goes into many

> aspects of hypothyroidism and what new research has shown and what

> has helped people and what the tests all mean.

>

> I have found so much good information there in the past and keep

> going to her site for things. She has a great letter from a

patient

> to her doctor on treating with Armour and so many other good

> articles and medical updates. She has a top doctor list with names

> of doctors all over the country that people have had good

> experiences with. I just think it is the best thyroid information

> site out there.

>

> If I'd listened to my doctors over the years, I'd be dead by now.

>

> Tish

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Thanks for the info, Tish! Can't hurt to take a look at the site.

> Shammon has an excellent site. She has some great interviews

> with doctors that people have consistently found to be the best in

> the country and whose patients write to praise. These interviews

are

> very educational. Her book is also excellent and goes into many

> aspects of hypothyroidism and what new research has shown and what

> has helped people and what the tests all mean.

>

> I have found so much good information there in the past and keep

> going to her site for things. She has a great letter from a

patient

> to her doctor on treating with Armour and so many other good

> articles and medical updates. She has a top doctor list with names

> of doctors all over the country that people have had good

> experiences with. I just think it is the best thyroid information

> site out there.

>

> If I'd listened to my doctors over the years, I'd be dead by now.

>

> Tish

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> Thanks for the info, Tish! Can't hurt to take a look at the site.

___________________________

I would recommend the doctor interviews. They are very interesting

and educational. Dr. , Dr. Derry, Dr. Lowe, and

Dr. Mercola and more.

http://thyroid.about.com/cs/expertinterviews/l/blinterviews.htm

______________

This one opened my eyes when I first was diagnosed:

Getting What You Need From Your Doctor: Challenges of Thyroid Care

http://thyroid.about.com/gi/dynamic/offsite.htm?

site=http://www.thyroid%2Dinfo.com/articles/docdon.htm

_____________

This one made me realize how falable tests are:

Rethinking the TSH Test: An Interview with Derry, M.D., Ph.D. -

- The History of Thyroid Testing, Why the TSH Test Needs to Be

Abandoned, and the Return to Symptoms-Based Thyroid Diagnosis and

Treatment

http://thyroid.about.com/gi/dynamic/offsite.htm?

zi=1/XJ & sdn=thyroid & zu=http%3A%2F%2Fwww.thyroid-info.com%2Farticles%

2Fdavid-derry.htm

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> Thanks for the info, Tish! Can't hurt to take a look at the site.

___________________________

I would recommend the doctor interviews. They are very interesting

and educational. Dr. , Dr. Derry, Dr. Lowe, and

Dr. Mercola and more.

http://thyroid.about.com/cs/expertinterviews/l/blinterviews.htm

______________

This one opened my eyes when I first was diagnosed:

Getting What You Need From Your Doctor: Challenges of Thyroid Care

http://thyroid.about.com/gi/dynamic/offsite.htm?

site=http://www.thyroid%2Dinfo.com/articles/docdon.htm

_____________

This one made me realize how falable tests are:

Rethinking the TSH Test: An Interview with Derry, M.D., Ph.D. -

- The History of Thyroid Testing, Why the TSH Test Needs to Be

Abandoned, and the Return to Symptoms-Based Thyroid Diagnosis and

Treatment

http://thyroid.about.com/gi/dynamic/offsite.htm?

zi=1/XJ & sdn=thyroid & zu=http%3A%2F%2Fwww.thyroid-info.com%2Farticles%

2Fdavid-derry.htm

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I've not read much of her stuff.. just some on her site...

But I will say that after all the years that I was mistreated by docs... I'm now self treating and have been since I got on naturals in 2002. I treat based on my common sense, understanding of symptoms and thyroid chemistry.

All the vast improvements have been due to the correct medication, proper application of it and the supplements that I take in conjunction with it and "luck"??

I can't suggest to anyone that they should self treat rather than see a doc, that would be wrong.. but I will say with absolutely no hesitation whatsoever....

If you are without insurance, without money and unable to see a doc for labs or prescription and/or to buy meds... don't sit there and wait to die. Get up the courage to order the meds and learn how to use them.

I sat for three years, waiting to die. Unable to get medical assistance in any of the three counties I lived in, or the state or through United Way. I was left for dead, no one caring. If I had not got on line and learned, then found a place to order, then started treating myself.. I have no doubt at all that I'd be dead right now.

