Re: New Hashi's - What to ask, how to treat?

[Guest guest]

welcome marina - first off - goodd for you for getting a new dr - make sure you tell the new one to get your old chart from that "other" dr -- write down your questions so you wwon't forget. some on here can better answer your specific questions b/c i'm fairly new aalso at this -- i would aalso suggest going to a specialist - endocrinologist - if you are diagnosed with a thyroid problem. i have really high antibody #'s and was rather interested to find that the dr's are not really concerned about the #'s -- here are mine for example

TSH 4.27

TPO 746

thyrogobulin >3000

she said regardless of treatment the odds were slim to none that those #'s wwould decrease or go away so they treat the symptoms - my neurologist backed that up as well - i'm a RN so i don't just take things as they are told to me (LOL). i do not know that if you treat hashi's early if it will prevent hypothyroid - mine went backwards i think - i was dx'd in 1998 with hypoT due to infertility and the weight gain like you mentttioned. anddd like you said - you know yourself - so never forget that - i know when i'm being lazy vs sick too or sick and playing it to the hilt -- good luck to you and i'm sure you wwill get more feedback on here about this.

visit our website

www.geocities.com/tanyarn96/countryside.html

www.poncetihomes.com

-- New Hashi's - What to ask, how to treat?

Hi All,I've really enjoyed reading thru your postings over the past couple days; it's been so helpful. I am a 28-year-old woman recently diagnosed with Hashi's by my zero-bedside-manner doctor. (She called with my lab results and said, "Well, looks like you've got autoimmune thyroiditis. You've got a follow-up appointment scheduled in a couple months, right? Ok, see you then, bye.") Needless to say, I was a little blindsided and completely unprepared to ask any intelligent questions.I got a copy of all my lab results and am scheduled to meet with a new doctor next Monday. So, I'm trying to get all the info I can in preparation for that meeting.Here are my relevant lab results:T4 Free = 0.8 (0.58-1.64)TSH = 2.02 (0.34-5.60)Thyroglobulin Autoantibodies = 136 (<60)Thyroid Peroxidase = 1256 (<60)My thyroid ultrasound showed no nodules but did appear heterogeneous.I've been suffering from abnormal fatigue, weight gain, and depression/fogginess over the past month or so. Of course, it's possible that these symptoms are due to my own laziness but I really feel like there's something more going on here - I'm just not "myself." Do these symptoms occur even if you aren't technically hypo/hyper thyroid? i.e. Is can Hashi's cause this if there aren't TSH fluctuations?A lot of websites say that doctors are reluctant to medicate for Hashi's if your TSH levels are "normal." What kind of treatment do you guys think is appropriate for Hashi's in my case? What should I request from my new doctor? Is there a way to combat the antibodies at this stage and decrease the risk of developing hypo/hyper thyroid?Also, are my antibody levels outrageously high? Are they normal for someone with Hashi's? I can't find a good point of reference. When I saw 1256 when <60 was "normal" I got a little freaked out. Does this mean that the disease is moving aggressively? Sorry to write a novel here - as you all know it's a little overwhelming at first. Thanks so much for your time.-Marina

[Guest guest]

Hi Marina, welcome!

Hashi's with antibodies as high as yours and a Free T4 as low (and I am

sure if they had tested Free T3, it would be so low it would be scary)

can definitely cause all your symptoms.

Some of us just don't get super high TSH. I never did. Mine got to 5.6

at its highest, after one year of being so sick I was an invalid. The

TSH is far from reliable. However, doctors know the average for a

healthy person is 1.0, so at 2.02 yours is altered already. You are

hypothyroid. Anyone with symptoms plus antibodies or symptoms plus Free

T3 and/or Free T4 not at the top of the normal range is hypothyroid.

You need to be started on medication - the top docs know that. The

choices are natural thyroid (Armour), synthetic T4 (Synthroid, Levoxyl),

a combo of synthetic T3 and T4 (Thyrolar, or taking Synthroid and

Cytomel) or synthetic T3 (Cytomel). Most patients do better on Armour

but odds are you will be put on Synthroid. You are already hypothyroid,

but treating it right now will stop the physical damage to the thyroid

gland from the antibodies.

My antibodies have been high for almost 10 years now, so I don't think a

high level means it is moving more aggressively. I just think it means

you are gonna have a bad fatigue that feels like the flu, I always feel

like that when mine are higher than usual. Do you have that too?

Don't worry about writing a lot, write as much as you need.

