Guest guest Posted June 3, 2002 Report Share Posted June 3, 2002 In a message dated 6/3/2002 3:24:29 PM Pacific Daylight Time, oganm@... writes: > However, we're back to what in the world was her concern and how long will > this report take to get to the doctor! > Marilyn, Tryny has an echo done twice a year, every year and it only takes a day for the cardiologist to get the results. All he has to do is pull it up on the computer for preliminary results and if there are any abnormalities you'll be contacted. I would call the cardiologist tomorrow morning and you can also call the lab for preliminary results or to let them know you will be calling the cardiologist for results about 2 hours later and want the results to him by then. You'd be surprised what you can get them to do if you stand firm and use some muscle. Keep good thoughts. If the results were major, you would have been contacted that same day (as we were with Tryny last year on a routine echo). We had gotten home from the hospital and there was a message on my machine to get to the cardiologist right away. Tryny's artificial heart valve was clogged (not life threatening) but the cardiologist wanted to set a date within a week to have it unclogged. Let us know and I'll think about you and your concerns, Debra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2002 Report Share Posted June 3, 2002 In a message dated 6/3/2002 3:24:29 PM Pacific Daylight Time, oganm@... writes: > However, we're back to what in the world was her concern and how long will > this report take to get to the doctor! > Marilyn, Tryny has an echo done twice a year, every year and it only takes a day for the cardiologist to get the results. All he has to do is pull it up on the computer for preliminary results and if there are any abnormalities you'll be contacted. I would call the cardiologist tomorrow morning and you can also call the lab for preliminary results or to let them know you will be calling the cardiologist for results about 2 hours later and want the results to him by then. You'd be surprised what you can get them to do if you stand firm and use some muscle. Keep good thoughts. If the results were major, you would have been contacted that same day (as we were with Tryny last year on a routine echo). We had gotten home from the hospital and there was a message on my machine to get to the cardiologist right away. Tryny's artificial heart valve was clogged (not life threatening) but the cardiologist wanted to set a date within a week to have it unclogged. Let us know and I'll think about you and your concerns, Debra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2002 Report Share Posted June 3, 2002 In a message dated 6/3/2002 3:24:29 PM Pacific Daylight Time, oganm@... writes: > However, we're back to what in the world was her concern and how long will > this report take to get to the doctor! > Marilyn, Tryny has an echo done twice a year, every year and it only takes a day for the cardiologist to get the results. All he has to do is pull it up on the computer for preliminary results and if there are any abnormalities you'll be contacted. I would call the cardiologist tomorrow morning and you can also call the lab for preliminary results or to let them know you will be calling the cardiologist for results about 2 hours later and want the results to him by then. You'd be surprised what you can get them to do if you stand firm and use some muscle. Keep good thoughts. If the results were major, you would have been contacted that same day (as we were with Tryny last year on a routine echo). We had gotten home from the hospital and there was a message on my machine to get to the cardiologist right away. Tryny's artificial heart valve was clogged (not life threatening) but the cardiologist wanted to set a date within a week to have it unclogged. Let us know and I'll think about you and your concerns, Debra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2002 Report Share Posted June 4, 2002 Thoughts are with you and we'll hope for the best. Kim ---------- > >To: <CHARGE > >Subject: echo for >Date: Mon, Jun 3, 2002, 2:48 PM > > It was a bit interesting today and I'm not sure how to take it. > was referred to cardiology for an echo because of having apnea. > The Pulmo said that having apnea over long periods of time can cause the > heart to become enlarged. (Funny he's never ordered one for Kenny, > although he's been using CPAP for apnea for a few years now.) He just > wanted to have her checked. We haven't been to cardiology since > was 1 year old and cleared for her ASD & PDA (closed on their own). > > The tech who did the echo really went over her good. A few times she > looked a bit bothered - not a good view or something she didn't like? I > don't know. She asked if had been to see any cardiologist > recently. (No.) Also asked if they (Riley) would have any previous echo > records on her to compare. (Only from newborn timeframe. I don't think we > had one after that, even when we were released from them at 1 year.) When > she got finished, she said she wanted a doctor