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Hey Carol - I am coming with you if you are going to Dead Man's Beach. We only have to wear our boots! We can work on the book!

You have a great spirit about you! Let's party!

Jane

Hey All...question?First I want to welcome those who just joined us. I think you will find this a fun and informative group. My prayers to those who have lost a loved one. I know how hard it can be. It will take time. Now....I would like some info from anyone who has had to go through tests for incontinence. I have to go in for tests called urodynamics. Carla, didn't you mention incontinence at one time? I also will be having a colonopocy and and seeing another doctor for a lump under my arm. HAPPY NEW YEAR!! Think I'll join Marcus at Dead Man's Beach! Ha!! Later......Carol

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Hey Carol - I am coming with you if you are going to Dead Man's Beach. We only have to wear our boots! We can work on the book!

You have a great spirit about you! Let's party!

Jane

Hey All...question?First I want to welcome those who just joined us. I think you will find this a fun and informative group. My prayers to those who have lost a loved one. I know how hard it can be. It will take time. Now....I would like some info from anyone who has had to go through tests for incontinence. I have to go in for tests called urodynamics. Carla, didn't you mention incontinence at one time? I also will be having a colonopocy and and seeing another doctor for a lump under my arm. HAPPY NEW YEAR!! Think I'll join Marcus at Dead Man's Beach! Ha!! Later......Carol

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Hey Carol - I am coming with you if you are going to Dead Man's Beach. We only have to wear our boots! We can work on the book!

You have a great spirit about you! Let's party!

Jane

Hey All...question?First I want to welcome those who just joined us. I think you will find this a fun and informative group. My prayers to those who have lost a loved one. I know how hard it can be. It will take time. Now....I would like some info from anyone who has had to go through tests for incontinence. I have to go in for tests called urodynamics. Carla, didn't you mention incontinence at one time? I also will be having a colonopocy and and seeing another doctor for a lump under my arm. HAPPY NEW YEAR!! Think I'll join Marcus at Dead Man's Beach! Ha!! Later......Carol

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WOW!! Oz just sounds better and better huh, LOL Maybe we should have a con there????? Just a thought!!-Lori:)

Re: Hey All...question?

Hey Carol - I am coming with you if you are going to Dead Man's Beach. We only have to wear our boots! We can work on the book!

You have a great spirit about you! Let's party!

Jane

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WOW!! Oz just sounds better and better huh, LOL Maybe we should have a con there????? Just a thought!!-Lori:)

Re: Hey All...question?

Hey Carol - I am coming with you if you are going to Dead Man's Beach. We only have to wear our boots! We can work on the book!

You have a great spirit about you! Let's party!

Jane

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Jane! Not nice to tempt!! Wait till after January! I am taking a brain

vacation...hahahaha!!!! Or we could meet in between and hit Lake Michigan!!

Dairy Queen Peanut Buster Parfaits would round it out!!!!!!!

Carol

Jane wrote:

Hey Carol - I am coming with you if you

are going to Dead Man's Beach. We only have to wear our boots!

We can work on the book!

You have a great spirit about you!

Let's party!

Jane

--

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Carol, please say it ain't so! Of all the tests I've had, the needles,

the shocks, the cutting, any shots etc, the Urodynamics test was by far

the craziest, most painful, most embarrassing thing I've gone through.

Your colonopocy doesn't sound like a circus either. I had numbness

on the left side (leg and arm/hands) and ok some slight problems with bowel

and bladder. From my symptoms they suspected an L tumor, the MRI

confirmed it was exactly in a place that would cause these problems.

They wanted to document my bladder problems (frequent urination, that's

it!) The surgery was set up immediately, meanwhile I went for my

Urodynamics test. Basically they insert this lovely tube inside you,

fill your bladder with fake pee (it's very cold and strange to feel it

coming in like that) then a computer monitors how you... release

it. Timing, rhythm, flow etc. Kind of funny bc I'm sittin on

a plastic potty trying to pee for the puter WITH this thing inserted in

me and she's saying "yes your rhythm is not right" etc. They did

this 3 times in a row to get a fair result. I will never go for another.

It was not needed for any treatment, it was only used to graph what I'd

told them. Records. I was suppose to go back after my surgery,

I refused.

