52 yr.old female just now getting fibroids - how rare is this?

[Guest guest]

I have been fortunate never to have gynecological problems, but now, AT

menopause, I am developing them-painful fibroid tumors. One physician

says an fsh of 32 means I am still producing plenty of estrogen - thus

developing fibroids, and that I haven't gone through menopause yet. A

" specialist " says I am through menopause and should not be getting

fibroids even though she will not give me a hysterectomy and I cannot

take provera as per a liver specialist at Duke.

I am in great pain, when I walk around, my back, stomach hurt so badly.

When I tell her this, she says the fibroids aren't large enough to cause

that kind of pain. ( I guess I'm a head case.)

I went one year without a period and felt great. thinking I was almost

through menopause; then I had a period, the likes of which I've never

witnesses before, went to the Dr. and she gave me provera against my

wishes which did stop the period but made me deathly ill. This is a

small town, I'm running out of opinions. Would anyone there care to

respond?

Sincerely,

Carolyn B. McDaris

cbmcdashe@...

[Guest guest]

Who is this post from? Is this from Carla or is this from Carolyn McDaris?

Bonnie

Carla Dionne wrote:

> I have been fortunate never to have gynecological problems, but now, AT

> menopause, I am developing them-painful fibroid tumors. One physician

> says an fsh of 32 means I am still producing plenty of estrogen - thus

> developing fibroids, and that I haven't gone through menopause yet. A

> " specialist " says I am through menopause and should not be getting

> fibroids even though she will not give me a hysterectomy and I cannot

> take provera as per a liver specialist at Duke.

>

> I am in great pain, when I walk around, my back, stomach hurt so badly.

> When I tell her this, she says the fibroids aren't large enough to cause

> that kind of pain. ( I guess I'm a head case.)

>

> I went one year without a period and felt great. thinking I was almost

> through menopause; then I had a period, the likes of which I've never

> witnesses before, went to the Dr. and she gave me provera against my

> wishes which did stop the period but made me deathly ill. This is a

> small town, I'm running out of opinions. Would anyone there care to

> respond?

>

> Sincerely,

> Carolyn B. McDaris

> cbmcdashe@...

>

>

[Guest guest]

It's from Carolyn -- misdirected to me via wrong uterinefibroids group email

address. I forwarded it to

the group without explanation. sorry. i should have clarified.

carla

" Pedro B. Gandol " wrote:

> Who is this post from? Is this from Carla or is this from Carolyn McDaris?

> Bonnie

>

> > I have been fortunate never to have gynecological problems, but now, AT

> > menopause, I am developing them-painful fibroid tumors. One physician

> > says an fsh of 32 means I am still producing plenty of estrogen - thus

> > developing fibroids, and that I haven't gone through menopause yet. A

> > " specialist " says I am through menopause and should not be getting

> > fibroids even though she will not give me a hysterectomy and I cannot

> > take provera as per a liver specialist at Duke.

> >

> > I am in great pain, when I walk around, my back, stomach hurt so badly.

> > When I tell her this, she says the fibroids aren't large enough to cause

> > that kind of pain. ( I guess I'm a head case.)

> >

> > I went one year without a period and felt great. thinking I was almost

> > through menopause; then I had a period, the likes of which I've never

> > witnesses before, went to the Dr. and she gave me provera against my

> > wishes which did stop the period but made me deathly ill. This is a

> > small town, I'm running out of opinions. Would anyone there care to

> > respond?

> >

> > Sincerely,

> > Carolyn B. McDaris

> > cbmcdashe@...

[Guest guest]

No that's okay but where does it say that Carolyn is 52 years old? She must have

mentioned this to you.

I have a couple of other comments-There is a history of 1 year no periods.Then a

whopper.I am not

understanding if there has been any types of work-ups.Also any looks into

thyroid or other things.

carolyn could you try to explain your case a bit more?

Are you 52?

Were you ever diagnosed with fibroids in the past?

Have you ever had an ultra sound or CAT scan or MRI to investigate your fibroids

or this pain?

Why was the provera against your wishes?

