6 months post UAE status report

[Guest guest]

Cheryl, Quite honestly, I arrived at the decision to have UAE on my own, after

researching it on the web. My ob/gyn is unimformed about the procedure. I have

a very good family dr who was familiar with UAE & coordinated getting me in for

an MRI/MRA and helped me get to an IR who was familiar & had done the UAE

procedure. At this time I am in limbo waiting for my ob/gyn & the IR to work

together so I can set a date to have the procedure. I'm hoping to have the

procedure in March, if not then early April. I'd have to say, if you don't have

a very supportive dr (or for that matter-even if you do) to learn all you can

about the procedure through websites, through this list-which is a great

tool-actually being able to " talk " to patients who have had UAE! When I met

w/the IR I had my films in hand from the MRI/MRA, so he could be informed of my

size of fibroids-more than just by reading the radiologist's report. Have you

had an ultrasound/or MRI? Is your concern mostly due to the lack of experience

that dr has w/UAE? You definately want to feel comfortable w/the dr. For me

that was a real big thing. Hope this helps. Would be glad to discuss this

further with you. All the best in making your decision. -Elise.

Cheryl wrote: Elsie, can you share what steps

you went through to arrive at the decision

to have UAE. I am planning to discuss a date for a UAE and I have talked to

only one doctor at the National Naval Medical Center In Bethesda. He has

done 5 of these procedures. I'd like to hear from others on the list serve

as to whether I should talk to the other two doctors at this facility to

determine which doctor is right for me. I want so much for this to be over,

but I don't want to hurriedly force a solution because of my anxiety.

Thanks,

cheryl

Re: Fwd: 6 months post UAE status report

>

> Nina, Good Luck to you with your upcoming UAE. I plan to have UAE in a

few weeks, the drs are comparing notes to be sure that is the right thing

for me to do, but I believe it is. I am sure I will be scared & nervous

too. You will be in my thoughts & prayers. Be sure to let us know how

things go. All the best to you- Elise.

> TOJANINKA@... wrote: Hi Debbie,

>

> I really like your mathematical approach to fibroids and UAE results.

>

> I am having embolization on Thursday. I am feeling nervous now. I am

taking

> Wednesday off work to get myself ready (emotionally ) to this procedure. I

> hope my results will be positive.

>

> Thank you for your experience.

>

> Nina

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> Your e-mail;

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> All,

> Today I had my 6 month post UAE ultrasound. Today I consider my UAE about

> 58% successful. I'll explain. The three things I wanted/needed to fix w/

> UAE was: 1) blood clots and heavy bleeding; 2) Urination frequency; 3)

> fibroid/stomach reduction. I translate this to 100% success = 33% + 33% +

> 33%. I no longer have blood clots and heavy bleeding = 33%. I've gained

2

> hours sleep which is now 6 hrs maximum sleep w/o having to pee = 15% (I

want

> 8 hours of sleep.). My stomach is mostly all there, but I have achieved

65%

> volume reduction in fibroid; pre 8/1/01 my fibroid was ~10cm, had UAE on

> 8/1/01; 3 months post UAE my fibroid was ~8cm; today my fibroid measured

> ~7cm. = I'll give this 10% success.

>

> So I consider my UAE ~58% successful at 6 months post UAE. I'm praying to

> the " UAE gods " for heavy discharge in the hope my fibroid will slough and

BE

> GONE!!!!! My discharge is mostly light, I only get a little on about the

8th

> day after my first day of period.

>

> I have a mostly subserosal fibroid, partly intramural.

>

> - Debbie

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