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I was very sad to find out about Jordan. I can almost remember writing to her

many years ago to ask about the Crew. I soon found out what a wonderful person

she was and about her special gift for resolving conflicts. She always knew what

to say or do without hurting anyone. I often think about a passage from an old

Hemingway novel when someone with NF2 passes away:

" If people bring so much courage to this world the world has to kill them to

break them, so of course it kills them. The world breaks every one and afterward

many are strong at the broken places. But those that will not break it kills. It

kills the very good and the very gentle and the very brave impartially. If you

are none of these you can be sure it will kill you too but there will be no

special hurry. "

I think people with NF2 tend to be kind, gentle and brave. This was true for

Jordan perhaps moreso than anyone else.

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That was nice ! I was impressed !!!!!!!!!!!!!!

>

> " If people bring so much courage to this world the world has to kill them

to break them, so of course it kills them. The world breaks every one and

afterward many are strong at the broken places. But those that will not

break it kills. It kills the very good and the very gentle and the very

brave impartially. If you are none of these you can be sure it will kill you

too but there will be no special hurry. "

>

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Wow, ..my mind is still trying to sythesize this, but what you've written so poetically is so true! Bravo!

Greg

"If people bring so much courage to this world the world has to kill them to break them, so of course it kills them. The world breaks every one and afterward many are strong at the broken places. But those that will not break it kills. It kills the very good and the very gentle and the very brave impartially. If you are none of these you can be sure it will kill you too but there will be no special hurry."I think people with NF2 tend to be kind, gentle and brave. This was true for Jordan perhaps moreso than anyone else.

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In a message dated 10/7/00 3:18:28 PM Pacific Daylight Time,

GREGIERY@... writes:

<< I think people with NF2 tend to be kind, gentle and brave. >>

Hi Greg,

I have to agree with on this,the effects of this disease are so profund.You

have lived life both ways and completely abled and now disabled or differntly

abled...It changes your outlook on life,I know it did me.I have always been a

kind and gentle person and evan now more so.I have learned to be thankful for

what I have instead of what I have not or what was takin away from me.I enjoy

things to the fullest now and take nothing for granted.I am full of

compassion.

I have also learned to be BRAVE and STRONG...I remember my girlfriend telling

me once a while ago when my eye sight was starting to get bad,she

said " " Lana,if anyone can take this and handle it,it's you....This disease

instills a passion in you,for fighting and for feelings within your heart

that go deep,and only someone that has been there can understand....

I never had the pleasure of knowing Jordan,but from what the posts say she

was a wonderful person.I read an email where it said she was blind and deaf,I

automatically thought of Hellen Keller,but Helen was at least mobil.There is

nothing on this earth like the human spirt.Everyone of us on this crew

certainly has it.

Lana

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In a message dated 10/7/00 3:18:28 PM Pacific Daylight Time,

GREGIERY@... writes:

<< I think people with NF2 tend to be kind, gentle and brave. >>

Hi Greg,

I have to agree with on this,the effects of this disease are so profund.You

have lived life both ways and completely abled and now disabled or differntly

abled...It changes your outlook on life,I know it did me.I have always been a

kind and gentle person and evan now more so.I have learned to be thankful for

what I have instead of what I have not or what was takin away from me.I enjoy

things to the fullest now and take nothing for granted.I am full of

compassion.

I have also learned to be BRAVE and STRONG...I remember my girlfriend telling

me once a while ago when my eye sight was starting to get bad,she

said " " Lana,if anyone can take this and handle it,it's you....This disease

instills a passion in you,for fighting and for feelings within your heart

that go deep,and only someone that has been there can understand....

I never had the pleasure of knowing Jordan,but from what the posts say she

was a wonderful person.I read an email where it said she was blind and deaf,I

automatically thought of Hellen Keller,but Helen was at least mobil.There is

nothing on this earth like the human spirt.Everyone of us on this crew

certainly has it.

Lana

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Love Hemingway. good job , im keeping this and feel more at peace

with Jordans passing.

