Re: NOT great news!

[Guest guest]

Joyce,

I get from Apria ...

*

Salter Labs 2050 Oxygen Tubing 50' Apria Part # M122697

*

Salter Labs 2002 Oxygen Tubing 7' Apria Part # M122392

*

Salter Labs 1220 Oxygen Tubing Swivel Connector Apria Part #

R833710

*

Salter Labs 1600HF Nasal Cannula (Adult) High Flow Apria Part #

M010901

*

Salter Labs 7600 Bubble Humidifier Apria Part # M833576

(this one with the black top has worked great for me since I split the

load from two tanks)

*

Salter Labs 7900 Bubble Humidifier (High Flow) Apria Part #

M010854

(this one I'm sure is the one you need - ordered once but realized NOT

necessary for me)

* Y

Connector Apria Part # M831133

What's that saying ... knowledge is power ... you go girl ! !

!

Janine

California

Oxygen 24/7 dx Feb 02

NonSpecific Interstitial Pneumonia dx Oct 03

Breast Cancer dx Nov 04

Transplant Evaluation terminated Dec 04

(must be cancer free five years)

Pulmonary Hypertension dx Apr 07

THIS IS YOUR LIFE ... GETTING TO BREATHE ...

From: " Joyce "

X-Yahoo-Profile: janne5303

Date: Mon, 24 Sep 2007 17:42:17 -0000

Subject: Re: NOT great news!

Reply-To:

Breathe-Support

,

And

I have questions for you! What kind of water bottle do you

use....does it have a number? We are trying to rig up the old

one and it does not work well. See if you can get your sweet

husband to get the manufacturer and model #'s on mask, humidifier

bottle, tubing and cannula. Don't you exert yourself to do

this. Tell him that I said pretty please.

I

got an e-mail from my contact at Apria that said there wasn't anything

called a high flow cannula and that my tubing would work fine.

Grrrr!

I

pray you are having a good breathing day.

Hugs, Joyce D.

PULMONARY FIBROSIS/LUPUS 1997

BRONCHIECTASIS 2004 INDIANA

2 COR.

12:10 ....when I am weak, then I am strong.

>

> Donna,

> I read your letter to Joyce and have some questions. I use the

mask also at night. One reason is because it gives my nose a rest and

also I am a mouth breather at night but I did not know that you were

not supposed to use a water bottle. I always make sure that mine is

full.

> Please tell me the reasoning for this. I also will use the mask

if I am needing to walk around the house etc. It is also good if there

is a strong smell in the house. Sometimes dishwasher detergent will

cause me to lose my breath. Lots of reasons for th mask. My dog will

try to take it off of me , guess he thinks sometime is wrong when I

wear it. I use a high flow cannula and tubing which cuts down on the

noise in my ears/nose. Cannulas are the one thing that Apria never

minds giving me.but I always have to ask for the hi-flow ones. Just

curious..what setting do you have to use? I use 10L when exerting but

able to only use 8L when I sit and dont talk. Talking is alot of

exertion sometimes.

> Thanks for your letter to Joyce. You helped me.

> L

> Re: NOT great news!

>

>

> Hi Joyce,

> I use a simple mask to sleep with, I am a mouth breather. Can't

seem to help it when I'm sleeping. The mask is for high concentration

a re breather and it will help you walking and doing things. I get 4

mask a month and of both kinds and 4 cannula. Sometimes the bags one

are a little troublesome. The re breather or non re breather mask have

to be used without a water bottle and I se the water bottle on the

concentrator and because they didn't want to give me more tanks than

the 10 a month and that wasn't enough for me to get around in and out

of the house, so they decided to give me a liquid tank to use in the

house when I exert. I haven't been able to get around on my own for

almost 2 years now. I'm depend on my wonderful husband for everything.

God knew who I needed and I thanks Him regularly for him. I have to

take my concentrator when I go someplace. I have the big M60 tank that

last about 3 hours in the car and we can connect a water bottle to it

and that helps. There is also a cann ease that you can buy that is

good for the nose. THeir number is 1-. I have also found

that using a mask on top of your cannula when your sats are low helps

to bring it up faster. I have a mask sitting beside me at all time, I

cut the cord off and just use the mask part also used that last winter

and it helps to get the cold out so many uses for the

mask.

>

> I don't consider what I have lost but want I have gained, more

time with hubby (love that as we were always close). Time with

God,time to read and crochet and share with others.

> I have my good days and although sometimes that are scarce, I try

to find good in the bad days and don't let that steal my joy, as your

joy is your strength.

>

> God bless

> Donna

>

[Guest guest]

Joyce,

I get from Apria ...

*

Salter Labs 2050 Oxygen Tubing 50' Apria Part # M122697

*

Salter Labs 2002 Oxygen Tubing 7' Apria Part # M122392

*

Salter Labs 1220 Oxygen Tubing Swivel Connector Apria Part #

R833710

*

Salter Labs 1600HF Nasal Cannula (Adult) High Flow Apria Part #

M010901

*

Salter Labs 7600 Bubble Humidifier Apria Part # M833576

(this one with the black top has worked great for me since I split the

load from two tanks)

*

Salter Labs 7900 Bubble Humidifier (High Flow) Apria Part #

M010854

(this one I'm sure is the one you need - ordered once but realized NOT

necessary for me)

* Y

Connector Apria Part # M831133

What's that saying ... knowledge is power ... you go girl ! !

!

Janine

California

Oxygen 24/7 dx Feb 02

NonSpecific Interstitial Pneumonia dx Oct 03

Breast Cancer dx Nov 04

Transplant Evaluation terminated Dec 04

(must be cancer free five years)

Pulmonary Hypertension dx Apr 07

THIS IS YOUR LIFE ... GETTING TO BREATHE ...

From: " Joyce "

X-Yahoo-Profile: janne5303

Date: Mon, 24 Sep 2007 17:42:17 -0000

Subject: Re: NOT great news!

Reply-To:

Breathe-Support

,

And

I have questions for you! What kind of water bottle do you

use....does it have a number? We are trying to rig up the old

one and it does not work well. See if you can get your sweet

husband to get the manufacturer and model #'s on mask, humidifier

bottle, tubing and cannula. Don't you exert yourself to do

this. Tell him that I said pretty please.

I

got an e-mail from my contact at Apria that said there wasn't anything

called a high flow cannula and that my tubing would work fine.

Grrrr!

I

pray you are having a good breathing day.

Hugs, Joyce D.

PULMONARY FIBROSIS/LUPUS 1997

BRONCHIECTASIS 2004 INDIANA

2 COR.

12:10 ....when I am weak, then I am strong.

>

> Donna,

> I read your letter to Joyce and have some questions. I use the

mask also at night. One reason is because it gives my nose a rest and

also I am a mouth breather at night but I did not know that you were

not supposed to use a water bottle. I always make sure that mine is

full.

