Medications and behaviors.

October 19, 2002

Hi everyone....

I wanted to ask for advice and information regarding medication and

behaviors. My child Nicolas is 5 and has had pretty severe negative

behaviors for the previous 3 years. He bites,pinches,pulls hair and

is starting to hit. We have tried NUMEROUS behavioral approaches and

some medications. Basically he is getting bigger and stronger and

there is a concern for safety. I work at the University of Oregon and

we have some wonderful resources and world renowned professors who

have tried to help us all without much success. We know the triggers

but Nic also is compulsive and a lot of the times there is no trigger

that is visable. Our develpomental Ped. tells us that he seems very

disorganized and obsessive compulsive. We also have discovered that

Nic has a fast metabolism and burns through the medication about

twice as fast as others. Nic also has been labeled Autistic. This

actually has opened the door to many school options that are not

available to children wihtout the label. Here is is alst of what we

have tried and the doses. I am curious to hear what others have used

and at what dosage's seem helpful.

Risperdial- 1.mg liquid. We have tried up to 2. mg per day. some

calming but not much help with the behaviors. He has been taking

aprox. 1 year. (The product insert talks of much higher doses has

anyone used like 5. or 6. mg per day?)

Ativan- 0.5mg tablets. We have discountinued this med. We tried

giving up to 2.mg at a time to try to calm him down for medical

appts. but instead of calming him it HYPED him up. The Dr. told us he

should have been snoring with the amount we gave him. (paradoxal

effect?)

Paxil- tried for only about 3 weeks. Might look at again.

Clonidine- 0.1mg tablets. Dose 1/4 tablet every 4 hours. WE JUST

STARTED THIS YESTERDAY!

Nic weighs 45 pounds.

If you are using or have used meds. with your children please respond

with the types, dosages, and degree that they helped please. also I

am curious if you use more than 1 med at a time.

Thank you very much.

October 19, 2002

Give the clonidine a chance and see if you notice any improvement. You

might want to look through the digest. There were several posts about

clonidine in the last couple weeks. Kim Lauger

----------

>

>To: CHARGE

>Subject: Medications and behaviors.

>Date: Sat, Oct 19, 2002, 8:25 AM

>

> Hi everyone....

> I wanted to ask for advice and information regarding medication and

> behaviors. My child Nicolas is 5 and has had pretty severe negative

> behaviors for the previous 3 years. He bites,pinches,pulls hair and

> is starting to hit. We have tried NUMEROUS behavioral approaches and

> some medications. Basically he is getting bigger and stronger and

> there is a concern for safety. I work at the University of Oregon and

> we have some wonderful resources and world renowned professors who

> have tried to help us all without much success. We know the triggers

> but Nic also is compulsive and a lot of the times there is no trigger

> that is visable. Our develpomental Ped. tells us that he seems very

> disorganized and obsessive compulsive. We also have discovered that

> Nic has a fast metabolism and burns through the medication about

> twice as fast as others. Nic also has been labeled Autistic. This

> actually has opened the door to many school options that are not

> available to children wihtout the label. Here is is alst of what we

> have tried and the doses. I am curious to hear what others have used

> and at what dosage's seem helpful.

>

> Risperdial- 1.mg liquid. We have tried up to 2. mg per day. some

> calming but not much help with the behaviors. He has been taking

> aprox. 1 year. (The product insert talks of much higher doses has

> anyone used like 5. or 6. mg per day?)

>

> Ativan- 0.5mg tablets. We have discountinued this med. We tried

> giving up to 2.mg at a time to try to calm him down for medical

> appts. but instead of calming him it HYPED him up. The Dr. told us he

> should have been snoring with the amount we gave him. (paradoxal

> effect?)

>

> Paxil- tried for only about 3 weeks. Might look at again.

>

> Clonidine- 0.1mg tablets. Dose 1/4 tablet every 4 hours. WE JUST

> STARTED THIS YESTERDAY!

>

> Nic weighs 45 pounds.

>

> If you are using or have used meds. with your children please respond

> with the types, dosages, and degree that they helped please. also I

> am curious if you use more than 1 med at a time.

>

> Thank you very much.

>

> Membership of this email support groups does not constitute membership in

> the CHARGE Syndrome Foundation.

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter)

> please contact marion@... or visit

> the CHARGE Syndrome Foundation web page

> at http://www.chargesyndrome.org

> 6th International CHARGE Syndrome Conference, Cleveland, Ohio,

> July 25-27, 2003. Information will be available at our website

> www.chargesyndrome.org or by calling 1-.

>

October 19, 2002