Guest guest Posted July 18, 2003 Report Share Posted July 18, 2003 Hi Janet, Nice to meet you. Don't you just hate the sweating. Depending on how much Methadone and Morphine you take, it could be the cause of your sweating. When I was on alot of morphine I used to sweat profusely. I hated it. But now I am down to 2 l5mg pills a day of Morphine and hardly any sweating. I do have to tell you though that about 6 mos. ago I started with menopause and the sweating was terrible. I searched the internet for something to take that was not hormone replacement. I found Black Cohash. So I went to Walmart and found some. I take it in the morning and evening and after about a month the sweats were gone. I don't know if this would help you or not. If I may ask how old are you? Cause if you are around 45 or older you may be going through Menopause also. This really affects the RSD big time. Take care Hugs, babs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2003 Report Share Posted July 18, 2003 Hi Janet, Nice to meet you. Don't you just hate the sweating. Depending on how much Methadone and Morphine you take, it could be the cause of your sweating. When I was on alot of morphine I used to sweat profusely. I hated it. But now I am down to 2 l5mg pills a day of Morphine and hardly any sweating. I do have to tell you though that about 6 mos. ago I started with menopause and the sweating was terrible. I searched the internet for something to take that was not hormone replacement. I found Black Cohash. So I went to Walmart and found some. I take it in the morning and evening and after about a month the sweats were gone. I don't know if this would help you or not. If I may ask how old are you? Cause if you are around 45 or older you may be going through Menopause also. This really affects the RSD big time. Take care Hugs, babs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2003 Report Share Posted July 18, 2003 Hi, Thanks for the info Babs on the sweating, I will go to Walmart tomorrow to see if I can find the black cohash, or whatever that was. Ha! By the way I am 41 years old, I had a hysterectomy in 1994, and I take premarin 1.25 mg daily for the sweating now. My doctor thought maybe this would help alittle with the sweating, so far it hasn't done anything for me. I have RSD in both my legs and feet and lower back. I was hurt at my job, I pity anyone who has this horrible disease, up until I was diagnosed I had never heard of a disease like this. I also take Methadone 40 mg tablets ( 5 daily) Morphine 15 mg tablets 3 times daily. This is why my doctor wantes me to have the Morphine pump, but like I said before I don't have a spleen and cannot fight infections. I had the Spinal Cord Stimulator put in the year of 2000, and had a terrible infection. This is why I am scared of the pump. But I can't make it without the pain meds, I don't know how others don't take the pain meds, I would lose my mind if I didn't take them. I feel sorry for the ones who their doctors won't give them pain meds, obviously their doctor has no idea what RSD feels like. If they themselves had it, you can bet they would have the meds themselves you can count on this! Thanks for the info, also I am from Southern Illinois does anyone know of a support group around here, I am not far from St. Louis, MO. Maybe an hour or so. I am so glad you e-mailed me, as I don't know of anyone who has this disease. Noone around here knows anything about it. Thanks for writing me back. See ya! Janettinstime@... wrote: Hi Janet, Nice to meet you. Don't you just hate the sweating.Depending on how much Methadone and Morphine you take, it could be thecause of your sweating. When I was on alot of morphine I used to sweatprofusely. I hated it. But now I am down to 2 l5mg pills a day ofMorphine and hardly any sweating. I do have to tell you though thatabout 6 mos. ago I started with menopause and the sweating was terrible.I searched the internet for something to take that was not hormonereplacement.I found Black Cohash. So I went to Walmart and found some. I take itin the morning and evening and after about a month the sweats were gone.I don't know if this would help you or not. If I may ask how old areyou? Cause if you are around 45 or older you may be going throughMenopause also. This really affects the RSD big time.Take care Hugs,babs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2003 Report Share Posted July 18, 2003 Hi, Thanks for the info Babs on the sweating, I will go to Walmart tomorrow to see if I can find the black cohash, or whatever that was. Ha! By the way I am 41 years old, I had a hysterectomy in 1994, and I take premarin 1.25 mg daily for the sweating now. My doctor thought maybe this would help alittle with the sweating, so far it hasn't done anything for me. I have RSD in both my legs and feet and lower back. I was hurt at my job, I pity anyone who has this horrible disease, up until I was diagnosed I had never heard of a disease like this. I also take Methadone 40 mg tablets ( 5 daily) Morphine 15 mg tablets 3 times daily. This is why my doctor wantes me to have the Morphine pump, but like I said before I don't have a spleen and cannot fight infections. I had the Spinal Cord Stimulator put in the year of 2000, and had a terrible infection. This is why I am scared of the pump. But I can't make it without the pain meds, I