fibroid regrowth after myomectomy

[Guest guest]

Thank you for your question Theresa. I will be interested in knowing

everyone's experience as well. I am scheduled for my first myo on Feb. 4th.

I am having mine removed for health problems as well but it scares

me to think that when I am ready to have kids, I may have to have

another because of regrowth.

[Guest guest]

Thank you for your question Theresa. I will be interested in knowing

everyone's experience as well. I am scheduled for my first myo on Feb. 4th.

I am having mine removed for health problems as well but it scares

me to think that when I am ready to have kids, I may have to have

another because of regrowth.

[Guest guest]

There is a poll that is currently being run on fibroid regrowth after

myomectomy. If you've had a myomectomy please take the poll. I

think all of us who are considering myomectomy would like to know for

sure what the odds of regrowth truly are. We all hear numbers being

tossed around but not a whole lot of evidence that these numbers are

accurate. I keep hoping someone will visit this site and proclaim

they were fibroid free for 10 years or longer. My doctor said that

there is a 44% chance of regrowth but the older you are the less

likely you'll experience regrowth. All other statistics I've heard

were even more favorable for no regrowth. I take that back, someone

on this site mentioned that the chance for fibroid regrowth increased

by 10% each year. Those are pretty bad odds if you ask me. So, in

five years I'm already up to 50%. Does anybody truly know or are we

just guessing?

BTW Please have patience with this post: I know these issues have

been presented many times before on this site--it's so important to

those of us who are considering the myomectomy option. I'm not

considering myomectomy for fertility reasons I just want to fix my

health problems. Please, if you respond to this post, state your age

and possibly give some insight on why you think you've experienced

regrowth. I know this isn't scientific but with all that I've read,

I have formulated an idea in my mind as to why I have fibroids in the

first place.

My story is:

strong hereditary link

extreme stress over a period of six years leading to anger (not angry

anymore!)

crazy work hours and heavy lifting

I was never overweight

I eat fairly well except for my addiction to colas(no more!)-I've

never been a coffee drinker, only tea--once a day.

I do not drink alcohol.

I exercise.

I get plenty of sun (worked in a greenhouse and outdoors during my

greatest growth period). Exposure to pesticides and fertilizers

obviously.

Never was a vitamin taker until now.

Always experienced great health--so I thought.

I look like I'm in my early 30s easily, even though I'm in my mid

40s.

[Guest guest]

I looked at the poll but I have a question about the wording. Should

it say " had " x number of fibroids instead of " has? " Is the point to

find out how many fibroids were removed before the myo? Please

clarify. Thanks.

Margaret

> There is a poll that is currently being run on fibroid regrowth

after

> myomectomy. If you've had a myomectomy please take the poll. I

> think all of us who are considering myomectomy would like to know

for

> sure what the odds of regrowth truly are. We all hear numbers

being

> tossed around but not a whole lot of evidence that these numbers

are

> accurate. I keep hoping someone will visit this site and proclaim

> they were fibroid free for 10 years or longer. My doctor said that

> there is a 44% chance of regrowth but the older you are the less

> likely you'll experience regrowth. All other statistics I've heard

> were even more favorable for no regrowth. I take that back,

someone

> on this site mentioned that the chance for fibroid regrowth

increased

> by 10% each year. Those are pretty bad odds if you ask me. So, in

> five years I'm already up to 50%. Does anybody truly know or are

we

> just guessing?

>

> BTW Please have patience with this post: I know these issues have

> been presented many times before on this site--it's so important to

> those of us who are considering the myomectomy option. I'm not

> considering myomectomy for fertility reasons I just want to fix my

> health problems. Please, if you respond to this post, state your

age

> and possibly give some insight on why you think you've experienced

> regrowth. I know this isn't scientific but with all that I've

read,

> I have formulated an idea in my mind as to why I have fibroids in

the

> first place.

>

> My story is:

> strong hereditary link

> extreme stress over a period of six years leading to anger (not

angry

> anymore!)

> crazy work hours and heavy lifting

>

> I was never overweight

> I eat fairly well except for my addiction to colas(no more!)-I've

> never been a coffee drinker, only tea--once a day.

> I do not drink alcohol.

> I exercise.