> Please tell me the reasoning for this. I also will use the mask

if I am needing to walk around the house etc. It is also good if there

is a strong smell in the house. Sometimes dishwasher detergent will

cause me to lose my breath. Lots of reasons for th mask. My dog will

try to take it off of me , guess he thinks sometime is wrong when I

wear it. I use a high flow cannula and tubing which cuts down on the

noise in my ears/nose. Cannulas are the one thing that Apria never

minds giving me.but I always have to ask for the hi-flow ones. Just

curious..what setting do you have to use? I use 10L when exerting but

able to only use 8L when I sit and dont talk. Talking is alot of

exertion sometimes.

> Thanks for your letter to Joyce. You helped me.

> L

> Re: NOT great news!

>

>

> Hi Joyce,

> I use a simple mask to sleep with, I am a mouth breather. Can't

seem to help it when I'm sleeping. The mask is for high concentration

a re breather and it will help you walking and doing things. I get 4

mask a month and of both kinds and 4 cannula. Sometimes the bags one

are a little troublesome. The re breather or non re breather mask have

to be used without a water bottle and I se the water bottle on the

concentrator and because they didn't want to give me more tanks than

the 10 a month and that wasn't enough for me to get around in and out

of the house, so they decided to give me a liquid tank to use in the

house when I exert. I haven't been able to get around on my own for

almost 2 years now. I'm depend on my wonderful husband for everything.

God knew who I needed and I thanks Him regularly for him. I have to

take my concentrator when I go someplace. I have the big M60 tank that

last about 3 hours in the car and we can connect a water bottle to it

and that helps. There is also a cann ease that you can buy that is

good for the nose. THeir number is 1-. I have also found

that using a mask on top of your cannula when your sats are low helps

to bring it up faster. I have a mask sitting beside me at all time, I

cut the cord off and just use the mask part also used that last winter

and it helps to get the cold out so many uses for the

mask.

>

> I don't consider what I have lost but want I have gained, more

time with hubby (love that as we were always close). Time with

God,time to read and crochet and share with others.

> I have my good days and although sometimes that are scarce, I try

to find good in the bad days and don't let that steal my joy, as your

joy is your strength.

>

> God bless

> Donna

>

[Guest guest]

http://www.salterlabs.com/oxygencannulas.htm1600HF HIgh Flow P UIP 8.00 ILLJoyce wrote: , And I have questions for you! What kind of water bottle do you use....does it have a number? We are trying to rig up the old one and it does not work well. See if you can get your sweet husband to get the manufacturer and model #'s on mask, humidifier bottle,

tubing and cannula. Don't you exert yourself to do this. Tell him that I said pretty please. I got an e-mail from my contact at Apria that said there wasn't anything called a high flow cannula and that my tubing would work fine. Grrrr! I pray you are having a good breathing day. Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong. >>

Donna,> I read your letter to Joyce and have some questions. I use the mask also at night. One reason is because it gives my nose a rest and also I am a mouth breather at night but I did not know that you were not supposed to use a water bottle. I always make sure that mine is full.> Please tell me the reasoning for this. I also will use the mask if I am needing to walk around the house etc. It is also good if there is a strong smell in the house. Sometimes dishwasher detergent will cause me to lose my breath. Lots of reasons for th mask. My dog will try to take it off of me , guess he thinks sometime is wrong when I wear it. I use a high flow cannula and tubing which cuts down on the noise in my ears/nose. Cannulas are the one thing that Apria never minds giving me.but I always have to ask for the hi-flow ones. Just curious..what setting do you have to use? I use 10L when exerting but able to only use 8L when I sit and dont talk. Talking is alot of exertion

sometimes.> Thanks for your letter to Joyce. You helped me.> L> Re: NOT great news!> > > Hi Joyce,> I use a simple mask to sleep with, I am a mouth breather. Can't seem to help it when I'm sleeping. The mask is for high concentration a re breather and it will help you walking and doing things. I get 4 mask a month and of both kinds and 4 cannula. Sometimes the bags one are a little troublesome. The re breather or non re breather mask have to be used without a water bottle and I se the water bottle on the concentrator and because they didn't want to give me more tanks than the 10 a month and that wasn't enough for me to get around in and out of the house, so they decided to give me a liquid tank to use in the house when I

exert. I haven't been able to get around on my own for almost 2 years now. I'm depend on my wonderful husband for everything. God knew who I needed and I thanks Him regularly for him. I have to take my concentrator when I go someplace. I have the big M60 tank that last about 3 hours in the car and we can connect a water bottle to it and that helps. There is also a cann ease that you can buy that is good for the nose. THeir number is 1-. I have also found that using a mask on top of your cannula when your sats are low helps to bring it up faster. I have a mask sitting beside me at all time, I cut the cord off and just use the mask part also used that last winter and it helps to get the cold out so many uses for the mask.> > I don't consider what I have lost but want I have gained, more time with hubby (love that as we were always close). Time with God,time to read and crochet and share with others.> I have my good days and although sometimes

that are scarce, I try to find good in the bad days and don't let that steal my joy, as your joy is your strength. > > God bless> Donna>

Moody friends. Drama queens. Your life? Nope! - their life, your story. Play Sims Stories at Yahoo! Games.

[Guest guest]

http://www.salterlabs.com/oxygencannulas.htm1600HF HIgh Flow P UIP 8.00 ILLJoyce wrote: , And I have questions for you! What kind of water bottle do you use....does it have a number? We are trying to rig up the old one and it does not work well. See if you can get your sweet husband to get the manufacturer and model #'s on mask, humidifier bottle,

tubing and cannula. Don't you exert yourself to do this. Tell him that I said pretty please. I got an e-mail from my contact at Apria that said there wasn't anything called a high flow cannula and that my tubing would work fine. Grrrr! I pray you are having a good breathing day. Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong. >>

Donna,> I read your letter to Joyce and have some questions. I use the mask also at night. One reason is because it gives my nose a rest and also I am a mouth breather at night but I did not know that you were not supposed to use a water bottle. I always make sure that mine is full.> Please tell me the reasoning for this. I also will use the mask if I am needing to walk around the house etc. It is also good if there is a strong smell in the house. Sometimes dishwasher detergent will cause me to lose my breath. Lots of reasons for th mask. My dog will try to take it off of me , guess he thinks sometime is wrong when I wear it. I use a high flow cannula and tubing which cuts down on the noise in my ears/nose. Cannulas are the one thing that Apria never minds giving me.but I always have to ask for the hi-flow ones. Just curious..what setting do you have to use? I use 10L when exerting but able to only use 8L when I sit and dont talk. Talking is alot of exertion

sometimes.> Thanks for your letter to Joyce. You helped me.> L> Re: NOT great news!> > > Hi Joyce,> I use a simple mask to sleep with, I am a mouth breather. Can't seem to help it when I'm sleeping. The mask is for high concentration a re breather and it will help you walking and doing things. I get 4 mask a month and of both kinds and 4 cannula. Sometimes the bags one are a little troublesome. The re breather or non re breather mask have to be used without a water bottle and I se the water bottle on the concentrator and because they didn't want to give me more tanks than the 10 a month and that wasn't enough for me to get around in and out of the house, so they decided to give me a liquid tank to use in the house when I

exert. I haven't been able to get around on my own for almost 2 years now. I'm depend on my wonderful husband for everything. God knew who I needed and I thanks Him regularly for him. I have to take my concentrator when I go someplace. I have the big M60 tank that last about 3 hours in the car and we can connect a water bottle to it and that helps. There is also a cann ease that you can buy that is good for the nose. THeir number is 1-. I have also found that using a mask on top of your cannula when your sats are low helps to bring it up faster. I have a mask sitting beside me at all time, I cut the cord off and just use the mask part also used that last winter and it helps to get the cold out so many uses for the mask.> > I don't consider what I have lost but want I have gained, more time with hubby (love that as we were always close). Time with God,time to read and crochet and share with others.> I have my good days and although sometimes

that are scarce, I try to find good in the bad days and don't let that steal my joy, as your joy is your strength. > > God bless> Donna>

Moody friends. Drama queens. Your life? Nope! - their life, your story. Play Sims Stories at Yahoo! Games.

