Re: Re: 6mw

October 15, 2007

Thank you . I don't have oxygen yet. I don't feel I need it at this stage. I'm still pretty active and getting ready to go bowling. I get tired of course after three games but what I find most interesting, is I don't always get breathless. Just sometimes.

I have honeycombing in my lungs according to the tests they put me through. Sometimes I can walk out to the mailbox (probably three city blocks) and be very breathless then the next time I do real well.

I am going to buy the finger clip. Any recommendations from anyone on brand and prices?

Kay

Re: 6mw

The six minute walk can be done in the simplest of ways. My first one was a few laps just at normal walking speed with the nurse around the doctors office. Typically you wear the clip the entire time as they may observe how quickly it drops and also want a reading as soon as you hit six minutes. This is the easiest and earliest indication of loss of oxygen and a significant drop from this walk should lead to a pulmonologist. My primary physician honestly expected nothing to happen and when mine dropped to 85% he said "thats lower than I would have expected". He then gave me one breathing test and made the referral. As I'm in the early stages of determining when to use oxygen and how much I use my oximeter a lot to see what specific activities do. For instance, my first time on my treadmill with oxygen, I saw it dropping when I started with 2 ml and saw a drop in oxygen when I hit 2 mph so I turned it up to 3 ml and 2 and 2.5 mph were no problem. In fact, a nice little surprise. I found it no harder to walk at 2.5 mph on 3 ml than I did at 1 and 1.5 mph on 2 ml. Now most here have enough experience to know their oxygen needs by feel. Oxygen treatment serves two purpsoes. One is to give you the energy and oxygen to carry on activities. ly, I am not to the point I would use it for that. Carrying groceries in and breathing hard is still easier for me than carrying them in on oxygen. However, the second purpose is to protect all your other organs. Low oxygen levels can lead to damage of nearly every organ of your body. That's my main purpose in oxygen today. I don't want to put the added strain on the right side of my heart or increase my pulmonary hypertension or cause damage to kidneys that aren't as good as I wish to start with. Lung disease is enough without hurrying the damage to other organs.>> Hi,> > I would like to know more about this 6 minute walk test. Do you just walk at your own pace for 6 minutes? On a treadmill, or down the street? Do you keep the clip on your finger the whole time or just measure your oxygen level at the end of the walk?> Kay> Sjogren's IPF/HHT 9-18-07> Oregon> If there is no bright side,> polish up the dark side.>

October 15, 2007

Hi kay, I personally love my Nonin pulse oximeter. It just clips on your finger. I've had it four years and it's still going strong. It's nice to know what your saturation is - personally, I think we should all have it as a diagnostic tool. Some docs are hesitant to give us one because they think we'll be a slave to it. I think it would help them do their job better and help us to be move proactive about our health. Leanne uip 1/03 Illinoiskay wrote: Thank you . I don't have oxygen yet. I don't feel I need it at this stage. I'm still pretty active and getting ready to go bowling. I get tired of course after three games but what I find most interesting, is I don't always get breathless. Just sometimes. I have honeycombing in my lungs according to the tests they put me through. Sometimes I can walk out to the mailbox (probably three city blocks) and be very breathless then the next time I do real well. I am going to buy the finger clip. Any recommendations from anyone on

brand and prices? Kay Re: 6mw The six minute walk can be done in the simplest of ways. My first one was a few laps just at normal walking speed with the nurse around the doctors office. Typically you wear the clip the entire time as they may observe how quickly it drops and also want a reading as soon as you hit six minutes. This is the easiest and earliest indication of loss of oxygen and a significant drop from this walk should lead to a pulmonologist. My primary physician honestly expected nothing to happen and when mine dropped to 85% he said "thats lower than I would have expected". He then gave me one breathing test and made the referral. As I'm in the early stages of determining when to use oxygen and how much I use my oximeter a lot to see what specific activities do. For instance, my first time on my treadmill with oxygen, I saw it dropping when I started with 2 ml and saw a drop in oxygen when I hit 2 mph so I turned it up to 3 ml

