Re: Re: Shrinking Fibroids

[Guest guest]

Jill,

Your description of yourself sounds quite a bit like me. I am in Minnesota.

Where in the north are you? I am ready to do something about these fibroids

- most likely UFE. I am searching for the right medical people to help. I

will be scheduling my 1st consultation with an IR this week. My gyno is not

practicing right now and I don't think I can wait til spring. Another Dr at

the clinic sounds supportive but has had no direct experience with the

procedure. I feel pretty isolated.

Any chance you are in the Minneapolis area?

>

>Reply-To: uterinefibroids

>To: <uterinefibroids >

>Subject: Re: Re: Shrinking Fibroids

>Date: Sat, 22 Dec 2001 11:13:49 -0500

>

>Hi . I was 47 when I had the procedure done last Feb - I'd had

>increasingly heavy bleeding, clots, long periods ( 2 weeks), gushing,

>anemia

>etc, some bladder pressure, but the bleeding was by far the dominant

>symptom.

>

>I was in the hospital 2 nights - I was grateful this was an option as I

>lived quite some distance from the hospital and it was in the dead of a

>very

>severe winter. Like most others have reported, I was on the morphine pump

>overnight, then took percocet as required and motrin for 10 days for

>inflammation. I had brief episodes of pain for about a week after the

>procedure - primarily first thing in the AM - perhaps there was some

>connection to the immobility - when I got up and took the pain killers the

>pain was OK. I never needed to exceed the prescribed dosage and in fact did

>not use all the painkillers - I only took them when I really needed them.

>

>I guess I would describe the recovery from UFE as something of a " process " .

>I didn't have a lot of pain after the first week but had " twinges " for some

>time after the procedure. Like many others I had intermittent discharge

>which gradually went away. I did pass one significant piece of tissue about

>2 months after the procedure.

>I recall being very tired in the weeks after the procedure however I had

>been anemic for months prior to having it done and I was commuting in the

>winter, getting up early, and the whole business had been very stressful so

>I don't know how much of the fatigue could be attributed directly to the

>UFE. But it wasn't a big problem- I was fortunate in that I did not

>experience any of the post UFE syndrome - fever, flu-like symptoms etc -

>that some of the others have reported.

>

>I noticed almost immediate reduction in the abdominal distention, which had

>been significant. My " fat " jeans were loose about a week after the

>procedure.

>

>Regards,

>

>Jill

>

> Re: Re: Shrinking Fibroids

>

>

> > Jill:

> >

> > Thanks for the information. Based upon your description, I just have

>huge

> > blood clots. The lower abdomen is very hard, and I was hoping that the

>heavy

> > bleeding was a sign that the fibroids were shrinking.

> >

> > Since I have previously had a myo, I do not want to undergo any more

>major

> > surgery.

> > What facts did you rely upon in making your decision to have a UFE? How

>long

> > was your recovery?

> >

> > I truly appreciate your insight and advice.

> >

> >

> >

> >

> >

[Guest guest]

Jill,

Your description of yourself sounds quite a bit like me. I am in Minnesota.

Where in the north are you? I am ready to do something about these fibroids

- most likely UFE. I am searching for the right medical people to help. I

will be scheduling my 1st consultation with an IR this week. My gyno is not

practicing right now and I don't think I can wait til spring. Another Dr at

the clinic sounds supportive but has had no direct experience with the

procedure. I feel pretty isolated.

Any chance you are in the Minneapolis area?

>

>Reply-To: uterinefibroids

>To: <uterinefibroids >

>Subject: Re: Re: Shrinking Fibroids

>Date: Sat, 22 Dec 2001 11:13:49 -0500

>

>Hi . I was 47 when I had the procedure done last Feb - I'd had

>increasingly heavy bleeding, clots, long periods ( 2 weeks), gushing,

>anemia

>etc, some bladder pressure, but the bleeding was by far the dominant

>symptom.

>

>I was in the hospital 2 nights - I was grateful this was an option as I

>lived quite some distance from the hospital and it was in the dead of a

>very

>severe winter. Like most others have reported, I was on the morphine pump

>overnight, then took percocet as required and motrin for 10 days for

>inflammation. I had brief episodes of pain for about a week after the

>procedure - primarily first thing in the AM - perhaps there was some

>connection to the immobility - when I got up and took the pain killers the

>pain was OK. I never needed to exceed the prescribed dosage and in fact did

>not use all the painkillers - I only took them when I really needed them.

>

>I guess I would describe the recovery from UFE as something of a " process " .

>I didn't have a lot of pain after the first week but had " twinges " for some

>time after the procedure. Like many others I had intermittent discharge

>which gradually went away. I did pass one significant piece of tissue about

>2 months after the procedure.

>I recall being very tired in the weeks after the procedure however I had

>been anemic for months prior to having it done and I was commuting in the

>winter, getting up early, and the whole business had been very stressful so

>I don't know how much of the fatigue could be attributed directly to the

>UFE. But it wasn't a big problem- I was fortunate in that I did not

>experience any of the post UFE syndrome - fever, flu-like symptoms etc -

>that some of the others have reported.