Jan

marinara0404 wrote:

>Hi All,

>

>I've really enjoyed reading thru your postings over the past couple

>days; it's been so helpful. I am a 28-year-old woman recently

>diagnosed with Hashi's by my zero-bedside-manner doctor. (She called

>with my lab results and said, " Well, looks like you've got

>autoimmune thyroiditis. You've got a follow-up appointment scheduled

>in a couple months, right? Ok, see you then, bye. " ) Needless to say,

>I was a little blindsided and completely unprepared to ask any

>intelligent questions.

>

>I got a copy of all my lab results and am scheduled to meet with a

>new doctor next Monday. So, I'm trying to get all the info I can in

>preparation for that meeting.

>

>Here are my relevant lab results:

>T4 Free = 0.8 (0.58-1.64)

>TSH = 2.02 (0.34-5.60)

>Thyroglobulin Autoantibodies = 136 (<60)

>Thyroid Peroxidase = 1256 (<60)

>My thyroid ultrasound showed no nodules but did appear heterogeneous.

>

>I've been suffering from abnormal fatigue, weight gain, and

>depression/fogginess over the past month or so. Of course, it's

>possible that these symptoms are due to my own laziness but I really

>feel like there's something more going on here - I'm just

>not " myself. " Do these symptoms occur even if you aren't technically

>hypo/hyper thyroid? i.e. Is can Hashi's cause this if there aren't

>TSH fluctuations?

>

>A lot of websites say that doctors are reluctant to medicate for

>Hashi's if your TSH levels are " normal. " What kind of treatment do

>you guys think is appropriate for Hashi's in my case? What should I

>request from my new doctor? Is there a way to combat the antibodies

>at this stage and decrease the risk of developing hypo/hyper thyroid?

>

>Also, are my antibody levels outrageously high? Are they normal for

>someone with Hashi's? I can't find a good point of reference. When I

>saw 1256 when <60 was " normal " I got a little freaked out. Does this

>mean that the disease is moving aggressively?

>

>Sorry to write a novel here - as you all know it's a little

>overwhelming at first. Thanks so much for your time.

>-Marina

>

>

>

[Guest guest]

Hi Marina, welcome!

Hashi's with antibodies as high as yours and a Free T4 as low (and I am

sure if they had tested Free T3, it would be so low it would be scary)

can definitely cause all your symptoms.

Some of us just don't get super high TSH. I never did. Mine got to 5.6

at its highest, after one year of being so sick I was an invalid. The

TSH is far from reliable. However, doctors know the average for a

healthy person is 1.0, so at 2.02 yours is altered already. You are

hypothyroid. Anyone with symptoms plus antibodies or symptoms plus Free

T3 and/or Free T4 not at the top of the normal range is hypothyroid.

You need to be started on medication - the top docs know that. The

choices are natural thyroid (Armour), synthetic T4 (Synthroid, Levoxyl),

a combo of synthetic T3 and T4 (Thyrolar, or taking Synthroid and

Cytomel) or synthetic T3 (Cytomel). Most patients do better on Armour

but odds are you will be put on Synthroid. You are already hypothyroid,

but treating it right now will stop the physical damage to the thyroid

gland from the antibodies.

My antibodies have been high for almost 10 years now, so I don't think a

high level means it is moving more aggressively. I just think it means

you are gonna have a bad fatigue that feels like the flu, I always feel

like that when mine are higher than usual. Do you have that too?

Don't worry about writing a lot, write as much as you need.

Jan

marinara0404 wrote:

>Hi All,

>

>I've really enjoyed reading thru your postings over the past couple

>days; it's been so helpful. I am a 28-year-old woman recently

>diagnosed with Hashi's by my zero-bedside-manner doctor. (She called

>with my lab results and said, " Well, looks like you've got

>autoimmune thyroiditis. You've got a follow-up appointment scheduled

>in a couple months, right? Ok, see you then, bye. " ) Needless to say,

>I was a little blindsided and completely unprepared to ask any

>intelligent questions.

>

>I got a copy of all my lab results and am scheduled to meet with a

>new doctor next Monday. So, I'm trying to get all the info I can in

>preparation for that meeting.

>

>Here are my relevant lab results:

>T4 Free = 0.8 (0.58-1.64)

>TSH = 2.02 (0.34-5.60)

>Thyroglobulin Autoantibodies = 136 (<60)

>Thyroid Peroxidase = 1256 (<60)

>My thyroid ultrasound showed no nodules but did appear heterogeneous.