I applaud anyone that takes that extra step to learn everything that they can and apply it to their own situation, to me that is a sign of a superior intelligence.. and I don't mean that to pat myself on the back.. I say that by way of encouragement to everyone that is reading this, never stop, never settle, learn as much as you can each and every day and then apply what you have learned to make your own life to be a

LIFE

Topper () *who's soap box is getting a real workout today*

On Fri, 27 Aug 2004 17:06:13 -0000 "Sue" writes:

Hello allBoth here and on the Internet I have seen several references to Shomon. To be honest I am hesitant to get into her stuff because what I saw seemed to question doctors, etc. While I plan to learn all I can from Internet stuff, I am NOT going to put it instead of or in place of what my doctor tells me to do! LOL one site said you don't need a doctor but can just treat it yourself! My best friend in Fort Lauderdale said she should have just flown up here and cut the stuff out of my neck. :)BUT... after what my surgeon told me yesterday about my symptoms not being related to the thyroid stuff (sheesh!) I am going to dig and get the best info I can. Oops I am rambling... <G> Is anyone familiar with Shomon before I go out and waste money on her books? <G>Sue

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Shomon is one of the true thyroid advocates. And of course the

establishment hates her.

Before you buy her books you can check out about.com/thyroid (I think

thats the address.)

Louise

PS And sometimes you NEED to not listen to Drs. Esp those who only go

by your TSH. Or those who will ONLY prescribe $inthroid. Phooey. We

are not numbers. Treat us by how we feel and let us try something

besides $inthroid.

> Hello all

>

> Both here and on the Internet I have seen several references to

> Shomon. To be honest I am hesitant to get into her stuff because

> what I saw seemed to question doctors, etc. While I plan to learn

> all I can from Internet stuff, I am NOT going to put it instead of

> or in place of what my doctor tells me to do! LOL one site said you

> don't need a doctor but can just treat it yourself! My best friend

> in Fort Lauderdale said she should have just flown up here and cut

> the stuff out of my neck. :)

>

> BUT... after what my surgeon told me yesterday about my symptoms

not

> being related to the thyroid stuff (sheesh!) I am going to dig and

> get the best info I can. Oops I am rambling... <G> Is anyone

> familiar with Shomon before I go out and waste money on her

> books? <G>

>

> Sue

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Shomon is one of the true thyroid advocates. And of course the

establishment hates her.

Before you buy her books you can check out about.com/thyroid (I think

thats the address.)

Louise

PS And sometimes you NEED to not listen to Drs. Esp those who only go

by your TSH. Or those who will ONLY prescribe $inthroid. Phooey. We

are not numbers. Treat us by how we feel and let us try something

besides $inthroid.

> Hello all

>

> Both here and on the Internet I have seen several references to

> Shomon. To be honest I am hesitant to get into her stuff because

> what I saw seemed to question doctors, etc. While I plan to learn

> all I can from Internet stuff, I am NOT going to put it instead of

> or in place of what my doctor tells me to do! LOL one site said you

> don't need a doctor but can just treat it yourself! My best friend

> in Fort Lauderdale said she should have just flown up here and cut

> the stuff out of my neck. :)

>

> BUT... after what my surgeon told me yesterday about my symptoms

not

> being related to the thyroid stuff (sheesh!) I am going to dig and

> get the best info I can. Oops I am rambling... <G> Is anyone

> familiar with Shomon before I go out and waste money on her

> books? <G>

>

> Sue

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Thanks... will check it out!!!

> > Hello all

> >

> > Both here and on the Internet I have seen several references to

>

> > Shomon. To be honest I am hesitant to get into her stuff because

> > what I saw seemed to question doctors, etc. While I plan to

learn

> > all I can from Internet stuff, I am NOT going to put it instead

of

> > or in place of what my doctor tells me to do! LOL one site said

you

> > don't need a doctor but can just treat it yourself! My best

friend

> > in Fort Lauderdale said she should have just flown up here and

cut

> > the stuff out of my neck. :)

> >

> > BUT... after what my surgeon told me yesterday about my symptoms

> not

> > being related to the thyroid stuff (sheesh!) I am going to dig

and

> > get the best info I can. Oops I am rambling... <G> Is anyone

> > familiar with Shomon before I go out and waste money on her

> > books? <G>

> >

> > Sue

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Thanks... will check it out!!!

> > Hello all

> >

> > Both here and on the Internet I have seen several references to

>

> > Shomon. To be honest I am hesitant to get into her stuff because

> > what I saw seemed to question doctors, etc. While I plan to

learn

> > all I can from Internet stuff, I am NOT going to put it instead

of

> > or in place of what my doctor tells me to do! LOL one site said

you

> > don't need a doctor but can just treat it yourself! My best

friend

> > in Fort Lauderdale said she should have just flown up here and

cut

> > the stuff out of my neck. :)

> >

> > BUT... after what my surgeon told me yesterday about my symptoms

> not

> > being related to the thyroid stuff (sheesh!) I am going to dig

and

> > get the best info I can. Oops I am rambling... <G> Is anyone

> > familiar with Shomon before I go out and waste money on her

> > books? <G>

> >

> > Sue

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Thanks... will check it out!!!

