Guest guest Posted May 6, 2009 Report Share Posted May 6, 2009 Nick, I am glad you pointed out that section on the Canadian insert. It doesn't say that on the U.S. one. I've printed that out too and am going to bring it to the doctor as well. While not " U.S. " it helps show that cytomel used by itself is becoming more " mainstream " . Val, that makes perfect sense on the fluctuating t3 needs. I had a boss many years ago who had had thyroid cancer as a child and had half her thyroid removed. She was on armour (had found a progressive doctor) and would self dose as needed - some days an extra grain or two. It worked well for her and she just knew her body and could feel when she needed a little more. So even with the t4 backup (who knows maybe she had low conversion) she would adjust things here and there. The doctors are so slow in recognising thyroid management can be like adrenal insufficiency management, diabetes management, etc. where patients are involved and self monitor, adjust dosages, etc. If I am already cortisol dependant what is their big freak out of being t3 dependant?! Yes, it's not ideal and I would rather have t4 reserves, but if that's not working for me, is it any more dangerous than being cortisol dependant??!! No!! I think the biggest issue facing the medical profession these days is that doctors are being trained not to think for themselves. I guess that is too " oldschool " . My doctor who I am trying to educate is hypothyroid - so that is good in that she understands how miserable it can be, but she herself is on t4 only and says it works fine for her. Now, if only that insert could say " at proper levels, free t3 will be high out of range and TSH will be fully suppressed " ! Lol. Just want to say thanks for all of you here! This board is a lifeline for me. Turnaround " answers " from these ill informed professionals/gatekeepers (that we have to pay!) can take days and weeks and instead here you all are immediately on the spot to brainstorm and collaborate and guide. And, Val, you are seriously an angel giving your time and wisdom to help us all get better. :-x THANK YOU! > > > > > > >]canada] http://www.kingpharm.ca/downloads/Cytomel_PI-Fre-Eng.pdf > > > > And again > > " Optimum dosage is usually determined by the patient's clinical > response. Confirmatory tests include: RadioActive Iodine T3 Resin > Uptake, 131I-T3 Red Cell Uptake, BMR, and the Achilles Tendon Reflex > test. Comparatively small doses (as little as 5 µg daily) may be fully > effective in some cases; however, in other instances, a satisfactory > clinical response may not be achieved until recommended dosage levels > have been exceeded. Daily doses up to 150 µg are sometimes well > tolerated and may be optimal in a few resistant patients. " > > > > The last sentence of that one is useful for anyone who's Dr won't let > them increase dose. > > Nick > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2009 Report Share Posted May 6, 2009 I actually spoke to a pharmacist at King Pharma (cytomel people) who said at proper dosing you will have a completely suppressed TSH. I asked if there was something in writing and she said no. I told my doctor and he said, well of course they're going to say that to sell their product. Well, what the heck does he thing the pharma reps are doing when they pop in his office with the BS in hand. Nick, I am glad you pointed out that section on the Canadian insert. It doesn't say that on the U.S. one. I've printed that out too and am going to bring it to the doctor as well. While not " U.S. " it helps show that cytomel used by itself is becoming more " mainstream " . Val, that makes perfect sense on the fluctuating t3 needs. I had a boss many years ago who had had thyroid cancer as a child and had half her thyroid removed. She was on armour (had found a progressive doctor) and would self dose as needed - some days an extra grain or two. It worked well for her and she just knew her body and could feel when she needed a little more. So even with the t4 backup (who knows maybe she had low conversion) she would adjust things here and there. The doctors are so slow in recognising thyroid management can be like adrenal insufficiency management, diabetes management, etc. where patients are involved and self monitor, adjust dosages, etc. If I am already cortisol dependant what is their big freak out of being t3 dependant?! Yes, it's not ideal and I would rather have t4 reserves, but if that's not working for me, is it any more dangerous than being cortisol dependant??!! No!! I think the biggest issue facing the medical profession these days is that doctors are being trained not to think for themselves. I guess that is too " oldschool " . My doctor who I am trying to educate is hypothyroid - so that is good in that she understands how miserable it can be, but she herself is on t4 only and says it works fine for her. Now, if only that insert could say " at proper levels, free t3 will be high out of range and TSH will be fully suppressed " ! Lol. Just want to say thanks for all of you here! This board is a lifeline for me. Turnaround " answers " from these ill informed professionals/gatekeepers (that we have to pay!) can take days and weeks and instead here you all are immediately on the spot to brainstorm and collaborate and guide. And, Val, you