Guest guest Posted November 6, 2000 Report Share Posted November 6, 2000 Welcome to Kathy Lori Jo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2000 Report Share Posted November 6, 2000 Welcome to Kathy Lori Jo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2000 Report Share Posted November 6, 2000 Welcome to Kathy Lori Jo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2000 Report Share Posted November 6, 2000 I think you've joined!! Welcome to the Crew!! I know exactly were your coming from. I get a lot of poohoos from my family as well. It makes it hard. You will find LOTS of support here tho!! I am Lori Phibbs, from Toledo,Oregon, USA. My geography is bad!! Are you from England???? I'll be looking for your posts, please don't be shy. We are all friends here!! Bye for now, Lori:) New Member Kathy Hammond > kathrynhammond@... > > The specialists think I have mosaic NF2. I do not know whether my three > children have been passed down the genes. My oldest is having a brain Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2000 Report Share Posted November 6, 2000 I think you've joined!! Welcome to the Crew!! I know exactly were your coming from. I get a lot of poohoos from my family as well. It makes it hard. You will find LOTS of support here tho!! I am Lori Phibbs, from Toledo,Oregon, USA. My geography is bad!! Are you from England???? I'll be looking for your posts, please don't be shy. We are all friends here!! Bye for now, Lori:) New Member Kathy Hammond > kathrynhammond@... > > The specialists think I have mosaic NF2. I do not know whether my three > children have been passed down the genes. My oldest is having a brain Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2000 Report Share Posted November 6, 2000 Kathy Looks like your part of our crew now, so welcome . NO you sure dont sound like your moaning. I'm Marcus and live down under in AUSTRALIA . If you think you have problems up there then just remember we all have to walk upside down , down here !!! ... Welcome again Marcus Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2000 Report Share Posted November 6, 2000 Kathy Looks like your part of our crew now, so welcome . NO you sure dont sound like your moaning. I'm Marcus and live down under in AUSTRALIA . If you think you have problems up there then just remember we all have to walk upside down , down here !!! ... Welcome again Marcus Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2000 Report Share Posted November 6, 2000 Kathy Looks like your part of our crew now, so welcome . NO you sure dont sound like your moaning. I'm Marcus and live down under in AUSTRALIA . If you think you have problems up there then just remember we all have to walk upside down , down here !!! ... Welcome again Marcus Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2000 Report Share Posted November 6, 2000 geesh,I went to bed and a bunch of people join.Well,just want to welcome everyone.I can relate to the family thing,most them just think i'm a lazy bum Jimmy ----- > > >_____NetZero Free Internet Access and Email______ > http://www.netzero.net/download/index.html > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2000 Report Share Posted November 6, 2000 geesh,I went to bed and a bunch of people join.Well,just want to welcome everyone.I can relate to the family thing,most them just think i'm a lazy bum Jimmy ----- > > >_____NetZero Free Internet Access and Email______ > http://www.netzero.net/download/index.html > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2000 Report Share Posted November 6, 2000 Welcome Kathy -- and you're not moaning! I think it's probably fairly normal for extended family to not acknowledge there's anything wrong -- they can't see it and as long as you still look the same they can pretty much deny (to themselves) that you're sick. I also think it scares them to talk about it. There isn't much they can do to help anyway! Except you need someone to vent to sometimes. You can also do that here. There are a few of us in our 50's in the crew -- I only found out about my nf2 10 years ago, and consider myself lucky that they didn't show up earlier -- the nasty little buggers have made up for lost time, tho! One thing about this crud is that nobody knows for sure the perfect course of action to take! But there are some of the crew who are marvelous researchers and I learn a lot just reading the posts! Charlotte New Member Kathy Hammond > like to join the group because I feel isolated. Most of my family do > not seem to believe that there is much wrong and refuse to talk about it. .. .. . . . . . . . Sorry about > moaning. . Thanks Kathy Hammond > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2000 Report Share Posted November 11, 2000 In a message dated 11/11/00 6:06:10 AM Pacific Standard Time, kathrynhammond@... writes: << WARNING THESE QUICK WIT COMMENTS MAY CAUSE OFFENSE >> Kathy, I am sorry that you