Guest guest Posted April 1, 2005 Report Share Posted April 1, 2005 > Well, I am a 36y/o single mother of a 15y/o teenage daughter (who believes > she is 30 on most days) .. I have been 6yrs diagnosed with FMS-CFS/ME though > suffered the symptoms for nearly a decade, in addition to RLS, Sciatica, OA, > OAB, Depression, Chronic Insomnia, + + + + + all the side effects and > symptoms of these linked invisible illnesses. I have among other things, > Chronic Pain - around the clock, for which I am on the Duragesic Patch. I'm 37, and I'm in the process of adopting. I feel strange talking about this, because I'm not always in pain. Mostly I've had to learn my limits. I take an antidepressant, and try to get some gentle exercise. My doctors agree that I can parent. I work as a vet tech, and lift and restrain animals, so I am less worried about the physical aspects of parenting. I'm more worried about if I do have a bad day, where I feel tired or achy ( I tend to be truly flu-achy, not major pain achy. Major pain is maybe 2 or 3 times a year. Flu achy is once every few weeks.) I have no doubt I can provide care. I'm more worried about when my child is a bit older and mommy doesn't feel up to running around. Does this make sense? I have a friend who has MCS, and we've been talking about this. She's a great parent, and I'm hoping she can help me. But she suggested I seek out other people with fms and see what they do, how they learn to deal with FMS. -- Patti pattirobinson@... http://www.discoverytoyslink.com/pattirobinson Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2005 Report Share Posted April 1, 2005 Karis, I got so much out of your response to this question. I really do like your 3cs, and think I could benefit from this with my kids. I have 2 daughters with whom I survived the teen years, somehow- lol and pleased to say and to add encouragement to parents of teens that they do get better, (they are now 21 and 23 and doing great!). I am now a single parent and also have 2 children at home with me; a daughter age 11 going on 21 and an 8 yr old son who is diagnosed as psychotic. Needless to say I have my hands full and a large helping of stress! Thank you for your advice and your insight, I needed to hear a new perspective on parenting right about now Diane in Calikaris wrote: <snip> I'd love to hear from parents in how they have balanced their FMS andbeing a good parent.<snip> Hi ; Firstly ~ Welcome to the group. Well, I am a 36y/o single mother of a 15y/o teenage daughter (who believes she is 30 on most days) .. I have been 6yrs diagnosed with FMS-CFS/ME Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2005 Report Share Posted April 2, 2005 Hi ; The way I look at things is like this ... we could be 'normal' and have children, and our lives could be 'perfect' and we could be run over by a bus tomorrow and wheelchair bound - would that make us less qualified as parents? I don't believe so. I think that once you provide the necessities of life, give the child unconditional love and security and nurturing, then you are a great mom. And remember, children are resilient - they most certainly do understand - 'mommy is tired and not feeling very well right now, honey, maybe we can goto the park tomorrow'. It isn't the geographical location of the time is spent that they remember - its the quality of the time spent. Karis Re: Intro ~ > Well, I am a 36y/o single mother of a 15y/o teenage daughter (who believes> she is 30 on most days) .. I have been 6yrs diagnosed with FMS-CFS/ME though> suffered the symptoms for nearly a decade, in addition to RLS, Sciatica, OA,> OAB, Depression, Chronic Insomnia, + + + + + all the side effects and> symptoms of these linked invisible illnesses. I have among other things,> Chronic Pain - around the clock, for which I am on the Duragesic Patch.I'm 37, and I'm in the process of adopting. I feel strange talkingabout this, because I'm not always in pain. Mostly I've had to learnmy limits. I take an antidepressant, and try to get some gentleexercise. My doctors agree that I can parent. I work as a vet tech,and lift and restrain animals, so I am less worried about thephysical aspects of parenting. I'm more worried about if I do have abad day, where I feel tired or achy ( I tend to be truly flu-achy, notmajor pain achy. Major pain is maybe 2 or 3 times a year. Flu achy isonce every few weeks.) I have no doubt I can provide care. I'm moreworried about when my child is a bit older and mommy doesn't feel upto running around. Does this make sense?I have a friend who has MCS, and we've been talking about this. She'sa great parent, and I'm hoping she can help me. But she suggested Iseek out other people with fms and see what they do, how they learn todeal with FMS.