your diagnosis & mine

[Guest guest]

Hi Joy-My name is Ronnie (a female) and I was

misdiagnosed, just like you were. I was sent home

also thinking I had very little time left. Because of

this I retired from teaching-34 years, was in the

process of signing up for a placebo study and possible

lung transplant. I had all the exams done in cluding

a broncoscopy and open lung biopsy, heart cath. etc.

for the transplant then when I finally, after 6

months, got to see the doctor in Seattle, it was

discovered that my Montana doctor had failed to send

the 3rd biopsy to the Mayo clinic for diagnosis. A

month later it was finally sent in and returned with a

" hypersensitivity pneumonitis " diagnosis. I didn't

know whther to scream or shout for joy. I was angry

with the doctors because of what I and my family had

gone through but now that time has passed I decided I

am in charge of my life and must make it the best I

can from now on-I always lived my life for others and

now am living it for myself. Sounds selfish but I

feel that I've been given a 2nd chance. My disease

was caused by mold however we can't find the source.

I think it was carpet in my school but the carpet has

sense been removed so I have no proof. Anyway this

all happend in 2004 and my husband and I have moved

from Montana to Wenatchee, Wa. At this lower

elevation I can go without oxygen during the day, have

great doctors and am closer to my doctors in Seattle.

I am taking medicenes, prednisone 5 mg. and others

which I think helps with my congestion. Anyway if you

have any questions or care to write my email address

is runningred3@.... Sincerely, Ronnie Tuss

________________________________________________________________________________\

____

Boardwalk for $500? In 2007? Ha! Play Monopoly Here and Now (it's updated for

today's economy) at Yahoo! Games.

http://get.games.yahoo.com/proddesc?gamekey=monopolyherenow

[Guest guest]

We had mold in the duct work of our home in Tampa. I was sich for years not

knowing

why. changed it out the next day after finding it. I began to feel better

right away.

we moved and went in to meet our new Dr. and one thing led to another and I have

IPF.

We are not sure about the mold being the cause but I refused a OLB because the

treatment

is the same and it is much much to dangerious.. Anyhow God Bless you both in

your fight

with this monster.

Love & Prayers, Peggy IPF 6/04 Florida

>

> Hi Joy-My name is Ronnie (a female) and I was

> misdiagnosed, just like you were. I was sent home

> also thinking I had very little time left. Because of

> this I retired from teaching-34 years, was in the

> process of signing up for a placebo study and possible

> lung transplant. I had all the exams done in cluding

> a broncoscopy and open lung biopsy, heart cath. etc.

> for the transplant then when I finally, after 6

> months, got to see the doctor in Seattle, it was

> discovered that my Montana doctor had failed to send

> the 3rd biopsy to the Mayo clinic for diagnosis. A

> month later it was finally sent in and returned with a

> " hypersensitivity pneumonitis " diagnosis. I didn't

> know whther to scream or shout for joy. I was angry

> with the doctors because of what I and my family had

> gone through but now that time has passed I decided I

> am in charge of my life and must make it the best I

> can from now on-I always lived my life for others and

> now am living it for myself. Sounds selfish but I

> feel that I've been given a 2nd chance. My disease

> was caused by mold however we can't find the source.

> I think it was carpet in my school but the carpet has

> sense been removed so I have no proof. Anyway this

> all happend in 2004 and my husband and I have moved

> from Montana to Wenatchee, Wa. At this lower

> elevation I can go without oxygen during the day, have

> great doctors and am closer to my doctors in Seattle.

> I am taking medicenes, prednisone 5 mg. and others

> which I think helps with my congestion. Anyway if you

> have any questions or care to write my email address

> is runningred3@... Sincerely, Ronnie Tuss

>

>

>

>

________________________________________________________________________________\

____

> Boardwalk for $500? In 2007? Ha! Play Monopoly Here and Now (it's updated for

today's

economy) at Yahoo! Games.

> http://get.games.yahoo.com/proddesc?gamekey=monopolyherenow

>