Guest guest Posted September 21, 2007 Report Share Posted September 21, 2007 Hi Joyce, I Wished you got some good news from Cigna. I'm totally clueless about stationary liquid tanks and portables ones. Are those the same ones, that I see sometimes at the hospital in ER were they're green and look like a shuttle (I'm sorry for the humour) and are attached behind the stretcher of the patient. Are those the ones you have? Irene PF 03/07 Raynaud's Disease 09/07 Canada ---- Original Message ---- To: Breathe-Support Sent: Fri, 21 Sep 2007 11:54 pm Subject: NOT great news! I just got a letter from Cigna to let me know that I have been approved for liquid....one stationary liquid (the mother ship) and one portable. So at 7-8 lpm the Marathon will last about 1 1/2 hours. After all the phone calls, all the e-mails and my doctor taking his day off to jump through hoops for me. This is it. So, I will have to stick with compressed tanks which do not even have high flow. I have one regulator that goes to 6 and with the oxymizer it will be the same as 7 1/2. Going to look on e-bay for a pack mule! Hugs, Joyce D. PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong. Meet the new AOL.ca. Free radio, music, videos, news & entertainment – with a Canadian perspective. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2007 Report Share Posted September 21, 2007 Hi Joyce, I Wished you got some good news from Cigna. I'm totally clueless about stationary liquid tanks and portables ones. Are those the same ones, that I see sometimes at the hospital in ER were they're green and look like a shuttle (I'm sorry for the humour) and are attached behind the stretcher of the patient. Are those the ones you have? Irene PF 03/07 Raynaud's Disease 09/07 Canada ---- Original Message ---- To: Breathe-Support Sent: Fri, 21 Sep 2007 11:54 pm Subject: NOT great news! I just got a letter from Cigna to let me know that I have been approved for liquid....one stationary liquid (the mother ship) and one portable. So at 7-8 lpm the Marathon will last about 1 1/2 hours. After all the phone calls, all the e-mails and my doctor taking his day off to jump through hoops for me. This is it. So, I will have to stick with compressed tanks which do not even have high flow. I have one regulator that goes to 6 and with the oxymizer it will be the same as 7 1/2. Going to look on e-bay for a pack mule! Hugs, Joyce D. PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong. Meet the new AOL.ca. Free radio, music, videos, news & entertainment – with a Canadian perspective. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2007 Report Share Posted September 22, 2007 good luck honey bunny, i had the liquid and i told them to come get that crap......just was not right for me. problem with the portables is you can only fill them from the big mothership and they don't last as long as my gas portables do...and with those i just carry extra bottles around. LCH 10-05 > > > I just got a letter from Cigna to let me know that I have been approved > for liquid....one stationary liquid (the mother ship) and one portable. > So at 7-8 lpm the Marathon will last about 1 1/2 hours. After all the > phone calls, all the e-mails and my doctor taking his day off to jump > through hoops for me. This is it. > > So, I will have to stick with compressed tanks which do not even have > high flow. I have one regulator that goes to 6 and with the oxymizer it > will be the same as 7 1/2. Going to look on e-bay for a pack mule! > > Hugs, Joyce D. > PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA > 2 COR. 12:10 ....when I am weak, then I am strong. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2007 Report Share Posted September 22, 2007 , I did the same thing. I quit using liquid when they pulled the backup compressed tanks. I loved my little Helios, but that was when I was on 2L. Right now I am on 7 to 8L. As far as I know, the liquid is the only portable that will go that high. But, they will give me no backup tanks. So, that gives me maybe an hour and a half to get out and back.....that is if the thing works, doesn't freeze up, etc. Of course if there is a traffic jam..I am toast. You know me.... I AM protesting. Been calling, filling out forms, e-mailing and listening to elevator music on the phone........It has been weeks and now I get this asinine letter that puts me right back to square one. I am with Apria. Apria goes through Intercorp....which evidently is meant to see that the patient does NOT get the necessities to live. Then there is Cigna who has no one to answer the phones that has an IQ over 60. So, for now I am sticking with the tanks. Just do the best I can. But, I am not through fussing yet! Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong.> >> > > > I just got a letter from Cigna to let me know that I have been > approved> > for liquid....one stationary liquid (the mother ship) and one > portable. > > So at 7-8 lpm the Marathon will last about 1 1/2 hours. After all > the> > phone calls, all the e-mails and my doctor taking his day off to > jump> > through hoops for me. This is it.> > > > So, I will have to stick with compressed tanks which do not even > have> > high flow. I have one regulator that goes to 6 and with the > oxymizer it> > will be the same as 7 1/2. Going to look on e-bay for a pack mule!> > > > Hugs, Joyce D.> > PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA> > 2 COR. 12:10 ....when I am weak, then I am strong.> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2007 Report Share Posted September 22, 2007 , I did the same thing. I quit using liquid when they pulled the backup compressed tanks. I loved my little Helios, but that was when I was on 2L. Right now I am on 7 to 8L. As far as I know, the liquid is the only portable that will go that high. But, they will give me no backup tanks. So, that gives me maybe an hour and a half to get out and back.....that is if the thing works, doesn't freeze up, etc. Of course if there is a traffic jam..I am toast. You know me.... I AM protesting. Been calling, filling out forms, e-mailing and listening to elevator music on the phone........It has been weeks and now I get this asinine letter that puts me right back to square one. I am with Apria. Apria goes through Intercorp....which evidently is meant to see that the patient does NOT get the necessities to live. Then there is Cigna who has no one to answer the phones that has an IQ over 60. So, for now I am sticking with the tanks. Just do the best I can. But, I am not through fussing yet! Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong.> >> > > > I just got a letter from Cigna to let me know that I have been > approved> > for liquid....one stationary liquid (the mother ship) and one > portable. > > So at 7-8 lpm the Marathon will last about 1 1/2 hours. After all > the> > phone calls, all the e-mails and my doctor taking his day off to > jump> > through hoops for me. This is it.> > > > So, I will have to stick with compressed tanks which do not even > have> > high flow. I have one regulator that goes to 6 and with the > oxymizer it> > will be the same as 7 1/2. Going to look on e-bay for a pack mule!> > > > Hugs, Joyce D.> > PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA> > 2 COR. 12:10 ....when I am weak, then I am strong.> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2007 Report Share Posted September 22, 2007 , I did the same thing. I quit using liquid when they pulled the backup compressed tanks. I loved my little Helios, but that was when I was on 2L. Right now I am on 7 to 8L. As far as I know, the liquid is the only portable that will go that high. But, they will give me no backup tanks. So, that gives me maybe an hour and a half to get out and back.....that is if the thing works, doesn't freeze up, etc. Of course if there is a traffic jam..I am toast. You know me.... I AM protesting. Been calling, filling out forms, e-mailing and listening to elevator music on the phone........It has been weeks and now I get this asinine letter that puts me right back to square one. I am with Apria. Apria goes through Intercorp....which evidently is meant to see that the patient does NOT get the necessities to live. Then there is Cigna who has no one to answer the phones that has an IQ over 60. So, for now I am sticking with the tanks. Just do the best I can. But, I am not through fussing yet! Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong.> >> > > > I just got a letter from Cigna to let me know that I have been > approved> > for liquid....one stationary liquid (the mother ship) and one > portable. > > So at 7-8 lpm the Marathon will last about 1 1/2 hours. After all > the> > phone calls, all the e-mails and my doctor taking his day off to > jump> > through hoops for me. This is it.> > > > So, I will have to stick with compressed tanks which do not even > have> > high flow. I have one regulator that goes to 6 and with the > oxymizer it> > will be the same as 7 1/2. Going to look on e-bay for a pack mule!> > > > Hugs, Joyce D.> > PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA> > 2 COR. 12:10 ....when I am weak, then I am strong.> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2007 Report Share Posted September 22, 2007 Weellll, a good thing. I did find that one of my regulators go to 15 LPM. So I can get high flow on my tanks. Still looking for a mule to carry them for me. Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong. > > >> > >> > > I just got a letter from Cigna to let me know that I have been> > approved> > > for liquid....one stationary liquid (the mother ship) and one> > portable.> > > So at 7-8 lpm the Marathon will last about 1 1/2 hours. After all> > the> > > phone calls, all the e-mails and my doctor taking his day off to> > jump> > > through hoops for me. This is it.> > >> > > So, I will have to stick with compressed tanks which do not even> > have> > > high flow. I have one regulator that goes to 6 and with the> > oxymizer it> > > will be the same as 7 1/2. Going to look on e-bay for a pack mule!> > >> > > Hugs, Joyce D.> > > PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA> > > 2 COR. 12:10 ....when I am weak, then I am strong.> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2007 Report Share Posted September 22, 2007 Weellll, a good thing. I did find that one of my regulators go to 15 LPM. So I can get high flow on my tanks. Still looking for a mule to carry them for me. Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong. > > >> > >> > > I just got a letter from Cigna to let me know that I have been> > approved> > > for liquid....one stationary liquid (the mother ship) and one> > portable.> > > So at 7-8 lpm the Marathon will last about 1 1/2 hours. After all> > the> > > phone calls, all the e-mails and my doctor taking his day off to> > jump> > > through hoops for me. This is it.> > >> > > So, I will have to stick with compressed tanks which do not even> > have> > > high flow. I have one regulator that goes to 6 and with the> > oxymizer it> > > will be the same as 7 1/2. Going to look on e-bay for a pack mule!