Guest guest Posted December 16, 2001 Report Share Posted December 16, 2001 I believe,but am not sure,that there is evidence suggesting that actually you are born with the fibroids as seedlings that develop later on.Anyone else read this? Bonnie sun4evr@... wrote: > At 12/15/01 10:24 PM, SiCanto@... wrote: > >Foreign body? But it is made up of your tissue. . . > > Well, my feeling is that if we were not born with it, it shouldn't be there. > > ^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^ > FOR SALE: New Bernina sewing machine and Bernina 2-3-4 serger > Email hobbylass@... for details. > ^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2001 Report Share Posted December 16, 2001 I believe,but am not sure,that there is evidence suggesting that actually you are born with the fibroids as seedlings that develop later on.Anyone else read this? Bonnie sun4evr@... wrote: > At 12/15/01 10:24 PM, SiCanto@... wrote: > >Foreign body? But it is made up of your tissue. . . > > Well, my feeling is that if we were not born with it, it shouldn't be there. > > ^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^ > FOR SALE: New Bernina sewing machine and Bernina 2-3-4 serger > Email hobbylass@... for details. > ^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2001 Report Share Posted December 16, 2001 I believe,but am not sure,that there is evidence suggesting that actually you are born with the fibroids as seedlings that develop later on.Anyone else read this? Bonnie sun4evr@... wrote: > At 12/15/01 10:24 PM, SiCanto@... wrote: > >Foreign body? But it is made up of your tissue. . . > > Well, my feeling is that if we were not born with it, it shouldn't be there. > > ^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^ > FOR SALE: New Bernina sewing machine and Bernina 2-3-4 serger > Email hobbylass@... for details. > ^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2001 Report Share Posted December 16, 2001 bonnie-] i have read that as well. I also think it's interesting to note that I read that if it were possible to remove the uterus from every woman and dissect it, fibroids (even if miniscule) would be found in most all uteri. Kind of makes you wonder what that's all about, doesn't it? That being said, I think it means most women have fibroids even if undetectable. Amy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2001 Report Share Posted December 16, 2001 bonnie-] i have read that as well. I also think it's interesting to note that I read that if it were possible to remove the uterus from every woman and dissect it, fibroids (even if miniscule) would be found in most all uteri. Kind of makes you wonder what that's all about, doesn't it? That being said, I think it means most women have fibroids even if undetectable. Amy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2001 Report Share Posted December 16, 2001 In a message dated 12/16/2001 3:45:51 PM Pacific Standard Time, malgretout@... writes: > What shrinks a fibroid before menopause? I mean non-interventional,not UAE. > Bonnie > One thing that I know of, from first-hand experience, is mifepristone. But it's not available outside of clinical studies yet. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2001 Report Share Posted December 16, 2001 What shrinks a fibroid before menopause? I mean non-interventional,not UAE. Bonnie TheWelbyCo@... wrote: > I understood you were talking about degrees of shrinkage. > My opinion was that it would be much harder (though not impossible) > to successfully shrink a fibroid before menopause. > Just as the combination of factors had to be just right to grow the fibroid, > they have to be just right to shrink it. I realize that is an obvious > statement. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2001 Report Share Posted December 16, 2001 What shrinks a fibroid before menopause? I mean non-interventional,not UAE. Bonnie TheWelbyCo@... wrote: > I understood you were talking about degrees of shrinkage. > My opinion was that it would be much harder (though not impossible) > to successfully shrink a fibroid before menopause. > Just as the combination of factors had to be just right to grow the fibroid, > they have to be just right to shrink it. I realize that is an obvious > statement. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2001 Report Share Posted December 17, 2001 Bonnie: Northrup's approach is to use a combination of diet, vitamins/minerals, exercise, castor oil packs and heat, sitz baths, body work(acupuncture, shiatsu, etc.), directed journaling(being open to the " message " your fibroid has for you and being willing to make the necessary changes in your life). She claims that some women have had success with this, although she ended up getting a myomectomy. I don't think she had to for health reasons, though. I think she was just tired of looking like she was pregnant. Cheryl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2001 Report Share Posted December 17, 2001 Bonnie: Northrup's approach is to use a combination of diet, vitamins/minerals, exercise, castor oil packs and heat, sitz baths, body