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your diagnosis & mine

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Hi Joy-My name is Ronnie (a female) and I was

misdiagnosed, just like you were. I was sent home

also thinking I had very little time left. Because of

this I retired from teaching-34 years, was in the

process of signing up for a placebo study and possible

lung transplant. I had all the exams done in cluding

a broncoscopy and open lung biopsy, heart cath. etc.

for the transplant then when I finally, after 6

months, got to see the doctor in Seattle, it was

discovered that my Montana doctor had failed to send

the 3rd biopsy to the Mayo clinic for diagnosis. A

month later it was finally sent in and returned with a

" hypersensitivity pneumonitis " diagnosis. I didn't

know whther to scream or shout for joy. I was angry

with the doctors because of what I and my family had

gone through but now that time has passed I decided I

am in charge of my life and must make it the best I

can from now on-I always lived my life for others and

now am living it for myself. Sounds selfish but I

feel that I've been given a 2nd chance. My disease

was caused by mold however we can't find the source.

I think it was carpet in my school but the carpet has

sense been removed so I have no proof. Anyway this

all happend in 2004 and my husband and I have moved

from Montana to Wenatchee, Wa. At this lower

elevation I can go without oxygen during the day, have

great doctors and am closer to my doctors in Seattle.

I am taking medicenes, prednisone 5 mg. and others

which I think helps with my congestion. Anyway if you

have any questions or care to write my email address

is runningred3@.... Sincerely, Ronnie Tuss

________________________________________________________________________________\

____

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