Guest guest Posted November 1, 2002 Report Share Posted November 1, 2002 We've been quiet for a LONG time now. But, the time has come where I need some advice. Saleah had been sleeping so good in her own bed in her own room since August and the past week she has started not wanting to go to bed and once she finally gets to sleep she wakes up at 3 or 4 in the morning and refuses to go back to sleep. I've even tried just giving her a book and letting her sit in her bed and look at a book, but that won't work either. If I go to walk out of her room, she throws a fit and chases me out of the room and won't go back in until I go in with her... I'M TIRED!!!! Does anyone have any ideas as to what might work here??? I'm at my wits end. I've tried everything I can think of. I refuse to let her get in my bed because I don't want her to get used to waking up and thinking it's ok to get in mom's bed... I just don't know what else to do. She's disrupting the whole household when she does this. Just don't know where to go from here.... Thanks in advance for any advice. Kim mom to Devin 11 yrs. and Saleah 4 1/2 yrs. (CHARGE)Get more from the Web. FREE MSN Explorer download : http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2002 Report Share Posted November 3, 2002 another teency aside on sleep: sprinkling a few drops of pure lavender essential oil on the pillow case helps...you can also rub the back with lavendar massage oil. Barb Mousouris Sleeping problems > > > Saleah had been sleeping so good in her own bed in her own room since > August and the past week she has started not wanting to go to bed and > once she finally gets to sleep she wakes up at 3 or 4 in the morning > and refuses to go back to sleep. > > > Hi, > > It could be behavioral/emotional adjustment to sleeping alone in a > room, like somebody suggested. The compromise they suggested of > sleeping on the floor is a good idea. > > Another possibility is that her " refusal to go back to sleep " is > acutally a neurological difficulty. Some kids w/SI problems have > difficulty with sleep. If your child has vestibular/proprioception > difficulties this type of stimulation before bedtime / upon waking > may help. > > They need a very routine approach to bedtime and can sleep can be > disturbed if the routine of the day or evening is broken. Have you > noticed any changes in her typical routines the past week? (from > company, to missing a therapy/school session, to going somewhere > different or increased activity, to change in meal times, skipping > bath or bedtime story, to sibling acting out....anything). > > This would show up with my son if he had a substitue teacher at > school, or if the classroom was more rowdy than usual, or if they > went to an assembly or had a party breaking the routine of the day. > If we went somewhere else to eat, or if he went to bed later, his > sleep would be affected. > > Some kids have a disorder in their intrinsic sleep pattern...like > transitioning between different stages of sleep (my son again). They > are neurologically unable to maintain/get back to sleep. > > If these things are occurring with your child, she may not want to be > alone simply because she is bored & lonely and in the dark (being a 4 > yr old). Have you tried music; a lamp or flashlight; stuffed animals > in bed--anything quiet that could entertain her without becomming > over-stimulating. > > You may need to stay with her for awhile--you can lay down beside her > and tell her it is time to sleep & you are tired. She needs to play > quietly so you can rest/sleep. Maybe she will join you laying down, > but if not you will at least get some rest (even if not real sleep). > > Does your child NEED the sleep? Or are you " blessed " with a person > who needs only 4-6 hrs of sleep? > > If all else fails, you may want to consider giving her melatonin or > benadryl before bedtime. This helps some, and worsens the difficulty > in some. Benadryl is not addictive but I think i've read that if > melatonin is used long-term that it can be. Benadryl is often > recommended by pediatricians. I personally never wanted to do this > and didn't even try it until my son was around 11 yrs...it made > things worse for us. > > Sleep deprivation is very hard on both parent and child. Make > adjustments in your expectations for both of you when you do not get > a full night's sleep. Long-term sleep deprivation is draining > physically, emotionally, socially, cognitively. Take care of > yourself and allow resttime during the days for yourself. > > My son is still sleeping like your daughter, at age 19 years. I know > the wear & tear it can take. Hopefully this is not the same > situation as with your kidos, but know you are not alone in this > struggle. And, avoid punishing yourself OR your daughter for the > difficulties. .....Roll with the flow as much as possible (after > trying possible interventions of course). > > Keep the faith! (-: > Tammy (son has Accutane Teratogen Syndrome) > > > > Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter) > please contact marion@... or visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > 6th International CHARGE Syndrome Conference, Cleveland, Ohio, > July 25-27, 2003. Information will be available at our website > www.chargesyndrome.org or by calling 1-. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2002 Report Share Posted November 3, 2002 another teency aside on sleep: sprinkling a few drops of pure lavender essential oil on the pillow case helps...you can also rub the back with lavendar massage oil. Barb Mousouris Sleeping problems > > > Saleah had been sleeping so good in her own bed in her own room since > August and the past week she has started not wanting to go to bed and > once she finally gets to sleep she wakes up at 3 or 4 in the morning > and refuses to go back to sleep. > > > Hi, > > It could be behavioral/emotional adjustment to sleeping alone in a > room, like somebody suggested. The compromise they suggested of > sleeping on the floor is a good idea. > > Another possibility is that her " refusal to go back to sleep " is > acutally a neurological difficulty. Some kids w/SI problems have > difficulty with sleep. If your child has vestibular/proprioception > difficulties this type of stimulation before bedtime / upon waking > may help. > > They need a very routine approach to bedtime and can sleep can be > disturbed if the routine of the day or evening is broken. Have you > noticed any changes in her typical routines the past week? (from > company, to missing a therapy/school session, to going somewhere > different or increased activity, to change in meal times, skipping > bath or bedtime story, to sibling acting out....anything). > > This would show up with my son if he had a substitue teacher at > school, or if the classroom was more rowdy than usual, or if they > went to an assembly or had a party breaking the routine of the day. > If we went somewhere else to eat, or if he went to bed later, his > sleep would be affected. > > Some kids have a disorder in their intrinsic sleep pattern...like > transitioning between different stages of sleep (my son again). They > are neurologically unable to maintain/get back to sleep. > > If these things are occurring with your child, she may not want to be > alone simply because she is bored & lonely and in the dark (being a 4 > yr old). Have you tried music; a lamp or flashlight; stuffed animals > in bed--anything quiet that could entertain her without becomming > over-stimulating. > > You may need to stay with her for awhile--you can lay down beside her > and tell her it is time to sleep & you are tired. She needs to play > quietly so you can rest/sleep. Maybe she will join you laying down, > but if not you will at least get some rest (even if not real sleep). > > Does your child NEED the sleep? Or are you " blessed " with a person > who needs only 4-6 hrs of sleep? > > If all else fails, you may want to consider giving her melatonin or > benadryl before bedtime. This helps some, and worsens the difficulty > in some. Benadryl is not addictive but I think i've read that if > melatonin is used long-term that it can be. Benadryl is often > recommended by pediatricians. I personally never wanted to do this > and didn't even try it until my son was around 11 yrs...it made > things worse for us. > > Sleep deprivation is very hard on both parent and child. Make > adjustments in your expectations for both of you when you do not get > a full night's sleep. Long-term sleep deprivation is draining > physically, emotionally, socially, cognitively. Take care of > yourself and allow resttime during the days for yourself. > > My son is still sleeping like your daughter, at age 19 years. I know > the wear & tear it can take. Hopefully this is not the same > situation as with your kidos, but know you are not alone in this > struggle. And, avoid punishing yourself OR your daughter for the > difficulties. .....Roll with the flow as much as possible (after > trying possible interventions of course). > > Keep the faith! (-: > Tammy (son has Accutane Teratogen Syndrome) > > > > Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter) > please contact marion@... or visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > 6th International CHARGE Syndrome Conference, Cleveland, Ohio, > July 25-27, 2003. Information will be available at our website > www.chargesyndrome.org or by calling 1-. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2002 Report Share Posted November 3, 2002 another teency aside on sleep: sprinkling a few drops of pure lavender essential oil on the pillow case helps...you can also rub the back with lavendar massage oil. Barb Mousouris Sleeping problems > > > Saleah had been sleeping so good in her own bed in her own room since > August and the past week she has started not wanting to go to bed and > once she finally gets to sleep she wakes up at 3 or 4 in the morning > and refuses to go back to sleep. > > > Hi, > > It could be behavioral/emotional adjustment to sleeping alone in a > room, like somebody suggested. The compromise they suggested of > sleeping on the floor is a good idea. > > Another possibility is that her " refusal to go back to sleep " is > acutally a neurological difficulty. Some kids w/SI problems have > difficulty with sleep. If your child has vestibular/proprioception > difficulties this type of stimulation before bedtime / upon waking > may help. > > They need a very routine approach to bedtime and can sleep can be > disturbed if the routine of the day or evening is broken. Have you > noticed any changes in her typical routines the past week? (from > company, to missing a therapy/school session, to going somewhere > different or increased activity, to change in meal times, skipping > bath or bedtime story, to sibling acting out....anything). > > This would show up with my son if he had a substitue teacher at > school, or if the classroom was more rowdy than usual, or if they > went to an assembly or had a party breaking the routine of the day. > If we went somewhere else to eat, or if he went to bed later, his > sleep would be affected. > > Some kids have a disorder in their intrinsic sleep pattern...like > transitioning between different stages of sleep (my son again). They > are neurologically unable to maintain/get back to sleep. > > If these things are occurring with your child, she may not want to be > alone simply because she is bored & lonely and in the dark (being a 4 > yr old). Have you tried music; a lamp or flashlight; stuffed animals > in bed--anything quiet that could entertain her without becomming > over-stimulating. > > You may need to stay with her for awhile--you can lay down beside her > and tell her it is time to sleep & you are tired. She needs to play > quietly so you can rest/sleep. Maybe she will join you laying down, > but if not you will at least get some rest (even if not real sleep). > > Does your child NEED the sleep? Or are you " blessed " with a person > who needs only 4-6 hrs of sleep? > > If all else fails, you may want to consider giving her melatonin or > benadryl before bedtime. This helps some, and worsens the difficulty > in some. Benadryl is not addictive but I think i've read that if > melatonin is used long-term that it can be. Benadryl is often > recommended by pediatricians. I personally never wanted to do this > and didn't even try it until my son was around 11 yrs...it made > things worse for us. > > Sleep deprivation is very hard on both parent and child. Make > adjustments in your expectations for both of you when you do not get > a full night's sleep. Long-term sleep deprivation is draining > physically, emotionally, socially, cognitively. Take care of > yourself and allow resttime during the days for yourself. > > My son is still sleeping like your daughter, at age 19 years. I know > the wear & tear it can take. Hopefully this is not the same > situation as with your kidos, but know you are not alone in this > struggle. And, avoid punishing yourself OR your daughter for the > difficulties. .....Roll with the flow as much as possible (after > trying possible interventions of course). > > Keep the faith! (-: > Tammy (son has Accutane Teratogen Syndrome) > > > > Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter) > please contact marion@... or visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > 6th International CHARGE Syndrome Conference, Cleveland, Ohio, > July 25-27, 2003. Information will be available at our website > www.chargesyndrome.org or by calling 1-. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2002 Report Share Posted November 3, 2002 Thank you all for your good ideas. We tried the sleeping on our floor last night and it worked pretty well. She still was unsettled for about an hour, but then slept good. The only problem with us trying to give her something to do in bed is that she is deaf, so the music wouldn't work, giving her a flashlight would just mean that she'd want to come and flash it in everyone faces, and she doesn't like stuffed animals... We tried books, that didn't work... I will ask her ped. about Benadryl. Not sure I want to do that, but if worse came to worse I probably would for a night. One thing that was different this week is that she is in a year round preschool and they didn't have school at all this week. So, her daily routine was changed dramatically... Thanks again for all the good advice. I'll keep you posted on how things go. Kim mom to Devin 11 yrs. and Saleah 4 1/2 yrs. (CHARGE) Sleeping problems > Saleah had been sleeping so good in her own bed in her own room since August and the past week she has started not wanting to go to bed and once she finally gets to sleep she wakes up at 3 or 4 in the morning and refuses to go back to sleep. Hi, It could be behavioral/emotional adjustment to sleeping alone in a room, like somebody suggested. The compromise they suggested of sleeping on the floor is a good idea. Another possibility is that her " refusal to go back to sleep " is acutally a neurological difficulty. Some kids w/SI problems have difficulty with sleep. If your child has vestibular/proprioception difficulties this type of stimulation before bedtime / upon waking may help. They need a very routine approach to bedtime and can sleep can be disturbed if the routine of the day or evening is broken. Have you noticed any changes in her typical routines the past week? (from company, to missing a therapy/school session, to going somewhere different or increased activity, to change in meal times, skipping bath or bedtime story, to sibling acting out....anything). This would show up with my son if he had a substitue teacher at school, or if the classroom was more rowdy than usual, or if they went to an assembly or had a party breaking the routine of the day. If we went somewhere else to eat, or if he went to bed later, his sleep would be affected. Some kids have a disorder in their intrinsic sleep pattern...like transitioning between different stages of sleep (my son again). They are neurologically unable to maintain/get back to sleep. If these things are occurring with your child, she may not want to be alone simply because she is bored & lonely and in the dark (being a 4 yr old). Have you tried music; a lamp or flashlight; stuffed animals in bed--anything quiet that could entertain her without becomming over-stimulating. You may need to stay