-- Patti pattirobinson@...http://www.discoverytoyslink.com/pattirobinson1. While it is wonderful to share our experiences with everyone on the list as to what treatments do and don't work for us, pls always check with your dr. Some treatments are dangerous when given along with other meds as well as to certain health conditions or just dangerous in general.2. If you are in a difficult situation (doesn't matter what it is) pls don't be afraid to ask for help. It is the first step to trying to make that situation better.Have a nice day everyone. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2005 Report Share Posted April 2, 2005 Hi Diane; I am glad that my post reached you as well.. ... that is one thing that I love about these groups - never be afraid to ask a question - because rest assured that there are a handful of people (at least) needing the same answers. Glad you liked the 3C's .. feel free to use and apply them wherever necessary. lol (I have even caught myself self-chanting "3C's, 3C's, 3C's" lol) Karis Re: Intro ~ Karis, I got so much out of your response to this question. I really do like your 3cs, and think I could benefit from this with my kids. I have 2 daughters with whom I survived the teen years, somehow- lol and pleased to say and to add encouragement to parents of teens that they do get better, (they are now 21 and 23 and doing great!). I am now a single parent and also have 2 children at home with me; a daughter age 11 going on 21 and an 8 yr old son who is diagnosed as psychotic. Needless to say I have my hands full and a large helping of stress! Thank you for your advice and your insight, I needed to hear a new perspective on parenting right about now Diane in Calikaris wrote: <snip> I'd love to hear from parents in how they have balanced their FMS andbeing a good parent.<snip> Hi ; Firstly ~ Welcome to the group. Well, I am a 36y/o single mother of a 15y/o teenage daughter (who believes she is 30 on most days) .. I have been 6yrs diagnosed with FMS-CFS/ME 1. While it is wonderful to share our experiences with everyone on the list as to what treatments do and don't work for us, pls always check with your dr. Some treatments are dangerous when given along with other meds as well as to certain health conditions or just dangerous in general.2. If you are in a difficult situation (doesn't matter what it is) pls don't be afraid to ask for help. It is the first step to trying to make that situation better.Have a nice day everyone. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2005 Report Share Posted April 2, 2005 Hi Diane; I am glad that my post reached you as well.. ... that is one thing that I love about these groups - never be afraid to ask a question - because rest assured that there are a handful of people (at least) needing the same answers. Glad you liked the 3C's .. feel free to use and apply them wherever necessary. lol (I have even caught myself self-chanting "3C's, 3C's, 3C's" lol) Karis Re: Intro ~ Karis, I got so much out of your response to this question. I really do like your 3cs, and think I could benefit from this with my kids. I have 2 daughters with whom I survived the teen years, somehow- lol and pleased to say and to add encouragement to parents of teens that they do get better, (they are now 21 and 23 and doing great!). I am now a single parent and also have 2 children at home with me; a daughter age 11 going on 21 and an 8 yr old son who is diagnosed as psychotic. Needless to say I have my hands full and a large helping of stress! Thank you for your advice and your insight, I needed to hear a new perspective on parenting right about now Diane in Calikaris wrote: <snip> I'd love to hear from parents in how they have balanced their FMS andbeing a good parent.<snip> Hi ; Firstly ~ Welcome to the group. Well, I am a 36y/o single mother of a 15y/o teenage daughter (who believes she is 30 on most days) .. I have been 6yrs diagnosed with FMS-CFS/ME 1. While it is wonderful to share our experiences with everyone on the list as to what treatments do and don't work for us, pls always check with your dr. Some treatments are dangerous when given along with other meds as well as to certain health conditions or just dangerous in general.2. If you are in a difficult situation (doesn't matter what it is) pls don't be afraid to ask for help. It is the first step to trying to make that situation better.Have a nice day everyone. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2005 Report Share Posted April 2, 2005 Hi Diane; I am glad that my post reached you as well.. ... that is one thing that I love about these groups - never be afraid to ask a question - because rest assured that there are a handful of people (at least) needing the same answers. Glad you liked the 3C's .. feel free to use and apply them wherever necessary. lol (I have even caught myself self-chanting "3C's, 3C's, 3C's" lol) Karis Re: Intro ~ Karis, I got so much out of your response to this question. I really do like your 3cs, and think I could benefit from this with my kids. I have 2 daughters with whom I survived the teen years, somehow- lol and pleased to say and to add encouragement to parents of teens that they do get better, (they are now 21 and 23 and doing great!). I am now a single parent and also have 2 children at home with me; a daughter age 11 going on 21 and an 8 yr old son who is diagnosed as psychotic. Needless to say I have my hands full and a large helping of stress! Thank you for your advice and your insight, I needed to hear a new perspective on parenting right about now Diane in Calikaris wrote: <snip> I'd love to hear from parents in how they have balanced their FMS andbeing a good parent.