Guest guest Posted June 30, 2002 Report Share Posted June 30, 2002 Hi, My daughter ()was recently diagnosed with CHARGE Syndrome and my wife and I are terrified! She has already had two surgeries: 1: Tubes in ears. 2: Cleft Palate Surgury She will also need two hearing aids and will probably have some visual problrms as well. While we adore our daughter and would not trade her for the world, the medical costs are getting out of hand. I'm sure I'm not alone and was wondering what everyone else is doing to cope. Chesley Hann Quote Link to comment Share on other sites More sharing options...
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