Guest guest Posted October 4, 2007 Report Share Posted October 4, 2007 Hi , Tell her to turn it up when her sats are low. It does make a difference. It may be true that our lungs only handle so much oxygen, however, when our sats drop we need more oxygen and that makes the heart beat faster to try to pump the oxygen blood to all the organs. The lungs are not the only body part that needs oxygen. I said something about COPD and turning up oxygen when I had the transplant eval consult, and they said it is better to turn it up even with COPD, and when your sats level out turn it down. It was very interesting and informative. When I coughed, she said I know your disease. Then she told me that it is harder to transplant pf patients because of the scar tissue. So please all of you listed keep moving and be as healthy as you can be. We are in for the biggest fight of our lives and we need to be prepared. The oxygen doesn't go to waste, she uses it, she body need more. To exert now I have to go to 15-20 lf, I can move around on 10 liters for about 5 mins then I need more. Our lungs take in as much as we need, whether it is 2 liters or 20 liters. Being in the 70 and low 80's can hurt her organs, and cause memory loss from lack of oxygen. The brain will actually shut parts of the body off and stop the oxygen flow to the extremities first, our nails turn purple and our lips blue, lack of oxygen. . sometimes it doesn't hurt when you are low on oxygen. I have when into the 70's and no pain, just started getting really tired all of a sudden, put my pulse ox on and I was 74. Come to find out no air coming from my cannula, hubby added water to my humidity bottle and it cross threaded, had to call him and tell him no air, to weak to do anything had to wait. I started diaphragmic breathing and up it some, he was here quick and turned my hi-ox mask on 10liters and within a minute I was in he 90's. Have you been through pulmonary rehab? If not check into that, you learn a lot. Donna in De/ipf 1990/TX listed 10/2007 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2007 Report Share Posted October 4, 2007 Hi , Tell her to turn it up when her sats are low. It does make a difference. It may be true that our lungs only handle so much oxygen, however, when our sats drop we need more oxygen and that makes the heart beat faster to try to pump the oxygen blood to all the organs. The lungs are not the only body part that needs oxygen. I said something about COPD and turning up oxygen when I had the transplant eval consult, and they said it is better to turn it up even with COPD, and when your sats level out turn it down. It was very interesting and informative. When I coughed, she said I know your disease. Then she told me that it is harder to transplant pf patients because of the scar tissue. So please all of you listed keep moving and be as healthy as you can be. We are in for the biggest fight of our lives and we need to be prepared. The oxygen doesn't go to waste, she uses it, she body need more. To exert now I have to go to 15-20 lf, I can move around on 10 liters for about 5 mins then I need more. Our lungs take in as much as we need, whether it is 2 liters or 20 liters. Being in the 70 and low 80's can hurt her organs, and cause memory loss from lack of oxygen. The brain will actually shut parts of the body off and stop the oxygen flow to the extremities first, our nails turn purple and our lips blue, lack of oxygen. . sometimes it doesn't hurt when you are low on oxygen. I have when into the 70's and no pain, just started getting really tired all of a sudden, put my pulse ox on and I was 74. Come to find out no air coming from my cannula, hubby added water to my humidity bottle and it cross threaded, had to call him and tell him no air, to weak to do anything had to wait. I started diaphragmic breathing and up it some, he was here quick and turned my hi-ox mask on 10liters and within a minute I was in he 90's. Have you been through pulmonary rehab? If not check into that, you learn a lot. Donna in De/ipf 1990/TX listed 10/2007 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2007 Report Share Posted October 4, 2007 Thank you for all you suggested. Doris passed away this evening at home. Joyce wrote: , Doris may be on liquid oxygen. It is the machine that we use at home that turns room air into 02. Doris may be on liquid and get her 02 directly from the tanks. My pain comes because my saturation drops and I get extremely short of breath. Her pain may be caused by something else entirely. I would have an oximeter at home for her. Some docs, mine included, do not think a patient should have one. His theory is that it makes you watch your numbers instead of listening to your body. It is about the only thing that we disagree on......but I won. My prayers are with your family. Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong. > > > >> > > > My first posting....my mother in law is in her early 70s and was diagnosed with PF about a year ago. She is on oxygen 24/7 now and uses a scooter. She has lost a lot of weight. One thing that really bothers her is a deep burning pain from her toes up to the top of her chest when she moves. Her internist knows nothing about this and suggests that it is not associated with PF... Keeps giving her phenegrin (sp). She also has nausea with this pain. Does anyone have a suggestion as to what this could be? Have any of you experienced such a thing? Simple tasks of everyday life are exhausting to her, and she is hestiant to exercise as that depletes what little energy she has......Furthermore, her appetite is just not there......To top it all off, she is diabetic and cannot take prednisone and some of the other like drugs. And, what's coming down the pike for this family? Mother in law's almost 80 year old husband is staying with her 24/7 as he is hesitant to leave her> > > > for fear of her falling, or losing her oxygen connection and not having the strength to reconnect. We've read the web information; they pretty much all say the same thing about what the disease is, but we are having real trouble finding out, from those who know, practical, useful information as to what is coming and the best way for us and the mother in law to handle things..... in Arkansas> > > > > > > > > > > > ---------------------------------> > > > Need a vacation? Get great deals to amazing places on Yahoo! Travel.> > > >> > > > > > > > > > > > > > > ---------------------------------> > > Check out the hottest 2008 models today at Yahoo! Autos.> > >> > > > > > > > > > ---------------------------------> > Got a little couch potato? > > Check out fun summer activities for kids.> >> > > > > ---------------------------------> Check out the hottest 2008 models today at Yahoo! Autos.> Tonight's top picks. What will you watch tonight? Preview the hottest shows on Yahoo! TV. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2007 Report Share Posted October 4, 2007 Thank you for all you suggested. Doris passed away this evening at home. Joyce wrote: , Doris may be on liquid oxygen. It is the machine that we use at home that turns room air into 02. Doris may be on liquid and get her 02 directly from the tanks. My pain comes because my saturation drops and I get extremely short of breath. Her pain may be caused by something else entirely. I would have an oximeter at home for her. Some docs, mine included, do not think a patient should have one. His theory is that it makes you watch your numbers instead of listening to your body. It is about the only thing that we disagree on......but I won. My prayers are with your family. Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong. > > > >> > > > My first posting....my mother in law is in her early 70s and was diagnosed with PF about a year ago. She is on oxygen 24/7 now and uses a scooter. She has lost a lot of weight. One thing that really bothers her is a deep burning pain from her toes up to the top of her chest when she moves. Her internist knows nothing about this and suggests that it is not associated with PF... Keeps giving her phenegrin (sp). She also has nausea with this pain. Does anyone have a suggestion as to what this could be? Have any of you experienced such a thing? Simple tasks of everyday life are exhausting to her, and she is hestiant to exercise as that depletes what little energy she has......Furthermore, her appetite is just not there......To top it all off, she is diabetic and cannot take prednisone and some of the other like drugs. And, what's coming down the pike for this family? Mother in law's almost 80 year old husband is staying with her 24/7 as he is hesitant to leave her> > > > for fear of her falling, or losing her oxygen connection and not having the strength to reconnect. We've read the web information; they pretty much all say the same thing about what the disease is, but we are having real trouble finding out, from those who know, practical, useful information as to what is coming and the best way for us and the mother in law to handle things..... in Arkansas> > > > > > > > > > > > ---------------------------------> > > > Need a vacation? Get great deals to amazing places on Yahoo! Travel.> > > >> > > > > > > > > > > > > > > ---------------------------------> > > Check out the hottest 2008 models today at Yahoo! Autos.> > >> > > > > > > > > > ---------------------------------> > Got a little couch potato? > > Check out fun summer activities for kids.> >> > > > > ---------------------------------> Check out the hottest 2008 models today at Yahoo! Autos.> Tonight's top picks. What will you watch tonight? Preview the hottest shows on Yahoo! TV. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2007 Report Share Posted October 4, 2007 Thank you for all you suggested. Doris passed away this evening at home. Joyce wrote: , Doris may be on liquid oxygen. It is the machine that we use at home that turns room air into 02. Doris may be on liquid and get her 02 directly from the tanks. My pain comes because my saturation drops and I get extremely short of breath. Her pain may be caused by something else entirely. I would have an oximeter at home for her. Some docs, mine included, do not think a patient should have one. His theory is that it makes you watch your numbers instead of listening to your body. It is about the only thing that we disagree on......but I won. My prayers are with your family. Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong. > > > >> > > > My first posting....my mother in law is in her early 70s and was diagnosed with PF about a year ago. She is on oxygen 24/7 now and uses a scooter. She has lost a lot of weight. One thing that really bothers her is a deep burning pain from her toes up to the top of her chest when she moves. Her internist knows nothing about this and suggests that it is not associated with PF... Keeps giving her phenegrin (sp). She also has nausea with this pain. Does anyone have a suggestion as to what this could be? Have any of you experienced such a thing? Simple tasks of everyday life are exhausting to her, and she is hestiant to exercise as that depletes what little energy she has......Furthermore, her appetite is just not there......To top it all off, she is diabetic and cannot take prednisone and some of the other like drugs. And, what's coming down the pike for this family? Mother in law's almost 80 year old husband is staying with her 24/7 as he is hesitant to leave her> > > > for fear of her falling, or losing her oxygen connection and not having the strength to reconnect. We've read the web information; they pretty much all say the same thing about what the disease is, but we are having real trouble finding out, from those who know, practical, useful information as to what is coming and the best way for us and the mother in law to handle things..... in Arkansas> > > > > > > > > > > > ---------------------------------> > > > Need a vacation? Get great deals to amazing places on Yahoo! Travel.> > > >> > > > > > > > > > > > > > > ---------------------------------> > > Check out the hottest 2008 models today at Yahoo! Autos.> > >> > > > > > > > > > ---------------------------------> > Got a little couch potato? > > Check out fun summer activities for kids.> >> > > > > ---------------------------------> Check out the hottest 2008 models today at Yahoo! Autos.> Tonight's top picks. What will you watch tonight? Preview the hottest shows on Yahoo! TV. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2007 Report Share Posted October 5, 2007 I am truly sorry. Re: Re: What's next? Thank you for all you suggested. Doris passed away this evening at home. Joyce <janne5303> wrote: , Doris may be on liquid oxygen. It is the machine that we use at home that turns room air into 02. Doris may be on liquid and get her 02 directly from the tanks. My pain comes because my saturation drops and I get extremely short of breath. Her pain may be caused by something else entirely. I would have an oximeter at home for her. Some docs, mine included, do not think a patient should have one. His theory is that it makes you watch your numbers instead of listening to your body. It is about the only thing that we disagree on......but I won. My prayers are with your family. Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong. > > > >> > > > My first posting....my mother in law is in her early 70s and was diagnosed with PF about a year ago. She is on oxygen 24/7 now and uses a scooter. She has lost a lot of weight. One thing that really bothers her is a deep burning pain from her toes up to the top of her chest when she moves. Her internist knows nothing about this and suggests that it is not associated with PF... Keeps giving her phenegrin (sp). She also has nausea with this pain. Does anyone have a suggestion as to what this could be? Have any of you experienced such a thing? Simple tasks of everyday life are exhausting to her, and she is hestiant to exercise as that depletes what little energy she has......Furthermore, her appetite is just not there......To top it all off, she is diabetic and cannot take prednisone and some of the other like drugs. And, what's coming down the pike for this family? Mother in law's almost 80 year old husband is staying with her 24/7 as he is hesitant to leave her> > > > for fear of her falling, or losing her oxygen connection and not having the strength to reconnect. We've read the web information; they pretty much all say the same thing about what the disease is, but we are having real trouble finding out, from those who know, practical, useful information as to what is coming and the best way for us and the mother in law to handle things..... in Arkansas> > > > > > > > > > > > ---------------------------------> > > > Need a vacation? Get great deals to amazing places on Yahoo! Travel.