Guest guest Posted October 2, 2002 Report Share Posted October 2, 2002 : have you tried the site http://www.909shot.com There is a big conference in Washington coming up in Nov. which will release more published information , in general, look for any references to Wakefield's studies. ANN GLOYN, DB and Special Education Specialist Teacher maryechick12@... wrote: > I need all the info I can get on this one ..I have been trying to get > the pedatriction to split them up they say they wont unless I can get > them some proof of the problems with it ........I already told them I > would just go to a differnt doctor if they wont split it up ..Thanks for > any help .. > > http://community.webtv.net/maryechick12/ > http://community.webtv.net/maryechick12/pets > > > Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter) > please contact marion@... or visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > 6th International CHARGE Syndrome Conference, Cleveland, Ohio, > July 25-27, 2003. Information will be available at our website > www.chargesyndrome.org or by calling 1-. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2002 Report Share Posted October 2, 2002 , I'm dealing with the same problem. I've been calling and calling Merk (the maker) to even get the single doses but they aren't available. I have one week left before the dr apt to argue my case again. I have an absolutely fantastic pediatrician. We only disagree about vaccines. I want to break this one up. HELP everyone, do you know how I can get the singles? Theresa (mom to 15 months) maryechick12@... wrote: > I need all the info I can get on this one ..I > have been trying to get > the pedatriction to split them up they say > they wont unless I can get > them some proof of the problems with it > ........I already told them I > would just go to a differnt doctor if they > wont split it up ..Thanks for > any help .. > > > ttp://community.webtv.net/maryechick12/ > > http://community.webtv.net/maryechick12/pets > > > Membership of this email support groups does > not constitute membership in the CHARGE > Syndrome Foundation. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the > newsletter) > please contact marion@... or > visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > 6th International CHARGE Syndrome Conference, > Cleveland, Ohio, > July 25-27, 2003. Information will be > available at our website > www.chargesyndrome.org or by calling > 1-. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2002 Report Share Posted October 2, 2002 , I'm dealing with the same problem. I've been calling and calling Merk (the maker) to even get the single doses but they aren't available. I have one week left before the dr apt to argue my case again. I have an absolutely fantastic pediatrician. We only disagree about vaccines. I want to break this one up. HELP everyone, do you know how I can get the singles? Theresa (mom to 15 months) maryechick12@... wrote: > I need all the info I can get on this one ..I > have been trying to get > the pedatriction to split them up they say > they wont unless I can get > them some proof of the problems with it > ........I already told them I > would just go to a differnt doctor if they > wont split it up ..Thanks for > any help .. > > > ttp://community.webtv.net/maryechick12/ > > http://community.webtv.net/maryechick12/pets > > > Membership of this email support groups does > not constitute membership in the CHARGE > Syndrome Foundation. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the > newsletter) > please contact marion@... or > visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > 6th International CHARGE Syndrome Conference, > Cleveland, Ohio, > July 25-27, 2003. Information will be > available at our website > www.chargesyndrome.org or by calling > 1-. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2002 Report Share Posted October 2, 2002 , I'm dealing with the same problem. I've been calling and calling Merk (the maker) to even get the single doses but they aren't available. I have one week left before the dr apt to argue my case again. I have an absolutely fantastic pediatrician. We only disagree about vaccines. I want to break this one up. HELP everyone, do you know how I can get the singles? Theresa (mom to 15 months) maryechick12@... wrote: > I need all the info I can get on this one ..I > have been trying to get > the pedatriction to split them up they say > they wont unless I can get > them some proof of the problems with it > ........I already told them I > would just go to a differnt doctor if they > wont split it up ..Thanks for > any help .. > > > ttp://community.webtv.net/maryechick12/ > > http://community.webtv.net/maryechick12/pets > > > Membership of this email support groups does > not constitute membership in the CHARGE > Syndrome Foundation. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the > newsletter) > please contact marion@... or > visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > 6th International CHARGE Syndrome Conference, > Cleveland, Ohio, > July 25-27, 2003. Information will be > available at our website > www.chargesyndrome.org or by calling > 1-. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2002 Report Share Posted October 2, 2002 If you live in the U.S. they DO NOT have to have these vacines till the go to school do not let them tell you differnt ....... http://community.webtv.net/maryechick12/ http://community.webtv.net/maryechick12/pets Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2002 Report Share Posted October 2, 2002 If you live in the U.S. they DO NOT have to have these vacines till the go to school do not let them tell you differnt ....... http://community.webtv.net/maryechick12/ http://community.webtv.net/maryechick12/pets Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2002 Report Share Posted October 2, 2002 If you live in the U.S. they DO NOT have to have these vacines till the go to school do not let them tell you differnt ....... http://community.webtv.net/maryechick12/ http://community.webtv.net/maryechick12/pets Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2002 Report Share Posted October 2, 2002 Say, " I am happy to vaccinate my child, when the vaccination can be provided in separate doses. " If he tries to sway you, calmly repeat your phrase, same words, same calm voice. If he presses urgency, then you can say, " Yes I agree this is urgent, so I thank you for doing what you can to quickly secure the single dose vaccines. " (Unfortunately I don't think the same logic will work with getting the insurance company to pay, for that you must document the medical need) Kim Lauger ---------- > >To: CHARGE >Subject: Re: MMR shot..... >Date: Tue, Oct 1, 2002, 5:29 PM > > , > > I'm dealing with the same problem. I've been > calling and calling Merk (the maker) to even get > the single doses but they aren't available. I > have one week left before the dr apt to argue my > case again. I have an absolutely fantastic > pediatrician. We only disagree about vaccines. I > want to break this one up. HELP everyone, do you > know how I can get the singles? > > Theresa (mom to 15 months) > > maryechick12@... wrote: > >> I need all the info I can get on this one ..I >> have been trying to get >> the pedatriction to split them up they say >> they wont unless I can get >> them some proof of the problems with it >> ........I already told them I >> would just go to a differnt doctor if they >> wont split it up ..Thanks for >> any help .. >> >> >> ttp://community.webtv.net/maryechick12/ >> >> http://community.webtv.net/maryechick12/pets >> >> >> Membership of this email support groups does >> not constitute membership in the CHARGE >> Syndrome Foundation. >> For information about the CHARGE Syndrome >> Foundation or to become a member (and get the >> newsletter) >> please contact marion@... or >> visit >> the CHARGE Syndrome Foundation web page >> at http://www.chargesyndrome.org >> 6th International CHARGE Syndrome Conference, >> Cleveland, Ohio, >> July 25-27, 2003. Information will be >> available at our website >> www.chargesyndrome.org or by calling >> 1-. >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2002 Report Share Posted October 2, 2002 Say, " I am happy to vaccinate my child, when the vaccination can be provided in separate doses. " If he tries to sway you, calmly repeat your phrase, same words, same calm voice. If he presses urgency, then you can say, " Yes I agree this is urgent, so I thank you for doing what you can to quickly secure the single dose vaccines. " (Unfortunately I don't think the same logic will work with getting the insurance company to pay, for that you must document the medical need) Kim Lauger ---------- > >To: CHARGE >Subject: Re: MMR shot..... >Date: Tue, Oct 1, 2002, 5:29 PM > > , > > I'm dealing with the same problem. I've been > calling and calling Merk (the maker) to even get > the single doses but they aren't available. I > have one week left before the dr apt to argue my > case again. I have an absolutely fantastic > pediatrician. We only disagree about vaccines. I > want to break this one up. HELP everyone, do you > know how I can get the singles? > > Theresa (mom to 15 months) > > maryechick12@... wrote: > >> I need all the info I can get on this one ..I >> have been trying to get >> the pedatriction to split them up they say >> they wont unless I can get >> them some proof of the problems with it >> ........I already told them I >> would just go to a differnt doctor if they >> wont split it up ..Thanks for >> any help .. >> >> >> ttp://community.webtv.net/maryechick12/ >> >> http://community.webtv.net/maryechick12/pets >> >> >> Membership of this email support groups does >> not constitute membership in the CHARGE >> Syndrome Foundation. >> For information about the CHARGE Syndrome >> Foundation or to become a member (and get the >> newsletter) >> please contact marion@... or >> visit >> the CHARGE Syndrome Foundation web page >> at http://www.chargesyndrome.org >> 6th International CHARGE Syndrome Conference, >> Cleveland, Ohio, >> July 25-27, 2003. Information will be >> available at our website >> www.chargesyndrome.org or by calling >> 1-. >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2002 Report Share Posted October 2, 2002 Say, " I am happy to vaccinate my child, when the vaccination can be provided in separate doses. " If he tries to sway you, calmly repeat your phrase, same words, same calm voice. If he presses urgency, then you can say, " Yes I agree this is urgent, so I thank you for doing what you can to quickly secure the single dose vaccines. " (Unfortunately I don't think the same logic will work with getting the insurance company to pay, for that you must document the medical need) Kim Lauger ---------- > >To: CHARGE >Subject: Re: MMR shot..... >Date: Tue, Oct 1, 2002, 5:29 PM > > , > > I'm dealing with the same problem. I've been > calling and calling Merk (the maker) to even get > the single doses but they aren't available. I > have one week left before the dr apt to argue my > case again. I have an absolutely fantastic > pediatrician. We only disagree about vaccines. I > want