work(acupuncture, shiatsu, etc.), directed journaling(being open to the " message " your fibroid has for you and being willing to make the necessary changes in your life). She claims that some women have had success with this, although she ended up getting a myomectomy. I don't think she had to for health reasons, though. I think she was just tired of looking like she was pregnant. Cheryl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2001 Report Share Posted December 17, 2001 Bonnie: Northrup's approach is to use a combination of diet, vitamins/minerals, exercise, castor oil packs and heat, sitz baths, body work(acupuncture, shiatsu, etc.), directed journaling(being open to the " message " your fibroid has for you and being willing to make the necessary changes in your life). She claims that some women have had success with this, although she ended up getting a myomectomy. I don't think she had to for health reasons, though. I think she was just tired of looking like she was pregnant. Cheryl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2001 Report Share Posted December 17, 2001 , I am so glad that you are with us---please stay and keep us up to date on your short and long term results with the mifepristone. We need every available treatment option...to be aware of it, to research, investigate, anecdotal reports, networking with other groups, etc. to develop effective protocols like: 1. Who is the best candidate for mifipristone? 2. What type, size, & location of fibroid responds to mifipristone the best; 3. What what dosage should be utilized, (ie too much estrogen in bc pills caused uterine cancer in the 60's-70's.); In very minute doses, could mifepristone prevent fibroid development in women designated as high risk for developing them? 4. Is mifepristone contraindicated for certain other conditions occurring simultaneously with fibroids, ie endo, adeno; 5. Is mifepristone a good follow-up therapy with regrowth post-myo, post-UAE, post-hysteroscopic, etc.? Women like yourself, , pioneering a new treatment option, open the doors for tomorrow's women newly diagnosed or uncomfortably aware of new symptoms--possibly fibroids and ready to seek medical care. We need every weapon in the arsenal available to fight fibroids....until we get a cure to prevent, prevent prevent uterine fibroids from growing in the first place...perhaps our daughter's generation... if we work really hard advocating...if not they and our female grandchildren may be doomed to walk our path..... Happy Holidays to All-take care of yourselves the best gift you can give to yourself...so that you can give the rest of the year... don't get frazzled...delegate, mitigate the expectations of others-- Marsha In a message dated 12/17/01 8:21:58 AM Eastern Standard Time, malgretout@... writes: > Yes,well that's inverventional and it is not availbale and what are the long > term effects etc,etc. > Bonnie > > maryl38230@... wrote: > > > In a message dated 12/16/2001 3:45:51 PM Pacific Standard Time, > > malgretout@... writes: > > > > > What shrinks a fibroid before menopause? I mean non-interventional,not > UAE. > > > Bonnie > > > > > > > One thing that I know of, from first-hand experience, is mifepristone. But > > it's not available outside of clinical studies yet. > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2001 Report Share Posted December 17, 2001 , I am so glad that you are with us---please stay and keep us up to date on your short and long term results with the mifepristone. We need every available treatment option...to be aware of it, to research, investigate, anecdotal reports, networking with other groups, etc. to develop effective protocols like: 1. Who is the best candidate for mifipristone? 2. What type, size, & location of fibroid responds to mifipristone the best; 3. What what dosage should be utilized, (ie too much estrogen in bc pills caused uterine cancer in the 60's-70's.); In very minute doses, could mifepristone prevent fibroid development in women designated as high risk for developing them? 4. Is mifepristone contraindicated for certain other conditions occurring simultaneously with fibroids, ie endo, adeno; 5. Is mifepristone a good follow-up therapy with regrowth post-myo, post-UAE, post-hysteroscopic, etc.? Women like yourself, , pioneering a new treatment option, open the doors for tomorrow's women newly diagnosed or uncomfortably aware of new symptoms--possibly fibroids and ready to seek medical care. We need every weapon in the arsenal available to fight fibroids....until we get a cure to prevent, prevent prevent uterine fibroids from growing in the first place...perhaps our daughter's generation... if we work really hard advocating...if not they and our female grandchildren may be doomed to walk our path..... Happy Holidays to All-take care of yourselves the best gift you can give to yourself...so that you can give the rest of the year... don't get frazzled...delegate, mitigate the expectations of others-- Marsha In a message dated 12/17/01 8:21:58 AM Eastern Standard Time, malgretout@... writes: > Yes,well that's inverventional and it is not availbale and what are the