FW: Intercranial pressure: returned

September 24, 2000

Hi Mark,

I am sorry to hear of your problems. Unfortunately, NF2 is the kind of disorder

that often involves periodic attention. I don't think the disorder has " caught

up " with you - I am always scared when something new happens too. I'm sure all

will work out well and you will be back to your old self in no time. Best wishes

for a speedy recovery.

Looking forward to seeing you back on the Crew,

----------

From: Mark Sarmac

Sent: Saturday, September 23, 2000 9:28 PM

Subject: Intercranial pressure: returned

Hello Crew,

Well, I just want to tell you all that I just got back from UCLA Medical

Center today because apparently the papilledema (swollen bloodvesselvs in my

eyes due to high intercranial pressure) has returned. What was interesting

about this situation is a my optometrist had told me the papilledema

returned because I had complained of 'blindspots'. At first my optometrist

thought they were a thing called, " floaters " , which were nothing serious.

But after a few more up close looks, it turned out to be more than

" floaters. "

Well, to make a long story short. I called my neurosurgeon at UCLA and he

informed me to go to the ER at UCLA that night so I did. It took me a while

to get a doctor to have a look at me, but when he finally did. The doc said

I had a little hydrocephalic (water in the brain) due to the intercranial

pressure. So with that said, I had a 2 day hospital stay where they gave me

Decadrone again and had told me that my tumors needed debulking.

I had asked, " when? " and they said, " a week from now because one of the most

experienced neurosurgeons of that team isn't a available. "

I've been dischaged from UCLA this afternoon with a prescription of

Decadrone and I'm due back within a week for the debulking. With that said,

I am scared. It seems as if NF2 has finally caught up with me. I guess my

purpose of this email is to inform you all of what's going on with me and if

you don't get email from me for a while, you know why.

Thanks,

Mark

_________________________________________________________________________

Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com.

Share information about yourself, create your own public profile at

Recommended Posts