> > >> > > Hugs, Joyce D.> > > PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA> > > 2 COR. 12:10 ....when I am weak, then I am strong.> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2007 Report Share Posted September 22, 2007 YEAH, Party happinin now.. is pretty hard headed and has really big shoulders..I volunteer him. Love and Prayers, Peggy ipf 6/04 Florida"Worry looks around, Sorry looks back, Faith looks up." Weellll, a good thing. I did find that one of my regulators go to 15 LPM. So I can get high flow on my tanks. Still looking for a mule to carry them for me. Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong. > > >> > >> > > I just got a letter from Cigna to let me know that I have been> > approved> > > for liquid....one stationary liquid (the mother ship) and one> > portable.> > > So at 7-8 lpm the Marathon will last about 1 1/2 hours. After all> > the> > > phone calls, all the e-mails and my doctor taking his day off to> > jump> > > through hoops for me. This is it.> > >> > > So, I will have to stick with compressed tanks which do not even> > have> > > high flow. I have one regulator that goes to 6 and with the> > oxymizer it> > > will be the same as 7 1/2. Going to look on e-bay for a pack mule!> > >> > > Hugs, Joyce D.> > > PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA> > > 2 COR. 12:10 ....when I am weak, then I am strong.> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2007 Report Share Posted September 22, 2007 HI Joyce Have you hear of the Companion T that goes to 15 LPMmade by Puritan http://www.puritanbennett.com/prod/Product.aspx?S1=OXY & S2= & id=33I am soon to be in the same boat that you are needing a high flow unit and a back up unit and a travel tank. So I have been trying to find a way to force the old insurance company to give us what we need and not what they want to give us.I read the hole product from the sight above. On Page 1-12 paragraph 8 Caution " two to three hours to restore adequate pressure"In table 4:1 "Trouble shooting" it talks about 30 minutes @ no flow in a few spots If I had to wait this amount of time I would be laying on the floor passed out.I don't know if sending these quotes to your insurance company and asking what you should do at time like this DIE??? P UIP 8/00 ILLJoyce wrote: I just got a letter from Cigna to let me know that I have been approved for liquid....one stationary liquid (the mother ship) and one portable. So at 7-8 lpm the Marathon will last about 1 1/2 hours. After all the phone calls, all the e-mails and my doctor taking his day off to jump through hoops for me. This is it. So, I will have to stick with compressed tanks which do not even have high flow. I have one regulator that goes to 6 and with the oxymizer it will be the same as 7 1/2. Going to look on e-bay for a pack mule! Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong. Don't let your dream ride pass you by. Make it a reality with Yahoo! Autos. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2007 Report Share Posted September 23, 2007 Hi Joyce, They make regulators that go up to 15 liters. Has your doctor requested a hi-flow regulator for you? I would have them call and get that. My oxygen supply company didn't want to give me the portable I needed but my doc office and my insurance (case manager) bugs them till, I now have a concentrator, 8-e bottles,2-m60 bottles, and a liquid tank in the house that gets filled once a month. It is so I can walk in the house I need 10 plus liters on the hi-ox mask to walk. I'm going to call about a high flow regulator for the tanks cause sometimes I have to walk some and 8liters with the hi-ox mask doesn't work for me anymore. The hi-ox mask can be a pain as it has a bag in front and keeps the air flowing at 100% oxygen. You may want to talk to your doc about the hi-ox mask. It has helped me, thanks to the transplant doctor telling me about it, I can now walk around the house some without struggle and sats dropping into the 70's, yippee. DOnna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2007 Report Share Posted September 23, 2007 P. Thanks for the info. My fight is not over. I am so mad. For myself and for the thousands of people confined to thier homes and some with no 02 at all. If I had the nerve and the money for copay.......I would go out with what they provide, call an ambulance and go to the emergency room every time it runs out! I am just not that brave. I have been in the emergency room a few times. There are easier ways to die! I will just continue on with my big load of tanks and do the best that I can. Arrrgh! I use a Companion at rehab. It would last a little longer than the Marathon. The Marathon, however, will go to pulse when resting and that saves gas. It is easier for me to handle, too. I went to church today with 1 E tank and 3 M6 tanks. I have one regulator which will go to pulse at higher flow and that saves a little. I can use pulse when I am just sitting. I am waiting for the higher dose prednisone to kick in so that I will have more energy to begin a new fight with all these execunuts. Thanks Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong. > I just got a letter from Cigna to let me know that I have been approved for liquid....one stationary liquid (the mother ship) and one portable. So at 7-8 lpm the Marathon will last about 1 1/2 hours. After all the phone calls, all the e-mails and my doctor taking his day off to jump through hoops for me. This is it. > So, I will have to stick with compressed tanks which do not even have high flow. I have one regulator that goes to 6 and with the oxymizer it will be the same as 7 1/2. Going to look on e-bay for a pack mule! > Hugs, Joyce D.> PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA > 2 COR. 12:10 ....when I am weak, then I am strong. > > > > > > > ---------------------------------> Don't let your dream ride pass you by. Make it a reality with Yahoo! Autos.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2007 Report Share Posted September 23, 2007 P. Thanks for the info. My fight is not over. I am so mad. For myself and for the thousands of people confined to thier homes and some with no 02 at all. If I had the nerve and the money for copay.......I would go out with what they provide, call an ambulance and go to the emergency room every time it runs out! I am just not that brave. I have been in the emergency room a few times. There are easier ways to die! I will just continue on with my big load of tanks and do the best that I can. Arrrgh! I use a Companion at rehab. It would last a little longer than the Marathon. The Marathon, however, will go to pulse when resting and that saves gas. It is easier for me to handle, too. I went to church today with 1 E tank and 3 M6 tanks. I have one regulator which will go to pulse at higher flow and that saves a little. I can use pulse when I am just sitting. I am waiting for the higher dose prednisone to kick in so that I will have more energy to begin a new fight with all these execunuts. Thanks Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong. > I just got a letter from Cigna to let me know that I have been approved for liquid....one stationary liquid (the mother ship) and one portable. So at 7-8 lpm the Marathon will last about 1 1/2 hours. After all the phone calls, all the e-mails and my doctor taking his day off to jump through hoops for me. This is it. > So, I will have to stick with compressed tanks which do not even have high flow. I have one regulator that goes to 6 and with the oxymizer it will be the same as 7 1/2. Going to look on e-bay for a pack mule! > Hugs, Joyce D.> PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA > 2 COR. 12:10 ....when I am weak, then I am strong. > > > > > > > ---------------------------------> Don't let your dream ride pass you by. Make it a reality with Yahoo! Autos.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2007 Report Share Posted September 23, 2007 P. Thanks for the info. My fight is not over. I am so mad. For myself and for the thousands of people confined to thier homes and some with no 02 at all. If I had the nerve and the money for copay.......I would go out with what they provide, call an ambulance and go to the emergency room every time it runs out! I am just not that brave. I have been in the emergency room a few times. There are easier ways to die! I will just continue on with my big load of tanks and do the best that I can. Arrrgh! I use a Companion at rehab. It would last a little longer than the Marathon. The Marathon, however, will go to pulse when resting and that saves gas. It is easier for me to handle, too. I went to church today with 1 E tank and 3 M6 tanks. I have one regulator which will go to pulse at higher flow and that saves a little. I can use pulse when I am just sitting. I am waiting for the higher dose prednisone to kick in so that I will have more energy to begin a new fight with all these execunuts. Thanks Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong. > I just got a letter from Cigna to let me know that I have been approved for liquid....one stationary liquid (the mother ship) and one portable. So at 7-8 lpm the Marathon will last about 1 1/2 hours. After all the phone calls, all the e-mails and my doctor taking his day off to jump through hoops for me. This is it. > So, I will have to stick with compressed tanks which do not even have high flow. I have one regulator that goes to 6 and with the oxymizer it will be the same as 7 1/2. Going to look on e-bay for a pack mule! > Hugs, Joyce D.> PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA > 2 COR. 12:10 ....when I am weak, then I am strong. > > > > > > > ---------------------------------> Don't let your dream ride pass you by. Make it a reality with Yahoo! Autos.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2007 Report Share Posted September 23, 2007 Donna, I did find a high flow regulator here. I didn't realize it went so high. Yeah! Of course that empties even the E tank really fast. I am going to ask about a mask. My nose is so sore! I tried keeping the concentrator on 7, but it lets my 02 drop to 60's and 70's. I can turn it down when I am just sitting, but I would need a remote control for that. 's husband is going to invent a remote for the concentrator. I pray him God speed! I got a Rollator, then got a bag for my E tank like goes on the back of a wheelchair...it fits on the front of the Rollator. I put M6 tanks in the little basket for back up. That gets me through the grocery store or church. I can't go anywhere by myself anymore. I hate that! I may get brave and try it. It is just so overwhelming. Gwynne does it....so I should be able to also. You are in my thoughts and prayers. I hope you have good support. My husband is so helpful and kind. I have a few really good friends. I am blessed. Thanks for the information. We learn so much from each other! Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong.>> Hi Joyce, > They make regulators that go up to 15 liters. Has your doctor requested a> hi-flow regulator for you? I would have them call and get that. My oxygen> supply company didn't want to give me the portable I needed but my doc> office and my insurance (case manager) bugs them till, I now have a> concentrator, 8-e bottles,2-m60 bottles, and a liquid tank in the house that> gets filled once a month. It is so I can walk in the house I need 10 plus> liters on the hi-ox mask to walk. I'm going to call about a high flow> regulator for the tanks cause sometimes I have to walk some and 8liters with> the hi-ox mask doesn't work for me anymore. The hi-ox mask can be a pain as> it has a bag in front and keeps the air flowing at 100% oxygen. You may want> to talk to your doc about the hi-ox mask. It has helped me, thanks to the> transplant doctor telling me about it, I can now walk around the house some> without struggle and sats dropping into the 70's, yippee. > > DOnna> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2007 Report Share Posted September 23, 2007 Joyce D. Execunuts.....great word!!!!I'm sorry that you are having so much grief with the o2. Z fibriotic NSIP/05 Z fibriotic NSIP/o5/PA Potter, reader,carousel lover and MomMom to Darah “I’m gonna be iron like a lion in Zion” Bob Marley Joyce wrote: P. Thanks for the info. My fight is not over. I am so mad. For myself and for the thousands of people confined to thier homes and some with no 02 at all. If I had the nerve and the money for copay.......I would go out with what they provide, call an ambulance and go to the emergency room every time it runs out! I am just not that brave. I have been in the emergency room a few times. There are easier ways to die! I will just continue on with my big load of tanks and do the best that I can. Arrrgh! I use a Companion at rehab. It would last a little longer than the Marathon. The Marathon, however, will go to pulse when resting and that saves gas. It is easier for me to handle, too. I went to church today with 1 E tank and 3 M6 tanks. I have one regulator which will go to pulse at higher flow and that saves a little. I can use pulse when I am just sitting. I am waiting for the higher dose prednisone to kick in so that I will have more energy to begin a new fight with all these execunuts. Thanks Hugs, Joyce D. PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong. > I just got a letter from Cigna to let me know that I have been approved for liquid....one stationary liquid (the mother ship) and one portable. So at 7-8 lpm the Marathon will last about 1 1/2 hours. After all the phone calls, all the e-mails and my doctor taking his day off to jump through hoops for me. This is it. > So, I will have to stick with compressed tanks which do not even have high flow. I have one regulator that goes to 6 and with the oxymizer it will be the same as 7 1/2. Going to look on e-bay for a pack mule! > Hugs, Joyce D. > PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA > 2 COR. 12:10 ....when I am weak, then I am strong. > > > > > > > --------------------------------- > Don't let your dream ride pass you by. Make it a reality with Yahoo! Autos. > No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.5.488 / Virus Database: 269.13.28/1023 - Release Date: 9/22/2007 1:27 PM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2007 Report Share Posted September 24, 2007 , One reason that I keep beating this dead horse is that all of you are involved. The time will come (probably) when all of these battles that some of us are fighting now will be your fight. Insurances are continuing to cut services because of greed. Medicare is being crippled by people who have no legal right to it. So there are cuts there too. Unless you are a close relative of Bill Gates......you and I and everyone here are going to be pressed to have our medical needs met. I thank God every day for this site and for all of you. What a great place to learn. There really is strength in numbers. Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong.> > > I just got a letter from Cigna to let me know that I have been > > approved for liquid....one stationary liquid (the mother ship) and one > > portable. So at 7-8 lpm the Marathon will last about 1 1/2 hours. > > After all the phone calls, all the e-mails and my doctor taking his > > day off to jump through hoops for me. This is it.> > > So, I will have to stick with compressed tanks which do not even > > have high flow. I have one regulator that goes to 6 and with the > > oxymizer it will be the same as 7 1/2. Going to look on e-bay for a > > pack mule!> > > Hugs, Joyce D.> > > PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA> > > 2 COR. 12:10 ....when I am weak, then I am strong.> > >> > >> > >> > >> > >> > >> > > ---------------------------------> > > Don't let your dream ride pass you by. Make it a reality with Yahoo! > > Autos.> > >> >> > > >> >------------------------------------------------------------------------> >> >No virus found in this incoming message.