long > term effects etc,etc. > Bonnie > > maryl38230@... wrote: > > > In a message dated 12/16/2001 3:45:51 PM Pacific Standard Time, > > malgretout@... writes: > > > > > What shrinks a fibroid before menopause? I mean non-interventional,not > UAE. > > > Bonnie > > > > > > > One thing that I know of, from first-hand experience, is mifepristone. But > > it's not available outside of clinical studies yet. > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2001 Report Share Posted December 17, 2001 , I am so glad that you are with us---please stay and keep us up to date on your short and long term results with the mifepristone. We need every available treatment option...to be aware of it, to research, investigate, anecdotal reports, networking with other groups, etc. to develop effective protocols like: 1. Who is the best candidate for mifipristone? 2. What type, size, & location of fibroid responds to mifipristone the best; 3. What what dosage should be utilized, (ie too much estrogen in bc pills caused uterine cancer in the 60's-70's.); In very minute doses, could mifepristone prevent fibroid development in women designated as high risk for developing them? 4. Is mifepristone contraindicated for certain other conditions occurring simultaneously with fibroids, ie endo, adeno; 5. Is mifepristone a good follow-up therapy with regrowth post-myo, post-UAE, post-hysteroscopic, etc.? Women like yourself, , pioneering a new treatment option, open the doors for tomorrow's women newly diagnosed or uncomfortably aware of new symptoms--possibly fibroids and ready to seek medical care. We need every weapon in the arsenal available to fight fibroids....until we get a cure to prevent, prevent prevent uterine fibroids from growing in the first place...perhaps our daughter's generation... if we work really hard advocating...if not they and our female grandchildren may be doomed to walk our path..... Happy Holidays to All-take care of yourselves the best gift you can give to yourself...so that you can give the rest of the year... don't get frazzled...delegate, mitigate the expectations of others-- Marsha In a message dated 12/17/01 8:21:58 AM Eastern Standard Time, malgretout@... writes: > Yes,well that's inverventional and it is not availbale and what are the long > term effects etc,etc. > Bonnie > > maryl38230@... wrote: > > > In a message dated 12/16/2001 3:45:51 PM Pacific Standard Time, > > malgretout@... writes: > > > > > What shrinks a fibroid before menopause? I mean non-interventional,not > UAE. > > > Bonnie > > > > > > > One thing that I know of, from first-hand experience, is mifepristone. But > > it's not available outside of clinical studies yet. > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2001 Report Share Posted December 17, 2001 In a message dated 12/17/2001 8:21:40 AM Eastern Standard Time, malgretout@... writes: > Yes,well that's inverventional and it is not availbale and what are the long > term effects etc,etc. > Bonnie > What would be noninterventional then? I assumed you meant something invasive, such as surgery or UAE. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2001 Report Share Posted December 17, 2001 In a message dated 12/17/2001 8:21:40 AM Eastern Standard Time, malgretout@... writes: > Yes,well that's inverventional and it is not availbale and what are the long > term effects etc,etc. > Bonnie > What would be noninterventional then? I assumed you meant something invasive, such as surgery or UAE. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2001 Report Share Posted December 17, 2001 In a message dated 12/17/2001 8:21:40 AM Eastern Standard Time, malgretout@... writes: > Yes,well that's inverventional and it is not availbale and what are the long > term effects etc,etc. > Bonnie > What would be noninterventional then? I assumed you meant something invasive, such as surgery or UAE. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2001 Report Share Posted December 17, 2001 In a message dated 12/17/2001 10:20:44 AM Eastern Standard Time, silvrfaux@... writes: > , > I am so glad that you are with us---please > stay and keep us up to date on > your short and long term results with the > mifepristone. > I'll tell you what I can. I was on 10 mg a day for a year (concluding mid-November, 2001) and my uterine volume shrank about 50% in that time. My understanding is that the researchers have determined that 5 mg a day is an effective dose, so they will be working with that level in future studies. At the start of the study, I had hydronephrosis in both kidneys, but that cleared up as I regained room for water to pass normally. I had started out slightly anemic, but after a year of not having a period, and taking iron supplements for a few months, that's not an issue any more. I did gain weight, but I had been putting on weight before I started the study, so I'm not sure if the drug was a factor. I did have to have my thyroid medication dosage increased, so I passed that information to the researchers and they tell me they plan to factor in thyroid issues in future studies. One of the possible side-effects is hyperplasia, but that should be treatable by stopping the drug until you get a period again. Now that I'm finished with the study, I'll be watching my body for signs of regrowth. I've had my first period since stopping the drug, and it was much more normal than those I'd had before the study; no more saturating a pad after a couple hours, and no more waking to messy sheets in bed. We'll see what next month is like. ::crossed fingers:: The most thrilling thing was being able to press on my abdomen over the course of months and feel the most prominent fibroid (I have 3 very large ones) moving down away from my navel. I started out about the size of a 30 week pregnancy, and I'm down to around 15 weeks size. Still not slim, but liveable. And I've bought myself time. For the sake of the kidneys alone, I was on a track toward surgery. I'm 42, and if my mother's history is any indication, I have about 15 years before menopause. Now I feel I can breathe again, and go back to " watching and waiting. " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2001 Report Share Posted December 17, 2001 In a message dated 12/17/2001 10:20:44 AM Eastern Standard Time, silvrfaux@... writes: > , > I am so glad that you are with us---please > stay and keep us up to date on > your short and long term results with the > mifepristone. > I'll tell you what I can. I was on 10 mg a day for a year (concluding mid-November, 2001) and my uterine volume shrank about 50% in that time. My understanding is that the researchers have determined that 5 mg a day is an effective dose, so they will be working with that level in future studies. At the start of the study, I had hydronephrosis in both kidneys, but that cleared up as I regained room for water to pass normally. I had started out slightly anemic, but after a year of not having a period, and taking iron supplements for a few months, that's not an issue any more. I did gain weight, but I had been putting on weight before I started the study, so I'm not sure if the drug was a factor. I did have to have my thyroid medication dosage increased, so I passed that information to the researchers and they tell me they plan to factor in thyroid issues in future studies. One of the possible side-effects is hyperplasia, but that should be treatable by stopping the drug until you get a period again. Now that I'm finished with the study, I'll be watching my body for signs of regrowth. I've had my first period since stopping the drug, and it was much more normal than those I'd had before the study; no more saturating a pad after a couple hours, and no more waking to messy sheets in bed. We'll see what next month is like. ::crossed fingers:: The most thrilling thing was being able to press on my abdomen over the course of months and feel the most prominent fibroid (I have 3 very large ones) moving down away from my navel. I started out about the size of a 30 week pregnancy, and I'm down to around 15 weeks size. Still not slim, but liveable. And I've bought myself time. For the sake of the kidneys alone, I was on a track toward surgery. I'm 42, and if my mother's history is any indication, I have about 15 years before menopause. Now I feel I can breathe again, and go back to " watching and waiting. " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2001 Report Share Posted December 17, 2001 In a message dated 12/17/2001 10:20:44 AM Eastern Standard Time, silvrfaux@... writes: > , > I am so glad that you are with us---please > stay and keep us up to date on > your short and long term results with the > mifepristone. > I'll tell you what I can. I was on 10 mg a day for a year (concluding mid-November, 2001) and my uterine volume shrank about 50% in that time. My understanding is that the researchers have determined that 5 mg a day is an effective dose, so they will be working with that level in future studies. At the start of the study, I had hydronephrosis in both kidneys, but that cleared up as I regained room for water to pass normally. I had started out slightly anemic, but after a year of not having a period, and taking iron supplements for a few months, that's not an issue any more. I did gain weight, but I had been putting on weight before I started the study, so I'm not sure if the drug was a factor. I did have to have my thyroid medication dosage increased, so I passed that information to the researchers and they tell me they plan to factor in thyroid issues in future studies. One of the possible side-effects is hyperplasia, but that should be treatable by stopping the drug until you get a period again. Now that I'm finished with the study, I'll be watching my body for signs of regrowth. I've had my first period since stopping the drug, and it was much more normal than those I'd had before the study; no more saturating a pad after a couple hours, and no more waking to messy sheets in bed. We'll see what next month is like. ::crossed fingers:: The most thrilling thing was being able to press on my abdomen over the course of months and feel the most prominent fibroid (I have 3 very large ones) moving down away from my navel. I started out about the size of a 30 week