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October 1, 2007

My first posting....my mother in law is in her early 70s and was diagnosed with PF about a year ago. She is on oxygen 24/7 now and uses a scooter. She has lost a lot of weight. One thing that really bothers her is a deep burning pain from her toes up to the top of her chest when she moves. Her internist knows nothing about this and suggests that it is not associated with PF... Keeps giving her phenegrin (sp). She also has nausea with this pain. Does anyone have a suggestion as to what this could be? Have any of you experienced such a thing? Simple tasks of everyday life are exhausting to her, and she is hestiant to exercise as that depletes what little energy she has......Furthermore, her appetite is just not there......To top it all off, she is diabetic and cannot take prednisone and some of the other like drugs. And, what's coming down the pike for this family? Mother in law's almost 80 year old

husband is staying with her 24/7 as he is hesitant to leave her for fear of her falling, or losing her oxygen connection and not having the strength to reconnect. We've read the web information; they pretty much all say the same thing about what the disease is, but we are having real trouble finding out, from those who know, practical, useful information as to what is coming and the best way for us and the mother in law to handle things..... in Arkansas

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October 1, 2007

Dear , I have no idea what that pain could be but I know I always get nauseous with any kind of pain. The disease affects all of us so differently, I think most of us take it a day at a time and are thankful for our good days. I will be praying for your mother in law and hope that others might have the answer to the pain question. God bless you- Wells wrote: My first posting....my mother in law is in her early 70s and was diagnosed with PF about a year ago.

She is on oxygen 24/7 now and uses a scooter. She has lost a lot of weight. One thing that really bothers her is a deep burning pain from her toes up to the top of her chest when she moves. Her internist knows nothing about this and suggests that it is not associated with PF... Keeps giving her phenegrin (sp). She also has nausea with this pain. Does anyone have a suggestion as to what this could be? Have any of you experienced such a thing? Simple tasks of everyday life are exhausting to her, and she is hestiant to exercise as that depletes what little energy she has......Furthermore, her appetite is just not there......To top it all off, she is diabetic and cannot take prednisone and some of the other like drugs. And, what's coming down the pike for this family? Mother in law's almost 80 year old husband is staying with her 24/7 as he is hesitant to leave her for fear of her falling, or losing her oxygen

connection and not having the strength to reconnect. We've read the web information; they pretty much all say the same thing about what the disease is, but we are having real trouble finding out, from those who know, practical, useful information as to what is coming and the best way for us and the mother in law to handle things..... in Arkansas Need a vacation? Get great deals to amazing places on Yahoo! Travel. Sarcoid/PF 3/2006

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October 1, 2007

Dear , I have no idea what that pain could be but I know I always get nauseous with any kind of pain. The disease affects all of us so differently, I think most of us take it a day at a time and are thankful for our good days. I will be praying for your mother in law and hope that others might have the answer to the pain question. God bless you- Wells wrote: My first posting....my mother in law is in her early 70s and was diagnosed with PF about a year ago.

She is on oxygen 24/7 now and uses a scooter. She has lost a lot of weight. One thing that really bothers her is a deep burning pain from her toes up to the top of her chest when she moves. Her internist knows nothing about this and suggests that it is not associated with PF... Keeps giving her phenegrin (sp). She also has nausea with this pain. Does anyone have a suggestion as to what this could be? Have any of you experienced such a thing? Simple tasks of everyday life are exhausting to her, and she is hestiant to exercise as that depletes what little energy she has......Furthermore, her appetite is just not there......To top it all off, she is diabetic and cannot take prednisone and some of the other like drugs. And, what's coming down the pike for this family? Mother in law's almost 80 year old husband is staying with her 24/7 as he is hesitant to leave her for fear of her falling, or losing her oxygen

connection and not having the strength to reconnect. We've read the web information; they pretty much all say the same thing about what the disease is, but we are having real trouble finding out, from those who know, practical, useful information as to what is coming and the best way for us and the mother in law to handle things..... in Arkansas Need a vacation? Get great deals to amazing places on Yahoo! Travel. Sarcoid/PF 3/2006

Catch up on fall's hot new shows on Yahoo! TV. Watch previews, get listings, and more!

October 1, 2007

Dear , I have no idea what that pain could be but I know I always get nauseous with any kind of pain. The disease affects all of us so differently, I think most of us take it a day at a time and are thankful for our good days. I will be praying for your mother in law and hope that others might have the answer to the pain question. God bless you- Wells wrote: My first posting....my mother in law is in her early 70s and was diagnosed with PF about a year ago.

She is on oxygen 24/7 now and uses a scooter. She has lost a lot of weight. One thing that really bothers her is a deep burning pain from her toes up to the top of her chest when she moves. Her internist knows nothing about this and suggests that it is not associated with PF... Keeps giving her phenegrin (sp). She also has nausea with this pain. Does anyone have a suggestion as to what this could be? Have any of you experienced such a thing? Simple tasks of everyday life are exhausting to her, and she is hestiant to exercise as that depletes what little energy she has......Furthermore, her appetite is just not there......To top it all off, she is diabetic and cannot take prednisone and some of the other like drugs. And, what's coming down the pike for this family? Mother in law's almost 80 year old husband is staying with her 24/7 as he is hesitant to leave her for fear of her falling, or losing her oxygen

connection and not having the strength to reconnect. We've read the web information; they pretty much all say the same thing about what the disease is, but we are having real trouble finding out, from those who know, practical, useful information as to what is coming and the best way for us and the mother in law to handle things..... in Arkansas Need a vacation? Get great deals to amazing places on Yahoo! Travel. Sarcoid/PF 3/2006

Catch up on fall's hot new shows on Yahoo! TV. Watch previews, get listings, and more!

October 2, 2007

,

I will add you to my list of people to admire for caring so much for a loved one with PF. Those of us on this group, some like myself having fought for quite a while, are still asking questions.

First the pain in the feet is pretty common among us. It is a burning pain and sometimes cramping. It is either Peripheral Neuropathy or his twin sister. When we are inactive the blood does not circulate to our hands and feet and blood carries oxygen. The pain moving upwards into her chest is nothing that I have experienced. I do have pain in my chest when my oxygen numbers drop. Does she have an oximeter? If I know that certain movements, such as a shower, is going to cause a drop in saturation and hence pain and coughing....I turn my 02 up so that I can get the task done.