<snip> Hi ; Firstly ~ Welcome to the group. Well, I am a 36y/o single mother of a 15y/o teenage daughter (who believes she is 30 on most days) .. I have been 6yrs diagnosed with FMS-CFS/ME 1. While it is wonderful to share our experiences with everyone on the list as to what treatments do and don't work for us, pls always check with your dr. Some treatments are dangerous when given along with other meds as well as to certain health conditions or just dangerous in general.2. If you are in a difficult situation (doesn't matter what it is) pls don't be afraid to ask for help. It is the first step to trying to make that situation better.Have a nice day everyone. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2005 Report Share Posted April 3, 2005 Sounds like a good chant to me Sometimes distracting myself from the frustration of the moment and/or thinking of something common place or funny sure helps- keep swearing I'm gonna get out the CD player and headphones and blare my classic rock so I don't hear any of my daughter's pre-teen hysterics, as I give her a big hugg and know it will end in, hm about 7 or 8 years? lol karis wrote: Hi Diane; I am glad that my post reached you as well.. ... that is one thing that I love about these groups - never be afraid to ask a question - because rest assured that there are a handful of people (at least) needing the same answers. Glad you liked the 3C's .. feel free to use and apply them wherever necessary. lol (I have even caught myself self-chanting "3C's, 3C's, 3C's" lol) Karis Re: Intro ~ Karis, I got so much out of your response to this question. I really do like your 3cs, and think I could benefit from this with my kids. I have 2 daughters with whom I survived the teen years, somehow- lol and pleased to say and to add encouragement to parents of teens that they do get better, (they are now 21 and 23 and doing great!). I am now a single parent and also have 2 children at home with me; a daughter age 11 going on 21 and an 8 yr old son who is diagnosed as psychotic. Needless to say I have my hands full and a large helping of stress! Thank you for your advice and your insight, I needed to hear a new perspective on parenting right about now Diane in Calikaris wrote: <snip> I'd love to hear from parents in how they have balanced their FMS andbeing a good parent.<snip> Hi ; Firstly ~ Welcome to the group. Well, I am a 36y/o single mother of a 15y/o teenage daughter (who believes she is 30 on most days) .. I have been 6yrs diagnosed with FMS-CFS/ME 1. While it is wonderful to share our experiences with everyone on the list as to what treatments do and don't work for us, pls always check with your dr. Some treatments are dangerous when given along with other meds as well as to certain health conditions or just dangerous in general.2. If you are in a difficult situation (doesn't matter what it is) pls don't be afraid to ask for help. It is the first step to trying to make that situation better.Have a nice day everyone.1. While it is wonderful to share our experiences with everyone on the list as to what treatments do and don't work for us, pls always check with your dr. Some treatments are dangerous when given along with other meds as well as to certain health conditions or just dangerous in general.2. If you are in a difficult situation (doesn't matter what it is) pls don't be afraid to ask for help. It is the first step to trying to make that situation better.Have a nice day everyone. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2005 Report Share Posted April 3, 2005 Sounds like a good chant to me Sometimes distracting myself from the frustration of the moment and/or thinking of something common place or funny sure helps- keep swearing I'm gonna get out the CD player and headphones and blare my classic rock so I don't hear any of my daughter's pre-teen hysterics, as I give her a big hugg and know it will end in, hm about 7 or 8 years? lol karis wrote: Hi Diane; I am glad that my post reached you as well.. ... that is one thing that I love about these groups - never be afraid to ask a question - because rest assured that there are a handful of people (at least) needing the same answers. Glad you liked the 3C's .. feel free to use and apply them wherever necessary. lol (I have even