Guest guest Posted December 31, 2001 Report Share Posted December 31, 2001 " K. D. Birt " wrote: > Hi, > I'm a little confused... > After reading an article written by Loving,and also reading an excerp > from Carla's book, " Sex,Lies and the Truth About Uterine Fibroids " ,which > option DID Carla choose?UAE or a complete hysterectomy as stated in 's > article. Hi K.D., Are you asking about Loving from The Skanner in Portland, Oregon? showed up the last 30 minutes or so of my talk in NE Portland, Oregon earlier this fall. Breezed in, asked a few historical questions (completely out of context with my talk) and then afterwards took a copy of my book, our brochures, etc. with her out the door and never called or verified anything she wrote before submitting that horrific piece to The Skanner. I had UAE. Apparently, didn't even bother to read so much as the back cover of my book which states the following in the publisher's description: " If you have picked up this book, chances are that you or someone you know suffers from the debilitating symptoms of uterine fibroids. Carla Dionne, who successfully battled the disease without undergoing hysterectomy, wrote Sex, Lies, & the Truth About Uterine Fibroids in response to the overwhelming attention received by her website and chat room dedicated to uterine fibroids -- a unique place where women go to offer and obtain advice and support. " Loving is a prime example of journalism at its very, very worst. She had the materials, the person, the email detailing my talk, etc. And, still she found time to distort and write complete misinformation. Lots of it. Not just the info on " my choice. " Sigh. What can I do? Thank goodness for writers who DO pay attention to detail and do their research. I'd hate to think the world full of journalists on the scale of Loving. Writers I know from the Oregonian who saw that Skanner piece wrote to express outrage and offered much support -- but also suggested I call and demand she be fired from her job. I haven't done anything about that piece yet though. Loving displayed journalistic incompetence, that's for certain. But, I'm not certain that trying to intervene with every paper and journalist who writes a piece on me (that is bogus or contains misinformation) is something I should be doing. I think the Skanner is a good paper serving a community that needs it. What do you think I should do about the piece? Carla Dionne p.s. for those of you who don't live in Portland, the article we're referring to is, unfortunately, still available online at: http://www.theskanner.com/010905/pdxnews_02.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2001 Report Share Posted December 31, 2001 Hi Carla, The whole idea is to get the message out to women that they can have a UAE to treat their fibroids rather than a hysterectomy. With this in mind, and knowing how you are (just from reading your journal and the posts in Embo and uterinefibroids), meaning you are a great UAE patient advocate, I wouldn't just leave it alone. I would use this opportunity to make a big deal about 's mistaken journalism to further educate women. It's like the attention movie stars gets during a 'scandal' in their lives. If women read the Skanner and see that you're trying to promote UAE's and think you haven't had one yourself, what will they think? Do as I say, not as I do? I think you should be outraged because it does sound like slander to me, against you and against our cause. Plus you have the 'balls' to pull it off. Sue her for slander. That would give more attention to the 'Save our Uteruses' cause. And more support money. We need more Abbie Hoffman-like rabble-rousing. (Hey, I was a Vietnam war protester in my younger days). What's the worse thing that can happen? More publicity? Well that's what we need. Hysterectomies are big business and need to be fought with big balls, which you have. Go on girl!!! I had my UAE on 12/28/01 and feel great. I can't stop admiring my flat stomach in the mirror (being the vain bitch that I am). I'm afraid I may be having early menopausal symptoms though since the last couple nights I've had heavy night sweats which I never had before. But hey, I'm 48 and what was my alternative? I broke 20+ bones in a car accident 14 years ago and have been scared to death of going back to the hospital ever again in life. UAE was the least time in the hospital and the fastest recovery. Myomectomy would mean they might grow back and I'd have to go back to the hospital again. And forget hysterectomy. I'd rather live with the pain of the fibroids and wait till menopause than do that. I had a great IR, Dr. Romano, at Beaumont Hospital in Royal Oak (by Detroit). He's done almost 200 UAE's. He referred me to a great OB-GYN, Dr. Bartholomew who completely supports UAE's, so he could refer me back to Dr. Romano for the UAE. Thanks to your work, I'm sure, I had no problem getting a predetermination letter/number from Aetna. Have to wait and see if they really do end up paying for it. Anyways, I'm doing my part to pass on the word to my women friends about UAE. I feel so bad for a woman I work with who had a hysterectomy for her fibroids 8 years ago and was never able to have kids. I know she feels bad about it. Keep up the great work! Sirpa Re: Carla's choice " K. D. Birt " wrote: > Hi, > I'm a little confused... > After reading an article written by Loving,and also reading an excerp > from Carla's book, " Sex,Lies and the Truth About Uterine Fibroids " ,which > option DID Carla choose?UAE or a complete hysterectomy as stated in 's > article. Hi K.D., Are you asking about Loving from The Skanner in Portland, Oregon? showed up the last 30 minutes or so of my talk in NE Portland, Oregon earlier this fall. Breezed in, asked a few historical questions (completely out of context with my talk) and then afterwards took a copy of my book, our brochures, etc. with her out the door and never called or verified anything she wrote before submitting that horrific piece to The Skanner. I had UAE. Apparently, didn't even bother to read so much as the back cover of my book which states the following in the publisher's description: " If you have picked up this book, chances are that you or someone you know suffers from the debilitating symptoms of uterine fibroids. Carla Dionne, who successfully battled the disease without undergoing hysterectomy, wrote Sex, Lies, & the Truth About Uterine Fibroids in response to the overwhelming attention received by her website and chat room dedicated to uterine fibroids -- a unique place where women go to offer and obtain advice and support. " Loving is a prime example of journalism at its very, very worst. She had the materials, the person, the email detailing my talk, etc. And, still she found time to distort and write complete misinformation. Lots of it. Not just the info on " my choice. " Sigh. What can I do? Thank goodness for writers who DO pay attention to detail and do their research. I'd hate to think the world full of journalists on the scale of Loving. Writers I know from the Oregonian who saw that Skanner piece wrote to express outrage and offered much support -- but also suggested I call and demand she be fired from her job. I haven't done anything about that piece yet though. Loving displayed journalistic incompetence, that's for certain. But, I'm not certain that trying to intervene with every paper and journalist who writes a piece on me (that is bogus or contains misinformation) is something I should be doing. I think the Skanner is a good paper serving a community that needs it. What do you think I should do about the piece? Carla Dionne p.s. for those of you who don't live in Portland, the article we're referring to is, unfortunately, still available online at: http://www.theskanner.com/010905/pdxnews_02.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2002 Report Share Posted January 1, 2002 Regarding Loving, I think a letter to the editor or publisher is definitely in order. It's one thing for a jounalist to make a minor error in a piece, but Loving was irresponsible in her research and her writing. She has a duty to you, and, I believe, an even greater duty to the reading public, as does her paper. The only way the editor/publisher will know how poorly she is performing is if you let them know. What to do about her is up to them. Leonie -- " I went into the phone booth and came out Lois Lane " Nuala O'Faolain on turning 50 __________________________________________________________________ Your favorite stores, helpful shopping tools and great gift ideas. Experience the convenience of buying online with Shop@Netscape! http://shopnow.netscape.com/ Get your own FREE, personal Netscape Mail account today at http://webmail.netscape.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2002 Report Share Posted January 1, 2002 Regarding Loving, I think a letter to the editor or publisher is definitely in order. It's one thing for a jounalist to make a minor error in a piece, but Loving was irresponsible in her research and her writing. She has a duty to you, and, I believe, an even greater duty to the reading public, as does her paper. The only way the editor/publisher will know how poorly she is performing is if you let them know. What to do about her is up to them. Leonie -- " I went into the phone booth and came out Lois Lane " Nuala O'Faolain on turning 50 __________________________________________________________________ Your favorite stores, helpful shopping tools and great gift ideas. Experience the convenience of buying online with Shop@Netscape! http://shopnow.netscape.com/ Get your own FREE, personal Netscape Mail account today at http://webmail.netscape.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2002 Report Share Posted January 1, 2002 As a sometimes writer of a small newspaper, and someimes a part time editor of a small town newspaper, I think you should write a letter to the editor to be printed, maybe talk to the editor first, and express your reaction and concerns about the misinformation printed, also point out what was wrong with the information, and then rip the writer to shreds with a deft sentence or two. But then, that's my personality....hahaha. gg Carla Dionne wrote: > " K. D. Birt " wrote: > > > Hi, > > I'm a little confused... > > After reading an article written by Loving,and also reading an excerp > > from Carla's book, " Sex,Lies and the Truth About Uterine Fibroids " ,which > > option DID Carla choose?UAE or a complete hysterectomy as stated in 's > > article. > > Hi K.D., > > Are you asking about Loving from The Skanner in Portland, Oregon? showed up the last 30 > minutes or so of my talk in NE Portland, Oregon earlier this fall. Breezed in, asked a few historical > questions (completely out of context with my talk) and then afterwards took