> > > >> > > > > > > > > > > > > > > ---------------------------------> > > Check out the hottest 2008 models today at Yahoo! Autos.> > >> > > > > > > > > > ---------------------------------> > Got a little couch potato? > > Check out fun summer activities for kids.> >> > > > > ---------------------------------> Check out the hottest 2008 models today at Yahoo! Autos.> Tonight's top picks. What will you watch tonight? Preview the hottest shows on Yahoo! TV. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2007 Report Share Posted October 5, 2007 I am truly sorry. Re: Re: What's next? Thank you for all you suggested. Doris passed away this evening at home. Joyce <janne5303> wrote: , Doris may be on liquid oxygen. It is the machine that we use at home that turns room air into 02. Doris may be on liquid and get her 02 directly from the tanks. My pain comes because my saturation drops and I get extremely short of breath. Her pain may be caused by something else entirely. I would have an oximeter at home for her. Some docs, mine included, do not think a patient should have one. His theory is that it makes you watch your numbers instead of listening to your body. It is about the only thing that we disagree on......but I won. My prayers are with your family. Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong. > > > >> > > > My first posting....my mother in law is in her early 70s and was diagnosed with PF about a year ago. She is on oxygen 24/7 now and uses a scooter. She has lost a lot of weight. One thing that really bothers her is a deep burning pain from her toes up to the top of her chest when she moves. Her internist knows nothing about this and suggests that it is not associated with PF... Keeps giving her phenegrin (sp). She also has nausea with this pain. Does anyone have a suggestion as to what this could be? Have any of you experienced such a thing? Simple tasks of everyday life are exhausting to her, and she is hestiant to exercise as that depletes what little energy she has......Furthermore, her appetite is just not there......To top it all off, she is diabetic and cannot take prednisone and some of the other like drugs. And, what's coming down the pike for this family? Mother in law's almost 80 year old husband is staying with her 24/7 as he is hesitant to leave her> > > > for fear of her falling, or losing her oxygen connection and not having the strength to reconnect. We've read the web information; they pretty much all say the same thing about what the disease is, but we are having real trouble finding out, from those who know, practical, useful information as to what is coming and the best way for us and the mother in law to handle things..... in Arkansas> > > > > > > > > > > > ---------------------------------> > > > Need a vacation? Get great deals to amazing places on Yahoo! Travel.> > > >> > > > > > > > > > > > > > > ---------------------------------> > > Check out the hottest 2008 models today at Yahoo! Autos.> > >> > > > > > > > > > ---------------------------------> > Got a little couch potato? > > Check out fun summer activities for kids.> >> > > > > ---------------------------------> Check out the hottest 2008 models today at Yahoo! Autos.> Tonight's top picks. What will you watch tonight? Preview the hottest shows on Yahoo! TV. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2007 Report Share Posted October 5, 2007 I am truly sorry. Re: Re: What's next? Thank you for all you suggested. Doris passed away this evening at home. Joyce <janne5303> wrote: , Doris may be on liquid oxygen. It is the machine that we use at home that turns room air into 02. Doris may be on liquid and get her 02 directly from the tanks. My pain comes because my saturation drops and I get extremely short of breath. Her pain may be caused by something else entirely. I would have an oximeter at home for her. Some docs, mine included, do not think a patient should have one. His theory is that it makes you watch your numbers instead of listening to your body. It is about the only thing that we disagree on......but I won. My prayers are with your family. Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong. > > > >> > > > My first posting....my mother in law is in her early 70s and was diagnosed with PF about a year ago. She is on oxygen 24/7 now and uses a scooter. She has lost a lot of weight. One thing that really bothers her is a deep burning pain from her toes up to the top of her chest when she moves. Her internist knows nothing about this and suggests that it is not associated with PF... Keeps giving her phenegrin (sp). She also has nausea with this pain. Does anyone have a suggestion as to what this could be? Have any of you experienced such a thing? Simple tasks of everyday life are exhausting to her, and she is hestiant to exercise as that depletes what little energy she has......Furthermore, her appetite is just not there......To top it all off, she is diabetic and cannot take prednisone and some of the other like drugs. And, what's coming down the pike for this family? Mother in law's almost 80 year old husband is staying with her 24/7 as he is hesitant to leave her> > > > for fear of her falling, or losing her oxygen connection and not having the strength to reconnect. We've read the web information; they pretty much all say the same thing about what the disease is, but we are having real trouble finding out, from those who know, practical, useful information as to what is coming and the best way for us and the mother in law to handle things..... in Arkansas> > > > > > > > > > > > ---------------------------------> > > > Need a vacation? Get great deals to amazing places on Yahoo! Travel.> > > >> > > > > > > > > > > > > > > ---------------------------------> > > Check out the hottest 2008 models today at Yahoo! Autos.> > >> > > > > > > > > > ---------------------------------> > Got a little couch potato? > > Check out fun summer activities for kids.> >> > > > > ---------------------------------> Check out the hottest 2008 models today at Yahoo! Autos.> Tonight's top picks. What will you watch tonight? Preview the hottest shows on Yahoo! TV. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2007 Report Share Posted October 5, 2007 Dear , I am so sorry. Please know your family is in my prayers. Sarcoid/PF 3?2006 Wells wrote: Thank you for all you suggested. Doris passed away this evening at home. Joyce <janne5303> wrote: , Doris may be on liquid oxygen. It is the machine that we use at home that turns room air into 02. Doris may be on liquid and get her 02 directly from the tanks. My pain comes because my saturation drops and I get extremely short of breath. Her pain may be caused by something else entirely. I would have an oximeter at home for her. Some docs, mine included, do not think a patient should have one. His theory is that it makes you watch your numbers instead of listening to your body. It is about the only thing that we disagree on......but I won. My prayers are with your family. Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong. > > > >> > > > My first posting....my mother in law is in her early 70s and was diagnosed with PF about a year ago. She is on oxygen 24/7 now and uses a scooter. She has lost a lot of weight. One thing that really bothers her is a deep burning pain from her toes up to the top of her chest when she moves. Her internist knows nothing about this and suggests that it is not associated with PF... Keeps giving her phenegrin (sp). She also has nausea with this pain. Does anyone have a suggestion as to what this could be? Have any of you experienced such a thing? Simple tasks of everyday life are exhausting to her, and she is hestiant to exercise as that depletes what little energy she has......Furthermore, her appetite is just not there......To top it all off, she is diabetic and cannot take prednisone and some of the other like drugs. And, what's coming down the pike for this family? Mother in law's almost 80 year old husband is staying with her 24/7 as he is hesitant to leave her> > > > for fear of her falling, or losing her oxygen connection and not having the strength to reconnect. We've read the web information; they pretty much all say the same thing about what the disease is, but we are having real trouble finding out, from those who know, practical, useful information as to what is coming and the best way for us and the mother in law to handle things..... in Arkansas> > > > > > > > > > > > ---------------------------------> > > > Need a vacation? Get great deals to amazing places on Yahoo! Travel.> > > >> > > > > > > > > > > > > > > ---------------------------------> > > Check out the hottest 2008 models today at Yahoo! Autos.> > >> > > > > > > > > > ---------------------------------> > Got a little couch potato? > > Check out fun summer activities for kids.> >> > > > > ---------------------------------> Check out the hottest 2008 models today at Yahoo! Autos.> Tonight's top picks. What will you watch tonight? Preview the hottest shows on Yahoo! TV. Sarcoid/PF 3/2006 Be a better Heartthrob. Get better relationship answers from someone who knows.Yahoo! Answers - Check it out. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2007 Report Share Posted October 5, 2007 Dear , I am so sorry. Please know your family is in my prayers. Sarcoid/PF 3?2006 Wells wrote: Thank you for all you suggested. Doris passed away this evening at home. Joyce <janne5303> wrote: , Doris may be on liquid oxygen. It is the machine that we use at home that turns room air into 02. Doris may be on liquid and get her 02 directly from the tanks. My pain comes because my saturation drops and I get extremely short of breath. Her pain may be caused by something else entirely. I would have an oximeter at home for her. Some docs, mine included, do not think a patient should have one. His theory is that it makes you watch your numbers instead of listening to your body. It is about the only thing that we disagree on......but I won. My prayers are with your family. Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong. > > > >> > > > My first posting....my mother in law is in her early 70s and was diagnosed with PF about a year ago. She is on oxygen 24/7 now and uses a scooter. She has lost a lot of weight. One thing that really bothers her is a deep burning pain from her toes up to the top of her chest when she moves. Her internist knows nothing about this and suggests that it is not associated with PF... Keeps giving her phenegrin (sp). She also has nausea with this pain. Does anyone have a suggestion as to what this could be? Have any of you experienced such a thing? Simple tasks of everyday life are exhausting to her, and she is hestiant to exercise as that depletes what little energy she has......Furthermore, her appetite is just not there......To top it all off, she is diabetic and cannot take prednisone and some of the other like drugs. And, what's coming down the pike for this family? Mother in law's almost 80 year old husband is staying with her 24/7 as he is hesitant to leave her> > > > for fear of her falling, or losing her oxygen connection and not having the strength to reconnect. We've read the web information; they pretty much all say the same thing about what the disease is, but we are having real trouble finding out, from those who know, practical, useful information as to what is coming and the best way for us and the mother in law to handle things..... in Arkansas> > > > > > > > > > > > ---------------------------------> > > > Need a vacation? Get great deals to amazing places on Yahoo! Travel.> > > >> > > > > > > > > > > > > > > ---------------------------------> > > Check out the hottest 2008 models today at Yahoo! Autos.> > >> > > > > > > > > > ---------------------------------> > Got a little couch potato? > > Check out fun summer activities for kids.> >> > > > > ---------------------------------> Check out the hottest 2008 models today at Yahoo! Autos.> Tonight's top picks. What will you watch tonight? Preview the hottest shows on Yahoo! TV. Sarcoid/PF 3/2006 Be a better Heartthrob. Get better relationship answers from someone who knows.Yahoo! Answers - Check it out. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2007 Report Share Posted October 5, 2007 Dear , I am so sorry. Please know your family is in my prayers. Sarcoid/PF 3?2006 Wells wrote: Thank you for all you suggested. Doris passed away this evening at home. Joyce <janne5303> wrote: , Doris may be on liquid oxygen. It is the machine that we use at home that turns room air into 02. Doris may be on liquid and get her 02 directly from the tanks. My pain comes because my saturation drops and I get extremely short of breath. Her pain may be caused by something else entirely. I would have an oximeter at home for her. Some docs, mine included, do not think a patient should have one. His theory is that it makes you watch your numbers instead of listening to your body. It is about the only thing that we disagree on......but I won. My prayers are with your family. Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong. > > > >> > > > My first posting....my mother in law is in her early 70s and was diagnosed with PF about a year ago. She is on oxygen 24/7 now and uses a scooter. She has lost a lot of weight. One thing that really bothers her is a deep burning pain from her toes up to the top of her chest when she moves. Her internist knows nothing about this and suggests that it is not associated with PF... Keeps giving her phenegrin (sp). She also has nausea with this pain. Does anyone have a suggestion as to what this could be? Have any of you experienced such a thing? Simple tasks of everyday life are exhausting to her, and she is hestiant to exercise as that depletes what little energy she has......Furthermore, her appetite is just not there......To top it all off, she is diabetic and cannot take prednisone and some of the other like drugs. And, what's coming down the pike for this family? Mother in law's almost 80 year old husband is staying with her 24/7 as he is hesitant to leave her> > > > for fear of her falling, or losing her oxygen connection and not having the strength to reconnect. We've read the web information; they pretty much all say the same thing about what the disease is, but we are having real trouble finding out, from those who know, practical, useful information as to what is coming and the best way for us and the mother in law to handle things..... in Arkansas> > > > > > > > > > > > ---------------------------------> > > > Need a vacation? Get great deals to amazing places on Yahoo! Travel.