My comment is this-Post menopausal bleeding-it is very important to be properly

investigated and

diagnosed-VERY important.

Are there any major teaching hospitals near you?

Is your primary care physican aware of the pain?

It is important to find out the source of the pain and of the bleeding

Best,

Bonnie

Carla Dionne wrote:

> It's from Carolyn -- misdirected to me via wrong uterinefibroids group email

address. I forwarded it to

> the group without explanation. sorry. i should have clarified.

>

> carla

>

> " Pedro B. Gandol " wrote:

>

> > Who is this post from? Is this from Carla or is this from Carolyn McDaris?

> > Bonnie

> >

> > > I have been fortunate never to have gynecological problems, but now, AT

> > > menopause, I am developing them-painful fibroid tumors. One physician

> > > says an fsh of 32 means I am still producing plenty of estrogen - thus

> > > developing fibroids, and that I haven't gone through menopause yet. A

> > > " specialist " says I am through menopause and should not be getting

> > > fibroids even though she will not give me a hysterectomy and I cannot

> > > take provera as per a liver specialist at Duke.

> > >

> > > I am in great pain, when I walk around, my back, stomach hurt so badly.

> > > When I tell her this, she says the fibroids aren't large enough to cause

> > > that kind of pain. ( I guess I'm a head case.)

> > >

> > > I went one year without a period and felt great. thinking I was almost

> > > through menopause; then I had a period, the likes of which I've never

> > > witnesses before, went to the Dr. and she gave me provera against my

> > > wishes which did stop the period but made me deathly ill. This is a

> > > small town, I'm running out of opinions. Would anyone there care to

> > > respond?

> > >

> > > Sincerely,

> > > Carolyn B. McDaris

> > > cbmcdashe@...

>

>

[Guest guest]

-Did you have an endometrial biopsy, may be you have hyperplasia

which is the growth of the lining of the uterus and the lack of

ovulation can cause the build up. This can be corrected by hormone

progestrone. I missed my periods about 4 and half months and when i

got a period it was non stop. I had small fibroids but i have done

embolization two years ago.If your fibroids are small try to do this

test or take an ultra sound to see the thickness of the

endometrium.Hope this help. anowrote:

> No that's okay but where does it say that Carolyn is 52 years old?

She must have mentioned this to you.

>

> I have a couple of other comments-There is a history of 1 year no

periods.Then a whopper.I am not

> understanding if there has been any types of work-ups.Also any

looks into thyroid or other things.

> carolyn could you try to explain your case a bit more?

> Are you 52?

> Were you ever diagnosed with fibroids in the past?

> Have you ever had an ultra sound or CAT scan or MRI to investigate

your fibroids or this pain?

> Why was the provera against your wishes?

>

> My comment is this-Post menopausal bleeding-it is very important to

be properly investigated and

> diagnosed-VERY important.

> Are there any major teaching hospitals near you?

> Is your primary care physican aware of the pain?

> It is important to find out the source of the pain and of the

bleeding

> Best,

> Bonnie

>

> Carla Dionne wrote:

>

> > It's from Carolyn -- misdirected to me via wrong uterinefibroids

group email address. I forwarded it to

> > the group without explanation. sorry. i should have clarified.

> >

> > carla

> >

> > " Pedro B. Gandol " wrote:

> >

> > > Who is this post from? Is this from Carla or is this from

Carolyn McDaris?

> > > Bonnie

> > >

> > > > I have been fortunate never to have gynecological problems,

but now, AT

> > > > menopause, I am developing them-painful fibroid tumors. One

physician

> > > > says an fsh of 32 means I am still producing plenty of

estrogen - thus

> > > > developing fibroids, and that I haven't gone through

menopause yet. A

> > > > " specialist " says I am through menopause and should not be

getting

> > > > fibroids even though she will not give me a hysterectomy and

I cannot

> > > > take provera as per a liver specialist at Duke.

> > > >

> > > > I am in great pain, when I walk around, my back, stomach hurt

so badly.

> > > > When I tell her this, she says the fibroids aren't large

enough to cause

> > > > that kind of pain. ( I guess I'm a head case.)

