Re: Lurker Alert/Living With IPF Seminar

[Guest guest]

Kathy,

I stayed stable most of the time over my ten year run. I had one really bad downward drop after about 2 years. Then I stayed stable for a long time. Always had 02 and suffered the misery of meds,etc. About 3 years ago I began deteriorating and we began the transplant evaluation. I was rejected due to a blood clotting problem related to Lupus. It has been a slippery slope since.

I am so thankful for all the good things that happened during those years, including 4 more grandbabies. God is good.

So good to have you here. We learn so much from each other.

Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong.

>> Joyce> Thank you. I do feel like I "know" many of you. I am so sorry that, on top > of everything else, you have to struggle with Apria. I wonder what the > lesson is when we have to deal with doctors, insurance companies and suppliers > when we fight for every breath.> > This past February I was able to buy a portable oxygen concentrator, poc. > My Inogen and I have done some traveling since then. I used it for a month to > make sure we were a good match and then dumped Apria. I know this poc won't > work for everyone because it isn't continuous flow and it only goes to 5 lpm > but I have been stable at 2/4 lpm for a long time. Well, I've started > "deteriorating" according to my dr. and with sats dropping into low 80s and mid to > high 70s...5 lpms is barely doing the job. Hate the thought of returning.> > Blessings,> Kathie NSIP 1995> > > > ************************************** See what's new at http://www.aol.com>

[Guest guest]

Joyce, Beth, and Peggy

Thanks, I have felt "alone" with my illness for so many years. Finding this board is a real blessing.

Kathie in WA

NSIP '95See what's new at AOL.com and Make AOL Your Homepage.

[Guest guest]

Joyce, Beth, and Peggy

Thanks, I have felt "alone" with my illness for so many years. Finding this board is a real blessing.

Kathie in WA

NSIP '95See what's new at AOL.com and Make AOL Your Homepage.

[Guest guest]

Joyce, Beth, and Peggy

Thanks, I have felt "alone" with my illness for so many years. Finding this board is a real blessing.

Kathie in WA

NSIP '95See what's new at AOL.com and Make AOL Your Homepage.

[Guest guest]

Kathie,

Hello from yet another NSIP person! I was diagnosed about 15 months ago and have been pretty much stable since then.

I'm glad you piped up, we all need each other!

Beth in NY Fibrotic NSIP 06/06

"At the evening of life we shall be judged on our love."

St of the Cross

Re: Lurker Alert/Living With IPF Seminar

Joyce

Thank you. I do feel like I "know" many of you. I am so sorry that, on top of everything else, you have to struggle with Apria. I wonder what the lesson is when we have to deal with doctors, insurance companies and suppliers when we fight for every breath.

This past February I was able to buy a portable oxygen concentrator, poc. My Inogen and I have done some traveling since then. I used it for a month to make sure we were a good match and then dumped Apria. I know this poc won't work for everyone because it isn't continuous flow and it only goes to 5 lpm but I have been stable at 2/4 lpm for a long time. Well, I've started "deteriorating" according to my dr. and with sats dropping into low 80s and mid to high 70s...5 lpms is barely doing the job. Hate the thought of returning.

Blessings,

Kathie NSIP 1995

See what's new at AOL.com and Make AOL Your Homepage.

[Guest guest]

Kathie, Yes, at the beginning of the Fall, 2005 semester...I was very

depressed that this disease had changed my life.

However, that did not last too long...I became aware that I had to

become more self-aware...almost selfish..to put me first!!!

That has been a very difficult transition for me. I eventually started

with pulmonary rehab...got strength back..returned to the pottery

studio...had so much more time with my family and friends. I still hate

being a sick person...but I do a great act in public!!!!When I'm out

and about with the handy dandy Helios...I put on my" feeling OK

face"..When I get back in the car to go home my new regular person

comes back. My husband likens the transformation to the blow up doll

that people put in the passenger seat to look like a person. I'm the

deflated doll while going to the event ...I get there and magically (

actually it's probably adrenalin)I fill up

and then spend my evening enjoying the fun ...I leave and deflate as

soon as I enter the car to go home.Of course this only works if he is

driving me. If I have to drive myself..I still do that when

possible...I need to stay filled up until I get home. It's worked for

the past 2 + years...so far so good.

Thanks for the compliments on my horse...I have passions for clay and

carousel horses...so I really loved scupting him.

Clay work has replaced work...great replacement!!!! I don't need to

put on any face in the clay studio.

You should see me in the studio at school ( I used to teach Reading

Skills and ESL at the community college and I still go to the potters

workshop there)

I have the Helios of course, then I wear my glasses and then I have the

respirator filter system on as well!!!I sort of look like a space

alien!!!!

But I am still up to my armpits in the clay and that's all I need to

put a smile on my face. I go to workshops twice weekly for 3 hours.

I'm completely exhausted after each session...but GOOD exhausted!

Z fibriotic NSIP/05

Z fibriotic NSIP/o5/PA

Potter, reader,carousel lover and

MomMom to Darah

“I’m gonna be iron like a lion in Zion”

Bob Marley

goplen2x@... wrote:

,

Thanks. Oh boy! moving??!! Moving from one room to the other is

hard enough for me (lol). Did you suffer from an identity crisis when

you quit work? I went from being a "worker" to being a "sick" person.

Ohh! I didn't like that at all.

Love the carousel horse, by the way! That was a big project and

it is beautiful.

Blessings,

Kathie NSIP '95

See what's new at AOL.com

and Make AOL Your Homepage.

No virus found in this incoming message.

Checked by AVG Free Edition. Version: 7.5.487 / Virus Database: 269.13.19/1008 - Release Date: 9/14/2007 8:59 AM

[Guest guest]

Kathie, Yes, at the beginning of the Fall, 2005 semester...I was very

depressed that this disease had changed my life.

However, that did not last too long...I became aware that I had to

become more self-aware...almost selfish..to put me first!!!

That has been a very difficult transition for me. I eventually started

with pulmonary rehab...got strength back..returned to the pottery

studio...had so much more time with my family and friends. I still hate

being a sick person...but I do a great act in public!!!!When I'm out

and about with the handy dandy Helios...I put on my" feeling OK

face"..When I get back in the car to go home my new regular person

comes back. My husband likens the transformation to the blow up doll

that people put in the passenger seat to look like a person. I'm the

deflated doll while going to the event ...I get there and magically (

actually it's probably adrenalin)I fill up

and then spend my evening enjoying the fun ...I leave and deflate as

soon as I enter the car to go home.Of course this only works if he is

driving me. If I have to drive myself..I still do that when

possible...I need to stay filled up until I get home. It's worked for

the past 2 + years...so far so good.

Thanks for the compliments on my horse...I have passions for clay and

carousel horses...so I really loved scupting him.

Clay work has replaced work...great replacement!!!! I don't need to

put on any face in the clay studio.

You should see me in the studio at school ( I used to teach Reading

Skills and ESL at the community college and I still go to the potters

workshop there)

I have the Helios of course, then I wear my glasses and then I have the

respirator filter system on as well!!!I sort of look like a space

alien!!!!

But I am still up to my armpits in the clay and that's all I need to

put a smile on my face. I go to workshops twice weekly for 3 hours.