are seriously an angel giving your time and wisdom to help us all get better. :-x THANK YOU! > > > > > > >]canada] http://www.kingpharm.ca/downloads/Cytomel_PI-Fre-Eng.pdf > > > > And again > > " Optimum dosage is usually determined by the patient's clinical > response. Confirmatory tests include: RadioActive Iodine T3 Resin > Uptake, 131I-T3 Red Cell Uptake, BMR, and the Achilles Tendon Reflex > test. Comparatively small doses (as little as 5 µg daily) may be fully > effective in some cases; however, in other instances, a satisfactory > clinical response may not be achieved until recommended dosage levels > have been exceeded. Daily doses up to 150 µg are sometimes well > tolerated and may be optimal in a few resistant patients. " > > > > The last sentence of that one is useful for anyone who's Dr won't let > them increase dose. > > Nick > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2009 Report Share Posted May 6, 2009 I know, right there on the package inserts! I had two docs almost kill me with thyroid trials because they wouldn't recognize adrenal insufficiency. And that is not because I wasnt trying to get some help with it at the time. First one yelled at me for even suggesting it as a possible problem - she told me I was too young to remember Pres. Kennedy (yes, just because he died before I was born would mean I would know nothing about him - I think doctors think we are all just a bunch of idiots) but HE had adrenal insufficiency, not me. Then she told me I'd need to find someone else if I wanted to go down that nonsense road. Then second one (Langer - wrote Solved the Riddle of Illness and is supposed to be some thyroid expert - told me I couldn't possibly have adrenal issues because my blood pressure was normal!!). I had two major crashes after those trials with no adrenal support and then did more research and had my cortisol tested and sure enough, low cortisol. Now I am struggling with the rt3, t3 acceptence with current doc, but at least I have been able to get Cortef and Florinef from her. Bottom line for most of us on these boards is having to do a lot of this on our own. :-( Wish that wasn't the case. Its been a real education realizing how messed up the system is. > > > > >]canada] http://www.kingpharm.ca/downloads/Cytomel_PI-Fre-Eng.pdf > > > > And again from that > > " Severe and prolonged hypothyroidism can lead to a decreased level of > adrenocortical activity commensurate with the lowered metabolic state. > When thyroid replacement therapy is administered, the metabolism > increases at a greater rate than adrenocortical activity. This can > precipitate adrenocortical insufficience. Therefore, in severe and > prolonged hypothyroidism, supplemental adrenocortical steroids may be > necessary. " > > Why are the Drs so reluctant to believe that when it's on the drug > packet inserts!! > > Nick > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2009 Report Share Posted May 6, 2009 It's like all those idoitic quotes they have listed on the STTM site that are made by doctors regarding thyroid treatment! No logic! > > I actually spoke to a pharmacist at King Pharma (cytomel people) who said at > proper dosing you will have a completely suppressed TSH. I asked if there > was something in writing and she said no. I told my doctor and he said, > well of course they're going to say that to sell their product. Well, what > the heck does he thing the pharma reps are doing when they pop in his office > with the BS in hand. > > > > > > > > > Nick, > > > > I am glad you pointed out that section on the Canadian insert. It doesn't > > say that on the U.S. one. I've printed that out too and am going to bring it > > to the doctor as well. While not " U.S. " it helps show that cytomel used by > > itself is becoming more " mainstream " . > > > > Val, that makes perfect sense on the fluctuating t3 needs. I had a boss > > many years ago who had had thyroid cancer as a child and had half her > > thyroid removed. She was on armour (had found a progressive doctor) and > > would self dose as needed - some days an extra grain or two. It worked well > > for her and she just knew her body and could feel when she needed a little > > more. So even with the t4 backup (who knows maybe she had low conversion) > > she would adjust things here and there. > > > > The doctors are so slow in recognising thyroid management can be like > > adrenal insufficiency management, diabetes management, etc. where patients > > are involved and self monitor, adjust dosages, etc. If I am already cortisol > > dependant what is their big freak out of being t3 dependant?! Yes, it's not > > ideal and I would rather have t4 reserves, but if that's not working for me, > > is it any more dangerous than being cortisol dependant??!! No!! I think the > > biggest issue facing the medical profession these days is that doctors are > > being trained not to think for themselves. I guess that is too " oldschool " . > > > > My doctor who I am trying to educate is hypothyroid - so that is good in > > that she understands how miserable it can be, but she herself is on t4 only > > and says it works fine for her. > > > > Now, if only that insert could say " at proper levels, free t3 will be high > > out of range and TSH will be fully suppressed " ! Lol. > > > > Just want to say thanks