Guest guest Posted January 1, 2002 Report Share Posted January 1, 2002 Yes, there is a circumstance when I believe it is appropriate to have a hysterectomy. Cancer. That is the only time, and we all know that the chances of a fibroid being malignant are extremely slim. Carol __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2002 Report Share Posted January 1, 2002 ... I was on Lupron for 3 months prior to the surgery. It helped tremendously. The fibroids did shrink and I had hardly any blood loss according to my doctor. However, now I have 100 plus tiny fibroids left inside. He said that he believes the 3 larger ones that he removed were blocking them and that he would not recommend the Lupron again. He wanted to do a hysterectomy but I am soooooooo glad that he didnt'. He really couldn't have anyway (legally)...it's not like they are life threatening. I don't know about others, but I would choose a myo vs hyst. anyday unless it was just not avoidable. My two older sisters have the same problem. My one sister had a myo by my doctor last year and my other sister had a hysterectomy. She went through heck. She told me not to get one unless I have to because she didn't want me to go through it. Not only do you go through the physical aspect of it but also the mental aspect and changes. I don't know what we are going to do with the remaining 100plus (by the way, I would appreciate any comments/advice from anyone on that) but if it was my decision, I would choose the myo. However, you do what is comfortable for you. You know the group will support you which ever you decide. Thats the nice part about it (smile). > Hi > I've learned a lot from many of the post on this site. My story is: I have 1 very large fibroid (19cm) don't know if there might be more The large one is the only one visible. I was anemic (5.2 hemog.) I'm now 13.8. I have been on Lupron for 4 months in order to shrink the fibroid and stop my periods. The fibroid has not shrunk my periods have stopped. While there are many valid opinions for not taking Lupron I believe it was necessary for me. I have schedule surgery for Jan 10th. Here's the problem: On any given day I have changed my mind from having a myo or having a hyster. I think the main reason is I'm more afraid of regrowth and another surgery then I am of not having a uterus. even if regowth doesn't result in a 2nd operation I like the idea less of having fibroids inside then not having a uterus. > > I know from many posts that the overwhelming opinion is to avoid a hyster. However is there a time when its truly a better way to go? I welcome people's comments > > Confused in San Diego > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2002 Report Share Posted January 1, 2002 Hi , There is a very good post on hysterectomy vs. myo in the archives. message#10064. If you access the yahoogroups page and put in the message number you will be able to read it. A woman (Marilyn) was confronted with a number of issues, medical and personal, and she outlines how and why she chose hysterectomy. She presents a very clear headed and well thought out personal decision. It might help to look at her post as she struggled with a number of problems--the most serious being extremely heavy and prolonged bleeding. You may also want to follow the thread or search the messages around the time of this message as there were many discussions regarding her symptoms and options. I hope this helps. Best wishes, > I know from many posts that the overwhelming opinion is to avoid a hyster. However is there a time when its truly a better way to go? I welcome people's comments > > Confused in San Diego > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2002 Report Share Posted January 1, 2002 Hi : I can sympathize with your feelings, as I am going through a similar issue--waffling back and forth on whether to get a myo or hysterectomy. I have a couple of large fibroids which are currently non-symptomatic, other than putting pressure on another organ. To prevent further damage and potential loss of a kidney, the fibroids need to come out. I am coming to a similar conclusion as yourself--perhaps it is better to have the uterus taken out rather than to face another surgery AND maybe some bleeding problems, (which I currently don't have), sometime later down the road. (I am 36). No one has yet been able to tell me that fibroid regrowth will not happen and I have read of a number of ladies on this list who have gone through a second operation. I am not a candidate for UAE, and I still have reservations about putting those 'particles' in my blood stream. As to truly a better way to go?? I don't think anyone can answer this for you, myself , or anyone else. From everything I have read about myo, hysterectomy and UAE, nothing is guaranteed. All have their pros and cons. I have read glowing successes and rotten reports for each treatment. There is no one perfect procedure that will solve your problems without any potential after effects. In the end, it does remain a personal choice that one has to make taking into consideration your own personal beliefs, strengths and medical situation. The one positive point that I have found is the amount of information available and the interaction and support that one can find on the internet and in onelists such as this one. Best of luck with your decision, K > Message: 20 > Date: Tue, 1 Jan 2002 15:02:47 -0800 > > Subject: hyster?? myo?? > > Hi > I've learned a lot from many of the post on this site. My story is: I have 1 very large fibroid (19cm) don't know if there might be more The large one is the only one visible. I was anemic (5.2 hemog.) I'm now 13.8. I have been on Lupron for 4 months in order to shrink the fibroid and stop my periods. The fibroid has not shrunk