I still make frequent trips to the bathroom but maybe that's just me?

The L tumor removal fixed the numb arm and leg thing but left me with the

beginning traces of dropfoot and something they call Ulnar Neuropathy (my

left hand fingers don't move exactly right and it's something to do with

the Ulnar nerve that runs through the arm). These things may not

be from the surgery but the timing makes us think they are. Also

I began having severe problems with constipation that have stayed with

me since then (May 99). They don't really have any answers

for this.

I know you can get a better idea (and some pictures) of these tests

on the net. Maybe it won't be as bad for you. I hope everything goes

ok.

PS, this may or may not be related to NF or my surgery in 99 but I've

had constant kidney infections for about a year now. I'm fine for

a few weeks then down for a couple with dizziness/vomiting. They

diagnose it each time as the kidney thing. I take Antivert for the

dizziness. Anyone have problems with KI's?

Ken & Carol wrote:

First I want to welcome those who just joined

us. I think you will find this a fun and informative group.

My prayers to those who have lost a loved one. I know how hard it

can be. It will take time.

Now....I would like some info from anyone who has had to go through

tests for incontinence. I have to go in for tests called urodynamics. Carla,

didn't you mention incontinence at one time?

I also will be having a colonopocy and and seeing another doctor

for a lump under my arm. HAPPY NEW YEAR!!

Think I'll join Marcus at Dead Man's Beach! Ha!!

Later......Carol

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Carol, please say it ain't so! Of all the tests I've had, the needles,

the shocks, the cutting, any shots etc, the Urodynamics test was by far

the craziest, most painful, most embarrassing thing I've gone through.

Your colonopocy doesn't sound like a circus either. I had numbness

on the left side (leg and arm/hands) and ok some slight problems with bowel

and bladder. From my symptoms they suspected an L tumor, the MRI

confirmed it was exactly in a place that would cause these problems.

They wanted to document my bladder problems (frequent urination, that's

it!) The surgery was set up immediately, meanwhile I went for my

Urodynamics test. Basically they insert this lovely tube inside you,

fill your bladder with fake pee (it's very cold and strange to feel it

coming in like that) then a computer monitors how you... release

it. Timing, rhythm, flow etc. Kind of funny bc I'm sittin on

a plastic potty trying to pee for the puter WITH this thing inserted in

me and she's saying "yes your rhythm is not right" etc. They did

this 3 times in a row to get a fair result. I will never go for another.

It was not needed for any treatment, it was only used to graph what I'd

told them. Records. I was suppose to go back after my surgery,

I refused.

I still make frequent trips to the bathroom but maybe that's just me?

The L tumor removal fixed the numb arm and leg thing but left me with the

beginning traces of dropfoot and something they call Ulnar Neuropathy (my

left hand fingers don't move exactly right and it's something to do with

the Ulnar nerve that runs through the arm). These things may not

be from the surgery but the timing makes us think they are. Also

I began having severe problems with constipation that have stayed with

me since then (May 99). They don't really have any answers

for this.

I know you can get a better idea (and some pictures) of these tests

on the net. Maybe it won't be as bad for you. I hope everything goes

ok.

PS, this may or may not be related to NF or my surgery in 99 but I've

had constant kidney infections for about a year now. I'm fine for

a few weeks then down for a couple with dizziness/vomiting. They

diagnose it each time as the kidney thing. I take Antivert for the

dizziness. Anyone have problems with KI's?

Ken & Carol wrote:

First I want to welcome those who just joined

us. I think you will find this a fun and informative group.

My prayers to those who have lost a loved one. I know how hard it

can be. It will take time.

Now....I would like some info from anyone who has had to go through

tests for incontinence. I have to go in for tests called urodynamics. Carla,

didn't you mention incontinence at one time?

I also will be having a colonopocy and and seeing another doctor

for a lump under my arm. HAPPY NEW YEAR!!

Think I'll join Marcus at Dead Man's Beach! Ha!!

Later......Carol

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Carol, please say it ain't so! Of all the tests I've had, the needles,

the shocks, the cutting, any shots etc, the Urodynamics test was by far

the craziest, most painful, most embarrassing thing I've gone through.