with her for awhile--you can lay down beside her and tell her it is time to sleep & you are tired. She needs to play quietly so you can rest/sleep. Maybe she will join you laying down, but if not you will at least get some rest (even if not real sleep). Does your child NEED the sleep? Or are you " blessed " with a person who needs only 4-6 hrs of sleep? If all else fails, you may want to consider giving her melatonin or benadryl before bedtime. This helps some, and worsens the difficulty in some. Benadryl is not addictive but I think i've read that if melatonin is used long-term that it can be. Benadryl is often recommended by pediatricians. I personally never wanted to do this and didn't even try it until my son was around 11 yrs...it made things worse for us. Sleep deprivation is very hard on both parent and child. Make adjustments in your expectations for both of you when you do not get a full night's sleep. Long-term sleep deprivation is draining physically, emotionally, socially, cognitively. Take care of yourself and allow resttime during the days for yourself. My son is still sleeping like your daughter, at age 19 years. I know the wear & tear it can take. Hopefully this is not the same situation as with your kidos, but know you are not alone in this struggle. And, avoid punishing yourself OR your daughter for the difficulties. .....Roll with the flow as much as possible (after trying possible interventions of course). Keep the faith! (-: Tammy (son has Accutane Teratogen Syndrome) Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation. For information about the CHARGE Syndrome Foundation or to become a member (and get the newsletter) please contact marion@... or visit the CHARGE Syndrome Foundation web page at http://www.chargesyndrome.org 6th International CHARGE Syndrome Conference, Cleveland, Ohio, July 25-27, 2003. Information will be available at our website www.chargesyndrome.org or by calling 1-. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2002 Report Share Posted November 3, 2002 Thank you all for your good ideas. We tried the sleeping on our floor last night and it worked pretty well. She still was unsettled for about an hour, but then slept good. The only problem with us trying to give her something to do in bed is that she is deaf, so the music wouldn't work, giving her a flashlight would just mean that she'd want to come and flash it in everyone faces, and she doesn't like stuffed animals... We tried books, that didn't work... I will ask her ped. about Benadryl. Not sure I want to do that, but if worse came to worse I probably would for a night. One thing that was different this week is that she is in a year round preschool and they didn't have school at all this week. So, her daily routine was changed dramatically... Thanks again for all the good advice. I'll keep you posted on how things go. Kim mom to Devin 11 yrs. and Saleah 4 1/2 yrs. (CHARGE) Sleeping problems > Saleah had been sleeping so good in her own bed in her own room since August and the past week she has started not wanting to go to bed and once she finally gets to sleep she wakes up at 3 or 4 in the morning and refuses to go back to sleep. Hi, It could be behavioral/emotional adjustment to sleeping alone in a room, like somebody suggested. The compromise they suggested of sleeping on the floor is a good idea. Another possibility is that her " refusal to go back to sleep " is acutally a neurological difficulty. Some kids w/SI problems have difficulty with sleep. If your child has vestibular/proprioception difficulties this type of stimulation before bedtime / upon waking may help. They need a very routine approach to bedtime and can sleep can be disturbed if the routine of the day or evening is broken. Have you noticed any changes in her typical routines the past week? (from company, to missing a therapy/school session, to going somewhere different or increased activity, to change in meal times, skipping bath or bedtime story, to sibling acting out....anything). This would show up with my son if he had a substitue teacher at school, or if the classroom was more rowdy than usual, or if they went to an assembly or had a party breaking the routine of the day. If we went somewhere else to eat, or if he went to bed later, his sleep would be affected. Some kids have a disorder in their intrinsic sleep pattern...like transitioning between different stages of sleep (my son again). They are neurologically unable to maintain/get back to sleep. If these things are occurring with your child, she may not want to be alone simply because she is bored & lonely and in the dark (being a 4 yr old). Have you tried music; a lamp or flashlight; stuffed animals in bed--anything quiet that could entertain her without becomming over-stimulating. You may need to stay with her for awhile--you can lay down beside her and tell her it is time to sleep & you are tired. She needs to play quietly so you can rest/sleep. Maybe she will join you laying down, but if not you will at least get some rest (even if not real sleep). Does your child NEED the sleep? Or are you " blessed " with a person who needs only 4-6 hrs of sleep? If all else fails, you may want to consider giving her melatonin or benadryl before bedtime. This helps some, and worsens the difficulty in some. Benadryl is not addictive but I think i've read that if melatonin is used long-term that it can be. Benadryl is often recommended by pediatricians. I personally never wanted to do