I'm completely exhausted after each session...but GOOD exhausted!

Z fibriotic NSIP/05

Z fibriotic NSIP/o5/PA

Potter, reader,carousel lover and

MomMom to Darah

“I’m gonna be iron like a lion in Zion”

Bob Marley

goplen2x@... wrote:

,

Thanks. Oh boy! moving??!! Moving from one room to the other is

hard enough for me (lol). Did you suffer from an identity crisis when

you quit work? I went from being a "worker" to being a "sick" person.

Ohh! I didn't like that at all.

Love the carousel horse, by the way! That was a big project and

it is beautiful.

Blessings,

Kathie NSIP '95

See what's new at AOL.com

and Make AOL Your Homepage.

No virus found in this incoming message.

Checked by AVG Free Edition. Version: 7.5.487 / Virus Database: 269.13.19/1008 - Release Date: 9/14/2007 8:59 AM

[Guest guest]

Kathie, Yes, at the beginning of the Fall, 2005 semester...I was very

depressed that this disease had changed my life.

However, that did not last too long...I became aware that I had to

become more self-aware...almost selfish..to put me first!!!

That has been a very difficult transition for me. I eventually started

with pulmonary rehab...got strength back..returned to the pottery

studio...had so much more time with my family and friends. I still hate

being a sick person...but I do a great act in public!!!!When I'm out

and about with the handy dandy Helios...I put on my" feeling OK

face"..When I get back in the car to go home my new regular person

comes back. My husband likens the transformation to the blow up doll

that people put in the passenger seat to look like a person. I'm the

deflated doll while going to the event ...I get there and magically (

actually it's probably adrenalin)I fill up

and then spend my evening enjoying the fun ...I leave and deflate as

soon as I enter the car to go home.Of course this only works if he is

driving me. If I have to drive myself..I still do that when

possible...I need to stay filled up until I get home. It's worked for

the past 2 + years...so far so good.

Thanks for the compliments on my horse...I have passions for clay and

carousel horses...so I really loved scupting him.

Clay work has replaced work...great replacement!!!! I don't need to

put on any face in the clay studio.

You should see me in the studio at school ( I used to teach Reading

Skills and ESL at the community college and I still go to the potters

workshop there)

I have the Helios of course, then I wear my glasses and then I have the

respirator filter system on as well!!!I sort of look like a space

alien!!!!

But I am still up to my armpits in the clay and that's all I need to

put a smile on my face. I go to workshops twice weekly for 3 hours.

I'm completely exhausted after each session...but GOOD exhausted!

Z fibriotic NSIP/05

Z fibriotic NSIP/o5/PA

Potter, reader,carousel lover and

MomMom to Darah

“I’m gonna be iron like a lion in Zion”

Bob Marley

goplen2x@... wrote:

,

Thanks. Oh boy! moving??!! Moving from one room to the other is

hard enough for me (lol). Did you suffer from an identity crisis when

you quit work? I went from being a "worker" to being a "sick" person.

Ohh! I didn't like that at all.

Love the carousel horse, by the way! That was a big project and

it is beautiful.

Blessings,

Kathie NSIP '95

See what's new at AOL.com

and Make AOL Your Homepage.

No virus found in this incoming message.

Checked by AVG Free Edition. Version: 7.5.487 / Virus Database: 269.13.19/1008 - Release Date: 9/14/2007 8:59 AM

[Guest guest]

Kathie, thanks for sharing your story and what a awesome attitude and

strength in you! God Bless!

Sandie

>

> I've been reading since February but this is my first posting (I

> think??) About me I am married, 58 years, have nonspecific

> interstitial pneumonia of the fibrotic (idiopathic) variety and

> secondary pulmonary hypertension, chronic bronchitis, secondary

> diabetes (when the pred dosage goes up over 10 I have to start

> monitoring and treating)fibromyagia, some vague muscoskelatal

> disease, kidney disfunction and gout, sleep apnea and the various

> ailments that come along with time like arthritis.(I still think I

am

> 46, time seemed to stop then in many ways)

>

> I have taken Imuran, Cytoxan, gama 1b interferon and Bosetan. I am

> on 02 24/7 from 2 to 6 lpm and have been consistently for the last

4

> years although I have been on and off it since I was first

> diagnosed. It is almost 12 years ago that I was first dx' although

> that dx has changed several times.

>

> 11 years ago I 46, single, working at a job I loved and was

> financially secure. My 2 daughters were grown, one was married and

> the other had just given birth to my first grandchild. I was happy

> but very busy with very little balance in my life. Since then there

> have been many tests, hospital visits, medication changes, hopes,

> disappointments and even a lung transplant evaluation. The one

thing

> that has remained constant is my faith and my decision that this

> illness was not going to become " my life " .

>

> This illness, as cruel as it is, has offered me so many blessings. I

> was forced to quit work almost immediately, fortunately for the

first

> time in my woring life I had long term disability insurance and

> received ssd benefits on the first application. Money was tight but

I

> was so much luckier than others and I was able to continue my

> insurance under Cobra. I was able to be with my daughter and the

new

> grandson much more than I would have if I had been working. Ten

years

> ago I married, another blessing I might have missed. He says I

> wouldn't have had enough time for him if I was still working. I say

> he wouldn't have married me if he knew it would be for 10+ yrs

> instead of 3- 5. lol

>

> At different times I was well enough to make solo trips to visit my

> other daughter in CA, my mom and Aunt in AZ and could spend 4 weeks

a

> year during the winter at families' in the Phoeniz area. I live in

> Tacoma, WA. But the biggest and best blessing I received because

of

> this illness, is the time I suddenly had to reconnect to the " now " ,

> renew my faith and become involved with a Church, volunteering and

> helping other people. I also was able to work with a

amily/children's

> agency and was blessed to be able to work with families with babies

> at risk and mentor single mothers who just needed someone to

listen. I

> reconnected with friends and discovered e-mail. I have made new

> friends and have time for " girl friends " .

>

> As time has progressed some activities I have had to let go, there

> have been hospital visits, I have had to use a wheel chair (not now,

> though)I can't drive very far and large groups of people do me in.

> But I still have my beloved husband, my family, my friends, my two

> dogs, my faith and I can read, lay down, talk to a friend, just say

> no whenever I want. And as my hubby says " some days are better than

> others " . We have 2 small dogs, a pom, Gracie 3yrs old and Mitzie,

> pom/maltese mix named after a restaurant.

>

> For those in this area the following is about the seminar:

>

> Dear Friend of the CPF:

>

> The Coalition for Pulmonary Fibrosis (CPF), in partnership with

> University of Washington Medical Center in Seattle, Wash., is

hosting

> a free seminar on Oct. 13, 2007 for patients and families living

with

> idiopathic pulmonary fibrosis (IPF).

>

> To view complete information on the event, please click the

following

> link:

>

> http://www.coalitionforpf.org/AboutUs/events/seattle07.asp

>

> The seminar will feature nationally recognized experts in the

> treatment and study of IPF, including Ganesh Raghu, MD, University

of

> Washington Medical Center; , MD, University of

Texas,

> Southwestern; , MD, The Mayo Clinic, sdale; and

Hal

> Collard, MD, University of California, San Francisco and

> Mulligan, MD, University of Washington Medical Center.

