Guest guest Posted September 14, 2007 Report Share Posted September 14, 2007 Well Jane, I don't know if that is good or not. At least you know. I think UIP is the one prednisone does help. research it and find out all you can. God Bless you. See ya soon. Love and Prayers, Peggy ipf 6/04 Florida " Worry looks around, Sorry looks back, Faith looks up. " Hi Groupies, I have been calling and calling and calling the Emory Clinic in Atlanta to find out the results of my lung biopsy. The doctor will be calling me next week (hopefully as the secretary stated to me) She read to me what the pathologist wrote. He identified my pulmonary fibrosis as UIP. Toodles! Jane UIP 12/1998 Dalton, Georgia aka pianolady_musicgirl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2007 Report Share Posted September 14, 2007 Well Jane, I don't know if that is good or not. At least you know. I think UIP is the one prednisone does help. research it and find out all you can. God Bless you. See ya soon. Love and Prayers, Peggy ipf 6/04 Florida " Worry looks around, Sorry looks back, Faith looks up. " Hi Groupies, I have been calling and calling and calling the Emory Clinic in Atlanta to find out the results of my lung biopsy. The doctor will be calling me next week (hopefully as the secretary stated to me) She read to me what the pathologist wrote. He identified my pulmonary fibrosis as UIP. Toodles! Jane UIP 12/1998 Dalton, Georgia aka pianolady_musicgirl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2007 Report Share Posted September 14, 2007 Well Jane, I don't know if that is good or not. At least you know. I think UIP is the one prednisone does help. research it and find out all you can. God Bless you. See ya soon. Love and Prayers, Peggy ipf 6/04 Florida " Worry looks around, Sorry looks back, Faith looks up. " Hi Groupies, I have been calling and calling and calling the Emory Clinic in Atlanta to find out the results of my lung biopsy. The doctor will be calling me next week (hopefully as the secretary stated to me) She read to me what the pathologist wrote. He identified my pulmonary fibrosis as UIP. Toodles! Jane UIP 12/1998 Dalton, Georgia aka pianolady_musicgirl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2007 Report Share Posted September 14, 2007 uip is usual interstitial pneumonitis. It is the type I have as well. Prednisone does not help. (at least prednisone did not help me) NSIP is the type that prednisone has been known to help. LeannePeggy wrote: Well Jane, I don't know if that is good or not. At least you know. I think UIP is the one prednisone does help. research it and find out all you can. God Bless you.See ya soon.Love and Prayers, Peggyipf 6/04 Florida"Worry looks around,Sorry looks back,Faith looks up."Hi Groupies,I have been calling and calling and calling the Emory Clinic in Atlanta to find out the results of my lung biopsy. The doctor will be calling me next week (hopefully as the secretary stated to me) She read to me what the pathologist wrote. He identified my pulmonary fibrosis as UIP.Toodles!Jane UIP 12/1998 Dalton, Georgia aka pianolady_musicgirl Fussy? Opinionated? Impossible to please? Perfect. Join Yahoo!'s user panel and lay it on us. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2007 Report Share Posted September 14, 2007 uip is usual interstitial pneumonitis. It is the type I have as well. Prednisone does not help. (at least prednisone did not help me) NSIP is the type that prednisone has been known to help. LeannePeggy wrote: Well Jane, I don't know if that is good or not. At least you know. I think UIP is the one prednisone does help. research it and find out all you can. God Bless you.See ya soon.Love and Prayers, Peggyipf 6/04 Florida"Worry looks around,Sorry looks back,Faith looks up."Hi Groupies,I have been calling and calling and calling the Emory Clinic in Atlanta to find out the results of my lung biopsy. The doctor will be calling me next week (hopefully as the secretary stated to me) She read to me what the pathologist wrote. He identified my pulmonary fibrosis as UIP.Toodles!Jane UIP 12/1998 Dalton, Georgia aka pianolady_musicgirl Fussy? Opinionated? Impossible to please? Perfect. Join Yahoo!'s user panel and lay it on us. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2007 Report Share Posted September 14, 2007 If you are Dx'd with UIP I think that the chances are 1 in 30 (or less) that you'd benefit from prednisone. As UIP is my primary Dx my Pulmy would not prescribe it for me as he felt the risks were not outweighed by the potential benefit. Had that rascal " " not gotten into my computer I might have been able to link to the article that explains the various forms of IPF and their individual prognosis. Alack, alas. I know that (as Leanne mentioned) fibrosing non-specific interstitial pneumonia or NSIP does respond well. The smokers IPF, desquamative interstitial pneumonia or DIP I believe responded about 40% of the time. UIP/IPF/LCH > > Hi Groupies, > > I have been calling and calling and calling the Emory Clinic in > Atlanta to find out the results of my lung biopsy. The doctor will > be calling me next week (hopefully as the secretary stated to me) She > read to me what the pathologist wrote. He identified my pulmonary > fibrosis as UIP. > > Toodles! > > Jane UIP 12/1998 Dalton, Georgia aka pianolady_musicgirl > > > > > > > --------------------------------- > Fussy? Opinionated? Impossible to please? Perfect. Join Yahoo!'s user panel and lay it on us. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2007 Report Share Posted September 14, 2007 If you are Dx'd with UIP I think that the chances are 1 in 30 (or less) that you'd benefit from prednisone. As UIP is my primary Dx my Pulmy would not prescribe it for me as he felt the risks were not outweighed by the potential benefit. Had that rascal " " not gotten into my computer I might have been able to link to the article that explains the various forms of IPF and their individual prognosis. Alack, alas. I know that (as Leanne mentioned) fibrosing non-specific interstitial pneumonia or NSIP does respond well. The smokers IPF, desquamative interstitial pneumonia or DIP I believe responded about 40% of the time. UIP/IPF/LCH > > Hi Groupies, > > I have been calling and calling and calling the Emory Clinic in > Atlanta to find out the results of my lung biopsy. The doctor will > be calling me next week (hopefully as the secretary stated to me) She > read to me what the pathologist wrote. He identified my pulmonary > fibrosis as UIP. > > Toodles! > > Jane UIP 12/1998 Dalton, Georgia aka pianolady_musicgirl > > > > > > > --------------------------------- > Fussy? Opinionated? Impossible to please? Perfect. Join Yahoo!'s user panel and lay it on us. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2007 Report Share Posted September 14, 2007 Peggy. I think it is the one that my dad had. He passed a year ago today. Jane UIP 12/1998 Dalton Georgia > > > Hi Groupies, > > I have been calling and calling and calling the Emory Clinic in > Atlanta to find out the results of my lung biopsy. The doctor will > be calling me next week (hopefully as the secretary stated to me) She > read to me what the pathologist wrote. He identified my pulmonary > fibrosis as UIP. > > Toodles! > > Jane UIP 12/1998 Dalton, Georgia aka pianolady_musicgirl > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2007 Report Share Posted September 14, 2007 Peggy. I think it is the one that my dad had. He passed a year ago today. Jane UIP 12/1998 Dalton Georgia > > > Hi Groupies, > > I have been calling and calling and calling the Emory Clinic in > Atlanta to find out the results of my lung biopsy. The doctor will > be calling me next week (hopefully as the secretary stated to me) She > read to me what the pathologist wrote. He identified my pulmonary > fibrosis as UIP. > > Toodles! > > Jane UIP 12/1998 Dalton, Georgia aka pianolady_musicgirl > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2007 Report Share Posted September 14, 2007 Peggy. I think it is the one that my dad had. He passed a year ago today. Jane UIP 12/1998 Dalton Georgia > > > Hi Groupies, > > I have been calling and calling and calling the Emory Clinic in > Atlanta to find out the results of my lung biopsy. The doctor will > be calling me next week (hopefully as the secretary stated to me) She > read to me what the pathologist wrote. He identified my pulmonary > fibrosis as UIP. > > Toodles! > > Jane UIP 12/1998 Dalton, Georgia aka pianolady_musicgirl > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2007 Report Share Posted September 14, 2007 Leanne, I know that my dad also had UIP, but I have known that i've had it a lot longer than he ever knew. Isn't that the one that is inherited? I can't wait to ask my doctor next week. He has a copy of my dad's OLB. Jane UIP 12/998 DaltonGeorgia> > Hi Groupies,> > I have been calling and calling and calling the Emory Clinic in > Atlanta to find out the results of my lung biopsy. The doctor will > be calling me next week (hopefully as the secretary stated to me) She > read to me what the pathologist wrote. He identified my pulmonary > fibrosis as UIP.> > Toodles!> > Jane UIP 12/1998 Dalton, Georgia aka pianolady_musicgirl> > > > > > > ---------------------------------> Fussy? Opinionated? Impossible to please? Perfect. Join Yahoo!'s user panel and lay it on us.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2007 Report Share Posted September 14, 2007 , I am NOT looking for any prednisone! I am only interested in Viagra. Thanks Jane UIP 12/1998 Dalton Georgia> > > > Hi Groupies,> > > > I have been calling and calling and calling the Emory Clinic in > > Atlanta to find out the results of my lung biopsy. The doctor will > > be calling me next week (hopefully as the secretary stated to me) She > > read to me what the pathologist wrote. He identified my pulmonary > > fibrosis as UIP.> > > > Toodles!> > > > Jane UIP 12/1998 Dalton, Georgia aka pianolady_musicgirl> > > > > > > > > > > > > > ---------------------------------> > Fussy? Opinionated? Impossible to please? Perfect. Join Yahoo!'s> user panel and lay it on us.> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2007 Report Share Posted September 14, 2007 LOL, I'm feeling better since new bloomers came into my life..LOL... Love and Prayers, Peggy ipf 6/04 Florida " Worry looks around, Sorry looks back, Faith looks up. " Peggy, I also feel that I am missing something? Jane UIP 12/1998 Dalton, Georgia > > Hi Groupies, > > I have been calling and calling and calling the Emory Clinic in > Atlanta to find out the results of my lung biopsy. The doctor will > be calling me next week (hopefully as the secretary stated to me) She > read to me what the pathologist wrote. He identified my pulmonary > fibrosis as UIP. > > Toodles! > > Jane UIP 12/1998 Dalton, Georgia aka pianolady_musicgirl > > > > Fussy? Opinionated? Impossible to please? Perfect. Join Yahoo!'s user > panel and lay it on us. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2007 Report Share Posted September 14, 2007 LOL, I'm feeling better since new bloomers came into my life..LOL... Love and Prayers, Peggy ipf 6/04 Florida " Worry looks around, Sorry looks back, Faith looks up. " Peggy, I also feel that I am missing something? Jane UIP 12/1998 Dalton, Georgia > > Hi Groupies, > > I have been calling and calling and calling the Emory Clinic in > Atlanta to find out the results of my lung biopsy. The doctor will > be calling me next week (hopefully as the secretary stated to me) She > read to me what the pathologist wrote. He identified my pulmonary > fibrosis as UIP. > > Toodles! > > Jane UIP 12/1998 Dalton, Georgia aka pianolady_musicgirl > > > > Fussy? Opinionated? Impossible to please? Perfect. Join Yahoo!'s user > panel and lay it on us. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2007 Report Share Posted September 14, 2007 Jane, no one is looking for the dreaded PRED. I know you aren't and neither is anyone else. Sorry! I didn't mean to imply otherwise. I was trying to say I do not believe you have anything to gain from it. I only wanted to pass along what I believe to be the current " wisdom " . BTB when VIAGRA is prescribed for pulmonary issues it is called REVATIO. (More wisdom) the studies/trials (REVATIO) I believe were confined to COPD patients. Leanne help me out on this if you would please. Jane sorry for any mis-communication. UIP/IPF/LCH 5.06 > > > > > > > Hi Groupies, > > > > > > I have been calling and calling and calling the Emory Clinic in > > > Atlanta to find out the results of my lung biopsy. The doctor will > > > be calling me next week (hopefully as the secretary stated to me) > She > > > read to me what the pathologist wrote. He identified my pulmonary > > > fibrosis as UIP. > > > > > > Toodles! > > > > > > Jane UIP 12/1998 Dalton, Georgia aka pianolady_musicgirl > > > > > > > > > > > > > > > > > > > > > --------------------------------- > > > Fussy? Opinionated? Impossible to please? Perfect. Join Yahoo!'s > > user panel and lay it on us. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2007 Report Share Posted September 14, 2007 Jane, no one is looking for the dreaded PRED. I know you aren't and neither is anyone else. Sorry! I didn't mean to imply otherwise. I was trying to say I do not believe you have anything to gain from it. I only wanted to pass along what I believe to be the current " wisdom " . BTB when VIAGRA is prescribed for pulmonary issues it is called REVATIO. (More wisdom) the studies/trials (REVATIO) I believe were confined to COPD patients. Leanne help me out on this if you would please. Jane sorry for any mis-communication. UIP/IPF/LCH 5.06 > > > > > > > Hi Groupies, > > > > > > I have been calling and calling and calling the Emory Clinic in > > > Atlanta to find out the results of my lung biopsy. The doctor will > > > be calling me next week (hopefully as the secretary stated to me) > She > > > read to me what the pathologist wrote. He identified my pulmonary > > > fibrosis as UIP. > > > > > > Toodles! > > > > > > Jane UIP 12/1998 Dalton, Georgia aka pianolady_musicgirl > > > > > > > > > > > > > > > > > > > > > --------------------------------- > > > Fussy? Opinionated? Impossible to please? Perfect. Join Yahoo!'s > > user panel and lay it on us. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2007 Report Share Posted September 15, 2007 Okay Peggy, I am lost too. New bloomers as in flowers or do you have new undies? Peggy wrote: LOL, I'm feeling better since new bloomers came into my life..LOL... Love and Prayers, Peggy ipf 6/04 Florida "Worry looks around, Sorry looks back, Faith looks up." Peggy, I also feel that I am missing something? Jane UIP 12/1998 Dalton, Georgia > > Hi Groupies, > > I have been calling and calling and calling the Emory Clinic in > Atlanta to find out the results of my lung biopsy. The doctor will > be calling me next week (hopefully as the secretary stated to me) She > read to me what the pathologist wrote. He identified my pulmonary > fibrosis as UIP. > > Toodles! > > Jane UIP 12/1998 Dalton, Georgia aka pianolady_musicgirl > > > > Fussy? Opinionated? Impossible to please? Perfect. Join Yahoo!'s user > panel and lay it on us. > Sarcoid/PF 3/2006 Fussy? Opinionated? Impossible to please? Perfect. Join Yahoo!'s user panel and lay it on us. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2007 Report Share Posted September 15, 2007 Okay Peggy, I am lost too. New bloomers as in flowers or do you have new undies? Peggy wrote: LOL, I'm feeling better since new bloomers came into my life..LOL... Love and Prayers, Peggy ipf 6/04 Florida "Worry looks around, Sorry looks back, Faith looks up." Peggy, I also feel that I am missing something? Jane UIP 12/1998 Dalton, Georgia > > Hi Groupies, > > I have been calling and calling and calling the Emory Clinic in > Atlanta to find out the results of my lung biopsy. The doctor will > be calling me next week (hopefully as the secretary stated to me) She > read to me what the pathologist wrote. He identified my pulmonary > fibrosis as UIP. > > Toodles! > > Jane UIP 12/1998 Dalton, Georgia aka pianolady_musicgirl > > > > Fussy? Opinionated? Impossible to please? Perfect. Join Yahoo!'s user > panel and lay it on us. > Sarcoid/PF 3/2006 Fussy? Opinionated? Impossible to please? Perfect. Join Yahoo!'s user panel and lay it on us. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2007 Report Share Posted September 15, 2007 Okay Peggy, I am lost too. New bloomers as in flowers or do you have new undies? Peggy wrote: LOL, I'm feeling better since new bloomers came into my life..LOL... Love and Prayers, Peggy ipf 6/04 Florida "Worry looks around, Sorry looks back, Faith looks up." Peggy, I also feel that I am missing something? Jane UIP 12/1998 Dalton, Georgia > > Hi Groupies, > > I have been calling and calling and calling the Emory Clinic in > Atlanta to find out the results of my lung biopsy. The doctor will > be calling me next week (hopefully as the secretary stated to me) She > read to me what the pathologist wrote. He identified my pulmonary > fibrosis as UIP. > > Toodles! > > Jane UIP 12/1998 Dalton, Georgia aka pianolady_musicgirl > > > > Fussy? Opinionated? Impossible to please? Perfect. Join Yahoo!'s user > panel and lay it on us. > Sarcoid/PF 3/2006 Fussy? Opinionated? Impossible to please? Perfect. Join Yahoo!'s user panel and lay it on us. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2007 Report Share Posted September 15, 2007 jane sorry its uip, same as me, but at least you know. i look forward to hearing about viagra. do you think there will be any special side effects!!!! may glasgow, scotland uip 06.06 > > > Hi Groupies, > > I have been calling and calling and calling the Emory Clinic in Atlanta > to find out the results of my lung biopsy. The doctor will be calling > me next week (hopefully as the secretary stated to me) She read to me > what the pathologist wrote. He identified my pulmonary fibrosis as UIP. > > Toodles! > > Jane UIP 12/1998 Dalton, Georgia aka pianolady_musicgirl > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2007 Report Share Posted September 15, 2007 jane sorry its uip, same as me, but at least you know. i look forward to hearing about viagra. do you think there will be any special side effects!!!! may glasgow, scotland uip 06.06 > > > Hi Groupies, > > I have been calling and calling and calling the Emory Clinic in Atlanta > to find out the results of my lung biopsy. The doctor will be calling > me next week (hopefully as the secretary stated to me) She read to me > what the pathologist wrote. He identified my pulmonary fibrosis as UIP. > > Toodles! > > Jane UIP 12/1998 Dalton, Georgia aka pianolady_musicgirl > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2007 Report Share Posted September 15, 2007 jane sorry its uip, same as me, but at least you know. i look forward to hearing about viagra. do you think there will be any special side effects!!!! may glasgow, scotland uip 06.06 > > > Hi Groupies, > > I have been calling and calling and calling the Emory Clinic in Atlanta > to find out the results of my lung biopsy. The doctor will be calling > me next week (hopefully as the secretary stated to me) She read to me > what the pathologist wrote. He identified my pulmonary fibrosis as UIP. > > Toodles! > > Jane UIP 12/1998 Dalton, Georgia aka pianolady_musicgirl > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2007 Report Share Posted September 15, 2007 Well the other night on the chat, we were talking about that I had gone shopping and Joyce D. pops up with I know you had yo have new undies to travel.. ya had to be there. It was funny. still makes me chuckle. And don't you know Jon was on lurking... I told him I am not modeling them..lol.. Love and Prayers, Peggy ipf 6/04 Florida " Worry