Guest guest Posted August 5, 2002 Report Share Posted August 5, 2002 Hi, I have a question about osteoporosis. I wrote in some time ago about the use of estrogen. We decided to put on the estrogen because a bone age study showed that she has the begining of osteoporosis. A year later they decided to bring on her period because taking the estrogen was building a linning. Well needles to say was in no way ready for this. We just can not make her understand that this is normal, and she will never understand. She is just not at that point. I called the Dr. and told her that we had to find another way to deal with this. She had have a Dexa Scan done. Based on that she said that she is at high risk for fracture. She now wants to try Evista. Possible side effect is hot flases not to metion it is a adult drug. My question is is very small. She 65 pounds and is 4 " 1' she is 19. Her bones are not going to be of a 19 year old. They say that she is looing bone but I don't understand how they can compare this test she is the size of a 6 to 8 year old. This is the first Dexa Scan that she has had done so we have nothing to compare to. Maybe she has always been this way. We just don't know. I just don't know what to do next. All I want is for her to be healthy and happy. I keep throwing this drugs at her and then try to make her understand why she has side effect. The estrogen is no longer a option I can't put her through that again. She spent 4 days of throwing up. Lost 5 pounds which was not water she was 65 pounds and went down to 60. Her sugar levels went sky high. And All she did was cry and beg me to make her period go away. Has anyone else had their children tested for osteoporosis? Any input anyone has I would be very thankful for. Doris Behan (Mom to 19) Rochester NY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2002 Report Share Posted August 5, 2002 Hi Doris. I just finished reading " What your doctor may not tell you about premenopause " by Dr. Lee and Dr. Henley. This book does a marvelous job about explaining how the female hormones work in our bodies, not just in the menstrual cycle, but how they impact our overall health, throughout our life span. He also does an excellent job of explaining why estrogen and progesterone given in pill form, do not work the same way. Basically the chemical structure is slightly different than that which is made in our bodies. This structural difference, cause massive confusion in our bodies, leading to all sorts of side effects, such as those you are describing in . The book covers many other avenues of regulating hormone balance, natural progesterone (a cream that has the same chemical structure as progesterone made in the body), diet, supplements etc... Perhaps there will be some clues for you there on what to do next. The book does cover the connection between hormones and bone loss as well. Although the book is targeted towards women 30 -50ish, the information seems pertinent to all women. (I think young women should read it before they ever decide to go on the pill or not.) Kim ---------- > >To: CHARGE >Subject: Osteoporosis >Date: Mon, Aug 5, 2002, 8:40 AM > > Hi, > > I have a question about osteoporosis. I wrote in some time ago about > the use of estrogen. We decided to put on the estrogen because > a bone age study showed that she has the begining of osteoporosis. A > year later they decided to bring on her period because taking the > estrogen was building a linning. Well needles to say was in no > way ready for this. We just can not make her understand that this is > normal, and she will never understand. She is just not at that point. > > I called the Dr. and told her that we had to find another way to deal > with this. She had have a Dexa Scan done. Based on that she > said that she is at high risk for fracture. She now wants to try > Evista. Possible side effect is hot flases not to metion it is a > adult drug. > > My question is is very small. She 65 pounds and is 4 " 1' she is > 19. Her bones are not going to be of a 19 year old. They say that she > is looing bone but I don't understand how they can compare this test > she is the size of a 6 to 8 year old. This is the first Dexa Scan that > she has had done so we have nothing to compare to. Maybe she has > always been this way. We just don't know. > > I just don't know what to do next. All I want is for her to be > healthy and happy. I keep throwing this drugs at her and then try to > make her understand why she has side effect. > > The estrogen is no longer a option I can't put her through that again. > She spent 4 days of throwing up. Lost 5 pounds which was not water > she was 65 pounds and went down to 60. Her sugar levels went sky > high. And All she did was cry and beg me to make her period go away. > > Has anyone else had their children tested for osteoporosis? > > Any input anyone has I would be very thankful for. > > Doris Behan (Mom to 19) > > Rochester NY > > > Membership of this email support groups does not constitute membership in > the CHARGE Syndrome Foundation. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter) > please contact marion@... or visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > 6th International CHARGE Syndrome Conference, Cleveland, Ohio, > July 25-27, 2003. Information will be available at our website > www.chargesyndrome.org or by calling 1-. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2002 Report Share Posted August 5, 2002 Hi Doris. I just finished reading " What your doctor may not tell you about premenopause " by Dr. Lee and Dr. Henley. This book does a marvelous job about explaining how the female hormones work in our bodies, not just in the menstrual cycle, but how they impact our overall health, throughout our life span. He also does an excellent job of explaining why estrogen and progesterone given in pill form, do not work the same way. Basically the chemical structure is slightly different than that which is made in our bodies. This structural difference, cause massive confusion in our bodies, leading to all sorts of side effects, such as those you are describing in . The book covers many other avenues of regulating hormone balance, natural progesterone (a cream that has the same chemical structure as progesterone made in the body), diet, supplements etc... Perhaps there will be some clues for you there on what to do next. The book does cover the connection between hormones and bone loss as well. Although the book is targeted towards women 30 -50ish, the information seems pertinent to all women. (I think young women should read it before they ever decide to go on the pill or not.) Kim ---------- > >To: CHARGE >Subject: Osteoporosis >Date: Mon, Aug 5, 2002, 8:40 AM > > Hi, > > I have a question about osteoporosis. I wrote in some time ago about > the use of estrogen. We decided to put on the estrogen because > a bone age study showed that she has the begining of osteoporosis. A > year later they decided to bring on her period because taking the > estrogen was building a linning. Well needles to say was in no > way ready for this. We just can not make her understand that this is > normal, and she will never understand. She is just not at that point. > > I called the Dr. and told her that we had to find another way to deal > with this. She had have a Dexa Scan done. Based on that she > said that she is at high risk for fracture. She now wants to try > Evista. Possible side effect is hot flases not to metion it is a > adult drug. > > My question is is very small. She 65 pounds and is 4 " 1' she is > 19. Her bones are not going to be of a 19 year old. They say that she > is looing bone but I don't understand how they can compare this test > she is the size of a 6 to 8 year old. This is the first Dexa Scan that > she has had done so we have nothing to compare to. Maybe she has > always been this way. We just don't know. > > I just don't know what to do next. All I want is for her to be > healthy and happy. I keep throwing this drugs at her and then try to > make her understand why she has side effect. > > The estrogen is no longer a option I can't put her through that again. > She spent 4 days of throwing up. Lost 5 pounds which was not water > she was 65 pounds and went down to 60. Her sugar levels went sky > high. And All she did was cry and beg me to make her period go away. > > Has anyone else had their children tested for osteoporosis? > > Any input anyone has I would be very thankful for. > > Doris Behan (Mom to 19) > > Rochester NY > > > Membership of this email support groups does not constitute membership in > the CHARGE Syndrome Foundation. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter) > please contact marion@... or visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > 6th International CHARGE Syndrome Conference, Cleveland, Ohio, > July 25-27, 2003. Information will be available at our website > www.chargesyndrome.org or by calling 1-. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2002 Report Share Posted August 5, 2002 Hi Doris. I just finished reading " What your doctor may not tell you about premenopause " by Dr. Lee and Dr. Henley. This book does a marvelous job about explaining how the female hormones work in our bodies, not just in the menstrual cycle, but how they impact our overall health, throughout our life span. He also does an excellent job of explaining why estrogen and progesterone given in pill form, do not work the same way. Basically the chemical structure is slightly different than that which is made in our bodies. This structural difference, cause massive confusion in our bodies, leading to all sorts of side effects, such as those you are describing in . The book covers many other avenues of regulating hormone balance, natural progesterone (a cream that has the same chemical structure as progesterone made in the body), diet, supplements etc... Perhaps there will be some clues for you there on what to do next. The book does cover the connection between hormones and bone loss as well. Although the book is targeted towards women 30 -50ish, the information seems pertinent to all women. (I think young women should read it before they ever decide to go on the pill or not.) Kim ---------- > >To: CHARGE >Subject: Osteoporosis >Date: Mon, Aug 5, 2002, 8:40 AM > > Hi, > > I have a question about osteoporosis. I wrote in some time ago about > the use of estrogen. We decided to put on the estrogen because > a bone age study showed that she has the begining of osteoporosis. A > year later they decided to bring on her period because taking the > estrogen was building a linning. Well needles to say was in no > way ready for this. We just can not make her understand that this is > normal, and she will never understand. She is just not at that point. > > I called the Dr. and told her that we had to find another way to deal > with this. She had have a Dexa Scan done. Based on that she > said that she is at high risk for fracture. She now wants to try > Evista. Possible side effect is hot flases not to metion it is a > adult drug. > > My question is is very small. She 65 pounds and is 4 " 1' she is > 19. Her bones are not going to be of a 19 year old. They say that she > is looing bone but I don't understand how they can compare this test > she is the size of a 6 to 8 year old. This is the first Dexa Scan that > she has had done so we have nothing to compare to. Maybe she has > always been this way. We just don't know. > > I just don't know what to do next. All I want is for her to be > healthy and happy. I keep throwing this drugs at her and then try to > make her understand why she has side effect. > > The estrogen is no longer a option I can't put her through that again. > She spent 4 days of throwing up. Lost 5 pounds which was not water > she was 65 pounds and went down to 60. Her sugar levels went sky > high. And All she did was cry and beg me to make her period go away. > > Has anyone else had their children tested for osteoporosis? > > Any input anyone has I would be very thankful for. > > Doris Behan (Mom to 19) > > Rochester NY > > > Membership of this email support groups does not constitute membership in > the CHARGE Syndrome Foundation. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter) > please contact marion@... or visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > 6th International CHARGE Syndrome Conference, Cleveland, Ohio, > July 25-27, 2003. Information will be available at our website > www.chargesyndrome.org or by calling 1-. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2002 Report Share Posted August 5, 2002 Dr. Kim Blake wanted to hear from parents of older children with CHARGE as she was doing a study on the onset of osteoporosis in young adults with CHARGE; usually in those who did not take growth hormones early on. Her e-mail is Kblake@... Your doctor could confer with Kirk, Consultant Pediatric Endocroinologist from , Princess of Wales Children's Hospital in Birmingham; UK .Kirk@... 044 who is familiar with the issues in CHARGE, and will probably also be at the OHIO conference in 2003 ANN GLOYN, Specialist Teacher, Canada jdsb03 wrote: > Hi, > > I have a question about osteoporosis. I wrote in some time ago about > the use of estrogen. We decided to put on the estrogen because > a bone age study showed that she has the begining of osteoporosis. A > year later they decided to bring on her period because taking the > estrogen was building a linning. Well needles to say was in no > way ready for this. We just can not make her understand that this is > normal, and she will never understand. She is just not at that point. > > I called the Dr. and told her that we had to find another way to deal > with this. She had have a Dexa Scan done. Based on that she > said that she is at high risk for fracture. She now wants to try > Evista. Possible side effect is hot flases not to metion it is a > adult drug. > > My question is is very small. She 65 pounds and is 4 " 1' she is > 19. Her bones are not going to be of a 19 year old. They say that she > is looing bone but I don't understand how they can compare this test > she is the size of a 6 to 8 year old. This is the first Dexa Scan that > she has had done so we have nothing to compare to. Maybe she has > always been this way. We just don't know. > > I just don't know what to do next. All I want is for her to be > healthy and happy. I keep throwing this drugs at her and then try to > make her understand why she has side effect. > > The estrogen is no longer a option I can't put her through that again. > She spent 4 days of throwing up. Lost 5 pounds which was not water > she was 65 pounds and went down to 60. Her sugar levels went sky > high. And All she did was cry and beg me to make her period go away. > > Has anyone else had their children tested for osteoporosis? > > Any input anyone has I would be very thankful for. > > Doris Behan (Mom to 19) > > Rochester NY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2002 Report Share Posted August 5, 2002 Dr. Kim Blake wanted to hear from parents of older children with CHARGE as she was doing a study on the onset of osteoporosis in young adults with CHARGE; usually in those who did not take growth hormones early on. Her e-mail is Kblake@... Your doctor could confer with Kirk, Consultant Pediatric Endocroinologist from , Princess of Wales Children's Hospital in Birmingham; UK .Kirk@... 044 who is familiar with the issues in CHARGE, and will probably also be at the OHIO conference in 2003 ANN GLOYN, Specialist Teacher, Canada jdsb03 wrote: > Hi, > > I have a question about osteoporosis. I wrote in some time ago about > the use of estrogen. We decided to put on the estrogen because > a bone age study showed that she has the begining of osteoporosis. A > year later they decided to bring on her period because taking the > estrogen was building a linning. Well needles to say was in no > way ready for this. We just can not make her understand that this is > normal, and she will never understand. She is just not at that point. > > I called the Dr. and told her that we had to find another way to deal > with this. She had have a Dexa Scan done. Based on that she > said that she is at high risk for fracture. She now wants to try > Evista. Possible side effect is hot flases not to metion it is a > adult drug. > > My question is is very small. She 65 pounds and is 4 " 1' she is > 19. Her bones are not going to be of a 19 year old. They say that she > is looing bone but I don't understand how they can compare this test > she is the size of a 6 to 8 year old. This is the first Dexa Scan that > she has had done so we have nothing to compare to. Maybe she has > always been this way. We just don't know. > > I just don't know what to do next. All I want is for her to be > healthy and happy. I keep throwing this drugs at her and then try to > make her understand why she has side effect. > > The estrogen is no longer a option I can't put her through that again. > She spent 4 days of throwing up. Lost 5 pounds which was not water > she was 65 pounds and went down to 60. Her sugar levels went sky > high. And All she did was cry and beg me to make her period go away. > > Has anyone else had their children tested for osteoporosis? > > Any input anyone has I would be very thankful for. > > Doris Behan (Mom to 19) > > Rochester NY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2002 Report Share Posted August 5, 2002 Dr. Kim Blake wanted to hear from parents of older children with CHARGE as she was doing a study on the onset of osteoporosis in young adults with CHARGE; usually in those who did not take growth hormones early on. Her e-mail is Kblake@... Your doctor could confer with Kirk, Consultant Pediatric Endocroinologist from , Princess of Wales Children's Hospital in Birmingham; UK .Kirk@... 044 who is familiar with the issues in CHARGE, and will probably also be at the OHIO conference in 2003 ANN GLOYN, Specialist Teacher, Canada jdsb03 wrote: > Hi, > > I have a question about osteoporosis. I wrote in some time ago about > the use of estrogen. We decided to put on the estrogen because > a bone age study showed that she has the begining of osteoporosis. A > year later they decided to bring on her period because taking the > estrogen was building a linning. Well needles to say was in no > way ready for this. We just can not make her understand that this is > normal, and she will never understand. She is just not at that point. > > I called the Dr. and told her that we had to find another way to deal > with this. She had have a Dexa Scan done. Based on that she > said that she is at high risk for fracture. She now wants to try > Evista. Possible side effect is hot flases not to metion it is a > adult drug. > > My question is is very small. She 65 pounds and is 4 " 1' she is > 19. Her