pregnancy, and I'm down to around 15 weeks size. Still not slim, but liveable. And I've bought myself time. For the sake of the kidneys alone, I was on a track toward surgery. I'm 42, and if my mother's history is any indication, I have about 15 years before menopause. Now I feel I can breathe again, and go back to " watching and waiting. " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2001 Report Share Posted December 17, 2001 , Thank-you for that update... wow wow wow. If I experience any additional fibroids growing.. (almost 2 yrs post UAE) in the future before I reach menopause...big 50 this summer.. I'd like to think mifepristone might be an alternative. Yeah, , you wrote- " Now I feel I can breathe again, and go back to watching & waiting " ....since there is no diagnostic mechanism to assess a uterus and evaluate the organ for additonal fibroid growth...I guess we're stuck, " watching and waiting.... " .....maybe a diagnostic tool by 2005....2010...anyone placing bets on which pharmaceutical can research a medicine addressing smooth muscle tumors... imagine men with smooth muscle tumors on their ...(shaking head here..) penis. A national calamity....a groundswell of concern....an uprising amongst the male population...tumoragra.... a slight variation of viagra....would be here tomorrow!! Sorry for the rant, ....but I'm sure glad you got some relief. Marsha In a message dated 12/17/01 12:37:20 PM Eastern Standard Time, maryl38230@... writes: > . Now I feel I can breathe > again, and go back to " watching and waiting. " > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2001 Report Share Posted December 17, 2001 , Thank-you for that update... wow wow wow. If I experience any additional fibroids growing.. (almost 2 yrs post UAE) in the future before I reach menopause...big 50 this summer.. I'd like to think mifepristone might be an alternative. Yeah, , you wrote- " Now I feel I can breathe again, and go back to watching & waiting " ....since there is no diagnostic mechanism to assess a uterus and evaluate the organ for additonal fibroid growth...I guess we're stuck, " watching and waiting.... " .....maybe a diagnostic tool by 2005....2010...anyone placing bets on which pharmaceutical can research a medicine addressing smooth muscle tumors... imagine men with smooth muscle tumors on their ...(shaking head here..) penis. A national calamity....a groundswell of concern....an uprising amongst the male population...tumoragra.... a slight variation of viagra....would be here tomorrow!! Sorry for the rant, ....but I'm sure glad you got some relief. Marsha In a message dated 12/17/01 12:37:20 PM Eastern Standard Time, maryl38230@... writes: > . Now I feel I can breathe > again, and go back to " watching and waiting. " > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2001 Report Share Posted December 17, 2001 , Thank-you for that update... wow wow wow. If I experience any additional fibroids growing.. (almost 2 yrs post UAE) in the future before I reach menopause...big 50 this summer.. I'd like to think mifepristone might be an alternative. Yeah, , you wrote- " Now I feel I can breathe again, and go back to watching & waiting " ....since there is no diagnostic mechanism to assess a uterus and evaluate the organ for additonal fibroid growth...I guess we're stuck, " watching and waiting.... " .....maybe a diagnostic tool by 2005....2010...anyone placing bets on which pharmaceutical can research a medicine addressing smooth muscle tumors... imagine men with smooth muscle tumors on their ...(shaking head here..) penis. A national calamity....a groundswell of concern....an uprising amongst the male population...tumoragra.... a slight variation of viagra....would be here tomorrow!! Sorry for the rant, ....but I'm sure glad you got some relief. Marsha In a message dated 12/17/01 12:37:20 PM Eastern Standard Time, maryl38230@... writes: > . Now I feel I can breathe > again, and go back to " watching and waiting. " > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2001 Report Share Posted December 17, 2001 Yes,well that's inverventional and it is not availbale and what are the long term effects etc,etc. Bonnie maryl38230@... wrote: > In a message dated 12/16/2001 3:45:51 PM Pacific Standard Time, > malgretout@... writes: > > > What shrinks a fibroid before menopause? I mean non-interventional,not UAE. > > Bonnie > > > > One thing that I know of, from first-hand experience, is mifepristone. But > it's not available outside of clinical studies yet. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2001 Report Share Posted December 17, 2001 In a message dated 12/17/01 9:36:48 AM Pacific Standard Time, maryl38230@... writes: > Now that I'm finished with the study : Thanks so much for sharing your story. At the end of the study, did the researchers tell you what would happen next with respect to making this drug available to the public? Did they know how close to the " end " of their research they were? Happy, healthy holidays to all. Cheryl Quote Link to comment Share on other sites More sharing options...
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