for all of you here! This board is a lifeline for > > me. Turnaround " answers " from these ill informed professionals/gatekeepers > > (that we have to pay!) can take days and weeks and instead here you all are > > immediately on the spot to brainstorm and collaborate and guide. And, Val, > > you are seriously an angel giving your time and wisdom to help us all get > > better. :-x THANK YOU! > > > > > > > > > > > > > > > > > > > > > > >]canada] http://www.kingpharm.ca/downloads/Cytomel_PI-Fre-Eng.pdf > > > > > > > > > > And again > > > > > > " Optimum dosage is usually determined by the patient's clinical > > > response. Confirmatory tests include: RadioActive Iodine T3 Resin > > > Uptake, 131I-T3 Red Cell Uptake, BMR, and the Achilles Tendon Reflex > > > test. Comparatively small doses (as little as 5 µg daily) may be fully > > > effective in some cases; however, in other instances, a satisfactory > > > clinical response may not be achieved until recommended dosage levels > > > have been exceeded. Daily doses up to 150 µg are sometimes well > > > tolerated and may be optimal in a few resistant patients. " > > > > > > > > > > > > The last sentence of that one is useful for anyone who's Dr won't let > > > them increase dose. > > > > > > Nick > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2009 Report Share Posted May 6, 2009 I showed the insert to an old doctor (fired him) he said they were referring to s. I said, it doesn't say s it says adrenal insufficiency. He says, it's the same thing. I know, right there on the package inserts! I had two docs almost kill me with thyroid trials because they wouldn't recognize adrenal insufficiency. And that is not because I wasnt trying to get some help with it at the time. First one yelled at me for even suggesting it as a possible problem - she told me I was too young to remember Pres. Kennedy (yes, just because he died before I was born would mean I would know nothing about him - I think doctors think we are all just a bunch of idiots) but HE had adrenal insufficiency, not me. Then she told me I'd need to find someone else if I wanted to go down that nonsense road. Then second one (Langer - wrote Solved the Riddle of Illness and is supposed to be some thyroid expert - told me I couldn't possibly have adrenal issues because my blood pressure was normal!!). I had two major crashes after those trials with no adrenal support and then did more research and had my cortisol tested and sure enough, low cortisol. Now I am struggling with the rt3, t3 acceptence with current doc, but at least I have been able to get Cortef and Florinef from her. Bottom line for most of us on these boards is having to do a lot of this on our own. :-( Wish that wasn't the case. Its been a real education realizing how messed up the system is. > > > > >]canada] http://www.kingpharm.ca/downloads/Cytomel_PI-Fre-Eng.pdf > > > > And again from that > > " Severe and prolonged hypothyroidism can lead to a decreased level of > adrenocortical activity commensurate with the lowered metabolic state. > When thyroid replacement therapy is administered, the metabolism > increases at a greater rate than adrenocortical activity. This can > precipitate adrenocortical insufficience. Therefore, in severe and > prolonged hypothyroidism, supplemental adrenocortical steroids may be > necessary. " > > Why are the Drs so reluctant to believe that when it's on the drug > packet inserts!! > > Nick > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2009 Report Share Posted May 6, 2009 Yes, full blown s or nothing at all. Again, makes no sense that every other gland/organ can be partially deficient except the adrenals - they are on or off. Then of course if there was a recognition of a problem the doc would have to venture down the scary cortisol road which they want to avoid at all costs - it would be much better for a patient to die of not having cortisol than to not take it all. > > I showed the insert to an old doctor (fired him) he said they were referring > to s. I said, it doesn't say s it says adrenal > insufficiency. He says, it's the same thing. > > > > > > > > > > > > > I know, right there on the package inserts! > > > > I had two docs almost kill me with thyroid trials because they wouldn't > > recognize adrenal insufficiency. And that is not because I wasnt trying to > > get some help with it at the time. First one yelled at me for even > > suggesting it as a possible problem - she told me I was too young to > > remember Pres. Kennedy (yes, just because he died before I was born would > > mean I would know nothing about him - I think doctors think we are all just > > a bunch of idiots) but HE had adrenal insufficiency, not me. Then she told > > me I'd need to find someone else if I wanted to go down that nonsense road. > > Then second one (Langer - wrote Solved the Riddle of Illness and is supposed > > to be some thyroid expert - told me I couldn't possibly have adrenal issues > > because my blood pressure was normal!!). I had two major crashes after those > > trials with no adrenal support and then did more research and had my > > cortisol tested and sure enough, low cortisol. Now I am struggling with the > > rt3, t3 acceptence with current doc, but at least I have been able to get > > Cortef and Florinef from her. Bottom line for most of us