>

>I've been suffering from abnormal fatigue, weight gain, and

>depression/fogginess over the past month or so. Of course, it's

>possible that these symptoms are due to my own laziness but I really

>feel like there's something more going on here - I'm just

>not " myself. " Do these symptoms occur even if you aren't technically

>hypo/hyper thyroid? i.e. Is can Hashi's cause this if there aren't

>TSH fluctuations?

>

>A lot of websites say that doctors are reluctant to medicate for

>Hashi's if your TSH levels are " normal. " What kind of treatment do

>you guys think is appropriate for Hashi's in my case? What should I

>request from my new doctor? Is there a way to combat the antibodies

>at this stage and decrease the risk of developing hypo/hyper thyroid?

>

>Also, are my antibody levels outrageously high? Are they normal for

>someone with Hashi's? I can't find a good point of reference. When I

>saw 1256 when <60 was " normal " I got a little freaked out. Does this

>mean that the disease is moving aggressively?

>

>Sorry to write a novel here - as you all know it's a little

>overwhelming at first. Thanks so much for your time.

>-Marina

>

>

>

[Guest guest]

Hi Marina, welcome!

Hashi's with antibodies as high as yours and a Free T4 as low (and I am

sure if they had tested Free T3, it would be so low it would be scary)

can definitely cause all your symptoms.

Some of us just don't get super high TSH. I never did. Mine got to 5.6

at its highest, after one year of being so sick I was an invalid. The

TSH is far from reliable. However, doctors know the average for a

healthy person is 1.0, so at 2.02 yours is altered already. You are

hypothyroid. Anyone with symptoms plus antibodies or symptoms plus Free

T3 and/or Free T4 not at the top of the normal range is hypothyroid.

You need to be started on medication - the top docs know that. The

choices are natural thyroid (Armour), synthetic T4 (Synthroid, Levoxyl),

a combo of synthetic T3 and T4 (Thyrolar, or taking Synthroid and

Cytomel) or synthetic T3 (Cytomel). Most patients do better on Armour

but odds are you will be put on Synthroid. You are already hypothyroid,

but treating it right now will stop the physical damage to the thyroid

gland from the antibodies.

My antibodies have been high for almost 10 years now, so I don't think a

high level means it is moving more aggressively. I just think it means

you are gonna have a bad fatigue that feels like the flu, I always feel

like that when mine are higher than usual. Do you have that too?

Don't worry about writing a lot, write as much as you need.

Jan

marinara0404 wrote:

>Hi All,

>

>I've really enjoyed reading thru your postings over the past couple

>days; it's been so helpful. I am a 28-year-old woman recently

>diagnosed with Hashi's by my zero-bedside-manner doctor. (She called

>with my lab results and said, " Well, looks like you've got

>autoimmune thyroiditis. You've got a follow-up appointment scheduled

>in a couple months, right? Ok, see you then, bye. " ) Needless to say,

>I was a little blindsided and completely unprepared to ask any

>intelligent questions.

>

>I got a copy of all my lab results and am scheduled to meet with a

>new doctor next Monday. So, I'm trying to get all the info I can in

>preparation for that meeting.

>

>Here are my relevant lab results:

>T4 Free = 0.8 (0.58-1.64)

>TSH = 2.02 (0.34-5.60)

>Thyroglobulin Autoantibodies = 136 (<60)

>Thyroid Peroxidase = 1256 (<60)

>My thyroid ultrasound showed no nodules but did appear heterogeneous.

>

>I've been suffering from abnormal fatigue, weight gain, and

>depression/fogginess over the past month or so. Of course, it's

>possible that these symptoms are due to my own laziness but I really

>feel like there's something more going on here - I'm just

>not " myself. " Do these symptoms occur even if you aren't technically

>hypo/hyper thyroid? i.e. Is can Hashi's cause this if there aren't

>TSH fluctuations?

>

>A lot of websites say that doctors are reluctant to medicate for

>Hashi's if your TSH levels are " normal. " What kind of treatment do

>you guys think is appropriate for Hashi's in my case? What should I

>request from my new doctor? Is there a way to combat the antibodies

>at this stage and decrease the risk of developing hypo/hyper thyroid?

>

>Also, are my antibody levels outrageously high? Are they normal for

>someone with Hashi's? I can't find a good point of reference. When I

>saw 1256 when <60 was " normal " I got a little freaked out. Does this

>mean that the disease is moving aggressively?

>

>Sorry to write a novel here - as you all know it's a little

>overwhelming at first. Thanks so much for your time.