>

> We look forward to seeing you at this important event! For

> information or to RSVP, please call the CPF at , or

email

> us at info@...

>

> Sincerely,

>

> The Staff of the CPF

>

>

> Thanks for being here!

> Kathie Tacoma, WA

> NSIP 1995, PH 2002 (did i do this right?)

>

[Guest guest]

Kathie, thanks for sharing your story and what a awesome attitude and

strength in you! God Bless!

Sandie

>

> I've been reading since February but this is my first posting (I

> think??) About me I am married, 58 years, have nonspecific

> interstitial pneumonia of the fibrotic (idiopathic) variety and

> secondary pulmonary hypertension, chronic bronchitis, secondary

> diabetes (when the pred dosage goes up over 10 I have to start

> monitoring and treating)fibromyagia, some vague muscoskelatal

> disease, kidney disfunction and gout, sleep apnea and the various

> ailments that come along with time like arthritis.(I still think I

am

> 46, time seemed to stop then in many ways)

>

> I have taken Imuran, Cytoxan, gama 1b interferon and Bosetan. I am

> on 02 24/7 from 2 to 6 lpm and have been consistently for the last

4

> years although I have been on and off it since I was first

> diagnosed. It is almost 12 years ago that I was first dx' although

> that dx has changed several times.

>

> 11 years ago I 46, single, working at a job I loved and was

> financially secure. My 2 daughters were grown, one was married and

> the other had just given birth to my first grandchild. I was happy

> but very busy with very little balance in my life. Since then there

> have been many tests, hospital visits, medication changes, hopes,

> disappointments and even a lung transplant evaluation. The one

thing

> that has remained constant is my faith and my decision that this

> illness was not going to become " my life " .

>

> This illness, as cruel as it is, has offered me so many blessings. I

> was forced to quit work almost immediately, fortunately for the

first

> time in my woring life I had long term disability insurance and

> received ssd benefits on the first application. Money was tight but

I

> was so much luckier than others and I was able to continue my

> insurance under Cobra. I was able to be with my daughter and the

new

> grandson much more than I would have if I had been working. Ten

years

> ago I married, another blessing I might have missed. He says I

> wouldn't have had enough time for him if I was still working. I say

> he wouldn't have married me if he knew it would be for 10+ yrs

> instead of 3- 5. lol

>

> At different times I was well enough to make solo trips to visit my

> other daughter in CA, my mom and Aunt in AZ and could spend 4 weeks

a

> year during the winter at families' in the Phoeniz area. I live in

> Tacoma, WA. But the biggest and best blessing I received because

of

> this illness, is the time I suddenly had to reconnect to the " now " ,

> renew my faith and become involved with a Church, volunteering and

> helping other people. I also was able to work with a

amily/children's

> agency and was blessed to be able to work with families with babies

> at risk and mentor single mothers who just needed someone to

listen. I

> reconnected with friends and discovered e-mail. I have made new

> friends and have time for " girl friends " .

>

> As time has progressed some activities I have had to let go, there

> have been hospital visits, I have had to use a wheel chair (not now,

> though)I can't drive very far and large groups of people do me in.

> But I still have my beloved husband, my family, my friends, my two

> dogs, my faith and I can read, lay down, talk to a friend, just say

> no whenever I want. And as my hubby says " some days are better than

> others " . We have 2 small dogs, a pom, Gracie 3yrs old and Mitzie,

> pom/maltese mix named after a restaurant.

>

> For those in this area the following is about the seminar:

>

> Dear Friend of the CPF:

>

> The Coalition for Pulmonary Fibrosis (CPF), in partnership with

> University of Washington Medical Center in Seattle, Wash., is

hosting

> a free seminar on Oct. 13, 2007 for patients and families living

with

> idiopathic pulmonary fibrosis (IPF).

>

> To view complete information on the event, please click the

following

> link:

>

> http://www.coalitionforpf.org/AboutUs/events/seattle07.asp

>

> The seminar will feature nationally recognized experts in the

> treatment and study of IPF, including Ganesh Raghu, MD, University

of

> Washington Medical Center; , MD, University of

Texas,

> Southwestern; , MD, The Mayo Clinic, sdale; and

Hal

> Collard, MD, University of California, San Francisco and

> Mulligan, MD, University of Washington Medical Center.

>

> We look forward to seeing you at this important event! For

> information or to RSVP, please call the CPF at , or

email

> us at info@...

>

> Sincerely,

>

> The Staff of the CPF

>

>

> Thanks for being here!

> Kathie Tacoma, WA

> NSIP 1995, PH 2002 (did i do this right?)

>

[Guest guest]

Sandie, Thank you! It sounds like you are starting a new path. It is

hard but you are very brave and deserve to have fun. I think we all

have ideas about energy levels and we hate to hear when others " over

do " . Listen but know that no one knows your body like you. I'm still

struggling to learn my boundaries but i can say, honestly, there

there have been times I pushed too far and I paid, sometimes for

days, weeks and once for months. But truth be told, I wouldn't have

passed those special times with family or planting containers for the

deck or some other fun thing. I try and be sensible and slow down

(and I am way slower than 12 yrs ago)and I ask for input from my Dr

and my spouse and I pray. But in the end I can still make those kind

of decisions. I hate it when someone tells me they were going to ask

me to do something but thought it might be " too much " . Let me make

the decision. For me it is all about balance.

Whew! I'm off my soapbox. I just wanted to say thank you for your

kind words. I don't hear them often enough anymore.

Blessings,

Kathie NSIP '05, PH

Tacoma, WA

> >

> > I've been reading since February but this is my first posting (I

> > think??) About me I am married, 58 years, have nonspecific

> > interstitial pneumonia of the fibrotic (idiopathic) variety and

> > secondary pulmonary hypertension, chronic bronchitis, secondary

> > diabetes (when the pred dosage goes up over 10 I have to start

> > monitoring and treating)fibromyagia, some vague muscoskelatal

> > disease, kidney disfunction and gout, sleep apnea and the various

> > ailments that come along with time like arthritis.(I still think

I

> am

> > 46, time seemed to stop then in many ways)

> >

> > I have taken Imuran, Cytoxan, gama 1b interferon and Bosetan. I am

> > on 02 24/7 from 2 to 6 lpm and have been consistently for the

last

> 4

> > years although I have been on and off it since I was first

> > diagnosed. It is almost 12 years ago that I was first dx'

although

> > that dx has changed several times.

> >

> > 11 years ago I 46, single, working at a job I loved and was

> > financially secure. My 2 daughters were grown, one was married

and

> > the other had just given birth to my first grandchild. I was

happy

> > but very busy with very little balance in my life. Since then

there

> > have been many tests, hospital visits, medication changes, hopes,

> > disappointments and even a lung transplant evaluation. The one

> thing

> > that has remained constant is my faith and my decision that this

> > illness was not going to become " my life " .