and 2 and 2.5 mph were no problem. In fact, a nice little surprise. I found it no harder to walk at 2.5 mph on 3 ml than I did at 1 and 1.5 mph on 2 ml. Now most here have enough experience to know their oxygen needs by feel. Oxygen treatment serves two purpsoes. One is to give you the energy and oxygen to carry on activities. ly, I am not to the point I would use it for that. Carrying groceries in and breathing hard is still easier for me than carrying them in on oxygen. However, the second purpose is to protect all your other organs. Low oxygen levels can lead to damage of nearly every organ of your body. That's my main purpose in oxygen today. I don't want to put the added strain on the right side of my heart or increase my pulmonary hypertension or cause damage to kidneys that aren't as good as I wish to start with. Lung disease is enough without hurrying the damage to other organs.>> Hi,> > I would like to know more about this 6 minute walk test. Do you just walk at your own pace for 6 minutes? On a treadmill, or down the street? Do you keep the clip on your finger the whole time or just measure your oxygen level at the end of the walk?> Kay> Sjogren's IPF/HHT 9-18-07> Oregon> If there is no bright side,> polish up the dark side.>

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October 15, 2007

Hi kay, I personally love my Nonin pulse oximeter. It just clips on your finger. I've had it four years and it's still going strong. It's nice to know what your saturation is - personally, I think we should all have it as a diagnostic tool. Some docs are hesitant to give us one because they think we'll be a slave to it. I think it would help them do their job better and help us to be move proactive about our health. Leanne uip 1/03 Illinoiskay wrote: Thank you . I don't have oxygen yet. I don't feel I need it at this stage. I'm still pretty active and getting ready to go bowling. I get tired of course after three games but what I find most interesting, is I don't always get breathless. Just sometimes. I have honeycombing in my lungs according to the tests they put me through. Sometimes I can walk out to the mailbox (probably three city blocks) and be very breathless then the next time I do real well. I am going to buy the finger clip. Any recommendations from anyone on

brand and prices? Kay Re: 6mw The six minute walk can be done in the simplest of ways. My first one was a few laps just at normal walking speed with the nurse around the doctors office. Typically you wear the clip the entire time as they may observe how quickly it drops and also want a reading as soon as you hit six minutes. This is the easiest and earliest indication of loss of oxygen and a significant drop from this walk should lead to a pulmonologist. My primary physician honestly expected nothing to happen and when mine dropped to 85% he said "thats lower than I would have expected". He then gave me one breathing test and made the referral. As I'm in the early stages of determining when to use oxygen and how much I use my oximeter a lot to see what specific activities do. For instance, my first time on my treadmill with oxygen, I saw it dropping when I started with 2 ml and saw a drop in oxygen when I hit 2 mph so I turned it up to 3 ml

and 2 and 2.5 mph were no problem. In fact, a nice little surprise. I found it no harder to walk at 2.5 mph on 3 ml than I did at 1 and 1.5 mph on 2 ml. Now most here have enough experience to know their oxygen needs by feel. Oxygen treatment serves two purpsoes. One is to give you the energy and oxygen to carry on activities. ly, I am not to the point I would use it for that. Carrying groceries in and breathing hard is still easier for me than carrying them in on oxygen. However, the second purpose is to protect all your other organs. Low oxygen levels can lead to damage of nearly every organ of your body. That's my main purpose in oxygen today. I don't want to put the added strain on the right side of my heart or increase my pulmonary hypertension or cause damage to kidneys that aren't as good as I wish to start with. Lung disease is enough without hurrying the damage to other organs.>> Hi,> > I would like to know more about this 6 minute walk test. Do you just walk at your own pace for 6 minutes? On a treadmill, or down the street? Do you keep the clip on your finger the whole time or just measure your oxygen level at the end of the walk?> Kay> Sjogren's IPF/HHT 9-18-07> Oregon> If there is no bright side,> polish up the dark side.>