this and didn't even try it until my son was around 11 yrs...it made things worse for us. Sleep deprivation is very hard on both parent and child. Make adjustments in your expectations for both of you when you do not get a full night's sleep. Long-term sleep deprivation is draining physically, emotionally, socially, cognitively. Take care of yourself and allow resttime during the days for yourself. My son is still sleeping like your daughter, at age 19 years. I know the wear & tear it can take. Hopefully this is not the same situation as with your kidos, but know you are not alone in this struggle. And, avoid punishing yourself OR your daughter for the difficulties. .....Roll with the flow as much as possible (after trying possible interventions of course). Keep the faith! (-: Tammy (son has Accutane Teratogen Syndrome) Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation. For information about the CHARGE Syndrome Foundation or to become a member (and get the newsletter) please contact marion@... or visit the CHARGE Syndrome Foundation web page at http://www.chargesyndrome.org 6th International CHARGE Syndrome Conference, Cleveland, Ohio, July 25-27, 2003. Information will be available at our website www.chargesyndrome.org or by calling 1-. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2002 Report Share Posted November 3, 2002 Thank you all for your good ideas. We tried the sleeping on our floor last night and it worked pretty well. She still was unsettled for about an hour, but then slept good. The only problem with us trying to give her something to do in bed is that she is deaf, so the music wouldn't work, giving her a flashlight would just mean that she'd want to come and flash it in everyone faces, and she doesn't like stuffed animals... We tried books, that didn't work... I will ask her ped. about Benadryl. Not sure I want to do that, but if worse came to worse I probably would for a night. One thing that was different this week is that she is in a year round preschool and they didn't have school at all this week. So, her daily routine was changed dramatically... Thanks again for all the good advice. I'll keep you posted on how things go. Kim mom to Devin 11 yrs. and Saleah 4 1/2 yrs. (CHARGE) Sleeping problems > Saleah had been sleeping so good in her own bed in her own room since August and the past week she has started not wanting to go to bed and once she finally gets to sleep she wakes up at 3 or 4 in the morning and refuses to go back to sleep. Hi, It could be behavioral/emotional adjustment to sleeping alone in a room, like somebody suggested. The compromise they suggested of sleeping on the floor is a good idea. Another possibility is that her " refusal to go back to sleep " is acutally a neurological difficulty. Some kids w/SI problems have difficulty with sleep. If your child has vestibular/proprioception difficulties this type of stimulation before bedtime / upon waking may help. They need a very routine approach to bedtime and can sleep can be disturbed if the routine of the day or evening is broken. Have you noticed any changes in her typical routines the past week? (from company, to missing a therapy/school session, to going somewhere different or increased activity, to change in meal times, skipping bath or bedtime story, to sibling acting out....anything). This would show up with my son if he had a substitue teacher at school, or if the classroom was more rowdy than usual, or if they went to an assembly or had a party breaking the routine of the day. If we went somewhere else to eat, or if he went to bed later, his sleep would be affected. Some kids have a disorder in their intrinsic sleep pattern...like transitioning between different stages of sleep (my son again). They are neurologically unable to maintain/get back to sleep. If these things are occurring with your child, she may not want to be alone simply because she is bored & lonely and in the dark (being a 4 yr old). Have you tried music; a lamp or flashlight; stuffed animals in bed--anything quiet that could entertain her without becomming over-stimulating. You may need to stay with her for awhile--you can lay down beside her and tell her it is time to sleep & you are tired. She needs to play quietly so you can rest/sleep. Maybe she will join you laying down, but if not you will at least get some rest (even if not real sleep). Does your child NEED the sleep? Or are you " blessed " with a person who needs only 4-6 hrs of sleep? If all else fails, you may want to consider giving her melatonin or benadryl before bedtime. This helps some, and worsens the difficulty in some. Benadryl is not addictive but I think i've read that if melatonin is used long-term that it can be. Benadryl is often recommended by pediatricians. I personally never wanted to do this and didn't even try it until my son was around 11 yrs...it made things worse for us. Sleep deprivation is very hard on both parent and child. Make adjustments in your expectations for both of you when you do not get a full night's sleep. Long-term sleep deprivation is draining physically, emotionally, socially, cognitively. Take care of yourself and allow resttime during the days for yourself. My son is still sleeping like your daughter, at age 19 years. I know the wear & tear it can take. Hopefully this is not the same situation as with your kidos, but know you are not alone in this struggle. And, avoid punishing yourself OR your daughter for the difficulties. .....Roll with the flow as much as possible (after trying possible interventions of course). Keep the faith! (-: Tammy (son has Accutane Teratogen Syndrome) Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation. For information about the CHARGE Syndrome Foundation or to become a member (and get the newsletter) please contact marion@... or visit the CHARGE Syndrome Foundation web page at http://www.chargesyndrome.org 6th International CHARGE Syndrome Conference, Cleveland, Ohio, July 25-27, 2003. Information will be available at our website www.chargesyndrome.org or by calling 1-. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2002 Report Share Posted November 3, 2002 Dylan's friend, who like Dylan has a combined vision and hearing loss, also has a horrible time sleeping on break weeks. He needs the stimulation of the school day. ---------- > >To: <CHARGE > >Subject: Re: Re: Sleeping problems >Date: Sat, Nov 2, 2002, 7:48 PM > > Thank you all for your good ideas. We tried the sleeping on our floor last > night and it worked pretty well. She still was unsettled for about an > hour, but then slept good. The only problem with us trying to give her > something to do in bed is that she is deaf, so the music wouldn't work, > giving her a flashlight would just mean that she'd want to come and flash > it in everyone faces, and she doesn't like stuffed animals... We tried > books, that didn't work... I will ask her ped. about Benadryl. Not sure I > want to do that, but if worse came to worse I probably would for a night. > One thing that was different this week is that she is in a year round > preschool and they didn't have school at all this week. So, her daily > routine was changed dramatically... > > Thanks again for all the good advice. I'll keep you posted on how things go. > > Kim > mom to Devin 11 yrs. and Saleah 4 1/2 yrs. (CHARGE) > > Sleeping problems >> > Saleah had been sleeping so good in her own bed in her own room since > August and the past week she has started not wanting to go to bed and > once she finally gets to sleep she wakes up at 3 or 4 in the morning > and refuses to go back to sleep. > > > Hi, > > It could be behavioral/emotional adjustment to sleeping alone in a > room, like somebody suggested. The compromise they suggested of > sleeping on the floor is a good idea. > > Another possibility is that her " refusal to go back to sleep " is > acutally a neurological difficulty. Some kids w/SI problems have > difficulty with sleep. If your child has vestibular/proprioception > difficulties this type of stimulation before bedtime / upon waking > may help. > > They need a very routine approach to bedtime and can sleep can be > disturbed if the routine of the day or evening is broken. Have you > noticed any changes in her typical routines the past week? (from > company, to missing a therapy/school session, to going somewhere > different or increased activity, to change in meal times, skipping > bath or bedtime story, to sibling acting out....anything). > > This would show up with my son if he had a substitue teacher at > school, or if the classroom was more rowdy than usual, or if they > went to an assembly or had a party breaking the routine of the day. > If we went somewhere else to eat, or if he went to bed later, his > sleep would be affected. > > Some kids have a disorder in their intrinsic sleep pattern...like > transitioning between different stages of sleep (my son again). They > are neurologically unable to maintain/get back to sleep. > > If these things are occurring with your child, she may not want to be > alone simply because she is bored & lonely and in the dark (being a 4 > yr old). Have you tried music; a lamp or flashlight; stuffed animals > in bed--anything quiet that could entertain her without becomming > over-stimulating. > > You may need to stay with her for awhile--you can lay down beside her > and tell her it is time to sleep & you are tired. She needs to play > quietly so you can rest/sleep. Maybe she will join you laying down, > but if not you will at least get some rest (even if not real sleep). > > Does your child NEED the sleep? Or are you " blessed " with a person > who needs only 4-6 hrs of sleep? > > If all else fails, you may want to consider giving her melatonin or > benadryl before bedtime. This helps some, and worsens the difficulty > in some. Benadryl is not addictive but I think i've read that if > melatonin is used long-term that it can be. Benadryl is often > recommended by pediatricians. I personally never wanted to do this > and didn't even try it until my son was around 11 yrs...it made > things worse for us. > > Sleep deprivation is very hard on both parent and child. Make > adjustments in your expectations for both of you when you do not get > a full night's sleep. Long-term sleep deprivation is draining > physically, emotionally, socially, cognitively. Take care of > yourself and allow resttime during the days for yourself. > > My son is still sleeping like your daughter, at age 19 years. I know > the wear & tear it can take. Hopefully this is not the same > situation as with your kidos, but know you are not alone in this > struggle. And, avoid punishing yourself OR your daughter for the > difficulties. .....Roll with the flow as much as possible (after > trying possible interventions of course). > > Keep the faith! (-: > Tammy (son has Accutane Teratogen Syndrome) > > > > Membership of this email support groups does not constitute membership in > the CHARGE Syndrome Foundation. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter) > please contact marion@... or visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > 6th International CHARGE Syndrome Conference, Cleveland, Ohio, > July 25-27, 2003. Information will be available at our website > www.chargesyndrome.org or by calling 1-. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2002 Report Share Posted November 3, 2002 Dylan's friend, who like Dylan has a combined vision and hearing loss, also has a horrible time sleeping on break weeks. He needs the stimulation of the school day. ---------- > >To: <CHARGE > >Subject: Re: Re: Sleeping problems >Date: Sat, Nov 2, 2002, 7:48 PM > > Thank you all for your good ideas. We tried the sleeping on our floor last > night and it worked pretty well. She still was unsettled for about an > hour, but then slept good. The only problem with us trying to give her > something to do in bed is that she is deaf, so the music wouldn't work, > giving her a flashlight would just mean that she'd want to come and flash > it in everyone faces, and she doesn't like stuffed animals... We tried > books, that didn't work... I will ask her ped. about Benadryl. Not sure I > want to do that, but if worse came to worse I probably would for a night. > One thing that was different this week is that she is in a year round > preschool and they didn't have school at all this week. So, her daily > routine was changed dramatically... > > Thanks again for all the good advice. I'll keep you posted on how things go. > > Kim > mom to Devin 11 yrs. and Saleah 4 1/2 yrs. (CHARGE) > > Sleeping problems >> > Saleah had been sleeping so good in her own bed in her own room since > August and the past week she has started not wanting to go to bed and > once she finally gets to sleep she wakes up at 3 or 4 in the morning > and refuses to go back to sleep. > > > Hi, > > It could be behavioral/emotional adjustment to sleeping alone in a > room, like somebody suggested. The compromise they suggested of > sleeping on the floor is a good idea. > > Another possibility is that her " refusal to go back to sleep " is > acutally a neurological difficulty. Some kids w/SI problems have > difficulty with sleep. If your child has vestibular/proprioception > difficulties this type of stimulation before bedtime / upon waking > may help. > > They need a very routine approach to bedtime and can sleep can be > disturbed if the routine of the day or evening is broken. Have you > noticed any changes in her typical routines the past week? (from > company, to missing a therapy/school session, to going somewhere > different or increased activity, to change in meal times, skipping > bath or bedtime story, to sibling acting out....anything). > > This would show up with my son if he had a substitue teacher at > school, or if the classroom was more rowdy than usual, or if they > went to an assembly or had a party breaking the routine of the day. > If we went somewhere else to eat, or if he went to bed later, his > sleep would be affected. > > Some kids have a disorder in their intrinsic sleep pattern...like > transitioning between different stages of sleep (my son again). They > are neurologically unable to maintain/get back to sleep. > > If these things are occurring with your child, she may not want to be > alone simply because she is bored & lonely and in the dark (being a 4 > yr old). Have you tried music; a lamp or flashlight; stuffed animals > in bed--anything quiet that could entertain her without becomming > over-stimulating. > > You may need to stay with her for awhile--you can lay down beside her > and tell her it is time to sleep & you are tired. She needs to play > quietly so you can rest/sleep. Maybe she will join you laying down, > but if not you will at least get some rest (even if not real sleep). > > Does your child NEED the sleep? Or are you " blessed " with a person > who needs only 4-6 hrs of sleep? > > If all else fails, you may want to consider giving her melatonin or > benadryl before bedtime. This helps some, and worsens the difficulty > in some. Benadryl is not addictive but I think i've read that if > melatonin is used long-term that it can be. Benadryl is often > recommended by pediatricians. I personally never wanted to do this > and didn't even try it until my son was around 11 yrs...it made > things worse for us. > > Sleep deprivation is very hard on both parent and child. Make > adjustments in your expectations for both of you when you do not get > a full night's sleep. Long-term sleep deprivation is draining > physically, emotionally, socially, cognitively. Take care of > yourself and allow resttime during the days for yourself. > > My son is still sleeping like your daughter, at age 19 years. I know > the wear & tear it can take. Hopefully this is not the same > situation as with your kidos, but know you are not alone in this > struggle. And, avoid punishing yourself OR your daughter for the > difficulties. .....Roll with the flow as much as possible (after > trying possible interventions of course). > > Keep the faith! (-: > Tammy (son has Accutane Teratogen Syndrome) > > > > Membership of this email support groups does not constitute membership in > the CHARGE Syndrome Foundation. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter) > please contact marion@... or visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > 6th International CHARGE Syndrome Conference, Cleveland, Ohio, > July 25-27, 2003. Information will be available at our website > www.chargesyndrome.org or by calling 1-. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2002 Report Share Posted November 3, 2002 Dylan's friend, who like Dylan has a combined vision and hearing loss, also has a horrible time sleeping on break weeks. He needs the stimulation of the school day. ---------- > >To: <CHARGE > >Subject: Re: Re: Sleeping problems >Date: Sat, Nov 2, 2002, 7:48 PM > > Thank you all for your good ideas. We tried the sleeping on our floor last > night and it worked pretty well. She still was unsettled for about an > hour, but then slept good. The only problem with us trying to give her > something to do in bed is that she is deaf, so the music wouldn't work, > giving her a flashlight would just mean that she'd want to come and flash > it in everyone faces, and she doesn't like stuffed animals... We tried > books, that didn't work... I will ask her ped. about Benadryl. Not sure I > want to do that, but if worse came to worse I probably would for a night. > One thing that was different this week is that she is in a year round > preschool and they didn't have school at all this week. So, her daily > routine was changed dramatically... > > Thanks again for all the good advice. I'll keep you posted on how things go. > > Kim > mom to Devin 11 yrs. and Saleah 4 1/2 yrs. (CHARGE) > > Sleeping problems >> > Saleah had been sleeping so good in her own bed in her own room since > August and the past week she has started not wanting to go to bed and > once she finally gets to sleep she wakes up at 3 or 4 in the morning > and refuses to go back to sleep. > > > Hi, > > It could be behavioral/emotional adjustment to sleeping alone in a > room, like somebody suggested. The compromise they suggested of > sleeping on the floor is a good idea. > > Another possibility is that her " refusal to go back to sleep " is > acutally a neurological difficulty. Some kids w/SI problems have > difficulty with sleep. If your child has vestibular/proprioception > difficulties this type of stimulation before bedtime / upon waking > may help. > > They need a very routine approach to bedtime and can sleep can be > disturbed if the routine of the day or evening is broken. Have you > noticed any changes in her typical routines the past week? (from > company, to missing a therapy/school session, to going somewhere > different or increased activity, to change in meal times, skipping > bath or bedtime story, to sibling acting out....anything). > > This would show up with my son if he had a substitue teacher at > school, or if the classroom was more rowdy than usual, or if they > went to an assembly or had a party breaking the routine of the day. > If we went somewhere else to eat, or if he went to bed later, his > sleep would be affected. > > Some kids have a disorder in their intrinsic sleep pattern...like > transitioning between different stages of sleep (my son again). They > are neurologically unable to maintain/get back to sleep. > > If these things are occurring with your child, she may not want to be > alone simply because she is bored & lonely and in the dark (being a 4 > yr old). Have you tried music; a lamp or flashlight; stuffed animals > in bed--anything quiet that could entertain her without becomming > over-stimulating. > > You may need to stay with her for awhile--you can lay down beside her > and tell her it is time to sleep & you are tired. She needs to play > quietly so you can rest/sleep. Maybe she will join you laying down, > but if not you will at least get some rest (even if not real sleep). > > Does your child NEED the sleep? Or are you " blessed " with a person > who needs only 4-6 hrs of sleep? > > If all else fails, you may want to consider giving her melatonin or > benadryl before bedtime. This helps some, and worsens the difficulty > in some. Benadryl is not addictive but I think i've read that if > melatonin is used long-term that it can be. Benadryl is often > recommended by pediatricians. I personally never wanted to do this > and didn't even try it until my son was around 11 yrs...it made > things worse for us. > > Sleep deprivation is very hard on both parent and child. Make > adjustments in your expectations for both of you when you do not get > a full night's sleep. Long-term sleep deprivation is draining > physically, emotionally, socially, cognitively. Take care of > yourself and allow resttime during the days for yourself. > > My son is still sleeping like your daughter, at age 19 years. I know > the wear & tear it can take. Hopefully this is not the same > situation as with your kidos, but know you are not alone in this > struggle. And, avoid punishing yourself OR your daughter for the > difficulties. .....Roll with the flow as much as possible (after > trying possible interventions of course). > > Keep the faith! (-: > Tammy (son has Accutane Teratogen Syndrome) > > > > Membership of this email support groups does not constitute membership in > the CHARGE Syndrome Foundation. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter) > please contact marion@... or visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > 6th International CHARGE Syndrome Conference, Cleveland, Ohio, > July 25-27, 2003. Information will be available at our website > www.chargesyndrome.org or by calling 1-. > > > Quote Link to comment Share on other sites More sharing options...
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