> > Hello all

> >

> > Both here and on the Internet I have seen several references to

>

> > Shomon. To be honest I am hesitant to get into her stuff because

> > what I saw seemed to question doctors, etc. While I plan to

learn

> > all I can from Internet stuff, I am NOT going to put it instead

of

> > or in place of what my doctor tells me to do! LOL one site said

you

> > don't need a doctor but can just treat it yourself! My best

friend

> > in Fort Lauderdale said she should have just flown up here and

cut

> > the stuff out of my neck. :)

> >

> > BUT... after what my surgeon told me yesterday about my symptoms

> not

> > being related to the thyroid stuff (sheesh!) I am going to dig

and

> > get the best info I can. Oops I am rambling... <G> Is anyone

> > familiar with Shomon before I go out and waste money on her

> > books? <G>

> >

> > Sue

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Hello Sue

I've been self treating for almost a year now because of the suffering I've

been through at the hands of doctors in my area who know little or nothing

about thyroid disease. I WILL say that I DO know more than the last 4

doctors I had, about THIS disease, and I stand by that whole heartedly. I

may not know much about heart surgery, brain scans, or even thyroid scans,

and that sort of thing, but my disease I have been FORCED into investigating

and knowing. I am doing the exact opposite of what 4 doctors advised and

would not do, and I'm now part of the living, not the walking (or should I

say crawling) dead. It's aLIVE, It's aLIVE!!!! Yes, after yrs of these

nightmarish experiences with this disease, I DO question MOST doctors on the

sbjct, except for a small handful. After yrs of being on synthetic T4 meds,

$ynthroid and Levoxyl both, I made the switch to Armour Thyroid, and I will

NEVER regret it one little bit. Of course, I can't do my own scan or

surgery, but you get the picture on the treatment program---it's my own, and

I'm doing much better.

Shomon????

> Hello all

>

> Both here and on the Internet I have seen several references to

> Shomon. To be honest I am hesitant to get into her stuff because

> what I saw seemed to question doctors, etc. While I plan to learn

> all I can from Internet stuff, I am NOT going to put it instead of

> or in place of what my doctor tells me to do! LOL one site said you

> don't need a doctor but can just treat it yourself! My best friend

> in Fort Lauderdale said she should have just flown up here and cut

> the stuff out of my neck. :)

>

> BUT... after what my surgeon told me yesterday about my symptoms not

> being related to the thyroid stuff (sheesh!) I am going to dig and

> get the best info I can. Oops I am rambling... <G> Is anyone

> familiar with Shomon before I go out and waste money on her

> books? <G>

>

> Sue

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Hello Sue

I've been self treating for almost a year now because of the suffering I've

been through at the hands of doctors in my area who know little or nothing

about thyroid disease. I WILL say that I DO know more than the last 4

doctors I had, about THIS disease, and I stand by that whole heartedly. I

may not know much about heart surgery, brain scans, or even thyroid scans,

and that sort of thing, but my disease I have been FORCED into investigating

and knowing. I am doing the exact opposite of what 4 doctors advised and

would not do, and I'm now part of the living, not the walking (or should I

say crawling) dead. It's aLIVE, It's aLIVE!!!! Yes, after yrs of these

nightmarish experiences with this disease, I DO question MOST doctors on the

sbjct, except for a small handful. After yrs of being on synthetic T4 meds,

$ynthroid and Levoxyl both, I made the switch to Armour Thyroid, and I will

NEVER regret it one little bit. Of course, I can't do my own scan or

surgery, but you get the picture on the treatment program---it's my own, and

I'm doing much better.

Shomon????

> Hello all

>

> Both here and on the Internet I have seen several references to

> Shomon. To be honest I am hesitant to get into her stuff because

> what I saw seemed to question doctors, etc. While I plan to learn

> all I can from Internet stuff, I am NOT going to put it instead of

> or in place of what my doctor tells me to do! LOL one site said you

> don't need a doctor but can just treat it yourself! My best friend

> in Fort Lauderdale said she should have just flown up here and cut

> the stuff out of my neck. :)

>

> BUT... after what my surgeon told me yesterday about my symptoms not

> being related to the thyroid stuff (sheesh!) I am going to dig and

> get the best info I can. Oops I am rambling... <G> Is anyone

> familiar with Shomon before I go out and waste money on her

> books? <G>

>

> Sue

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Thanks ... I am glad you are doing so well!

Perhaps too it partially makes a difference where we live -- those

of us in cities known for advance medical studies and care might

have different experiences than those who don't.

I am NOT negating the experiences of those who have experiences such

as yours. I am just saying that it is VERY dangerous in ANY case to

advise people to go against the advice of their personal

physicians... especially over the Internet to people we don't know.