> I get plenty of sun (worked in a greenhouse and outdoors during my

> greatest growth period). Exposure to pesticides and fertilizers

> obviously.

> Never was a vitamin taker until now.

> Always experienced great health--so I thought.

> I look like I'm in my early 30s easily, even though I'm in my mid

> 40s.

[Guest guest]

I looked at the poll but I have a question about the wording. Should

it say " had " x number of fibroids instead of " has? " Is the point to

find out how many fibroids were removed before the myo? Please

clarify. Thanks.

Margaret

> There is a poll that is currently being run on fibroid regrowth

after

> myomectomy. If you've had a myomectomy please take the poll. I

> think all of us who are considering myomectomy would like to know

for

> sure what the odds of regrowth truly are. We all hear numbers

being

> tossed around but not a whole lot of evidence that these numbers

are

> accurate. I keep hoping someone will visit this site and proclaim

> they were fibroid free for 10 years or longer. My doctor said that

> there is a 44% chance of regrowth but the older you are the less

> likely you'll experience regrowth. All other statistics I've heard

> were even more favorable for no regrowth. I take that back,

someone

> on this site mentioned that the chance for fibroid regrowth

increased

> by 10% each year. Those are pretty bad odds if you ask me. So, in

> five years I'm already up to 50%. Does anybody truly know or are

we

> just guessing?

>

> BTW Please have patience with this post: I know these issues have

> been presented many times before on this site--it's so important to

> those of us who are considering the myomectomy option. I'm not

> considering myomectomy for fertility reasons I just want to fix my

> health problems. Please, if you respond to this post, state your

age

> and possibly give some insight on why you think you've experienced

> regrowth. I know this isn't scientific but with all that I've

read,

> I have formulated an idea in my mind as to why I have fibroids in

the

> first place.

>

> My story is:

> strong hereditary link

> extreme stress over a period of six years leading to anger (not

angry

> anymore!)

> crazy work hours and heavy lifting

>

> I was never overweight

> I eat fairly well except for my addiction to colas(no more!)-I've

> never been a coffee drinker, only tea--once a day.

> I do not drink alcohol.

> I exercise.

> I get plenty of sun (worked in a greenhouse and outdoors during my

> greatest growth period). Exposure to pesticides and fertilizers

> obviously.

> Never was a vitamin taker until now.

> Always experienced great health--so I thought.

> I look like I'm in my early 30s easily, even though I'm in my mid

> 40s.

[Guest guest]

No fibroid regrowth yet. It's been 2 and almost a half years since

myomectomy at age 46-1/2.

1. 10lbs. overweight.

2. Family history of fibroids-mother, who made it fine to menopause.

3. Slightly hypothyroid-big family history of thyroid problems.

4. High estrogen and low progesterone.

5. Developed cateracts at age 42-my sister also.

6. Thought I was healthy, but now see that I wasn't most of my life.

I was always a hard worker, was a welder, worked out doors a lot.

7. Recently diagnosed as celiac (alergy to wheat)-family history.

8. Took multivitimins and vitimin C most of my life.

9. Suffered from anemia since age 20, taken iron since then-probably

related to undiagnosed celiac disease which prevents uptake of

minerals and B vitimins.

10. History of exposure to pesticides, lead, other heavy metals,

solvents, nonoxynol-9.

11. I now know that celiac disease, which is a genetic autoimmune

disease, is great masquerader and probably responsible for most of my

health problems. The other exposures prabably added to them.

12. Now I take good multivitimins, trace and other minerals, extra

B12 and folic acid, use melatonin and guggulsterones for thyroid,

don't touch wheat if at all possible, exercise 5 days a week, take

milk thistle and Phosphotidylcholine for liver and digestive tract,

take a small amount of DHEA, avoid vegetable oils and use highly

digestable unsaturated coconut oil instead (good for thyroid, energy,

and intestinal tract). I finally feel pretty decent, am not sick much

anymore, not tired all the time, have lost a little weight.

Tish

[Guest guest]

No fibroid regrowth yet. It's been 2 and almost a half years since

myomectomy at age 46-1/2.

1. 10lbs. overweight.

2. Family history of fibroids-mother, who made it fine to menopause.

3. Slightly hypothyroid-big family history of thyroid problems.

4. High estrogen and low progesterone.

5. Developed cateracts at age 42-my sister also.

6. Thought I was healthy, but now see that I wasn't most of my life.

I was always a hard worker, was a welder, worked out doors a lot.