Greg wrote:

Wow,

..my mind is still trying to sythesize this, but what you've written

so poetically is so true! Bravo!Greg "If

people bring so much courage to this world the world has to kill them to

break them, so of course it kills them. The world breaks every one and

afterward many are strong at the broken places. But those that will not

break it kills. It kills the very good and the very gentle and the very

brave impartially. If you are none of these you can be sure it will kill

you too but there will be no special hurry."

I think people with NF2 tend to be kind, gentle and brave. This was

true for Jordan perhaps moreso than anyone else.

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Love Hemingway. good job , im keeping this and feel more at peace

with Jordans passing.

Greg wrote:

Wow,

..my mind is still trying to sythesize this, but what you've written

so poetically is so true! Bravo!Greg "If

people bring so much courage to this world the world has to kill them to

break them, so of course it kills them. The world breaks every one and

afterward many are strong at the broken places. But those that will not

break it kills. It kills the very good and the very gentle and the very

brave impartially. If you are none of these you can be sure it will kill

you too but there will be no special hurry."

I think people with NF2 tend to be kind, gentle and brave. This was

true for Jordan perhaps moreso than anyone else.

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Love Hemingway. good job , im keeping this and feel more at peace

with Jordans passing.

Greg wrote:

Wow,

..my mind is still trying to sythesize this, but what you've written

so poetically is so true! Bravo!Greg "If

people bring so much courage to this world the world has to kill them to

break them, so of course it kills them. The world breaks every one and

afterward many are strong at the broken places. But those that will not

break it kills. It kills the very good and the very gentle and the very

brave impartially. If you are none of these you can be sure it will kill

you too but there will be no special hurry."

I think people with NF2 tend to be kind, gentle and brave. This was

true for Jordan perhaps moreso than anyone else.

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Lana -

Thank you for sharing this. It is an awesome.

I personally feel my NF2 has shaped my life to enhance it. Ya, we have our

frustrating moments. They are minor compared to the beauty.

Jane

Re: Jordan Harlow

>In a message dated 10/7/00 3:18:28 PM Pacific Daylight Time,

>GREGIERY@... writes:

>

><< I think people with NF2 tend to be kind, gentle and brave. >>

> Hi Greg,

>I have to agree with on this,the effects of this disease are so profund.You

>have lived life both ways and completely abled and now disabled or

differntly

>abled...It changes your outlook on life,I know it did me.I have always been

a

>kind and gentle person and evan now more so.I have learned to be thankful

for

>what I have instead of what I have not or what was takin away from me.I

enjoy

>things to the fullest now and take nothing for granted.I am full of

>compassion.

>

>I have also learned to be BRAVE and STRONG...I remember my girlfriend

telling

>me once a while ago when my eye sight was starting to get bad,she

>said " " Lana,if anyone can take this and handle it,it's you....This disease

>instills a passion in you,for fighting and for feelings within your heart

>that go deep,and only someone that has been there can understand....

>

>I never had the pleasure of knowing Jordan,but from what the posts say she

>was a wonderful person.I read an email where it said she was blind and

deaf,I

>automatically thought of Hellen Keller,but Helen was at least mobil.There

is

>nothing on this earth like the human spirt.Everyone of us on this crew

>certainly has it.

>

>Lana

>

>

>

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Lana -

Thank you for sharing this. It is an awesome.

I personally feel my NF2 has shaped my life to enhance it. Ya, we have our

frustrating moments. They are minor compared to the beauty.

Jane

Re: Jordan Harlow

>In a message dated 10/7/00 3:18:28 PM Pacific Daylight Time,

>GREGIERY@... writes:

>

><< I think people with NF2 tend to be kind, gentle and brave. >>

> Hi Greg,

>I have to agree with on this,the effects of this disease are so profund.You

>have lived life both ways and completely abled and now disabled or

differntly

>abled...It changes your outlook on life,I know it did me.I have always been

a

>kind and gentle person and evan now more so.I have learned to be thankful

for

>what I have instead of what I have not or what was takin away from me.I

enjoy

>things to the fullest now and take nothing for granted.I am full of

>compassion.

