Guest guest Posted December 13, 2001 Report Share Posted December 13, 2001 Has anyone ever had a myomectomy and the surgeon discovered cancer? If so, I would like to hear your story. I'm worried for some strange reason because a woman in my firm had a myomectomy and she had huge fibroids. One week after her surgery she gets a call from her doctor informing her that they found cancer. She did not have to undergo chemo, but was horrified. Now they are finding suspicious findings in her mamo. I have had abnormal paps and elevated CA125 before. I was told that people with fibroids, polyps, etc. tend to have elevated CA 125's. I listen to the doctors, but its still scary. I am under a tremendous amount of job stress, but still would like to still go forth with the myomectomy. Its really making my life miserable with all of my symptoms. I pray that I am ok. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2001 Report Share Posted December 14, 2001 It was really frightening for me. I went to UCLA and had a complete physical. I called them back months later and they told me that my CA125 was 675. Then they repeated it and it was 55, then 77. Myomectomy and Cancer > > > Has anyone ever had a myomectomy and the surgeon discovered cancer? If so, I would like to hear your story. I'm worried for some strange reason because a woman in my firm had a myomectomy and she had huge fibroids. One week after her surgery she gets a call from her doctor informing her that they found cancer. She did not have to undergo chemo, but was horrified. Now they are finding suspicious findings in her mamo. I have had abnormal paps and elevated CA125 before. I was told that people with fibroids, polyps, etc. tend to have elevated CA 125's. I listen to the doctors, but its still scary. I am under a tremendous amount of job stress, but still would like to still go forth with the myomectomy. Its really making my life miserable with all of my symptoms. I pray that I am ok. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2001 Report Share Posted December 14, 2001 It was really frightening for me. I went to UCLA and had a complete physical. I called them back months later and they told me that my CA125 was 675. Then they repeated it and it was 55, then 77. Myomectomy and Cancer > > > Has anyone ever had a myomectomy and the surgeon discovered cancer? If so, I would like to hear your story. I'm worried for some strange reason because a woman in my firm had a myomectomy and she had huge fibroids. One week after her surgery she gets a call from her doctor informing her that they found cancer. She did not have to undergo chemo, but was horrified. Now they are finding suspicious findings in her mamo. I have had abnormal paps and elevated CA125 before. I was told that people with fibroids, polyps, etc. tend to have elevated CA 125's. I listen to the doctors, but its still scary. I am under a tremendous amount of job stress, but still would like to still go forth with the myomectomy. Its really making my life miserable with all of my symptoms. I pray that I am ok. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2001 Report Share Posted December 15, 2001 Wow, 675 is too high, but why did they test you for the ca125 to begin with? I will have them check it every 4 months, ca 125 is mainly for ovarian cancer, if your fibroids keep growing then it is alarming the system for some tumor growth, even it is benign. there is another test cea it test for cancer in the blood and there is ca2729 too. If your fibroids growing rapidly, than it is an alarming sign. keep an eye on the test often. Peace, Myomectomy and Cancer > > > Has anyone ever had a myomectomy and the surgeon discovered cancer? If so, I would like to hear your story. I'm worried for some strange reason because a woman in my firm had a myomectomy and she had huge fibroids. One week after her surgery she gets a call from her doctor informing her that they found cancer. She did not have to undergo chemo, but was horrified. Now they are finding suspicious findings in her mamo. I have had abnormal paps and elevated CA125 before. I was told that people with fibroids, polyps, etc. tend to have elevated CA 125's. I listen to the doctors, but its still scary. I am under a tremendous amount of job stress, but still would like to still go forth with the myomectomy. Its really making my life miserable with all of my symptoms. I pray that I am ok. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2001 Report Share Posted December 15, 2001 wrote: > Wow, 675 is too high, but why did they test you for the ca125 to begin with? I will have them check it every 4 months, ca 125 is mainly for ovarian cancer, if your fibroids keep growing then it is alarming the system for some tumor growth, even it is benign. there is another test cea it test for cancer in the blood and there is ca2729 too. > If your fibroids growing rapidly, than it is an alarming sign. > keep an eye on the test often. Um, no offense, but where's the research to back up your assertions in this email? The CA125 is a LOUSY test. No if, ands or buts. It is indicative of very little. Especially when fibroids are present. Furthermore, it has not only a very high false positive rate but also a very high false negative rate. Oncologists do not rely on this test alone or without the presence of specific symptoms indicative of potential for ovarian cancer. Also, fibroids growing rapidly are an indication of basically one thing: your fibroids are growing rapidly. Major bummer, but according to the medical literature, not an indication of cancer at all. May I please ask that we all try to be a bit more cautious on this list group about what we communicate as " ...an alarming sign... " ? And, even when you do have strong concerns about someone's health based on what they've posted, please, please, include the research or website URL for content that would substantiate a need for potential concern and the positive support necessary to help the individual walk through determining for themselves whether or not they should be alarmed and seeking immediate care. Cancer is a frightening concept. To all of us. I feel confident that not a single member of this group wants to be responsible for posting statements which might, unnecessarily, fuel someone's fear of cancer and cause undue stress and emotional agony. This is simply a gentle reminder to " be careful online " and truly think of the impact of your words before posting. Carla Dionne p.s. I am a wee bit sensitive to this issue of cancer scares -- so please forgive me this email post of mild admonition. Over three years ago, I learned I had hyperplasia but could not get the gyn to tell me what this meant until the next appointment. I spent a solid week worrying myself sick. Needlessly. It was fully treatable and not anywhere near a cancer stage. But, I haven't easily forgotten that week of unrest or the impact of fearing the worst, in terms of cancer. I wouldn't want any woman on this list group experiencing anything even remotely similar due to communication from another member that was stressed in an alarming fashion. I would hope that this group would truly understand and respect this perspective. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2001 Report Share Posted December 15, 2001 wrote: > Wow, 675 is too high, but why did they test you for the ca125 to begin with? I will have them check it every 4 months, ca 125 is mainly for ovarian cancer, if your fibroids keep growing then it is alarming the system for some tumor growth, even it is benign. there is another test cea it test for cancer in the blood and there is ca2729 too. > If your fibroids growing rapidly, than it is an alarming sign. > keep an eye on the test often. Um, no offense, but where's the research to back up your assertions in this email? The CA125 is a LOUSY test. No if, ands or buts. It is indicative of very little. Especially when fibroids are present. Furthermore, it has not only a very high false positive rate but also a very high false negative rate. Oncologists do not rely on this test alone or without the presence of specific symptoms indicative of potential for ovarian cancer. Also, fibroids growing rapidly are an indication of basically one thing: your fibroids are growing rapidly. Major bummer, but according to the medical literature, not an indication of cancer at all. May I please ask that we all try to be a bit more cautious on this list group about what we communicate as " ...an alarming sign... " ? And, even when you do have strong concerns about someone's health based on what they've posted, please, please, include the research or website URL for content that would substantiate a need for potential concern and the positive support necessary to help the individual walk through determining for themselves whether or not they should be alarmed and seeking immediate care. Cancer is a frightening concept. To all of us. I feel confident that not a single member of this group wants to be responsible for posting statements which might, unnecessarily, fuel someone's fear of cancer and cause undue stress and emotional agony. This is simply a gentle reminder to " be careful online " and truly think of the impact of your words before posting. Carla Dionne p.s. I am a wee bit sensitive to this issue of cancer scares -- so please forgive me this email post of mild admonition. Over three years ago, I learned I had hyperplasia but could not get the gyn to tell me what this meant until the next appointment. I spent a solid week worrying myself sick. Needlessly. It was fully treatable and not anywhere near a cancer stage. But, I haven't easily forgotten that week of unrest or the impact of fearing the worst, in terms of cancer. I wouldn't want any woman on this list group experiencing anything even remotely similar due to communication from another member that was stressed in an alarming fashion. I would hope that this group would truly understand and respect this perspective. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2001 Report Share Posted December 15, 2001 Carla: Thank you very much for your posting. Yes, after reading the first e-mail it almost sent me into a depression, but you (thank God) pulled me back together. Yes, I had an elevated CA 125 (675). Without having any background regarding a CA125, I told the doctor to let me have that test among other test. I sort of went over board on testing. After getting the 675 results, I immediately went to an oncologist and they retested me twice and it went down to 55, then 88. Yes, the CA125 is a lousy test and can be misleading. My doctor told me that years ago a woman came in and was scared to death because she had a CA 125 of 2,000 and he performed a hysterectomy and there was absolutely NO cancer. When I had the 675 test, I was on my cycle (bleeding heavily) and had a 6 centimeter follicle on my ovary. I only have one tube and ovary. The follicle went down to 2, etc. Yes, I have fibroids and have had the same ones for over 5 years and they have remained between 2-3 centimeters. I've had several ultrasonograms, and an MRI and some type of DNA test. All normal accept for the fibroids. Yes, the CA 125 is a marker for people already diagnosed with cancer. I am scheduled for a myomectomy on January 4, and with faith in God, hope everything is going to be fine and I will be able to have a normal life. Thank you very much for your posting. ... P.S. I guess the closer I get to my surgery date, the more I start to worry. If I do have something serious, I would rather find out and deal with it. Re: Myomectomy and Cancer > wrote: > > > Wow, 675 is too high, but why did they test you for the ca125 to begin with? I will have them check it every 4 months, ca 125 is mainly for ovarian cancer, if your fibroids keep growing then it is alarming the system for some tumor growth, even it is benign. there is another test cea it test for cancer in the blood and there is ca2729 too. > > If your fibroids growing rapidly, than it is an alarming sign. > > keep an eye on the test often. > > Um, no offense, but where's the research to back up your assertions in this email? The CA125 is a LOUSY test. No if, ands or buts. It is indicative of very little. Especially when fibroids are present. Furthermore, it has not only a very high false positive rate but also a very high false negative rate. Oncologists do not rely on this > test alone or without the presence of specific symptoms indicative of potential for ovarian cancer. > > Also, fibroids growing rapidly are an indication