Guest guest Posted December 6, 2001 Report Share Posted December 6, 2001 Camper, So very very sorry to hear of the excruciating pain bleeding...your getting over your head here, it is really time to act... Please, I'm not trying to interrogate you, but to get information helpful to provide suggestions to take to your doctor on diagnostics and treatment options....and of course, you don't have to answer anything... Have you been with this physician a long time? Is she primary care, gynecologist, other specialty? Your previous medical history-- Did you have the severe cramping as an adolescent/in your 20's? How did you manage it? Did you present with symptoms like - chronic pelvic pain, lower back pain, diarrhea, painful bowel movements? are you often tender in the abdomen. Were your periods then with heavy irregular flow? Has your gyne ruled out Pelvic inflammatory disease? cysts? endometriosis, which can also occur along with fibroids? Did she suggest laparoscopic/or hysteroscopic diagnostics? Do you have the insurance coverage to get a pelvic MRI for a real accurate look at what's going on with the fibroid/location/size so that you have a better grip on what treatment options to look at? I don't see how you can continue coping possibly..for months more trying birth control pills...is your gyne oblivious to the acute pain your experiencing. Based on your description, if sounds like your condition is way beyond medical therapy... Anyone else on board experience severe symptoms like Camper? Worried about you...and we're here to support you. Marsha In a message dated 12/5/01 11:33:00 PM Eastern Standard Time, camper@... writes: > Hello everyone, > > Long message ahead. > > I am new to the group and have been having nothing but trouble for the > last year. For about the last year my periods have been so out of > control and getting worse every single month. I cannot even go > anywhere but work and home for about the first 5 to 7 days of my > period, am constantly having to change both the tampon and pad every 1 > 1/4 hours. For the 9 - 10 days that my period lasts, I am usually > living on three to four times the recommended doses of first Advil, > then to Motrin and last Aleve until last month when I was put on Vioxx > which seem to handle the cramps. Of course, I won't know how it truly > handles the vice like pain that last for 48 hours straight every month > which starts in the middle of the night and wakes me up and I end up > screaming and crying for about two hours until the medications finally > take effect. I will see in about two to three days how that works > since I am now taking 50 mg of Vioxx for it and my period should start > this weekend. > > The doctor has put me on birth control pills to try to make the > bleeding lighter, I will see if it does anything in a few days when my > period should start. But she has not done anything to shrink the > fibroid or the uterus which is enlarged due to the fibroid. They also > found on the ultrasound some liquid around that area but she said that > would be from the ovulation which leaves some liquid, but my > ultrasound was taken two - four days before my period so I thought > there should not be anything from that left. > > On top of all this, I am also having to see a Gastroenterologist > because my bowels seem to be all screwed up and that is causing me > other problems. I want her to see if this is actually all related or > am I just falling apart. > > By the way, I am 36 years old, plan on not having my own children, but > adopting older children instead (since I was 14 1/2 years old I knew I > was never having children, don't have any patience for babies or > infants, and never will) but of course I feel like my doctor has not > listened to me about this because she keeps ignoring my questioning > about what we can do to get the fibroid and uterus shrunk. My next > appointment is in about three weeks and I actually asked my mother to > come with me so we can actually get answers to all my questions and > also to make sure she gives me a estrogen free birth control since > everything I have read says that estrogen promotes the fibroid to > grow. > > Camper > -- > " The alternative is unthinkable. " (Methos) > Love of Methos/Adam Pierson for eternity!!! > > PWFC, Highlander Clan, ROG-L, ADLFC, HLFIC, Methos-Scrolls, Duncan_Methos > AIM:Bonthevamp > Camper@... > website: www.camper65.com > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2001 Report Share Posted December 6, 2001 Hello All I am also new to this group At the age of 27 and 4 years later of pain and suffering with the worst period pains you can imagine and in inability to conceive, I soon discovered that my uterus had been inhibited by uninvited guests, (yes Fibroids). Being young and desperately wanting children I wanted to preserve my fertility so opted to have an abdominal Myomectomy. After undergoing surgery and being laid up for two months I am now back on my feet and fighting towards the next stage of my life and that is to have children. I had the operation 9 months ago and am yet to conceive. Is there any one out there who has had the myomectomy and later had children. If so did you wait long. i know you cannot gage yourself on other people recovery time, but as time is moving on i am losing hope. I have been trying for a child now for 4 years. Nora _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2001 Report Share Posted December 6, 2001 Hello All I am also new to this group At the age of 27 and 4 years later of pain and suffering with the worst period pains you can imagine and in inability to conceive, I soon discovered that my uterus had been inhibited by uninvited guests, (yes Fibroids). Being