7. Recently diagnosed as celiac (alergy to wheat)-family history.

8. Took multivitimins and vitimin C most of my life.

9. Suffered from anemia since age 20, taken iron since then-probably

related to undiagnosed celiac disease which prevents uptake of

minerals and B vitimins.

10. History of exposure to pesticides, lead, other heavy metals,

solvents, nonoxynol-9.

11. I now know that celiac disease, which is a genetic autoimmune

disease, is great masquerader and probably responsible for most of my

health problems. The other exposures prabably added to them.

12. Now I take good multivitimins, trace and other minerals, extra

B12 and folic acid, use melatonin and guggulsterones for thyroid,

don't touch wheat if at all possible, exercise 5 days a week, take

milk thistle and Phosphotidylcholine for liver and digestive tract,

take a small amount of DHEA, avoid vegetable oils and use highly

digestable unsaturated coconut oil instead (good for thyroid, energy,

and intestinal tract). I finally feel pretty decent, am not sick much

anymore, not tired all the time, have lost a little weight.

Tish

[Guest guest]

I did not create the poll but I'm sure it should be had instead of

has.

> > There is a poll that is currently being run on fibroid regrowth

> after

> > myomectomy. If you've had a myomectomy please take the poll. I

> > think all of us who are considering myomectomy would like to know

> for

> > sure what the odds of regrowth truly are. We all hear numbers

> being

> > tossed around but not a whole lot of evidence that these numbers

> are

> > accurate. I keep hoping someone will visit this site and

proclaim

> > they were fibroid free for 10 years or longer. My doctor said

that

> > there is a 44% chance of regrowth but the older you are the less

> > likely you'll experience regrowth. All other statistics I've

heard

> > were even more favorable for no regrowth. I take that back,

> someone

> > on this site mentioned that the chance for fibroid regrowth

> increased

> > by 10% each year. Those are pretty bad odds if you ask me. So,

in

> > five years I'm already up to 50%. Does anybody truly know or are

> we

> > just guessing?

> >

> > BTW Please have patience with this post: I know these issues

have

> > been presented many times before on this site--it's so important

to

> > those of us who are considering the myomectomy option. I'm not

> > considering myomectomy for fertility reasons I just want to fix

my

> > health problems. Please, if you respond to this post, state your

> age

> > and possibly give some insight on why you think you've

experienced

> > regrowth. I know this isn't scientific but with all that I've

> read,

> > I have formulated an idea in my mind as to why I have fibroids in

> the

> > first place.

> >

> > My story is:

> > strong hereditary link

> > extreme stress over a period of six years leading to anger (not

> angry

> > anymore!)

> > crazy work hours and heavy lifting

> >

> > I was never overweight

> > I eat fairly well except for my addiction to colas(no more!)-I've

> > never been a coffee drinker, only tea--once a day.

> > I do not drink alcohol.

> > I exercise.

> > I get plenty of sun (worked in a greenhouse and outdoors during

my

> > greatest growth period). Exposure to pesticides and fertilizers

> > obviously.

> > Never was a vitamin taker until now.

> > Always experienced great health--so I thought.

> > I look like I'm in my early 30s easily, even though I'm in my mid

> > 40s.

[Guest guest]

I did not create the poll but I'm sure it should be had instead of

has.

> > There is a poll that is currently being run on fibroid regrowth

> after

> > myomectomy. If you've had a myomectomy please take the poll. I

> > think all of us who are considering myomectomy would like to know

> for

> > sure what the odds of regrowth truly are. We all hear numbers

> being

> > tossed around but not a whole lot of evidence that these numbers

> are

> > accurate. I keep hoping someone will visit this site and

proclaim

> > they were fibroid free for 10 years or longer. My doctor said

that

> > there is a 44% chance of regrowth but the older you are the less

> > likely you'll experience regrowth. All other statistics I've

heard

> > were even more favorable for no regrowth. I take that back,

> someone

> > on this site mentioned that the chance for fibroid regrowth

> increased

> > by 10% each year. Those are pretty bad odds if you ask me. So,

in

> > five years I'm already up to 50%. Does anybody truly know or are

> we

> > just guessing?

