Happy Birthday

[Guest guest]

I'm sneaking in just barely under the wire, to

wish you - Leanne and Vicky - a Happy Birthday!

I hope it was a special day full of great

memories for both of you! Birthday love and hugs!!!

, Ashli is adorable - what a sweet smile.

Thanks for the darling photos, and ,

speaking of contageous smiles!

and , How are you two doing? Any change

in status?

Joyce, yes, the driving force is not to make life more

convenient for the few, although I suspect there are many

more of us needing high flow & TRYING to stay active

than the suppliers or ins. co's would admit. It's so frustrating.

6L continuous doesn't cut it for me anymore with movement,

so that rules out ALL concentrators from what I understand.

I'm confused -- a regulator goes on the compressed air

cylinders, right? And some regulators go to 15, & maybe

some to 25?

My biggest problem currently is at home trying to get to

the liquid reservoir from wherever I've been " resting " to

turn it up before my sats drop. Isn't happening. Again, from

what I've gathered (maybe incorrectly) my next move at

home will probably be to get more reservoirs and hook

them together for a higher flow. I'm moving into 12-15

territory with exertion - really am there already - so I'll also

have to stop using a humidifier. Even the so-called " high

flow " ones really don't work well at 6L or 8L. And my nose

is a disaster.

Beyond doing that, the next thing is probably have to

be a wheelchair, a thought I detest. But like you, I'm not

ready to stay housebound. I guess now is when I start

doing the research, though, on it, & scooters & chair-walkers.

It is getting (or already is) too much for me to cart around my

Helios Companion on my shoulder, although fortunately I

did convince my supplier to give me four portable tanks for

when I'm out, which I sometimes carry in a cart. If I'm at the

doc, I use their compressed 02. Sounds like maybe I'm on the

highest flow in this group.

Does the oxymyzer work with cylinders?

Finally, what's a converter - is it the same thing

as a concentrator, or a regular, or neither? I'm

feeling a bit overwhelmed.

Hugs and blessings,

Gwynne IPF 7/04, listed for single-lung tx 3/07 TX