> >

> > This illness, as cruel as it is, has offered me so many

blessings. I

> > was forced to quit work almost immediately, fortunately for the

> first

> > time in my woring life I had long term disability insurance and

> > received ssd benefits on the first application. Money was tight

but

> I

> > was so much luckier than others and I was able to continue my

> > insurance under Cobra. I was able to be with my daughter and the

> new

> > grandson much more than I would have if I had been working. Ten

> years

> > ago I married, another blessing I might have missed. He says I

> > wouldn't have had enough time for him if I was still working. I

say

> > he wouldn't have married me if he knew it would be for 10+ yrs

> > instead of 3- 5. lol

> >

> > At different times I was well enough to make solo trips to visit

my

> > other daughter in CA, my mom and Aunt in AZ and could spend 4

weeks

> a

> > year during the winter at families' in the Phoeniz area. I live in

> > Tacoma, WA. But the biggest and best blessing I received because

> of

> > this illness, is the time I suddenly had to reconnect to

the " now " ,

> > renew my faith and become involved with a Church, volunteering

and

> > helping other people. I also was able to work with a

> amily/children's

> > agency and was blessed to be able to work with families with

babies

> > at risk and mentor single mothers who just needed someone to

> listen. I

> > reconnected with friends and discovered e-mail. I have made new

> > friends and have time for " girl friends " .

> >

> > As time has progressed some activities I have had to let go, there

> > have been hospital visits, I have had to use a wheel chair (not

now,

> > though)I can't drive very far and large groups of people do me in.

> > But I still have my beloved husband, my family, my friends, my two

> > dogs, my faith and I can read, lay down, talk to a friend, just

say

> > no whenever I want. And as my hubby says " some days are better

than

> > others " . We have 2 small dogs, a pom, Gracie 3yrs old and Mitzie,

> > pom/maltese mix named after a restaurant.

> >

> > For those in this area the following is about the seminar:

> >

> > Dear Friend of the CPF:

> >

> > The Coalition for Pulmonary Fibrosis (CPF), in partnership with

> > University of Washington Medical Center in Seattle, Wash., is

> hosting

> > a free seminar on Oct. 13, 2007 for patients and families living

> with

> > idiopathic pulmonary fibrosis (IPF).

> >

> > To view complete information on the event, please click the

> following

> > link:

> >

> > http://www.coalitionforpf.org/AboutUs/events/seattle07.asp

> >

> > The seminar will feature nationally recognized experts in the

> > treatment and study of IPF, including Ganesh Raghu, MD,

University

> of

> > Washington Medical Center; , MD, University of

> Texas,

> > Southwestern; , MD, The Mayo Clinic, sdale; and

> Hal

> > Collard, MD, University of California, San Francisco and

> > Mulligan, MD, University of Washington Medical Center.

> >

> > We look forward to seeing you at this important event! For

> > information or to RSVP, please call the CPF at , or

> email

> > us at info@

> >

> > Sincerely,

> >

> > The Staff of the CPF

> >

> >

> > Thanks for being here!

> > Kathie Tacoma, WA

> > NSIP 1995, PH 2002 (did i do this right?)

> >

>

[Guest guest]

Sandie, Thank you! It sounds like you are starting a new path. It is

hard but you are very brave and deserve to have fun. I think we all

have ideas about energy levels and we hate to hear when others " over

do " . Listen but know that no one knows your body like you. I'm still

struggling to learn my boundaries but i can say, honestly, there

there have been times I pushed too far and I paid, sometimes for

days, weeks and once for months. But truth be told, I wouldn't have

passed those special times with family or planting containers for the

deck or some other fun thing. I try and be sensible and slow down

(and I am way slower than 12 yrs ago)and I ask for input from my Dr

and my spouse and I pray. But in the end I can still make those kind

of decisions. I hate it when someone tells me they were going to ask

me to do something but thought it might be " too much " . Let me make

the decision. For me it is all about balance.

Whew! I'm off my soapbox. I just wanted to say thank you for your

kind words. I don't hear them often enough anymore.

Blessings,

Kathie NSIP '05, PH

Tacoma, WA

> >

> > I've been reading since February but this is my first posting (I

> > think??) About me I am married, 58 years, have nonspecific

> > interstitial pneumonia of the fibrotic (idiopathic) variety and

> > secondary pulmonary hypertension, chronic bronchitis, secondary

> > diabetes (when the pred dosage goes up over 10 I have to start

> > monitoring and treating)fibromyagia, some vague muscoskelatal

> > disease, kidney disfunction and gout, sleep apnea and the various

> > ailments that come along with time like arthritis.(I still think

I

> am

> > 46, time seemed to stop then in many ways)

> >

> > I have taken Imuran, Cytoxan, gama 1b interferon and Bosetan. I am

> > on 02 24/7 from 2 to 6 lpm and have been consistently for the

last

> 4

> > years although I have been on and off it since I was first

> > diagnosed. It is almost 12 years ago that I was first dx'

although

> > that dx has changed several times.

> >

> > 11 years ago I 46, single, working at a job I loved and was

> > financially secure. My 2 daughters were grown, one was married

and

> > the other had just given birth to my first grandchild. I was

happy

> > but very busy with very little balance in my life. Since then

there

> > have been many tests, hospital visits, medication changes, hopes,

> > disappointments and even a lung transplant evaluation. The one

> thing

> > that has remained constant is my faith and my decision that this

> > illness was not going to become " my life " .

> >

> > This illness, as cruel as it is, has offered me so many

blessings. I

> > was forced to quit work almost immediately, fortunately for the

> first

> > time in my woring life I had long term disability insurance and

> > received ssd benefits on the first application. Money was tight

but

> I

> > was so much luckier than others and I was able to continue my

> > insurance under Cobra. I was able to be with my daughter and the

> new

> > grandson much more than I would have if I had been working. Ten

> years

> > ago I married, another blessing I might have missed. He says I

> > wouldn't have had enough time for him if I was still working. I

say

> > he wouldn't have married me if he knew it would be for 10+ yrs

> > instead of 3- 5. lol

> >

> > At different times I was well enough to make solo trips to visit

my

> > other daughter in CA, my mom and Aunt in AZ and could spend 4

weeks

> a

> > year during the winter at families' in the Phoeniz area. I live in

> > Tacoma, WA. But the biggest and best blessing I received because

> of

> > this illness, is the time I suddenly had to reconnect to

the " now " ,

> > renew my faith and become involved with a Church, volunteering

and

> > helping other people. I also was able to work with a

> amily/children's

> > agency and was blessed to be able to work with families with

babies

> > at risk and mentor single mothers who just needed someone to

> listen. I

> > reconnected with friends and discovered e-mail. I have made new

> > friends and have time for " girl friends " .

> >

> > As time has progressed some activities I have had to let go, there

> > have been hospital visits, I have had to use a wheel chair (not

now,

> > though)I can't drive very far and large groups of people do me in.

> > But I still have my beloved husband, my family, my friends, my two

> > dogs, my faith and I can read, lay down, talk to a friend, just

say

> > no whenever I want. And as my hubby says " some days are better

than

> > others " . We have 2 small dogs, a pom, Gracie 3yrs old and Mitzie,

> > pom/maltese mix named after a restaurant.

> >

> > For those in this area the following is about the seminar:

> >

> > Dear Friend of the CPF:

> >

> > The Coalition for Pulmonary Fibrosis (CPF), in partnership with

> > University of Washington Medical Center in Seattle, Wash., is

> hosting

> > a free seminar on Oct. 13, 2007 for patients and families living

> with

> > idiopathic pulmonary fibrosis (IPF).