> > > >

> > > > I went one year without a period and felt great. thinking I

was almost

> > > > through menopause; then I had a period, the likes of which

I've never

> > > > witnesses before, went to the Dr. and she gave me provera

against my

> > > > wishes which did stop the period but made me deathly ill.

This is a

> > > > small town, I'm running out of opinions. Would anyone there

care to

> > > > respond?

> > > >

> > > > Sincerely,

> > > > Carolyn B. McDaris

> > > > cbmcdashe@w...

> >

> >

[Guest guest]

Hi Carolyn,

I have recently started to talk with my Mom about

menopause, and I am learning that it can be very

different among women. She said hers started at age 50

and she had very sporadic periods for three years -

sometimes not at all, sometimes a little spotting,

sometimes heavy flow. My mom is now in her early 60s

and on HRT (she takes it 3 times a week) to prevent

the hot flashes, night sweats, and sleep problems she

gets without it. She also had some very heavy periods

off and on in her 40s and was diagnosed with an

" enlarged uterus " but not fibroids specifically. Of

course, this was 20 years ago before ultrasound was

commonplace.

On the other hand, she told me that *her* mom, my

grandmother, had very heavy periods all her adult

life, and went on the Pill to control it in her 40s,

because she was taking a trip to the Middle East and

didn't know whether she'd have access to modern

facilities. She went off the Pill when she returned

about a year later, and never had another period. But

she's also never had any of the typical menopause

symptoms either, it was just a non-event for her.

She's now in her mid-80s and has never taken HRT.

I guess all this is to say that I don't think it's all

that unusual for you to have no period for a year and

then a whopper - hormones can fluctuate greatly during

that time. That fluctuation may help explain why one

doctor says you are " through " menopause and another

says you're not.

However, it should send up a big red flag if you're in

a lot of pain and your doctor dismisses it without

trying to find out why. If it's not your fibroids, it

could be related to ovarian cysts or PID. Has your doc

measured your fibroids or uterus via ultrasound? If

she hasn't explored where your pain is coming from,

I'd recommend getting another doctor pronto, even if

you have to travel a little ways to find one who

does't seem to think it's all in your head. I know all

about the reality of that back and belly pain, you are

=not= necessarily a headcase.

==Cat

__________________________________________________

[Guest guest]

Hi Carolyn,

I have recently started to talk with my Mom about

menopause, and I am learning that it can be very

different among women. She said hers started at age 50

and she had very sporadic periods for three years -

sometimes not at all, sometimes a little spotting,

sometimes heavy flow. My mom is now in her early 60s

and on HRT (she takes it 3 times a week) to prevent

the hot flashes, night sweats, and sleep problems she

gets without it. She also had some very heavy periods

off and on in her 40s and was diagnosed with an

" enlarged uterus " but not fibroids specifically. Of

course, this was 20 years ago before ultrasound was

commonplace.

On the other hand, she told me that *her* mom, my

grandmother, had very heavy periods all her adult

life, and went on the Pill to control it in her 40s,

because she was taking a trip to the Middle East and

didn't know whether she'd have access to modern

facilities. She went off the Pill when she returned

about a year later, and never had another period. But

she's also never had any of the typical menopause

symptoms either, it was just a non-event for her.

She's now in her mid-80s and has never taken HRT.

I guess all this is to say that I don't think it's all

that unusual for you to have no period for a year and

then a whopper - hormones can fluctuate greatly during

that time. That fluctuation may help explain why one

doctor says you are " through " menopause and another

says you're not.

However, it should send up a big red flag if you're in

a lot of pain and your doctor dismisses it without

trying to find out why. If it's not your fibroids, it

could be related to ovarian cysts or PID. Has your doc

measured your fibroids or uterus via ultrasound? If

she hasn't explored where your pain is coming from,

I'd recommend getting another doctor pronto, even if

you have to travel a little ways to find one who

does't seem to think it's all in your head. I know all

about the reality of that back and belly pain, you are

=not= necessarily a headcase.

==Cat

__________________________________________________