> >Checked by AVG Free Edition. > >Version: 7.5.488 / Virus Database: 269.13.28/1023 - Release Date: 9/22/2007 1:27 PM> > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2007 Report Share Posted September 24, 2007 Hi Joyce, I use a simple mask to sleep with, I am a mouth breather. Can't seem to help it when I'm sleeping. The mask is for high concentration a re breather and it will help you walking and doing things. I get 4 mask a month and of both kinds and 4 cannula. Sometimes the bags one are a little troublesome. The re breather or non re breather mask have to be used without a water bottle and I se the water bottle on the concentrator and because they didn't want to give me more tanks than the 10 a month and that wasn't enough for me to get around in and out of the house, so they decided to give me a liquid tank to use in the house when I exert. I haven't been able to get around on my own for almost 2 years now. I'm depend on my wonderful husband for everything. God knew who I needed and I thanks Him regularly for him. I have to take my concentrator when I go someplace. I have the big M60 tank that last about 3 hours in the car and we can connect a water bottle to it and that helps. There is also a cann ease that you can buy that is good for the nose. THeir number is 1-. I have also found that using a mask on top of your cannula when your sats are low helps to bring it up faster. I have a mask sitting beside me at all time, I cut the cord off and just use the mask part also used that last winter and it helps to get the cold out so many uses for the mask. I don't consider what I have lost but want I have gained, more time with hubby (love that as we were always close). Time with God,time to read and crochet and share with others. I have my good days and although sometimes that are scarce, I try to find good in the bad days and don't let that steal my joy, as your joy is your strength. God bless Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2007 Report Share Posted September 24, 2007 Donna, I read your letter to Joyce and have some questions. I use the mask also at night. One reason is because it gives my nose a rest and also I am a mouth breather at night but I did not know that you were not supposed to use a water bottle. I always make sure that mine is full. Please tell me the reasoning for this. I also will use the mask if I am needing to walk around the house etc. It is also good if there is a strong smell in the house. Sometimes dishwasher detergent will cause me to lose my breath. Lots of reasons for th mask. My dog will try to take it off of me , guess he thinks sometime is wrong when I wear it. I use a high flow cannula and tubing which cuts down on the noise in my ears/nose. Cannulas are the one thing that Apria never minds giving me.but I always have to ask for the hi-flow ones. Just curious..what setting do you have to use? I use 10L when exerting but able to only use 8L when I sit and dont talk. Talking is alot of exertion sometimes. Thanks for your letter to Joyce. You helped me. L Re: NOT great news! Hi Joyce, I use a simple mask to sleep with, I am a mouth breather. Can't seem to help it when I'm sleeping. The mask is for high concentration a re breather and it will help you walking and doing things. I get 4 mask a month and of both kinds and 4 cannula. Sometimes the bags one are a little troublesome. The re breather or non re breather mask have to be used without a water bottle and I se the water bottle on the concentrator and because they didn't want to give me more tanks than the 10 a month and that wasn't enough for me to get around in and out of the house, so they decided to give me a liquid tank to use in the house when I exert. I haven't been able to get around on my own for almost 2 years now. I'm depend on my wonderful husband for everything. God knew who I needed and I thanks Him regularly for him. I have to take my concentrator when I go someplace. I have the big M60 tank that last about 3 hours in the car and we can connect a water bottle to it and that helps. There is also a cann ease that you can buy that is good for the nose. THeir number is 1-. I have also found that using a mask on top of your cannula when your sats are low helps to bring it up faster. I have a mask sitting beside me at all time, I cut the cord off and just use the mask part also used that last winter and it helps to get the cold out so many uses for the mask. I don't consider what I have lost but want I have gained, more time with hubby (love that as we were always close). Time with God,time to read and crochet and share with others. I have my good days and although sometimes that are scarce, I try to find good in the bad days and don't let that steal my joy, as your joy is your strength. God bless Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2007 Report Share Posted September 24, 2007 , And I have questions for you! What kind of water bottle do you use....does it have a number? We are trying to rig up the old one and it does not work well. See if you can get your sweet husband to get the manufacturer and model #'s on mask, humidifier bottle, tubing and cannula. Don't you exert yourself to do this. Tell him that I said pretty please. I got an e-mail from my contact at Apria that said there wasn't anything called a high flow cannula and that my tubing would work fine. Grrrr! I pray you are having a good breathing day. Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong. >> Donna,> I read your letter to Joyce and have some questions. I use the mask also at night. One reason is because it gives my nose a rest and also I am a mouth breather at night but I did not know that you were not supposed to use a water bottle. I always make sure that mine is full.> Please tell me the reasoning for this. I also will use the mask if I am needing to walk around the house etc. It is also good if there is a strong smell in the house. Sometimes dishwasher detergent will cause me to lose my breath. Lots of reasons for th mask. My dog will try to take it off of me , guess he thinks sometime is wrong when I wear it. I use a high flow cannula and tubing which cuts down on the noise in my ears/nose. Cannulas are the one thing that Apria never minds giving me.but I always have to ask for the hi-flow ones. Just curious..what setting do you have to use? I use 10L when exerting but able to only use 8L when I sit and dont talk. Talking is alot of exertion sometimes.