on these boards is > > having to do a lot of this on our own. :-( Wish that wasn't the case. Its > > been a real education realizing how messed up the system is. > > > > > > > > > > > > > > > > >]canada] http://www.kingpharm.ca/downloads/Cytomel_PI-Fre-Eng.pdf > > > > > > > > > > And again from that > > > > > > " Severe and prolonged hypothyroidism can lead to a decreased level of > > > adrenocortical activity commensurate with the lowered metabolic state. > > > When thyroid replacement therapy is administered, the metabolism > > > increases at a greater rate than adrenocortical activity. This can > > > precipitate adrenocortical insufficience. Therefore, in severe and > > > prolonged hypothyroidism, supplemental adrenocortical steroids may be > > > necessary. " > > > > > > Why are the Drs so reluctant to believe that when it's on the drug > > > packet inserts!! > > > > > > Nick > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2009 Report Share Posted May 6, 2009 Hi Leisa. It is awful how bad it has been for most of us. What was your experience? Was it your own research that was the breakthrough? It's a pretty lonely and scary thing until you find these boards and STTM website and places that validate what you are going through and actually care and want to help you find a solution. I sometimes wonder if some of these doctors would have just let me die. They really didn't seem that interested either way. > > wendy, your email is heart wrentching! I lived the same experience and worse. > > > > > > > > > > > > > I know, right there on the package inserts! > > I had two docs almost kill me with thyroid trials because they wouldn't recognize adrenal insufficiency. And that is not because I wasnt trying to get some help with it at the time. First one yelled at me for even suggesting it as a possible problem - she told me I was too young to remember Pres. Kennedy (yes, just because he died before I was born would mean I would know nothing about him - I think doctors think we are all just a bunch of idiots) but HE had adrenal insufficiency, not me. Then she told me I'd need to find someone else if I wanted to go down that nonsense road. Then second one (Langer - wrote Solved the Riddle of Illness and is supposed to be some thyroid expert - told me I couldn't possibly have adrenal issues because my blood pressure was normal!!). I had two major crashes after those trials with no adrenal support and then did more research and had my cortisol tested and sure enough, low cortisol. Now I am struggling with the rt3, t3 > acceptence with current doc, but at least I have been able to get Cortef and Florinef from her. Bottom line for most of us on these boards is having to do a lot of this on our own. :-( Wish that wasn't the case. Its been a real education realizing how messed up the system is. > > > > > > > > > > >]canada] http://www.kingpharm.ca/downloads/Cytomel_PI-Fre-Eng.pdf > > > > > > > And again from that > > > > " Severe and prolonged hypothyroidism can lead to a decreased level of > > adrenocortical activity commensurate with the lowered metabolic state. > > When thyroid replacement therapy is administered, the metabolism > > increases at a greater rate than adrenocortical activity. This can > > precipitate adrenocortical insufficience. Therefore, in severe and > > prolonged hypothyroidism, supplemental adrenocortical steroids may be > > necessary. " > > > > Why are the Drs so reluctant to believe that when it's on the drug > > packet inserts!! > > > > Nick > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2009 Report Share Posted May 7, 2009 My experience.... a dozen drs..many yrs,,stomach problems, epstien barr, fibromayalgia, memory loss, heart pain, severe dizzyness, wieght gain, gallbladder trouble,hair loss, heavy metal,skin problems,hypoglycemia,sleeplessness,eye pain, swelling, endometriosis.... The Drs verdict ? There is nothing wrong with you, Maybe you are depressed, Your getting older, You should have a hysterectomy,You need to eat less..work out more, Your heart is fine, Your numbers all look great, Would you like to talk to a counselor? In answer to your question, Yes, I have done it all on my own! I stumbled onto the idea of RT3...and my Dr at the time looked at me like I was crazy, an stopped returning my calls. Then I subsrcibed to this group(not easy, as I had never been online much), and found the confidence to demand the rt3 test, and dumped my Dr in town, and eclusivley now work with the natuopath in Phoenix. I had to convince even she that I would be responsible and need to swap cold turkey( not little by little as most natuopaths here offered). I am so very happy to have found this group and wish that I was better off financially, as I believe Val deserves compensation for helping so many! Leisa> > > > > > > > > > > I know, right there on the package inserts!