[Guest guest]

http://www.salterlabs.com/oxygenmasks.htmSome High flow mask info P UIP 8/00 ILLJoyce wrote: Donna, I have been using my old water bottles, but they are whistling and sounding like they are going to explode. Ha! Hopefully I will get the high flow bottle in a few days (sure, I believe that). It was whistling really loud the other night and my husband went in to adjust it.

He turned my 02 off. I was almost asleep and I sat straight up. I was so mad at him. Poor guy. I can't stand not using it, it makes my nose bleed. I am going to talk to the rehab nurses about the high flow masks. Thanks has been used in jewelry and trade since ancient times.>> Joyce, > You want the high flow water bottle, the ones with the black top will blow> off and stop your air flow. Mine are white topped and are for up to 10lf.> They may have others for higher flows. > > > Donna>

Be a better Globetrotter. Get better travel answers from someone who knows.Yahoo! Answers - Check it out.

[Guest guest]

http://www.salterlabs.com/oxygenmasks.htmSome High flow mask info P UIP 8/00 ILLJoyce wrote: Donna, I have been using my old water bottles, but they are whistling and sounding like they are going to explode. Ha! Hopefully I will get the high flow bottle in a few days (sure, I believe that). It was whistling really loud the other night and my husband went in to adjust it.

He turned my 02 off. I was almost asleep and I sat straight up. I was so mad at him. Poor guy. I can't stand not using it, it makes my nose bleed. I am going to talk to the rehab nurses about the high flow masks. Thanks has been used in jewelry and trade since ancient times.>> Joyce, > You want the high flow water bottle, the ones with the black top will blow> off and stop your air flow. Mine are white topped and are for up to 10lf.> They may have others for higher flows. > > > Donna>

Be a better Globetrotter. Get better travel answers from someone who knows.Yahoo! Answers - Check it out.

[Guest guest]

Janine,

Yes, it probably is the one that I need. I just hope that I get it in my lifetime.

Why do you have two 5L concentrator instead of one ten? Was that your choice?

Thanks, Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong.> >>> >> Donna,> >> I read your letter to Joyce and have some questions. I use the > >>mask also at night. One reason is because it gives my nose a rest > >>and also I am a mouth breather at night but I did not know that you > >>were not supposed to use a water bottle. I always make sure that > >>mine is full.> >> Please tell me the reasoning for this. I also will use the mask if > >>I am needing to walk around the house etc. It is also good if there > >>is a strong smell in the house. Sometimes dishwasher detergent will > >>cause me to lose my breath. Lots of reasons for th mask. My dog > >>will try to take it off of me , guess he thinks sometime is wrong > >>when I wear it. I use a high flow cannula and tubing which cuts > >>down on the noise in my ears/nose. Cannulas are the one thing that > >>Apria never minds giving me.but I always have to ask for the > >>hi-flow ones. Just curious..what setting do you have to use? I use > >>10L when exerting but able to only use 8L when I sit and dont talk. > >>Talking is alot of exertion sometimes.> >> Thanks for your letter to Joyce. You helped me.> >> L> >> Re: NOT great news!> >>> >>> >> Hi Joyce,> >> I use a simple mask to sleep with, I am a mouth breather. Can't > >>seem to help it when I'm sleeping. The mask is for high > >>concentration a re breather and it will help you walking and doing > >>things. I get 4 mask a month and of both kinds and 4 cannula. > >>Sometimes the bags one are a little troublesome. The re breather or > >>non re breather mask have to be used without a water bottle and I > >>se the water bottle on the concentrator and because they didn't > >>want to give me more tanks than the 10 a month and that wasn't > >>enough for me to get around in and out of the house, so they > >>decided to give me a liquid tank to use in the house when I exert. > >>I haven't been able to get around on my own for almost 2 years now. > >>I'm depend on my wonderful husband for everything. God knew who I > >>needed and I thanks Him regularly for him. I have to take my > >>concentrator when I go someplace. I have the big M60 tank that last > >>about 3 hours in the car and we can connect a water bottle to it > >>and that helps. There is also a cann ease that you can buy that is > >>good for the nose. THeir number is 1-. I have also > >>found that using a mask on top of your cannula when your sats are > >>low helps to bring it up faster. I have a mask sitting beside me at > >>all time, I cut the cord off and just use the mask part also used > >>that last winter and it helps to get the cold out so many uses for > >>the mask.> > >> >> I don't consider what I have lost but want I have gained, more > >>time with hubby (love that as we were always close). Time with > >>God,time to read and crochet and share with others.> >> I have my good days and although sometimes that are scarce, I try > >>to find good in the bad days and don't let that steal my joy, as > >>your joy is your strength.> >>> >> God bless> > > Donna> >>> >>

[Guest guest]

Janine,

Yes, it probably is the one that I need. I just hope that I get it in my lifetime.

Why do you have two 5L concentrator instead of one ten? Was that your choice?

Thanks, Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong.> >>> >> Donna,> >> I read your letter to Joyce and have some questions. I use the > >>mask also at night. One reason is because it gives my nose a rest > >>and also I am a mouth breather at night but I did not know that you > >>were not supposed to use a water bottle. I always make sure that > >>mine is full.> >> Please tell me the reasoning for this. I also will use the mask if > >>I am needing to walk around the house etc. It is also good if there > >>is a strong smell in the house. Sometimes dishwasher detergent will > >>cause me to lose my breath. Lots of reasons for th mask. My dog > >>will try to take it off of me , guess he thinks sometime is wrong > >>when I wear it. I use a high flow cannula and tubing which cuts > >>down on the noise in my ears/nose. Cannulas are the one thing that > >>Apria never minds giving me.but I always have to ask for the > >>hi-flow ones. Just curious..what setting do you have to use? I use > >>10L when exerting but able to only use 8L when I sit and dont talk. > >>Talking is alot of exertion sometimes.> >> Thanks for your letter to Joyce. You helped me.> >> L> >> Re: NOT great news!> >>> >>> >> Hi Joyce,> >> I use a simple mask to sleep with, I am a mouth breather. Can't > >>seem to help it when I'm sleeping. The mask is for high > >>concentration a re breather and it will help you walking and doing > >>things. I get 4 mask a month and of both kinds and 4 cannula. > >>Sometimes the bags one are a little troublesome. The re breather or > >>non re breather mask have to be used without a water bottle and I > >>se the water bottle on the concentrator and because they didn't > >>want to give me more tanks than the 10 a month and that wasn't > >>enough for me to get around in and out of the house, so they > >>decided to give me a liquid tank to use in the house when I exert. > >>I haven't been able to get around on my own for almost 2 years now. > >>I'm depend on my wonderful husband for everything. God knew who I > >>needed and I thanks Him regularly for him. I have to take my > >>concentrator when I go someplace. I have the big M60 tank that last > >>about 3 hours in the car and we can connect a water bottle to it > >>and that helps. There is also a cann ease that you can buy that is > >>good for the nose. THeir number is 1-. I have also > >>found that using a mask on top of your cannula when your sats are > >>low helps to bring it up faster. I have a mask sitting beside me at > >>all time, I cut the cord off and just use the mask part also used > >>that last winter and it helps to get the cold out so many uses for > >>the mask.> > >> >> I don't consider what I have lost but want I have gained, more > >>time with hubby (love that as we were always close). Time with > >>God,time to read and crochet and share with others.> >> I have my good days and although sometimes that are scarce, I try > >>to find good in the bad days and don't let that steal my joy, as > >>your joy is your strength.> >>> >> God bless> > > Donna> >>> >>