>

>I have also learned to be BRAVE and STRONG...I remember my girlfriend

telling

>me once a while ago when my eye sight was starting to get bad,she

>said " " Lana,if anyone can take this and handle it,it's you....This disease

>instills a passion in you,for fighting and for feelings within your heart

>that go deep,and only someone that has been there can understand....

>

>I never had the pleasure of knowing Jordan,but from what the posts say she

>was a wonderful person.I read an email where it said she was blind and

deaf,I

>automatically thought of Hellen Keller,but Helen was at least mobil.There

is

>nothing on this earth like the human spirt.Everyone of us on this crew

>certainly has it.

>

>Lana

>

>

>

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Marcus/Greg,

I took this little passage from the Ernest Hemingway novel " A Farewell To Arms " .

I did not write it myself (in case there was some confusion).

The words seem to stick in my mind. Unfortunately, I am reminded of them too

often and there has been no one they apply to more than Jordan.

----------

From: Marcus

Sent: Saturday, October 07, 2000 5:21 PM

To: NF2_Crewegroups

Subject: Re: Jordan Harlow

That was nice ! I was impressed !!!!!!!!!!!!!!

>

> " If people bring so much courage to this world the world has to kill them

to break them, so of course it kills them. The world breaks every one and

afterward many are strong at the broken places. But those that will not

break it kills. It kills the very good and the very gentle and the very

brave impartially. If you are none of these you can be sure it will kill you

too but there will be no special hurry. "

>

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Marcus/Greg,

I took this little passage from the Ernest Hemingway novel " A Farewell To Arms " .

I did not write it myself (in case there was some confusion).

The words seem to stick in my mind. Unfortunately, I am reminded of them too

often and there has been no one they apply to more than Jordan.

----------

From: Marcus

Sent: Saturday, October 07, 2000 5:21 PM

To: NF2_Crewegroups

Subject: Re: Jordan Harlow

That was nice ! I was impressed !!!!!!!!!!!!!!

>

> " If people bring so much courage to this world the world has to kill them

to break them, so of course it kills them. The world breaks every one and

afterward many are strong at the broken places. But those that will not

break it kills. It kills the very good and the very gentle and the very

brave impartially. If you are none of these you can be sure it will kill you

too but there will be no special hurry. "

>

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Lana,

What beautiful words on NF's impact on you as a person. You have many gifts

I am sure but one that is obvious to me is your ability with the written word.

I would like to share with you and all the Crew how I am impressed by you

all. I, too, came on the crew thanks to Jordan's efforts. A remarkable

lady--bright, compassionate, passionate, empathetic, sensitive, courageous,

positive-thinking. I will miss her and her direct and indirect impact on us.

But her example shines like a beacon for the Crew and all with whom she had

contact. However, after reading everyone's posts--poetry and prose--about

Jordan, I am awestruck at how remarkable you all are. Your chronic health

condition poses constant challenges and yet you and your loved ones march

through life bravely with hope and faith in your hearts. Thanks for your

inspiration. Love, Vicki (Anne's mom)

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Lana,

What beautiful words on NF's impact on you as a person. You have many gifts

I am sure but one that is obvious to me is your ability with the written word.

I would like to share with you and all the Crew how I am impressed by you

all. I, too, came on the crew thanks to Jordan's efforts. A remarkable

lady--bright, compassionate, passionate, empathetic, sensitive, courageous,

positive-thinking. I will miss her and her direct and indirect impact on us.

But her example shines like a beacon for the Crew and all with whom she had

contact. However, after reading everyone's posts--poetry and prose--about

Jordan, I am awestruck at how remarkable you all are. Your chronic health

condition poses constant challenges and yet you and your loved ones march

through life bravely with hope and faith in your hearts. Thanks for your

inspiration. Love, Vicki (Anne's mom)

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Lana,

What beautiful words on NF's impact on you as a person. You have many gifts

I am sure but one that is obvious to me is your ability with the written word.