>

>I noticed almost immediate reduction in the abdominal distention, which had

>been significant. My " fat " jeans were loose about a week after the

>procedure.

>

>Regards,

>

>Jill

>

> Re: Re: Shrinking Fibroids

>

>

> > Jill:

> >

> > Thanks for the information. Based upon your description, I just have

>huge

> > blood clots. The lower abdomen is very hard, and I was hoping that the

>heavy

> > bleeding was a sign that the fibroids were shrinking.

> >

> > Since I have previously had a myo, I do not want to undergo any more

>major

> > surgery.

> > What facts did you rely upon in making your decision to have a UFE? How

>long

> > was your recovery?

> >

> > I truly appreciate your insight and advice.

> >

> >

> >

> >

> >

[Guest guest]

Hi Barbara. I live in the Toronto area in Ontario, Canada. I think there's

a list of IRs on the fibroid registry where you might access a specialist in

your general area. I'm sure the American folks on the list could help you

identify someone who could help you.

Good luck!

Jill

Re: Re: Shrinking Fibroids

> >

> >

> > > Jill:

> > >

> > > Thanks for the information. Based upon your description, I just have

> >huge

> > > blood clots. The lower abdomen is very hard, and I was hoping that

the

> >heavy

> > > bleeding was a sign that the fibroids were shrinking.

> > >

> > > Since I have previously had a myo, I do not want to undergo any more

> >major

> > > surgery.

> > > What facts did you rely upon in making your decision to have a UFE?

How

> >long

> > > was your recovery?

> > >

> > > I truly appreciate your insight and advice.

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Hi Barbara. I live in the Toronto area in Ontario, Canada. I think there's

a list of IRs on the fibroid registry where you might access a specialist in

your general area. I'm sure the American folks on the list could help you

identify someone who could help you.

Good luck!

Jill

Re: Re: Shrinking Fibroids

> >

> >

> > > Jill:

> > >

> > > Thanks for the information. Based upon your description, I just have

> >huge

> > > blood clots. The lower abdomen is very hard, and I was hoping that

the

> >heavy

> > > bleeding was a sign that the fibroids were shrinking.

> > >

> > > Since I have previously had a myo, I do not want to undergo any more

> >major

> > > surgery.

> > > What facts did you rely upon in making your decision to have a UFE?

How

> >long

> > > was your recovery?

> > >

> > > I truly appreciate your insight and advice.

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Hi Barbara. I live in the Toronto area in Ontario, Canada. I think there's

a list of IRs on the fibroid registry where you might access a specialist in

your general area. I'm sure the American folks on the list could help you

identify someone who could help you.

Good luck!

Jill

Re: Re: Shrinking Fibroids

> >

> >

> > > Jill:

> > >

> > > Thanks for the information. Based upon your description, I just have

> >huge

> > > blood clots. The lower abdomen is very hard, and I was hoping that

the

> >heavy

> > > bleeding was a sign that the fibroids were shrinking.

> > >

> > > Since I have previously had a myo, I do not want to undergo any more

> >major

> > > surgery.

> > > What facts did you rely upon in making your decision to have a UFE?

How

> >long

> > > was your recovery?

> > >

> > > I truly appreciate your insight and advice.

> > >

> > >

> > >

> > >

> > >

[Guest guest]

<A HREF= " http://www.scvir.org/fibroid/ " >Uterine Fibroid Embolization (UFE)</A>

http://www.scvir.org/fibroid/

I live in Michigan, I was just at this web site yesterday. It is a page off

the Society of Cardiovascular & Interventional Radiology (SCVIR)'s web page.

If you click on " doctor finder " and fill in the form it will list all the

Dr.s that perform UFE in an area.

All you have to do is enter the state and make sure you check the area where

it says " ONLY list physicians who state that they perform UFE (Uterine

Fibroid Embolization) " . Don't worry about the other fields. Once the names

pop up you can usually click on them and it takes you to a short bio. Then

some of them also have web pages of their own.

Hope this helps,

Ann

lists the

[Guest guest]

Jill:

Thank you very much for sharing your experience. I am so exhausted from

fighting the anemia, the excessive bleeding, the " accidents " , which are

occuring more frequently. In recent weeks, I've noticed more incidents of

diarhea, perhaps it is nerves.

'Happy Holidays to you and your family.

Regards,

[Guest guest]

Jill:

Thank you very much for sharing your experience. I am so exhausted from

fighting the anemia, the excessive bleeding, the " accidents " , which are

occuring more frequently. In recent weeks, I've noticed more incidents of

diarhea, perhaps it is nerves.

'Happy Holidays to you and your family.

Regards,

[Guest guest]

Jill:

Thank you very much for sharing your experience. I am so exhausted from

fighting the anemia, the excessive bleeding, the " accidents " , which are

occuring more frequently. In recent weeks, I've noticed more incidents of

diarhea, perhaps it is nerves.

'Happy Holidays to you and your family.

Regards,