It would be so good if she could just walk up and down the hallway. Any activity will help circulation. Can you get a respiratory or physical therapist to come work with her. If her doc would order it, I think Medicare would cover it.

I am so sorry for your dear mom in love and the entire family. This is a hideous disease. It preys on the young and old. We call it the Monster.

Perhaps others will be better able to help with answers. I just want to welcome you here. May our God have mercy on you all.

Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong.

>> My first posting....my mother in law is in her early 70s and was diagnosed with PF about a year ago. She is on oxygen 24/7 now and uses a scooter. She has lost a lot of weight. One thing that really bothers her is a deep burning pain from her toes up to the top of her chest when she moves. Her internist knows nothing about this and suggests that it is not associated with PF... Keeps giving her phenegrin (sp). She also has nausea with this pain. Does anyone have a suggestion as to what this could be? Have any of you experienced such a thing? Simple tasks of everyday life are exhausting to her, and she is hestiant to exercise as that depletes what little energy she has......Furthermore, her appetite is just not there......To top it all off, she is diabetic and cannot take prednisone and some of the other like drugs. And, what's coming down the pike for this family? Mother in law's almost 80 year old husband is staying with her 24/7 as he is hesitant to leave her> for fear of her falling, or losing her oxygen connection and not having the strength to reconnect. We've read the web information; they pretty much all say the same thing about what the disease is, but we are having real trouble finding out, from those who know, practical, useful information as to what is coming and the best way for us and the mother in law to handle things..... in Arkansas> > > ---------------------------------> Need a vacation? Get great deals to amazing places on Yahoo! Travel.>

October 2, 2007

,

I will add you to my list of people to admire for caring so much for a loved one with PF. Those of us on this group, some like myself having fought for quite a while, are still asking questions.

First the pain in the feet is pretty common among us. It is a burning pain and sometimes cramping. It is either Peripheral Neuropathy or his twin sister. When we are inactive the blood does not circulate to our hands and feet and blood carries oxygen. The pain moving upwards into her chest is nothing that I have experienced. I do have pain in my chest when my oxygen numbers drop. Does she have an oximeter? If I know that certain movements, such as a shower, is going to cause a drop in saturation and hence pain and coughing....I turn my 02 up so that I can get the task done.

It would be so good if she could just walk up and down the hallway. Any activity will help circulation. Can you get a respiratory or physical therapist to come work with her. If her doc would order it, I think Medicare would cover it.

I am so sorry for your dear mom in love and the entire family. This is a hideous disease. It preys on the young and old. We call it the Monster.

Perhaps others will be better able to help with answers. I just want to welcome you here. May our God have mercy on you all.

Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong.

>> My first posting....my mother in law is in her early 70s and was diagnosed with PF about a year ago. She is on oxygen 24/7 now and uses a scooter. She has lost a lot of weight. One thing that really bothers her is a deep burning pain from her toes up to the top of her chest when she moves. Her internist knows nothing about this and suggests that it is not associated with PF... Keeps giving her phenegrin (sp). She also has nausea with this pain. Does anyone have a suggestion as to what this could be? Have any of you experienced such a thing? Simple tasks of everyday life are exhausting to her, and she is hestiant to exercise as that depletes what little energy she has......Furthermore, her appetite is just not there......To top it all off, she is diabetic and cannot take prednisone and some of the other like drugs. And, what's coming down the pike for this family? Mother in law's almost 80 year old husband is staying with her 24/7 as he is hesitant to leave her> for fear of her falling, or losing her oxygen connection and not having the strength to reconnect. We've read the web information; they pretty much all say the same thing about what the disease is, but we are having real trouble finding out, from those who know, practical, useful information as to what is coming and the best way for us and the mother in law to handle things..... in Arkansas> > > ---------------------------------> Need a vacation? Get great deals to amazing places on Yahoo! Travel.>

October 2, 2007

,

I will add you to my list of people to admire for caring so much for a loved one with PF. Those of us on this group, some like myself having fought for quite a while, are still asking questions.

First the pain in the feet is pretty common among us. It is a burning pain and sometimes cramping. It is either Peripheral Neuropathy or his twin sister. When we are inactive the blood does not circulate to our hands and feet and blood carries oxygen. The pain moving upwards into her chest is nothing that I have experienced. I do have pain in my chest when my oxygen numbers drop. Does she have an oximeter? If I know that certain movements, such as a shower, is going to cause a drop in saturation and hence pain and coughing....I turn my 02 up so that I can get the task done.

It would be so good if she could just walk up and down the hallway. Any activity will help circulation. Can you get a respiratory or physical therapist to come work with her. If her doc would order it, I think Medicare would cover it.

I am so sorry for your dear mom in love and the entire family. This is a hideous disease. It preys on the young and old. We call it the Monster.

Perhaps others will be better able to help with answers. I just want to welcome you here. May our God have mercy on you all.

Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong.

>> My first posting....my mother in law is in her early 70s and was diagnosed with PF about a year ago. She is on oxygen 24/7 now and uses a scooter. She has lost a lot of weight. One thing that really bothers her is a deep burning pain from her toes up to the top of her chest when she moves. Her internist knows nothing about this and suggests that it is not associated with PF... Keeps giving her phenegrin (sp). She also has nausea with this pain. Does anyone have a suggestion as to what this could be? Have any of you experienced such a thing? Simple tasks of everyday life are exhausting to her, and she is hestiant to exercise as that depletes what little energy she has......Furthermore, her appetite is just not there......To top it all off, she is diabetic and cannot take prednisone and some of the other like drugs. And, what's coming down the pike for this family? Mother in law's almost 80 year old husband is staying with her 24/7 as he is hesitant to leave her> for fear of her falling, or losing her oxygen connection and not having the strength to reconnect. We've read the web information; they pretty much all say the same thing about what the disease is, but we are having real trouble finding out, from those who know, practical, useful information as to what is coming and the best way for us and the mother in law to handle things..... in Arkansas> > > ---------------------------------> Need a vacation? Get great deals to amazing places on Yahoo! Travel.>