bones are not going to be of a 19 year old. They say that she > is looing bone but I don't understand how they can compare this test > she is the size of a 6 to 8 year old. This is the first Dexa Scan that > she has had done so we have nothing to compare to. Maybe she has > always been this way. We just don't know. > > I just don't know what to do next. All I want is for her to be > healthy and happy. I keep throwing this drugs at her and then try to > make her understand why she has side effect. > > The estrogen is no longer a option I can't put her through that again. > She spent 4 days of throwing up. Lost 5 pounds which was not water > she was 65 pounds and went down to 60. Her sugar levels went sky > high. And All she did was cry and beg me to make her period go away. > > Has anyone else had their children tested for osteoporosis? > > Any input anyone has I would be very thankful for. > > Doris Behan (Mom to 19) > > Rochester NY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2002 Report Share Posted August 6, 2002 um ill try to explain what my doctor was telling me jus the other day. I have a " bone structure and density " of an eleven year old, but " toerh parts of my body are nineteen " if you know what i mean. so you can get osteoprosis becuase of that i have been on HRT since i was about twelve, and jus wnet on to double the dose (my new doctors is not happy with my previous doctor for not viving me enough) and i stilldotn have a proper level of bone density ugh im not making sense Belinda 19 ye CHARGEr > Hi Doris. > > I just finished reading " What your doctor may not tell you about > premenopause " by Dr. Lee and Dr. Henley. This book does a > marvelous job about explaining how the female hormones work in our bodies, > not just in the menstrual cycle, but how they impact our overall health, > throughout our life span. He also does an excellent job of explaining why > estrogen and progesterone given in pill form, do not work the same way. > Basically the chemical structure is slightly different than that which is > made in our bodies. This structural difference, cause massive confusion in > our bodies, leading to all sorts of side effects, such as those you are > describing in . The book covers many other avenues of regulating > hormone balance, natural progesterone (a cream that has the same chemical > structure as progesterone made in the body), diet, supplements etc... > Perhaps there will be some clues for you there on what to do next. The book > does cover the connection between hormones and bone loss as well. Although > the book is targeted towards women 30 -50ish, the information seems > pertinent to all women. (I think young women should read it before they > ever decide to go on the pill or not.) > > Kim > > > > ---------- > >From: " jdsb03 " <dbehan@r...> > >To: CHARGE@y... > >Subject: Osteoporosis > >Date: Mon, Aug 5, 2002, 8:40 AM > > > > > Hi, > > > > I have a question about osteoporosis. I wrote in some time ago about > > the use of estrogen. We decided to put on the estrogen because > > a bone age study showed that she has the begining of osteoporosis. A > > year later they decided to bring on her period because taking the > > estrogen was building a linning. Well needles to say was in no > > way ready for this. We just can not make her understand that this is > > normal, and she will never understand. She is just not at that point. > > > > I called the Dr. and told her that we had to find another way to deal > > with this. She had have a Dexa Scan done. Based on that she > > said that she is at high risk for fracture. She now wants to try > > Evista. Possible side effect is hot flases not to metion it is a > > adult drug. > > > > My question is is very small. She 65 pounds and is 4 " 1' she is > > 19. Her bones are not going to be of a 19 year old. They say that she > > is looing bone but I don't understand how they can compare this test > > she is the size of a 6 to 8 year old. This is the first Dexa Scan that > > she has had done so we have nothing to compare to. Maybe she has > > always been this way. We just don't know. > > > > I just don't know what to do next. All I want is for her to be > > healthy and happy. I keep throwing this drugs at her and then try to > > make her understand why she has side effect. > > > > The estrogen is no longer a option I can't put her through that again. > > She spent 4 days of throwing up. Lost 5 pounds which was not water > > she was 65 pounds and went down to 60. Her sugar levels went sky > > high. And All she did was cry and beg me to make her period go away. > > > > Has anyone else had their children tested for osteoporosis? > > > > Any input anyone has I would be very thankful for. > > > > Doris Behan (Mom to 19) > > > > Rochester NY > > > > > > Membership of this email support groups does not constitute membership in > > the CHARGE Syndrome Foundation. > > For information about the CHARGE Syndrome > > Foundation or to become a member (and get the newsletter) > > please contact marion@c... or visit > > the CHARGE Syndrome Foundation web page > > at http://www.chargesyndrome.org > > 6th International CHARGE Syndrome Conference, Cleveland, Ohio, > > July 25-27, 2003. Information will be available at our website > > www.chargesyndrome.org or by calling 1-. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2002 Report Share Posted August 6, 2002 um ill try to explain what my doctor was telling me jus the other day. I have a " bone structure and density " of an eleven year old, but " toerh parts of my body are nineteen " if you know what i mean. so you can get osteoprosis becuase of that i have been on HRT since i was about twelve, and jus wnet on to double the dose (my new doctors is not happy with my previous doctor for not viving me enough) and i stilldotn have a proper level of bone density ugh im not making sense Belinda 19 ye CHARGEr > Hi Doris. > > I just finished reading " What your doctor may not tell you about > premenopause " by Dr. Lee and Dr. Henley. This book does a > marvelous job about explaining how the female hormones work in our bodies, > not just in the menstrual cycle, but how they impact our overall health, > throughout our life span. He also does an excellent job of explaining why > estrogen and progesterone given in pill form, do not work the same way. > Basically the chemical structure is slightly different than that which is > made in our bodies. This structural difference, cause massive confusion in > our bodies, leading to all sorts of side effects, such as those you are > describing in . The book covers many other avenues of regulating > hormone balance, natural progesterone (a cream that has the same chemical > structure as progesterone made in the body), diet, supplements etc... > Perhaps there will be some clues for you there on what to do next. The book > does cover the connection between hormones and bone loss as well. Although > the book is targeted towards women 30 -50ish, the information seems > pertinent to all women. (I think young women should read it before they > ever decide to go on the pill or not.) > > Kim > > > > ---------- > >From: " jdsb03 " <dbehan@r...> > >To: CHARGE@y... > >Subject: Osteoporosis > >Date: Mon, Aug 5, 2002, 8:40 AM > > > > > Hi, > > > > I have a question about osteoporosis. I wrote in some time ago about > > the use of estrogen. We decided to put on the estrogen because > > a bone age study showed that she has the begining of osteoporosis. A > > year later they decided to bring on her period because taking the > > estrogen was building a linning. Well needles to say was in no > > way ready for this. We just can not make her understand that this is > > normal, and she will never understand. She is just not at that point. > > > > I called the Dr. and told her that we had to find another way to deal > > with this. She had have a Dexa Scan done. Based on that she > > said that she is at high risk for fracture. She now wants to try > > Evista. Possible side effect is hot flases not to metion it is a > > adult drug. > > > > My question is is very small. She 65 pounds and is 4 " 1' she is > > 19. Her bones are not going to be of a 19 year old. They say that she > > is looing bone but I don't understand how they can compare this test > > she is the size of a 6 to 8 year old. This is the first Dexa Scan that > > she has had done so we have nothing to compare to. Maybe she has > > always been this way. We just don't know. > > > > I just don't know what to do next. All I want is for her to be > > healthy and happy. I keep throwing this drugs at her and then try to > > make her understand why she has side effect. > > > > The estrogen is no longer a option I can't put her through that again. > > She spent 4 days of throwing up. Lost 5 pounds which was not water > > she was 65 pounds and went down to 60. Her sugar levels went sky > > high. And All she did was cry and beg me to make her period go away. > > > > Has anyone else had their children tested for osteoporosis? > > > > Any input anyone has I would be very thankful for. > > > > Doris Behan (Mom to 19) > > > > Rochester NY > > > > > > Membership of this email support groups does not constitute membership in > > the CHARGE Syndrome Foundation. > > For information about the CHARGE Syndrome > > Foundation or to become a member (and get the newsletter) > > please contact marion@c... or visit > > the CHARGE Syndrome Foundation web page > > at http://www.chargesyndrome.org > > 6th International CHARGE Syndrome Conference, Cleveland, Ohio, > > July 25-27, 2003. Information will be available at our website > > www.chargesyndrome.org or by calling 1-. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2002 Report Share Posted August 6, 2002 um ill try to explain what my doctor was telling me jus the other day. I have a " bone structure and density " of an eleven year old, but " toerh parts of my body are nineteen " if you know what i mean. so you can get osteoprosis becuase of that i have been on HRT since i was about twelve, and jus wnet on to double the dose (my new doctors is not happy with my previous doctor for not viving me enough) and i stilldotn have a proper level of bone density ugh im not making sense Belinda 19 ye CHARGEr > Hi Doris. > > I just finished reading " What your doctor may not tell you about > premenopause " by Dr. Lee and Dr. Henley. This book does a > marvelous job about explaining how the female hormones work in our bodies, > not just in the menstrual cycle, but how they impact our overall health, > throughout our life span. He also does an excellent job of explaining why > estrogen and progesterone given in pill form, do not work the same way. > Basically the chemical structure is slightly different than that which is > made in our bodies. This structural difference, cause massive confusion in > our bodies, leading to all sorts of side effects, such as those you are > describing in . The book covers many other avenues of regulating > hormone balance, natural progesterone (a cream that has the same chemical > structure as progesterone made in the body), diet, supplements etc... > Perhaps there will be some clues for you there on what to do next. The book > does cover the connection between hormones and bone loss as well. Although > the book is targeted towards women 30 -50ish, the information seems > pertinent to all women. (I think young women should read it before they > ever decide to go on the pill or not.) > > Kim > > > > ---------- > >From: " jdsb03 " <dbehan@r...> > >To: CHARGE@y... > >Subject: Osteoporosis > >Date: Mon, Aug 5, 2002, 8:40 AM > > > > > Hi, > > > > I have a question about osteoporosis. I wrote in some time ago about > > the use of estrogen. We decided to put on the estrogen because > > a bone age study showed that she has the begining of osteoporosis. A > > year later they decided to bring on her period because taking the > > estrogen was building a linning. Well needles to say was in no > > way ready for this. We just can not make her understand that this is > > normal, and she will never understand. She is just not at that point. > > > > I called the Dr. and told her that we had to find another way to deal > > with this. She had have a Dexa Scan done. Based on that she > > said that she is at high risk for fracture. She now wants to try > > Evista. Possible side effect is hot flases not to metion it is a > > adult drug. > > > > My question is is very small. She 65 pounds and is 4 " 1' she is > > 19. Her bones are not going to be of a 19 year old. They say that she > > is looing bone but I don't understand how they can compare this test > > she is the size of a 6 to 8 year old. This is the first Dexa Scan that > > she has had done so we have nothing to compare to. Maybe she has > > always been this way. We just don't know. > > > > I just don't know what to do next. All I want is for her to be > > healthy and happy. I keep throwing this drugs at her and then try to > > make her understand why she has side effect. > > > > The estrogen is no longer a option I can't put her through that again. > > She spent 4 days of throwing up. Lost 5 pounds which was not water > > she was 65 pounds and went down to 60. Her sugar levels went sky > > high. And All she did was cry and beg me to make her period go away. > > > > Has anyone else had their children tested for osteoporosis? > > > > Any input anyone has I would be very thankful for. > > > > Doris Behan (Mom to 19) > > > > Rochester NY > > > > > > Membership of this email support groups does not constitute membership in > > the CHARGE Syndrome Foundation. > > For information about the CHARGE Syndrome > > Foundation or to become a member (and get the newsletter) > > please contact marion@c... or visit > > the CHARGE Syndrome Foundation web page > > at http://www.chargesyndrome.org > > 6th International CHARGE Syndrome Conference, Cleveland, Ohio, > > July 25-27, 2003. Information will be available at our website > > www.chargesyndrome.org or by calling 1-. > > > > > > Quote Link to comment Share on other sites More sharing options...
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