[Guest guest]

Janine,

Yes, it probably is the one that I need. I just hope that I get it in my lifetime.

Why do you have two 5L concentrator instead of one ten? Was that your choice?

Thanks, Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong.> >>> >> Donna,> >> I read your letter to Joyce and have some questions. I use the > >>mask also at night. One reason is because it gives my nose a rest > >>and also I am a mouth breather at night but I did not know that you > >>were not supposed to use a water bottle. I always make sure that > >>mine is full.> >> Please tell me the reasoning for this. I also will use the mask if > >>I am needing to walk around the house etc. It is also good if there > >>is a strong smell in the house. Sometimes dishwasher detergent will > >>cause me to lose my breath. Lots of reasons for th mask. My dog > >>will try to take it off of me , guess he thinks sometime is wrong > >>when I wear it. I use a high flow cannula and tubing which cuts > >>down on the noise in my ears/nose. Cannulas are the one thing that > >>Apria never minds giving me.but I always have to ask for the > >>hi-flow ones. Just curious..what setting do you have to use? I use > >>10L when exerting but able to only use 8L when I sit and dont talk. > >>Talking is alot of exertion sometimes.> >> Thanks for your letter to Joyce. You helped me.> >> L> >> Re: NOT great news!> >>> >>> >> Hi Joyce,> >> I use a simple mask to sleep with, I am a mouth breather. Can't > >>seem to help it when I'm sleeping. The mask is for high > >>concentration a re breather and it will help you walking and doing > >>things. I get 4 mask a month and of both kinds and 4 cannula. > >>Sometimes the bags one are a little troublesome. The re breather or > >>non re breather mask have to be used without a water bottle and I > >>se the water bottle on the concentrator and because they didn't > >>want to give me more tanks than the 10 a month and that wasn't > >>enough for me to get around in and out of the house, so they > >>decided to give me a liquid tank to use in the house when I exert. > >>I haven't been able to get around on my own for almost 2 years now. > >>I'm depend on my wonderful husband for everything. God knew who I > >>needed and I thanks Him regularly for him. I have to take my > >>concentrator when I go someplace. I have the big M60 tank that last > >>about 3 hours in the car and we can connect a water bottle to it > >>and that helps. There is also a cann ease that you can buy that is > >>good for the nose. THeir number is 1-. I have also > >>found that using a mask on top of your cannula when your sats are > >>low helps to bring it up faster. I have a mask sitting beside me at > >>all time, I cut the cord off and just use the mask part also used > >>that last winter and it helps to get the cold out so many uses for > >>the mask.> > >> >> I don't consider what I have lost but want I have gained, more > >>time with hubby (love that as we were always close). Time with > >>God,time to read and crochet and share with others.> >> I have my good days and although sometimes that are scarce, I try > >>to find good in the bad days and don't let that steal my joy, as > >>your joy is your strength.> >>> >> God bless> > > Donna> >>> >>

[Guest guest]

Thanks ,

Did you get your porch done yet? Been swangin'?

Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong.> >> > Joyce, > > You want the high flow water bottle, the ones with the black top will blow> > off and stop your air flow. Mine are white topped and are for up to 10lf.> > They may have others for higher flows. > > > > > > Donna> >> > > > > > > ---------------------------------> Be a better Globetrotter. Get better travel answers from someone who knows.> Yahoo! Answers - Check it out.>

[Guest guest]

Thanks ,

Did you get your porch done yet? Been swangin'?

Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong.> >> > Joyce, > > You want the high flow water bottle, the ones with the black top will blow> > off and stop your air flow. Mine are white topped and are for up to 10lf.> > They may have others for higher flows. > > > > > > Donna> >> > > > > > > ---------------------------------> Be a better Globetrotter. Get better travel answers from someone who knows.> Yahoo! Answers - Check it out.>

[Guest guest]

Thanks ,

Did you get your porch done yet? Been swangin'?

Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong.> >> > Joyce, > > You want the high flow water bottle, the ones with the black top will blow> > off and stop your air flow. Mine are white topped and are for up to 10lf.> > They may have others for higher flows. > > > > > > Donna> >> > > > > > > ---------------------------------> Be a better Globetrotter. Get better travel answers from someone who knows.> Yahoo! Answers - Check it out.>

[Guest guest]

Hi Joyce just came in from the porch. (10:15PM) A nice cool night, with a gentle breeze blowing the wind chimes. The porch is all done except for the rain gutter and a lot of landscaping. Got a real nice 5' swing from "porchswings.com" Got one rated for 700 lbs, got some big people in the family. Will sent some Picture so time. P UIP 8/00 ILLJoyce wrote: Thanks , Did you get your porch done yet? Been swangin'? Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong.> >> > Joyce, > > You want the high flow water bottle, the ones with the black top will blow> > off and stop your air flow. Mine are white topped and are for up to 10lf.> > They may have others for higher flows. > > > > > > Donna> >> > > > > > > ---------------------------------> Be a better Globetrotter. Get better travel answers from someone who knows.> Yahoo!

Answers - Check it out.>

Take the Internet to Go: Yahoo!Go puts the Internet in your pocket: mail, news, photos more.

[Guest guest]

Hi Joyce just came in from the porch. (10:15PM) A nice cool night, with a gentle breeze blowing the wind chimes. The porch is all done except for the rain gutter and a lot of landscaping. Got a real nice 5' swing from "porchswings.com" Got one rated for 700 lbs, got some big people in the family. Will sent some Picture so time. P UIP 8/00 ILLJoyce wrote: Thanks , Did you get your porch done yet? Been swangin'? Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong.> >> > Joyce, > > You want the high flow water bottle, the ones with the black top will blow> > off and stop your air flow. Mine are white topped and are for up to 10lf.> > They may have others for higher flows. > > > > > > Donna> >> > > > > > > ---------------------------------> Be a better Globetrotter. Get better travel answers from someone who knows.> Yahoo!