my periods have stopped. While there are many valid opinions for not taking Lupron I believe it was necessary for me. I have schedule surgery for Jan 10th. Here's the problem: On any given day I have changed my mind from having a myo or having a hyster. I think the main reason is I'm more afraid of regrowth and another surgery then I am of not having a uterus. even if regowth doesn't result in a 2nd operation I like the idea less of having fibroids inside then not having a uterus. > > I know from many posts that the overwhelming opinion is to avoid a hyster. However is there a time when its truly a better way to go? I welcome people's comments > > Confused in San Diego > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2002 Report Share Posted January 1, 2002 I have had many women friends that have had hysterectomies and have yet to hear of any regret. They all seem very happy to have had one. I suspect that whatever symptoms that they were experiencing prior to surgery made it worthwhile. You don't mention your age. I'm sure that the ability to have children weighs in on the equation. My peer group is older so that is not a factor. If the vaginal removal of my fibroid recently does not resolve my excessive bleeding, anemia, etc., I may still face a hysterectomy at 48. Initially this is what I wanted and told the doctor she couldn't have my fibroid unless she took my uterus with it. I just wanted to be done with the whole thing. Since I was bleeding excessively since mid-October, I figured I never wanted to face another period in my lifetime. My one fear is that I do not want to have to take so much time off to recover. It would make me feel too dependent. I am not educated on all the possible other issues from no longer having a uterus. I would talk to your doctor, ask lots of questions about options and what to expect later. Research, chat with friends, keep in contact with this group. Best wishes. hyster?? myo?? > Hi > I've learned a lot from many of the post on this site. My story is: I have 1 very large fibroid (19cm) don't know if there might be more The large one is the only one visible. I was anemic (5.2 hemog.) I'm now 13.8. I have been on Lupron for 4 months in order to shrink the fibroid and stop my periods. The fibroid has not shrunk my periods have stopped. While there are many valid opinions for not taking Lupron I believe it was necessary for me. I have schedule surgery for Jan 10th. Here's the problem: On any given day I have changed my mind from having a myo or having a hyster. I think the main reason is I'm more afraid of regrowth and another surgery then I am of not having a uterus. even if regowth doesn't result in a 2nd operation I like the idea less of having fibroids inside then not having a uterus. > > I know from many posts that the overwhelming opinion is to avoid a hyster. However is there a time when its truly a better way to go? I welcome people's comments > > Confused in San Diego > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2002 Report Share Posted January 1, 2002 Carol I just don't know if I can agree. I know several women who have had one and are very pleased. Perhaps I have not heard enough horror stories and not sure that I want that. Regardless, I would hope that women who are faced with a hysterectomy or have gone through one can continue to receive whatever support there is available with this group. I think it has to be an individual decision and I am sure not an easy one to make. I can be thankful that I am not there yet. Re: hyster?? myo?? > Yes, there is a circumstance when I believe it is appropriate to have a > hysterectomy. Cancer. That is the only time, and we all know that the > chances of a fibroid being malignant are extremely slim. > Carol > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2002 Report Share Posted January 1, 2002 Thank you for you input. I'm 39 because of how quickly and large my fibroid grew (19cm 8 months) I fear regrowth and that is something I don't think I want to deal with. I too have 3 friends and my mom who have all had hyst. all with no regret. Actually one friend regrets not having their ovaries taken. She know worries about ovarian cancer. That surprise me when she told me that. hyster?? myo?? > > > > Hi > > I've learned a lot from many of the post on this site. My story is: I have > 1 very large fibroid (19cm) don't know if there might be more The large one > is the only one visible. I was anemic (5.2 hemog.) I'm now 13.8. I have been > on Lupron for 4 months in order to shrink the fibroid and stop my periods. > The fibroid has not shrunk my periods have stopped. While there are many > valid opinions for not taking Lupron I believe it was necessary for me. I > have schedule surgery for Jan 10th. Here's the problem: On any given day I > have changed my mind from having a myo or having a hyster. I think the main > reason is I'm more afraid of regrowth and another surgery then I am of not > having a uterus. even if regowth doesn't result in a 2nd operation I like > the idea less of having fibroids inside then not having a uterus. > > > > I know from many posts that the overwhelming opinion is to avoid a hyster. > However is there a time when its truly a better way to go? I welcome > people's comments > > > > Confused in San Diego > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2002 Report Share Posted January 1, 2002 thank you for your input. I do agree. Re: hyster?? myo?? > > > > Yes, there is a circumstance when I believe it is appropriate to have a > > hysterectomy. Cancer. That is the only time, and we all know that the > > chances of a fibroid being malignant are extremely slim. > > Carol > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
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