to break this one up. HELP everyone, do you > know how I can get the singles? > > Theresa (mom to 15 months) > > maryechick12@... wrote: > >> I need all the info I can get on this one ..I >> have been trying to get >> the pedatriction to split them up they say >> they wont unless I can get >> them some proof of the problems with it >> ........I already told them I >> would just go to a differnt doctor if they >> wont split it up ..Thanks for >> any help .. >> >> >> ttp://community.webtv.net/maryechick12/ >> >> http://community.webtv.net/maryechick12/pets >> >> >> Membership of this email support groups does >> not constitute membership in the CHARGE >> Syndrome Foundation. >> For information about the CHARGE Syndrome >> Foundation or to become a member (and get the >> newsletter) >> please contact marion@... or >> visit >> the CHARGE Syndrome Foundation web page >> at http://www.chargesyndrome.org >> 6th International CHARGE Syndrome Conference, >> Cleveland, Ohio, >> July 25-27, 2003. Information will be >> available at our website >> www.chargesyndrome.org or by calling >> 1-. >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2002 Report Share Posted October 2, 2002 and to add to what just said, there are exemptions once one is school aged. There are medical exemptions and philosophical and religious waivers for those for whom they apply. There is a lot of controversy about vaccines. Dr. CAVE has written a format that she believes is much safer than standard protocol. The shots are separated and given at different intervals. She does not approve vaccines with thimerosol. Thimerosol, mercury preservative, is suspect in cases of autism. Check to be sure that any vaccine your child receives does not have this neurotoxin. She states she does not have ANYcases of kids getting autism after following her protocol, and she has treated many, many kids. Some people believe the vaccines should be given at longer intervals, and some believe they should not be given at all. It is wise to research carefully any decisions that are made. There are CHARGE kids with immune dysfunctions that are documented, and there are CHARGE kids where immune dysfunction seems present but it is not documented. If your child has a reaction to a vaccine or has seizure disorder or otherwise seems immune compromised, it is smart to carefully investigate all information on this topic. Our middle child, who does not have CHARGE, had a serious reaction to his 4 month shots. Because of that I was extremely cautious in having Kendra vaccinated. It was difficult to find a good time to get the vaccinations in as she was always either sick, on antibiotics or on steroid medications. She did get all her shots, but it was not easy. These are difficult questions with no easy answers. I think it is in everyone's best interest to become as educated as possible on the topic of vaccinations. For information on the DAN! conferences that discusses this and other topics, go to: www.DAN2002.com or visit the Autism Research Institute webpage. The San Diego Defeat Autism Now! (DAN!) conference is in a few weeks. While I don't know if Kendra's vaccines are responsible for the autism, I do strongly suspect they are related. I believe there are factors related to the immune system in CHARGE that have not been identified or studied yet. Mom to Kendra, and Camille At 09:33 PM 10/1/02 -0400, you wrote: >If you live in the U.S. they DO NOT have to have these vacines till the >go to school do not let them tell you differnt ....... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2002 Report Share Posted October 2, 2002 Kennedy's former doctor was the one who suggested splitting them up, she doesn't like to give them together.... Good luck! ~ Weir Mom to Kennedy, 4yr old CHARGEr, 13, 11, and wife to Graeme New Brunswick, Canada Visit the Weir Website: http://personal.nbnet.nb.ca/gweir ICQ# 1426476 Re: MMR shot..... : have you tried the site http://www.909shot.com There is a big conference in Washington coming up in Nov. which will release more published information , in general, look for any references to Wakefield's studies. ANN GLOYN, DB and Special Education Specialist Teacher maryechick12@... wrote: > I need all the info I can get on this one ..I have been trying to get > the pedatriction to split them up they say they wont unless I can get > them some proof of the problems with it ........I already told them I > would just go to a differnt doctor if they wont split it up ..Thanks for > any help .. > > http://community.webtv.net/maryechick12/ > http://community.webtv.net/maryechick12/pets > > > Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter) > please contact marion@... or visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > 6th International CHARGE Syndrome Conference, Cleveland, Ohio, > July 25-27, 2003. Information will be available at our website > www.chargesyndrome.org or by calling 1-. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2002 Report Share Posted October 2, 2002 Kennedy's former doctor was the one who suggested splitting them up, she doesn't like to give them together.... Good luck! ~ Weir Mom to Kennedy, 4yr old CHARGEr, 13, 11, and wife to Graeme New Brunswick, Canada Visit the Weir Website: http://personal.nbnet.nb.ca/gweir ICQ# 1426476 Re: MMR shot..... : have you tried the site http://www.909shot.com There is a big conference in Washington coming up in Nov. which will release more published information , in general, look for any references to Wakefield's studies. ANN GLOYN, DB and Special Education Specialist Teacher maryechick12@... wrote: > I need all the info I can get on this one ..I have been trying to get > the pedatriction to split them up they say they wont unless I can get > them some proof of the problems with it ........I already told them I > would just go to a differnt doctor if they wont split it up ..Thanks for > any help .. > > http://community.webtv.net/maryechick12/ > http://community.webtv.net/maryechick12/pets > > > Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter) > please contact marion@... or visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > 6th International CHARGE Syndrome Conference, Cleveland, Ohio, > July 25-27, 2003. Information will be available at our website > www.chargesyndrome.org or by calling 1-. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2002 Report Share Posted October 2, 2002 Kennedy's former doctor was the one who suggested splitting them up, she doesn't like to give them together.... Good luck! ~ Weir Mom to Kennedy, 4yr old CHARGEr, 13, 11, and wife to Graeme New Brunswick, Canada Visit the Weir Website: http://personal.nbnet.nb.ca/gweir ICQ# 1426476 Re: MMR shot..... : have you tried the site http://www.909shot.com There is a big conference in Washington coming up in Nov. which will release more published information , in general, look for any references to Wakefield's studies. ANN GLOYN, DB and Special Education Specialist Teacher maryechick12@... wrote: > I need all the info I can get on this one ..I have been trying to get > the pedatriction to split them up they say they wont unless I can get > them some proof of the problems with it ........I already told them I > would just go to a differnt doctor if they wont split it up ..Thanks for > any help .. > > http://community.webtv.net/maryechick12/ > http://community.webtv.net/maryechick12/pets > > > Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter) > please contact marion@... or visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > 6th International CHARGE Syndrome Conference, Cleveland, Ohio, > July 25-27, 2003. Information will be available at our website > www.chargesyndrome.org or by calling 1-. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2002 Report Share Posted October 2, 2002 , You are the person I was looking for to help with my " project " I need all the information I can get on this so I can bombard this jerk of a doctor with it ...... thanks (by the way yes we are looking for a new pediatrition any one from central new york?) http://community.webtv.net/maryechick12/ http://community.webtv.net/maryechick12/pets Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2002 Report Share Posted October 2, 2002 , You are the person I was looking for to help with my " project " I need all the information I can get on this so I can bombard this jerk of a doctor with it ...... thanks (by the way yes we are looking for a new pediatrition any one from central new york?) http://community.webtv.net/maryechick12/ http://community.webtv.net/maryechick12/pets Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2002 Report Share Posted October 2, 2002 , You are the person I was looking for to help with my " project " I need all the information I can get on this so I can bombard this jerk of a doctor with it ...... thanks (by the way yes we are looking for a new pediatrition any one from central new york?) http://community.webtv.net/maryechick12/ http://community.webtv.net/maryechick12/pets Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2002 Report Share Posted October 2, 2002 , You are the person I was looking for to help with my " project " I need all the information I can get on this so I can bombard this jerk of a doctor with it ...... thanks (by the way yes we are looking for a new pediatrition any one from central new york?) http://community.webtv.net/maryechick12/ http://community.webtv.net/maryechick12/pets Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2002 Report Share Posted October 2, 2002 Maybe I should move to Canada? LOL http://community.webtv.net/maryechick12/ http://community.webtv.net/maryechick12/pets Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2002 Report Share Posted October 2, 2002 Maybe I should move to Canada? LOL http://community.webtv.net/maryechick12/ http://community.webtv.net/maryechick12/pets Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2002 Report Share Posted October 2, 2002 Maybe I should move to Canada? LOL http://community.webtv.net/maryechick12/ http://community.webtv.net/maryechick12/pets Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2002 Report Share Posted October 2, 2002 It is beautiful up here....and we have medicare.... ~ Weir Mom to Kennedy, 4yr old CHARGEr, 13, 11, and wife to Graeme New Brunswick, Canada Visit the Weir Website: http://personal.nbnet.nb.ca/gweir ICQ# 1426476 Re: MMR shot..... Maybe I should move to Canada? LOL http://community.webtv.net/maryechick12/ http://community.webtv.net/maryechick12/pets Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2002 Report Share Posted October 5, 2002 my mom is here and I am poor so we get medicaid thanks for the offer though lol http://community.webtv.net/maryechick12/ http://community.webtv.net/maryechick12/pets Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2002 Report Share Posted October 5, 2002 my mom is here and I am poor so we get medicaid thanks for the offer though lol http://community.webtv.net/maryechick12/ http://community.webtv.net/maryechick12/pets Quote Link to comment Share on other sites More sharing options...
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