to look at the echo. She > came back and said they would send the report to our doctor! > > Now I am concerned, but not concerned! I don't know enough about what I > was looking at. I knew when we were seeing the heart but I wasn't sure > which parts I was seeing (liek ventricle, etc.). They didn't have the > " color " when last had one. This one could show the red/blue for > oxygenated and non-xygenated blood. Which, of course, I thought was very > interesting. However, we're back to what in the world was her concern and > how long will this report take to get to the doctor! > Think good stuff for . This was one area that she had resolved long > ago - or so we thought. > > Friends in CHARGE, > Marilyn Ogan > Mom of Kenny (12, ADD) and (9, CHARGE+) > Wife of Rick > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2002 Report Share Posted June 4, 2002 Marilyn, I really hope it's nothing...it is just awful when you think you have one thing resolved and there it comes sneaking back... ~ Weir Mom to Kennedy, 4yr old CHARGEr, 12, 11, and wife to Graeme New Brunswick, Canada Visit the Weir Website: http://personal.nbnet.nb.ca/gweir ICQ# 1426476 echo for It was a bit interesting today and I'm not sure how to take it. was referred to cardiology for an echo because of having apnea. The Pulmo said that having apnea over long periods of time can cause the heart to become enlarged. (Funny he's never ordered one for Kenny, although he's been using CPAP for apnea for a few years now.) He just wanted to have her checked. We haven't been to cardiology since was 1 year old and cleared for her ASD & PDA (closed on their own). The tech who did the echo really went over her good. A few times she looked a bit bothered - not a good view or something she didn't like? I don't know. She asked if had been to see any cardiologist recently. (No.) Also asked if they (Riley) would have any previous echo records on her to compare. (Only from newborn timeframe. I don't think we had one after that, even when we were released from them at 1 year.) When she got finished, she said she wanted a doctor to look at the echo. She came back and said they would send the report to our doctor! Now I am concerned, but not concerned! I don't know enough about what I was looking at. I knew when we were seeing the heart but I wasn't sure which parts I was seeing (liek ventricle, etc.). They didn't have the " color " when last had one. This one could show the red/blue for oxygenated and non-xygenated blood. Which, of course, I thought was very interesting. However, we're back to what in the world was her concern and how long will this report take to get to the doctor! Think good stuff for . This was one area that she had resolved long ago - or so we thought. Friends in CHARGE, Marilyn Ogan Mom of Kenny (12, ADD) and (9, CHARGE+) Wife of Rick Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2002 Report Share Posted June 4, 2002 Marilyn, I really hope it's nothing...it is just awful when you think you have one thing resolved and there it comes sneaking back... ~ Weir Mom to Kennedy, 4yr old CHARGEr, 12, 11, and wife to Graeme New Brunswick, Canada Visit the Weir Website: http://personal.nbnet.nb.ca/gweir ICQ# 1426476 echo for It was a bit interesting today and I'm not sure how to take it. was referred to cardiology for an echo because of having apnea. The Pulmo said that having apnea over long periods of time can cause the heart to become enlarged. (Funny he's never ordered one for Kenny, although he's been using CPAP for apnea for a few years now.) He just wanted to have her checked. We haven't been to cardiology since was 1 year old and cleared for her ASD & PDA (closed on their own). The tech who did the echo really went over her good. A few times she looked a bit bothered - not a good view or something she didn't like? I don't know. She asked if had been to see any cardiologist recently. (No.) Also asked if they (Riley) would have any previous echo records on her to compare. (Only from newborn timeframe. I don't think we had one after that, even when we were released from them at 1 year.) When she got finished, she said she wanted a doctor to look at the echo. She came back and said they would send the report to our doctor! Now I am concerned, but not concerned! I don't know enough about what I was looking at. I knew when we were seeing the heart but I wasn't sure which parts I was seeing (liek ventricle, etc.). They didn't have the " color " when last had one. This one could show the red/blue for oxygenated and non-xygenated blood. Which, of course, I thought was very interesting. However, we're back to what in the world was her concern and how long will this report take to get to the doctor! Think good stuff for . This was one area that she had resolved long ago - or so we thought. Friends in CHARGE, Marilyn Ogan Mom of Kenny (12, ADD) and (9, CHARGE+) Wife of Rick Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2002 Report Share Posted June 4, 2002 Marilyn, We had this same conversation with Kendra's cardiologist just last week about possible cardiac