have to put up with comments like these. Maybe if they had to walk a mile in our shoes they would not be so quick to make these rude comments. I have heard some of the same from some " well meaning friends " Lori Jo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2000 Report Share Posted November 11, 2000 Welcome Kathy ) Sounds like you found the right place. ) Sara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2000 Report Share Posted November 11, 2000 Welcome Kathy ) Sounds like you found the right place. ) Sara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2000 Report Share Posted November 11, 2000 Welcome Kathy ) Sounds like you found the right place. ) Sara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2000 Report Share Posted November 11, 2000 Dear Lori, Thanks for taking the time to reply. Yes I live in the middle of England about 3omins car ride to where Princess lived and was buried. I don't know where Toledo is until I look on an atlas. It is nice to feel a little less of a freak. I think most of my family think I imagined the condition as part of a mid life crises. No-body ever asks how I am. > >Reply-To: NF2_Crewegroups >To: <NF2_Crewegroups> >Subject: Re: New Member Kathy Hammond >Date: Mon, 6 Nov 2000 02:16:57 -0800 > >I think you've joined!! Welcome to the Crew!! I know exactly were >your >coming from. I get a lot of poohoos from my family as well. It makes it >hard. You will find LOTS of support here tho!! I am Lori Phibbs, from >Toledo,Oregon, USA. My geography is bad!! Are you from England???? I'll >be looking for your posts, please don't be shy. We are all friends here!! > Bye for now, Lori:) > New Member Kathy Hammond > > > > kathrynhammond@... > > > > The specialists think I have mosaic NF2. I do not know whether my three > > children have been passed down the genes. My oldest is having a brain > > > > > _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Share information about yourself, create your own public profile at http://profiles.msn.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2000 Report Share Posted November 11, 2000 Marcus, Thanks for the welcome and sharing the joke. We are unable to walk upside down as the rain keeps going up our nostrils, at least we don't have to worry about the sun in our eyes. Best wishes Kathy > >Reply-To: NF2_Crewegroups >To: <NF2_Crewegroups> >Subject: Re: New Member Kathy Hammond >Date: Mon, 6 Nov 2000 22:46:31 +1000 > > Kathy >Looks like your part of our crew now, so welcome . NO you sure dont sound >like your moaning. >I'm Marcus and live down under in AUSTRALIA . If you think you have >problems >up there then just remember we all have to walk upside down , down here !!! >.. > >Welcome again >Marcus > > > > _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Share information about yourself, create your own public profile at http://profiles.msn.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2000 Report Share Posted November 11, 2000 Marcus, Thanks for the welcome and sharing the joke. We are unable to walk upside down as the rain keeps going up our nostrils, at least we don't have to worry about the sun in our eyes. Best wishes Kathy > >Reply-To: NF2_Crewegroups >To: <NF2_Crewegroups> >Subject: Re: New Member Kathy Hammond >Date: Mon, 6 Nov 2000 22:46:31 +1000 > > Kathy >Looks like your part of our crew now, so welcome . NO you sure dont sound >like your moaning. >I'm Marcus and live down under in AUSTRALIA . If you think you have >problems >up there then just remember we all have to walk upside down , down here !!! >.. > >Welcome again >Marcus > > > > _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Share information about yourself, create your own public profile at http://profiles.msn.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2000 Report Share Posted November 11, 2000 Marcus, Thanks for the welcome and sharing the joke. We are unable to walk upside down as the rain keeps going up our nostrils, at least we don't have to worry about the sun in our eyes. Best wishes Kathy > >Reply-To: NF2_Crewegroups >To: <NF2_Crewegroups> >Subject: Re: New Member Kathy Hammond >Date: Mon, 6 Nov 2000 22:46:31 +1000 > > Kathy >Looks like your part of our crew now, so welcome . NO you sure dont sound >like your moaning. >I'm Marcus and live down under in AUSTRALIA . If you think you have >problems >up there then just remember we all have to walk upside down , down here !!! >.. > >Welcome again >Marcus > > > > _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Share information about yourself, create your own public profile at http://profiles.msn.