a copy of my book, our > brochures, etc. with her out the door and never called or verified anything she wrote before > submitting that horrific piece to The Skanner. I had UAE. Apparently, didn't even bother to > read so much as the back cover of my book which states the following in the publisher's description: > > " If you have picked up this book, chances are that you or someone you know suffers from the > debilitating symptoms of uterine fibroids. Carla Dionne, who successfully battled the disease without > undergoing hysterectomy, wrote Sex, Lies, & the Truth About Uterine Fibroids in response to the > overwhelming attention received by her website and chat room dedicated to uterine fibroids -- a unique > place where women go to offer and obtain advice and support. " > > Loving is a prime example of journalism at its very, very worst. She had the materials, the > person, the email detailing my talk, etc. And, still she found time to distort and write complete > misinformation. Lots of it. Not just the info on " my choice. " Sigh. What can I do? > > Thank goodness for writers who DO pay attention to detail and do their research. I'd hate to think > the world full of journalists on the scale of Loving. Writers I know from the Oregonian who saw > that Skanner piece wrote to express outrage and offered much support -- but also suggested I call and > demand she be fired from her job. I haven't done anything about that piece yet though. Loving > displayed journalistic incompetence, that's for certain. But, I'm not certain that trying to > intervene with every paper and journalist who writes a piece on me (that is bogus or contains > misinformation) is something I should be doing. > > I think the Skanner is a good paper serving a community that needs it. What do you think I should do > about the piece? > > Carla Dionne > > p.s. for those of you who don't live in Portland, the article we're referring to is, unfortunately, > still available online at: > > http://www.theskanner.com/010905/pdxnews_02.html > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2002 Report Share Posted January 1, 2002 It was a very badly witten piece. The first two paragraps should have maybe been stuck at the end. gg Carla Dionne wrote: > " K. D. Birt " wrote: > > > Hi, > > I'm a little confused... > > After reading an article written by Loving,and also reading an excerp > > from Carla's book, " Sex,Lies and the Truth About Uterine Fibroids " ,which > > option DID Carla choose?UAE or a complete hysterectomy as stated in 's > > article. > > Hi K.D., > > Are you asking about Loving from The Skanner in Portland, Oregon? showed up the last 30 > minutes or so of my talk in NE Portland, Oregon earlier this fall. Breezed in, asked a few historical > questions (completely out of context with my talk) and then afterwards took a copy of my book, our > brochures, etc. with her out the door and never called or verified anything she wrote before > submitting that horrific piece to The Skanner. I had UAE. Apparently, didn't even bother to > read so much as the back cover of my book which states the following in the publisher's description: > > " If you have picked up this book, chances are that you or someone you know suffers from the > debilitating symptoms of uterine fibroids. Carla Dionne, who successfully battled the disease without > undergoing hysterectomy, wrote Sex, Lies, & the Truth About Uterine Fibroids in response to the > overwhelming attention received by her website and chat room dedicated to uterine fibroids -- a unique > place where women go to offer and obtain advice and support. " > > Loving is a prime example of journalism at its very, very worst. She had the materials, the > person, the email detailing my talk, etc. And, still she found time to distort and write complete > misinformation. Lots of it. Not just the info on " my choice. " Sigh. What can I do? > > Thank goodness for writers who DO pay attention to detail and do their research. I'd hate to think > the world full of journalists on the scale of Loving. Writers I know from the Oregonian who saw > that Skanner piece wrote to express outrage and offered much support -- but also suggested I call and > demand she be fired from her job. I haven't done anything about that piece yet though. Loving > displayed journalistic incompetence, that's for certain. But, I'm not certain that trying to > intervene with every paper and journalist who writes a piece on me (that is bogus or contains > misinformation) is something I should be doing. > > I think the Skanner is a good paper serving a community that needs it. What do you think I should do > about the piece? > > Carla Dionne > > p.s. for those of you who don't live in Portland, the article we're referring to is, unfortunately, > still available online at: > > http://www.theskanner.com/010905/pdxnews_02.html > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2002 Report Share Posted January 1, 2002 I agree. Use the bad, sloppy journalism to put out the right facts in print. cheers, gg. coollady wrote: > Hi Carla, > > The whole idea is to get the message out to women that they can have a UAE > to treat their fibroids > rather than a hysterectomy. With this in mind, and knowing how you are > (just from reading your > journal and the posts in Embo and uterinefibroids), meaning you are a great > UAE patient advocate, I > wouldn't just leave it alone. I would