> >

> > To view complete information on the event, please click the

> following

> > link:

> >

> > http://www.coalitionforpf.org/AboutUs/events/seattle07.asp

> >

> > The seminar will feature nationally recognized experts in the

> > treatment and study of IPF, including Ganesh Raghu, MD,

University

> of

> > Washington Medical Center; , MD, University of

> Texas,

> > Southwestern; , MD, The Mayo Clinic, sdale; and

> Hal

> > Collard, MD, University of California, San Francisco and

> > Mulligan, MD, University of Washington Medical Center.

> >

> > We look forward to seeing you at this important event! For

> > information or to RSVP, please call the CPF at , or

> email

> > us at info@

> >

> > Sincerely,

> >

> > The Staff of the CPF

> >

> >

> > Thanks for being here!

> > Kathie Tacoma, WA

> > NSIP 1995, PH 2002 (did i do this right?)

> >

>

[Guest guest]

Sandie, Thank you! It sounds like you are starting a new path. It is

hard but you are very brave and deserve to have fun. I think we all

have ideas about energy levels and we hate to hear when others " over

do " . Listen but know that no one knows your body like you. I'm still

struggling to learn my boundaries but i can say, honestly, there

there have been times I pushed too far and I paid, sometimes for

days, weeks and once for months. But truth be told, I wouldn't have

passed those special times with family or planting containers for the

deck or some other fun thing. I try and be sensible and slow down

(and I am way slower than 12 yrs ago)and I ask for input from my Dr

and my spouse and I pray. But in the end I can still make those kind

of decisions. I hate it when someone tells me they were going to ask

me to do something but thought it might be " too much " . Let me make

the decision. For me it is all about balance.

Whew! I'm off my soapbox. I just wanted to say thank you for your

kind words. I don't hear them often enough anymore.

Blessings,

Kathie NSIP '05, PH

Tacoma, WA

> >

> > I've been reading since February but this is my first posting (I

> > think??) About me I am married, 58 years, have nonspecific

> > interstitial pneumonia of the fibrotic (idiopathic) variety and

> > secondary pulmonary hypertension, chronic bronchitis, secondary

> > diabetes (when the pred dosage goes up over 10 I have to start

> > monitoring and treating)fibromyagia, some vague muscoskelatal

> > disease, kidney disfunction and gout, sleep apnea and the various

> > ailments that come along with time like arthritis.(I still think

I

> am

> > 46, time seemed to stop then in many ways)

> >

> > I have taken Imuran, Cytoxan, gama 1b interferon and Bosetan. I am

> > on 02 24/7 from 2 to 6 lpm and have been consistently for the

last

> 4

> > years although I have been on and off it since I was first

> > diagnosed. It is almost 12 years ago that I was first dx'

although

> > that dx has changed several times.

> >

> > 11 years ago I 46, single, working at a job I loved and was

> > financially secure. My 2 daughters were grown, one was married

and

> > the other had just given birth to my first grandchild. I was

happy

> > but very busy with very little balance in my life. Since then

there

> > have been many tests, hospital visits, medication changes, hopes,

> > disappointments and even a lung transplant evaluation. The one

> thing

> > that has remained constant is my faith and my decision that this

> > illness was not going to become " my life " .

> >

> > This illness, as cruel as it is, has offered me so many

blessings. I

> > was forced to quit work almost immediately, fortunately for the

> first

> > time in my woring life I had long term disability insurance and

> > received ssd benefits on the first application. Money was tight

but

> I

> > was so much luckier than others and I was able to continue my

> > insurance under Cobra. I was able to be with my daughter and the

> new

> > grandson much more than I would have if I had been working. Ten

> years

> > ago I married, another blessing I might have missed. He says I

> > wouldn't have had enough time for him if I was still working. I

say

> > he wouldn't have married me if he knew it would be for 10+ yrs

> > instead of 3- 5. lol

> >

> > At different times I was well enough to make solo trips to visit

my

> > other daughter in CA, my mom and Aunt in AZ and could spend 4

weeks

> a

> > year during the winter at families' in the Phoeniz area. I live in

> > Tacoma, WA. But the biggest and best blessing I received because

> of

> > this illness, is the time I suddenly had to reconnect to

the " now " ,

> > renew my faith and become involved with a Church, volunteering

and

> > helping other people. I also was able to work with a

> amily/children's

> > agency and was blessed to be able to work with families with

babies

> > at risk and mentor single mothers who just needed someone to

> listen. I

> > reconnected with friends and discovered e-mail. I have made new

> > friends and have time for " girl friends " .

> >

> > As time has progressed some activities I have had to let go, there

> > have been hospital visits, I have had to use a wheel chair (not

now,

> > though)I can't drive very far and large groups of people do me in.

> > But I still have my beloved husband, my family, my friends, my two

> > dogs, my faith and I can read, lay down, talk to a friend, just

say

> > no whenever I want. And as my hubby says " some days are better

than

> > others " . We have 2 small dogs, a pom, Gracie 3yrs old and Mitzie,

> > pom/maltese mix named after a restaurant.

> >

> > For those in this area the following is about the seminar:

> >

> > Dear Friend of the CPF:

> >

> > The Coalition for Pulmonary Fibrosis (CPF), in partnership with

> > University of Washington Medical Center in Seattle, Wash., is

> hosting

> > a free seminar on Oct. 13, 2007 for patients and families living

> with

> > idiopathic pulmonary fibrosis (IPF).

> >

> > To view complete information on the event, please click the

> following

> > link:

> >

> > http://www.coalitionforpf.org/AboutUs/events/seattle07.asp

> >

> > The seminar will feature nationally recognized experts in the

> > treatment and study of IPF, including Ganesh Raghu, MD,

University

> of

> > Washington Medical Center; , MD, University of

> Texas,

> > Southwestern; , MD, The Mayo Clinic, sdale; and

> Hal

> > Collard, MD, University of California, San Francisco and

> > Mulligan, MD, University of Washington Medical Center.

> >

> > We look forward to seeing you at this important event! For

> > information or to RSVP, please call the CPF at , or

> email

> > us at info@

> >

> > Sincerely,

> >

> > The Staff of the CPF

> >

> >

> > Thanks for being here!

> > Kathie Tacoma, WA

> > NSIP 1995, PH 2002 (did i do this right?)

> >

>

[Guest guest]

Thanks but I am only trying. I find that I am very bitter and very

short with people, like I dont want to be bothered with anything

accept what I want to do, I dont want my husband to bother me, my

older son, or my 16 year old, not so much him because I still have to

take care of him, but my 19 year old and my husband, my mom, and I

for sure dont want to hear from my daughter, that sounds bad I know

but whenever she calls its drama and its never to say hi, how are

you, what you up to, its just one lie after another from her if she

would only get on her meds for her bipolar, so instead I would rather

not hear from her so I dont stress out about where she is at, where

she sleeps at night, how she eats and all that, its just to much.

We moved 3 years ago when my son was stabbed and that house just isnt

my house, I miss my home, I miss the warm cozy comfy feeling of home,

this just isnt it.

I dont know whats going on I just catch myself after the fact that I

just snapped at some one and I dont have patience for anyone anymore.

Why is that do you think? I am just angry maybe I dont know anymore

it just isnt me....