Your colonopocy doesn't sound like a circus either. I had numbness

on the left side (leg and arm/hands) and ok some slight problems with bowel

and bladder. From my symptoms they suspected an L tumor, the MRI

confirmed it was exactly in a place that would cause these problems.

They wanted to document my bladder problems (frequent urination, that's

it!) The surgery was set up immediately, meanwhile I went for my

Urodynamics test. Basically they insert this lovely tube inside you,

fill your bladder with fake pee (it's very cold and strange to feel it

coming in like that) then a computer monitors how you... release

it. Timing, rhythm, flow etc. Kind of funny bc I'm sittin on

a plastic potty trying to pee for the puter WITH this thing inserted in

me and she's saying "yes your rhythm is not right" etc. They did

this 3 times in a row to get a fair result. I will never go for another.

It was not needed for any treatment, it was only used to graph what I'd

told them. Records. I was suppose to go back after my surgery,

I refused.

I still make frequent trips to the bathroom but maybe that's just me?

The L tumor removal fixed the numb arm and leg thing but left me with the

beginning traces of dropfoot and something they call Ulnar Neuropathy (my

left hand fingers don't move exactly right and it's something to do with

the Ulnar nerve that runs through the arm). These things may not

be from the surgery but the timing makes us think they are. Also

I began having severe problems with constipation that have stayed with

me since then (May 99). They don't really have any answers

for this.

I know you can get a better idea (and some pictures) of these tests

on the net. Maybe it won't be as bad for you. I hope everything goes

ok.

PS, this may or may not be related to NF or my surgery in 99 but I've

had constant kidney infections for about a year now. I'm fine for

a few weeks then down for a couple with dizziness/vomiting. They

diagnose it each time as the kidney thing. I take Antivert for the

dizziness. Anyone have problems with KI's?

Ken & Carol wrote:

First I want to welcome those who just joined

us. I think you will find this a fun and informative group.

My prayers to those who have lost a loved one. I know how hard it

can be. It will take time.

Now....I would like some info from anyone who has had to go through

tests for incontinence. I have to go in for tests called urodynamics. Carla,

didn't you mention incontinence at one time?

I also will be having a colonopocy and and seeing another doctor

for a lump under my arm. HAPPY NEW YEAR!!

Think I'll join Marcus at Dead Man's Beach! Ha!!

Later......Carol

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Yikes,makes me wonder....... I had frequent UTIs until I started the chemo. Not comfortable. Have you spoken to your GYN or looked up Kegal exercise for the bladder thing, I heard that it helps??? -Lori

Re: Hey All...question?

Carol, please say it ain't so! Of all the tests I've had, the needles, the shocks, the cutting, any shots etc, the Urodynamics test was by far the craziest, most painful, most embarrassing thing I've gone through.

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Yikes,makes me wonder....... I had frequent UTIs until I started the chemo. Not comfortable. Have you spoken to your GYN or looked up Kegal exercise for the bladder thing, I heard that it helps??? -Lori

Re: Hey All...question?

Carol, please say it ain't so! Of all the tests I've had, the needles, the shocks, the cutting, any shots etc, the Urodynamics test was by far the craziest, most painful, most embarrassing thing I've gone through.

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Yikes,makes me wonder....... I had frequent UTIs until I started the chemo. Not comfortable. Have you spoken to your GYN or looked up Kegal exercise for the bladder thing, I heard that it helps??? -Lori

Re: Hey All...question?

Carol, please say it ain't so! Of all the tests I've had, the needles, the shocks, the cutting, any shots etc, the Urodynamics test was by far the craziest, most painful, most embarrassing thing I've gone through.

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on 4/1/01 8:17 AM, Lori Phibbs at lphibbs@... wrote:

Yikes,makes me wonder....... I had frequent UTIs until I started the chemo. Not comfortable. Have you spoken to your GYN or looked up Kegal exercise for the bladder thing, I heard that it helps??? -Lori

Re: Hey All...question?