We have no idea what their other physical OR yes, mental, needs are.

But I don't mean to stir things up... if that is the " general

consensus " of this forum -- to ignore our doctors and treat

ourselves -- perhaps I am just in the wrong forum, as I certainly

don't mean/want to stir things up. :)

Sue

> Hello Sue

>

> I've been self treating for almost a year now because of the

suffering I've

> been through at the hands of doctors in my area who know little or

nothing

> about thyroid disease. I WILL say that I DO know more than the

last 4

> doctors I had, about THIS disease, and I stand by that whole

heartedly. I

> may not know much about heart surgery, brain scans, or even

thyroid scans,

> and that sort of thing, but my disease I have been FORCED into

investigating

> and knowing. I am doing the exact opposite of what 4 doctors

advised and

> would not do, and I'm now part of the living, not the walking (or

should I

> say crawling) dead. It's aLIVE, It's aLIVE!!!! Yes, after yrs of

these

> nightmarish experiences with this disease, I DO question MOST

doctors on the

> sbjct, except for a small handful. After yrs of being on

synthetic T4 meds,

> $ynthroid and Levoxyl both, I made the switch to Armour Thyroid,

and I will

> NEVER regret it one little bit. Of course, I can't do my own scan

or

> surgery, but you get the picture on the treatment program---it's

my own, and

> I'm doing much better.

>

>

>

>

> Shomon????

>

>

> > Hello all

> >

> > Both here and on the Internet I have seen several references to

> > Shomon. To be honest I am hesitant to get into her stuff because

> > what I saw seemed to question doctors, etc. While I plan to learn

> > all I can from Internet stuff, I am NOT going to put it instead

of

> > or in place of what my doctor tells me to do! LOL one site said

you

> > don't need a doctor but can just treat it yourself! My best

friend

> > in Fort Lauderdale said she should have just flown up here and

cut

> > the stuff out of my neck. :)

> >

> > BUT... after what my surgeon told me yesterday about my symptoms

not

> > being related to the thyroid stuff (sheesh!) I am going to dig

and

> > get the best info I can. Oops I am rambling... <G> Is anyone

> > familiar with Shomon before I go out and waste money on her

> > books? <G>

> >

> > Sue

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Sue.. I think our reason for being here is to share our research and experiences to increase our individual knowledge. You need to be aware of symptoms, options and availabilities to be able to make any decisions about anything.

I would say a majority of the folks here are seeing docs, some good, some bad... my own choice for self medicating was based on financial issues. With no insurance, etc... it was take care of my self or just wait to die....

You are more than welcome here... we all have information and points of view to share.

You are fortunate that your experiences have been positive..

Topper ()

On Sat, 28 Aug 2004 17:01:56 -0000 "Sue" writes:

Thanks ... I am glad you are doing so well! Perhaps too it partially makes a difference where we live -- those of us in cities known for advance medical studies and care might have different experiences than those who don't.I am NOT negating the experiences of those who have experiences such as yours. I am just saying that it is VERY dangerous in ANY case to advise people to go against the advice of their personal physicians... especially over the Internet to people we don't know. We have no idea what their other physical OR yes, mental, needs are.But I don't mean to stir things up... if that is the "general consensus" of this forum -- to ignore our doctors and treat ourselves -- perhaps I am just in the wrong forum, as I certainly don't mean/want to stir things up. :) Sue

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Sue.. I think our reason for being here is to share our research and experiences to increase our individual knowledge. You need to be aware of symptoms, options and availabilities to be able to make any decisions about anything.

I would say a majority of the folks here are seeing docs, some good, some bad... my own choice for self medicating was based on financial issues. With no insurance, etc... it was take care of my self or just wait to die....

You are more than welcome here... we all have information and points of view to share.

You are fortunate that your experiences have been positive..

Topper ()

On Sat, 28 Aug 2004 17:01:56 -0000 "Sue" writes:

Thanks ... I am glad you are doing so well! Perhaps too it partially makes a difference where we live -- those of us in cities known for advance medical studies and care might have different experiences than those who don't.I am NOT negating the experiences of those who have experiences such as yours. I am just saying that it is VERY dangerous in ANY case to advise people to go against the advice of their personal physicians... especially over the Internet to people we don't know. We have no idea what their other physical OR yes, mental, needs are.But I don't mean to stir things up... if that is the "general consensus" of this forum -- to ignore our doctors and treat ourselves -- perhaps I am just in the wrong forum, as I certainly don't mean/want to stir things up. :) Sue

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Sue.. I think our reason for being here is to share our research and experiences to increase our individual knowledge. You need to be aware of symptoms, options and availabilities to be able to make any decisions about anything.

