Guest guest Posted September 15, 2007 Report Share Posted September 15, 2007 Hey gang, I do so appreciate your concern for , and your quick responses to praying for her right now. i wish I were at liberty to discuss it. I can tell you that she is under quite a bit of stress lately, and that she is really feeling it. Especially juggling, health, work, and just issues. As for talking to , we are very close, and I am on the phone with her usually once a day discussing either HPS Network business or something going on. She is a great friend and confidant, and I have come to value her knowledge and expertise on many levels. She has conveyed that she wishes that she had time to check in right now, and is happy that you all are thinking of her. She does have a blog at www.heatherkirkwood.blogspot.com although again she is a little behind with that too, I think. Take care and have a great weekend. Tillman PF/hermansky Pudlak Syndrome 2002 NC www.myspace.com/karenshpskorner _______________________________________________________________ Tillman, Regional Coordinator, Mid Atlantic-USAHermansky-Pudlak Syndrome Network IncMy NC phone:1 NY home office 1. / fax * HPS is a genetic disorder that is characterized by albinism, visual impairment, and a bleeding problem.Some genetic mutations can include colitis and pulmonary fibrosis.* http://www.hpsnetwork.org One South Road Oyster Bay, NY 11771 Quote Link to comment Share on other sites More sharing options...
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