don't know how others don't take the pain meds, I would lose my mind if I didn't take them. I feel sorry for the ones who their doctors won't give them pain meds, obviously their doctor has no idea what RSD feels like. If they themselves had it, you can bet they would have the meds themselves you can count on this! Thanks for the info, also I am from Southern Illinois does anyone know of a support group around here, I am not far from St. Louis, MO. Maybe an hour or so. I am so glad you e-mailed me, as I don't know of anyone who has this disease. Noone around here knows anything about it. Thanks for writing me back. See ya! Janettinstime@... wrote: Hi Janet, Nice to meet you. Don't you just hate the sweating.Depending on how much Methadone and Morphine you take, it could be thecause of your sweating. When I was on alot of morphine I used to sweatprofusely. I hated it. But now I am down to 2 l5mg pills a day ofMorphine and hardly any sweating. I do have to tell you though thatabout 6 mos. ago I started with menopause and the sweating was terrible.I searched the internet for something to take that was not hormonereplacement.I found Black Cohash. So I went to Walmart and found some. I take itin the morning and evening and after about a month the sweats were gone.I don't know if this would help you or not. If I may ask how old areyou? Cause if you are around 45 or older you may be going throughMenopause also. This really affects the RSD big time.Take care Hugs,babs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2003 Report Share Posted July 18, 2003 Hi Janet, Is Premarin for hormone therapy or is it an over the counter med? Just wondering. I have heard of it but just not sure what it is. Here is the name, exactly, as it is on the box for what I told you to get at Walmart; Spring Valley Black Cohosh Menopause Complex - you will find this in with the vitamins. Runs about $8.50 in my area. Of course prices may vary. This lasts for 30 days. Not too bad for no sweating. I used to sweat just sitting and watching tv. I just could not stand it anymore. In everything that I read about menopause this Black Cohosh was suggested as one of the supplements that helped. So I figured I would give it a try. I did not want to go on hormone therapy because of having RSD. WE have enough problems without getting more. But that is just my opinion. I hope this helps you. YOu are on alot of pain meds which could be contributing to the sweating. Let me know how you do with this Black Cohosh, ok. I am wondering how all these people who are not on pain meds survive with this disease too. I do know people who are taking Neurontin and don't take pain meds, but not too many. Has your dr ever put you on anti-depressants? I have had RSD for 23 years and it is full body and my dr put me on anti-depressants in October of last year for the first time. I have to say my mood is alot better and I don't seem to mind the stress of having RSD. I take three capsules of Effexor. Sometimes with taking anti-depressants we can lower the amount of pain meds we are taking. Also Methadone tends to make people sweat more too. Take care and have a nice day tomorrow. Hugs, babs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2003 Report Share Posted July 18, 2003 Hi Janet, Is Premarin for hormone therapy or is it an over the counter med? Just wondering. I have heard of it but just not sure what it is. Here is the name, exactly, as it is on the box for what I told you to get at Walmart; Spring Valley Black Cohosh Menopause Complex - you will find this in with the vitamins. Runs about $8.50 in my area. Of course prices may vary. This lasts for 30 days. Not too bad for no sweating. I used to sweat just sitting and watching tv. I just could not stand it anymore. In everything that I read about menopause this Black Cohosh was suggested as one of the supplements that helped. So I figured I would give it a try. I did not want to go on hormone therapy because of having RSD. WE have enough problems without getting more. But that is just my opinion. I hope this helps you. YOu are on alot of pain meds which could be contributing to the sweating. Let me know how you do with this Black Cohosh, ok. I am wondering how all these people who are not on pain meds survive with this disease too. I do know people who are taking Neurontin and don't take pain meds, but not too many. Has your dr ever put you on anti-depressants? I have had RSD for 23 years and it is full body and my dr put me on anti-depressants in October of last year for the first time. I have to say my mood is alot better and I don't seem to mind the stress of having RSD. I take three capsules of Effexor. Sometimes with taking anti-depressants we can lower the amount of pain meds we are taking. Also Methadone tends to make people sweat more too. Take care and have a nice day tomorrow. Hugs, babs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2003 Report Share Posted July 28, 2003 There is a member of this group that does have a morphine pump, but isn't really able to reply very often. I'll check in on her and see if she'll be able to get online real quick and answer your questions for you though. Her name is Twila and she lives in Kansas. Tonia -- Re: Man am I unlucky Hi Janet, I have trouble with the electrical jolts also. THey havecalmed down over the years that I have had