Carol, please say it ain't so! Of all the tests I've had, the needles, the shocks, the cutting, any shots etc, the Urodynamics test was by far the craziest, most painful, most embarrassing thing I've gone through.

can I ask the crew if kidney/bladder problems are common? Also heart problems, circulation, arrhythmic heartbeat?

rosemary

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on 4/1/01 8:17 AM, Lori Phibbs at lphibbs@... wrote:

Yikes,makes me wonder....... I had frequent UTIs until I started the chemo. Not comfortable. Have you spoken to your GYN or looked up Kegal exercise for the bladder thing, I heard that it helps??? -Lori

Re: Hey All...question?

Carol, please say it ain't so! Of all the tests I've had, the needles, the shocks, the cutting, any shots etc, the Urodynamics test was by far the craziest, most painful, most embarrassing thing I've gone through.

can I ask the crew if kidney/bladder problems are common? Also heart problems, circulation, arrhythmic heartbeat?

rosemary

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on 4/1/01 8:17 AM, Lori Phibbs at lphibbs@... wrote:

Yikes,makes me wonder....... I had frequent UTIs until I started the chemo. Not comfortable. Have you spoken to your GYN or looked up Kegal exercise for the bladder thing, I heard that it helps??? -Lori

Re: Hey All...question?

Carol, please say it ain't so! Of all the tests I've had, the needles, the shocks, the cutting, any shots etc, the Urodynamics test was by far the craziest, most painful, most embarrassing thing I've gone through.

can I ask the crew if kidney/bladder problems are common? Also heart problems, circulation, arrhythmic heartbeat?

rosemary

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Carol,

What about the lump under your arm? Seen the doc yet? Anne has added that

to her list of tumors as well. ly, I hope it responds to the

Thalidomide because we will see the change without testing. Please keep us

posted. Vicki

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Alright Carla I won't...(but it is!!) Sounds like a fun test and it isn't

going to last very long..hahahaha!! At least I know what to look forward

to! Thanks!

The colonoscopy, I have had before..some 10 years ago. Go to la-la

land and you really don't care what they do to ya!! Afterwards, as my granddaughter

says...butt burps!!! Just hope they are done before my appt with my neurosurgeon

in the afternoon LOL!!

What is an L tumor?

Don't blame you for not going back. Sounds like you can make it to

the bathroom, I fail sometimes...very embrassing. Hard when no bathroom

around.

Got a couple of plugs? hee hee hee!

Hugs, Carol

Bobby and Carla wrote:

Carol, please say it ain't so! Of all the tests

I've had, the needles, the shocks, the cutting, any shots etc, the Urodynamics

test was by far the craziest, most painful, most embarrassing thing I've

gone through. Your colonopocy doesn't sound like a circus either.

I had numbness on the left side (leg and arm/hands) and ok some slight

problems with bowel and bladder. From my symptoms they suspected

an L tumor, the MRI confirmed it was exactly in a place that would cause

these problems. They wanted to document my bladder problems (frequent

urination, that's it!) The surgery was set up immediately, meanwhile

I went for my Urodynamics test. Basically they insert this lovely

tube inside you, fill your bladder with fake pee (it's very cold and strange

to feel it coming in like that) then a computer monitors how you...

release it. Timing, rhythm, flow etc. Kind of funny bc I'm

sittin on a plastic potty trying to pee for the puter WITH this thing inserted

in me and she's saying "yes your rhythm is not right" etc. They did

this 3 times in a row to get a fair result. I will never go for another.

It was not needed for any treatment, it was only used to graph what I'd

told them. Records. I was suppose to go back after my surgery,

I refused.

I still make frequent trips to the bathroom but maybe that's just me?

The L tumor removal fixed the numb arm and leg thing but left me with the

beginning traces of dropfoot and something they call Ulnar Neuropathy (my

left hand fingers don't move exactly right and it's something to do with

the Ulnar nerve that runs through the arm). These things may not

be from the surgery but the timing makes us think they are. Also

I began having severe problems with constipation that have stayed with

me since then (May 99). They don't really have any answers

for this.

I know you can get a better idea (and some pictures) of these tests

on the net. Maybe it won't be as bad for you. I hope everything goes

ok.

PS, this may or may not be related to NF or my surgery in 99 but I've

had constant kidney infections for about a year now. I'm fine for

a few weeks then down for a couple with dizziness/vomiting. They

diagnose it each time as the kidney thing. I take Antivert for the

dizziness. Anyone have problems with KI's?