I would say a majority of the folks here are seeing docs, some good, some bad... my own choice for self medicating was based on financial issues. With no insurance, etc... it was take care of my self or just wait to die....

You are more than welcome here... we all have information and points of view to share.

You are fortunate that your experiences have been positive..

Topper ()

On Sat, 28 Aug 2004 17:01:56 -0000 "Sue" writes:

Thanks ... I am glad you are doing so well! Perhaps too it partially makes a difference where we live -- those of us in cities known for advance medical studies and care might have different experiences than those who don't.I am NOT negating the experiences of those who have experiences such as yours. I am just saying that it is VERY dangerous in ANY case to advise people to go against the advice of their personal physicians... especially over the Internet to people we don't know. We have no idea what their other physical OR yes, mental, needs are.But I don't mean to stir things up... if that is the "general consensus" of this forum -- to ignore our doctors and treat ourselves -- perhaps I am just in the wrong forum, as I certainly don't mean/want to stir things up. :) Sue

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Plantar Fasciitis is related to thyroid disorders? Interesting... I

have had that for quite some time.

Sue

> I agree with you, .... docs that aren't familiar with this,

and as

> common as it is they really should be... have caused me so much

agony....

> When I went in with a problem with my foot, so bad that I could

not walk

> on it.... the doc said that it was Plantar Faciitis. He showed me

some

> exercises, gave me a little plastic heal cup to put in my shoe.

Told me

> how much Ibuprohem I should take a day to bear the pain. Gave me a

note

> for my boss that said that I was to do NO walking for a full two

weeks...

> AND said that I would deal with it for life, the cause? I was fat.

>

> He asked me a dozen times, at least, if I remember hearing when it

> snapped. I told him that I had not.

>

> Then... years later... after needing crutches to walk because of

the

> pain, I find out it is a common symptom of hypothyroidism. That it

is

> cause for labs to be done to check hormone levels and to increase.

Even

> though this doc was in the same small clinic that the doc I was

seeing

> for thyroid was, they never conferred. When I went in for my next

labs,

> even though the notation was in my files that I had PF and I

walked in

> with a severe limp and pain... My dosage was not increased, the

condition

> was not discussed and I was just left to suffer.

>

> The additional pain that I went through during the months that I

was on

> crutches, when I could not even set my foot on the ground, forget

about

> walking or standing, included the tendons going up the back of the

leg

> with the bad foot and up into my back, strain and stress to the

good leg

> resulting in strained and pulled muscles, plus the affect on my

> shoulders, arm pits and upper back from using the crutches. AND on

top of

> all of that, because I used them for so long with no visible cast

I was

> mocked on the public bus going to and from work, folks often not

giving

> me a seat because they felt that I only used the crutches to get a

seat.

> One time I even fell trying to struggle to stay on the crutches

and hold

> the bar to balance.

>

> Now I'm treating my self. Adjusting the dosage and timing

according to my

> symptoms. Not only do I not need crutches to walk, I don't need

that

> stupid heal cup anymore!!! And, unless I'm going out and about I

don't

> even wear shoes. My foot is fine. So is my back and the leg

tendons.....

>

> All from getting on the correct dose of replacement hormone. On my

own.

>

> Topper ()

>

> On Sat, 28 Aug 2004 10:36:33 -0500 " " <marin@q...>

writes:

> Hello Sue

>

> I've been self treating for almost a year now because of the

suffering

> I've

> been through at the hands of doctors in my area who know little or

> nothing

> about thyroid disease. I WILL say that I DO know more than the

last 4

> doctors I had, about THIS disease, and I stand by that whole

heartedly.

> I

> may not know much about heart surgery, brain scans, or even thyroid

> scans,

> and that sort of thing, but my disease I have been FORCED into

> investigating

> and knowing. I am doing the exact opposite of what 4 doctors

advised and

> would not do, and I'm now part of the living, not the walking (or

should

> I

> say crawling) dead. It's aLIVE, It's aLIVE!!!! Yes, after yrs of

these

> nightmarish experiences with this disease, I DO question MOST

doctors on

> the

> sbjct, except for a small handful. After yrs of being on

synthetic T4

> meds,

> $ynthroid and Levoxyl both, I made the switch to Armour Thyroid,

and I

> will

> NEVER regret it one little bit. Of course, I can't do my own scan

or

> surgery, but you get the picture on the treatment program---it's

my own,

> and

> I'm doing much better.

>

>

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Share on other sites

Plantar Fasciitis is related to thyroid disorders? Interesting... I

have had that for quite some time.

Sue

> I agree with you, .... docs that aren't familiar with this,

and as

> common as it is they really should be... have caused me so much

agony....

> When I went in with a problem with my foot, so bad that I could

not walk

> on it.... the doc said that it was Plantar Faciitis. He showed me

some

> exercises, gave me a little plastic heal cup to put in my shoe.

