Re: Hello to Lori and Chris!!

[Guest guest]

Carol, Thank you for the welcome! I live in Canton. I don't know if you have

heard of it or not. I have lived here in MI since the 8th grade, I was born

and lived many years in Ohio. I am near Ann Arbor and Detroit. Lori

[Guest guest]

Morning Lori...I have a brother that lives in Ferndale...anywhere near there? My

first NF surgery was at Ann Arbor. Wonderful hospital.

You said you had small tumors right? I had hearing lose in about 1982 and they

diagnosed it as a " window " broken. Had they done an cat scan or Mri they would

have seen my small tumor and I would not have lost my hearing in 1987. Just food

for thought for you. And small tumors are usually easier to get rid of than

bigger ones in my opinion although it depends on the location.

Carol

PsySmoke64@... wrote:

> Carol, Thank you for the welcome! I live in Canton. I don't know if you have

> heard of it or not. I have lived here in MI since the 8th grade, I was born

> and lived many years in Ohio. I am near Ann Arbor and Detroit. Lori

[Guest guest]

Morning Lori...I have a brother that lives in Ferndale...anywhere near there? My

first NF surgery was at Ann Arbor. Wonderful hospital.

You said you had small tumors right? I had hearing lose in about 1982 and they

diagnosed it as a " window " broken. Had they done an cat scan or Mri they would

have seen my small tumor and I would not have lost my hearing in 1987. Just food

for thought for you. And small tumors are usually easier to get rid of than

bigger ones in my opinion although it depends on the location.

Carol

PsySmoke64@... wrote:

> Carol, Thank you for the welcome! I live in Canton. I don't know if you have

> heard of it or not. I have lived here in MI since the 8th grade, I was born

> and lived many years in Ohio. I am near Ann Arbor and Detroit. Lori

[Guest guest]

Carol, Ferndale is close to downtown Detroit.

Mikey A

At 04:41 AM 10/25/00 -0400, you wrote:

>Morning Lori...I have a brother that lives in Ferndale...anywhere near

>there? My

>first NF surgery was at Ann Arbor. Wonderful hospital.

>You said you had small tumors right? I had hearing lose in about 1982 and they

>diagnosed it as a " window " broken. Had they done an cat scan or Mri they would

>have seen my small tumor and I would not have lost my hearing in 1987.

>Just food

>for thought for you. And small tumors are usually easier to get rid of than

>bigger ones in my opinion although it depends on the location.

>

>Carol

>

>PsySmoke64@... wrote:

>

> > Carol, Thank you for the welcome! I live in Canton. I don't know if you

> have

> > heard of it or not. I have lived here in MI since the 8th grade, I was born

> > and lived many years in Ohio. I am near Ann Arbor and Detroit. Lori

[Guest guest]

Carol, Ferndale is close to downtown Detroit.

Mikey A

At 04:41 AM 10/25/00 -0400, you wrote:

>Morning Lori...I have a brother that lives in Ferndale...anywhere near

>there? My

>first NF surgery was at Ann Arbor. Wonderful hospital.

>You said you had small tumors right? I had hearing lose in about 1982 and they

>diagnosed it as a " window " broken. Had they done an cat scan or Mri they would

>have seen my small tumor and I would not have lost my hearing in 1987.

>Just food

>for thought for you. And small tumors are usually easier to get rid of than

>bigger ones in my opinion although it depends on the location.

>

>Carol

>

>PsySmoke64@... wrote:

>

> > Carol, Thank you for the welcome! I live in Canton. I don't know if you

> have

> > heard of it or not. I have lived here in MI since the 8th grade, I was born

> > and lived many years in Ohio. I am near Ann Arbor and Detroit. Lori

[Guest guest]

Carol, Ferndale is close to downtown Detroit.

Mikey A

At 04:41 AM 10/25/00 -0400, you wrote:

>Morning Lori...I have a brother that lives in Ferndale...anywhere near

>there? My

>first NF surgery was at Ann Arbor. Wonderful hospital.