> Thanks for your letter to Joyce. You helped me.> L> Re: NOT great news!> > > Hi Joyce,> I use a simple mask to sleep with, I am a mouth breather. Can't seem to help it when I'm sleeping. The mask is for high concentration a re breather and it will help you walking and doing things. I get 4 mask a month and of both kinds and 4 cannula. Sometimes the bags one are a little troublesome. The re breather or non re breather mask have to be used without a water bottle and I se the water bottle on the concentrator and because they didn't want to give me more tanks than the 10 a month and that wasn't enough for me to get around in and out of the house, so they decided to give me a liquid tank to use in the house when I exert. I haven't been able to get around on my own for almost 2 years now. I'm depend on my wonderful husband for everything. God knew who I needed and I thanks Him regularly for him. I have to take my concentrator when I go someplace. I have the big M60 tank that last about 3 hours in the car and we can connect a water bottle to it and that helps. There is also a cann ease that you can buy that is good for the nose. THeir number is 1-. I have also found that using a mask on top of your cannula when your sats are low helps to bring it up faster. I have a mask sitting beside me at all time, I cut the cord off and just use the mask part also used that last winter and it helps to get the cold out so many uses for the mask.> > I don't consider what I have lost but want I have gained, more time with hubby (love that as we were always close). Time with God,time to read and crochet and share with others.> I have my good days and although sometimes that are scarce, I try to find good in the bad days and don't let that steal my joy, as your joy is your strength. > > God bless> Donna> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2007 Report Share Posted September 24, 2007 Joyce, My Apria man is coming today. He is bringing me some more hi-flo cannulas. Give me your address...I will send you one. This is ridiculous. When Tim comes home, I will have him look up all the numbers for you. We will be glad to do it. Yesterday was a better breathng day. Went to church. Tim said he stayed awake all night checking on me. Guess I gasped for air most of the night. Today not so good either. Well, I am thankful for yesterday. Oh.....it is possible to make a remote. Tim has a control person working on it right now. Their are many questions about it though, such as: does it have to be wireless....what is the lowest number and the highest number...what will be the Set Point. All things I dont understand but.....the man that is doing it for us sayss he thinks he could sell the idea to Puritan . It would be an Add-on. He has to make the protype first. Says it should be next week when I can try it. Why didnt someone think of this before..... L Re: NOT great news!> > > Hi Joyce,> I use a simple mask to sleep with, I am a mouth breather. Can't seem to help it when I'm sleeping. The mask is for high concentration a re breather and it will help you walking and doing things. I get 4 mask a month and of both kinds and 4 cannula. Sometimes the bags one are a little troublesome. The re breather or non re breather mask have to be used without a water bottle and I se the water bottle on the concentrator and because they didn't want to give me more tanks than the 10 a month and that wasn't enough for me to get around in and out of the house, so they decided to give me a liquid tank to use in the house when I exert. I haven't been able to get around on my own for almost 2 years now. I'm depend on my wonderful husband for everything. God knew who I needed and I thanks Him regularly for him. I have to take my concentrator when I go someplace. I have the big M60 tank that last about 3 hours in the car and we can connect a water bottle to it and that helps. There is also a cann ease that you can buy that is good for the nose. THeir number is 1-. I have also found that using a mask on top of your cannula when your sats are low helps to bring it up faster. I have a mask sitting beside me at all time, I cut the cord off and just use the mask part also used that last winter and it helps to get the cold out so many uses for the mask.> > I don't consider what I have lost but want I have gained, more time with hubby (love that as we were always close). Time with God,time to read and crochet and share with others.> I have my good days and although sometimes that are scarce, I try to find good in the bad days and don't let that steal my joy, as your joy is your strength. > > God bless> Donna> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2007 Report Share Posted September 24, 2007 Hi , No package yet? sent it two day express. I was thinking Sat. would count. Should be tomorrow for sure. Love and Prayers, Peggy ipf 6/04 Florida " Worry looks around, Sorry looks back, Faith looks up. " Joyce, My Apria man is coming today. He is bringing me some more hi-flo cannulas. Give me your address...I will send you one. This is ridiculous. When Tim comes home, I will have him look up all the numbers for you. We will be glad to do it. Yesterday was a better breathng day. Went to church. Tim said he stayed awake all night checking on me. Guess I gasped for air most of the night. Today not so good either. Well, I am thankful for