October 2, 2007

Joyce, this is the sort of information we really need. Thank you so much for taking the time to respond as we appreciate it so much. Joyce wrote: , I will add you to my list of people to admire for caring so much for a loved one with

PF. Those of us on this group, some like myself having fought for quite a while, are still asking questions. First the pain in the feet is pretty common among us. It is a burning pain and sometimes cramping. It is either Peripheral Neuropathy or his twin sister. When we are inactive the blood does not circulate to our hands and feet and blood carries oxygen. The pain moving upwards into her chest is nothing that I have experienced. I do have pain in my chest when my oxygen numbers drop. Does she have an oximeter? If I know that certain movements, such as a shower, is going to cause a drop in saturation and hence pain and coughing....I turn my 02 up so that I can get the task done. It would be so good if she could just walk up and down the hallway. Any activity will help circulation. Can you get a

respiratory or physical therapist to come work with her. If her doc would order it, I think Medicare would cover it. I am so sorry for your dear mom in love and the entire family. This is a hideous disease. It preys on the young and old. We call it the Monster. Perhaps others will be better able to help with answers. I just want to welcome you here. May our God have mercy on you all. Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong. >> My first posting....my mother in law is in her early 70s and was diagnosed with PF about a year ago. She is on oxygen 24/7 now and uses a scooter. She has lost a lot of weight. One thing that really bothers her is a deep burning pain from her toes up to the top of her chest when she moves. Her internist knows nothing about this and suggests that it is not associated with PF... Keeps giving her phenegrin (sp). She also has nausea with this pain. Does anyone have a suggestion as to what this could be? Have any of you experienced such a thing? Simple tasks of everyday life are exhausting to her, and she is hestiant to exercise as that depletes what little energy she has......Furthermore, her appetite is just not there......To top it all off, she is diabetic and cannot take prednisone and some of the other like drugs. And, what's coming down the pike for this family? Mother in law's

almost 80 year old husband is staying with her 24/7 as he is hesitant to leave her> for fear of her falling, or losing her oxygen connection and not having the strength to reconnect. We've read the web information; they pretty much all say the same thing about what the disease is, but we are having real trouble finding out, from those who know, practical, useful information as to what is coming and the best way for us and the mother in law to handle things..... in Arkansas> > > ---------------------------------> Need a vacation? Get great deals to amazing places on Yahoo! Travel.>

Check out the hottest 2008 models today at Yahoo! Autos.

October 2, 2007

Joyce, this is the sort of information we really need. Thank you so much for taking the time to respond as we appreciate it so much. Joyce wrote: , I will add you to my list of people to admire for caring so much for a loved one with

PF. Those of us on this group, some like myself having fought for quite a while, are still asking questions. First the pain in the feet is pretty common among us. It is a burning pain and sometimes cramping. It is either Peripheral Neuropathy or his twin sister. When we are inactive the blood does not circulate to our hands and feet and blood carries oxygen. The pain moving upwards into her chest is nothing that I have experienced. I do have pain in my chest when my oxygen numbers drop. Does she have an oximeter? If I know that certain movements, such as a shower, is going to cause a drop in saturation and hence pain and coughing....I turn my 02 up so that I can get the task done. It would be so good if she could just walk up and down the hallway. Any activity will help circulation. Can you get a

respiratory or physical therapist to come work with her. If her doc would order it, I think Medicare would cover it. I am so sorry for your dear mom in love and the entire family. This is a hideous disease. It preys on the young and old. We call it the Monster. Perhaps others will be better able to help with answers. I just want to welcome you here. May our God have mercy on you all. Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong. >> My first posting....my mother in law is in her early 70s and was diagnosed with PF about a year ago. She is on oxygen 24/7 now and uses a scooter. She has lost a lot of weight. One thing that really bothers her is a deep burning pain from her toes up to the top of her chest when she moves. Her internist knows nothing about this and suggests that it is not associated with PF... Keeps giving her phenegrin (sp). She also has nausea with this pain. Does anyone have a suggestion as to what this could be? Have any of you experienced such a thing? Simple tasks of everyday life are exhausting to her, and she is hestiant to exercise as that depletes what little energy she has......Furthermore, her appetite is just not there......To top it all off, she is diabetic and cannot take prednisone and some of the other like drugs. And, what's coming down the pike for this family? Mother in law's

almost 80 year old husband is staying with her 24/7 as he is hesitant to leave her> for fear of her falling, or losing her oxygen connection and not having the strength to reconnect. We've read the web information; they pretty much all say the same thing about what the disease is, but we are having real trouble finding out, from those who know, practical, useful information as to what is coming and the best way for us and the mother in law to handle things..... in Arkansas> > > ---------------------------------> Need a vacation? Get great deals to amazing places on Yahoo! Travel.>

Check out the hottest 2008 models today at Yahoo! Autos.

October 2, 2007

Joyce, this is the sort of information we really need. Thank you so much for taking the time to respond as we appreciate it so much. Joyce wrote: , I will add you to my list of people to admire for caring so much for a loved one with

PF. Those of us on this group, some like myself having fought for quite a while, are still asking questions. First the pain in the feet is pretty common among us. It is a burning pain and sometimes cramping. It is either Peripheral Neuropathy or his twin sister. When we are inactive the blood does not circulate to our hands and feet and blood carries oxygen. The pain moving upwards into her chest is nothing that I have experienced. I do have pain in my chest when my oxygen numbers drop. Does she have an oximeter? If I know that certain movements, such as a shower, is going to cause a drop in saturation and hence pain and coughing....I turn my 02 up so that I can get the task done. It would be so good if she could just walk up and down the hallway. Any activity will help circulation. Can you get a

