Guest guest Posted July 14, 2003 Report Share Posted July 14, 2003 Hi Cass, Don't ever apologize for asking a question and I don't consider any of your questions to be silly. Nothing is silly about wanting to know more. Anyway the more you know about RSD the better treatments and meds you will get. A good patient is a well informed patient. So ask away. Now to answer your question. Everyone is different as far as the symptoms of RSD. Everyone is also different when it comes to the amount of pain, the damage to nerves, bones and muscles, and if and how long it takes for the RSD to spread. As to the burning pain would you believe that some people don't have burning pain. When I started with RSD that was one of the first symptoms that I had. Mine was really bad. When my RSD became fulll body the burning pain was all over. I have to say it has been my experience that either the burning pain has decreased in how bad it hurts or I have gotten more used to the pain and it doesnot bother me as much. It is hard for me to tell which it is. I also have two stimulators to relieve the pain and pain pills. These help decrease the burning pain also. I hope I have answered your question. Of course this is just my experience. You have to understand that everyone that has RSD experiences different levels of burning pain and also different areas where the burning pain is. I have also noticed that the areas that I have had severe burning pain for years, some of them the burning pain has decreased a bit. I do have nerve damage in many of these places so that could be the reason. If you have any other questions please ask. I will be happy to try to answer them. Take care Hugs, babs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2003 Report Share Posted July 14, 2003 Cass, This is somewhat how the RSD works. There are 3 stages that are definately known....and possibly 4...all depending on who you talk to. Sometimes, you might have symptoms of Stage 1 and 2, Or, you might have symptoms of Stage 1 and 3. Or, Stage 2 and 3. With this disease, you never know. Not everyone here has the same kinds of pain, same kinds of meds, same kinds of doctors. Just like our bodies are different, that means our pains are different, our meds are different, our treatments are different, and our doctors are different. A way to put it better is like this: Our Sympathetic Nervous System is like a blue print of our body, just like you'd have to make a blue print of a hotel before you start building it. Where ever the Sympathetic Nervous System in our bodies can go.....the RSD pain can be felt, even though you don't have the RSD in that body part. Its just the way the nerves are. So, pretty much, where ever you have nerves at in your body, which is everywhere....you can get RSD. Now, since everyone has a different "blue print", that means we are all unique. Like our thumbprints, no two people has the same thumbprint, nor does two people have the same Nervous sysytem. Which is the reason why there is no cure for RSD, and which is also why the Experts and Researchers are having a heck of a time trying to come up with treatments for us. Once they find something that will work great for one person, maybe even putting that person in remission......it probably won't work for the next 20 patients. Same as a med. What may work for one patient, probably won't work for another 20. Treatments......the same. Doctors......the same. In another group, someone just asked me about a doctor I seen in Chicago. Now, for me, this doctor was the best!!!! I'm planning on going back to Chicago as soon as I get the money to and a vehicle that will make it. But, when she went there, she immediately disliked him, and, according to her, he plain out told her that she was nuts! But, ask a few people in this group what they think of Dr. Lubenow....and they'll agree with me. So, see, just cause a few people like a certain doctor, doesn't mean everyone will. This disease is something that we have to educate ourselves on.....and then, hopefully find a doctor that is willing to work with us, and learn with us as we grow older and progress with this disease. One thing might get worse and our meds might need changed. The doctor needs to realize this also. Or, if you have surgery on something, the doctors need to realize that just because we are on high dosage meds already, doesn't mean that we don't need something else for the new pain that we are going to be experiencing. Its a weird cycle.....but, no, you are not losing your mind......and no, it doesn't eventually go away. Tonia ____________________________________________________ IncrediMail - Email has finally evolved - Click Here Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2004 Report Share Posted September 23, 2004 Judy you can do that here. We all love a good joke, and a good recipe. As far as venting, that is what we are here for, to help each other. You vent all you want, we are