>-Marina

>

>

>

[Guest guest]

I have a comment on eating... I know many of us are afraid of food, because of the fear of weight gain, and others because they just don't have a feeling of hunger.

But you really do have to eat, hungry or not, to allow your body to have the energy that it needs available in the blood stream to allow for T4 to T3 conversion. The best way to accomplish that is by eating small amounts, often... Mini Meals

Try to arrange your day so that you can have something to eat every three or four hours throughout the day.

What are the advantages to that?

Better energy level...

Better T4 to T3 conversion...

Less weight gain, assuming that you've set up your mini meals correctly, and as your meds become optimized, weight loss.

My switching over to mini meals last October has made me lose weight (with no change in the calories I eat in a day) and the BEST of all things is that after 20 or more years of heart burn, acid indigestion and acid reflux ALL of that has gone away! Simply by taking what I used to eat in one or two big meals a day and dividing it up into 5 to 7 little meals a day. Calories are still running around 2200 a day... I'm not on a starvation diet at all...

Since I stopped my Bedxercises when my leg got funky.. I did gain some back.. but that has stabilized and I'm not gaining.. I consider that pretty good. Once I'm able to determine what is wrong with my leg and know for sure that activity is safe (I fear a blood clot and know that physical activity could cause it to break loose and migrate, I don't want that) I have absolutely no doubt in my mind that I'll start dropping weight again.

Topper ()

On Mon, 26 Jul 2004 16:55:26 -0000 "marinara0404" writes:

Jan, it's so helpful to hear about your experience and the unreliability of TSH and its "normal" range. It is such a relief to learn that these symptoms are not all in my head. I definitely have the fatigue, and I've been sleeping for really long periods recently. Last week I took a day off from work and slept around 18 hours. And I napped for 5 hours both on Sat. and Sun. (after full nights of sleep). I also have no appetite and feel a constant bit of nausea, as well as have some ringing and throbbing in my ears. I don't know if those last 3 are related to the thyroid? I just feel like my body is not happy overall.I'll keep you posted on what happens with the T3 and my doctor's recommendation about medication. I know now that I need to ask for treatment now - not a "wait and see" approach, regardless of whether my TSH is "normal." Counting down the days till my appointment next Monday...Thanks again so much.-Marina

[Guest guest]

I have a comment on eating... I know many of us are afraid of food, because of the fear of weight gain, and others because they just don't have a feeling of hunger.

But you really do have to eat, hungry or not, to allow your body to have the energy that it needs available in the blood stream to allow for T4 to T3 conversion. The best way to accomplish that is by eating small amounts, often... Mini Meals

Try to arrange your day so that you can have something to eat every three or four hours throughout the day.

What are the advantages to that?

Better energy level...

Better T4 to T3 conversion...

Less weight gain, assuming that you've set up your mini meals correctly, and as your meds become optimized, weight loss.

My switching over to mini meals last October has made me lose weight (with no change in the calories I eat in a day) and the BEST of all things is that after 20 or more years of heart burn, acid indigestion and acid reflux ALL of that has gone away! Simply by taking what I used to eat in one or two big meals a day and dividing it up into 5 to 7 little meals a day. Calories are still running around 2200 a day... I'm not on a starvation diet at all...

Since I stopped my Bedxercises when my leg got funky.. I did gain some back.. but that has stabilized and I'm not gaining.. I consider that pretty good. Once I'm able to determine what is wrong with my leg and know for sure that activity is safe (I fear a blood clot and know that physical activity could cause it to break loose and migrate, I don't want that) I have absolutely no doubt in my mind that I'll start dropping weight again.

Topper ()

On Mon, 26 Jul 2004 16:55:26 -0000 "marinara0404" writes:

Jan, it's so helpful to hear about your experience and the unreliability of TSH and its "normal" range. It is such a relief to learn that these symptoms are not all in my head. I definitely have the fatigue, and I've been sleeping for really long periods recently. Last week I took a day off from work and slept around 18 hours. And I napped for 5 hours both on Sat. and Sun. (after full nights of sleep). I also have no appetite and feel a constant bit of nausea, as well as have some ringing and throbbing in my ears. I don't know if those last 3 are related to the thyroid? I just feel like my body is not happy overall.I'll keep you posted on what happens with the T3 and my doctor's recommendation about medication. I know now that I need to ask for treatment now - not a "wait and see" approach, regardless of whether my TSH is "normal." Counting down the days till my appointment next Monday...Thanks again so much.-Marina