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October 15, 2007

Hi kay, I personally love my Nonin pulse oximeter. It just clips on your finger. I've had it four years and it's still going strong. It's nice to know what your saturation is - personally, I think we should all have it as a diagnostic tool. Some docs are hesitant to give us one because they think we'll be a slave to it. I think it would help them do their job better and help us to be move proactive about our health. Leanne uip 1/03 Illinoiskay wrote: Thank you . I don't have oxygen yet. I don't feel I need it at this stage. I'm still pretty active and getting ready to go bowling. I get tired of course after three games but what I find most interesting, is I don't always get breathless. Just sometimes. I have honeycombing in my lungs according to the tests they put me through. Sometimes I can walk out to the mailbox (probably three city blocks) and be very breathless then the next time I do real well. I am going to buy the finger clip. Any recommendations from anyone on

brand and prices? Kay Re: 6mw The six minute walk can be done in the simplest of ways. My first one was a few laps just at normal walking speed with the nurse around the doctors office. Typically you wear the clip the entire time as they may observe how quickly it drops and also want a reading as soon as you hit six minutes. This is the easiest and earliest indication of loss of oxygen and a significant drop from this walk should lead to a pulmonologist. My primary physician honestly expected nothing to happen and when mine dropped to 85% he said "thats lower than I would have expected". He then gave me one breathing test and made the referral. As I'm in the early stages of determining when to use oxygen and how much I use my oximeter a lot to see what specific activities do. For instance, my first time on my treadmill with oxygen, I saw it dropping when I started with 2 ml and saw a drop in oxygen when I hit 2 mph so I turned it up to 3 ml

and 2 and 2.5 mph were no problem. In fact, a nice little surprise. I found it no harder to walk at 2.5 mph on 3 ml than I did at 1 and 1.5 mph on 2 ml. Now most here have enough experience to know their oxygen needs by feel. Oxygen treatment serves two purpsoes. One is to give you the energy and oxygen to carry on activities. ly, I am not to the point I would use it for that. Carrying groceries in and breathing hard is still easier for me than carrying them in on oxygen. However, the second purpose is to protect all your other organs. Low oxygen levels can lead to damage of nearly every organ of your body. That's my main purpose in oxygen today. I don't want to put the added strain on the right side of my heart or increase my pulmonary hypertension or cause damage to kidneys that aren't as good as I wish to start with. Lung disease is enough without hurrying the damage to other organs.>> Hi,> > I would like to know more about this 6 minute walk test. Do you just walk at your own pace for 6 minutes? On a treadmill, or down the street? Do you keep the clip on your finger the whole time or just measure your oxygen level at the end of the walk?> Kay> Sjogren's IPF/HHT 9-18-07> Oregon> If there is no bright side,> polish up the dark side.>

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October 15, 2007

I know someone who has the clip on the finger type and he's had it for several years and is happy with it. I think he said he paid approx $250.00 ish.

Kay

Re: 6mw

The six minute walk can be done in the simplest of ways. My first one was a few laps just at normal walking speed with the nurse around the doctors office. Typically you wear the clip the entire time as they may observe how quickly it drops and also want a reading as soon as you hit six minutes. This is the easiest and earliest indication of loss of oxygen and a significant drop from this walk should lead to a pulmonologist. My primary physician honestly expected nothing to happen and when mine dropped to 85% he said "thats lower than I would have expected". He then gave me one breathing test and made the referral. As I'm in the early stages of determining when to use oxygen and how much I use my oximeter a lot to see what specific activities do. For instance, my first time on my treadmill with oxygen, I saw it dropping when I started with 2 ml and saw a drop in oxygen when I hit 2 mph so I turned it up to 3 ml and 2 and 2.5 mph were no problem. In fact, a nice little surprise. I found it no harder to walk at 2.5 mph on 3 ml than I did at 1 and 1.5 mph on 2 ml. Now most here have enough experience to know their oxygen needs by feel. Oxygen treatment serves two purpsoes. One is to give you the energy and oxygen to carry on activities. ly, I am not to the point I would use it for that. Carrying groceries in and breathing hard is still easier for me than carrying them in on oxygen. However, the second purpose is to protect all your other organs. Low oxygen levels can lead to damage of nearly every organ of your body. That's my main purpose in oxygen today. I don't want to put the added strain on the right side of my heart or increase my pulmonary hypertension or cause damage to kidneys that aren't as good as I wish to start with. Lung disease is enough without hurrying the damage to other organs.>> Hi,> > I would like to know more about this 6 minute walk test. Do you just walk at your own pace for 6 minutes? On a treadmill, or down the street? Do you keep the clip on your finger the whole time or just measure your oxygen level at the end of the walk?> Kay> Sjogren's IPF/HHT 9-18-07> Oregon> If there is no bright side,> polish up the dark side.>