listening. Hugs Jeana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2004 Report Share Posted September 23, 2004 Judy you can do that here. We all love a good joke, and a good recipe. As far as venting, that is what we are here for, to help each other. You vent all you want, we are listening. Hugs Jeana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2004 Report Share Posted September 23, 2004 Judy you can do that here. We all love a good joke, and a good recipe. As far as venting, that is what we are here for, to help each other. You vent all you want, we are listening. Hugs Jeana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2004 Report Share Posted September 23, 2004 Im going shopping tomorrow.......I'll be better......I know it is temporary. Judy -- Re: Question? Dear Judy, I've been cleaning since June!!!! I know how you feel. How about a short walk or drive or visit with a friend? Hate to hear you're down...although I've been there too. Remember...this is temporary. Regards, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2004 Report Share Posted September 23, 2004 Im going shopping tomorrow.......I'll be better......I know it is temporary. Judy -- Re: Question? Dear Judy, I've been cleaning since June!!!! I know how you feel. How about a short walk or drive or visit with a friend? Hate to hear you're down...although I've been there too. Remember...this is temporary. Regards, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2004 Report Share Posted September 23, 2004 Im going shopping tomorrow.......I'll be better......I know it is temporary. Judy -- Re: Question? Dear Judy, I've been cleaning since June!!!! I know how you feel. How about a short walk or drive or visit with a friend? Hate to hear you're down...although I've been there too. Remember...this is temporary. Regards, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2004 Report Share Posted September 23, 2004 Well I'm still coughing and hacking. I just had a coughing spell that absolutely made me gag. I sure hate that, but jumped up and got me some water, and that helped. It has been so warm today, a nice change after all the rain Jeana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2004 Report Share Posted September 23, 2004 Well I'm still coughing and hacking. I just had a coughing spell that absolutely made me gag. I sure hate that, but jumped up and got me some water, and that helped. It has been so warm today, a nice change after all the rain Jeana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2004 Report Share Posted September 23, 2004 btw my mom had a cat scan and there was no ulcer, her Dr told her that she just had the horrible stomach flu that is going around. ugh Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2004 Report Share Posted September 23, 2004 btw my mom had a cat scan and there was no ulcer, her Dr told her that she just had the horrible stomach flu that is going around. ugh Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2004 Report Share Posted September 23, 2004 Honey your already in it right here....we do all those things....Huggs Judy G wrote: Good morning all....is there a group of women that have bc and or have just been diagnosed, that have a group where you can send in jokes, funny things, wonderful feeling things, share recipes and what is happening in your life at the moment? Cry, scream, vent, treatments or Just Gab? Hope all are doing well today.... Judy .... My Poetry Honored at http://poetryinacup.org/morningrain/ Visit MY TUPPERWARE http://my.tupperware.com/MorningRain If you Live in my heart....you live rent free. " We come to love NOT by meeting a PERFECT person... But by seeing an IMPERFECT person PERFECTLY " In God We Trust Proud wife of a Vietnam Vet Nortons say I'm BUG FREE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2004 Report Share Posted September 23, 2004 Honey your already in it right here....we do all those things....Huggs Judy G wrote: Good morning all....is there a group of women that have bc and or have just been diagnosed, that have a group where you can send in jokes, funny things, wonderful feeling things, share recipes and what is happening in your life at the moment? Cry, scream, vent, treatments or Just Gab? Hope all are doing well today.... Judy .... My Poetry Honored at http://poetryinacup.org/morningrain/ Visit MY TUPPERWARE http://my.tupperware.com/MorningRain If you Live in my heart....you live rent free. " We come to love NOT by meeting a PERFECT person... But by seeing an IMPERFECT person PERFECTLY " In God We Trust Proud wife of a Vietnam Vet Nortons say I'm BUG FREE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2004 Report Share Posted September 23, 2004 Hi Judy, We do share things that are going on in our lives, jokes not too often, we can talk about other things besides bc, as long as we help someone if they need help, you can share happy feelings,cry, vent scream etc right here if you