Told me

> how much Ibuprohem I should take a day to bear the pain. Gave me a

note

> for my boss that said that I was to do NO walking for a full two

weeks...

> AND said that I would deal with it for life, the cause? I was fat.

>

> He asked me a dozen times, at least, if I remember hearing when it

> snapped. I told him that I had not.

>

> Then... years later... after needing crutches to walk because of

the

> pain, I find out it is a common symptom of hypothyroidism. That it

is

> cause for labs to be done to check hormone levels and to increase.

Even

> though this doc was in the same small clinic that the doc I was

seeing

> for thyroid was, they never conferred. When I went in for my next

labs,

> even though the notation was in my files that I had PF and I

walked in

> with a severe limp and pain... My dosage was not increased, the

condition

> was not discussed and I was just left to suffer.

>

> The additional pain that I went through during the months that I

was on

> crutches, when I could not even set my foot on the ground, forget

about

> walking or standing, included the tendons going up the back of the

leg

> with the bad foot and up into my back, strain and stress to the

good leg

> resulting in strained and pulled muscles, plus the affect on my

> shoulders, arm pits and upper back from using the crutches. AND on

top of

> all of that, because I used them for so long with no visible cast

I was

> mocked on the public bus going to and from work, folks often not

giving

> me a seat because they felt that I only used the crutches to get a

seat.

> One time I even fell trying to struggle to stay on the crutches

and hold

> the bar to balance.

>

> Now I'm treating my self. Adjusting the dosage and timing

according to my

> symptoms. Not only do I not need crutches to walk, I don't need

that

> stupid heal cup anymore!!! And, unless I'm going out and about I

don't

> even wear shoes. My foot is fine. So is my back and the leg

tendons.....

>

> All from getting on the correct dose of replacement hormone. On my

own.

>

> Topper ()

>

> On Sat, 28 Aug 2004 10:36:33 -0500 " " <marin@q...>

writes:

> Hello Sue

>

> I've been self treating for almost a year now because of the

suffering

> I've

> been through at the hands of doctors in my area who know little or

> nothing

> about thyroid disease. I WILL say that I DO know more than the

last 4

> doctors I had, about THIS disease, and I stand by that whole

heartedly.

> I

> may not know much about heart surgery, brain scans, or even thyroid

> scans,

> and that sort of thing, but my disease I have been FORCED into

> investigating

> and knowing. I am doing the exact opposite of what 4 doctors

advised and

> would not do, and I'm now part of the living, not the walking (or

should

> I

> say crawling) dead. It's aLIVE, It's aLIVE!!!! Yes, after yrs of

these

> nightmarish experiences with this disease, I DO question MOST

doctors on

> the

> sbjct, except for a small handful. After yrs of being on

synthetic T4

> meds,

> $ynthroid and Levoxyl both, I made the switch to Armour Thyroid,

and I

> will

> NEVER regret it one little bit. Of course, I can't do my own scan

or

> surgery, but you get the picture on the treatment program---it's

my own,

> and

> I'm doing much better.

>

>

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Plantar Fasciitis is related to thyroid disorders? Interesting... I

have had that for quite some time.

Sue

> I agree with you, .... docs that aren't familiar with this,

and as

> common as it is they really should be... have caused me so much

agony....

> When I went in with a problem with my foot, so bad that I could

not walk

> on it.... the doc said that it was Plantar Faciitis. He showed me

some

> exercises, gave me a little plastic heal cup to put in my shoe.

Told me

> how much Ibuprohem I should take a day to bear the pain. Gave me a

note

> for my boss that said that I was to do NO walking for a full two

weeks...

> AND said that I would deal with it for life, the cause? I was fat.

>

> He asked me a dozen times, at least, if I remember hearing when it

> snapped. I told him that I had not.

>

> Then... years later... after needing crutches to walk because of

the

> pain, I find out it is a common symptom of hypothyroidism. That it

is

> cause for labs to be done to check hormone levels and to increase.

Even

> though this doc was in the same small clinic that the doc I was

seeing

> for thyroid was, they never conferred. When I went in for my next

labs,

> even though the notation was in my files that I had PF and I

walked in

> with a severe limp and pain... My dosage was not increased, the

condition

> was not discussed and I was just left to suffer.

>

> The additional pain that I went through during the months that I

was on

> crutches, when I could not even set my foot on the ground, forget

about

> walking or standing, included the tendons going up the back of the

leg

> with the bad foot and up into my back, strain and stress to the

good leg

> resulting in strained and pulled muscles, plus the affect on my

> shoulders, arm pits and upper back from using the crutches. AND on

top of

> all of that, because I used them for so long with no visible cast

I was

> mocked on the public bus going to and from work, folks often not

giving

> me a seat because they felt that I only used the crutches to get a

seat.