> > > >> > > > > > > > > > > > > > > ---------------------------------> > > Check out the hottest 2008 models today at Yahoo! Autos.> > >> > > > > > > > > > ---------------------------------> > Got a little couch potato? > > Check out fun summer activities for kids.> >> > > > > ---------------------------------> Check out the hottest 2008 models today at Yahoo! Autos.> Tonight's top picks. What will you watch tonight? Preview the hottest shows on Yahoo! TV. Sarcoid/PF 3/2006 Be a better Heartthrob. Get better relationship answers from someone who knows.Yahoo! Answers - Check it out. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2007 Report Share Posted October 5, 2007 , Please except my deepest sympathies. But oh I just know she is getting such a welcome home today. God bless all of her family with friends with strength and peace. Love and Prayers, Peggy ipf 6/04 Florida " Worry looks around, Sorry looks back, Faith looks up. " Thank you for all you suggested. Doris passed away this evening at home. Joyce wrote: , Doris may be on liquid oxygen. It is the machine that we use at home that turns room air into 02. Doris may be on liquid and get her 02 directly from the tanks. My pain comes because my saturation drops and I get extremely short of breath. Her pain may be caused by something else entirely. I would have an oximeter at home for her. Some docs, mine included, do not think a patient should have one. His theory is that it makes you watch your numbers instead of listening to your body. It is about the only thing that we disagree on......but I won. My prayers are with your family. Hugs, Joyce D. PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong. > > > > > > > > My first posting....my mother in law is in her early 70s and was diagnosed with PF about a year ago. She is on oxygen 24/7 now and uses a scooter. She has lost a lot of weight. One thing that really bothers her is a deep burning pain from her toes up to the top of her chest when she moves. Her internist knows nothing about this and suggests that it is not associated with PF... Keeps giving her phenegrin (sp). She also has nausea with this pain. Does anyone have a suggestion as to what this could be? Have any of you experienced such a thing? Simple tasks of everyday life are exhausting to her, and she is hestiant to exercise as that depletes what little energy she has......Furthermore, her appetite is just not there......To top it all off, she is diabetic and cannot take prednisone and some of the other like drugs. And, what's coming down the pike for this family? Mother in law's almost 80 year old husband is staying with her 24/7 as he is hesitant to leave her > > > > for fear of her falling, or losing her oxygen connection and not having the strength to reconnect. We've read the web information; they pretty much all say the same thing about what the disease is, but we are having real trouble finding out, from those who know, practical, useful information as to what is coming and the best way for us and the mother in law to handle things..... in Arkansas > > > > > > > > > > > > --------------------------------- > > > > Need a vacation? Get great deals to amazing places on Yahoo! Travel. > > > > > > > > > > > > > > > > > > > --------------------------------- > > > Check out the hottest 2008 models today at Yahoo! Autos. > > > > > > > > > > > > > --------------------------------- > > Got a little couch potato? > > Check out fun summer activities for kids. > > > > > > > --------------------------------- > Check out the hottest 2008 models today at Yahoo! Autos. > Tonight's top picks. What will you watch tonight? Preview the hottest shows on Yahoo! TV. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2007 Report Share Posted October 5, 2007 , Please except my deepest sympathies. But oh I just know she is getting such a welcome home today. God bless all of her family with friends with strength and peace. Love and Prayers, Peggy ipf 6/04 Florida " Worry looks around, Sorry looks back, Faith looks up. " Thank you for all you suggested. Doris passed away this evening at home. Joyce wrote: , Doris may be on liquid oxygen. It is the machine that we use at home that turns room air into 02. Doris may be on liquid and get her 02 directly from the tanks. My pain comes because my saturation drops and I get extremely short of breath. Her pain may be caused by something else entirely. I would have an oximeter at home for her. Some docs, mine included, do not think a patient should have one. His theory is that it makes you watch your numbers instead of listening to your body. It is about the only thing that we disagree on......but I won. My prayers are with your family. Hugs, Joyce D. PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong. > > > > > > > > My first posting....my mother in law is in her early 70s and was diagnosed with PF about a year ago. She is on oxygen 24/7 now and uses a scooter. She has lost a lot of weight. One thing that really bothers her is a deep burning pain from her toes up to the top of her chest when she moves. Her internist knows nothing about this and suggests that it is not associated with PF... Keeps giving her phenegrin (sp). She also has nausea with this pain. Does anyone have a suggestion as to what this could be? Have any of you experienced such a thing? Simple tasks of everyday life are exhausting to her, and she is hestiant to exercise as that depletes what little energy she has......Furthermore, her appetite is just not there......To top it all off, she is diabetic and cannot take prednisone and some of the other like drugs. And, what's coming down the pike for this family? Mother in law's almost 80 year old husband is staying with her 24/7 as he is hesitant to leave her > > > > for fear of her falling, or losing her oxygen connection and not having the strength to reconnect. We've read the web information; they pretty much all say the same thing about what the disease is, but we are having real trouble finding out, from those who know, practical, useful information as to what is coming and the best way for us and the mother in law to handle things..... in Arkansas > > > > > > > > > > > > --------------------------------- > > > > Need a vacation? Get great deals to amazing places on Yahoo! Travel. > > > > > > > > > > > > > > > > > > > --------------------------------- > > > Check out the hottest 2008 models today at Yahoo! Autos. > > > > > > > > > > > > > --------------------------------- > > Got a little couch potato? > > Check out fun summer activities for kids. > > > > > > > --------------------------------- > Check out the hottest 2008 models today at Yahoo! Autos. > Tonight's top picks. What will you watch tonight? Preview the hottest shows on Yahoo! TV. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2007 Report Share Posted October 5, 2007 , Please except my deepest sympathies. But oh I just know she is getting such a welcome home today. God bless all of her family with friends with strength and peace. Love and Prayers, Peggy ipf 6/04 Florida " Worry looks around, Sorry looks back, Faith looks up. " Thank you for all you suggested. Doris passed away this evening at home. Joyce wrote: , Doris may be on liquid oxygen. It is the machine that we use at home that turns room air into 02. Doris may be on liquid and get her 02 directly from the tanks. My pain comes because my saturation drops and I get extremely short of breath. Her pain may be caused by something else entirely. I would have an oximeter at home for her. Some docs, mine included, do not think a patient should have one. His theory is that it makes you watch your numbers instead of listening to your body. It is about the only thing that we disagree on......but I won. My prayers are with your family. Hugs, Joyce D. PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong. > > > > > > > > My first posting....my mother in law is in her early 70s and was diagnosed with PF about a year ago. She is on oxygen 24/7 now and uses a scooter. She has lost a lot of weight. One thing that really bothers her is a deep burning pain from her toes up to the top of her chest when she moves. Her internist knows nothing about this and suggests that it is not associated with PF... Keeps giving her phenegrin (sp). She also has nausea with this pain. Does anyone have a suggestion as to what this could be? Have any of you experienced such a thing? Simple tasks of everyday life are exhausting to her, and she is hestiant to exercise as that depletes what little energy she has......Furthermore, her appetite is just not there......To top it all off, she is diabetic and cannot take prednisone and some of the other like drugs. And, what's coming down the pike for this family? Mother in law's almost 80 year old husband is staying with her 24/7 as he is hesitant to leave her > > > > for fear of her falling, or losing her oxygen connection and not having the strength to reconnect. We've read the web information; they pretty much all say the same thing about what the disease is, but we are having real trouble finding out, from those who know, practical, useful information as to what is coming and the best way for us and the mother in law to handle things..... in Arkansas > > > > > > > > > > > > --------------------------------- > > > > Need a vacation? Get great deals to amazing places on Yahoo! Travel. > > > > > > > > > > > > > > > > > > > --------------------------------- > > > Check out the hottest 2008 models today at Yahoo! Autos. > > > > > > > > > > > > > --------------------------------- > > Got a little couch potato? > > Check out fun summer activities for kids. > > > > > > > --------------------------------- > Check out the hottest 2008 models today at Yahoo! Autos. > Tonight's top picks. What will you watch tonight? Preview the hottest shows on Yahoo! TV. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2007 Report Share Posted October 5, 2007 , I am so terribly sorry. I know that you both did all you could to help her. My heart goes out to you and your family. Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong. > > > > >> > > > > My first posting....my mother in law is in her early 70s and was diagnosed with PF about a year ago. She is on oxygen 24/7 now and uses a scooter. She has lost a lot of weight. One thing that really bothers her is a deep burning pain from her toes up to the top of her chest when she moves. Her internist knows nothing about this and suggests that it is not associated with PF... Keeps giving her phenegrin (sp). She also has nausea with this pain. Does anyone have a suggestion as to what this could be? Have any of you experienced such a thing? Simple tasks of everyday life are exhausting to her, and she is hestiant to exercise as that depletes what little energy she has......Furthermore, her appetite is just not there......To top it all off, she is diabetic and cannot take prednisone and some of the other like drugs. And, what's coming down the pike for this family? Mother in law's almost 80 year old husband is staying with her 24/7 as he is hesitant to leave her> > > > > for fear of her falling, or losing her oxygen connection and not having the strength to reconnect. We've read the web information; they pretty much all say the same thing about what the disease is, but we are having real trouble finding out, from those who know, practical, useful information as to what is coming and the best way for us and the mother in law to handle things..... in Arkansas> > > > > > > > > > > > > > > ---------------------------------> > > > > Need a vacation? Get great deals to amazing places on Yahoo! Travel.> > > > >> > > > > > > > > > > > > > > > > > > > ---------------------------------> > > > Check out the hottest 2008 models today at Yahoo! Autos.> > > >> > > > > > > > > > > > > > > ---------------------------------> > > Got a little couch potato? > > > Check out fun summer activities for kids.> > >> > > > > > > > > > ---------------------------------> > Check out the hottest 2008 models today at Yahoo! Autos.> >> > > > > ---------------------------------> Tonight's top picks. What will you watch tonight? Preview the hottest shows on Yahoo! TV.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2007 Report Share Posted October 5, 2007 , I am so terribly sorry. I know that you both did all you could to help her. My heart goes out to you and your family. Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong. > > > > >> > > > > My first posting....my mother in law is in her early 70s and was diagnosed with PF about a year ago. She is on oxygen 24/7 now and uses a scooter. She has lost a lot of weight. One thing that really bothers her is a deep burning pain from her toes up to the top of her chest when she moves. Her internist knows nothing about this and suggests that it is not associated with PF... Keeps giving her phenegrin (sp). She also has nausea with this pain. Does anyone have a suggestion as to what this could be? Have any of you experienced such a thing? Simple tasks of everyday life are exhausting to her, and she is hestiant to exercise as that depletes what little energy she has......Furthermore, her appetite is just not there......To top it all off, she is diabetic and cannot take prednisone and some of the other like drugs. And, what's coming down the pike for this family? Mother in law's almost 80 year old husband is staying with her 24/7 as he is hesitant to leave her> > > > > for fear of her falling, or losing her oxygen connection and not having the strength to reconnect. We've read the web information; they pretty much all say the same thing about what the disease is, but we are having real trouble finding out, from those who know, practical, useful information as to what is coming and the best way for us and the mother in law to handle things..... in Arkansas> > > > > > > > > > > > > > > ---------------------------------> > > > > Need a vacation? Get great deals to amazing places on Yahoo! Travel.> > > > >> > > > > > > > > > > > > > > > > > > > ---------------------------------> > > > Check out the hottest 2008 models today at Yahoo! Autos.> > > >> > > > > > > > > > > > > > > ---------------------------------> > > Got a little couch potato? > > > Check out fun summer activities for kids.