Sandie

> > >

> > > I've been reading since February but this is my first posting

(I

> > > think??) About me I am married, 58 years, have nonspecific

> > > interstitial pneumonia of the fibrotic (idiopathic) variety and

> > > secondary pulmonary hypertension, chronic bronchitis, secondary

> > > diabetes (when the pred dosage goes up over 10 I have to start

> > > monitoring and treating)fibromyagia, some vague muscoskelatal

> > > disease, kidney disfunction and gout, sleep apnea and the

various

> > > ailments that come along with time like arthritis.(I still

think

> I

> > am

> > > 46, time seemed to stop then in many ways)

> > >

> > > I have taken Imuran, Cytoxan, gama 1b interferon and Bosetan. I

am

> > > on 02 24/7 from 2 to 6 lpm and have been consistently for the

> last

> > 4

> > > years although I have been on and off it since I was first

> > > diagnosed. It is almost 12 years ago that I was first dx'

> although

> > > that dx has changed several times.

> > >

> > > 11 years ago I 46, single, working at a job I loved and was

> > > financially secure. My 2 daughters were grown, one was married

> and

> > > the other had just given birth to my first grandchild. I was

> happy

> > > but very busy with very little balance in my life. Since then

> there

> > > have been many tests, hospital visits, medication changes,

hopes,

> > > disappointments and even a lung transplant evaluation. The one

> > thing

> > > that has remained constant is my faith and my decision that

this

> > > illness was not going to become " my life " .

> > >

> > > This illness, as cruel as it is, has offered me so many

> blessings. I

> > > was forced to quit work almost immediately, fortunately for the

> > first

> > > time in my woring life I had long term disability insurance and

> > > received ssd benefits on the first application. Money was tight

> but

> > I

> > > was so much luckier than others and I was able to continue my

> > > insurance under Cobra. I was able to be with my daughter and

the

> > new

> > > grandson much more than I would have if I had been working. Ten

> > years

> > > ago I married, another blessing I might have missed. He says I

> > > wouldn't have had enough time for him if I was still working. I

> say

> > > he wouldn't have married me if he knew it would be for 10+ yrs

> > > instead of 3- 5. lol

> > >

> > > At different times I was well enough to make solo trips to

visit

> my

> > > other daughter in CA, my mom and Aunt in AZ and could spend 4

> weeks

> > a

> > > year during the winter at families' in the Phoeniz area. I live

in

> > > Tacoma, WA. But the biggest and best blessing I received

because

> > of

> > > this illness, is the time I suddenly had to reconnect to

> the " now " ,

> > > renew my faith and become involved with a Church, volunteering

> and

> > > helping other people. I also was able to work with a

> > amily/children's

> > > agency and was blessed to be able to work with families with

> babies

> > > at risk and mentor single mothers who just needed someone to

> > listen. I

> > > reconnected with friends and discovered e-mail. I have made new

> > > friends and have time for " girl friends " .

> > >

> > > As time has progressed some activities I have had to let go,

there

> > > have been hospital visits, I have had to use a wheel chair (not

> now,

> > > though)I can't drive very far and large groups of people do me

in.

> > > But I still have my beloved husband, my family, my friends, my

two

> > > dogs, my faith and I can read, lay down, talk to a friend, just

> say

> > > no whenever I want. And as my hubby says " some days are better

> than

> > > others " . We have 2 small dogs, a pom, Gracie 3yrs old and

Mitzie,

> > > pom/maltese mix named after a restaurant.

> > >

> > > For those in this area the following is about the seminar:

> > >

> > > Dear Friend of the CPF:

> > >

> > > The Coalition for Pulmonary Fibrosis (CPF), in partnership with

> > > University of Washington Medical Center in Seattle, Wash., is

> > hosting

> > > a free seminar on Oct. 13, 2007 for patients and families

living

> > with

> > > idiopathic pulmonary fibrosis (IPF).

> > >

> > > To view complete information on the event, please click the

> > following

> > > link:

> > >

> > > http://www.coalitionforpf.org/AboutUs/events/seattle07.asp

> > >

> > > The seminar will feature nationally recognized experts in the

> > > treatment and study of IPF, including Ganesh Raghu, MD,

> University

> > of

> > > Washington Medical Center; , MD, University of

> > Texas,

> > > Southwestern; , MD, The Mayo Clinic, sdale;

and

> > Hal

> > > Collard, MD, University of California, San Francisco and

> > > Mulligan, MD, University of Washington Medical Center.

> > >

> > > We look forward to seeing you at this important event! For

> > > information or to RSVP, please call the CPF at , or

> > email

> > > us at info@

> > >

> > > Sincerely,

> > >

> > > The Staff of the CPF

> > >

> > >

> > > Thanks for being here!

> > > Kathie Tacoma, WA

> > > NSIP 1995, PH 2002 (did i do this right?)

> > >

> >

>

[Guest guest]

Thanks but I am only trying. I find that I am very bitter and very

short with people, like I dont want to be bothered with anything

accept what I want to do, I dont want my husband to bother me, my

older son, or my 16 year old, not so much him because I still have to

take care of him, but my 19 year old and my husband, my mom, and I

for sure dont want to hear from my daughter, that sounds bad I know

but whenever she calls its drama and its never to say hi, how are

you, what you up to, its just one lie after another from her if she

would only get on her meds for her bipolar, so instead I would rather

not hear from her so I dont stress out about where she is at, where

she sleeps at night, how she eats and all that, its just to much.

We moved 3 years ago when my son was stabbed and that house just isnt

my house, I miss my home, I miss the warm cozy comfy feeling of home,

this just isnt it.

I dont know whats going on I just catch myself after the fact that I

just snapped at some one and I dont have patience for anyone anymore.

Why is that do you think? I am just angry maybe I dont know anymore

it just isnt me....

Sandie

> > >

> > > I've been reading since February but this is my first posting

(I

> > > think??) About me I am married, 58 years, have nonspecific

> > > interstitial pneumonia of the fibrotic (idiopathic) variety and

> > > secondary pulmonary hypertension, chronic bronchitis, secondary

> > > diabetes (when the pred dosage goes up over 10 I have to start

> > > monitoring and treating)fibromyagia, some vague muscoskelatal

> > > disease, kidney disfunction and gout, sleep apnea and the

various

> > > ailments that come along with time like arthritis.(I still

think

> I

> > am

> > > 46, time seemed to stop then in many ways)

> > >

> > > I have taken Imuran, Cytoxan, gama 1b interferon and Bosetan. I

am

> > > on 02 24/7 from 2 to 6 lpm and have been consistently for the

> last

> > 4

> > > years although I have been on and off it since I was first

> > > diagnosed. It is almost 12 years ago that I was first dx'

> although

> > > that dx has changed several times.

> > >

> > > 11 years ago I 46, single, working at a job I loved and was

> > > financially secure. My 2 daughters were grown, one was married

> and

> > > the other had just given birth to my first grandchild. I was

> happy

> > > but very busy with very little balance in my life. Since then

> there

> > > have been many tests, hospital visits, medication changes,

hopes,

> > > disappointments and even a lung transplant evaluation. The one

> > thing

> > > that has remained constant is my faith and my decision that

this

> > > illness was not going to become " my life " .