> > I had two docs almost kill me with thyroid trials because they wouldn't recognize adrenal insufficiency. And that is not because I wasnt trying to get some help with it at the time. First one yelled at me for even suggesting it as a possible problem - she told me I was too young to remember Pres. Kennedy (yes, just because he died before I was born would mean I would know nothing about him - I think doctors think we are all just a bunch of idiots) but HE had adrenal insufficiency, not me. Then she told me I'd need to find someone else if I wanted to go down that nonsense road. Then second one (Langer - wrote Solved the Riddle of Illness and is supposed to be some thyroid expert - told me I couldn't possibly have adrenal issues because my blood pressure was normal!!). I had two major crashes after those trials with no adrenal support and then did more research and had my cortisol tested and sure enough, low cortisol. Now I am struggling with the rt3, t3> acceptence with current doc, but at least I have been able to get Cortef and Florinef from her. Bottom line for most of us on these boards is having to do a lot of this on our own. :-( Wish that wasn't the case. Its been a real education realizing how messed up the system is. > > > > > > > >> > >]canada] http://www.kingpharm.ca/downloads/Cytomel_PI-Fre-Eng.pdf> > >> > > > And again from that> > > > "Severe and prolonged hypothyroidism can lead to a decreased level of> > adrenocortical activity commensurate with the lowered metabolic state.> > When thyroid replacement therapy is administered, the metabolism> > increases at a greater rate than adrenocortical activity. This can> > precipitate adrenocortical insufficience. Therefore, in severe and> > prolonged hypothyroidism, supplemental adrenocortical steroids may be> > necessary."> > > > Why are the Drs so reluctant to believe that when it's on the drug> > packet inserts!!> > > > Nick> >>------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2009 Report Share Posted May 7, 2009 My experience.... a dozen drs..many yrs,,stomach problems, epstien barr, fibromayalgia, memory loss, heart pain, severe dizzyness, wieght gain, gallbladder trouble,hair loss, heavy metal,skin problems,hypoglycemia,sleeplessness,eye pain, swelling, endometriosis.... The Drs verdict ? There is nothing wrong with you, Maybe you are depressed, Your getting older, You should have a hysterectomy,You need to eat less..work out more, Your heart is fine, Your numbers all look great, Would you like to talk to a counselor? In answer to your question, Yes, I have done it all on my own! I stumbled onto the idea of RT3...and my Dr at the time looked at me like I was crazy, an stopped returning my calls. Then I subsrcibed to this group(not easy, as I had never been online much), and found the confidence to demand the rt3 test, and dumped my Dr in town, and eclusivley now work with the natuopath in Phoenix. I had to convince even she that I would be responsible and need to swap cold turkey( not little by little as most natuopaths here offered). I am so very happy to have found this group and wish that I was better off financially, as I believe Val deserves compensation for helping so many! Leisa> > > > > > > > > > > I know, right there on the package inserts!> > I had two docs almost kill me with thyroid trials because they wouldn't recognize adrenal insufficiency. And that is not because I wasnt trying to get some help with it at the time. First one yelled at me for even suggesting it as a possible problem - she told me I was too young to remember Pres. Kennedy (yes, just because he died before I was born would mean I would know nothing about him - I think doctors think we are all just a bunch of idiots) but HE had adrenal insufficiency, not me. Then she told me I'd need to find someone else if I wanted to go down that nonsense road. Then second one (Langer - wrote Solved the Riddle of Illness and is supposed to be some thyroid expert - told me I couldn't possibly have adrenal issues because my blood pressure was normal!!). I had two major crashes after those trials with no adrenal support and then did more research and had my cortisol tested and sure enough, low cortisol. Now I am struggling with the rt3, t3> acceptence with current doc, but at least I have been able to get Cortef and Florinef from her. Bottom line for most of us on these boards is having to do a lot of this on our own. :-( Wish that wasn't the case. Its been a real education realizing how messed up the system is. > > > > > > > >> > >]canada] http://www.kingpharm.ca/downloads/Cytomel_PI-Fre-Eng.pdf> > >> > > > And again from that> > > > "Severe and prolonged hypothyroidism can lead to a decreased level of> > adrenocortical activity commensurate with the lowered metabolic state.> > When thyroid replacement therapy is administered, the metabolism> > increases at a greater rate than adrenocortical activity. This can> > precipitate adrenocortical insufficience. Therefore, in severe and> > prolonged hypothyroidism, supplemental adrenocortical steroids may be> > necessary."> > > > Why are the Drs so reluctant to believe that when it's on the drug> > packet inserts!!