want. Recipes I don't think we have ever shared but if you find one you could always ask if someone would like it and send it through the email. We don't have to always stick to just bc. When our daughter was awaiting the arrival of their son from Korea I think I drove these poor ladies nuts with all the updates on how things were going. So share as much as you want. Hugs nne Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.html Check out my breast cancer ornaments at:http://www.geocities.com/chucky5741/bcornament.htmlalso check out my other ornaments and lots of nice gifts at:http://www.cancerclub.com Question? Good morning all....is there a group of women that have bc and or have just been diagnosed, that have a group where you can send in jokes, funny things, wonderful feeling things, share recipes and what is happening in your life at the moment? Cry, scream, vent, treatments or Just Gab? Hope all are doing well today.... Judy .... My Poetry Honored at http://poetryinacup.org/morningrain/ Visit MY TUPPERWARE http://my.tupperware.com/MorningRain If you Live in my heart....you live rent free. " We come to love NOT by meeting a PERFECT person... But by seeing an IMPERFECT person PERFECTLY " In God We Trust Proud wife of a Vietnam Vet Nortons say I'm BUG FREE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2004 Report Share Posted September 23, 2004 Hi Judy, We do share things that are going on in our lives, jokes not too often, we can talk about other things besides bc, as long as we help someone if they need help, you can share happy feelings,cry, vent scream etc right here if you want. Recipes I don't think we have ever shared but if you find one you could always ask if someone would like it and send it through the email. We don't have to always stick to just bc. When our daughter was awaiting the arrival of their son from Korea I think I drove these poor ladies nuts with all the updates on how things were going. So share as much as you want. Hugs nne Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.html Check out my breast cancer ornaments at:http://www.geocities.com/chucky5741/bcornament.htmlalso check out my other ornaments and lots of nice gifts at:http://www.cancerclub.com Question? Good morning all....is there a group of women that have bc and or have just been diagnosed, that have a group where you can send in jokes, funny things, wonderful feeling things, share recipes and what is happening in your life at the moment? Cry, scream, vent, treatments or Just Gab? Hope all are doing well today.... Judy .... My Poetry Honored at http://poetryinacup.org/morningrain/ Visit MY TUPPERWARE http://my.tupperware.com/MorningRain If you Live in my heart....you live rent free. " We come to love NOT by meeting a PERFECT person... But by seeing an IMPERFECT person PERFECTLY " In God We Trust Proud wife of a Vietnam Vet Nortons say I'm BUG FREE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2004 Report Share Posted September 23, 2004 Judy don't worry about filling up email boxes. Some ladies come to the site to read the posts and if there is something someone doesn't think would interest them all they have to do is hit the delete button :-) So share with us. Hugs nne Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.html Check out my breast cancer ornaments at:http://www.geocities.com/chucky5741/bcornament.htmlalso check out my other ornaments and lots of nice gifts at:http://www.cancerclub.com Re: Question? Judy you can do that here. We all love a good joke, and a good recipe. As far as venting, that is what we are here for, to help each other. You vent all you want, we are listening. Hugs Jeana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2004 Report Share Posted September 23, 2004 Judy don't worry about filling up email boxes. Some ladies come to the site to read the posts and if there is something someone doesn't think would interest them all they have to do is hit the delete button :-) So share with us. Hugs nne Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.html Check out my breast cancer ornaments at:http://www.geocities.com/chucky5741/bcornament.htmlalso check out my other ornaments and lots of nice gifts at:http://www.cancerclub.com Re: Question? Judy you can do that here. We all love a good joke, and a good recipe. As far as venting, that is what we are here for, to help each other. You vent all you want, we are listening. Hugs Jeana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2004 Report Share Posted September 23, 2004 Glad your Mom is ok. Hugs nne Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.html Check out my breast cancer ornaments at:http://www.geocities.com/chucky5741/bcornament.htmlalso check out my other ornaments and lots of nice gifts at:http://www.cancerclub.com Re: Question? btw my mom had a cat scan and there was no ulcer, her Dr told her that she just had the horrible stomach flu that is going