>You said you had small tumors right? I had hearing lose in about 1982 and they

>diagnosed it as a " window " broken. Had they done an cat scan or Mri they would

>have seen my small tumor and I would not have lost my hearing in 1987.

>Just food

>for thought for you. And small tumors are usually easier to get rid of than

>bigger ones in my opinion although it depends on the location.

>

>Carol

>

>PsySmoke64@... wrote:

>

> > Carol, Thank you for the welcome! I live in Canton. I don't know if you

> have

> > heard of it or not. I have lived here in MI since the 8th grade, I was born

> > and lived many years in Ohio. I am near Ann Arbor and Detroit. Lori

[Guest guest]

In a message dated 10/25/00 1:42:15 AM Pacific Daylight Time,

horizons@... writes:

<< orning Lori...I have a brother that lives in Ferndale...anywhere near

there? My

first NF surgery was at Ann Arbor. Wonderful hospital.

You said you had small tumors right? I had hearing lose in about 1982 and

they

diagnosed it as a " window " broken. Had they done an cat scan or Mri they

would

have seen my small tumor and I would not have lost my hearing in 1987. Just

food

for thought for you. And small tumors are usually easier to get rid of than

bigger ones in my opinion although it depends on the location.

Carol

Carol, Yes I know where Ferndale is. Not too far away. My tumors are

supposedly the size of a tomato seed. The last MRI I had was a few years ago.

I am overdue for one. At that time they were still the same tomato seeds.

But, as my Mom pointed out the other day, if my hearing is so bad they have

probably grown So I will be at UofM having test after test, and then off

to the Doctor my Mom sees up here for her NF2. Then the big decision as to

what will be next.Even though to friends and family I appear to be very

casual about the NF2, to be honest this frightens me to death! I am a big

chicken and trying to think of what is ahead is so scary. My husband is so

afraid for me and what will happen, at times it is hard enough to cope with

his fears! I am so glad I found this group. I am trying to learn things and

my options. It is great to be able to have contact with people that can

really understand how I am feeling. Thanks for your support. Lori Jo

[Guest guest]

In a message dated 10/26/00 5:24:03 AM Pacific Daylight Time,

horizons@... writes:

<< > Keep the faith. Vicki >>

Thank You Vicki I sure try to but at times it is so hard. Lori Jo

[Guest guest]

In a message dated 10/26/00 5:24:03 AM Pacific Daylight Time,

horizons@... writes:

<< > Keep the faith. Vicki >>

Thank You Vicki I sure try to but at times it is so hard. Lori Jo

[Guest guest]

In a message dated 10/25/00 11:42:37 PM Pacific Daylight Time,

vjpcook@... writes:

<< I don't blame my daughter for hating the MRIs because, for her, they

always show tumors growing and increasing in number. I just try to keep the

faith that she will have good quality of life. That is all I wish for

everyone. But it is a biggy, I know. >>

Sometimes I feel very foolish even complaining. These tumors so far have sat

there not doing a thing to ruin my quality of life. I read of other's and

their pain and surgeries and it makes me feel so grateful that I have

remained the same since I was diagnosed. But with the new MRIs I will be

having I will have that fear of what if. What if they have grown? What if

there are more elsewhere? My thoughts and prayers are with you and your

daughter. I pray that we all have a good and happy quality of life. Love,

Lori Jo

[Guest guest]

In a message dated 10/25/00 11:42:37 PM Pacific Daylight Time,

vjpcook@... writes:

<< I don't blame my daughter for hating the MRIs because, for her, they

always show tumors growing and increasing in number. I just try to keep the

faith that she will have good quality of life. That is all I wish for

everyone. But it is a biggy, I know. >>

Sometimes I feel very foolish even complaining. These tumors so far have sat

there not doing a thing to ruin my quality of life. I read of other's and

their pain and surgeries and it makes me feel so grateful that I have

remained the same since I was diagnosed. But with the new MRIs I will be

having I will have that fear of what if. What if they have grown? What if

there are more elsewhere? My thoughts and prayers are with you and your

daughter. I pray that we all have a good and happy quality of life. Love,

Lori Jo

[Guest guest]