young and desperately wanting children I wanted to preserve my fertility so opted to have an abdominal Myomectomy. After undergoing surgery and being laid up for two months I am now back on my feet and fighting towards the next stage of my life and that is to have children. I had the operation 9 months ago and am yet to conceive. Is there any one out there who has had the myomectomy and later had children. If so did you wait long. i know you cannot gage yourself on other people recovery time, but as time is moving on i am losing hope. I have been trying for a child now for 4 years. Nora _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2001 Report Share Posted December 6, 2001 Hello All I am also new to this group At the age of 27 and 4 years later of pain and suffering with the worst period pains you can imagine and in inability to conceive, I soon discovered that my uterus had been inhibited by uninvited guests, (yes Fibroids). Being young and desperately wanting children I wanted to preserve my fertility so opted to have an abdominal Myomectomy. After undergoing surgery and being laid up for two months I am now back on my feet and fighting towards the next stage of my life and that is to have children. I had the operation 9 months ago and am yet to conceive. Is there any one out there who has had the myomectomy and later had children. If so did you wait long. i know you cannot gage yourself on other people recovery time, but as time is moving on i am losing hope. I have been trying for a child now for 4 years. Nora _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2001 Report Share Posted December 6, 2001 > Camper, > > Have you been with this physician a long time? > Is she primary care, gynecologist, other specialty? This doctor only about three months. In about the beginning of August I went and saw my regular doctor. She did blood testing and sent me for a ultrasound to see what was happening. They found a 33mm by 34mm by 32mm fibroid tumor on the backside of my uterus (at least that is what the ultrasound report said). She immediately recommended that I get to a gynecologist. So in September I saw the OBGYN. She did a biopsy of the uterus which showed nothing. She then put me on Vioxx (which we had to use samples while fighting the insurance company to cover it) and then this past month put me on birth control pills. > > Your previous medical history-- > Did you have the severe cramping as an > adolescent/in your 20's? How did you manage it? > Did you present with symptoms like - > chronic pelvic pain, lower back pain, diarrhea, > painful bowel movements? are you often tender > in the abdomen. Were your periods then with > heavy irregular flow? > Had no problems from the age of 11 (when I first got my period and it was regular right away) until about 27, it got a little heavier but nothing to worry about or be concerned about. In fact, it did not even interfere with my martial arts which I did about two to three times a week from the age of 27 to about 32. I would go to work, and alternating nights school or martial arts school and never had concerns, just changed my pad and tampon like everyone else. Of course I had always used a tampon and pad together for those days to be double protected since I was wearing a white ge and you don't want anything showing, especially if you were teaching the children's class. From about 27 untl 34 I had nothing that would interfere in life, did everything, went everywhere, you know, took the normal precautions. Not even cramps but about twice until the age of 34. The only thing that I have had since I was thirteen was a natural discharge that was ruled out being anything else since thirteen and was regularly watched from 13 to 18 by my pediatrician and then by my adult doctor. In the last two years I have developed: heavier natural discharge, very soft bowel movements, nausea after I have eaten many times (not always), have pains when parts of my stomach region are pressed (noticed this most recently) cannot eat certain foods as they tend to cause more nausea and major stomach upset, acid reflux, cramping during the approximate 9-10 days of my period, a severe like vice pain that comes on usually in the middle of the night and lasts for 2 days every period but the Vioxx eases it enough that I am able to sleep and function at work. I have had such a heavy bleeding that about a year ago I had to change my pad and tampon (which both are usually filled by that time) every 1 1/2 - 1 3/4 hours and now that is being done every 1 1/4 hours and I don't dare go anywhere for the first 5-6 days other than work and home. Even sleeping at night, I either have to get up at least once during the six hours I sleep (I don't dare go to bed before 1:00 in the morning or I need to get up two times in the same night) and then still pray that I can run into the bathroom before I flood my bed and my floor since blood pours out of me and runs down my legs and this is with using a super plus tampon and pad overnight. > Has your gyne ruled out Pelvic inflammatory > disease? cysts? endometriosis, which can > also occur along with fibroids? Did she > suggest laparoscopic/or hysteroscopic > diagnostics? > She has not done any other testing other than the biospy since my regular doctor did the ultrasound. Her first thing was to try to control the pain and then to put me on birth control (and of course the sample has estrogen) to try to lessen the bleeding. She does not even want to do a D & C because she keeps saying " but your not anemic " . She has never tested me during my period so how does she actually know I am not anemic during my period. Hell my regular doctor already put me on multi vitamin with