RE: Re: Coughing - chemicals

[Guest guest]

HI

From , Dee's daughter ..

I've been listening to these conversations regarding chemical. Since I acquired CFS in '99, I became chemically sensitive to any plastic, car exhaust, perfumes, etc. A very toxic one for me is a newspaper or even worse, a new Yellow Pages book. My lungs become stressed and very short of breath. For a couple years I had to wear a mask when going into any clothing store or Wal Mart, etc. Rubber from new tires is actually my worst offender - in case this helps anyone. I've stopped my mom who has IPF from using her hair spray now .

Right before she was diagnosed one year ago, she and my dad were parade Marshals (how cute) in their church event - she wore her old fur coat that had been covered and enclosed with moth balls for 25 YEARS - and sat in a closed car breathing it so close to her face for almost 45 min. Within 6 years her entire body broke out in a red rash with welts, etc. And lasted about a week - Doctors said they could not understand how moth balls could cause this severe reaction - two weeks later she was extremely SOB - I believe this exposure added or caused the IPF. ( my opinion) - not sure the scarring can occur so quickly, but it was very coincidental. Thats my story and I'm sticking to it :- )

BTW, Dee is doing a little better now since upping her prednisone - oxygen sats are better and she is now out of hospital from her heart failure. She is my BF and I'm keeping her around for as long as possible.

for Dee - IPF Sept '99. Mpls, MN

-----Original Message-From: Breathe-Support [mailto:Breathe-Support ]On Behalf Of cbayjpwSent: Monday, August 06, 2007 11:45 PMTo: Breathe-Support Subject: Re: Coughing

Newspapers have triggered my coughing for a long time, also magazines and especially ads from department stores sent in the mail with perfume samples inside of them. Yuk. Some WalMarts have been worse than others for me. The one in Danville, IL was really bad one day last year near the produce department, so I figured there must have been mold in those large containers where they had the melons or else the potato bins. Today we had to keep the windows in the car closed on the North Shore because the Keave odor (a tree or bush they use similar to mesquite for grilling) made it hard for me to breathe. That was also one reason I moved away from HI in 95.Love and Aloha,judy IPF 11/06> >> > > > Kerry,> > > > I remember in the fall of 2002 when first started college, I> > started coughing. Especially at night. I would arrive home at maybe> > 8:00 pm from teaching piano lessons at my studio and the minute I got> > out of the car, something in the air triggered the worse coughing one> > could ever experience. I entered the house, still coughing. I coughed> > so much I could not even eat supper. I just went to bed. Coughing. It> > was horrible. Ia lready knew I had IPF.> > > > I called the pulmonary doctor. He had a nurse who could listen to your> > breathing on the phone and could tell what you should do. I asked her> > "What would happen if you can't quit coughing?" She told me that I> > would just pass out and resume breathing. She thought I needed some> > prednisone. I tried that. I got on more and more steriods. UGH! I was> > using Serevent and Flovent. By February, I was finally using the> > nebulizer medicine, DuoNeb. Plus, I always had Mucinex to take. Still> > coughing. I got some really good prescription cough medicine. By> > summer I had stopped coughing and was not taking the cough medicine as> > much.> > > > I blamed my coughing on the air pollution created by fireplaces,> > expecially the one behind me at the Cracker Barrel Restaurant. I even> > called the management to complain. They say they are known for their> > fireplaces. With roaring fires even when the temperature is in the 50s.> > > > I go out of my way to avoid this coughing. I don't dust or vaccum nor> > am I in the house when it is being done. I stay away from perfumes. > > Yesterday at church someone wanted me to hug them and I smelled of Estee> > Lauder the rest of the day till I could get home and take a bath. I> > really try to avoid all odors. Expecially bleach odors and other> > cleaning stuff. I have read on this board about some of the products> > that are being used. I avoid sick people and large crowds. There are> > stores that I totally avoid such as WalMart. I try to stay rested and> > not get overly exhausted.> > > > Kerry, I know it is hard for you. I am praying for you and hope you> > have some relief pretty soon.> > > > Jane IPF 12/1998 Dalton, Georgia aka pianolady_musicgirl> >> > > > > > > ---------------------------------> Need a vacation? Get great deals to amazing places on Yahoo! Travel.>