In a message dated 10/25/00 11:42:37 PM Pacific Daylight Time,

vjpcook@... writes:

<< I don't blame my daughter for hating the MRIs because, for her, they

always show tumors growing and increasing in number. I just try to keep the

faith that she will have good quality of life. That is all I wish for

everyone. But it is a biggy, I know. >>

Sometimes I feel very foolish even complaining. These tumors so far have sat

there not doing a thing to ruin my quality of life. I read of other's and

their pain and surgeries and it makes me feel so grateful that I have

remained the same since I was diagnosed. But with the new MRIs I will be

having I will have that fear of what if. What if they have grown? What if

there are more elsewhere? My thoughts and prayers are with you and your

daughter. I pray that we all have a good and happy quality of life. Love,

Lori Jo

[Guest guest]

In a message dated 10/25/00 8:40:24 PM Pacific Daylight Time,

horizons@... writes:

<< Cool!! Maybe I'll send you over there one day to bug him!! LOL!

Carol >>

Oh! I am so good at bugging people! LOL Lori Jo

[Guest guest]

In a message dated 10/25/00 8:21:33 PM Pacific Daylight Time,

horizons@... writes:

<< Hey Lori Jo...Been there done that....going through it now. Found a 4th

bump on

my head tonight and still haven't heard from my doctor. Very nerve racking!!!

Have my crying moments.......such a release. Just don't know what tomorrow

will

bring!!

Hugs >>

(((((((((((((Carol))))))))))))))) I am crying for you right now. My prayers

are with you. I don't know what else to say. Lori Jo

[Guest guest]

Thanks Vicki.....your support means so much. It is the not knowing when you KNOW

something isn't right...that make sense???

hugs...Carol

vjpcook@... wrote:

> Carol and Lori,

> I heard your fear and tears and want you to know that we share that with you.

> NF2 is scary and we are right now looking at some more fear because of new

> MRIs. I don't blame my daughter for hating the MRIs because, for her, they

> always show tumors growing and increasing in number. I just try to keep the

> faith that she will have good quality of life. That is all I wish for

> everyone. But it is a biggy, I know.

> Keep the faith. Vicki

[Guest guest]

Thanks Vicki.....your support means so much. It is the not knowing when you KNOW

something isn't right...that make sense???

hugs...Carol

vjpcook@... wrote:

> Carol and Lori,

> I heard your fear and tears and want you to know that we share that with you.

> NF2 is scary and we are right now looking at some more fear because of new

> MRIs. I don't blame my daughter for hating the MRIs because, for her, they

> always show tumors growing and increasing in number. I just try to keep the

> faith that she will have good quality of life. That is all I wish for

> everyone. But it is a biggy, I know.

> Keep the faith. Vicki

[Guest guest]

Thanks Vicki.....your support means so much. It is the not knowing when you KNOW

something isn't right...that make sense???

hugs...Carol

vjpcook@... wrote:

> Carol and Lori,

> I heard your fear and tears and want you to know that we share that with you.

> NF2 is scary and we are right now looking at some more fear because of new

> MRIs. I don't blame my daughter for hating the MRIs because, for her, they

> always show tumors growing and increasing in number. I just try to keep the

> faith that she will have good quality of life. That is all I wish for

> everyone. But it is a biggy, I know.