use this opportunity to make a big > deal about 's mistaken > journalism to further educate women. It's like the attention movie stars > gets during a 'scandal' > in their lives. If women read the Skanner and see that you're trying to > promote UAE's and think > you haven't had one yourself, what will they think? Do as I say, not as I > do? > I think you should be outraged because it does sound like slander to me, > against you and against > our cause. Plus you have the 'balls' to pull it off. Sue her for slander. > That would give more attention > to the 'Save our Uteruses' cause. And more support money. We need more > Abbie Hoffman-like > rabble-rousing. (Hey, I was a Vietnam war protester in my younger days). > What's the worse thing that can happen? More publicity? Well that's what > we need. > Hysterectomies are big business and need to be fought with big balls, which > you have. > Go on girl!!! > > I had my UAE on 12/28/01 and feel great. I can't stop admiring my flat > stomach in the mirror > (being the vain bitch that I am). I'm afraid I may be having early > menopausal symptoms though > since the last couple nights I've had heavy night sweats which I never had > before. But hey, I'm > 48 and what was my alternative? I broke 20+ bones in a car accident 14 > years ago and have been > scared to death of going back to the hospital ever again in life. UAE was > the least time in the hospital > and the fastest recovery. Myomectomy would mean they might grow back and > I'd have to go back to > the hospital again. And forget hysterectomy. I'd rather live with the pain > of the fibroids and wait till > menopause than do that. I had a great IR, Dr. Romano, at Beaumont Hospital > in Royal Oak (by > Detroit). He's done almost 200 UAE's. He referred me to a great OB-GYN, > Dr. Bartholomew who > completely supports UAE's, so he could refer me back to Dr. Romano for the > UAE. Thanks to your > work, I'm sure, I had no problem getting a predetermination letter/number > from Aetna. Have to wait > and see if they really do end up paying for it. > > Anyways, I'm doing my part to pass on the word to my women friends about > UAE. I feel so bad for > a woman I work with who had a hysterectomy for her fibroids 8 years ago and > was never able to have kids. > I know she feels bad about it. > > Keep up the great work! > > Sirpa > > Re: Carla's choice > > " K. D. Birt " wrote: > > > Hi, > > I'm a little confused... > > After reading an article written by Loving,and also reading an > excerp > > from Carla's book, " Sex,Lies and the Truth About Uterine Fibroids " ,which > > option DID Carla choose?UAE or a complete hysterectomy as stated in > 's > > article. > > Hi K.D., > > Are you asking about Loving from The Skanner in Portland, Oregon? > showed up the last 30 > minutes or so of my talk in NE Portland, Oregon earlier this fall. > Breezed in, asked a few historical > questions (completely out of context with my talk) and then afterwards > took a copy of my book, our > brochures, etc. with her out the door and never called or verified > anything she wrote before > submitting that horrific piece to The Skanner. I had UAE. Apparently, > didn't even bother to > read so much as the back cover of my book which states the following in > the publisher's description: > > " If you have picked up this book, chances are that you or someone you know > suffers from the > debilitating symptoms of uterine fibroids. Carla Dionne, who successfully > battled the disease without > undergoing hysterectomy, wrote Sex, Lies, & the Truth About Uterine > Fibroids in response to the > overwhelming attention received by her website and chat room dedicated to > uterine fibroids -- a unique > place where women go to offer and obtain advice and support. " > > Loving is a prime example of journalism at its very, very worst. She > had the materials, the > person, the email detailing my talk, etc. And, still she found time to > distort and write complete > misinformation. Lots of it. Not just the info on " my choice. " Sigh. > What can I do? > > Thank goodness for writers who DO pay attention to detail and do their > research. I'd hate to think > the world full of journalists on the scale of Loving. Writers I know > from the Oregonian who saw > that Skanner piece wrote to express outrage and offered much support -- > but also suggested I call and > demand she be fired from her job. I haven't done anything about that > piece yet though. Loving > displayed journalistic incompetence, that's for certain. But, I'm not > certain that trying to > intervene with every paper and journalist who writes a piece on me (that > is bogus or contains > misinformation) is something I should be doing. > > I think the Skanner is a good paper serving a community that needs it. > What do you think I should do > about the piece? > > Carla Dionne > > p.s. for those of you who don't live in Portland, the article we're > referring to is, unfortunately, > still available online at: > > http://www.theskanner.com/010905/pdxnews_02.html > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2002 Report Share Posted January 1, 2002 Carla, I think that at the very least you should reply in a letter to the editor and request a correction equal in prominence to the original article. > > > Hi, > > I'm a little confused... > > After reading an article written by Loving,and also reading an excerp > > from Carla's book, " Sex,Lies