of basically one thing: your fibroids are growing rapidly. Major bummer, but according to the medical literature, not an indication of cancer at all. > > May I please ask that we all try to be a bit more cautious on this list group about what we communicate as " ...an alarming sign... " ? And, even when you do have strong concerns about someone's health based on what they've posted, please, please, include the research or website URL for content that would substantiate a need for potential concern > and the positive support necessary to help the individual walk through determining for themselves whether or not they should be alarmed and seeking immediate care. > > Cancer is a frightening concept. To all of us. I feel confident that not a single member of this group wants to be responsible for posting statements which might, unnecessarily, fuel someone's fear of cancer and cause undue stress and emotional agony. This is simply a gentle reminder to " be careful online " and truly think of the impact of > your words before posting. > > Carla Dionne > > p.s. I am a wee bit sensitive to this issue of cancer scares -- so please forgive me this email post of mild admonition. Over three years ago, I learned I had hyperplasia but could not get the gyn to tell me what this meant until the next appointment. I spent a solid week worrying myself sick. Needlessly. It was fully treatable and not > anywhere near a cancer stage. But, I haven't easily forgotten that week of unrest or the impact of fearing the worst, in terms of cancer. I wouldn't want any woman on this list group experiencing anything even remotely similar due to communication from another member that was stressed in an alarming fashion. I would hope that this group > would truly understand and respect this perspective. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2001 Report Share Posted December 15, 2001 Carla: Thank you very much for your posting. Yes, after reading the first e-mail it almost sent me into a depression, but you (thank God) pulled me back together. Yes, I had an elevated CA 125 (675). Without having any background regarding a CA125, I told the doctor to let me have that test among other test. I sort of went over board on testing. After getting the 675 results, I immediately went to an oncologist and they retested me twice and it went down to 55, then 88. Yes, the CA125 is a lousy test and can be misleading. My doctor told me that years ago a woman came in and was scared to death because she had a CA 125 of 2,000 and he performed a hysterectomy and there was absolutely NO cancer. When I had the 675 test, I was on my cycle (bleeding heavily) and had a 6 centimeter follicle on my ovary. I only have one tube and ovary. The follicle went down to 2, etc. Yes, I have fibroids and have had the same ones for over 5 years and they have remained between 2-3 centimeters. I've had several ultrasonograms, and an MRI and some type of DNA test. All normal accept for the fibroids. Yes, the CA 125 is a marker for people already diagnosed with cancer. I am scheduled for a myomectomy on January 4, and with faith in God, hope everything is going to be fine and I will be able to have a normal life. Thank you very much for your posting. ... P.S. I guess the closer I get to my surgery date, the more I start to worry. If I do have something serious, I would rather find out and deal with it. Re: Myomectomy and Cancer > wrote: > > > Wow, 675 is too high, but why did they test you for the ca125 to begin with? I will have them check it every 4 months, ca 125 is mainly for ovarian cancer, if your fibroids keep growing then it is alarming the system for some tumor growth, even it is benign. there is another test cea it test for cancer in the blood and there is ca2729 too. > > If your fibroids growing rapidly, than it is an alarming sign. > > keep an eye on the test often. > > Um, no offense, but where's the research to back up your assertions in this email? The CA125 is a LOUSY test. No if, ands or buts. It is indicative of very little. Especially when fibroids are present. Furthermore, it has not only a very high false positive rate but also a very high false negative rate. Oncologists do not rely on this > test alone or without the presence of specific symptoms indicative of potential for ovarian cancer. > > Also, fibroids growing rapidly are an indication of basically one thing: your fibroids are growing rapidly. Major bummer, but according to the medical literature, not an indication of cancer at all. > > May I please ask that we all try to be a bit more cautious on this list group about what we communicate as " ...an alarming sign... " ? And, even when you do have strong concerns about someone's health based on what they've posted, please, please, include the research or website URL for content that would substantiate a need for potential concern > and the positive support necessary to help the individual walk through determining for themselves whether or not they should be alarmed and seeking immediate care. > > Cancer is a frightening concept. To all of us. I feel confident that not a single member of this group wants to be responsible for posting statements which might, unnecessarily, fuel someone's fear of cancer and cause undue stress and emotional agony. This is simply a gentle reminder to " be careful online " and truly think of the impact of > your words before posting. > > Carla Dionne > > p.s. I am a wee bit sensitive to this issue of cancer scares -- so please forgive me this email post of mild admonition. Over three years ago, I learned I had hyperplasia but could not get the gyn to tell me what this meant until the next appointment. I spent a solid week worrying myself sick. Needlessly. It was fully treatable and not > anywhere near a cancer stage. But, I haven't easily forgotten that week of unrest or the impact of fearing the worst, in terms of cancer. I wouldn't want any woman on this list group experiencing anything even remotely similar due to communication from another member that was stressed in an alarming fashion. I would hope that this group > would truly understand and respect this perspective. > > > Quote Link to comment Share on other sites More sharing options...
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