> > >

> > > This illness, as cruel as it is, has offered me so many

> blessings. I

> > > was forced to quit work almost immediately, fortunately for the

> > first

> > > time in my woring life I had long term disability insurance and

> > > received ssd benefits on the first application. Money was tight

> but

> > I

> > > was so much luckier than others and I was able to continue my

> > > insurance under Cobra. I was able to be with my daughter and

the

> > new

> > > grandson much more than I would have if I had been working. Ten

> > years

> > > ago I married, another blessing I might have missed. He says I

> > > wouldn't have had enough time for him if I was still working. I

> say

> > > he wouldn't have married me if he knew it would be for 10+ yrs

> > > instead of 3- 5. lol

> > >

> > > At different times I was well enough to make solo trips to

visit

> my

> > > other daughter in CA, my mom and Aunt in AZ and could spend 4

> weeks

> > a

> > > year during the winter at families' in the Phoeniz area. I live

in

> > > Tacoma, WA. But the biggest and best blessing I received

because

> > of

> > > this illness, is the time I suddenly had to reconnect to

> the " now " ,

> > > renew my faith and become involved with a Church, volunteering

> and

> > > helping other people. I also was able to work with a

> > amily/children's

> > > agency and was blessed to be able to work with families with

> babies

> > > at risk and mentor single mothers who just needed someone to

> > listen. I

> > > reconnected with friends and discovered e-mail. I have made new

> > > friends and have time for " girl friends " .

> > >

> > > As time has progressed some activities I have had to let go,

there

> > > have been hospital visits, I have had to use a wheel chair (not

> now,

> > > though)I can't drive very far and large groups of people do me

in.

> > > But I still have my beloved husband, my family, my friends, my

two

> > > dogs, my faith and I can read, lay down, talk to a friend, just

> say

> > > no whenever I want. And as my hubby says " some days are better

> than

> > > others " . We have 2 small dogs, a pom, Gracie 3yrs old and

Mitzie,

> > > pom/maltese mix named after a restaurant.

> > >

> > > For those in this area the following is about the seminar:

> > >

> > > Dear Friend of the CPF:

> > >

> > > The Coalition for Pulmonary Fibrosis (CPF), in partnership with

> > > University of Washington Medical Center in Seattle, Wash., is

> > hosting

> > > a free seminar on Oct. 13, 2007 for patients and families

living

> > with

> > > idiopathic pulmonary fibrosis (IPF).

> > >

> > > To view complete information on the event, please click the

> > following

> > > link:

> > >

> > > http://www.coalitionforpf.org/AboutUs/events/seattle07.asp

> > >

> > > The seminar will feature nationally recognized experts in the

> > > treatment and study of IPF, including Ganesh Raghu, MD,

> University

> > of

> > > Washington Medical Center; , MD, University of

> > Texas,

> > > Southwestern; , MD, The Mayo Clinic, sdale;

and

> > Hal

> > > Collard, MD, University of California, San Francisco and

> > > Mulligan, MD, University of Washington Medical Center.

> > >

> > > We look forward to seeing you at this important event! For

> > > information or to RSVP, please call the CPF at , or

> > email

> > > us at info@

> > >

> > > Sincerely,

> > >

> > > The Staff of the CPF

> > >

> > >

> > > Thanks for being here!

> > > Kathie Tacoma, WA

> > > NSIP 1995, PH 2002 (did i do this right?)

> > >

> >

>

[Guest guest]

Thanks but I am only trying. I find that I am very bitter and very

short with people, like I dont want to be bothered with anything

accept what I want to do, I dont want my husband to bother me, my

older son, or my 16 year old, not so much him because I still have to

take care of him, but my 19 year old and my husband, my mom, and I

for sure dont want to hear from my daughter, that sounds bad I know

but whenever she calls its drama and its never to say hi, how are

you, what you up to, its just one lie after another from her if she

would only get on her meds for her bipolar, so instead I would rather

not hear from her so I dont stress out about where she is at, where

she sleeps at night, how she eats and all that, its just to much.

We moved 3 years ago when my son was stabbed and that house just isnt

my house, I miss my home, I miss the warm cozy comfy feeling of home,

this just isnt it.

I dont know whats going on I just catch myself after the fact that I

just snapped at some one and I dont have patience for anyone anymore.

Why is that do you think? I am just angry maybe I dont know anymore

it just isnt me....

Sandie

> > >

> > > I've been reading since February but this is my first posting

(I

> > > think??) About me I am married, 58 years, have nonspecific

> > > interstitial pneumonia of the fibrotic (idiopathic) variety and

> > > secondary pulmonary hypertension, chronic bronchitis, secondary

> > > diabetes (when the pred dosage goes up over 10 I have to start

> > > monitoring and treating)fibromyagia, some vague muscoskelatal

> > > disease, kidney disfunction and gout, sleep apnea and the

various

> > > ailments that come along with time like arthritis.(I still

think

> I

> > am

> > > 46, time seemed to stop then in many ways)

> > >

> > > I have taken Imuran, Cytoxan, gama 1b interferon and Bosetan. I

am

> > > on 02 24/7 from 2 to 6 lpm and have been consistently for the

> last

> > 4

> > > years although I have been on and off it since I was first

> > > diagnosed. It is almost 12 years ago that I was first dx'

> although

> > > that dx has changed several times.

> > >

> > > 11 years ago I 46, single, working at a job I loved and was

> > > financially secure. My 2 daughters were grown, one was married

> and

> > > the other had just given birth to my first grandchild. I was

> happy

> > > but very busy with very little balance in my life. Since then

> there

> > > have been many tests, hospital visits, medication changes,

hopes,

> > > disappointments and even a lung transplant evaluation. The one

> > thing

> > > that has remained constant is my faith and my decision that

this

> > > illness was not going to become " my life " .

> > >

> > > This illness, as cruel as it is, has offered me so many

> blessings. I

> > > was forced to quit work almost immediately, fortunately for the

> > first

> > > time in my woring life I had long term disability insurance and

> > > received ssd benefits on the first application. Money was tight

> but

> > I

> > > was so much luckier than others and I was able to continue my

> > > insurance under Cobra. I was able to be with my daughter and

the

> > new

> > > grandson much more than I would have if I had been working. Ten

> > years

> > > ago I married, another blessing I might have missed. He says I

> > > wouldn't have had enough time for him if I was still working. I

> say

> > > he wouldn't have married me if he knew it would be for 10+ yrs

> > > instead of 3- 5. lol

> > >

> > > At different times I was well enough to make solo trips to

visit

> my

> > > other daughter in CA, my mom and Aunt in AZ and could spend 4

> weeks

> > a

> > > year during the winter at families' in the Phoeniz area. I live

in

> > > Tacoma, WA. But the biggest and best blessing I received

because

> > of

> > > this illness, is the time I suddenly had to reconnect to

> the " now " ,

> > > renew my faith and become involved with a Church, volunteering

> and

> > > helping other people. I also was able to work with a

> > amily/children's

> > > agency and was blessed to be able to work with families with

> babies

> > > at risk and mentor single mothers who just needed someone to

> > listen. I

> > > reconnected with friends and discovered e-mail. I have made new

> > > friends and have time for " girl friends " .