> > >> > > > > > > > > > ---------------------------------> > Check out the hottest 2008 models today at Yahoo! Autos.> >> > > > > ---------------------------------> Tonight's top picks. What will you watch tonight? Preview the hottest shows on Yahoo! TV.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2007 Report Share Posted October 5, 2007 , I am so terribly sorry. I know that you both did all you could to help her. My heart goes out to you and your family. Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong. > > > > >> > > > > My first posting....my mother in law is in her early 70s and was diagnosed with PF about a year ago. She is on oxygen 24/7 now and uses a scooter. She has lost a lot of weight. One thing that really bothers her is a deep burning pain from her toes up to the top of her chest when she moves. Her internist knows nothing about this and suggests that it is not associated with PF... Keeps giving her phenegrin (sp). She also has nausea with this pain. Does anyone have a suggestion as to what this could be? Have any of you experienced such a thing? Simple tasks of everyday life are exhausting to her, and she is hestiant to exercise as that depletes what little energy she has......Furthermore, her appetite is just not there......To top it all off, she is diabetic and cannot take prednisone and some of the other like drugs. And, what's coming down the pike for this family? Mother in law's almost 80 year old husband is staying with her 24/7 as he is hesitant to leave her> > > > > for fear of her falling, or losing her oxygen connection and not having the strength to reconnect. We've read the web information; they pretty much all say the same thing about what the disease is, but we are having real trouble finding out, from those who know, practical, useful information as to what is coming and the best way for us and the mother in law to handle things..... in Arkansas> > > > > > > > > > > > > > > ---------------------------------> > > > > Need a vacation? Get great deals to amazing places on Yahoo! Travel.> > > > >> > > > > > > > > > > > > > > > > > > > ---------------------------------> > > > Check out the hottest 2008 models today at Yahoo! Autos.> > > >> > > > > > > > > > > > > > > ---------------------------------> > > Got a little couch potato? > > > Check out fun summer activities for kids.> > >> > > > > > > > > > ---------------------------------> > Check out the hottest 2008 models today at Yahoo! Autos.> >> > > > > ---------------------------------> Tonight's top picks. What will you watch tonight? Preview the hottest shows on Yahoo! TV.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2007 Report Share Posted October 5, 2007 , I am so sorry for your loss. Z fibriotic NSIP/o5/PA Potter, reader,carousel lover and MomMom to Darah *“I’m gonna be iron like a lion in Zion” Bob Marley* Wells wrote: > Joyce, this is the sort of information we really need. Thank you so > much for taking the time to respond as we appreciate it so much. > > */Joyce /* wrote: > > , > I will add you to my list of people to admire for caring so much > for a loved one with PF. Those of us on this group, some like > myself having fought for quite a while, are still asking questions. > First the pain in the feet is pretty common among us. It is a > burning pain and sometimes cramping. It is either Peripheral > Neuropathy or his twin sister. When we are inactive the blood does > not circulate to our hands and feet and blood carries oxygen. The > pain moving upwards into her chest is nothing that I have > experienced. I do have pain in my chest when my oxygen numbers > drop. Does she have an oximeter? If I know that certain movements, > such as a shower, is going to cause a drop in saturation and hence > pain and coughing....I turn my 02 up so that I can get the task done. > It would be so good if she could just walk up and down the > hallway. Any activity will help circulation. Can you get a > respiratory or physical therapist to come work with her. If her > doc would order it, I think Medicare would cover it. > I am so sorry for your dear mom in love and the entire family. > This is a hideous disease. It preys on the young and old. We call > it the Monster. > Perhaps others will be better able to help with answers. I just > want to welcome you here. May our God have mercy on you all. > Hugs, Joyce D. > PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA > 2 COR. 12:10 ....when I am weak, then I am strong. > > > > > > My first posting....my mother in law is in her early 70s and was > diagnosed with PF about a year ago. She is on oxygen 24/7 now and > uses a scooter. She has lost a lot of weight. One thing that > really bothers her is a deep burning pain from her toes up to the > top of her chest when she moves. Her internist knows nothing about > this and suggests that it is not associated with PF... Keeps > giving her phenegrin (sp). She also has nausea with this pain. > Does anyone have a suggestion as to what this could be? Have any > of you experienced such a thing? Simple tasks of everyday life are > exhausting to her, and she is hestiant to exercise as that > depletes what little energy she has......Furthermore, her appetite > is just not there......To top it all off, she is diabetic and > cannot take prednisone and some of the other like drugs. And, > what's coming down the pike for this family? Mother in law's > almost 80 year old husband is staying with her 24/7 as he is > hesitant to leave her > > for fear of her falling, or losing her oxygen connection and not > having the strength to reconnect. We've read the web information; > they pretty much all say the same thing about what the disease is, > but we are having real trouble finding out, from those who know, > practical, useful information as to what is coming and the best > way for us and the mother in law to handle things..... in Arkansas > > > > > > --------------------------------- > > Need a vacation? Get great deals to amazing places on Yahoo! Travel. > > > > > ------------------------------------------------------------------------ > Check out > <http://us.rd.yahoo.com/evt=51201/*http://autos.yahoo.com/new_cars.html;_ylc=X3o\ DMTE5NWVzZGVyBF9TAzk3MTA3MDc2BHNlYwNtYWlsdGFncwRzbGsDYXV0b3MtbmV3Y2Fy> > the hottest 2008 models today at Yahoo! Autos. > > >------------------------------------------------------------------------ > >No virus found in this incoming message. >Checked by AVG Free Edition. >Version: 7.5.488 / Virus Database: 269.13.39/1045 - Release Date: 10/2/2007 6:43 PM > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2007 Report Share Posted October 5, 2007 , I am so sorry for your loss. Z fibriotic NSIP/o5/PA Potter, reader,carousel lover and MomMom to Darah *“I’m gonna be iron like a lion in Zion” Bob Marley* Wells wrote: > Joyce, this is the sort of information we really need. Thank you so > much for taking the time to respond as we appreciate it so much. > > */Joyce /* wrote: > > , > I will add you to my list of people to admire for caring so much > for a loved one with PF. Those of us on this group, some like > myself having fought for quite a while, are still asking questions. > First the pain in the feet is pretty common among us. It is a > burning pain and sometimes