complications from apnea. His explanation was that the pulmonary arteries can sometimes become 'hard' and the blood can not flow as well in some individuals who experience apnea. Then the heart has to work harder causing pulmonary hypertension. An echo and a 12 lead EKG can help assess this situation. It appears from our conversation with him, that any damage that results to the pulmonary arteries due to apnea is generally reversible by correcting the problem through c-pap or surgical attention to the problem or other corrective measures depending on the problem. For the first time ever I heard that sometimes surgical correction can alleviate some of the effects of 'low-tone' to the airways. He mentioned that making some of the extra tissue or 'flaps' tighter, sometimes the obstructive closure of the airway during sleep can be alleviated. I do not know if the technician was alluding to such damage to the pulmonary arteries or if there was something else going on or if the technician was not sharing information in the sense that usually they are asked not to offer explanations or opinions. I would call the pediatrician right away and get some answers! After the gastrostomy fiasco, they, at Riley, should be extremely responsive to your concerns and should quickly get the information to your pediatrician!!!!!!!!!! Please keep us posted. At 04:48 PM 6/3/02 -0500, you wrote: >It was a bit interesting today and I'm not sure how to take it. > was referred to cardiology for an echo because of having >apnea. The Pulmo said that having apnea over long periods of time can >cause the heart to become enlarged. (Funny he's never ordered one for >Kenny, although he's been using CPAP for apnea for a few years now.) He >just wanted to have her checked. We haven't been to cardiology since > was 1 year old and cleared for her ASD & PDA (closed on their own). > >The tech who did the echo really went over her good. A few times she >looked a bit bothered - not a good view or something she didn't like? I >don't know. She asked if had been to see any cardiologist >recently. (No.) Also asked if they (Riley) would have any previous echo >records on her to compare. (Only from newborn timeframe. I don't think we >had one after that, even when we were released from them at 1 year.) When >she got finished, she said she wanted a doctor to look at the echo. She >came back and said they would send the report to our doctor! > >Now I am concerned, but not concerned! I don't know enough about what I >was looking at. I knew when we were seeing the heart but I wasn't sure >which parts I was seeing (liek ventricle, etc.). They didn't have the > " color " when last had one. This one could show the red/blue for >oxygenated and non-xygenated blood. Which, of course, I thought was very >interesting. However, we're back to what in the world was her concern and >how long will this report take to get to the doctor! >Think good stuff for . This was one area that she had resolved >long ago - or so we thought. > >Friends in CHARGE, >Marilyn Ogan >Mom of Kenny (12, ADD) and (9, CHARGE+) >Wife of Rick Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2002 Report Share Posted June 4, 2002 Marilyn, We had this same conversation with Kendra's cardiologist just last week about possible cardiac complications from apnea. His explanation was that the pulmonary arteries can sometimes become 'hard' and the blood can not flow as well in some individuals who experience apnea. Then the heart has to work harder causing pulmonary hypertension. An echo and a 12 lead EKG can help assess this situation. It appears from our conversation with him, that any damage that results to the pulmonary arteries due to apnea is generally reversible by correcting the problem through c-pap or surgical attention to the problem or other corrective measures depending on the problem. For the first time ever I heard that sometimes surgical correction can alleviate some of the effects of 'low-tone' to the airways. He mentioned that making some of the extra tissue or 'flaps' tighter, sometimes the obstructive closure of the airway during sleep can be alleviated. I do not know if the technician was alluding to such damage to the pulmonary arteries or if there was something else going on or if the technician was not sharing information in the sense that usually they are asked not to offer explanations or opinions. I would call the pediatrician right away and get some answers! After the gastrostomy fiasco, they, at Riley, should be extremely responsive to your concerns and should quickly get the information to your pediatrician!!!!!!!!!! Please keep us posted. At 04:48 PM 6/3/02 -0500, you wrote: >It was a bit interesting today and I'm not sure how to take it. > was referred to cardiology for an echo because of having >apnea. The Pulmo said that having apnea over long periods of time can >cause the heart to become enlarged. (Funny he's never ordered one for >Kenny, although he's been using CPAP for apnea for a few years now.) He >just wanted to have her checked. We haven't been to cardiology since > was 1 year old