Need a vacation? Get great deals to amazing places on Yahoo! Travel.

October 15, 2007

I know someone who has the clip on the finger type and he's had it for several years and is happy with it. I think he said he paid approx $250.00 ish.

Kay

Re: 6mw

The six minute walk can be done in the simplest of ways. My first one was a few laps just at normal walking speed with the nurse around the doctors office. Typically you wear the clip the entire time as they may observe how quickly it drops and also want a reading as soon as you hit six minutes. This is the easiest and earliest indication of loss of oxygen and a significant drop from this walk should lead to a pulmonologist. My primary physician honestly expected nothing to happen and when mine dropped to 85% he said "thats lower than I would have expected". He then gave me one breathing test and made the referral. As I'm in the early stages of determining when to use oxygen and how much I use my oximeter a lot to see what specific activities do. For instance, my first time on my treadmill with oxygen, I saw it dropping when I started with 2 ml and saw a drop in oxygen when I hit 2 mph so I turned it up to 3 ml and 2 and 2.5 mph were no problem. In fact, a nice little surprise. I found it no harder to walk at 2.5 mph on 3 ml than I did at 1 and 1.5 mph on 2 ml. Now most here have enough experience to know their oxygen needs by feel. Oxygen treatment serves two purpsoes. One is to give you the energy and oxygen to carry on activities. ly, I am not to the point I would use it for that. Carrying groceries in and breathing hard is still easier for me than carrying them in on oxygen. However, the second purpose is to protect all your other organs. Low oxygen levels can lead to damage of nearly every organ of your body. That's my main purpose in oxygen today. I don't want to put the added strain on the right side of my heart or increase my pulmonary hypertension or cause damage to kidneys that aren't as good as I wish to start with. Lung disease is enough without hurrying the damage to other organs.>> Hi,> > I would like to know more about this 6 minute walk test. Do you just walk at your own pace for 6 minutes? On a treadmill, or down the street? Do you keep the clip on your finger the whole time or just measure your oxygen level at the end of the walk?> Kay> Sjogren's IPF/HHT 9-18-07> Oregon> If there is no bright side,> polish up the dark side.>

Need a vacation? Get great deals to amazing places on Yahoo! Travel.

October 15, 2007

I know someone who has the clip on the finger type and he's had it for several years and is happy with it. I think he said he paid approx $250.00 ish.

Kay

Re: 6mw

The six minute walk can be done in the simplest of ways. My first one was a few laps just at normal walking speed with the nurse around the doctors office. Typically you wear the clip the entire time as they may observe how quickly it drops and also want a reading as soon as you hit six minutes. This is the easiest and earliest indication of loss of oxygen and a significant drop from this walk should lead to a pulmonologist. My primary physician honestly expected nothing to happen and when mine dropped to 85% he said "thats lower than I would have expected". He then gave me one breathing test and made the referral. As I'm in the early stages of determining when to use oxygen and how much I use my oximeter a lot to see what specific activities do. For instance, my first time on my treadmill with oxygen, I saw it dropping when I started with 2 ml and saw a drop in oxygen when I hit 2 mph so I turned it up to 3 ml and 2 and 2.5 mph were no problem. In fact, a nice little surprise. I found it no harder to walk at 2.5 mph on 3 ml than I did at 1 and 1.5 mph on 2 ml. Now most here have enough experience to know their oxygen needs by feel. Oxygen treatment serves two purpsoes. One is to give you the energy and oxygen to carry on activities. ly, I am not to the point I would use it for that. Carrying groceries in and breathing hard is still easier for me than carrying them in on oxygen. However, the second purpose is to protect all your other organs. Low oxygen levels can lead to damage of nearly every organ of your body. That's my main purpose in oxygen today. I don't want to put the added strain on the right side of my heart or increase my pulmonary hypertension or cause damage to kidneys that aren't as good as I wish to start with. Lung disease is enough without hurrying the damage to other organs.>> Hi,> > I would like to know more about this 6 minute walk test. Do you just walk at your own pace for 6 minutes? On a treadmill, or down the street? Do you keep the clip on your finger the whole time or just measure your oxygen level at the end of the walk?> Kay> Sjogren's IPF/HHT 9-18-07> Oregon> If there is no bright side,> polish up the dark side.>

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October 16, 2007

Hi Peggy ( and everyone), Been sick and in bed so haven't been posting ( just a bad cold). I have a few cute jokes I want to post to everyone, but I am not sure how to do it. Each time I try it gets daimoned. Since you are the joke queen I thought you could help. Thanks- Sarcoid/PF 3/2006 CAlifPeggy wrote: Jim , google nonin 9500 and you'll find the one Leanne and I have. It is the same one my Pulm. Dr and my prim Dr carry. I really like it. they run around 200. to

229. worth every penny. Love and Prayers, Peggy ipf 6/04 Florida "Worry looks around, Sorry looks back, Faith looks up." , glad you mentioned oximeters, I've been meaning to ask. I purchased one about 6 weeks ago and it does not seem to be right........I go to the local clinic and compare it to theirs and it is always 1- 2 % difference, but at home it gets really weirded out....sometime starts out at 90 then drops to 50, or anywhere in between....It does sometime end up where I think it should be but I'm afraid to trust it. So.....anyone want to recommend the oximeter that they use. It would need to be something I could mail order as we have nothing locally and Anchorage is a $500.00 flight away. Thanx, jim, IPF '05 <hotdallasmanhotmail>

wrote: One other thing. I don't find that there is a consistent opinion as to what is a danger point in blood oxygen or how long it has to be low. Typically there is some concern when it drops below 90%. I've had sleep studies previously that measured at 92% and 85%. My latest oxygen study said it was below 90% for 25% of the time I was asleep without oxygen and only 0.9% of the time on 2 ml of oxygen. 85% seems to be the next level of concern and then 80% further severity. Others disagree, but I believe everyone with lung issues should have an oximeter just like those with high blood pressure measure and diabetics do. Because I also am out of shape and have allergies and sinus problems, I have found that I can't always tie my shortness of breath to a drop in oxygen. I've had times i was very short and my oxygen measured at 94% and other times I felt fine and it was as low as 84%. > > Hi, > > I would like to know more about this 6 minute walk test. Do you just walk at your own pace for 6 minutes? On a treadmill, or down the street? Do you keep the clip on your finger the whole time or just measure your oxygen level at the end of the walk? > Kay > Sjogren's IPF/HHT 9-18-07 > Oregon > If there is no bright side, > polish up the dark side. > Catch up on fall's hot new shows on Yahoo! TV. Watch previews, get listings, and more! Sarcoid/PF 3/2006

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October 16, 2007

I am going to try and send this e-mail below again as the last one ended up in Spam.

I went for my first 3 month checkup two weeks ago. It was my first since being diagnosed

The results of the cat scan and the PFT's were worse than the ones done in June.

My lung volume went from 62% to 51%; DLCO went from 45% to 35% and FEV and FEV1 went down just a bit from 58% to 55%. My feeling was that this was a significant drop in such a short period of time but my pulmo said "come back in 3 months". Now here is the weird part and why I believe he was not concerned. When I did the 6 minute walk, my O2 stayed at 96. It usually doesn't stay there when I am sitting and watching TV. If I walk the 10 steps it takes to get to the car, my O2 drops to 86. I have walked for a couple of minutes 20 times in the last 2 weeks and it always drops to the low 80's. I told the Dr. that this was very unusual and he said that the machines were carefully calibrated and were correct. I know my oximeter is correct because it also read 96 during the test. Has anyone ever had this experience? This does

not make any sense to me at all.Diane IPF/June 07

Re: Re: 6mw

Jim , google nonin 9500 and you'll find the one Leanne and I have. It is the same one my Pulm. Dr and my prim Dr carry. I really like it. they run around 200. to 229. worth every penny.Love and Prayers, Peggyipf 6/04 Florida"Worry looks around,Sorry looks back,Faith looks up.", glad you mentioned oximeters, I've been meaning to ask. I purchased one about 6 weeks ago and it does not seem to be right....... .I go to the local clinic and compare it to theirs and it is always 1- 2 % difference, but at home it gets really weirded out....sometime starts out at 90 then drops to 50, or anywhere in between....It does sometime end up where I think it should be but I'm afraid to trust it. So.....anyone want to recommend the oximeter that they use. It would need to be something I could mail order as we have nothing locally and

Anchorage is a $500.00 flight away. Thanx,jim, IPF '05 <hotdallasman@ hotmail..com> wrote:One other thing. I don't find that there is a consistent opinion asto what is a danger point in blood oxygen or how long it has to below. Typically there is some concern when it drops below 90%. I'vehad sleep studies previously that measured at 92% and 85%. My latestoxygen study said it was below 90% for 25% of the time I was asleepwithout oxygen and only 0.9% of the time on 2 ml of oxygen. 85% seemsto be the next level of concern and then 80% further severity.Others disagree, but I believe everyone with lung issues should havean oximeter just like those with high blood pressure measure anddiabetics do. Because I also am out of shape and have allergies andsinus problems, I

have found that I can't always tie my shortness ofbreath to a drop in oxygen. I've had times i was very short and myoxygen measured at 94% and other times I felt fine and it was as lowas 84%.>> Hi,>> I would like to know more about this 6 minute walk test. Do youjust walk at your own pace for 6 minutes? On a treadmill, or downthe street? Do you keep the clip on your finger the whole time orjust measure your oxygen level at the end of the walk?> Kay> Sjogren's IPF/HHT 9-18-07> Oregon> If there is no bright side,> polish up the dark side.>Catch up on fall's hot new shows on Yahoo! TV. Watch previews, get listings, and

more!

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October 16, 2007

Thanks Joyce and for your responses. I have done the overnight sleep monitor but that is all. The O2 was going to low 80's while sleeping. My sats will drop just walking around the house and if I bend over, they drop into the 70's. It is just so strange that on test day they stayed so high. I will probably never know the reason so will not sweat it for now. Thanks again for the feedback..

Diane

IPF/June 2007

Re: 6mw

Diane P,

Ask him to do a 24 hour monitor. When I did this the doctor had me keep a diary to show what I was doing when the numbers dropped.

That six minute walk is usually in an air conditioned building while you are walking at a comfortable pace. Try all the things you have to do on a daily basis and note where your sats are.

Is your doc offering any treatment. Is he a specialist in interstitial disease. Like you, I think your numbers dropped significantly. But, I am just a patient!

Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 .....when I am weak, then I am strong.> >> > Hi,> >> > I would like to know more about this 6 minute walk test. Do you> just walk at your own pace for 6 minutes? On a treadmill, or down> the street? Do you keep the clip on your finger the whole time or> just measure your oxygen level at the end of the walk?> > Kay> > Sjogren's IPF/HHT 9-18-07> > Oregon> > If there is no bright side,> > polish up the dark side.> >> >

Catch up on fall's hot new shows on Yahoo! TV. Watch previews, get > listings, and more!> > > > > > Be smarter than spam. See how smart SpamGuard is at giving junk email the boot with the All-new Yahoo! Mail at http://mrd.mail. yahoo.com/ try_beta? .intl=ca>