> > > > Nick> >>------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2009 Report Share Posted May 7, 2009 My experience.... a dozen drs..many yrs,,stomach problems, epstien barr, fibromayalgia, memory loss, heart pain, severe dizzyness, wieght gain, gallbladder trouble,hair loss, heavy metal,skin problems,hypoglycemia,sleeplessness,eye pain, swelling, endometriosis.... The Drs verdict ? There is nothing wrong with you, Maybe you are depressed, Your getting older, You should have a hysterectomy,You need to eat less..work out more, Your heart is fine, Your numbers all look great, Would you like to talk to a counselor? In answer to your question, Yes, I have done it all on my own! I stumbled onto the idea of RT3...and my Dr at the time looked at me like I was crazy, an stopped returning my calls. Then I subsrcibed to this group(not easy, as I had never been online much), and found the confidence to demand the rt3 test, and dumped my Dr in town, and eclusivley now work with the natuopath in Phoenix. I had to convince even she that I would be responsible and need to swap cold turkey( not little by little as most natuopaths here offered). I am so very happy to have found this group and wish that I was better off financially, as I believe Val deserves compensation for helping so many! Leisa> > > > > > > > > > > I know, right there on the package inserts!> > I had two docs almost kill me with thyroid trials because they wouldn't recognize adrenal insufficiency. And that is not because I wasnt trying to get some help with it at the time. First one yelled at me for even suggesting it as a possible problem - she told me I was too young to remember Pres. Kennedy (yes, just because he died before I was born would mean I would know nothing about him - I think doctors think we are all just a bunch of idiots) but HE had adrenal insufficiency, not me. Then she told me I'd need to find someone else if I wanted to go down that nonsense road. Then second one (Langer - wrote Solved the Riddle of Illness and is supposed to be some thyroid expert - told me I couldn't possibly have adrenal issues because my blood pressure was normal!!). I had two major crashes after those trials with no adrenal support and then did more research and had my cortisol tested and sure enough, low cortisol. Now I am struggling with the rt3, t3> acceptence with current doc, but at least I have been able to get Cortef and Florinef from her. Bottom line for most of us on these boards is having to do a lot of this on our own. :-( Wish that wasn't the case. Its been a real education realizing how messed up the system is. > > > > > > > >> > >]canada] http://www.kingpharm.ca/downloads/Cytomel_PI-Fre-Eng.pdf> > >> > > > And again from that> > > > "Severe and prolonged hypothyroidism can lead to a decreased level of> > adrenocortical activity commensurate with the lowered metabolic state.> > When thyroid replacement therapy is administered, the metabolism> > increases at a greater rate than adrenocortical activity. This can> > precipitate adrenocortical insufficience. Therefore, in severe and> > prolonged hypothyroidism, supplemental adrenocortical steroids may be> > necessary."> > > > Why are the Drs so reluctant to believe that when it's on the drug> > packet inserts!!> > > > Nick> >>------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2009 Report Share Posted May 7, 2009 Hi Leisa- So, are all the symptoms you list gone? If so, so you credit the T3? What a list – I guess I shouldn’t complain as my list is not so long “just” 20 years of chronic fatigue, heavy metal toxicity (?), about 85 lbs over ideal weight, sleep problems, heart rhythm problems, liver pain, swelling, itching, . ... . Oh well, I guess my list is long too – at least I haven’t had too much problem with pain – mostly just some occasional unexplained low back pain. Now that I switched from SRT3 (which, in retrospect, wasn’t doing very much) to Cytomel (on Monday) I seem to be doing a somewhat better. And yes, Val’s help has been more valuable than ANY doctor I’ve seen (thanks Val!). Dana From: RT3_T3 [mailto:RT3_T3 ] On Behalf Of Leisa Forman My experience.... a dozen drs..many yrs,,stomach problems, epstien barr, fibromayalgia, memory loss, heart pain, severe dizzyness, wieght gain, gallbladder trouble,hair loss, heavy metal,skin problems,hypoglycemia,sleeplessness,eye pain, swelling, endometriosis.... The Drs verdict ? There is nothing wrong with you, Maybe you are depressed, Your getting older, You should have a hysterectomy,You need to eat less..work out more, Your heart is fine, Your numbers all look great, Would you like to talk to a counselor? In answer to your question, Yes, I have done it all on my own! I stumbled onto the idea of RT3...and my Dr at the time looked at me like I was crazy, an stopped returning my calls. Then I subsrcibed to this group(not easy, as I had never been online much), and found the confidence to demand the rt3 test, and dumped my Dr in town, and eclusivley now work with the natuopath in Phoenix. I had to convince even she that I would be responsible and need to swap cold turkey( not little by little as most natuopaths here offered). I am so very happy to have found this group and wish that I was better off financially, as I believe Val deserves compensation for helping so many! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2009 Report Share Posted May 7, 2009 Hi Leisa- So, are all the symptoms you list gone? If so, so you credit the T3? What a list – I guess I shouldn’t complain as my list is not so long “just” 20 years of chronic fatigue, heavy metal toxicity (?), about 85 lbs over ideal weight, sleep problems, heart rhythm problems, liver pain, swelling, itching, . ... . Oh well, I guess my list is long too – at least I haven’t had too much problem with pain – mostly just some occasional unexplained low back pain. Now that I switched from SRT3 (which, in retrospect, wasn’t doing very much) to Cytomel (on Monday) I seem to be doing a somewhat better. And yes, Val’s help has been more valuable than ANY doctor I’ve seen (thanks Val!). Dana From: RT3_T3 [mailto:RT3_T3 ] On Behalf Of Leisa Forman My experience.... a dozen drs..many yrs,,stomach problems, epstien barr, fibromayalgia, memory loss, heart pain, severe dizzyness, wieght gain, gallbladder trouble,hair loss, heavy metal,skin problems,hypoglycemia,sleeplessness,eye pain, swelling, endometriosis.... The Drs verdict ? There is nothing wrong with you, Maybe you are depressed, Your getting older, You should have a hysterectomy,You need to eat less..work out more, Your heart is fine, Your numbers all look great, Would you like to talk to a counselor? In answer to your question, Yes, I have done it all on my own! I stumbled onto the idea of RT3...and my Dr at the time looked at me like I was crazy, an stopped returning my calls. Then I subsrcibed to this group(not easy, as I had never been online much), and found the confidence to demand the rt3 test, and dumped my Dr in town, and eclusivley now work with the natuopath in Phoenix. I had to convince even she that I would be responsible and need to swap cold turkey( not little by little as most natuopaths here offered). I am so very happy to have found this group and wish that I was better off financially, as I believe Val deserves compensation for helping so many! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2009 Report Share Posted May 7, 2009 Hi Leisa- So, are all the symptoms you list gone? If so, so you credit the T3? What a list – I guess I shouldn’t complain as my list is not so long “just” 20 years of chronic fatigue, heavy metal toxicity (?), about 85 lbs over ideal weight, sleep problems, heart rhythm problems, liver pain, swelling, itching, . ... . Oh well, I guess my list is long too – at least I haven’t had too much problem with pain – mostly just some occasional unexplained low back pain. Now that I switched from SRT3 (which, in retrospect, wasn’t doing very much) to Cytomel (on Monday) I seem to be doing a somewhat better. And yes, Val’s help has been more valuable than ANY doctor I’ve seen (thanks Val!). Dana From: RT3_T3 [mailto:RT3_T3 ] On Behalf Of Leisa Forman My experience.... a dozen drs..many yrs,,stomach problems, epstien barr, fibromayalgia, memory loss, heart pain, severe dizzyness, wieght gain, gallbladder trouble,hair loss, heavy metal,skin problems,hypoglycemia,sleeplessness,eye pain, swelling, endometriosis.... The Drs verdict ? There is nothing wrong with you, Maybe you are depressed, Your getting older, You should have a hysterectomy,You need to eat less..work out more, Your heart is fine, Your numbers all look great, Would you like to talk to a counselor? In answer to your question, Yes, I have done it all on my own! I stumbled onto the idea of RT3...and my Dr at the time looked at me like I was crazy, an stopped returning my calls. Then I subsrcibed to this group(not easy, as I had never been online much), and found the confidence to demand the rt3 test, and dumped my Dr in town, and eclusivley now work with the natuopath in Phoenix. I had to convince even she that I would be responsible and need to swap cold turkey( not little by little as most natuopaths here offered). I am so very happy to have found this group and wish that I was better off financially, as I believe Val deserves compensation for helping so many! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2009 Report Share Posted May 7, 2009 Dana, Yeah, your list seems like mine! All stomach gallbladder problems I took care of on my own, thank you .( : The t3 switch , and understanding that I have electrolyte imbalances and how to help that, took care of all the hypothyroid symptoms! In my case the neurotransmitter test/treatment helped immensly! Now I feel fabulous...except I am left with Candida type rash and allergies that go with it. These are considered" normal" to drs...but I know better, and am taking steps(on my own thank you) to correct those as well. I think Drs have purposely made it a huge no-no for anyone to try and understand what is happening to their body, or even how the body works for that matter. They are offended even more so should a person try and heal them selves. I will say the best thing that the internet has done is remove the power from Drs...and I am so happy for that. leisa Subject: RE: Re: Cytomel Insert - Helpful for getting t3 prescribed?To: RT3_T3 Date: Thursday, May 7, 2009, 10:57 AM Hi Leisa- So, are all the symptoms you list gone? If so, so you credit the T3? What a list – I guess I shouldn’t complain as my list is not so long “just†20 years of chronic fatigue, heavy metal toxicity (?), about 85 lbs over ideal weight, sleep problems, heart rhythm problems, liver pain, swelling, itching, . .. . Oh well, I guess my list is long too – at least I haven’t had too much problem with pain – mostly just some occasional unexplained low back pain. Now that I switched from SRT3 (which, in retrospect, wasn’t doing very much) to Cytomel (on Monday) I seem to be doing a somewhat better. And yes, Val’s help has been more valuable than ANY doctor I’ve seen (thanks Val!). Dana From: RT3_T3 [mailto: RT3_T3 ] On Behalf Of Leisa Forman My experience.. .. a dozen drs..many yrs,,stomach problems, epstien barr, fibromayalgia, memory loss, heart