> Keep the faith. Vicki

[Guest guest]

Carol,

I hear you on the mystery of what is not right with your body. It is doubly

hard because the medical world is rather uninformed. Yesterday the

oncologist we saw kept saying Anne needed a Cat Scan of a certain area. I

had to keep reminding him that only an MRI tells her story. I, not being

medical, don't like to correct these people but when it is my family's well

being at stake, I get very direct and " cut to the chase " as we say. Hope

today is good for you. Vicki

[Guest guest]

Carol,

I hear you on the mystery of what is not right with your body. It is doubly

hard because the medical world is rather uninformed. Yesterday the

oncologist we saw kept saying Anne needed a Cat Scan of a certain area. I

had to keep reminding him that only an MRI tells her story. I, not being

medical, don't like to correct these people but when it is my family's well

being at stake, I get very direct and " cut to the chase " as we say. Hope

today is good for you. Vicki

[Guest guest]

Carol,

I hear you on the mystery of what is not right with your body. It is doubly

hard because the medical world is rather uninformed. Yesterday the

oncologist we saw kept saying Anne needed a Cat Scan of a certain area. I

had to keep reminding him that only an MRI tells her story. I, not being

medical, don't like to correct these people but when it is my family's well

being at stake, I get very direct and " cut to the chase " as we say. Hope

today is good for you. Vicki

[Guest guest]

AAAAAAAhhhh...I slept...so that's good...but didn't accomplish much!! I think we

have a right to correct people, especially doctors as they don't know us. I

agree, very hard.

Thanks Vicki....Carol

vjpcook@... wrote:

> Carol,

> I hear you on the mystery of what is not right with your body. It is doubly

> hard because the medical world is rather uninformed. Yesterday the

> oncologist we saw kept saying Anne needed a Cat Scan of a certain area. I

> had to keep reminding him that only an MRI tells her story. I, not being

> medical, don't like to correct these people but when it is my family's well

> being at stake, I get very direct and " cut to the chase " as we say. Hope

> today is good for you. Vicki

[Guest guest]

Me too Vicki!! Take that Dr to the mat:) They are scary when they are

clueless

but faking it anyway. -Lori, who goes thro Drs like a threshin' machine ha

ha

Re: Hello to Lori and Chris!!

> AAAAAAAhhhh...I slept...so that's good...but didn't accomplish much!! I

think we

> have a right to correct people, especially doctors as they don't know us.

I

> agree, very hard.

> Thanks Vicki....Carol

>

> vjpcook@... wrote:

>

> > Carol,

> > I hear you on the mystery of what is not right with your body. It is

doubly

> > hard because the medical world is rather uninformed. Yesterday the

> > oncologist we saw kept saying Anne needed a Cat Scan of a certain area.

I

> > had to keep reminding him that only an MRI tells her story. I, not

being

> > medical, don't like to correct these people but when it is my family's

well

> > being at stake, I get very direct and " cut to the chase " as we say.

Hope

> > today is good for you. Vicki

>

>

>

>

[Guest guest]

In a message dated 10/26/00 5:31:09 PM Pacific Daylight Time,

horizons@... writes:

<< AAAAAAAhhhh...I slept...so that's good...but didn't accomplish much!! I

think we

have a right to correct people, especially doctors as they don't know us. I

agree, very hard.

Thanks Vicki....Carol

vjpcook@... wr >>

I used to work in the Medical field so Doctor's tend to get kind of miffed

when i ask to read lab reports etc. But as I tell them " It " s my body and my

choice and I want to know exactly what the deal is " Lori Jo

[Guest guest]

In a message dated 10/26/00 5:31:09 PM Pacific Daylight Time,

horizons@... writes:

<< AAAAAAAhhhh...I slept...so that's good...but didn't accomplish much!! I

think we

have a right to correct people, especially doctors as they don't know us. I

agree, very hard.

Thanks Vicki....Carol

vjpcook@... wr >>

I used to work in the Medical field so Doctor's tend to get kind of miffed

when i ask to read lab reports etc. But as I tell them " It " s my body and my

choice and I want to know exactly what the deal is " Lori Jo

[Guest guest]

In a message dated 10/27/00 2:40:10 PM Pacific Daylight Time,

GREGIERY@... writes:

<< Hi, Lori, I'm Greg. I live in Livonia! We're neighbors!! >>

Hey Greg! Yes we are neighbors! This is cool! If I may be so nosy to ask can

you tell me what Doctor you see around here? I have a lead on one that sees

my Mom and I was just trying to see what is available around here. Nice to

have a fellow Crew member nearby Lori Jo