Guest guest Posted November 25, 2002 Report Share Posted November 25, 2002 , No invitation needed. You meet the qualifications. No boot camp or other training. Unfortunately, this is true. Fortunately, this group does exist and is very helpful. See my posting to Pat for my story. It should be in the list just before this one today. I was extremely pleased to find it in 1999 and have enjoyed it and all the information, help and encouragement I have received in the past 3 years. You will like it here. I hope you hear from Galen, who is a spelunker and kayaker. He is very funny and has many stories to tell. Enjoy and learn. We can learn from you, too. Welcome to the best group of people on the internet, Mike Gray Logansport IN wrote: >Hey Gang! > I am another new guy on the block. My symptoms started in early '96 and >I was diagnosed with PLS in Oct 2000 by Dr. Graves, UCLA Medical Center. If >there is a good side to this disease, it's that my progression has been very >slow. > PLS forced me to retire in Feb 2001 from the Navy after 25 years of >service. Now I am (still) trying to adapt to my new lifestyle. My speech >is somewhat slurred, my arms and legs have weakened, I have some world class >twitching going on, my falls would qualify me for entry in the WWF, but I >have no evidence of any muscle atrophy and my EMGs were clean. > I still get around pretty good with a cane as long as I take it easy >(especially negotiating stairs). Being a die-hard OCB (Old Crippled Biker), >I have rigged my Harley with a side car (my legs could no longer hold a bike >up) and a neat little mechanism to assist my poor ole hands with operating >the clutch. > Of all the decisions I made in my life, the best one is that I married a >pretty lady 25 years ago that is smarter than me, and a Registered Nurse! >How's that for home health care! > Learning that there are others out there through the " PLS-FRIENDS " has >done a lot to improve my outlook. If invited would be proud to be part of >your group! >Later, > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2002 Report Share Posted November 25, 2002 , No invitation needed. You meet the qualifications. No boot camp or other training. Unfortunately, this is true. Fortunately, this group does exist and is very helpful. See my posting to Pat for my story. It should be in the list just before this one today. I was extremely pleased to find it in 1999 and have enjoyed it and all the information, help and encouragement I have received in the past 3 years. You will like it here. I hope you hear from Galen, who is a spelunker and kayaker. He is very funny and has many stories to tell. Enjoy and learn. We can learn from you, too. Welcome to the best group of people on the internet, Mike Gray Logansport IN wrote: >Hey Gang! > I am another new guy on the block. My symptoms started in early '96 and >I was diagnosed with PLS in Oct 2000 by Dr. Graves, UCLA Medical Center. If >there is a good side to this disease, it's that my progression has been very >slow. > PLS forced me to retire in Feb 2001 from the Navy after 25 years of >service. Now I am (still) trying to adapt to my new lifestyle. My speech >is somewhat slurred, my arms and legs have weakened, I have some world class >twitching going on, my falls would qualify me for entry in the WWF, but I >have no evidence of any muscle atrophy and my EMGs were clean. > I still get around pretty good with a cane as long as I take it easy >(especially negotiating stairs). Being a die-hard OCB (Old Crippled Biker), >I have rigged my Harley with a side car (my legs could no longer hold a bike >up) and a neat little mechanism to assist my poor ole hands with operating >the clutch. > Of all the decisions I made in my life, the best one is that I married a >pretty lady 25 years ago that is smarter than me, and a Registered Nurse! >How's that for home health care! > Learning that there are others out there through the " PLS-FRIENDS " has >done a lot to improve my outlook. If invited would be proud to be part of >your group! >Later, > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2002 Report Share Posted November 26, 2002 HI SCOTT, TALK ABOUT CHARACTERS----- DID I UNDERSTAND YOU RIGHT. YOU MODIFIED YOUR BIKE WITH A SIDE CAR IN ORDER TO DRIVE. I WANT TO SEE THAT ONE. SEE IF YOU CAN SEND A PICTURE BUT NOT AS AN ATTACHMENT. FOR SOME REASON I CAN'T OPEN AN ATTACHMENT. WELCOME!!!!!!!!!!!!! BONNIE OH Re: New Guy Welcome aboard mate, , no invitation is needed to get into this group but be warned some of us are characters if you already haven't noticed. We come in all shapes and sizes and in different stages with this @!## disease. Ask any question, we are open to any discussion so ask away. I will e-mail you direct and tell you my story so I don't repeat myself to the others. Sorry that you have to join our group in the first place.............. Flora Brand St Pete, FL Quote Link to comment Share on other sites More sharing options...
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