RSD. I have had RSD for 23years and it is full body.The SCS helps with those for me. I had no luck with pain pills helpingthe electrical jolts at all.I used to have the sweating too just from the RSD and then I startedwith menopause and the sweating got really bad. I take Black Cohosh forit now and I am much better. You can get it at Walmart. There are 30pills in a box,enough for a month, and you take one in the morning andone at bedtime. I don't have a morphine pump. Maybe there is someone here who has one.I do know alot of people who have them but I think it would be muchbetter if you talked to someone who has one. I will say this and thatis that most of the people that I know who have the morphine pump havegood relief from the pain of RSD. Of course it does not work foreveryone.Take care and have a good day.Hugs,babs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2004 Report Share Posted November 5, 2004 Jackie, thanks for the pep talk. I'm all through whining now. I guess I was just having a little pity party... Not so much because I had three gains in a row, because I deserved those. What I don't feel like I deserve is having to struggle with food issues ALL the time. And due to genetics, and a long family history of obesity, I will have to worry about food choices and portion sizes forever! See, there I go again with that negative attitude. I think we need to change our chapter's stuffed " helping hand " to a boot, because I needed a boot in the butt these past couple of weeks! (for those who don't know what the stuffed hand is... in our chapter, we have a stuffed glove, with " reminders " and encouragement written on it. Each week, it is given to a member who needs a " helping hand " . It was given to me this week.) (((hugs))) Janet > Come on Janet you can do it, you did it before and know your going to get > losing again. Some days we get in those slumps and they last longer than we > like, we have all been there. Look how far you have come now , don't give in > and have to do it all over again. We are going to have an attitude change > and get those fish flying at chapter. Remember the games Shirley has for you > to compete in??? You want to win don't you? Ok done with the pep talk will > be getting ready for bed now. Hope to see you lighter. > Hugs, > Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2004 Report Share Posted November 5, 2004 Jackie, thanks for the pep talk. I'm all through whining now. I guess I was just having a little pity party... Not so much because I had three gains in a row, because I deserved those. What I don't feel like I deserve is having to struggle with food issues ALL the time. And due to genetics, and a long family history of obesity, I will have to worry about food choices and portion sizes forever! See, there I go again with that negative attitude. I think we need to change our chapter's stuffed " helping hand " to a boot, because I needed a boot in the butt these past couple of weeks! (for those who don't know what the stuffed hand is... in our chapter, we have a stuffed glove, with " reminders " and encouragement written on it. Each week, it is given to a member who needs a " helping hand " . It was given to me this week.) (((hugs))) Janet > Come on Janet you can do it, you did it before and know your going to get > losing again. Some days we get in those slumps and they last longer than we > like, we have all been there. Look how far you have come now , don't give in > and have to do it all over again. We are going to have an attitude change > and get those fish flying at chapter. Remember the games Shirley has for you > to compete in??? You want to win don't you? Ok done with the pep talk will > be getting ready for bed now. Hope to see you lighter. > Hugs, > Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2004 Report Share Posted November 5, 2004 Jackie, thanks for the pep talk. I'm all through whining now. I guess I was just having a little pity party... Not so much because I had three gains in a row, because I deserved those. What I don't feel like I deserve is having to struggle with food issues ALL the time. And due to genetics, and a long family history of obesity, I will have to worry about food choices and portion sizes forever! See, there I go again with that negative attitude. I think we need to change our chapter's stuffed " helping hand " to a boot, because I needed a boot in the butt these past couple of weeks! (for those who don't know what the stuffed hand is... in our chapter, we have a stuffed glove, with " reminders " and encouragement written on it. Each week, it is given to a member who needs a " helping hand " . It was given to me this week.) (((hugs))) Janet > Come on Janet you can do it, you did it before and know your going to get > losing again. Some days we get in those slumps and they last longer than we > like, we have all been there. Look how far you have come now , don't give in > and have to do it all over again. We are going to have an attitude change > and get those fish flying at chapter. Remember the games Shirley has for you > to compete in??? You want to win don't you? Ok done with the pep talk will > be getting ready for bed now. Hope to see you lighter. > Hugs, > Jackie Quote Link to comment Share on other sites More sharing options...
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