respiratory or physical therapist to come work with her. If her doc would order it, I think Medicare would cover it. I am so sorry for your dear mom in love and the entire family. This is a hideous disease. It preys on the young and old. We call it the Monster. Perhaps others will be better able to help with answers. I just want to welcome you here. May our God have mercy on you all. Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong. >> My first posting....my mother in law is in her early 70s and was diagnosed with PF about a year ago. She is on oxygen 24/7 now and uses a scooter. She has lost a lot of weight. One thing that really bothers her is a deep burning pain from her toes up to the top of her chest when she moves. Her internist knows nothing about this and suggests that it is not associated with PF... Keeps giving her phenegrin (sp). She also has nausea with this pain. Does anyone have a suggestion as to what this could be? Have any of you experienced such a thing? Simple tasks of everyday life are exhausting to her, and she is hestiant to exercise as that depletes what little energy she has......Furthermore, her appetite is just not there......To top it all off, she is diabetic and cannot take prednisone and some of the other like drugs. And, what's coming down the pike for this family? Mother in law's

almost 80 year old husband is staying with her 24/7 as he is hesitant to leave her> for fear of her falling, or losing her oxygen connection and not having the strength to reconnect. We've read the web information; they pretty much all say the same thing about what the disease is, but we are having real trouble finding out, from those who know, practical, useful information as to what is coming and the best way for us and the mother in law to handle things..... in Arkansas> > > ---------------------------------> Need a vacation? Get great deals to amazing places on Yahoo! Travel.>

Check out the hottest 2008 models today at Yahoo! Autos.

October 3, 2007

,

One more thing. Do the docs have her on a medication for GERDS (acid reflux)? It is common to Pulmonary Fibrosis. Almost all of us have it. It causes terrible chest pain and sometimes nausea. It is especially bad if one is lying down a lot of the time.

Most of us sleep in beds that are elevated at the top. Some in recliners. It helps with breathing and helps keep down the reflux and pain.

Thank God for you and your family for caring for her. So many are left alone with no help from family.

Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong.> >> > My first posting....my mother in law is in her early 70s and was diagnosed with PF about a year ago. She is on oxygen 24/7 now and uses a scooter. She has lost a lot of weight. One thing that really bothers her is a deep burning pain from her toes up to the top of her chest when she moves. Her internist knows nothing about this and suggests that it is not associated with PF... Keeps giving her phenegrin (sp). She also has nausea with this pain. Does anyone have a suggestion as to what this could be? Have any of you experienced such a thing? Simple tasks of everyday life are exhausting to her, and she is hestiant to exercise as that depletes what little energy she has......Furthermore, her appetite is just not there......To top it all off, she is diabetic and cannot take prednisone and some of the other like drugs. And, what's coming down the pike for this family? Mother in law's almost 80 year old husband is staying with her 24/7 as he is hesitant to leave her> > for fear of her falling, or losing her oxygen connection and not having the strength to reconnect. We've read the web information; they pretty much all say the same thing about what the disease is, but we are having real trouble finding out, from those who know, practical, useful information as to what is coming and the best way for us and the mother in law to handle things..... in Arkansas> > > > > > ---------------------------------> > Need a vacation? Get great deals to amazing places on Yahoo! Travel.> >> > > > > ---------------------------------> Check out the hottest 2008 models today at Yahoo! Autos.>

October 3, 2007

,

One more thing. Do the docs have her on a medication for GERDS (acid reflux)? It is common to Pulmonary Fibrosis. Almost all of us have it. It causes terrible chest pain and sometimes nausea. It is especially bad if one is lying down a lot of the time.

Most of us sleep in beds that are elevated at the top. Some in recliners. It helps with breathing and helps keep down the reflux and pain.

Thank God for you and your family for caring for her. So many are left alone with no help from family.

Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong.> >> > My first posting....my mother in law is in her early 70s and was diagnosed with PF about a year ago. She is on oxygen 24/7 now and uses a scooter. She has lost a lot of weight. One thing that really bothers her is a deep burning pain from her toes up to the top of her chest when she moves. Her internist knows nothing about this and suggests that it is not associated with PF... Keeps giving her phenegrin (sp). She also has nausea with this pain. Does anyone have a suggestion as to what this could be? Have any of you experienced such a thing? Simple tasks of everyday life are exhausting to her, and she is hestiant to exercise as that depletes what little energy she has......Furthermore, her appetite is just not there......To top it all off, she is diabetic and cannot take prednisone and some of the other like drugs. And, what's coming down the pike for this family? Mother in law's almost 80 year old husband is staying with her 24/7 as he is hesitant to leave her> > for fear of her falling, or losing her oxygen connection and not having the strength to reconnect. We've read the web information; they pretty much all say the same thing about what the disease is, but we are having real trouble finding out, from those who know, practical, useful information as to what is coming and the best way for us and the mother in law to handle things..... in Arkansas> > > > > > ---------------------------------> > Need a vacation? Get great deals to amazing places on Yahoo! Travel.> >> > > > > ---------------------------------> Check out the hottest 2008 models today at Yahoo! Autos.>

October 3, 2007

,

One more thing. Do the docs have her on a medication for GERDS (acid reflux)? It is common to Pulmonary Fibrosis. Almost all of us have it. It causes terrible chest pain and sometimes nausea. It is especially bad if one is lying down a lot of the time.

Most of us sleep in beds that are elevated at the top. Some in recliners. It helps with breathing and helps keep down the reflux and pain.

Thank God for you and your family for caring for her. So many are left alone with no help from family.

Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong.> >> > My first posting....my mother in law is in her early 70s and was diagnosed with PF about a year ago. She is on oxygen 24/7 now and uses a scooter. She has lost a lot of weight. One thing that really bothers her is a deep burning pain from her toes up to the top of her chest when she moves. Her internist knows nothing about this and suggests that it is not associated with PF... Keeps giving her phenegrin (sp). She also has nausea with this pain. Does anyone have a suggestion as to what this could be? Have any of you experienced such a thing? Simple tasks of everyday life are exhausting to her, and she is hestiant to exercise as that depletes what little energy she has......Furthermore, her appetite is just not there......To top it all off, she is diabetic and cannot take prednisone and some of the other like drugs. And, what's coming down the pike for this family? Mother in law's almost 80 year old husband is staying with her 24/7 as he is hesitant to leave her> > for fear of her falling, or losing her oxygen connection and not having the strength to reconnect. We've read the web information; they pretty much all say the same thing about what the disease is, but we are having real trouble finding out, from those who know, practical, useful information as to what is coming and the best way for us and the mother in law to handle things..... in Arkansas> > > > > > ---------------------------------> > Need a vacation? Get great deals to amazing places on Yahoo! Travel.> >> > > > > ---------------------------------> Check out the hottest 2008 models today at Yahoo! Autos.>

