Guest guest Posted February 26, 2002 Report Share Posted February 26, 2002 Meg, Has the manual been updated in the last couple of years? I last purchased mine in '99. Should I purchase another one or is it all still the same? Amy >mom to Brittney 9 CHARgE, 7, 5 From: Meg Hefner, MS To: CHARGE List Sent: Tuesday, February 26, 2002 3:06 PM Subject: website links Hello all. We at the Foundation will be updating the CHARGE website (www.chargesyndrome.org) soon. We would like to include links to useful organizations and other sources of information. I have already identified information on VCF and VATER as well as DBLink and HKNC. If any of you know of other websites that would be useful links for the CHARGE webpage, please e-mail me directly with the URL (website address) and a short description of what it is/why it is helpful. Send the message directly to me and I will compile a list. thanks ( Keedy - please don't send me all 10,000 of your resources ;-) ) Meg meg@... Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation. For information about the CHARGE Syndrome Foundation or to become a member (and get the newsletter) please contact marion@... or visit the CHARGE Syndrome Foundation web page at http://www.chargesyndrome.org 6th International CHARGE Syndrome Conference, Cleveland, Ohio, July 25-27, 2003. Information will be available at our website www.chargesyndrome.org or by calling 1-. Quote Link to comment Share on other sites More sharing options...
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