> One time I even fell trying to struggle to stay on the crutches

and hold

> the bar to balance.

>

> Now I'm treating my self. Adjusting the dosage and timing

according to my

> symptoms. Not only do I not need crutches to walk, I don't need

that

> stupid heal cup anymore!!! And, unless I'm going out and about I

don't

> even wear shoes. My foot is fine. So is my back and the leg

tendons.....

>

> All from getting on the correct dose of replacement hormone. On my

own.

>

> Topper ()

>

> On Sat, 28 Aug 2004 10:36:33 -0500 " " <marin@q...>

writes:

> Hello Sue

>

> I've been self treating for almost a year now because of the

suffering

> I've

> been through at the hands of doctors in my area who know little or

> nothing

> about thyroid disease. I WILL say that I DO know more than the

last 4

> doctors I had, about THIS disease, and I stand by that whole

heartedly.

> I

> may not know much about heart surgery, brain scans, or even thyroid

> scans,

> and that sort of thing, but my disease I have been FORCED into

> investigating

> and knowing. I am doing the exact opposite of what 4 doctors

advised and

> would not do, and I'm now part of the living, not the walking (or

should

> I

> say crawling) dead. It's aLIVE, It's aLIVE!!!! Yes, after yrs of

these

> nightmarish experiences with this disease, I DO question MOST

doctors on

> the

> sbjct, except for a small handful. After yrs of being on

synthetic T4

> meds,

> $ynthroid and Levoxyl both, I made the switch to Armour Thyroid,

and I

> will

> NEVER regret it one little bit. Of course, I can't do my own scan

or

> surgery, but you get the picture on the treatment program---it's

my own,

> and

> I'm doing much better.

>

>

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Share on other sites

Oh and I agree, Topper! I have learned TONS here already and greatly

appreciate this forum.

And I understand about the financial issues, for sure! One thing I

am SO thankful for -- I worked for a non-profit and went 4 years

with NO insurance. Two years ago I left and got a great job with

incredibly good health insurance... whew!!! Thanks, Lord!! :) So

when I needed it, it was there, and even short term and long term

disability. I was VERY fortunate that it didn't happen when I had no

insurance!! And of COURSE you have to do what you have to do in

those situations!!!

It is sad that those who genuinely need health care can't get it.

<sigh>

Sue

> Sue.. I think our reason for being here is to share our research

and

> experiences to increase our individual knowledge. You need to be

aware of

> symptoms, options and availabilities to be able to make any

decisions

> about anything.

>

> I would say a majority of the folks here are seeing docs, some

good, some

> bad... my own choice for self medicating was based on financial

issues.

> With no insurance, etc... it was take care of my self or just wait

to

> die....

>

> You are more than welcome here... we all have information and

points of

> view to share.

>

> You are fortunate that your experiences have been positive..

>

> Topper ()

>

> On Sat, 28 Aug 2004 17:01:56 -0000 " Sue " <dance4joy7@h...> writes:

> Thanks ... I am glad you are doing so well!

>

> Perhaps too it partially makes a difference where we live -- those

> of us in cities known for advance medical studies and care might

> have different experiences than those who don't.

>

> I am NOT negating the experiences of those who have experiences

such

> as yours. I am just saying that it is VERY dangerous in ANY case

to

> advise people to go against the advice of their personal

> physicians... especially over the Internet to people we don't

know.

> We have no idea what their other physical OR yes, mental, needs

are.

>

> But I don't mean to stir things up... if that is the " general

> consensus " of this forum -- to ignore our doctors and treat

> ourselves -- perhaps I am just in the wrong forum, as I certainly

> don't mean/want to stir things up. :)

>

> Sue

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Share on other sites

Oh and I agree, Topper! I have learned TONS here already and greatly

appreciate this forum.

And I understand about the financial issues, for sure! One thing I

am SO thankful for -- I worked for a non-profit and went 4 years

with NO insurance. Two years ago I left and got a great job with

incredibly good health insurance... whew!!! Thanks, Lord!! :) So

when I needed it, it was there, and even short term and long term

disability. I was VERY fortunate that it didn't happen when I had no

insurance!! And of COURSE you have to do what you have to do in

those situations!!!

It is sad that those who genuinely need health care can't get it.

<sigh>

Sue

> Sue.. I think our reason for being here is to share our research

and

> experiences to increase our individual knowledge. You need to be

aware of

> symptoms, options and availabilities to be able to make any

decisions

> about anything.

>

> I would say a majority of the folks here are seeing docs, some

good, some

> bad... my own choice for self medicating was based on financial

issues.

> With no insurance, etc... it was take care of my self or just wait

to

> die....