[Guest guest]

Hi Marina,

I have Hashi's too...or autoimmune thyroiditis. They may have

tested you when your TSH levels were in the " normal " range. You are

not imagining your symptoms. Make sure you tell your doctor how bad

you're feeling so he gets the full picture.

darringirl

> welcome marina - first off - goodd for you for getting a new dr -

make sure

> you tell the new one to get your old chart from that " other " dr --

write

> down your questions so you wwon't forget. some on here can better

answer

> your specific questions b/c i'm fairly new aalso at this -- i

would aalso

> suggest going to a specialist - endocrinologist - if you are

diagnosed with

> a thyroid problem. i have really high antibody #'s and was rather

interested

> to find that the dr's are not really concerned about the #'s --

here are

> mine for example

>

> TSH 4.27

> TPO 746

> thyrogobulin >3000

>

> she said regardless of treatment the odds were slim to none that

those #'s

> wwould decrease or go away so they treat the symptoms - my

neurologist

> backed that up as well - i'm a RN so i don't just take things as

they are

> told to me (LOL). i do not know that if you treat hashi's early if

it will

> prevent hypothyroid - mine went backwards i think - i was dx'd in

1998 with

> hypoT due to infertility and the weight gain like you mentttioned.

anddd

> like you said - you know yourself - so never forget that - i know

when i'm

> being lazy vs sick too or sick and playing it to the hilt -- good

luck to

> you and i'm sure you wwill get more feedback on here about this.

>

>

> visit our website

> www.geocities.com/tanyarn96/countryside.html

>

www.poncetihomes.com

>

> -- New Hashi's - What to ask,

how to

> treat?

>

> Hi All,

>

> I've really enjoyed reading thru your postings over the past

couple

> days; it's been so helpful. I am a 28-year-old woman recently

> diagnosed with Hashi's by my zero-bedside-manner doctor. (She

called

> with my lab results and said, " Well, looks like you've got

> autoimmune thyroiditis. You've got a follow-up appointment

scheduled

> in a couple months, right? Ok, see you then, bye. " ) Needless to

say,

> I was a little blindsided and completely unprepared to ask any

> intelligent questions.

>

> I got a copy of all my lab results and am scheduled to meet with a

> new doctor next Monday. So, I'm trying to get all the info I can

in

> preparation for that meeting.

>

> Here are my relevant lab results:

> T4 Free = 0.8 (0.58-1.64)

> TSH = 2.02 (0.34-5.60)

> Thyroglobulin Autoantibodies = 136 (<60)

> Thyroid Peroxidase = 1256 (<60)

> My thyroid ultrasound showed no nodules but did appear

heterogeneous.

>

> I've been suffering from abnormal fatigue, weight gain, and

> depression/fogginess over the past month or so. Of course, it's

> possible that these symptoms are due to my own laziness but I

really

> feel like there's something more going on here - I'm just

> not " myself. " Do these symptoms occur even if you aren't

technically

> hypo/hyper thyroid? i.e. Is can Hashi's cause this if there aren't

> TSH fluctuations?

>

> A lot of websites say that doctors are reluctant to medicate for

> Hashi's if your TSH levels are " normal. " What kind of treatment do

> you guys think is appropriate for Hashi's in my case? What should

I

> request from my new doctor? Is there a way to combat the

antibodies

> at this stage and decrease the risk of developing hypo/hyper

thyroid?

>

> Also, are my antibody levels outrageously high? Are they normal

for

> someone with Hashi's? I can't find a good point of reference. When

I

> saw 1256 when <60 was " normal " I got a little freaked out. Does

this

> mean that the disease is moving aggressively?

>

> Sorry to write a novel here - as you all know it's a little

> overwhelming at first. Thanks so much for your time.

> -Marina

>

>

>

[Guest guest]

The mini-meals often during the day and eating meat protein is what I was told to do after my last hospitalization to regain health and build up my immune system.I am still struggling with eating more than once or twice a day, and even though better....my immune system is still very fragile---hence two sinus infections in the last month or so, after I dared ventured out to Walmart where there are PEOPLE!.

Re: Re: New Hashi's - What to ask, how to treat?

I have a comment on eating... I know many of us are afraid of food, because of the fear of weight gain, and others because they just don't have a feeling of hunger.

But you really do have to eat, hungry or not, to allow your body to have the energy that it needs available in the blood stream to allow for T4 to T3 conversion. The best way to accomplish that is by eating small amounts, often... Mini Meals

Try to arrange your day so that you can have something to eat every three or four hours throughout the day.