and cleared for her ASD & PDA (closed on their own). > >The tech who did the echo really went over her good. A few times she >looked a bit bothered - not a good view or something she didn't like? I >don't know. She asked if had been to see any cardiologist >recently. (No.) Also asked if they (Riley) would have any previous echo >records on her to compare. (Only from newborn timeframe. I don't think we >had one after that, even when we were released from them at 1 year.) When >she got finished, she said she wanted a doctor to look at the echo. She >came back and said they would send the report to our doctor! > >Now I am concerned, but not concerned! I don't know enough about what I >was looking at. I knew when we were seeing the heart but I wasn't sure >which parts I was seeing (liek ventricle, etc.). They didn't have the > " color " when last had one. This one could show the red/blue for >oxygenated and non-xygenated blood. Which, of course, I thought was very >interesting. However, we're back to what in the world was her concern and >how long will this report take to get to the doctor! >Think good stuff for . This was one area that she had resolved >long ago - or so we thought. > >Friends in CHARGE, >Marilyn Ogan >Mom of Kenny (12, ADD) and (9, CHARGE+) >Wife of Rick Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2002 Report Share Posted June 4, 2002 We will be thinking and praying for that all is ok with her. mom to 8years. echo for It was a bit interesting today and I'm not sure how to take it. was referred to cardiology for an echo because of having apnea. The Pulmo said that having apnea over long periods of time can cause the heart to become enlarged. (Funny he's never ordered one for Kenny, although he's been using CPAP for apnea for a few years now.) He just wanted to have her checked. We haven't been to cardiology since was 1 year old and cleared for her ASD & PDA (closed on their own). The tech who did the echo really went over her good. A few times she looked a bit bothered - not a good view or something she didn't like? I don't know. She asked if had been to see any cardiologist recently. (No.) Also asked if they (Riley) would have any previous echo records on her to compare. (Only from newborn timeframe. I don't think we had one after that, even when we were released from them at 1 year.) When she got finished, she said she wanted a doctor to look at the echo. She came back and said they would send the report to our doctor! Now I am concerned, but not concerned! I don't know enough about what I was looking at. I knew when we were seeing the heart but I wasn't sure which parts I was seeing (liek ventricle, etc.). They didn't have the " color " when last had one. This one could show the red/blue for oxygenated and non-xygenated blood. Which, of course, I thought was very interesting. However, we're back to what in the world was her concern and how long will this report take to get to the doctor! Think good stuff for . This was one area that she had resolved long ago - or so we thought. Friends in CHARGE, Marilyn Ogan Mom of Kenny (12, ADD) and (9, CHARGE+) Wife of Rick Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2002 Report Share Posted June 4, 2002 We will be thinking and praying for that all is ok with her. mom to 8years. echo for It was a bit interesting today and I'm not sure how to take it. was referred to cardiology for an echo because of having apnea. The Pulmo said that having apnea over long periods of time can cause the heart to become enlarged. (Funny he's never ordered one for Kenny, although he's been using CPAP for apnea for a few years now.) He just wanted to have her checked. We haven't been to cardiology since was 1 year old and cleared for her ASD & PDA (closed on their own). The tech who did the echo really went over her good. A few times she looked a bit bothered - not a good view or something she didn't like? I don't know. She asked if had been to see any cardiologist recently. (No.) Also asked if they (Riley) would have any previous echo records on her to compare. (Only from newborn timeframe. I don't think we had one after that, even when we were released from them at 1 year.) When she got finished, she said she wanted a doctor to look at the echo. She came back and said they would send the report to our doctor! Now I am concerned, but not concerned! I don't know enough about what I was looking at. I knew when we were seeing the heart but I wasn't sure which parts I was seeing (liek ventricle, etc.). They didn't have the " color " when last had one. This one could show the red/blue for oxygenated and non-xygenated blood. Which, of course, I thought was very interesting. However, we're back to what in the world was her concern and how long will this report take to get to the doctor! Think good stuff for . This was one area that she had resolved long ago - or so we thought. Friends in CHARGE, Marilyn Ogan Mom of Kenny (12, ADD) and (9, CHARGE+) Wife of Rick Quote Link to comment Share on other sites More sharing options...
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