October 3, 2007

Joyce, I hate to bother you with this, but I've got two questions. What is an "oximeter" and what are folks talking about when discussing "high flow" applications? We have suggested that Doris (the mother in law) turn up her oxygen when she is hurting; however, a general physician advised against this as "you only have so many vessels left in your lungs that can handle only so much oxygen." He went on to say that turning up the o2 would only be a waste. Somehow, this seems kind of faulty thinking. Will you, please opine on this? Thanks for your interest and your ready and rapid responses. Doris was put on a catheter today; things are moving kind of fast. Your interest in helping someone in a time of need is appreciated. jwwJoyce wrote: , One more thing. Do the docs have her on a medication for GERDS (acid reflux)? It is common to Pulmonary Fibrosis. Almost all of us have it. It causes terrible chest pain and sometimes nausea. It is especially bad if one is lying down a lot of the time. Most of us sleep in beds that are elevated at the top. Some in recliners. It helps with breathing and helps keep down the reflux and pain. Thank God for you and your family for caring for her. So many are left alone with no help from family. Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong.> >> > My first posting....my mother in law is in her early 70s and was diagnosed with PF about a year ago. She is on oxygen 24/7 now and uses a scooter. She has lost a lot of weight. One thing that really bothers her is a deep burning pain from her toes up to the top of her chest when she moves. Her internist knows nothing about this and suggests that it is not associated with PF... Keeps giving her phenegrin (sp). She also has nausea with this pain. Does anyone have a suggestion as to what this could be? Have any of you experienced such a thing? Simple tasks of everyday life are exhausting to her, and she is hestiant to exercise as that depletes what little energy she has......Furthermore, her appetite is just not there......To top it all off, she is diabetic and cannot take prednisone and some of the other like drugs. And, what's coming down the pike for this family? Mother in law's almost 80 year old husband is staying with her 24/7 as he is

hesitant to leave her> > for fear of her falling, or losing her oxygen connection and not having the strength to reconnect. We've read the web information; they pretty much all say the same thing about what the disease is, but we are having real trouble finding out, from those who know, practical, useful information as to what is coming and the best way for us and the mother in law to handle things..... in Arkansas> > > > > > ---------------------------------> > Need a vacation? Get great deals to amazing places on Yahoo! Travel.> >> > > > > ---------------------------------> Check out the hottest 2008 models today at Yahoo! Autos.>

Got a little couch potato?

Check out fun summer activities for kids.

October 3, 2007

Joyce, I hate to bother you with this, but I've got two questions. What is an "oximeter" and what are folks talking about when discussing "high flow" applications? We have suggested that Doris (the mother in law) turn up her oxygen when she is hurting; however, a general physician advised against this as "you only have so many vessels left in your lungs that can handle only so much oxygen." He went on to say that turning up the o2 would only be a waste. Somehow, this seems kind of faulty thinking. Will you, please opine on this? Thanks for your interest and your ready and rapid responses. Doris was put on a catheter today; things are moving kind of fast. Your interest in helping someone in a time of need is appreciated. jwwJoyce wrote: , One more thing. Do the docs have her on a medication for GERDS (acid reflux)? It is common to Pulmonary Fibrosis. Almost all of us have it. It causes terrible chest pain and sometimes nausea. It is especially bad if one is lying down a lot of the time. Most of us sleep in beds that are elevated at the top. Some in recliners. It helps with breathing and helps keep down the reflux and pain. Thank God for you and your family for caring for her. So many are left alone with no help from family. Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong.> >> > My first posting....my mother in law is in her early 70s and was diagnosed with PF about a year ago. She is on oxygen 24/7 now and uses a scooter. She has lost a lot of weight. One thing that really bothers her is a deep burning pain from her toes up to the top of her chest when she moves. Her internist knows nothing about this and suggests that it is not associated with PF... Keeps giving her phenegrin (sp). She also has nausea with this pain. Does anyone have a suggestion as to what this could be? Have any of you experienced such a thing? Simple tasks of everyday life are exhausting to her, and she is hestiant to exercise as that depletes what little energy she has......Furthermore, her appetite is just not there......To top it all off, she is diabetic and cannot take prednisone and some of the other like drugs. And, what's coming down the pike for this family? Mother in law's almost 80 year old husband is staying with her 24/7 as he is

hesitant to leave her> > for fear of her falling, or losing her oxygen connection and not having the strength to reconnect. We've read the web information; they pretty much all say the same thing about what the disease is, but we are having real trouble finding out, from those who know, practical, useful information as to what is coming and the best way for us and the mother in law to handle things..... in Arkansas> > > > > > ---------------------------------> > Need a vacation? Get great deals to amazing places on Yahoo! Travel.> >> > > > > ---------------------------------> Check out the hottest 2008 models today at Yahoo! Autos.>

Got a little couch potato?

Check out fun summer activities for kids.

October 3, 2007

,

An oximeter is the thingy the doc clips on her finger to read her oxygen saturation. Insurance will usually pay for one to use at home or you can buy them online. Believe me, when oxygen drops into the 70's and below....it is painful.

I am on high flow as are some others on this group. High flow is anything over 5L (I think) That is the highest setting on most concentrators. I just got a new one that goes to 10. I am on 7 rest, 8 active. I had been on 5L for some time and within a few weeks the bottom dropped out. So, up I went.

Pulmonary docs are usually very conservative with 02. But, if a patient needs more temporarily .... to take a bath for example....it is usually harmless. The exception being that if the patient has an obstructive lung disease it can cause problems with retaining too much carbon deoxide. With restrictive disease it is not so much of a worry.

I never heard anything about blood vessels in the lungs getting too much oxygen. I will read up on that and talk to the doc also. ???

I'm so sorry that Doris is getting worse. Did you tell her about all of us. She should know that she is not alone. It is such a difficult battle. I am so grateful that you and your wife are there for her.

Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong.

> > >> > > My first posting....my mother in law is in her early 70s and was diagnosed with PF about a year ago. She is on oxygen 24/7 now and uses a scooter. She has lost a lot of weight. One thing that really bothers her is a deep burning pain from her toes up to the top of her chest when she moves. Her internist knows nothing about this and suggests that it is not associated with PF... Keeps giving her phenegrin (sp). She also has nausea with this pain. Does anyone have a suggestion as to what this could be? Have any of you experienced such a thing? Simple tasks of everyday life are exhausting to her, and she is hestiant to exercise as that depletes what little energy she has......Furthermore, her appetite is just not there......To top it all off, she is diabetic and cannot take prednisone and some of the other like drugs. And, what's coming down the pike for this family? Mother in law's almost 80 year old husband is staying with her 24/7 as he is hesitant to leave her> > > for fear of her falling, or losing her oxygen connection and not having the strength to reconnect. We've read the web information; they pretty much all say the same thing about what the disease is, but we are having real trouble finding out, from those who know, practical, useful information as to what is coming and the best way for us and the mother in law to handle things..... in Arkansas> > > > > > > > > ---------------------------------> > > Need a vacation? Get great deals to amazing places on Yahoo! Travel.> > >> > > > > > > > > > ---------------------------------> > Check out the hottest 2008 models today at Yahoo! Autos.> >> > > > > ---------------------------------> Got a little couch potato? > Check out fun summer activities for kids.>

October 3, 2007

,

An oximeter is the thingy the doc clips on her finger to read her oxygen saturation. Insurance will usually pay for one to use at home or you can buy them online. Believe me, when oxygen drops into the 70's and below....it is painful.

I am on high flow as are some others on this group. High flow is anything over 5L (I think) That is the highest setting on most concentrators. I just got a new one that goes to 10. I am on 7 rest, 8 active. I had been on 5L for some time and within a few weeks the bottom dropped out. So, up I went.

Pulmonary docs are usually very conservative with 02. But, if a patient needs more temporarily .... to take a bath for example....it is usually harmless. The exception being that if the patient has an obstructive lung disease it can cause problems with retaining too much carbon deoxide. With restrictive disease it is not so much of a worry.

I never heard anything about blood vessels in the lungs getting too much oxygen. I will read up on that and talk to the doc also. ???

I'm so sorry that Doris is getting worse. Did you tell her about all of us. She should know that she is not alone. It is such a difficult battle. I am so grateful that you and your wife are there for her.

Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong.

> > >> > > My first posting....my mother in law is in her early 70s and was diagnosed with PF about a year ago. She is on oxygen 24/7 now and uses a scooter. She has lost a lot of weight. One thing that really bothers her is a deep burning pain from her toes up to the top of her chest when she moves. Her internist knows nothing about this and suggests that it is not associated with PF... Keeps giving her phenegrin (sp). She also has nausea with this pain. Does anyone have a suggestion as to what this could be? Have any of you experienced such a thing? Simple tasks of everyday life are exhausting to her, and she is hestiant to exercise as that depletes what little energy she has......Furthermore, her appetite is just not there......To top it all off, she is diabetic and cannot take prednisone and some of the other like drugs. And, what's coming down the pike for this family? Mother in law's almost 80 year old husband is staying with her 24/7 as he is hesitant to leave her> > > for fear of her falling, or losing her oxygen connection and not having the strength to reconnect. We've read the web information; they pretty much all say the same thing about what the disease is, but we are having real trouble finding out, from those who know, practical, useful information as to what is coming and the best way for us and the mother in law to handle things..... in Arkansas> > > > > > > > > ---------------------------------> > > Need a vacation? Get great deals to amazing places on Yahoo! Travel.> > >> > > > > > > > > > ---------------------------------> > Check out the hottest 2008 models today at Yahoo! Autos.> >> > > > > ---------------------------------> Got a little couch potato? > Check out fun summer activities for kids.>

October 3, 2007

Man, you're fast!!!! Thanks for explaining the oximeter.....On the matter of vessels in the lungs, I think that the doctor was saying that there is only so much oxygen that can be utilized by one's lungs, whether damaged or not. Lungs can only take in so much. So, if one turned up the oxygen, it would go to waste as the lungs just couldn't use it. This is what I think the doc was saying.....So, even in pain, Doris won't turn up the oxygen because she feels it's pointless.....I'll pass the oximeter info on to her and ask her to quiz her pulmonary doc on the advisability of cranking up the o2 when pain comes on. Your response also makes me ask what a "concentrator" is.....Will you take an extra moment to explain this to a newcomer? Thank you. jwwJoyce wrote: , An oximeter is the thingy the doc clips on her finger to read her oxygen saturation. Insurance will usually pay for one to use at home or you can buy them online. Believe me, when oxygen drops into the 70's and below....it is painful. I am on high flow as are some others on this group. High flow is anything

over 5L (I think) That is the highest setting on most concentrators. I just got a new one that goes to 10. I am on 7 rest, 8 active. I had been on 5L for some time and within a few weeks the bottom dropped out. So, up I went. Pulmonary docs are usually very conservative with 02. But, if a patient needs more temporarily .... to take a bath for example....it is usually harmless. The exception being that if the patient has an obstructive lung disease it can cause problems with retaining too much carbon deoxide. With restrictive disease it is not so much of a worry. I never heard anything about blood vessels in the lungs getting too much oxygen. I will read up on that and talk to the doc also. ??? I'm so sorry that Doris is

getting worse. Did you tell her about all of us. She should know that she is not alone. It is such a difficult battle. I am so grateful that you and your wife are there for her. Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong. > > >> > > My first posting....my mother in law is in her early 70s and was diagnosed with PF about a year ago. She is on oxygen 24/7 now and uses a scooter. She has lost a lot of weight. One thing that really bothers her is a deep burning pain from her toes up to the top of her chest when she moves. Her internist knows nothing about this and suggests that it is not associated with PF... Keeps giving her phenegrin (sp). She also has nausea with this pain. Does anyone have a suggestion as to what this could be? Have any of you experienced such a thing? Simple tasks of everyday life are exhausting to her, and she is hestiant to exercise as that depletes what little energy she has......Furthermore, her appetite is just not there......To top it all off, she is diabetic and cannot take prednisone

and some of the other like drugs. And, what's coming down the pike for this family? Mother in law's almost 80 year old husband is staying with her 24/7 as he is hesitant to leave her> > > for fear of her falling, or losing her oxygen connection and not having the strength to reconnect. We've read the web information; they pretty much all say the same thing about what the disease is, but we are having real trouble finding out, from those who know, practical, useful information as to what is coming and the best way for us and the mother in law to handle things..... in Arkansas> > > > > > > > > ---------------------------------> > > Need a vacation? Get great deals to amazing places on Yahoo! Travel.> > >> > > > > > > > > > ---------------------------------> > Check out the hottest 2008 models today at Yahoo! Autos.> >>