iron because my very first blood test showed low iron, and that was taken during my period. Which actually I found out I was anemic when I was 21 and constantly tired at college. My regular doctor then (different than now) put me on the same thing, multivitamins with iron and it did great for the two years that I was one it. I didn't know that I would end up needing this the rest of my life apparently. My regular doctor has me coming in regularly for blood work and I am going to ask her to redo the iron test next week since I should be in the heart of my period. I really want to see what it is Monday morning/Tuesday morning and see if it drops during my period like I think it would. > Do you have the insurance coverage to > get a pelvic MRI for a real accurate look at > what's going on with the fibroid/location/size > so that you have a better grip on what > treatment options to look at? > > I don't see how you can continue coping > possibly..for months more trying birth > control pills...is your gyne oblivious to > the acute pain your experiencing. > Based on your description, if sounds like > your condition is way beyond medical therapy... > MRI, don't know if the insurance would fight us on that. I have a pretty good plan so far and they covered everything with my Carpal tunnel surgery but I would have to find out if they would cover an MRI. I am thinking of asking her to do another external ultrasound or again the internal ultrasound (they did both at the other place) right in the doctor's office so I can see where this fibroid is. As far as waiting the three to six months she claims I have to give the birth control, I'm not sure I can wait that damn long. I feel like I'd rather be dead than alive since I have to basically give up life for a week and a half every damn month. The only thing keeping me going right now is work, my friends, and my parents being so supportive. I live at home right now, was planning to move to San Francisco but between the economy there being a little slow and this happening, which means I cannot just go out and stay the month I wanted to so I could interview with potential jobs and have one before I officially move, that may be off for about another year. I really wanted to be there by this summer. > Anyone else on board experience severe > symptoms like Camper? > > Worried about you...and we're here to support you. > Marsha > > > > In a message dated 12/5/01 11:33:00 PM Eastern Standard Time, > camper@c... writes: > > > > Hello everyone, > > > > Long message ahead. > > > > I am new to the group and have been having nothing but trouble for the > > last year. For about the last year my periods have been so out of > > control and getting worse every single month. I cannot even go > > anywhere but work and home for about the first 5 to 7 days of my > > period, am constantly having to change both the tampon and pad every 1 > > 1/4 hours. For the 9 - 10 days that my period lasts, I am usually > > living on three to four times the recommended doses of first Advil, > > then to Motrin and last Aleve until last month when I was put on Vioxx > > which seem to handle the cramps. Of course, I won't know how it truly > > handles the vice like pain that last for 48 hours straight every month > > which starts in the middle of the night and wakes me up and I end up > > screaming and crying for about two hours until the medications finally > > take effect. I will see in about two to three days how that works > > since I am now taking 50 mg of Vioxx for it and my period should start > > this weekend. > > > > The doctor has put me on birth control pills to try to make the > > bleeding lighter, I will see if it does anything in a few days when my > > period should start. But she has not done anything to shrink the > > fibroid or the uterus which is enlarged due to the fibroid. They also > > found on the ultrasound some liquid around that area but she said that > > would be from the ovulation which leaves some liquid, but my > > ultrasound was taken two - four days before my period so I thought > > there should not be anything from that left. > > > > On top of all this, I am also having to see a Gastroenterologist > > because my bowels seem to be all screwed up and that is causing me > > other problems. I want her to see if this is actually all related or > > am I just falling apart. > > > > By the way, I am 36 years old, plan on not having my own children, but > > adopting older children instead (since I was 14 1/2 years old I knew I > > was never having children, don't have any patience for babies or > > infants, and never will) but of course I feel like my doctor has not > > listened to me about this because she keeps ignoring my questioning > > about what we can do to get the fibroid and uterus shrunk. My next > > appointment is in about three weeks and I actually asked my mother to > > come with me so we can actually get answers to all my questions and > > also to make sure she gives me a estrogen free birth control since > > everything I have read says that estrogen promotes the fibroid to > > grow. > > > > Camper > > -- > > " The alternative is unthinkable. " (Methos) > > Love of Methos/Adam Pierson for eternity!!! > > > > PWFC, Highlander Clan, ROG-L, ADLFC, HLFIC, Methos-Scrolls, Duncan_Methos > > AIM:Bonthevamp > > Camper@c... > > website: www.camper65.com > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2001 Report Share Posted December 6, 2001 Camper, I also am concerned for you. This seems like so much to endure. I would be concerned about birth control pills because it seems like they can make symptoms worse (why my gynecologist would not put me on them). Perhaps a second opinion would be in order