cramping. It is either Peripheral > Neuropathy or his twin sister. When we are inactive the blood does > not circulate to our hands and feet and blood carries oxygen. The > pain moving upwards into her chest is nothing that I have > experienced. I do have pain in my chest when my oxygen numbers > drop. Does she have an oximeter? If I know that certain movements, > such as a shower, is going to cause a drop in saturation and hence > pain and coughing....I turn my 02 up so that I can get the task done. > It would be so good if she could just walk up and down the > hallway. Any activity will help circulation. Can you get a > respiratory or physical therapist to come work with her. If her > doc would order it, I think Medicare would cover it. > I am so sorry for your dear mom in love and the entire family. > This is a hideous disease. It preys on the young and old. We call > it the Monster. > Perhaps others will be better able to help with answers. I just > want to welcome you here. May our God have mercy on you all. > Hugs, Joyce D. > PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA > 2 COR. 12:10 ....when I am weak, then I am strong. > > > > > > My first posting....my mother in law is in her early 70s and was > diagnosed with PF about a year ago. She is on oxygen 24/7 now and > uses a scooter. She has lost a lot of weight. One thing that > really bothers her is a deep burning pain from her toes up to the > top of her chest when she moves. Her internist knows nothing about > this and suggests that it is not associated with PF... Keeps > giving her phenegrin (sp). She also has nausea with this pain. > Does anyone have a suggestion as to what this could be? Have any > of you experienced such a thing? Simple tasks of everyday life are > exhausting to her, and she is hestiant to exercise as that > depletes what little energy she has......Furthermore, her appetite > is just not there......To top it all off, she is diabetic and > cannot take prednisone and some of the other like drugs. And, > what's coming down the pike for this family? Mother in law's > almost 80 year old husband is staying with her 24/7 as he is > hesitant to leave her > > for fear of her falling, or losing her oxygen connection and not > having the strength to reconnect. We've read the web information; > they pretty much all say the same thing about what the disease is, > but we are having real trouble finding out, from those who know, > practical, useful information as to what is coming and the best > way for us and the mother in law to handle things..... in Arkansas > > > > > > --------------------------------- > > Need a vacation? Get great deals to amazing places on Yahoo! Travel. > > > > > ------------------------------------------------------------------------ > Check out > <http://us.rd.yahoo.com/evt=51201/*http://autos.yahoo.com/new_cars.html;_ylc=X3o\ DMTE5NWVzZGVyBF9TAzk3MTA3MDc2BHNlYwNtYWlsdGFncwRzbGsDYXV0b3MtbmV3Y2Fy> > the hottest 2008 models today at Yahoo! Autos. > > >------------------------------------------------------------------------ > >No virus found in this incoming message. >Checked by AVG Free Edition. >Version: 7.5.488 / Virus Database: 269.13.39/1045 - Release Date: 10/2/2007 6:43 PM > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2007 Report Share Posted October 5, 2007 , I am so sorry for your loss. Z fibriotic NSIP/o5/PA Potter, reader,carousel lover and MomMom to Darah *“I’m gonna be iron like a lion in Zion” Bob Marley* Wells wrote: > Joyce, this is the sort of information we really need. Thank you so > much for taking the time to respond as we appreciate it so much. > > */Joyce /* wrote: > > , > I will add you to my list of people to admire for caring so much > for a loved one with PF. Those of us on this group, some like > myself having fought for quite a while, are still asking questions. > First the pain in the feet is pretty common among us. It is a > burning pain and sometimes cramping. It is either Peripheral > Neuropathy or his twin sister. When we are inactive the blood does > not circulate to our hands and feet and blood carries oxygen. The > pain moving upwards into her chest is nothing that I have > experienced. I do have pain in my chest when my oxygen numbers > drop. Does she have an oximeter? If I know that certain movements, > such as a shower, is going to cause a drop in saturation and hence > pain and coughing....I turn my 02 up so that I can get the task done. > It would be so good if she could just walk up and down the > hallway. Any activity will help circulation. Can you get a > respiratory or physical therapist to come work with her. If her > doc would order it, I think Medicare would cover it. > I am so sorry for your dear mom in love and the entire family. > This is a hideous disease. It preys on the young and old. We call > it the Monster. > Perhaps others will be better able to help with answers. I just > want to welcome you here. May our God have mercy on you all. > Hugs, Joyce D. > PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA > 2 COR. 12:10 ....when I am weak, then I am strong. > > > > > > My first posting....my mother in law is in her early 70s and was > diagnosed with PF about a year ago. She is on oxygen 24/7 now and > uses a scooter. She has lost a lot of weight. One thing that > really bothers her is a deep burning pain from her toes up to the > top of her chest when she moves. Her internist knows nothing about > this and suggests that it is not associated with PF... Keeps > giving her phenegrin (sp). She also has nausea with this pain. > Does anyone have a suggestion as to what this could be? Have any > of you experienced such a thing? Simple tasks of everyday life are > exhausting to her, and she is hestiant to exercise as that > depletes what little energy she has......Furthermore, her appetite > is just not there......To top it all off, she is diabetic and > cannot take prednisone and some of the other like drugs. And, > what's coming down the pike for this family? Mother in law's > almost 80 year old husband is staying with her 24/7 as he is > hesitant to leave her > > for fear of her falling, or losing her oxygen connection and not > having the strength to reconnect. We've read the web information; > they pretty much all say the same thing about what the disease is, > but we are having real trouble finding out, from those who know, > practical, useful information as to what is coming and the best > way for us and the mother in law to handle things..... in Arkansas > > > > > > --------------------------------- > > Need a vacation? Get great deals to amazing places on Yahoo! Travel. > > > > > ------------------------------------------------------------------------ > Check out > <http://us.rd.yahoo.com/evt=51201/*http://autos.yahoo.com/new_cars.html;_ylc=X3o\ DMTE5NWVzZGVyBF9TAzk3MTA3MDc2BHNlYwNtYWlsdGFncwRzbGsDYXV0b3MtbmV3Y2Fy> > the hottest 2008 models today at Yahoo! Autos. > > >------------------------------------------------------------------------ > >No virus found in this incoming message. >Checked by AVG Free Edition. >Version: 7.5.488 / Virus Database: 269.13.39/1045 - Release Date: 10/2/2007 6:43 PM > > Quote Link to comment Share on other sites More sharing options...
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