> >

> > BTW Please have patience with this post: I know these issues

have

> > been presented many times before on this site--it's so important

to

> > those of us who are considering the myomectomy option. I'm not

> > considering myomectomy for fertility reasons I just want to fix

my

> > health problems. Please, if you respond to this post, state your

> age

> > and possibly give some insight on why you think you've

experienced

> > regrowth. I know this isn't scientific but with all that I've

> read,

> > I have formulated an idea in my mind as to why I have fibroids in

> the

> > first place.

> >

> > My story is:

> > strong hereditary link

> > extreme stress over a period of six years leading to anger (not

> angry

> > anymore!)

> > crazy work hours and heavy lifting

> >

> > I was never overweight

> > I eat fairly well except for my addiction to colas(no more!)-I've

> > never been a coffee drinker, only tea--once a day.

> > I do not drink alcohol.

> > I exercise.

> > I get plenty of sun (worked in a greenhouse and outdoors during

my

> > greatest growth period). Exposure to pesticides and fertilizers

> > obviously.

> > Never was a vitamin taker until now.

> > Always experienced great health--so I thought.

> > I look like I'm in my early 30s easily, even though I'm in my mid

> > 40s.

[Guest guest]

One thing to keep in mind - people whose fibroids did not return are

not here any more. After my myomectomy and recovery, I NEVER came

to this site until I had new fibroids a year early. I would guess

that any poll would be slanted towards those that have had them

return quicker just because of where you are conducting it.

> There is a poll that is currently being run on fibroid regrowth

after

> myomectomy. If you've had a myomectomy please take the poll. I

> think all of us who are considering myomectomy would like to know

for

> sure what the odds of regrowth truly are. We all hear numbers

being

> tossed around but not a whole lot of evidence that these numbers

are

> accurate. I keep hoping someone will visit this site and proclaim

> they were fibroid free for 10 years or longer. My doctor said

that

> there is a 44% chance of regrowth but the older you are the less

> likely you'll experience regrowth. All other statistics I've

heard

> were even more favorable for no regrowth. I take that back,

someone

> on this site mentioned that the chance for fibroid regrowth

increased

> by 10% each year. Those are pretty bad odds if you ask me. So,

in

> five years I'm already up to 50%. Does anybody truly know or are

we

> just guessing?

>

> BTW Please have patience with this post: I know these issues have

> been presented many times before on this site--it's so important

to

> those of us who are considering the myomectomy option. I'm not

> considering myomectomy for fertility reasons I just want to fix my

> health problems. Please, if you respond to this post, state your

age

> and possibly give some insight on why you think you've experienced

> regrowth. I know this isn't scientific but with all that I've

read,

> I have formulated an idea in my mind as to why I have fibroids in

the

> first place.

>

> My story is:

> strong hereditary link

> extreme stress over a period of six years leading to anger (not

angry

> anymore!)

> crazy work hours and heavy lifting

>

> I was never overweight

> I eat fairly well except for my addiction to colas(no more!)-I've

> never been a coffee drinker, only tea--once a day.

> I do not drink alcohol.

> I exercise.

> I get plenty of sun (worked in a greenhouse and outdoors during my

> greatest growth period). Exposure to pesticides and fertilizers

> obviously.

> Never was a vitamin taker until now.

> Always experienced great health--so I thought.

> I look like I'm in my early 30s easily, even though I'm in my mid

> 40s.

[Guest guest]

In a message dated 1/17/02 11:44:26 AM Pacific Standard Time,

lkwetter@... writes:

> Family history of fibroids-mother, who made it fine to menopause.

>

>

So, your mother had fibroids(symptomatic?) and made it to menopause without

having to resort to surgical treatment? And then, did they shrink?

Cheryl

[Guest guest]

In a message dated 1/17/02 11:44:26 AM Pacific Standard Time,

lkwetter@... writes:

> Family history of fibroids-mother, who made it fine to menopause.

>

>

So, your mother had fibroids(symptomatic?) and made it to menopause without

having to resort to surgical treatment? And then, did they shrink?

Cheryl

[Guest guest]

My mom had very few symptoms. She just had a big stomach. Neither did

I untill the very last. Her doctors were also unconcerned and told

her not to worry. That was in the late 60's.

Tish

[Guest guest]

My mom had very few symptoms. She just had a big stomach. Neither did

I untill the very last. Her doctors were also unconcerned and told

her not to worry. That was in the late 60's.

Tish

[Guest guest]

Didi-

how large is your uterus now? Are you experiencing many symptoms? So

basically you just have to rough it out because you can't have another myo?

Interesting.

Amy

[Guest guest]

Didi-

how large is your uterus now? Are you experiencing many symptoms? So

basically you just have to rough it out because you can't have another myo?

Interesting.

Amy

[Guest guest]

I just took the poll. I thought it was going to ask more questions

like how soon fibroids grew back...

Anyway I figured I'd share it here in case anyone follows this thread

in the future:

I had 7 fibroids removed (myomectomy) in 1980 at age 20.

I had 27 (or was it 29?) fibroids removed in 1992 from a doctor in New

York City who claimed that his studies indicate that fibroids do not

grow back after a laser myomectomy - which is how he advertised his

services: " get a laser myomectomy from me and studies show

they won't regrow! " . This doctor is quoted as an expert in many books

I've read on fibroids - which really irritates me.

About 5 years after that I wanted to find a gyn on Long Island, New

York and had to find a new doctor. The doctor felt fibroids in the

uterus and said I was " sold a bill of goods " by the doc in NYC - that

the laser myomectomy is a procedural difference for the surgeon's

benefit - less bloody - it would have no affect on regrowth. This

doctor told me this in an insensitive manner so I " shopped " for a new

gyn who I started going to about 3 years ago and still see. He sends

me regularly for pelvic and renal sonograms. My uterus is filled with

" innumerous " fibroids and is very large. I can't have another

myomectomy because my uterus was pieced together after the last one.

That's my fibroid/myomectomy story thus far.

Didi

[Guest guest]

I just took the poll. I thought it was going to ask more questions

like how soon fibroids grew back...

Anyway I figured I'd share it here in case anyone follows this thread

in the future:

I had 7 fibroids removed (myomectomy) in 1980 at age 20.

I had 27 (or was it 29?) fibroids removed in 1992 from a doctor in New

York City who claimed that his studies indicate that fibroids do not

grow back after a laser myomectomy - which is how he advertised his

services: " get a laser myomectomy from me and studies show

they won't regrow! " . This doctor is quoted as an expert in many books

I've read on fibroids - which really irritates me.

About 5 years after that I wanted to find a gyn on Long Island, New

York and had to find a new doctor. The doctor felt fibroids in the

uterus and said I was " sold a bill of goods " by the doc in NYC - that

the laser myomectomy is a procedural difference for the surgeon's

benefit - less bloody - it would have no affect on regrowth. This

doctor told me this in an insensitive manner so I " shopped " for a new

gyn who I started going to about 3 years ago and still see. He sends

me regularly for pelvic and renal sonograms. My uterus is filled with

" innumerous " fibroids and is very large. I can't have another

myomectomy because my uterus was pieced together after the last one.

That's my fibroid/myomectomy story thus far.

Didi

[Guest guest]

I just took the poll. I thought it was going to ask more questions

like how soon fibroids grew back...

Anyway I figured I'd share it here in case anyone follows this thread

in the future:

I had 7 fibroids removed (myomectomy) in 1980 at age 20.

I had 27 (or was it 29?) fibroids removed in 1992 from a doctor in New

York City who claimed that his studies indicate that fibroids do not

grow back after a laser myomectomy - which is how he advertised his

services: " get a laser myomectomy from me and studies show

they won't regrow! " . This doctor is quoted as an expert in many books

I've read on fibroids - which really irritates me.

About 5 years after that I wanted to find a gyn on Long Island, New

York and had to find a new doctor. The doctor felt fibroids in the

uterus and said I was " sold a bill of goods " by the doc in NYC - that

the laser myomectomy is a procedural difference for the surgeon's

benefit - less bloody - it would have no affect on regrowth. This

doctor told me this in an insensitive manner so I " shopped " for a new

gyn who I started going to about 3 years ago and still see. He sends

me regularly for pelvic and renal sonograms. My uterus is filled with

" innumerous " fibroids and is very large. I can't have another

myomectomy because my uterus was pieced together after the last one.

