Guest guest Posted June 19, 2002 Report Share Posted June 19, 2002 hi barb, its cathie, erikas mom! we have the mickey, alsways have, i have been having trouble with it latey. i usually change it every 3 mos, however it has been leaking and causing alot of irraitation lately, i have been having to change it every month! and this is quite uncomfortable for erika, she cries alot. so any of info to me would also be apprecaited. cathie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2002 Report Share Posted June 19, 2002 we alrady put 7 cc's of H20 in. they said they dont like to put much more in b/c it makes the balloon more likely to not last. they aldo told us they generally dont go up much bigger, and that if hte problem persists, they will take it out and let the whole close up a little. is 45 lbs and is in a 2.0 14 fr. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2002 Report Share Posted June 19, 2002 I had a question for anyone out there who uses the Bard feeding tube and likes it. If you do, how long were you told it could stay in and if you switched to the Mickey, do you like it better? Things are fine with 's tube and I hate to 'rock the boat " ... We're going tomorrow if anyone has any advice... Barbara, mom to 20 months Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2002 Report Share Posted June 20, 2002 Barbara, I can't answer this because I believe that Bard tubes are EVIL!!!! We had an awful time with them leaking, etc.... We are very happy now with the Kangaroo Entri Star button.... If things are going well with it, and you like it, that's the main thing though!!! ~ Weir Mom to Kennedy, 4yr old CHARGEr, 12, 11, and wife to Graeme New Brunswick, Canada Visit the Weir Website: http://personal.nbnet.nb.ca/gweir ICQ# 1426476 changing gtubes I had a question for anyone out there who uses the Bard feeding tube and likes it. If you do, how long were you told it could stay in and if you switched to the Mickey, do you like it better? