Guest guest Posted December 29, 2000 Report Share Posted December 29, 2000 Hi Crew, This is Greg Barnier. I've been away from the Crew for a while because I've been busy with school. But now, I'm in Oregon visiting with Jennette for the holidays and just wanted to drop in and mention to everyone that Jennette will be leaving for San Francisco on January 9th for surgery to remove a tumor in her jugular foramen. Doctor Jackler at University California San Francisco (UCSF) will perform her surgery. At the moment, Jennette has partial use of her swallowing reflex. One side functions normally, but on the other side she has partial use of that reflex. By removing the tumor doctor Jackler hopes to prevent further damage to the side that is damaged. However, lurking within the other side of the jugular foramen, is another tumor. What to do with this tumor and the steps to be taken to prevent damage to her healthier swallowing reflex, will be decided at a later time. Also, because of the tumors location, damage to the vocal cords is another risk involved with this type of surgery. The tumor is also pressing against the brainstem and the doctors that Jennette has spoken with feel that the need for surgery is imperative in order to prevent further damage or other problems that could arise if the tumor is left unchecked. I guess because of the size and location and the speed at which the tumor is growing, this rules out alternatives to surgery, which is either radiation or " to wait and see. " The surgery itself has many risks. Each of which amount to the same damage to which the tumor could do by itself without having surgery, but the possibility to save either her swallowing reflex or her vocal cord is greater with surgery, than without. Please remember Jennette in your prayers and email her any encouraging thoughts you may have to help coach her through yet another confrontation with NF2. (as though each day we live is not an " another confrontation with NF2! " ) Thank you very much everyone! Greg Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2000 Report Share Posted December 29, 2000 Greg - Please tell Jennette I will be thinking of her and prayng for her. She has a long row to hoe. Please let us know how she comes through her surgery. If tears could heal we would all be well. Hugs and prayers, Jane Jennette >Hi Crew, > >This is Greg Barnier. I've been away from the Crew for a while because I've >been busy with school. But now, I'm in Oregon visiting with Jennette for the >holidays and just wanted to drop in and mention to everyone that Jennette >will be leaving for San Francisco on January 9th for surgery to remove a >tumor in her jugular foramen. > >Doctor Jackler at University California San Francisco (UCSF) will perform >her surgery. At the moment, Jennette has partial use of her swallowing >reflex. One side functions normally, but on the other side she has partial >use of that reflex. By removing the tumor doctor Jackler hopes to prevent >further damage to the side that is damaged. However, lurking within the >other side of the jugular foramen, is another tumor. What to do with this >tumor and the steps to be taken to prevent damage to her healthier >swallowing reflex, will be decided at a later time. > >Also, because of the tumors location, damage to the vocal cords is another >risk involved with this type of surgery. > >The tumor is also pressing against the brainstem and the doctors that >Jennette has spoken with feel that the need for surgery is imperative in >order to prevent further damage or other problems that could arise if the >tumor is left unchecked. > >I guess because of the size and location and the speed at which the tumor is >growing, this rules out alternatives to surgery, which is either radiation >or " to wait and see. " The surgery itself has many risks. Each of which >amount to the same damage to which the tumor could do by itself without >having surgery, but the possibility to save either her swallowing reflex or >her vocal cord is greater with surgery, than without. > >Please remember Jennette in your prayers and email her any encouraging >thoughts you may have to help coach her through yet another confrontation >with NF2. (as though each day we live is not an " another confrontation with >NF2! " ) > >Thank you very much everyone! > >Greg > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2000 Report Share Posted December 29, 2000 Greg - Please tell Jennette I will be thinking of her and prayng for her. She has a long row to hoe. Please let us know how she comes through her surgery. If tears could heal we would all be well. Hugs and prayers, Jane Jennette >Hi Crew, > >This is Greg Barnier. I've been away from the Crew for a while because I've >been busy with school. But now, I'm in Oregon visiting with Jennette for the >holidays and just wanted to drop in and mention to everyone that Jennette >will be leaving for San Francisco on January 9th for surgery to remove a >tumor in her jugular foramen. > >Doctor Jackler at University California San Francisco (UCSF) will perform >her surgery. At the moment, Jennette has partial use of her swallowing >reflex. One side functions normally, but on the other side she has partial >use of that reflex. By removing the tumor doctor Jackler hopes to prevent >further damage to the side that is damaged. However, lurking within the >other side of the jugular foramen, is another tumor. What to do with this >tumor and the steps to be taken to prevent damage to her healthier >swallowing reflex, will be decided at a later time. > >Also, because of the tumors location, damage to the vocal cords is another >risk involved with this type of surgery. > >The tumor is also pressing against the brainstem and the doctors that >Jennette has spoken with feel that the need for surgery is imperative in >order to prevent further damage or other problems that could arise if the >tumor is left unchecked. > >I guess because of the size and location and the speed at which the tumor is >growing, this rules out alternatives to surgery, which is either radiation >or " to wait and see. " The surgery itself has many risks. Each of which >amount to the same damage to which the tumor could do by itself without >having surgery, but the possibility to save either her swallowing reflex or >her vocal cord is greater with surgery, than without. > >Please remember Jennette in your prayers and email her any encouraging >thoughts you may have to help coach her through yet another confrontation >with NF2. (as though each day we live is not an " another confrontation with >NF2! " ) > >Thank you very much everyone! > >Greg > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2000 Report Share Posted December 30, 2000 I hope there is somebody who will keep us updated,maybe post a snail mail address to send get well cards. Jimmy Jennette >Hi Crew, > >This is Greg Barnier. I've been away from the Crew for a while because I've >been busy with school. But now, I'm in Oregon visiting with Jennette for the >holidays and just