That's my fibroid/myomectomy story thus far.

Didi

[Guest guest]

I would get a 2nd opiniuon about having yet another myomectomy,if that would be

a choce you would

entertain..There may be a porblem if you want to have children,but you might be

surprised that a 2nd

myomectomy would be possible.

Best,

Bonnie

didigirl12000 wrote:

> I just took the poll. I thought it was going to ask more questions

> like how soon fibroids grew back...

> Anyway I figured I'd share it here in case anyone follows this thread

> in the future:

>

> I had 7 fibroids removed (myomectomy) in 1980 at age 20.

> I had 27 (or was it 29?) fibroids removed in 1992 from a doctor in New

> York City who claimed that his studies indicate that fibroids do not

> grow back after a laser myomectomy - which is how he advertised his

> services: " get a laser myomectomy from me and studies show

> they won't regrow! " . This doctor is quoted as an expert in many books

> I've read on fibroids - which really irritates me.

> About 5 years after that I wanted to find a gyn on Long Island, New

> York and had to find a new doctor. The doctor felt fibroids in the

> uterus and said I was " sold a bill of goods " by the doc in NYC - that

> the laser myomectomy is a procedural difference for the surgeon's

> benefit - less bloody - it would have no affect on regrowth. This

> doctor told me this in an insensitive manner so I " shopped " for a new

> gyn who I started going to about 3 years ago and still see. He sends

> me regularly for pelvic and renal sonograms. My uterus is filled with

> " innumerous " fibroids and is very large. I can't have another

> myomectomy because my uterus was pieced together after the last one.

> That's my fibroid/myomectomy story thus far.

>

> Didi

>

>

>

[Guest guest]

I would get a 2nd opiniuon about having yet another myomectomy,if that would be

a choce you would

entertain..There may be a porblem if you want to have children,but you might be

surprised that a 2nd

myomectomy would be possible.

Best,

Bonnie

didigirl12000 wrote:

> I just took the poll. I thought it was going to ask more questions

> like how soon fibroids grew back...

> Anyway I figured I'd share it here in case anyone follows this thread

> in the future:

>

> I had 7 fibroids removed (myomectomy) in 1980 at age 20.

> I had 27 (or was it 29?) fibroids removed in 1992 from a doctor in New

> York City who claimed that his studies indicate that fibroids do not

> grow back after a laser myomectomy - which is how he advertised his

> services: " get a laser myomectomy from me and studies show

> they won't regrow! " . This doctor is quoted as an expert in many books

> I've read on fibroids - which really irritates me.

> About 5 years after that I wanted to find a gyn on Long Island, New

> York and had to find a new doctor. The doctor felt fibroids in the

> uterus and said I was " sold a bill of goods " by the doc in NYC - that

> the laser myomectomy is a procedural difference for the surgeon's

> benefit - less bloody - it would have no affect on regrowth. This

> doctor told me this in an insensitive manner so I " shopped " for a new

> gyn who I started going to about 3 years ago and still see. He sends

> me regularly for pelvic and renal sonograms. My uterus is filled with

> " innumerous " fibroids and is very large. I can't have another

> myomectomy because my uterus was pieced together after the last one.

> That's my fibroid/myomectomy story thus far.

>

> Didi

>

>

>

[Guest guest]

Didi would be having a third myomectomy. She had a lot of fibroids removed

the second time and a lot of cutting and patching. She might have over 10

more years to go before menopause and it seems likely from her past

experiences that she will continue to grow fibroids. In these circumstances

I think UAE might be a better option, unless her uterus is extremely large

(for a rough guideline, say UAE generally doesn't give as good results if a

woman's fibroid uterus is more than 22-24 weeks pregnancy equivalent or if

there are individual fibroids much more than grapefruit size)

original messages:

Date: Tue, 22 Jan 2002 From: " Pedro B. Gandol " (Bonnie)

Subject: Re: Re: Fibroid regrowth after myomectomy

I would get a 2nd opinion about having yet another myomectomy,if that would

be a choce you would

entertain..There may be a problem if you want to have children,but you might

be surprised that a 2nd

myomectomy would be possible.

Best,

Bonnie

didigirl12000 wrote:

....

> I had 7 fibroids removed (myomectomy) in 1980 at age 20.