I would like to share with you and all the Crew how I am impressed by you

all. I, too, came on the crew thanks to Jordan's efforts. A remarkable

lady--bright, compassionate, passionate, empathetic, sensitive, courageous,

positive-thinking. I will miss her and her direct and indirect impact on us.

But her example shines like a beacon for the Crew and all with whom she had

contact. However, after reading everyone's posts--poetry and prose--about

Jordan, I am awestruck at how remarkable you all are. Your chronic health

condition poses constant challenges and yet you and your loved ones march

through life bravely with hope and faith in your hearts. Thanks for your

inspiration. Love, Vicki (Anne's mom)

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Vicki , we may never say it much, but I want to thank you for your consistent

and

sincere words of kindness and compassion. every time i read a post by you i come

away feel strong and healthy. I'm glad you are anne's mom and i'm glad you are

here for us too! cindy

vjpcook@... wrote:

> Lana,

> What beautiful words on NF's impact on you as a person. You have many gifts

> I am sure but one that is obvious to me is your ability with the written word.

> I would like to share with you and all the Crew how I am impressed by you

> all. I, too, came on the crew thanks to Jordan's efforts. A remarkable

> lady--bright, compassionate, passionate, empathetic, sensitive, courageous,

> positive-thinking. I will miss her and her direct and indirect impact on us.

> But her example shines like a beacon for the Crew and all with whom she had

> contact. However, after reading everyone's posts--poetry and prose--about

> Jordan, I am awestruck at how remarkable you all are. Your chronic health

> condition poses constant challenges and yet you and your loved ones march

> through life bravely with hope and faith in your hearts. Thanks for your

> inspiration. Love, Vicki (Anne's mom)

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Vicki , we may never say it much, but I want to thank you for your consistent

and

sincere words of kindness and compassion. every time i read a post by you i come

away feel strong and healthy. I'm glad you are anne's mom and i'm glad you are

here for us too! cindy

vjpcook@... wrote:

> Lana,

> What beautiful words on NF's impact on you as a person. You have many gifts

> I am sure but one that is obvious to me is your ability with the written word.

> I would like to share with you and all the Crew how I am impressed by you

> all. I, too, came on the crew thanks to Jordan's efforts. A remarkable

> lady--bright, compassionate, passionate, empathetic, sensitive, courageous,

> positive-thinking. I will miss her and her direct and indirect impact on us.

> But her example shines like a beacon for the Crew and all with whom she had

> contact. However, after reading everyone's posts--poetry and prose--about

> Jordan, I am awestruck at how remarkable you all are. Your chronic health

> condition poses constant challenges and yet you and your loved ones march

> through life bravely with hope and faith in your hearts. Thanks for your

> inspiration. Love, Vicki (Anne's mom)

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Vicki , we may never say it much, but I want to thank you for your consistent

and

sincere words of kindness and compassion. every time i read a post by you i come

away feel strong and healthy. I'm glad you are anne's mom and i'm glad you are

here for us too! cindy

vjpcook@... wrote:

> Lana,

> What beautiful words on NF's impact on you as a person. You have many gifts

> I am sure but one that is obvious to me is your ability with the written word.

> I would like to share with you and all the Crew how I am impressed by you

> all. I, too, came on the crew thanks to Jordan's efforts. A remarkable

> lady--bright, compassionate, passionate, empathetic, sensitive, courageous,

> positive-thinking. I will miss her and her direct and indirect impact on us.

> But her example shines like a beacon for the Crew and all with whom she had

> contact. However, after reading everyone's posts--poetry and prose--about

> Jordan, I am awestruck at how remarkable you all are. Your chronic health

> condition poses constant challenges and yet you and your loved ones march

> through life bravely with hope and faith in your hearts. Thanks for your

> inspiration. Love, Vicki (Anne's mom)

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<< Lana,

> What beautiful words on NF's impact on you as a person. You have many

gifts

> I am sure but one that is obvious to me is your ability with the written

word. >>

Hi Vicki,

Thank you for sharing your thoughts and the wonderful words.Anne is very

lucky to have you for a mother.

Lana

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