pain, severe dizzyness, wieght gain, gallbladder trouble,hair loss, heavy metal,skin problems,hypoglycem ia,sleeplessness ,eye pain, swelling, endometriosis. ... The Drs verdict ? There is nothing wrong with you, Maybe you are depressed, Your getting older, You should have a hysterectomy, You need to eat less..work out more, Your heart is fine, Your numbers all look great, Would you like to talk to a counselor? In answer to your question, Yes, I have done it all on my own! I stumbled onto the idea of RT3...and my Dr at the time looked at me like I was crazy, an stopped returning my calls. Then I subsrcibed to this group(not easy, as I had never been online much), and found the confidence to demand the rt3 test, and dumped my Dr in town, and eclusivley now work with the natuopath in Phoenix . I had to convince even she that I would be responsible and need to swap cold turkey( not little by little as most natuopaths here offered). I am so very happy to have found this group and wish that I was better off financially, as I believe Val deserves compensation for helping so many! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2009 Report Share Posted May 7, 2009 Leisa, what a nightmare. And isn't that the insult to injury when they look at that piece of paper (labslip) and tell you there's nothing wrong with you! It's like you don't even exist, the important thing is that piece of paper and if that looks okay, they've done their job and it must be a psych problem or just the inevitables of growing older. I had so many of the symptoms you listed - and they are slowly improving now that I am on the cortef and florinef and now the t3. This group is amazing. And, I totally agree with you about Val deserving to be compensated for helping all of us! Maybe we can do it as things get better! I am pretty sure Paypal would work and a little here and there from whoever is able....I would love to do that! > > My experience.... > a dozen drs..many yrs,,stomach problems, epstien barr, fibromayalgia, memory loss, heart pain, severe dizzyness, wieght gain, gallbladder trouble,hair loss, heavy metal,skin problems,hypoglycemia,sleeplessness,eye pain, swelling, endometriosis.... > > The Drs verdict ? There is nothing wrong with you, Maybe you are depressed, Your getting older, You should have a hysterectomy,You need to eat less..work out more, Your heart is fine, Your numbers all look great, Would you like to talk to a counselor? > > In answer to your question, Yes, I have done it all on my own! > I stumbled onto the idea of RT3...and my Dr at the time looked at me like I was crazy, an stopped returning my calls. Then I subsrcibed to this group(not easy, as I had never been online much), and found the confidence to demand the rt3 test, and dumped my Dr in town, and eclusivley now work with the natuopath in Phoenix. I had to convince even she that I would be responsible and need to swap cold turkey( not little by little as most natuopaths here offered). > I am so very happy to have found this group and wish that I was better off financially, as I believe Val deserves compensation for helping so many! > Leisa > > > > > > > > > > > > > > > > > > > > > > > > I know, right there on the package inserts! > > > > I had two docs almost kill me with thyroid trials because they wouldn't recognize adrenal insufficiency. And that is not because I wasnt trying to get some help with it at the time. First one yelled at me for even suggesting it as a possible problem - she told me I was too young to remember Pres. Kennedy (yes, just because he died before I was born would mean I would know nothing about him - I think doctors think we are all just a bunch of idiots) but HE had adrenal insufficiency, not me. Then she told me I'd need to find someone else if I wanted to go down that nonsense road. Then second one (Langer - wrote Solved the Riddle of Illness and is supposed to be some thyroid expert - told me I couldn't possibly have adrenal issues because my blood pressure was normal!!). I had two major crashes after those trials with no adrenal support and then did more research and had my cortisol tested and sure enough, low cortisol. Now I am struggling with the rt3, t3 > > acceptence with current doc, but at least I have been able to get Cortef and Florinef from her. Bottom line for most of us on these boards is having to do a lot of this on our own. :-( Wish that wasn't the case. Its been a real education realizing how messed up the system is. > > > > > > > > > > > > > > > > >]canada] http://www.kingpharm.ca/downloads/Cytomel_PI-Fre-Eng.pdf > > > > > > > > > > And again from that > > > > > > " Severe and prolonged hypothyroidism can lead to a decreased level of > > > adrenocortical activity commensurate with the lowered metabolic state. > > > When thyroid replacement therapy is administered, the metabolism > > > increases at a greater rate than adrenocortical activity. This can > > > precipitate adrenocortical insufficience. Therefore, in severe and > > > prolonged hypothyroidism, supplemental adrenocortical steroids may be > > > necessary. " > > > > > > Why are the Drs so reluctant to believe that when it's on the drug > > > packet inserts!! > > > > > > Nick > > > > > > > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
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