if you aren't getting the information from your doctor that you need. Robyn A. New person here Hello everyone, Long message ahead. I am new to the group and have been having nothing but trouble for the last year. For about the last year my periods have been so out of control and getting worse every single month. I cannot even go anywhere but work and home for about the first 5 to 7 days of my period, am constantly having to change both the tampon and pad every 1 1/4 hours. For the 9 - 10 days that my period lasts, I am usually living on three to four times the recommended doses of first Advil, then to Motrin and last Aleve until last month when I was put on Vioxx which seem to handle the cramps. Of course, I won't know how it truly handles the vice like pain that last for 48 hours straight every month which starts in the middle of the night and wakes me up and I end up screaming and crying for about two hours until the medications finally take effect. I will see in about two to three days how that works since I am now taking 50 mg of Vioxx for it and my period should start this weekend. The doctor has put me on birth control pills to try to make the bleeding lighter, I will see if it does anything in a few days when my period should start. But she has not done anything to shrink the fibroid or the uterus which is enlarged due to the fibroid. They also found on the ultrasound some liquid around that area but she said that would be from the ovulation which leaves some liquid, but my ultrasound was taken two - four days before my period so I thought there should not be anything from that left. On top of all this, I am also having to see a Gastroenterologist because my bowels seem to be all screwed up and that is causing me other problems. I want her to see if this is actually all related or am I just falling apart. By the way, I am 36 years old, plan on not having my own children, but adopting older children instead (since I was 14 1/2 years old I knew I was never having children, don't have any patience for babies or infants, and never will) but of course I feel like my doctor has not listened to me about this because she keeps ignoring my questioning about what we can do to get the fibroid and uterus shrunk. My next appointment is in about three weeks and I actually asked my mother to come with me so we can actually get answers to all my questions and also to make sure she gives me a estrogen free birth control since everything I have read says that estrogen promotes the fibroid to grow. Camper -- " The alternative is unthinkable. " (Methos) Love of Methos/Adam Pierson for eternity!!! PWFC, Highlander Clan, ROG-L, ADLFC, HLFIC, Methos-Scrolls, Duncan_Methos AIM:Bonthevamp Camper@... website: www.camper65.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2001 Report Share Posted December 6, 2001 Camper, You should insist on finding out where your fibroid is located in the uterus, how many you have, and what sizes they are, even if you have to see another doctor. Treatment options vary considerably based on the location of the uterus. If you only have the one fibroid, and it is submucosal (inside the uterus), you may be able to have it removed by hysteroscopic resection. This procedure is much less invasive than abdominal myo or hysterectomy. Some doctors like to combine it with a laparoscopy to look for and remove endometriosis and avoid perforating the uterus. Therese Re: New person here > Camper, > > Have you been with this physician a long time? > Is she primary care, gynecologist, other specialty? This doctor only about three months. In about the beginning of August I went and saw my regular doctor. She did blood testing and sent me for a ultrasound to see what was happening. They found a 33mm by 34mm by 32mm fibroid tumor on the backside of my uterus (at least that is what the ultrasound report said). She immediately recommended that I get to a gynecologist. So in September I saw the OBGYN. She did a biopsy of the uterus which showed nothing. She then put me on Vioxx (which we had to use samples while fighting the insurance company to cover it) and then this past month put me on birth control pills. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2001 Report Share Posted December 6, 2001 Camper, You should insist on finding out where your fibroid is located in the uterus, how many you have, and what sizes they are, even if you have to see another doctor. Treatment options vary considerably based on the location of the uterus. If you only have the one fibroid, and it is submucosal (inside the uterus), you may be able to have it removed by hysteroscopic resection. This procedure is much less invasive than abdominal myo or hysterectomy. Some doctors like to combine it with a laparoscopy to look for and remove endometriosis and avoid perforating the uterus. Therese Re: New person here > Camper, > > Have you been with this physician a long time? > Is she primary care, gynecologist, other specialty? This doctor only about three months. In about the beginning of August I went and saw my regular doctor. She did blood testing and sent me for a ultrasound to see what was happening. They found a 33mm by 34mm by 32mm fibroid tumor on the backside of my uterus (at least that is what the ultrasound report said). She immediately recommended that I get to a gynecologist. So in September I saw the OBGYN. She did a biopsy of the uterus which showed nothing. She then put me on Vioxx (which we had to use samples while fighting the insurance company to cover it) and then this past month put me on birth control pills. Quote Link to comment Share on other sites More sharing options...
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