> I had 27 (or was it 29?) fibroids removed in 1992 from a doctor in New

> York City who claimed that his studies indicate that fibroids do not

> grow back after a laser myomectomy - which is how he advertised his

> services: " get a laser myomectomy from me and studies show

> they won't regrow! " . This doctor is quoted as an expert in many books

> I've read on fibroids - which really irritates me.

> About 5 years after that I wanted to find a gyn on Long Island, New

> York and had to find a new doctor. The doctor felt fibroids in the

> uterus and said I was " sold a bill of goods " by the doc in NYC - that

> the laser myomectomy is a procedural difference for the surgeon's

> benefit - less bloody - it would have no affect on regrowth. This

> doctor told me this in an insensitive manner so I " shopped " for a new

> gyn who I started going to about 3 years ago and still see. He sends

> me regularly for pelvic and renal sonograms. My uterus is filled with

> " innumerous " fibroids and is very large. I can't have another

> myomectomy because my uterus was pieced together after the last one.

> That's my fibroid/myomectomy story thus far.

>

[Guest guest]

Didi would be having a third myomectomy. She had a lot of fibroids removed

the second time and a lot of cutting and patching. She might have over 10

more years to go before menopause and it seems likely from her past

experiences that she will continue to grow fibroids. In these circumstances

I think UAE might be a better option, unless her uterus is extremely large

(for a rough guideline, say UAE generally doesn't give as good results if a

woman's fibroid uterus is more than 22-24 weeks pregnancy equivalent or if

there are individual fibroids much more than grapefruit size)

original messages:

Date: Tue, 22 Jan 2002 From: " Pedro B. Gandol " (Bonnie)

Subject: Re: Re: Fibroid regrowth after myomectomy

I would get a 2nd opinion about having yet another myomectomy,if that would

be a choce you would

entertain..There may be a problem if you want to have children,but you might

be surprised that a 2nd

myomectomy would be possible.

Best,

Bonnie

didigirl12000 wrote:

....

> I had 7 fibroids removed (myomectomy) in 1980 at age 20.

> I had 27 (or was it 29?) fibroids removed in 1992 from a doctor in New

> York City who claimed that his studies indicate that fibroids do not

> grow back after a laser myomectomy - which is how he advertised his

> services: " get a laser myomectomy from me and studies show

> they won't regrow! " . This doctor is quoted as an expert in many books

> I've read on fibroids - which really irritates me.

> About 5 years after that I wanted to find a gyn on Long Island, New

> York and had to find a new doctor. The doctor felt fibroids in the

> uterus and said I was " sold a bill of goods " by the doc in NYC - that

> the laser myomectomy is a procedural difference for the surgeon's

> benefit - less bloody - it would have no affect on regrowth. This

> doctor told me this in an insensitive manner so I " shopped " for a new

> gyn who I started going to about 3 years ago and still see. He sends

> me regularly for pelvic and renal sonograms. My uterus is filled with

> " innumerous " fibroids and is very large. I can't have another

> myomectomy because my uterus was pieced together after the last one.

> That's my fibroid/myomectomy story thus far.

>

[Guest guest]

Didi would be having a third myomectomy. She had a lot of fibroids removed

the second time and a lot of cutting and patching. She might have over 10

more years to go before menopause and it seems likely from her past

experiences that she will continue to grow fibroids. In these circumstances

I think UAE might be a better option, unless her uterus is extremely large

(for a rough guideline, say UAE generally doesn't give as good results if a

woman's fibroid uterus is more than 22-24 weeks pregnancy equivalent or if

there are individual fibroids much more than grapefruit size)

original messages:

Date: Tue, 22 Jan 2002 From: " Pedro B. Gandol " (Bonnie)

Subject: Re: Re: Fibroid regrowth after myomectomy

I would get a 2nd opinion about having yet another myomectomy,if that would

be a choce you would

entertain..There may be a problem if you want to have children,but you might

be surprised that a 2nd

myomectomy would be possible.

Best,

Bonnie

didigirl12000 wrote:

....

> I had 7 fibroids removed (myomectomy) in 1980 at age 20.