Answers - Check it out.>

Take the Internet to Go: Yahoo!Go puts the Internet in your pocket: mail, news, photos more.

[Guest guest]

Hi Joyce just came in from the porch. (10:15PM) A nice cool night, with a gentle breeze blowing the wind chimes. The porch is all done except for the rain gutter and a lot of landscaping. Got a real nice 5' swing from "porchswings.com" Got one rated for 700 lbs, got some big people in the family. Will sent some Picture so time. P UIP 8/00 ILLJoyce wrote: Thanks , Did you get your porch done yet? Been swangin'? Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong.> >> > Joyce, > > You want the high flow water bottle, the ones with the black top will blow> > off and stop your air flow. Mine are white topped and are for up to 10lf.> > They may have others for higher flows. > > > > > > Donna> >> > > > > > > ---------------------------------> Be a better Globetrotter. Get better travel answers from someone who knows.> Yahoo!

Answers - Check it out.>

Take the Internet to Go: Yahoo!Go puts the Internet in your pocket: mail, news, photos more.

[Guest guest]

L. I'd love to be on the list when

you get this remote figured out!!!It would be great to change the

setting on my big Liquid OX

without having to get up!!! While your husband is figuring out the

remote...can you ask about inventing a gadget to keep the stupid

lengths of tubing from hanging me all the time and from getting hooked

on kitchen cabinets?

I hope you are having a better day...take care of yourself..you are so

strong!!

Z fibriotic NSIP/05

Z fibriotic NSIP/o5/PA

Potter, reader,carousel lover and

MomMom to Darah

“I’m gonna be iron like a lion in Zion”

Bob Marley

Lentz wrote:

Joyce,

My Apria man is coming today. He is

bringing me some more hi-flo cannulas. Give me your address...I will

send you one. This is ridiculous. When Tim comes home, I will have

him look up all the numbers for you. We will be glad to do it.

Yesterday was a better breathng

day. Went to church. Tim said he stayed awake all night checking on

me. Guess I gasped for air most of the night. Today not so good

either. Well, I am thankful for yesterday.

Oh.....it is possible to make a

remote. Tim has a control person working on it right now. Their are

many questions about it though, such as:

does it have to be wireless....what

is the lowest number and the highest number...what will be the Set

Point. All things I dont understand but.....the man that is doing it

for us sayss he thinks he could sell the idea to Puritan . It

would be an Add-on. He has to make the protype first. Says it should

be next week when I can try it. Why didnt someone think of this

before.....

L

-----

Original Message -----

From:

Joyce

To:

Breathe-Support

Sent:

Monday, September 24, 2007 10:42 AM

Subject:

Re: NOT great news!

,

And I have

questions for you! What kind of water bottle do you use....does it

have a number? We are trying to rig up the old one and it does not

work well. See if you can get your sweet husband to get the

manufacturer and model #'s on mask, humidifier bottle, tubing and

cannula. Don't you exert yourself to do this. Tell him that I said

pretty please.

I got an e-mail

from my contact at Apria that said there wasn't anything called a high

flow cannula and that my tubing would work fine. Grrrr!

I pray you are

having a good breathing day.

Hugs, Joyce D.

PULMONARY FIBROSIS/LUPUS 1997

BRONCHIECTASIS 2004 INDIANA

2 COR.

12:10 ....when I am weak, then I am strong.

>

> Donna,

> I read your letter to Joyce and have some questions. I use the

mask also at night. One reason is because it gives my nose a rest and

also I am a mouth breather at night but I did not know that you were

not supposed to use a water bottle. I always make sure that mine is

full.

> Please tell me the reasoning for this. I also will use the mask if

I am needing to walk around the house etc. It is also good if there is

a strong smell in the house. Sometimes dishwasher detergent will cause

me to lose my breath. Lots of reasons for th mask. My dog will try to

take it off of me , guess he thinks sometime is wrong when I wear it. I

use a high flow cannula and tubing which cuts down on the noise in my

ears/nose. Cannulas are the one thing that Apria never minds giving

me.but I always have to ask for the hi-flow ones. Just curious..what

setting do you have to use? I use 10L when exerting but able to only

use 8L when I sit and dont talk. Talking is alot of exertion sometimes.

> Thanks for your letter to Joyce. You helped me.

> L

> Re: NOT great news!

>

>

> Hi Joyce,

> I use a simple mask to sleep with, I am a mouth breather. Can't

seem to help it when I'm sleeping. The mask is for high concentration a

re breather and it will help you walking and doing things. I get 4 mask

a month and of both kinds and 4 cannula. Sometimes the bags one are a

little troublesome. The re breather or non re breather mask have to be

used without a water bottle and I se the water bottle on the

concentrator and because they didn't want to give me more tanks than

the 10 a month and that wasn't enough for me to get around in and out

of the house, so they decided to give me a liquid tank to use in the

house when I exert. I haven't been able to get around on my own for

almost 2 years now. I'm depend on my wonderful husband for everything.

God knew who I needed and I thanks Him regularly for him. I have to

take my concentrator when I go someplace. I have the big M60 tank that

last about 3 hours in the car and we can connect a water bottle to it

and that helps. There is also a cann ease that you can buy that is good

for the nose. THeir number is 1-. I have also found that

using a mask on top of your cannula when your sats are low helps to

bring it up faster. I have a mask sitting beside me at all time, I cut

the cord off and just use the mask part also used that last winter and

it helps to get the cold out so many uses for the mask.

>

> I don't consider what I have lost but want I have gained, more

time with hubby (love that as we were always close). Time with God,time

to read and crochet and share with others.

> I have my good days and although sometimes that are scarce, I try

to find good in the bad days and don't let that steal my joy, as your

joy is your strength.

>

> God bless

> Donna

>

No virus found in this incoming message.

Checked by AVG Free Edition. Version: 7.5.488 / Virus Database: 269.13.30/1025 - Release Date: 9/23/2007 1:53 PM

[Guest guest]

L. I'd love to be on the list when

you get this remote figured out!!!It would be great to change the

setting on my big Liquid OX

without having to get up!!! While your husband is figuring out the

remote...can you ask about inventing a gadget to keep the stupid

lengths of tubing from hanging me all the time and from getting hooked

on kitchen cabinets?

I hope you are having a better day...take care of yourself..you are so

strong!!

Z fibriotic NSIP/05

Z fibriotic NSIP/o5/PA

Potter, reader,carousel lover and

MomMom to Darah

“I’m gonna be iron like a lion in Zion”

Bob Marley

Lentz wrote:

Joyce,

My Apria man is coming today. He is

bringing me some more hi-flo cannulas. Give me your address...I will

send you one. This is ridiculous. When Tim comes home, I will have

him look up all the numbers for you. We will be glad to do it.

Yesterday was a better breathng

day. Went to church. Tim said he stayed awake all night checking on

me. Guess I gasped for air most of the night. Today not so good

either. Well, I am thankful for yesterday.