around. ugh Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2004 Report Share Posted September 23, 2004 Send 'em here! Love, Janie > Good morning all....is there a group of women that have bc and or have just > been diagnosed, that have a group where you can send in jokes, funny things, > wonderful feeling things, share recipes and what is happening in your life > at the moment? Cry, scream, vent, treatments or Just Gab? > Hope all are doing well today.... > Judy > > ... > > > > > My Poetry Honored at > http://poetryinacup.org/morningrain/ > > Visit MY TUPPERWARE > http://my.tupperware.com/MorningRain > > If you Live in my heart....you live rent free. > > " We come to love NOT by meeting a PERFECT person... > But by seeing an IMPERFECT person PERFECTLY " > > > In God We Trust > Proud wife of a Vietnam Vet > > > Nortons say I'm > BUG FREE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2004 Report Share Posted September 23, 2004 Send 'em here! Love, Janie > Good morning all....is there a group of women that have bc and or have just > been diagnosed, that have a group where you can send in jokes, funny things, > wonderful feeling things, share recipes and what is happening in your life > at the moment? Cry, scream, vent, treatments or Just Gab? > Hope all are doing well today.... > Judy > > ... > > > > > My Poetry Honored at > http://poetryinacup.org/morningrain/ > > Visit MY TUPPERWARE > http://my.tupperware.com/MorningRain > > If you Live in my heart....you live rent free. > > " We come to love NOT by meeting a PERFECT person... > But by seeing an IMPERFECT person PERFECTLY " > > > In God We Trust > Proud wife of a Vietnam Vet > > > Nortons say I'm > BUG FREE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2004 Report Share Posted September 23, 2004 Send 'em here! Love, Janie > Good morning all....is there a group of women that have bc and or have just > been diagnosed, that have a group where you can send in jokes, funny things, > wonderful feeling things, share recipes and what is happening in your life > at the moment? Cry, scream, vent, treatments or Just Gab? > Hope all are doing well today.... > Judy > > ... > > > > > My Poetry Honored at > http://poetryinacup.org/morningrain/ > > Visit MY TUPPERWARE > http://my.tupperware.com/MorningRain > > If you Live in my heart....you live rent free. > > " We come to love NOT by meeting a PERFECT person... > But by seeing an IMPERFECT person PERFECTLY " > > > In God We Trust > Proud wife of a Vietnam Vet > > > Nortons say I'm > BUG FREE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2004 Report Share Posted September 23, 2004 Judy The post below expresses my my sentiments, too. Fer gosh sakes, SEND. We all wanna grab your stuff. LOL Janie > Judy don't worry about filling up email boxes. Some ladies come to the site to read the posts and if there is something someone doesn't think would interest them all they have to do is hit the delete button :-) So share with us. > Hugs > nne > Breast Cancer Patients Soul Mates for Life > http://www.geocities.com/chucky5741/breastcancerpatients.html > > Check out my breast cancer ornaments at: > http://www.geocities.com/chucky5741/bcornament.html > also check out my other ornaments and lots of nice gifts at: > http://www.cancerclub.com > Re: Question? > .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2004 Report Share Posted September 23, 2004 Judy The post below expresses my my sentiments, too. Fer gosh sakes, SEND. We all wanna grab your stuff. LOL Janie > Judy don't worry about filling up email boxes. Some ladies come to the site to read the posts and if there is something someone doesn't think would interest them all they have to do is hit the delete button :-) So share with us. > Hugs > nne > Breast Cancer Patients Soul Mates for Life > http://www.geocities.com/chucky5741/breastcancerpatients.html > > Check out my breast cancer ornaments at: > http://www.geocities.com/chucky5741/bcornament.html > also check out my other ornaments and lots of nice gifts at: > http://www.cancerclub.com > Re: Question? > .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2004 Report Share Posted September 23, 2004 Judy The post below expresses my my sentiments, too. Fer gosh sakes, SEND. We all wanna grab your stuff. LOL Janie > Judy don't worry about filling up email boxes. Some ladies come to the site to read the posts and if there is something someone doesn't think would interest them all they have to do is hit the delete button :-) So share with us. > Hugs > nne > Breast Cancer Patients Soul Mates for Life > http://www.geocities.com/chucky5741/breastcancerpatients.html > > Check out my breast cancer ornaments at: > http://www.geocities.com/chucky5741/bcornament.html > also check out my other ornaments and lots of nice gifts at: > http://www.cancerclub.com > Re: Question? > .. Quote Link to comment Share on other sites More sharing options...
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