> > > > ---------------------------------> Got a little couch potato? > Check out fun summer activities for kids.>

Check out the hottest 2008 models today at Yahoo! Autos.

October 3, 2007

Man, you're fast!!!! Thanks for explaining the oximeter.....On the matter of vessels in the lungs, I think that the doctor was saying that there is only so much oxygen that can be utilized by one's lungs, whether damaged or not. Lungs can only take in so much. So, if one turned up the oxygen, it would go to waste as the lungs just couldn't use it. This is what I think the doc was saying.....So, even in pain, Doris won't turn up the oxygen because she feels it's pointless.....I'll pass the oximeter info on to her and ask her to quiz her pulmonary doc on the advisability of cranking up the o2 when pain comes on. Your response also makes me ask what a "concentrator" is.....Will you take an extra moment to explain this to a newcomer? Thank you. jwwJoyce wrote: , An oximeter is the thingy the doc clips on her finger to read her oxygen saturation. Insurance will usually pay for one to use at home or you can buy them online. Believe me, when oxygen drops into the 70's and below....it is painful. I am on high flow as are some others on this group. High flow is anything

over 5L (I think) That is the highest setting on most concentrators. I just got a new one that goes to 10. I am on 7 rest, 8 active. I had been on 5L for some time and within a few weeks the bottom dropped out. So, up I went. Pulmonary docs are usually very conservative with 02. But, if a patient needs more temporarily .... to take a bath for example....it is usually harmless. The exception being that if the patient has an obstructive lung disease it can cause problems with retaining too much carbon deoxide. With restrictive disease it is not so much of a worry. I never heard anything about blood vessels in the lungs getting too much oxygen. I will read up on that and talk to the doc also. ??? I'm so sorry that Doris is

getting worse. Did you tell her about all of us. She should know that she is not alone. It is such a difficult battle. I am so grateful that you and your wife are there for her. Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong. > > >> > > My first posting....my mother in law is in her early 70s and was diagnosed with PF about a year ago. She is on oxygen 24/7 now and uses a scooter. She has lost a lot of weight. One thing that really bothers her is a deep burning pain from her toes up to the top of her chest when she moves. Her internist knows nothing about this and suggests that it is not associated with PF... Keeps giving her phenegrin (sp). She also has nausea with this pain. Does anyone have a suggestion as to what this could be? Have any of you experienced such a thing? Simple tasks of everyday life are exhausting to her, and she is hestiant to exercise as that depletes what little energy she has......Furthermore, her appetite is just not there......To top it all off, she is diabetic and cannot take prednisone

and some of the other like drugs. And, what's coming down the pike for this family? Mother in law's almost 80 year old husband is staying with her 24/7 as he is hesitant to leave her> > > for fear of her falling, or losing her oxygen connection and not having the strength to reconnect. We've read the web information; they pretty much all say the same thing about what the disease is, but we are having real trouble finding out, from those who know, practical, useful information as to what is coming and the best way for us and the mother in law to handle things..... in Arkansas> > > > > > > > > ---------------------------------> > > Need a vacation? Get great deals to amazing places on Yahoo! Travel.> > >> > > > > > > > > > ---------------------------------> > Check out the hottest 2008 models today at Yahoo! Autos.> >>

> > > > ---------------------------------> Got a little couch potato? > Check out fun summer activities for kids.>

Check out the hottest 2008 models today at Yahoo! Autos.

October 3, 2007

,

Doris may be on liquid oxygen. It is the machine that we use at home that turns room air into 02. Doris may be on liquid and get her 02 directly from the tanks.

My pain comes because my saturation drops and I get extremely short of breath. Her pain may be caused by something else entirely. I would have an oximeter at home for her. Some docs, mine included, do not think a patient should have one. His theory is that it makes you watch your numbers instead of listening to your body. It is about the only thing that we disagree on......but I won.

My prayers are with your family.

Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong.

> > > >> > > > My first posting....my mother in law is in her early 70s and was diagnosed with PF about a year ago. She is on oxygen 24/7 now and uses a scooter. She has lost a lot of weight. One thing that really bothers her is a deep burning pain from her toes up to the top of her chest when she moves. Her internist knows nothing about this and suggests that it is not associated with PF... Keeps giving her phenegrin (sp). She also has nausea with this pain. Does anyone have a suggestion as to what this could be? Have any of you experienced such a thing? Simple tasks of everyday life are exhausting to her, and she is hestiant to exercise as that depletes what little energy she has......Furthermore, her appetite is just not there......To top it all off, she is diabetic and cannot take prednisone and some of the other like drugs. And, what's coming down the pike for this family? Mother in law's almost 80 year old husband is staying with her 24/7 as he is hesitant to leave her> > > > for fear of her falling, or losing her oxygen connection and not having the strength to reconnect. We've read the web information; they pretty much all say the same thing about what the disease is, but we are having real trouble finding out, from those who know, practical, useful information as to what is coming and the best way for us and the mother in law to handle things..... in Arkansas> > > > > > > > > > > > ---------------------------------> > > > Need a vacation? Get great deals to amazing places on Yahoo! Travel.> > > >> > > > > > > > > > > > > > > ---------------------------------> > > Check out the hottest 2008 models today at Yahoo! Autos.> > >> > > > > > > > > > ---------------------------------> > Got a little couch potato? > > Check out fun summer activities for kids.> >> > > > > ---------------------------------> Check out the hottest 2008 models today at Yahoo! Autos.>

October 3, 2007

,

Doris may be on liquid oxygen. It is the machine that we use at home that turns room air into 02. Doris may be on liquid and get her 02 directly from the tanks.