Oh.....it is possible to make a

remote. Tim has a control person working on it right now. Their are

many questions about it though, such as:

does it have to be wireless....what

is the lowest number and the highest number...what will be the Set

Point. All things I dont understand but.....the man that is doing it

for us sayss he thinks he could sell the idea to Puritan . It

would be an Add-on. He has to make the protype first. Says it should

be next week when I can try it. Why didnt someone think of this

before.....

L

-----

Original Message -----

From:

Joyce

To:

Breathe-Support

Sent:

Monday, September 24, 2007 10:42 AM

Subject:

Re: NOT great news!

,

And I have

questions for you! What kind of water bottle do you use....does it

have a number? We are trying to rig up the old one and it does not

work well. See if you can get your sweet husband to get the

manufacturer and model #'s on mask, humidifier bottle, tubing and

cannula. Don't you exert yourself to do this. Tell him that I said

pretty please.

I got an e-mail

from my contact at Apria that said there wasn't anything called a high

flow cannula and that my tubing would work fine. Grrrr!

I pray you are

having a good breathing day.

Hugs, Joyce D.

PULMONARY FIBROSIS/LUPUS 1997

BRONCHIECTASIS 2004 INDIANA

2 COR.

12:10 ....when I am weak, then I am strong.

>

> Donna,

> I read your letter to Joyce and have some questions. I use the

mask also at night. One reason is because it gives my nose a rest and

also I am a mouth breather at night but I did not know that you were

not supposed to use a water bottle. I always make sure that mine is

full.

> Please tell me the reasoning for this. I also will use the mask if

I am needing to walk around the house etc. It is also good if there is

a strong smell in the house. Sometimes dishwasher detergent will cause

me to lose my breath. Lots of reasons for th mask. My dog will try to

take it off of me , guess he thinks sometime is wrong when I wear it. I

use a high flow cannula and tubing which cuts down on the noise in my

ears/nose. Cannulas are the one thing that Apria never minds giving

me.but I always have to ask for the hi-flow ones. Just curious..what

setting do you have to use? I use 10L when exerting but able to only

use 8L when I sit and dont talk. Talking is alot of exertion sometimes.

> Thanks for your letter to Joyce. You helped me.

> L

> Re: NOT great news!

>

>

> Hi Joyce,

> I use a simple mask to sleep with, I am a mouth breather. Can't

seem to help it when I'm sleeping. The mask is for high concentration a

re breather and it will help you walking and doing things. I get 4 mask

a month and of both kinds and 4 cannula. Sometimes the bags one are a

little troublesome. The re breather or non re breather mask have to be

used without a water bottle and I se the water bottle on the

concentrator and because they didn't want to give me more tanks than

the 10 a month and that wasn't enough for me to get around in and out

of the house, so they decided to give me a liquid tank to use in the

house when I exert. I haven't been able to get around on my own for

almost 2 years now. I'm depend on my wonderful husband for everything.

God knew who I needed and I thanks Him regularly for him. I have to

take my concentrator when I go someplace. I have the big M60 tank that

last about 3 hours in the car and we can connect a water bottle to it

and that helps. There is also a cann ease that you can buy that is good

for the nose. THeir number is 1-. I have also found that

using a mask on top of your cannula when your sats are low helps to

bring it up faster. I have a mask sitting beside me at all time, I cut

the cord off and just use the mask part also used that last winter and

it helps to get the cold out so many uses for the mask.

>

> I don't consider what I have lost but want I have gained, more

time with hubby (love that as we were always close). Time with God,time

to read and crochet and share with others.

> I have my good days and although sometimes that are scarce, I try

to find good in the bad days and don't let that steal my joy, as your

joy is your strength.

>

> God bless

> Donna

>

No virus found in this incoming message.

Checked by AVG Free Edition. Version: 7.5.488 / Virus Database: 269.13.30/1025 - Release Date: 9/23/2007 1:53 PM

[Guest guest]

P. You must really be thrilled to

have the porch done...keep on swinging!!!!!

Z fibriotic NSIP/05

Z fibriotic NSIP/o5/PA

Potter, reader,carousel lover and

MomMom to Darah

“I’m gonna be iron like a lion in Zion”

Bob Marley

wrote:

Hi Joyce just came in from the porch. (10:15PM) A nice cool

night, with a gentle breeze blowing the wind chimes. The porch is all

done except for the rain gutter and a lot of landscaping. Got a real

nice 5' swing from "porchswings.com" Got one rated for 700 lbs,

got some big people in the family. Will sent some Picture so time.

P UIP 8/00 ILL

Joyce <janne5303> wrote:

Thanks ,

Did you get your

porch done yet? Been swangin'?

Hugs, Joyce D.

PULMONARY FIBROSIS/LUPUS 1997

BRONCHIECTASIS 2004 INDIANA

2 COR.

12:10 ....when I am weak, then I am strong.

> >

> > Joyce,

> > You want the high flow water bottle, the ones with the black

top will blow

> > off and stop your air flow. Mine are white topped and are for

up to 10lf.

> > They may have others for higher flows.

> >

> >

> > Donna

> >

>

>

>

>

>

>

> ---------------------------------

> Be a better Globetrotter. Get better travel answers from someone

who knows.

> Yahoo! Answers - Check it out.

>

Take the

Internet to Go: Yahoo!Go puts the Internet

in your pocket: mail, news, photos more.

No virus found in this incoming message.

Checked by AVG Free Edition. Version: 7.5.488 / Virus Database: 269.13.30/1025 - Release Date: 9/23/2007 1:53 PM

[Guest guest]

Joyce,

As par for the course, Apria did not come today as scheduled. Who knows the reason today! Anyway, here is what you requested.

l. Hudson RCI High Flow Humidifier 3260 (I have an extra one and will send it for you want me to.

2.Salter High Flow Nasal Cannula and tubing..SAL1600 HF-7-25

I believe that Apria people say anything just so they dont have to look for something for you. My husband believes that they probably bill the insurance companies just like they gave it to you, but didnt. Would be interesting to know.

I have had a very bad day....dont kow if I can take another one. My husband wanted to call the Dr. But I knew that she would hospitalize me and I really think that when I go into the hospital, I will not return. He cried tonight. This is the first time I have seen him break down. He has always been so strong. I have been having much pain. Feels like I am in a vice..between my back and front. Just squeezing tighter. As much as I dont want to, I have had to take the oxycontin many times today.

Oh well, tomorrow is another day I guess.

L.