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October 16, 2007

Diane, I know each doctor and each case are different but I also have had the same reading as you after the 6 minute test. My CT Scans ( and my biopsy) show significant scarring over 90% of my lungs, PF Tests are all under the 50% mark and though I frequently go below 90 when I am doing every day chores at home, my O2 seems to stay in the 90s each time I go to the doctors. I have no explanation- it just all seems weird. Last month I did my 6 minute walk at a doctor the court ordered me to be evaluated by and my sats dropped to 82 after just 90 sec. . .so I am starting oxygen this week. I would think my pulmo's machine is whacky but my oximeter read the same as hers. My suggestion is to keep a log of your O2 levels for a week and then present it to your doctor. I should have done this a long time ago until waiting till I had more lung damage before I went on oxygen. Sarcoid/PF 3/2006Diane

wrote: I am going to try and send this e-mail below again as the last one ended up in Spam. I went for my first 3 month checkup two weeks ago. It was my first since being diagnosed The results of the

cat scan and the PFT's were worse than the ones done in June. My lung volume went from 62% to 51%; DLCO went from 45% to 35% and FEV and FEV1 went down just a bit from 58% to 55%. My feeling was that this was a significant drop in such a short period of time but my pulmo said "come back in 3 months". Now here is the weird part and why I believe he was not concerned. When I did the 6 minute walk, my O2 stayed at 96. It usually doesn't stay there when I am sitting and watching TV. If I walk the 10 steps it takes to get to the car, my O2 drops to 86. I have walked for a couple of minutes 20 times in the last 2 weeks and it always drops to the low 80's. I told the Dr. that this was very unusual and he said that the machines were carefully calibrated and were correct. I know my oximeter is correct because it also read 96 during the test.

Has anyone ever had this experience? This does not make any sense to me at all.Diane IPF/June 07 Re: Re: 6mw Jim , google nonin 9500 and you'll find the one Leanne and I have. It is the same one my Pulm. Dr and my prim Dr carry. I really like it. they run around 200. to 229. worth every penny.Love and Prayers, Peggyipf 6/04 Florida"Worry looks around,Sorry looks back,Faith looks up.", glad you mentioned oximeters, I've been meaning to ask. I purchased one about 6 weeks ago and it

does not seem to be right....... .I go to the local clinic and compare it to theirs and it is always 1- 2 % difference, but at home it gets really weirded out....sometime starts out at 90 then drops to 50, or anywhere in between....It does sometime end up where I think it should be but I'm afraid to trust it. So.....anyone want to recommend the oximeter that they use. It would need to be something I could mail order as we have nothing locally and Anchorage is a $500.00 flight away. Thanx,jim, IPF '05 <hotdallasman@ hotmail..com> wrote:One other thing. I don't find that there is a consistent opinion asto what is a danger point in blood oxygen or how long it has to below. Typically there is some concern when it drops below 90%. I'vehad sleep studies previously that measured at 92%

and 85%. My latestoxygen study said it was below 90% for 25% of the time I was asleepwithout oxygen and only 0.9% of the time on 2 ml of oxygen. 85% seemsto be the next level of concern and then 80% further severity.Others disagree, but I believe everyone with lung issues should havean oximeter just like those with high blood pressure measure anddiabetics do. Because I also am out of shape and have allergies andsinus problems, I have found that I can't always tie my shortness ofbreath to a drop in oxygen. I've had times i was very short and myoxygen measured at 94% and other times I felt fine and it was as lowas 84%.>> Hi,>> I would like to know more about this 6 minute walk

test. Do youjust walk at your own pace for 6 minutes? On a treadmill, or downthe street? Do you keep the clip on your finger the whole time orjust measure your oxygen level at the end of the walk?> Kay> Sjogren's IPF/HHT 9-18-07> Oregon> If there is no bright side,> polish up the dark side.>Catch up on fall's hot new shows on Yahoo! TV. Watch previews, get listings, and more! Be smarter than spam. See how smart SpamGuard is at giving junk email the boot with the All-new Yahoo! Mail Sarcoid/PF 3/2006

Take the Internet to Go: Yahoo!Go puts the Internet in your pocket: mail, news, photos more.

October 16, 2007