> I had 27 (or was it 29?) fibroids removed in 1992 from a doctor in New

> York City who claimed that his studies indicate that fibroids do not

> grow back after a laser myomectomy - which is how he advertised his

> services: " get a laser myomectomy from me and studies show

> they won't regrow! " . This doctor is quoted as an expert in many books

> I've read on fibroids - which really irritates me.

> About 5 years after that I wanted to find a gyn on Long Island, New

> York and had to find a new doctor. The doctor felt fibroids in the

> uterus and said I was " sold a bill of goods " by the doc in NYC - that

> the laser myomectomy is a procedural difference for the surgeon's

> benefit - less bloody - it would have no affect on regrowth. This

> doctor told me this in an insensitive manner so I " shopped " for a new

> gyn who I started going to about 3 years ago and still see. He sends

> me regularly for pelvic and renal sonograms. My uterus is filled with

> " innumerous " fibroids and is very large. I can't have another

> myomectomy because my uterus was pieced together after the last one.

> That's my fibroid/myomectomy story thus far.

>

[Guest guest]

As I explained in previous post - the doctor who performed the 2nd myo

touted the laser as a preventative for future fibroid growth

-therefore he charged more for his surgery as compared to other

surgeons. Now using a laser may indeed cost more for him - but fact is

this man makes a tremendous amount of money on performing myo's. A

physician is making money - a surgeon makes money. Some are in areas

of expertise that make more money than others. This is the impression

that I came away with concerning that situation.

>>

Sadly,a lot of doctors cannot be trusted.

I am interested in your comments re:Myomectomy is $

making.In what context do

you see this?

A third myomectomy for me is not an option as far as I've been told.

UAE is also not an option because I am not a candidate for a number of

reasons. " Almost " is the operative word here. And let me just add here

that after the 2nd myo I swore I would NEVER go through that pain

again. I don't know if I felt such pain because the doctor said he

put my uterus back together " like a jigsaw puzzle " but it was

really bad compared to the 1st myo and any other surgeries that I've

had - and I'm not a wimp when it comes to pain. But I was told by him

while I was still in the hospital recovering that a 3rd myo would not

be an option and have been told that by 3 doctor's since. WE all have

different options because we don't all have the same, exact problems.

If I were able to have another myo I would see that answer to my

problems despite what I said about the pain!

>>

Myomectomy is almost ALWAYS an option although myomectomy

on a large

uterus,numerous fibroids and/or

a woman past childbearing is not " standard medical

practise " .So,one can see

literally 1,000 doctors

and they would all advise a hysterectomy but that

would not

mean that

myomectomy was not feasible,

reasonable,or effective. It would mean that

connnecting

with someone outside of

standard medical

practise had not been accomplished.

Laser is another way of cutting.Invest in high tech.

and that investment is

usually passed on to the

consumer.Laser is not necessary for an effective and

safe surgery.The one

holding the laser/scapel is

the key

Best,

Bonnie

didigirl12000 wrote:

> Hi guys. I'm not sure how to cut and paste your

messages and then

> respond on a post so I'll try to remember what I

want to respond to:

>

> someone asked me how large my uterus was: the size

of a 5 or 6 month

> pregnancy - right below my belly button, according

to the lab

> technician when I have sonograms: " you have a huge

mass inside you

> pushing and smashing your internal organs. " . The

technicians have

> trouble seeing and finding ovaries and other organs

etc. when doing

> the sonograms- so it's that large.

>

> Yes I have to live with the symptoms - of course

there are many. I had

> a sonogram last month and they found fluid in one of

the tubes to the

> kidney (ureter?) which could lead to serious

problems if left alone. I

> have to have a series of urine type tests. I was

planning to go one

> morning this week but have to wait until my daughter

goes back to

> school - she's home sick!

>

> I have had MORE THAN a second opinion regarding

another myomectomy -

> not an option.

>

> Also - I just expressed my opinion previously about

women who post on

> that " hysterectomy website " . The fact is myomectomy

is also a money

> making operation - I think I learned that the hard

way by explaining

> that my doctor touted " laser myomectomy " as better

and made promises

> that didn't pan out. I also paid a lot more for that

myomectomy in

> comparision to what other surgeons charge for their

myomectomies.

>

> A lot of women go to doctors their whole lives with

no serious

> problems and have them taken care of uneventfully -

therefore they put

> trust in their doctor. I don't think it is unusual

that we don't

> research and res