Re: NOT great news!> > > Hi Joyce,> I use a simple mask to sleep with, I am a mouth breather. Can't seem to help it when I'm sleeping. The mask is for high concentration a re breather and it will help you walking and doing things. I get 4 mask a month and of both kinds and 4 cannula. Sometimes the bags one are a little troublesome. The re breather or non re breather mask have to be used without a water bottle and I se the water bottle on the concentrator and because they didn't want to give me more tanks than the 10 a month and that wasn't enough for me to get around in and out of the house, so they decided to give me a liquid tank to use in the house when I exert. I haven't been able to get around on my own for almost 2 years now. I'm depend on my wonderful husband for everything. God knew who I needed and I thanks Him regularly for him. I have to take my concentrator when I go someplace. I have the big M60 tank that last about 3 hours in the car and we can connect a water bottle to it and that helps. There is also a cann ease that you can buy that is good for the nose. THeir number is 1-. I have also found that using a mask on top of your cannula when your sats are low helps to bring it up faster. I have a mask sitting beside me at all time, I cut the cord off and just use the mask part also used that last winter and it helps to get the cold out so many uses for the mask.> > I don't consider what I have lost but want I have gained, more time with hubby (love that as we were always close). Time with God,time to read and crochet and share with others.> I have my good days and although sometimes that are scarce, I try to find good in the bad days and don't let that steal my joy, as your joy is your strength. > > God bless> Donna>

[Guest guest]

Joyce,

As par for the course, Apria did not come today as scheduled. Who knows the reason today! Anyway, here is what you requested.

l. Hudson RCI High Flow Humidifier 3260 (I have an extra one and will send it for you want me to.

2.Salter High Flow Nasal Cannula and tubing..SAL1600 HF-7-25

I believe that Apria people say anything just so they dont have to look for something for you. My husband believes that they probably bill the insurance companies just like they gave it to you, but didnt. Would be interesting to know.

I have had a very bad day....dont kow if I can take another one. My husband wanted to call the Dr. But I knew that she would hospitalize me and I really think that when I go into the hospital, I will not return. He cried tonight. This is the first time I have seen him break down. He has always been so strong. I have been having much pain. Feels like I am in a vice..between my back and front. Just squeezing tighter. As much as I dont want to, I have had to take the oxycontin many times today.

Oh well, tomorrow is another day I guess.

L.

Re: NOT great news!> > > Hi Joyce,> I use a simple mask to sleep with, I am a mouth breather. Can't seem to help it when I'm sleeping. The mask is for high concentration a re breather and it will help you walking and doing things. I get 4 mask a month and of both kinds and 4 cannula. Sometimes the bags one are a little troublesome. The re breather or non re breather mask have to be used without a water bottle and I se the water bottle on the concentrator and because they didn't want to give me more tanks than the 10 a month and that wasn't enough for me to get around in and out of the house, so they decided to give me a liquid tank to use in the house when I exert. I haven't been able to get around on my own for almost 2 years now. I'm depend on my wonderful husband for everything. God knew who I needed and I thanks Him regularly for him. I have to take my concentrator when I go someplace. I have the big M60 tank that last about 3 hours in the car and we can connect a water bottle to it and that helps. There is also a cann ease that you can buy that is good for the nose. THeir number is 1-. I have also found that using a mask on top of your cannula when your sats are low helps to bring it up faster. I have a mask sitting beside me at all time, I cut the cord off and just use the mask part also used that last winter and it helps to get the cold out so many uses for the mask.> > I don't consider what I have lost but want I have gained, more time with hubby (love that as we were always close). Time with God,time to read and crochet and share with others.> I have my good days and although sometimes that are scarce, I try to find good in the bad days and don't let that steal my joy, as your joy is your strength. > > God bless> Donna>

[Guest guest]

Donna,

I use the hi flow mask with the bag at night and during the days when I am extremely short of breath. But...I use the water bottle. I will not use it now. Thanks for telling me. And as for the turning the concentrator up and down all the time, my husband is working on this. A remote may be in the very near future.

L.

Re: NOT great news!

Hi ,

The simple face mask you can use the water bottle, the hi-ox mask you can not use a water bottle not enough psi. The hi-ox mask have a bag in the front that every time you take a breathe you get 100% oxygen, so 10 liter is like 15 on a cannula. I used the hi-ox mask to exert when around the house and then go back on the concentrator when not. I have to constantly change my liter flow. I'm up and down for no reason. I also keep a cool wet washcloth with me at all times, if I get too warm my sats drop. The washcloth cools me down faster and keeps me cool. I use it also when going outside on hot days getting to the car. It helps and I have carried a wet washcloth with me everywhere for the last 5 years. I also carry my water jug 32 oz with me everywhere. The hi-ox mask can not be worn for days on end it can cause oxygen toxicity, but the transplant doctor said I would have to wear it for 3 days straight for that to happen. Are you considering a transplant? Or have you thought about the transtracheal oxygen , it is a procedure where the TTO catheter goes in your trachea and you use less oxygen and I think it may be easier to balance out. If I can't do a transplant I'm thinking about this. Just sitting around I use 4.5 -5 liters sometimes more. Moving and exerting for me are bad at times I use 10 with the hi-ox mask. When I walked at Un of Penn for the second 6- minute walk test, I started on 15liters and dropped so they had to up me to 20 liters that is like 30 liters on a cannula. But just upping the cannula for me doesn't do it. For some reason, it doesn't help but the bag one works great. Because every time you take a breath you are getting a 100% oxygen not 22%, makes a difference. Check with your doctor about these mask. I don't think apria carries them. I called apria here as I was thinking about changing until, I finally got more air to move around. I hope this information helps.

Donna

[Guest guest]

Donna,

I use the hi flow mask with the bag at night and during the days when I am extremely short of breath. But...I use the water bottle. I will not use it now. Thanks for telling me. And as for the turning the concentrator up and down all the time, my husband is working on this. A remote may be in the very near future.

L.

Re: NOT great news!

Hi ,

The simple face mask you can use the water bottle, the hi-ox mask you can not use a water bottle not enough psi. The hi-ox mask have a bag in the front that every time you take a breathe you get 100% oxygen, so 10 liter is like 15 on a cannula. I used the hi-ox mask to exert when around the house and then go back on the concentrator when not. I have to constantly change my liter flow. I'm up and down for no reason. I also keep a cool wet washcloth with me at all times, if I get too warm my sats drop. The washcloth cools me down faster and keeps me cool. I use it also when going outside on hot days getting to the car. It helps and I have carried a wet washcloth with me everywhere for the last 5 years. I also carry my water jug 32 oz with me everywhere. The hi-ox mask can not be worn for days on end it can cause oxygen toxicity, but the transplant doctor said I would have to wear it for 3 days straight for that to happen. Are you considering a transplant? Or have you thought about the transtracheal oxygen , it is a procedure where the TTO catheter goes in your trachea and you use less oxygen and I think it may be easier to balance out. If I can't do a transplant I'm thinking about this. Just sitting around I use 4.5 -5 liters sometimes more. Moving and exerting for me are bad at times I use 10 with the hi-ox mask. When I walked at Un of Penn for the second 6- minute walk test, I started on 15liters and dropped so they had to up me to 20 liters that is like 30 liters on a cannula. But just upping the cannula for me doesn't do it. For some reason, it doesn't help but the bag one works great. Because every time you take a breath you are getting a 100% oxygen not 22%, makes a difference. Check with your doctor about these mask. I don't think apria carries them. I called apria here as I was thinking about changing until, I finally got more air to move around. I hope this information helps.

Donna

[Guest guest]

Donna,

I use the hi flow mask with the bag at night and during the days when I am extremely short of breath. But...I use the water bottle. I will not use it now. Thanks for telling me. And as for the turning the concentrator up and down all the time, my husband is working on this. A remote may be in the very near future.