My pain comes because my saturation drops and I get extremely short of breath. Her pain may be caused by something else entirely. I would have an oximeter at home for her. Some docs, mine included, do not think a patient should have one. His theory is that it makes you watch your numbers instead of listening to your body. It is about the only thing that we disagree on......but I won.

My prayers are with your family.

Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong.

> > > >> > > > My first posting....my mother in law is in her early 70s and was diagnosed with PF about a year ago. She is on oxygen 24/7 now and uses a scooter. She has lost a lot of weight. One thing that really bothers her is a deep burning pain from her toes up to the top of her chest when she moves. Her internist knows nothing about this and suggests that it is not associated with PF... Keeps giving her phenegrin (sp). She also has nausea with this pain. Does anyone have a suggestion as to what this could be? Have any of you experienced such a thing? Simple tasks of everyday life are exhausting to her, and she is hestiant to exercise as that depletes what little energy she has......Furthermore, her appetite is just not there......To top it all off, she is diabetic and cannot take prednisone and some of the other like drugs. And, what's coming down the pike for this family? Mother in law's almost 80 year old husband is staying with her 24/7 as he is hesitant to leave her> > > > for fear of her falling, or losing her oxygen connection and not having the strength to reconnect. We've read the web information; they pretty much all say the same thing about what the disease is, but we are having real trouble finding out, from those who know, practical, useful information as to what is coming and the best way for us and the mother in law to handle things..... in Arkansas> > > > > > > > > > > > ---------------------------------> > > > Need a vacation? Get great deals to amazing places on Yahoo! Travel.> > > >> > > > > > > > > > > > > > > ---------------------------------> > > Check out the hottest 2008 models today at Yahoo! Autos.> > >> > > > > > > > > > ---------------------------------> > Got a little couch potato? > > Check out fun summer activities for kids.> >> > > > > ---------------------------------> Check out the hottest 2008 models today at Yahoo! Autos.>

October 3, 2007

W, Hi Just have to tell you My pulmonary Dr. told me to turn up

the O2 With IPF it can not hurt you and you need what you need. My

thought is that Dr. was pretty gutsy to say it was a waist of O2.

I am on 4L to 5L depending on what I'm doing. Don't be afraid to use

what will keep her comfy.

I am so glad in my heart that your Mother in love has you and her

precious daughter to care for her.

God Bless you both.

Love and Prayers, Peggy

ipf 6/04 Florida

" Worry looks around,

Sorry looks back,

Faith looks up. "

Man, you're fast!!!! Thanks for explaining the oximeter.....On the

matter of vessels in the lungs, I think that the doctor was saying

that there is only so much oxygen that can be utilized by one's

lungs, whether damaged or not. Lungs can only take in so much. So,

if one turned up the oxygen, it would go to waste as the lungs just

couldn't use it. This is what I think the doc was saying.....So,

even in pain, Doris won't turn up the oxygen because she feels it's

pointless.....I'll pass the oximeter info on to her and ask her to

quiz her pulmonary doc on the advisability of cranking up the o2 when

pain comes on. Your response also makes me ask what a " concentrator "

is.....Will you take an extra moment to explain this to a newcomer?

Thank you. jww

Joyce wrote:

,

An oximeter is the thingy the doc clips on her finger to read her

oxygen saturation. Insurance will usually pay for one to use at home

or you can buy them online. Believe me, when oxygen drops into the

70's and below....it is painful.

I am on high flow as are some others on this group. High flow is

anything over 5L (I think) That is the highest setting on most

concentrators. I just got a new one that goes to 10. I am on 7

rest, 8 active. I had been on 5L for some time and within a few

weeks the bottom dropped out. So, up I went.

Pulmonary docs are usually very conservative with 02. But, if a

patient needs more temporarily .... to take a bath for example....it

is usually harmless. The exception being that if the patient has an

obstructive lung disease it can cause problems with retaining too

much carbon deoxide. With restrictive disease it is not so much of a

worry.

I never heard anything about blood vessels in the lungs getting too

much oxygen. I will read up on that and talk to the doc also. ???

I'm so sorry that Doris is getting worse. Did you tell her about all

of us. She should know that she is not alone. It is such a

difficult battle. I am so grateful that you and your wife are there

for her.

Hugs, Joyce D.

PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA

2 COR. 12:10 ....when I am weak, then I am strong.

> > >

> > > My first posting....my mother in law is in her early 70s and

was diagnosed with PF about a year ago. She is on oxygen 24/7 now and

uses a scooter. She has lost a lot of weight. One thing that really

bothers her is a deep burning pain from her toes up to the top of her

chest when she moves. Her internist knows nothing about this and

suggests that it is not associated with PF... Keeps giving her

phenegrin (sp). She also has nausea with this pain. Does anyone have

a suggestion as to what this could be? Have any of you experienced

such a thing? Simple tasks of everyday life are exhausting to her,

and she is hestiant to exercise as that depletes what little energy

she has......Furthermore, her appetite is just not there......To top

it all off, she is diabetic and cannot take prednisone and some of

the other like drugs. And, what's coming down the pike for this

family? Mother in law's almost 80 year old husband is staying with

her 24/7 as he is hesitant to leave her

> > > for fear of her falling, or losing her oxygen connection and

not having the strength to reconnect. We've read the web information;

they pretty much all say the same thing about what the disease is,

but we are having real trouble finding out, from those who know,

practical, useful information as to what is coming and the best way

for us and the mother in law to handle things..... in Arkansas

> > >

> > > ---------------------------------

> > > Need a vacation? Get great deals to amazing places on Yahoo!

Travel.

> > >

> >

> > ---------------------------------

> > Check out the hottest 2008 models today at Yahoo! Autos.

> >

>

> ---------------------------------

> Got a little couch potato?

> Check out fun summer activities for kids.

>

Check out the hottest 2008 models today at Yahoo! Autos.

October 3, 2007