Ken & Carol wrote:

First I want to welcome those who just joined

us. I think you will find this a fun and informative group.

My prayers to those who have lost a loved one. I know how hard it

can be. It will take time.

Now....I would like some info from anyone who has had to go through

tests for incontinence. I have to go in for tests called urodynamics. Carla,

didn't you mention incontinence at one time?

I also will be having a colonopocy and and seeing another doctor

for a lump under my arm. HAPPY NEW YEAR!!

Think I'll join Marcus at Dead Man's Beach! Ha!!

Later......Carol

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Alright Carla I won't...(but it is!!) Sounds like a fun test and it isn't

going to last very long..hahahaha!! At least I know what to look forward

to! Thanks!

The colonoscopy, I have had before..some 10 years ago. Go to la-la

land and you really don't care what they do to ya!! Afterwards, as my granddaughter

says...butt burps!!! Just hope they are done before my appt with my neurosurgeon

in the afternoon LOL!!

What is an L tumor?

Don't blame you for not going back. Sounds like you can make it to

the bathroom, I fail sometimes...very embrassing. Hard when no bathroom

around.

Got a couple of plugs? hee hee hee!

Hugs, Carol

Bobby and Carla wrote:

Carol, please say it ain't so! Of all the tests

I've had, the needles, the shocks, the cutting, any shots etc, the Urodynamics

test was by far the craziest, most painful, most embarrassing thing I've

gone through. Your colonopocy doesn't sound like a circus either.

I had numbness on the left side (leg and arm/hands) and ok some slight

problems with bowel and bladder. From my symptoms they suspected

an L tumor, the MRI confirmed it was exactly in a place that would cause

these problems. They wanted to document my bladder problems (frequent

urination, that's it!) The surgery was set up immediately, meanwhile

I went for my Urodynamics test. Basically they insert this lovely

tube inside you, fill your bladder with fake pee (it's very cold and strange

to feel it coming in like that) then a computer monitors how you...

release it. Timing, rhythm, flow etc. Kind of funny bc I'm

sittin on a plastic potty trying to pee for the puter WITH this thing inserted

in me and she's saying "yes your rhythm is not right" etc. They did

this 3 times in a row to get a fair result. I will never go for another.

It was not needed for any treatment, it was only used to graph what I'd

told them. Records. I was suppose to go back after my surgery,

I refused.

I still make frequent trips to the bathroom but maybe that's just me?

The L tumor removal fixed the numb arm and leg thing but left me with the

beginning traces of dropfoot and something they call Ulnar Neuropathy (my

left hand fingers don't move exactly right and it's something to do with

the Ulnar nerve that runs through the arm). These things may not

be from the surgery but the timing makes us think they are. Also

I began having severe problems with constipation that have stayed with

me since then (May 99). They don't really have any answers

for this.

I know you can get a better idea (and some pictures) of these tests

on the net. Maybe it won't be as bad for you. I hope everything goes

ok.

PS, this may or may not be related to NF or my surgery in 99 but I've

had constant kidney infections for about a year now. I'm fine for

a few weeks then down for a couple with dizziness/vomiting. They

diagnose it each time as the kidney thing. I take Antivert for the

dizziness. Anyone have problems with KI's?

Ken & Carol wrote:

First I want to welcome those who just joined

us. I think you will find this a fun and informative group.

My prayers to those who have lost a loved one. I know how hard it

can be. It will take time.

Now....I would like some info from anyone who has had to go through

tests for incontinence. I have to go in for tests called urodynamics. Carla,

didn't you mention incontinence at one time?

I also will be having a colonopocy and and seeing another doctor

for a lump under my arm. HAPPY NEW YEAR!!

Think I'll join Marcus at Dead Man's Beach! Ha!!

Later......Carol

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Hi Lori...Yep...did the exercises years ago and the antihistimine thing.

Just saw GYN...they are the ones who gave the referrals. I have had incontinence

for about 8-9 years. The last doctor (5 years ago) said I was "too young"

for the fix-it surgery! He could have made things a whole lot easier!!

Hugs, Carol

Lori Phibbs wrote:

Yikes,makes

me wonder....... I had frequent UTIs until I started the chemo.