yesterday. Oh.....it is possible to make a remote. Tim has a control person working on it right now. Their are many questions about it though, such as: does it have to be wireless....what is the lowest number and the highest number...what will be the Set Point. All things I dont understand but.....the man that is doing it for us sayss he thinks he could sell the idea to Puritan . It would be an Add-on. He has to make the protype first. Says it should be next week when I can try it. Why didnt someone think of this before..... L Re: NOT great news! > > > Hi Joyce, > I use a simple mask to sleep with, I am a mouth breather. Can't seem to help it when I'm sleeping. The mask is for high concentration a re breather and it will help you walking and doing things. I get 4 mask a month and of both kinds and 4 cannula. Sometimes the bags one are a little troublesome. The re breather or non re breather mask have to be used without a water bottle and I se the water bottle on the concentrator and because they didn't want to give me more tanks than the 10 a month and that wasn't enough for me to get around in and out of the house, so they decided to give me a liquid tank to use in the house when I exert. I haven't been able to get around on my own for almost 2 years now. I'm depend on my wonderful husband for everything. God knew who I needed and I thanks Him regularly for him. I have to take my concentrator when I go someplace. I have the big M60 tank that last about 3 hours in the car and we can connect a water bottle to it and that helps. There is also a cann ease that you can buy that is good for the nose. THeir number is 1-. I have also found that using a mask on top of your cannula when your sats are low helps to bring it up faster. I have a mask sitting beside me at all time, I cut the cord off and just use the mask part also used that last winter and it helps to get the cold out so many uses for the mask. > > I don't consider what I have lost but want I have gained, more time with hubby (love that as we were always close). Time with God,time to read and crochet and share with others. > I have my good days and although sometimes that are scarce, I try to find good in the bad days and don't let that steal my joy, as your joy is your strength. > > God bless > Donna > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2007 Report Share Posted September 24, 2007 Hi , The simple face mask you can use the water bottle, the hi-ox mask you can not use a water bottle not enough psi. The hi-ox mask have a bag in the front that every time you take a breathe you get 100% oxygen, so 10 liter is like 15 on a cannula. I used the hi-ox mask to exert when around the house and then go back on the concentrator when not. I have to constantly change my liter flow. I'm up and down for no reason. I also keep a cool wet washcloth with me at all times, if I get too warm my sats drop. The washcloth cools me down faster and keeps me cool. I use it also when going outside on hot days getting to the car. It helps and I have carried a wet washcloth with me everywhere for the last 5 years. I also carry my water jug 32 oz with me everywhere. The hi-ox mask can not be worn for days on end it can cause oxygen toxicity, but the transplant doctor said I would have to wear it for 3 days straight for that to happen. Are you considering a transplant? Or have you thought about the transtracheal oxygen , it is a procedure where the TTO catheter goes in your trachea and you use less oxygen and I think it may be easier to balance out. If I can't do a transplant I'm thinking about this. Just sitting around I use 4.5 -5 liters sometimes more. Moving and exerting for me are bad at times I use 10 with the hi-ox mask. When I walked at Un of Penn for the second 6- minute walk test, I started on 15liters and dropped so they had to up me to 20 liters that is like 30 liters on a cannula. But just upping the cannula for me doesn't do it. For some reason, it doesn't help but the bag one works great. Because every time you take a breath you are getting a 100% oxygen not 22%, makes a difference. Check with your doctor about these mask. I don't think apria carries them. I called apria here as I was thinking about changing until, I finally got more air to move around. I hope this information helps. Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2007 Report Share Posted September 24, 2007 Joyce, You want the high flow water bottle, the ones with the black top will blow off and stop your air flow. Mine are white topped and are for up to 10lf. They may have others for higher flows. Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2007 Report Share Posted September 24, 2007 Donna, I have been using my old water bottles, but they are whistling and sounding like they are going to explode. Ha! Hopefully I will get the high flow bottle in a few days (sure, I believe that). It was whistling really loud the other night and my husband went in to adjust it. He turned my 02 off. I was almost asleep and I sat straight up. I was so mad at him. Poor guy. I can't stand not using it, it makes my nose bleed. I am going to talk to the rehab nurses about the high flow masks. Thanks has been used in jewelry and trade since ancient times.>> Joyce, > You want the high flow water bottle, the ones with the black top will blow> off and stop your air flow. Mine are white topped and are for up to 10lf.> They may have others for higher flows. > > > Donna> Quote Link to comment Share on other sites More sharing options...
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