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2000 Report Share Posted November 11, 2000 Thanks for the welcome handsome Jimmy, so how come people think your a lazy bum? I think I should have made a list of all the offensive things family said like:- You can't have a real brain tumour. Well why worry nobody knows what is going to happen to them. Why don't you go to the doctor and get some pills ( you probably going thru' the menopause) If I found out I'd got that I would move so it did not upset my family. I wish you had not told me. I would prefer if you did not mention it,as it depresses me you talking about it. I'm glad you're better now. If you were a good mum you would not have told your children, it could upset them. What good does worrying about it do - just be happy. what real difference does it make how long you live, in the wider picture of things. You can't possibly have that you must be imagining it. WARNING THESE QUICK WIT COMMENTS MAY CAUSE OFFENSE Yet most of these people see themselves as caring individuals, and meant to be helpful. Best wishes Kathy > >Reply-To: NF2_Crewegroups >To: <NF2_Crewegroups> >Subject: Re: New Member Kathy Hammond >Date: Mon, 6 Nov 2000 09:42:58 -0500 > >geesh,I went to bed and a bunch of people join.Well,just want to welcome >everyone.I can relate to the family thing,most them just think i'm a lazy >bum >Jimmy >----- > > > > > >_____NetZero Free Internet Access and Email______ > > http://www.netzero.net/download/index.html > > > > > > > > > > _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Share information about yourself, create your own public profile at http://profiles.msn.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2000 Report Share Posted November 11, 2000 Re: New Member Kathy Hammond >Thanks for the welcome handsome Jimmy, so how come people think your a lazy >bum? ........................................................................ My guess is they suffer from Irregularity. Jimmy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2000 Report Share Posted November 11, 2000 Re: New Member Kathy Hammond >Thanks for the welcome handsome Jimmy, so how come people think your a lazy >bum? ........................................................................ My guess is they suffer from Irregularity. Jimmy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2000 Report Share Posted November 11, 2000 Re: New Member Kathy Hammond >Thanks for the welcome handsome Jimmy, so how come people think your a lazy >bum? ........................................................................ My guess is they suffer from Irregularity. Jimmy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2000 Report Share Posted November 11, 2000 Hey Kathy! Want a water-ballon hit man????? Then again, they are all wet anyway!!! Carol Kathy Hammond wrote: > Thanks for the welcome handsome Jimmy, so how come people think your a lazy > bum? > I think I should have made a list of all the offensive things family said > like:- > You can't have a real brain tumour. > Well why worry nobody knows what is going to happen to them. > Why don't you go to the doctor and get some pills ( you probably > going thru' the menopause) > If I found out I'd got that I would move so it did not upset my family. > I wish you had not told me. > I would prefer if you did not mention it,as it depresses me you talking > about it. > I'm glad you're better now. > If you were a good mum you would not have told your children, it could upset > them. > What good does worrying about it do - just be happy. > what real difference does it make how long you live, in the wider picture of > things. > You can't possibly have that you must be imagining it. > WARNING THESE QUICK WIT COMMENTS MAY CAUSE OFFENSE > > Yet most of these people see themselves as caring individuals, and meant to > be helpful. Best wishes Kathy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2000 Report Share Posted November 11, 2000 Hey Kathy! Want a water-ballon hit man????? Then again, they are all wet anyway!!! Carol Kathy Hammond wrote: > Thanks for the welcome handsome Jimmy, so how come people think your a lazy > bum? > I think I should have made a list of all the offensive things family said > like:- > You can't have a real brain tumour. > Well why worry nobody knows what is going to happen to them. > Why don't you go to the doctor and get some pills ( you probably > going thru' the menopause) > If I found out I'd got that I would move so it did not upset my family. > I wish you had not told me. > I would prefer if you did not mention it,as it depresses me you talking > about it. > I'm glad you're better now. > If you were a good mum you would not have told your children, it could upset > them. > What good does worrying about it do - just be happy. > what real difference does it make how long you live, in the wider picture of > things. > You can't possibly have that you must be imagining it. > WARNING THESE QUICK WIT COMMENTS MAY CAUSE OFFENSE > > Yet most of these people see themselves as caring individuals, and meant to > be helpful. Best wishes Kathy > Quote Link to comment Share on other sites More sharing options...
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