What are the advantages to that?

Better energy level...

Better T4 to T3 conversion...

Less weight gain, assuming that you've set up your mini meals correctly, and as your meds become optimized, weight loss.

My switching over to mini meals last October has made me lose weight (with no change in the calories I eat in a day) and the BEST of all things is that after 20 or more years of heart burn, acid indigestion and acid reflux ALL of that has gone away! Simply by taking what I used to eat in one or two big meals a day and dividing it up into 5 to 7 little meals a day. Calories are still running around 2200 a day... I'm not on a starvation diet at all...

Since I stopped my Bedxercises when my leg got funky.. I did gain some back.. but that has stabilized and I'm not gaining.. I consider that pretty good. Once I'm able to determine what is wrong with my leg and know for sure that activity is safe (I fear a blood clot and know that physical activity could cause it to break loose and migrate, I don't want that) I have absolutely no doubt in my mind that I'll start dropping weight again.

Topper ()

[Guest guest]

The mini-meals often during the day and eating meat protein is what I was told to do after my last hospitalization to regain health and build up my immune system.I am still struggling with eating more than once or twice a day, and even though better....my immune system is still very fragile---hence two sinus infections in the last month or so, after I dared ventured out to Walmart where there are PEOPLE!.

Re: Re: New Hashi's - What to ask, how to treat?

I have a comment on eating... I know many of us are afraid of food, because of the fear of weight gain, and others because they just don't have a feeling of hunger.

But you really do have to eat, hungry or not, to allow your body to have the energy that it needs available in the blood stream to allow for T4 to T3 conversion. The best way to accomplish that is by eating small amounts, often... Mini Meals

Try to arrange your day so that you can have something to eat every three or four hours throughout the day.

What are the advantages to that?

Better energy level...

Better T4 to T3 conversion...

Less weight gain, assuming that you've set up your mini meals correctly, and as your meds become optimized, weight loss.

My switching over to mini meals last October has made me lose weight (with no change in the calories I eat in a day) and the BEST of all things is that after 20 or more years of heart burn, acid indigestion and acid reflux ALL of that has gone away! Simply by taking what I used to eat in one or two big meals a day and dividing it up into 5 to 7 little meals a day. Calories are still running around 2200 a day... I'm not on a starvation diet at all...

Since I stopped my Bedxercises when my leg got funky.. I did gain some back.. but that has stabilized and I'm not gaining.. I consider that pretty good. Once I'm able to determine what is wrong with my leg and know for sure that activity is safe (I fear a blood clot and know that physical activity could cause it to break loose and migrate, I don't want that) I have absolutely no doubt in my mind that I'll start dropping weight again.

Topper ()

[Guest guest]

Yes! The ear ringing is related to the thyroid, I get that too when I am

really bad.

You are right, getting treatment now, even if you didn't have any

symptoms, would be worth it just to keep your thyroid from getting all

messed up. An ultrassound of mine is not a pretty sight - the techs

write that it is " hard, fibrous, multinodular, and enlarged " . It sounds

gross and when it swells and turns into a visible goiter, it is not

pretty or comfortable either. I need 3 pillows to sleep, and a straw to

drink any liquid. Oh yeah, and a neckerchief or turtleneck to leave the

house.

In your case, you are also getting your life back. Another reason is you

can see there is a real rule in newsgroups:

" The longer you went untreated with symptoms, the harder it is to ever

get stable later. "

It is always people like me, who reached the worst states of this

disease, that are struggling, can't find the right dosage, etc.

Jan

marinara0404 wrote:

>Jan, it's so helpful to hear about your experience and the

>unreliability of TSH and its " normal " range.

>

>It is such a relief to learn that these symptoms are not all in my

>head. I definitely have the fatigue, and I've been sleeping for

>really long periods recently. Last week I took a day off from work

>and slept around 18 hours. And I napped for 5 hours both on Sat. and

>Sun. (after full nights of sleep). I also have no appetite and feel

>a constant bit of nausea, as well as have some ringing and throbbing

>in my ears. I don't know if those last 3 are related to the thyroid?

>I just feel like my body is not happy overall.

>

>I'll keep you posted on what happens with the T3 and my doctor's

>recommendation about medication. I know now that I need to ask for

>treatment now - not a " wait and see " approach, regardless of whether

>my TSH is " normal. " Counting down the days till my appointment next

>Monday...

>

>Thanks again so much.

>-Marina

>

>

>