caught myself self-chanting "3C's, 3C's, 3C's" lol) Karis Re: Intro ~ Karis, I got so much out of your response to this question. I really do like your 3cs, and think I could benefit from this with my kids. I have 2 daughters with whom I survived the teen years, somehow- lol and pleased to say and to add encouragement to parents of teens that they do get better, (they are now 21 and 23 and doing great!). I am now a single parent and also have 2 children at home with me; a daughter age 11 going on 21 and an 8 yr old son who is diagnosed as psychotic. Needless to say I have my hands full and a large helping of stress! Thank you for your advice and your insight, I needed to hear a new perspective on parenting right about now Diane in Calikaris wrote: <snip> I'd love to hear from parents in how they have balanced their FMS andbeing a good parent.<snip> Hi ; Firstly ~ Welcome to the group. Well, I am a 36y/o single mother of a 15y/o teenage daughter (who believes she is 30 on most days) .. I have been 6yrs diagnosed with FMS-CFS/ME 1. While it is wonderful to share our experiences with everyone on the list as to what treatments do and don't work for us, pls always check with your dr. Some treatments are dangerous when given along with other meds as well as to certain health conditions or just dangerous in general.2. If you are in a difficult situation (doesn't matter what it is) pls don't be afraid to ask for help. It is the first step to trying to make that situation better.Have a nice day everyone.1. While it is wonderful to share our experiences with everyone on the list as to what treatments do and don't work for us, pls always check with your dr. Some treatments are dangerous when given along with other meds as well as to certain health conditions or just dangerous in general.2. If you are in a difficult situation (doesn't matter what it is) pls don't be afraid to ask for help. It is the first step to trying to make that situation better.Have a nice day everyone. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2005 Report Share Posted April 3, 2005 Sounds like a good chant to me Sometimes distracting myself from the frustration of the moment and/or thinking of something common place or funny sure helps- keep swearing I'm gonna get out the CD player and headphones and blare my classic rock so I don't hear any of my daughter's pre-teen hysterics, as I give her a big hugg and know it will end in, hm about 7 or 8 years? lol karis wrote: Hi Diane; I am glad that my post reached you as well.. ... that is one thing that I love about these groups - never be afraid to ask a question - because rest assured that there are a handful of people (at least) needing the same answers. Glad you liked the 3C's .. feel free to use and apply them wherever necessary. lol (I have even caught myself self-chanting "3C's, 3C's, 3C's" lol) Karis Re: Intro ~ Karis, I got so much out of your response to this question. I really do like your 3cs, and think I could benefit from this with my kids. I have 2 daughters with whom I survived the teen years, somehow- lol and pleased to say and to add encouragement to parents of teens that they do get better, (they are now 21 and 23 and doing great!). I am now a single parent and also have 2 children at home with me; a daughter age 11 going on 21 and an 8 yr old son who is diagnosed as psychotic. Needless to say I have my hands full and a large helping of stress! Thank you for your advice and your insight, I needed to hear a new perspective on parenting right about now Diane in Calikaris wrote: <snip> I'd love to hear from parents in how they have balanced their FMS andbeing a good parent.<snip> Hi ; Firstly ~ Welcome to the group. Well, I am a 36y/o single mother of a 15y/o teenage daughter (who believes she is 30 on most days) .. I have been 6yrs diagnosed with FMS-CFS/ME 1. While it is wonderful to share our experiences with everyone on the list as to what treatments do and don't work for us, pls always check with your dr. Some treatments are dangerous when given along with other meds as well as to certain health conditions or just dangerous in general.2. If you are in a difficult situation (doesn't matter what it is) pls don't be afraid to ask for help. It is the first step to trying to make that situation better.Have a nice day everyone.1. While it is wonderful to share our experiences with everyone on the list as to what treatments do and don't work for us, pls always check with your dr. Some treatments are dangerous when given along with other meds as well as to certain health conditions or just dangerous in general.2. If you are in a difficult situation (doesn't matter what it is) pls don't be afraid to ask for help. It is the first step to trying to make that situation better.Have a nice day everyone. Quote Link to comment Share on other sites More sharing options...
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