looks around, Sorry looks back, Faith looks up. " Okay Peggy, I am lost too. New bloomers as in flowers or do you have new undies? Peggy wrote: LOL, I'm feeling better since new bloomers came into my life..LOL... Love and Prayers, Peggy ipf 6/04 Florida " Worry looks around, Sorry looks back, Faith looks up. " Peggy, I also feel that I am missing something? Jane UIP 12/1998 Dalton, Georgia > > Hi Groupies, > > I have been calling and calling and calling the Emory Clinic in > Atlanta to find out the results of my lung biopsy. The doctor will > be calling me next week (hopefully as the secretary stated to me) She > read to me what the pathologist wrote. He identified my pulmonary > fibrosis as UIP. > > Toodles! > > Jane UIP 12/1998 Dalton, Georgia aka pianolady_musicgirl > > > > Fussy? Opinionated? Impossible to please? Perfect. Join Yahoo!'s user > panel and lay it on us. > Sarcoid/PF 3/2006 Fussy? Opinionated? Impossible to please? Perfect. Join Yahoo!'s user panel and lay it on us. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2007 Report Share Posted September 15, 2007 Well the other night on the chat, we were talking about that I had gone shopping and Joyce D. pops up with I know you had yo have new undies to travel.. ya had to be there. It was funny. still makes me chuckle. And don't you know Jon was on lurking... I told him I am not modeling them..lol.. Love and Prayers, Peggy ipf 6/04 Florida " Worry looks around, Sorry looks back, Faith looks up. " Okay Peggy, I am lost too. New bloomers as in flowers or do you have new undies? Peggy wrote: LOL, I'm feeling better since new bloomers came into my life..LOL... Love and Prayers, Peggy ipf 6/04 Florida " Worry looks around, Sorry looks back, Faith looks up. " Peggy, I also feel that I am missing something? Jane UIP 12/1998 Dalton, Georgia > > Hi Groupies, > > I have been calling and calling and calling the Emory Clinic in > Atlanta to find out the results of my lung biopsy. The doctor will > be calling me next week (hopefully as the secretary stated to me) She > read to me what the pathologist wrote. He identified my pulmonary > fibrosis as UIP. > > Toodles! > > Jane UIP 12/1998 Dalton, Georgia aka pianolady_musicgirl > > > > Fussy? Opinionated? Impossible to please? Perfect. Join Yahoo!'s user > panel and lay it on us. > Sarcoid/PF 3/2006 Fussy? Opinionated? Impossible to please? Perfect. Join Yahoo!'s user panel and lay it on us. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2007 Report Share Posted September 15, 2007 Well the other night on the chat, we were talking about that I had gone shopping and Joyce D. pops up with I know you had yo have new undies to travel.. ya had to be there. It was funny. still makes me chuckle. And don't you know Jon was on lurking... I told him I am not modeling them..lol.. Love and Prayers, Peggy ipf 6/04 Florida " Worry looks around, Sorry looks back, Faith looks up. " Okay Peggy, I am lost too. New bloomers as in flowers or do you have new undies? Peggy wrote: LOL, I'm feeling better since new bloomers came into my life..LOL... Love and Prayers, Peggy ipf 6/04 Florida " Worry looks around, Sorry looks back, Faith looks up. " Peggy, I also feel that I am missing something? Jane UIP 12/1998 Dalton, Georgia > > Hi Groupies, > > I have been calling and calling and calling the Emory Clinic in > Atlanta to find out the results of my lung biopsy. The doctor will > be calling me next week (hopefully as the secretary stated to me) She > read to me what the pathologist wrote. He identified my pulmonary > fibrosis as UIP. > > Toodles! > > Jane UIP 12/1998 Dalton, Georgia aka pianolady_musicgirl > > > > Fussy? Opinionated? Impossible to please? Perfect. Join Yahoo!'s user > panel and lay it on us. > Sarcoid/PF 3/2006 Fussy? Opinionated? Impossible to please? Perfect. Join Yahoo!'s user panel and lay it on us. Quote Link to comment Share on other sites More sharing options...
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