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Re: New Member Kathy Hammond

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I think you've joined!! :) Welcome to the Crew!! I know exactly were your

coming from. I get a lot of poohoos from my family as well. It makes it

hard. You will find LOTS of support here tho!! I am Lori Phibbs, from

Toledo,Oregon, USA. My geography is bad!! Are you from England???? I'll

be looking for your posts, please don't be shy. We are all friends here!!

Bye for now, Lori:)

New Member Kathy Hammond

> kathrynhammond@...

>

> The specialists think I have mosaic NF2. I do not know whether my three

> children have been passed down the genes. My oldest is having a brain

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I think you've joined!! :) Welcome to the Crew!! I know exactly were your

coming from. I get a lot of poohoos from my family as well. It makes it

hard. You will find LOTS of support here tho!! I am Lori Phibbs, from

Toledo,Oregon, USA. My geography is bad!! Are you from England???? I'll

be looking for your posts, please don't be shy. We are all friends here!!

Bye for now, Lori:)

New Member Kathy Hammond

> kathrynhammond@...

>

> The specialists think I have mosaic NF2. I do not know whether my three

> children have been passed down the genes. My oldest is having a brain

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Kathy

Looks like your part of our crew now, so welcome . NO you sure dont sound

like your moaning.

I'm Marcus and live down under in AUSTRALIA . If you think you have problems

up there then just remember we all have to walk upside down , down here !!!

...

Welcome again

Marcus

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Kathy

Looks like your part of our crew now, so welcome . NO you sure dont sound

like your moaning.

I'm Marcus and live down under in AUSTRALIA . If you think you have problems

up there then just remember we all have to walk upside down , down here !!!

...

Welcome again

Marcus

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Kathy

Looks like your part of our crew now, so welcome . NO you sure dont sound

like your moaning.

I'm Marcus and live down under in AUSTRALIA . If you think you have problems

up there then just remember we all have to walk upside down , down here !!!

...

Welcome again

Marcus

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Welcome Kathy -- and you're not moaning! I think it's probably fairly

normal for extended family to not acknowledge there's anything wrong -- they

can't see it and as long as you still look the same they can pretty much

deny (to themselves) that you're sick. I also think it scares them to talk

about it. There isn't much they can do to help anyway! Except you need

someone to vent to sometimes. You can also do that here. There are a few

of us in our 50's in the crew -- I only found out about my nf2 10 years ago,

and consider myself lucky that they didn't show up earlier -- the nasty

little buggers have made up for lost time, tho! One thing about this crud

is that nobody knows for sure the perfect course of action to take! But

there are some of the crew who are marvelous researchers and I learn a lot

just reading the posts!

Charlotte

New Member Kathy Hammond

> like to join the group because I feel isolated. Most of my family do

> not seem to believe that there is much wrong and refuse to talk about it.

.. .. . . . . . . .

Sorry about

> moaning. . Thanks Kathy Hammond

>

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In a message dated 11/11/00 6:06:10 AM Pacific Standard Time,

kathrynhammond@... writes:

<< WARNING THESE QUICK WIT COMMENTS MAY CAUSE OFFENSE >>

Kathy, I am sorry that you have to put up with comments like these. Maybe if

they had to walk a mile in our shoes they would not be so quick to make these

rude comments. I have heard some of the same from some " well meaning friends "

Lori Jo :)

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Dear Lori, Thanks for taking the time to reply. Yes I live in the middle of

England about 3omins car ride to where Princess lived and was buried.

I don't know where Toledo is until I look on an atlas. It is nice to feel

a little less of a freak. I think most of my family think I imagined the

condition as part of a mid life crises. No-body ever asks how I am.

>

>Reply-To: NF2_Crewegroups

>To: <NF2_Crewegroups>

>Subject: Re: New Member Kathy Hammond

>Date: Mon, 6 Nov 2000 02:16:57 -0800

>

>I think you've joined!! :) Welcome to the Crew!! I know exactly were

>your

>coming from. I get a lot of poohoos from my family as well. It makes it

>hard. You will find LOTS of support here tho!! I am Lori Phibbs, from

>Toledo,Oregon, USA. My geography is bad!! Are you from England???? I'll

>be looking for your posts, please don't be shy. We are all friends here!!

> Bye for now, Lori:)

> New Member Kathy Hammond

>

>

> > kathrynhammond@...

> >

> > The specialists think I have mosaic NF2. I do not know whether my three

> > children have been passed down the genes. My oldest is having a brain

>

>

>

>

>

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Marcus,

Thanks for the welcome and sharing the joke. We are unable to walk upside

down as the rain keeps going up our nostrils, at least we don't have to

worry about the sun in our eyes. Best wishes Kathy

>

>Reply-To: NF2_Crewegroups

>To: <NF2_Crewegroups>

>Subject: Re: New Member Kathy Hammond

>Date: Mon, 6 Nov 2000 22:46:31 +1000

>

> Kathy

>Looks like your part of our crew now, so welcome . NO you sure dont sound

>like your moaning.

>I'm Marcus and live down under in AUSTRALIA . If you think you have

>problems

>up there then just remember we all have to walk upside down , down here !!!

>..