L.

Re: NOT great news!

Hi ,

The simple face mask you can use the water bottle, the hi-ox mask you can not use a water bottle not enough psi. The hi-ox mask have a bag in the front that every time you take a breathe you get 100% oxygen, so 10 liter is like 15 on a cannula. I used the hi-ox mask to exert when around the house and then go back on the concentrator when not. I have to constantly change my liter flow. I'm up and down for no reason. I also keep a cool wet washcloth with me at all times, if I get too warm my sats drop. The washcloth cools me down faster and keeps me cool. I use it also when going outside on hot days getting to the car. It helps and I have carried a wet washcloth with me everywhere for the last 5 years. I also carry my water jug 32 oz with me everywhere. The hi-ox mask can not be worn for days on end it can cause oxygen toxicity, but the transplant doctor said I would have to wear it for 3 days straight for that to happen. Are you considering a transplant? Or have you thought about the transtracheal oxygen , it is a procedure where the TTO catheter goes in your trachea and you use less oxygen and I think it may be easier to balance out. If I can't do a transplant I'm thinking about this. Just sitting around I use 4.5 -5 liters sometimes more. Moving and exerting for me are bad at times I use 10 with the hi-ox mask. When I walked at Un of Penn for the second 6- minute walk test, I started on 15liters and dropped so they had to up me to 20 liters that is like 30 liters on a cannula. But just upping the cannula for me doesn't do it. For some reason, it doesn't help but the bag one works great. Because every time you take a breath you are getting a 100% oxygen not 22%, makes a difference. Check with your doctor about these mask. I don't think apria carries them. I called apria here as I was thinking about changing until, I finally got more air to move around. I hope this information helps.

Donna

[Guest guest]

, I am so sorry your in such pain. I do hate this disease so

badly. I am going to be praying for your to have relief right now.

God Bless you. Good Night.

Love and Prayers, Peggy

ipf 6/04 Florida

" Worry looks around,

Sorry looks back,

Faith looks up. "

Joyce,

As par for the course, Apria did not come today as scheduled. Who

knows the reason today! Anyway, here is what you requested.

l. Hudson RCI High Flow Humidifier 3260 (I have an extra one and

will send it for you want me to.

2.Salter High Flow Nasal Cannula and tubing..SAL1600 HF-7-25

I believe that Apria people say anything just so they dont have to

look for something for you. My husband believes that they probably

bill the insurance companies just like they gave it to you, but

didnt. Would be interesting to know.

I have had a very bad day....dont kow if I can take another one. My

husband wanted to call the Dr. But I knew that she would hospitalize

me and I really think that when I go into the hospital, I will not

return. He cried tonight. This is the first time I have seen him

break down. He has always been so strong. I have been having much

pain. Feels like I am in a vice..between my back and front. Just

squeezing tighter. As much as I dont want to, I have had to take the

oxycontin many times today.

Oh well, tomorrow is another day I guess.

L.

Re: NOT great news!

>

>

> Hi Joyce,

> I use a simple mask to sleep with, I am a mouth breather. Can't

seem to help it when I'm sleeping. The mask is for high concentration

a re breather and it will help you walking and doing things. I get 4

mask a month and of both kinds and 4 cannula. Sometimes the bags one

are a little troublesome. The re breather or non re breather mask

have to be used without a water bottle and I se the water bottle on

the concentrator and because they didn't want to give me more tanks

than the 10 a month and that wasn't enough for me to get around in

and out of the house, so they decided to give me a liquid tank to use

in the house when I exert. I haven't been able to get around on my

own for almost 2 years now. I'm depend on my wonderful husband for

everything. God knew who I needed and I thanks Him regularly for him.

I have to take my concentrator when I go someplace. I have the big

M60 tank that last about 3 hours in the car and we can connect a

water bottle to it and that helps. There is also a cann ease that you

can buy that is good for the nose. THeir number is 1-. I

have also found that using a mask on top of your cannula when your

sats are low helps to bring it up faster. I have a mask sitting

beside me at all time, I cut the cord off and just use the mask part

also used that last winter and it helps to get the cold out so many

uses for the mask.

>

> I don't consider what I have lost but want I have gained, more

time with hubby (love that as we were always close). Time with

God,time to read and crochet and share with others.

> I have my good days and although sometimes that are scarce, I try

to find good in the bad days and don't let that steal my joy, as your

joy is your strength.

>

> God bless

> Donna

>

[Guest guest]

, I am so sorry your in such pain. I do hate this disease so

badly. I am going to be praying for your to have relief right now.

God Bless you. Good Night.

Love and Prayers, Peggy

ipf 6/04 Florida

" Worry looks around,

Sorry looks back,

Faith looks up. "

Joyce,

As par for the course, Apria did not come today as scheduled. Who

knows the reason today! Anyway, here is what you requested.

l. Hudson RCI High Flow Humidifier 3260 (I have an extra one and

will send it for you want me to.

2.Salter High Flow Nasal Cannula and tubing..SAL1600 HF-7-25

I believe that Apria people say anything just so they dont have to

look for something for you. My husband believes that they probably

bill the insurance companies just like they gave it to you, but

didnt. Would be interesting to know.

I have had a very bad day....dont kow if I can take another one. My

husband wanted to call the Dr. But I knew that she would hospitalize

me and I really think that when I go into the hospital, I will not

return. He cried tonight. This is the first time I have seen him

break down. He has always been so strong. I have been having much

pain. Feels like I am in a vice..between my back and front. Just

squeezing tighter. As much as I dont want to, I have had to take the

oxycontin many times today.

Oh well, tomorrow is another day I guess.

L.

Re: NOT great news!

>

>

> Hi Joyce,

> I use a simple mask to sleep with, I am a mouth breather. Can't

seem to help it when I'm sleeping. The mask is for high concentration

a re breather and it will help you walking and doing things. I get 4

mask a month and of both kinds and 4 cannula. Sometimes the bags one

are a little troublesome. The re breather or non re breather mask

have to be used without a water bottle and I se the water bottle on

the concentrator and because they didn't want to give me more tanks

than the 10 a month and that wasn't enough for me to get around in

and out of the house, so they decided to give me a liquid tank to use

in the house when I exert. I haven't been able to get around on my

own for almost 2 years now. I'm depend on my wonderful husband for

everything. God knew who I needed and I thanks Him regularly for him.

I have to take my concentrator when I go someplace. I have the big

M60 tank that last about 3 hours in the car and we can connect a

water bottle to it and that helps. There is also a cann ease that you

can buy that is good for the nose. THeir number is 1-. I

have also found that using a mask on top of your cannula when your

sats are low helps to bring it up faster. I have a mask sitting

beside me at all time, I cut the cord off and just use the mask part

also used that last winter and it helps to get the cold out so many

uses for the mask.

>

> I don't consider what I have lost but want I have gained, more

time with hubby (love that as we were always close). Time with

God,time to read and crochet and share with others.

> I have my good days and although sometimes that are scarce, I try

to find good in the bad days and don't let that steal my joy, as your

joy is your strength.

>

> God bless

> Donna

>