Not comfortable. Have you spoken to your GYN or looked up Kegal

exercise for the bladder thing, I heard that it helps??? -Lori

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Hi Lori...Yep...did the exercises years ago and the antihistimine thing.

Just saw GYN...they are the ones who gave the referrals. I have had incontinence

for about 8-9 years. The last doctor (5 years ago) said I was "too young"

for the fix-it surgery! He could have made things a whole lot easier!!

Hugs, Carol

Lori Phibbs wrote:

Yikes,makes

me wonder....... I had frequent UTIs until I started the chemo.

Not comfortable. Have you spoken to your GYN or looked up Kegal

exercise for the bladder thing, I heard that it helps??? -Lori

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Share on other sites

Hi Lori...Yep...did the exercises years ago and the antihistimine thing.

Just saw GYN...they are the ones who gave the referrals. I have had incontinence

for about 8-9 years. The last doctor (5 years ago) said I was "too young"

for the fix-it surgery! He could have made things a whole lot easier!!

Hugs, Carol

Lori Phibbs wrote:

Yikes,makes

me wonder....... I had frequent UTIs until I started the chemo.

Not comfortable. Have you spoken to your GYN or looked up Kegal

exercise for the bladder thing, I heard that it helps??? -Lori

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Hi Vicki...I have an appointment with my breast doctor on Monday. I just had a

mammagram done in Oct. This lump popped out of nowhere. I had a small one taken

out of my left breast 4 years ago. It is probably benign, but this one

hurts....bad place!!

Has Anne had a mammagram?

Hugs, Carol

vjpcook@... wrote:

> Carol,

> What about the lump under your arm? Seen the doc yet? Anne has added that

> to her list of tumors as well. ly, I hope it responds to the

> Thalidomide because we will see the change without testing. Please keep us

> posted. Vicki

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Hi Vicki...I have an appointment with my breast doctor on Monday. I just had a

mammagram done in Oct. This lump popped out of nowhere. I had a small one taken

out of my left breast 4 years ago. It is probably benign, but this one

hurts....bad place!!

Has Anne had a mammagram?

Hugs, Carol

vjpcook@... wrote:

> Carol,

> What about the lump under your arm? Seen the doc yet? Anne has added that

> to her list of tumors as well. ly, I hope it responds to the

> Thalidomide because we will see the change without testing. Please keep us

> posted. Vicki

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Hi Vicki...I have an appointment with my breast doctor on Monday. I just had a

mammagram done in Oct. This lump popped out of nowhere. I had a small one taken

out of my left breast 4 years ago. It is probably benign, but this one

hurts....bad place!!

Has Anne had a mammagram?

Hugs, Carol

vjpcook@... wrote:

> Carol,

> What about the lump under your arm? Seen the doc yet? Anne has added that

> to her list of tumors as well. ly, I hope it responds to the

> Thalidomide because we will see the change without testing. Please keep us

> posted. Vicki

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It was a lumbar spine tumor. Not that big, maybe an inch or so. When

they found it they really pushed the surgery vs waiting, told me the

area it was in was very sensitive to causing b & b damage that could

possibly be permanent. (Otherwise I would have probably put surgery off

bc my symptoms weren't THAT bad.) Have you had full spinal scans?

I probably made the UroD test sound worse than it was. lol @ butt

burps. Hang in there Carol and let us know how it goes!

btw thank yall for the advice and Donna Getz for the ideas. I'm glad

everything went so smoothly in Cali and you're home.

Carla

Ken & Carol wrote:

> Alright Carla I won't...(but it is!!) Sounds like a fun test and it

> isn't going to last very long..hahahaha!! At least I know what to look

> forward to! Thanks!

> The colonoscopy, I have had before..some 10 years ago. Go to la-la

> land and you really don't care what they do to ya!! Afterwards, as my

> granddaughter says...butt burps!!! Just hope they are done before my

> appt with my neurosurgeon in the afternoon LOL!!

> What is an L tumor?

> Don't blame you for not going back. Sounds like you can make it to the

> bathroom, I fail sometimes...very embrassing. Hard when no bathroom

> around.

> Got a couple of plugs? hee hee hee!

>

> Hugs, Carol

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