>

>Welcome again

>Marcus

>

>

>

>

_________________________________________________________________________

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Marcus,

Thanks for the welcome and sharing the joke. We are unable to walk upside

down as the rain keeps going up our nostrils, at least we don't have to

worry about the sun in our eyes. Best wishes Kathy

>

>Reply-To: NF2_Crewegroups

>To: <NF2_Crewegroups>

>Subject: Re: New Member Kathy Hammond

>Date: Mon, 6 Nov 2000 22:46:31 +1000

>

> Kathy

>Looks like your part of our crew now, so welcome . NO you sure dont sound

>like your moaning.

>I'm Marcus and live down under in AUSTRALIA . If you think you have

>problems

>up there then just remember we all have to walk upside down , down here !!!

>..

>

>Welcome again

>Marcus

>

>

>

>

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Marcus,

Thanks for the welcome and sharing the joke. We are unable to walk upside

down as the rain keeps going up our nostrils, at least we don't have to

worry about the sun in our eyes. Best wishes Kathy

>

>Reply-To: NF2_Crewegroups

>To: <NF2_Crewegroups>

>Subject: Re: New Member Kathy Hammond

>Date: Mon, 6 Nov 2000 22:46:31 +1000

>

> Kathy

>Looks like your part of our crew now, so welcome . NO you sure dont sound

>like your moaning.

>I'm Marcus and live down under in AUSTRALIA . If you think you have

>problems

>up there then just remember we all have to walk upside down , down here !!!

>..

>

>Welcome again

>Marcus

>

>

>

>

_________________________________________________________________________

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Share information about yourself, create your own public profile at

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Thanks for the welcome handsome Jimmy, so how come people think your a lazy

bum?

I think I should have made a list of all the offensive things family said

like:-

You can't have a real brain tumour.

Well why worry nobody knows what is going to happen to them.

Why don't you go to the doctor and get some pills ( you probably

going thru' the menopause)

If I found out I'd got that I would move so it did not upset my family.

I wish you had not told me.

I would prefer if you did not mention it,as it depresses me you talking

about it.

I'm glad you're better now.

If you were a good mum you would not have told your children, it could upset

them.

What good does worrying about it do - just be happy.

what real difference does it make how long you live, in the wider picture of

things.

You can't possibly have that you must be imagining it.

WARNING THESE QUICK WIT COMMENTS MAY CAUSE OFFENSE

Yet most of these people see themselves as caring individuals, and meant to

be helpful. Best wishes Kathy

>

>Reply-To: NF2_Crewegroups

>To: <NF2_Crewegroups>

>Subject: Re: New Member Kathy Hammond

>Date: Mon, 6 Nov 2000 09:42:58 -0500

>

>geesh,I went to bed and a bunch of people join.Well,just want to welcome

>everyone.I can relate to the family thing,most them just think i'm a lazy

>bum

>Jimmy

>-----

> >

> >

> >_____NetZero Free Internet Access and Email______

> > http://www.netzero.net/download/index.html

> >

> >

> >

>

>

>

>

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Re: New Member Kathy Hammond

>Thanks for the welcome handsome Jimmy, so how come people think your a lazy

>bum?

........................................................................

My guess is they suffer from Irregularity.

Jimmy

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Re: New Member Kathy Hammond

>Thanks for the welcome handsome Jimmy, so how come people think your a lazy

>bum?

........................................................................

My guess is they suffer from Irregularity.

Jimmy

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Re: New Member Kathy Hammond

>Thanks for the welcome handsome Jimmy, so how come people think your a lazy

>bum?

........................................................................

My guess is they suffer from Irregularity.

Jimmy

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Hey Kathy! Want a water-ballon hit man????? Then again, they are all wet

anyway!!!

Carol

Kathy Hammond wrote:

> Thanks for the welcome handsome Jimmy, so how come people think your a lazy

> bum?

> I think I should have made a list of all the offensive things family said

> like:-

> You can't have a real brain tumour.

> Well why worry nobody knows what is going to happen to them.

> Why don't you go to the doctor and get some pills ( you probably

> going thru' the menopause)

> If I found out I'd got that I would move so it did not upset my family.

> I wish you had not told me.

> I would prefer if you did not mention it,as it depresses me you talking

> about it.

> I'm glad you're better now.

> If you were a good mum you would not have told your children, it could upset

> them.

> What good does worrying about it do - just be happy.

> what real difference does it make how long you live, in the wider picture of

> things.

> You can't possibly have that you must be imagining it.

> WARNING THESE QUICK WIT COMMENTS MAY CAUSE OFFENSE

>

> Yet most of these people see themselves as caring individuals, and meant to

> be helpful. Best wishes Kathy

>

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Hey Kathy! Want a water-ballon hit man????? Then again, they are all wet

anyway!!!

Carol

Kathy Hammond wrote:

> Thanks for the welcome handsome Jimmy, so how come people think your a lazy

> bum?

> I think I should have made a list of all the offensive things family said

> like:-

> You can't have a real brain tumour.

> Well why worry nobody knows what is going to happen to them.

> Why don't you go to the doctor and get some pills ( you probably

> going thru' the menopause)

> If I found out I'd got that I would move so it did not upset my family.

> I wish you had not told me.

> I would prefer if you did not mention it,as it depresses me you talking

> about it.

> I'm glad you're better now.

> If you were a good mum you would not have told your children, it could upset

> them.

> What good does worrying about it do - just be happy.

> what real difference does it make how long you live, in the wider picture of

> things.

> You can't possibly have that you must be imagining it.

> WARNING THESE QUICK WIT COMMENTS MAY CAUSE OFFENSE

>

> Yet most of these people see themselves as caring individuals, and meant to

> be helpful. Best wishes Kathy

>

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