Guest guest Posted September 12, 2000 Report Share Posted September 12, 2000 Marie, I agree, based on my limited frame of reference. The doctors I have met are all great. Although being in West Texas is practically living in another state. Houston is almost 600 miles away, and Dallas is about 350. --- Marie Drew wrote: > , I have to say if you have to have NF, Texas > is sure one of the best > states to be in! I think it all had to do with Dr. > Riccardi's initial > interest, but there is a lot more known about NF in > Texas than in Pa.! Marie > Re: Re: NF Clinic/Houston > > > >Donna, > > > >Thanks for the info. I got a packet from the Texas > NF > >Foundation yesterday (we had filled out a card > while > >at the dr. in Houston, to be put on the mailing > list). > > It said there are now SIX NF clinics in Texas, all > >with dr's from different fields with experience > >treating NF (supposedly, haha). They are in > Houston, > >Dallas, San , Austin, and Temple (I know > that's > >only five, but there are 2 in either Dallas or > >Houston). > > > >We want to take Reagan to the best one possible, > >regardless of location. I am grateful to you for > >telling me this! It is something we can ask when > we > >call the NF clinic in Dallas. > > > >Best wishes for you and your son, > > > > > > > >--- donnahut@... wrote: > >> , > >> > >> My son went to the NF Clinic in Dallas and had > >> surgery when he was 5. The > >> doctor was great and they were even able to get > all > >> the tumor. We were going > >> there for his yearly checkups until I was told > about > >> the clinic at MD > >> in Houston. In Dallas they told us that > he > >> did not have ANY tumors, > >> that his scans were clear. I decided to try this > >> clinic in Houston and after > >> our initial visit and EXTENSIVE testing they > found > >> out he had bilateral AN's > >> and even a couple in his spine. His doctor in > >> Houston said they had a > >> different type of MRI, that it took images from > the > >> top of his head towards > >> his toes, and the MRI in Dallas took images like > >> from the front of his face > >> toward the back of his head. I don't know if I > have > >> described that good or > >> not! > >> > >> I am not trying to scare you away from the > doctors > >> in Dallas, they were real > >> good with Lee and did a WONDERFUL job on his > tumor > >> removal, I just thought > >> you would like to know this. > >> > >> Donna H. > >> > >> > >> > > > > > >__________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2000 Report Share Posted September 12, 2000 Marie, I agree, based on my limited frame of reference. The doctors I have met are all great. Although being in West Texas is practically living in another state. Houston is almost 600 miles away, and Dallas is about 350. --- Marie Drew wrote: > , I have to say if you have to have NF, Texas > is sure one of the best > states to be in! I think it all had to do with Dr. > Riccardi's initial > interest, but there is a lot more known about NF in > Texas than in Pa.! Marie > Re: Re: NF Clinic/Houston > > > >Donna, > > > >Thanks for the info. I got a packet from the Texas > NF > >Foundation yesterday (we had filled out a card > while > >at the dr. in Houston, to be put on the mailing > list). > > It said there are now SIX NF clinics in Texas, all > >with dr's from different fields with experience > >treating NF (supposedly, haha). They are in > Houston, > >Dallas, San , Austin, and Temple (I know > that's > >only five, but there are 2 in either Dallas or > >Houston). > > > >We want to take Reagan to the best one possible, > >regardless of location. I am grateful to you for > >telling me this! It is something we can ask when > we > >call the NF clinic in Dallas. > > > >Best wishes for you and your son, > > > > > > > >--- donnahut@... wrote: > >> , > >> > >> My son went to the NF Clinic in Dallas and had > >> surgery when he was 5. The > >> doctor was great and they were even able to get > all > >> the tumor. We were going > >> there for his yearly checkups until I was told > about > >> the clinic at MD > >> in Houston. In Dallas they told us that > he > >> did not have ANY tumors, > >> that his scans were clear. I decided to try this > >> clinic in Houston and after > >> our initial visit and EXTENSIVE testing they > found > >> out he had bilateral AN's > >> and even a couple in his spine. His doctor in > >> Houston said they had a > >> different type of MRI, that it took images from > the > >> top of his head towards > >> his toes, and the MRI in Dallas took images like > >> from the front of his face > >> toward the back of his head. I don't know if I > have > >> described that good or > >> not! > >> > >> I am not trying to scare you away from the > doctors > >> in Dallas, they were real > >> good with Lee and did a WONDERFUL job on his > tumor > >> removal, I just thought > >> you would like to know this. > >> > >> Donna H. > >> > >> > >> > > > > > >__________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2000 Report Share Posted September 12, 2000 Marie, I agree, based on my limited frame of reference. The doctors I have met are all great. Although being in West Texas is practically living in another state. Houston is almost 600 miles away, and Dallas is about 350. --- Marie Drew wrote: > , I have to say if you have to have NF, Texas > is sure one of the best > states to be in! I think it all had to do with Dr. > Riccardi's initial > interest, but there is a lot more known about NF in > Texas than in Pa.! Marie > Re: Re: NF Clinic/Houston > > > >Donna, > > > >Thanks for the info. I got a packet from the Texas > NF > >Foundation yesterday (we had filled out a card > while > >at the dr. in Houston, to be put on the mailing > list). > > It said there are now SIX NF clinics in Texas, all > >with dr's from different fields with experience > >treating NF (supposedly, haha). They are in > Houston, > >Dallas, San , Austin, and Temple (I know > that's > >only five, but there are 2 in either Dallas or > >Houston). > > > >We want to take Reagan to the best one possible, > >regardless of location. I am grateful to you for > >telling me this! It is something we can ask when > we > >call the NF clinic in Dallas. > > > >Best wishes for you and your son, > > > > > > > >--- donnahut@... wrote: > >> , > >> > >> My son went to the NF Clinic in Dallas and had > >> surgery when he was 5. The > >> doctor was great and they were even able to get > all > >> the tumor. We were going > >> there for his yearly checkups until I was told > about > >> the clinic at MD > >> in Houston. In Dallas they told us that > he > >> did not have ANY tumors, > >> that his scans were clear. I decided to try this > >> clinic in Houston and after > >> our initial visit and EXTENSIVE testing they > found > >> out he had bilateral AN's > >> and even a couple in his spine. His doctor in > >> Houston said they had a > >> different type of MRI, that it took images from > the > >> top of his head towards > >> his toes, and the MRI in Dallas took images like > >> from the front of his face > >> toward the back of his head. I don't know if I > have > >> described that good or > >> not! > >> > >> I am not trying to scare you away from the > doctors > >> in Dallas, they were real > >> good with Lee and did a WONDERFUL job on his > tumor > >> removal, I just thought > >> you would like to know this. > >> > >> Donna H. > >> > >> > >> > > > > > >__________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
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