and the Truth About Uterine Fibroids " ,which > > option DID Carla choose?UAE or a complete hysterectomy as stated in 's > > article. > > Hi K.D., > > Are you asking about Loving from The Skanner in Portland, Oregon? showed up the last 30 > minutes or so of my talk in NE Portland, Oregon earlier this fall. Breezed in, asked a few historical > questions (completely out of context with my talk) and then afterwards took a copy of my book, our > brochures, etc. with her out the door and never called or verified anything she wrote before > submitting that horrific piece to The Skanner. I had UAE. Apparently, didn't even bother to > read so much as the back cover of my book which states the following in the publisher's description: > > " If you have picked up this book, chances are that you or someone you know suffers from the > debilitating symptoms of uterine fibroids. Carla Dionne, who successfully battled the disease without > undergoing hysterectomy, wrote Sex, Lies, & the Truth About Uterine Fibroids in response to the > overwhelming attention received by her website and chat room dedicated to uterine fibroids -- a unique > place where women go to offer and obtain advice and support. " > > Loving is a prime example of journalism at its very, very worst. She had the materials, the > person, the email detailing my talk, etc. And, still she found time to distort and write complete > misinformation. Lots of it. Not just the info on " my choice. " Sigh. What can I do? > > Thank goodness for writers who DO pay attention to detail and do their research. I'd hate to think > the world full of journalists on the scale of Loving. Writers I know from the Oregonian who saw > that Skanner piece wrote to express outrage and offered much support -- but also suggested I call and > demand she be fired from her job. I haven't done anything about that piece yet though. Loving > displayed journalistic incompetence, that's for certain. But, I'm not certain that trying to > intervene with every paper and journalist who writes a piece on me (that is bogus or contains > misinformation) is something I should be doing. > > I think the Skanner is a good paper serving a community that needs it. What do you think I should do > about the piece? > > Carla Dionne > > p.s. for those of you who don't live in Portland, the article we're referring to is, unfortunately, > still available online at: > > http://www.theskanner.com/010905/pdxnews_02.html > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2002 Report Share Posted January 1, 2002 Carla, I think that at the very least you should reply in a letter to the editor and request a correction equal in prominence to the original article. > > > Hi, > > I'm a little confused... > > After reading an article written by Loving,and also reading an excerp > > from Carla's book, " Sex,Lies and the Truth About Uterine Fibroids " ,which > > option DID Carla choose?UAE or a complete hysterectomy as stated in 's > > article. > > Hi K.D., > > Are you asking about Loving from The Skanner in Portland, Oregon? showed up the last 30 > minutes or so of my talk in NE Portland, Oregon earlier this fall. Breezed in, asked a few historical > questions (completely out of context with my talk) and then afterwards took a copy of my book, our > brochures, etc. with her out the door and never called or verified anything she wrote before > submitting that horrific piece to The Skanner. I had UAE. Apparently, didn't even bother to > read so much as the back cover of my book which states the following in the publisher's description: > > " If you have picked up this book, chances are that you or someone you know suffers from the > debilitating symptoms of uterine fibroids. Carla Dionne, who successfully battled the disease without > undergoing hysterectomy, wrote Sex, Lies, & the Truth About Uterine Fibroids in response to the > overwhelming attention received by her website and chat room dedicated to uterine fibroids -- a unique > place where women go to offer and obtain advice and support. " > > Loving is a prime example of journalism at its very, very worst. She had the materials, the > person, the email detailing my talk, etc. And, still she found time to distort and write complete > misinformation. Lots of it. Not just the info on " my choice. " Sigh. What can I do? > > Thank goodness for writers who DO pay attention to detail and do their research. I'd hate to think > the world full of journalists on the scale of Loving. Writers I know from the Oregonian who saw > that Skanner piece wrote to express outrage and offered much support -- but also suggested I call and > demand she be fired from her job. I haven't done anything about that piece yet though. Loving > displayed journalistic incompetence, that's for certain. But, I'm not certain that trying to > intervene with every paper and journalist who writes a piece on me (that is bogus or contains > misinformation) is something I should be doing. > > I think the Skanner is a good paper serving a community that needs it. What do you think I should do > about the piece? > > Carla Dionne > > p.s. for those of you who don't live in Portland, the article we're referring to is, unfortunately, > still available online at: > > http://www.theskanner.com/010905/pdxnews_02.html > > > Quote Link to comment Share on other sites More sharing options...
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