>

> You are more than welcome here... we all have information and

points of

> view to share.

>

> You are fortunate that your experiences have been positive..

>

> Topper ()

>

> On Sat, 28 Aug 2004 17:01:56 -0000 " Sue " <dance4joy7@h...> writes:

> Thanks ... I am glad you are doing so well!

>

> Perhaps too it partially makes a difference where we live -- those

> of us in cities known for advance medical studies and care might

> have different experiences than those who don't.

>

> I am NOT negating the experiences of those who have experiences

such

> as yours. I am just saying that it is VERY dangerous in ANY case

to

> advise people to go against the advice of their personal

> physicians... especially over the Internet to people we don't

know.

> We have no idea what their other physical OR yes, mental, needs

are.

>

> But I don't mean to stir things up... if that is the " general

> consensus " of this forum -- to ignore our doctors and treat

> ourselves -- perhaps I am just in the wrong forum, as I certainly

> don't mean/want to stir things up. :)

>

> Sue

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Share on other sites

Oh and I agree, Topper! I have learned TONS here already and greatly

appreciate this forum.

And I understand about the financial issues, for sure! One thing I

am SO thankful for -- I worked for a non-profit and went 4 years

with NO insurance. Two years ago I left and got a great job with

incredibly good health insurance... whew!!! Thanks, Lord!! :) So

when I needed it, it was there, and even short term and long term

disability. I was VERY fortunate that it didn't happen when I had no

insurance!! And of COURSE you have to do what you have to do in

those situations!!!

It is sad that those who genuinely need health care can't get it.

<sigh>

Sue

> Sue.. I think our reason for being here is to share our research

and

> experiences to increase our individual knowledge. You need to be

aware of

> symptoms, options and availabilities to be able to make any

decisions

> about anything.

>

> I would say a majority of the folks here are seeing docs, some

good, some

> bad... my own choice for self medicating was based on financial

issues.

> With no insurance, etc... it was take care of my self or just wait

to

> die....

>

> You are more than welcome here... we all have information and

points of

> view to share.

>

> You are fortunate that your experiences have been positive..

>

> Topper ()

>

> On Sat, 28 Aug 2004 17:01:56 -0000 " Sue " <dance4joy7@h...> writes:

> Thanks ... I am glad you are doing so well!

>

> Perhaps too it partially makes a difference where we live -- those

> of us in cities known for advance medical studies and care might

> have different experiences than those who don't.

>

> I am NOT negating the experiences of those who have experiences

such

> as yours. I am just saying that it is VERY dangerous in ANY case

to

> advise people to go against the advice of their personal

> physicians... especially over the Internet to people we don't

know.

> We have no idea what their other physical OR yes, mental, needs

are.

>

> But I don't mean to stir things up... if that is the " general

> consensus " of this forum -- to ignore our doctors and treat

> ourselves -- perhaps I am just in the wrong forum, as I certainly

> don't mean/want to stir things up. :)

>

> Sue

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Share on other sites

It's a common injury for athletes and heavy folks, almost always preceded by a prominent 'snap' as the tendon damage occurs. But it is also a warning flag symptom for low thyroid function/ low hormone, easily differentiated by the lack of the 'snap' at time of injury. It's the same thing with carpal tunnel. It's definitely a repetitive stress injury.. but it's the same over exertion symptom of someone that is hypo and not recovering/healing from normal use.

An athletic injury is lifelong... hypo induced is recoverable.

Topper ()

On Sat, 28 Aug 2004 22:34:51 -0000 "Sue" writes:

Plantar Fasciitis is related to thyroid disorders? Interesting... I have had that for quite some time.Sue

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Well I am definitely in the " heavy " category... am really hoping

that now that my thyroid stuff is being handled I can lose. I was

losing really well and all of a sudden just could NOT lose any

more! Of course this month while I have been off work I have gotten

a bad case of munchies. <G> It will help when I go back to work on

Monday and am too BUSY to eat. <G>

Sue

> It's a common injury for athletes and heavy folks, almost always

preceded

> by a prominent 'snap' as the tendon damage occurs. But it is also a

> warning flag symptom for low thyroid function/ low hormone, easily

> differentiated by the lack of the 'snap' at time of injury. It's

the same

> thing with carpal tunnel. It's definitely a repetitive stress

injury..

> but it's the same over exertion symptom of someone that is hypo

and not

> recovering/healing from normal use.

>

> An athletic injury is lifelong... hypo induced is recoverable.

>

> Topper ()

>

> On Sat, 28 Aug 2004 22:34:51 -0000 " Sue " <dance4joy7@h...> writes:

> Plantar Fasciitis is related to thyroid disorders? Interesting...

I

> have had that for quite some time.

>

> Sue

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