> > >

> > > As time has progressed some activities I have had to let go,

there

> > > have been hospital visits, I have had to use a wheel chair (not

> now,

> > > though)I can't drive very far and large groups of people do me

in.

> > > But I still have my beloved husband, my family, my friends, my

two

> > > dogs, my faith and I can read, lay down, talk to a friend, just

> say

> > > no whenever I want. And as my hubby says " some days are better

> than

> > > others " . We have 2 small dogs, a pom, Gracie 3yrs old and

Mitzie,

> > > pom/maltese mix named after a restaurant.

> > >

> > > For those in this area the following is about the seminar:

> > >

> > > Dear Friend of the CPF:

> > >

> > > The Coalition for Pulmonary Fibrosis (CPF), in partnership with

> > > University of Washington Medical Center in Seattle, Wash., is

> > hosting

> > > a free seminar on Oct. 13, 2007 for patients and families

living

> > with

> > > idiopathic pulmonary fibrosis (IPF).

> > >

> > > To view complete information on the event, please click the

> > following

> > > link:

> > >

> > > http://www.coalitionforpf.org/AboutUs/events/seattle07.asp

> > >

> > > The seminar will feature nationally recognized experts in the

> > > treatment and study of IPF, including Ganesh Raghu, MD,

> University

> > of

> > > Washington Medical Center; , MD, University of

> > Texas,

> > > Southwestern; , MD, The Mayo Clinic, sdale;

and

> > Hal

> > > Collard, MD, University of California, San Francisco and

> > > Mulligan, MD, University of Washington Medical Center.

> > >

> > > We look forward to seeing you at this important event! For

> > > information or to RSVP, please call the CPF at , or

> > email

> > > us at info@

> > >

> > > Sincerely,

> > >

> > > The Staff of the CPF

> > >

> > >

> > > Thanks for being here!

> > > Kathie Tacoma, WA

> > > NSIP 1995, PH 2002 (did i do this right?)

> > >

> >

>

[Guest guest]

Sandie from Sher...I'd like to jump in here because I relate so much to what you say in this post.

I too feel what you describe. I too have a daughter (38) whose life has been little else but worry, stress, drug use and the list goes on. She has been sober for about 3 years but she only calls if she needs something and it is high drama whenever we speak or on occasion, meet. I continue to pray for my kids and I've learned to let go.

In a strange way, I'm lucky. I don't have to deal with people. My other daughter I'm extremely close to and my husband is very easy to live with. We have a simple lifestyle.

Your son being stabbed is trauma/drama at it's highest. Sounds to me like you're dealing with a lot of loss.

Your illness is also such a drain. Hey, it's ok to have limits, (have you ever set limits in place in the past?)

It's ok to lack patience when you are against the wall.

Don't be so hard on yourself Sandie. None of us here are "like we used to be". It's one day at a time.

There is a difference between guilt and grieving. Think about it.

Hope I haven't been too personal. I'm sharing what I've learned about me. Hugs

Sher; ipf 3-06; OR.Don't fret about tomorrow, God is already there!

[Guest guest]

Sandie from Sher...I'd like to jump in here because I relate so much to what you say in this post.

I too feel what you describe. I too have a daughter (38) whose life has been little else but worry, stress, drug use and the list goes on. She has been sober for about 3 years but she only calls if she needs something and it is high drama whenever we speak or on occasion, meet. I continue to pray for my kids and I've learned to let go.

In a strange way, I'm lucky. I don't have to deal with people. My other daughter I'm extremely close to and my husband is very easy to live with. We have a simple lifestyle.

Your son being stabbed is trauma/drama at it's highest. Sounds to me like you're dealing with a lot of loss.

Your illness is also such a drain. Hey, it's ok to have limits, (have you ever set limits in place in the past?)

It's ok to lack patience when you are against the wall.

Don't be so hard on yourself Sandie. None of us here are "like we used to be". It's one day at a time.

There is a difference between guilt and grieving. Think about it.

Hope I haven't been too personal. I'm sharing what I've learned about me. Hugs

Sher; ipf 3-06; OR.Don't fret about tomorrow, God is already there!

[Guest guest]

Sandie from Sher...I'd like to jump in here because I relate so much to what you say in this post.

I too feel what you describe. I too have a daughter (38) whose life has been little else but worry, stress, drug use and the list goes on. She has been sober for about 3 years but she only calls if she needs something and it is high drama whenever we speak or on occasion, meet. I continue to pray for my kids and I've learned to let go.

In a strange way, I'm lucky. I don't have to deal with people. My other daughter I'm extremely close to and my husband is very easy to live with. We have a simple lifestyle.

Your son being stabbed is trauma/drama at it's highest. Sounds to me like you're dealing with a lot of loss.

Your illness is also such a drain. Hey, it's ok to have limits, (have you ever set limits in place in the past?)

It's ok to lack patience when you are against the wall.

Don't be so hard on yourself Sandie. None of us here are "like we used to be". It's one day at a time.

There is a difference between guilt and grieving. Think about it.

Hope I haven't been too personal. I'm sharing what I've learned about me. Hugs

Sher; ipf 3-06; OR.Don't fret about tomorrow, God is already there!

[Guest guest]

Thank you Sher. It is the first time in my life I am having to see

the dark side and all that thoughts that cross your mind. I try to

do that with my kids and they have a way of sneeking up on you. I

wont even begin to tell you what happened last night with my husband

and my oldest son, something I never thought I would have to be

around again in my life. It was awful, and then my daughters friends

parent calls me and I am some how supposed to take her in because she

made a mess of her life and its obvious this lady is calling me

because she dosnt want her there anymore, I only know this because

she called me one other time, she is supposed to have lung cancer but

that was a diagnosis she got many years ago and why on earth would

some one who has that kind of illness add stress to the pot with some

one you already know has a n untreated illness. She basically said

then you should just consider your daughter dead and hung up. I cried

myself to sleep and its a good thing I had a sleeping pill in me

already because I could have taken a lot more then that and never

woke up again.

I will find away out of this hole I just havent figured it out yet

and at what cost it will be to me and those I love.

Thanks for your kind words and your caring thoughts the good lord

knows I need them!

Sandie

>

> Sandie from Sher...I'd like to jump in here because I relate so

much to what you say in this post.

> I too feel what you describe. I too have a daughter (38) whose life

has been little else but worry, stress, drug use and the list goes

on. She has been sober for about 3 years but she only calls if she

needs something and it is high drama whenever we speak or on

occasion, meet. I continue to pray for my kids and I've learned to

let go.

> In a strange way, I'm lucky. I don't have to deal with people. My

other daughter I'm extremely close to and my husband is very easy to

live with. We have a simple lifestyle.

> Your son being stabbed is trauma/drama at it's highest. Sounds to

me like you're dealing with a lot of loss.

> Your illness is also such a drain. Hey, it's ok to have limits,

(have you ever set limits in place in the past?)

> It's ok to lack patience when you are against the wall.

> Don't be so hard on yourself Sandie. None of us here are " like we

used to be " . It's one day at a time.

> There is a difference between guilt and grieving. Think about it.

> Hope I haven't been too personal. I'm sharing what I've learned

about me. Hugs

> Sher; ipf 3-06; OR.

> Don't fret about tomorrow, God is already there!

>