wanted to drop in and mention to everyone that Jennette >will be leaving for San Francisco on January 9th for surgery to remove a >tumor in her jugular foramen. > >Doctor Jackler at University California San Francisco (UCSF) will perform >her surgery. At the moment, Jennette has partial use of her swallowing >reflex. One side functions normally, but on the other side she has partial >use of that reflex. By removing the tumor doctor Jackler hopes to prevent >further damage to the side that is damaged. However, lurking within the >other side of the jugular foramen, is another tumor. What to do with this >tumor and the steps to be taken to prevent damage to her healthier >swallowing reflex, will be decided at a later time. > >Also, because of the tumors location, damage to the vocal cords is another >risk involved with this type of surgery. > >The tumor is also pressing against the brainstem and the doctors that >Jennette has spoken with feel that the need for surgery is imperative in >order to prevent further damage or other problems that could arise if the >tumor is left unchecked. > >I guess because of the size and location and the speed at which the tumor is >growing, this rules out alternatives to surgery, which is either radiation >or " to wait and see. " The surgery itself has many risks. Each of which >amount to the same damage to which the tumor could do by itself without >having surgery, but the possibility to save either her swallowing reflex or >her vocal cord is greater with surgery, than without. > >Please remember Jennette in your prayers and email her any encouraging >thoughts you may have to help coach her through yet another confrontation >with NF2. (as though each day we live is not an " another confrontation with >NF2! " ) > >Thank you very much everyone! > >Greg > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2000 Report Share Posted December 30, 2000 I hope there is somebody who will keep us updated,maybe post a snail mail address to send get well cards. Jimmy Jennette >Hi Crew, > >This is Greg Barnier. I've been away from the Crew for a while because I've >been busy with school. But now, I'm in Oregon visiting with Jennette for the >holidays and just wanted to drop in and mention to everyone that Jennette >will be leaving for San Francisco on January 9th for surgery to remove a >tumor in her jugular foramen. > >Doctor Jackler at University California San Francisco (UCSF) will perform >her surgery. At the moment, Jennette has partial use of her swallowing >reflex. One side functions normally, but on the other side she has partial >use of that reflex. By removing the tumor doctor Jackler hopes to prevent >further damage to the side that is damaged. However, lurking within the >other side of the jugular foramen, is another tumor. What to do with this >tumor and the steps to be taken to prevent damage to her healthier >swallowing reflex, will be decided at a later time. > >Also, because of the tumors location, damage to the vocal cords is another >risk involved with this type of surgery. > >The tumor is also pressing against the brainstem and the doctors that >Jennette has spoken with feel that the need for surgery is imperative in >order to prevent further damage or other problems that could arise if the >tumor is left unchecked. > >I guess because of the size and location and the speed at which the tumor is >growing, this rules out alternatives to surgery, which is either radiation >or " to wait and see. " The surgery itself has many risks. Each of which >amount to the same damage to which the tumor could do by itself without >having surgery, but the possibility to save either her swallowing reflex or >her vocal cord is greater with surgery, than without. > >Please remember Jennette in your prayers and email her any encouraging >thoughts you may have to help coach her through yet another confrontation >with NF2. (as though each day we live is not an " another confrontation with >NF2! " ) > >Thank you very much everyone! > >Greg > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2000 Report Share Posted December 30, 2000 I hope there is somebody who will keep us updated,maybe post a snail mail address to send get well cards. Jimmy Jennette >Hi Crew, > >This is Greg Barnier. I've been away from the Crew for a while because I've >been busy with school. But now, I'm in Oregon visiting with Jennette for the >holidays and just wanted to drop in and mention to everyone that Jennette >will be leaving for San Francisco on January 9th for surgery to remove a >tumor in her jugular foramen. > >Doctor Jackler at University California San Francisco (UCSF) will perform >her surgery. At the moment, Jennette has partial use of her swallowing >reflex. One side functions normally, but on the other side she has partial >use of that reflex. By removing the tumor doctor Jackler hopes to prevent >further damage to the side that is damaged. However, lurking within the >other side of the jugular foramen, is another tumor. What to do with this >tumor and the steps to be taken to prevent damage to her healthier >swallowing reflex, will be decided at a later time. > >Also, because of the tumors location, damage to the vocal cords is another >risk involved with this type of surgery. > >The tumor is also pressing against the brainstem and the doctors that >Jennette has spoken with feel that the need for surgery is imperative in >order to prevent further damage or other problems that could arise if the >tumor is left unchecked. > >I guess because of the size and location and the speed at which the tumor is >growing, this rules out alternatives to surgery, which is either radiation >or " to wait and see. " The surgery itself has many risks. Each of which >amount to the same damage to which the tumor could do by itself without >having surgery, but the possibility to save either her swallowing reflex or >her vocal cord is greater with surgery, than without. > >Please remember Jennette in your prayers and email her any encouraging >thoughts you may have to help coach her through yet another confrontation >with NF2. (as though each day we live is not an " another confrontation with >NF2! " ) > >Thank you very much everyone! > >Greg > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2000 Report Share Posted December 30, 2000 Jennette, As we face this new year, I know you must have tremendous apprehension of the upcoming surgery. I recall this very well. The prospects are troublesome to say the least. Anne's first NF surgery was in this area. She did wind up with partially paralyzed vocal cords but everything else was good. Jennette, you have my prayers for a good outcome and for the wisdom and genius of your surgeons. Try Creative Visualization if you can. It will help relieve your anxiety and may encourage things in the right direction. Be as positive as you can. Imagine yourself with a good outcome. I will too. Bless you. Vicki Quote Link to comment Share on other sites More sharing options...
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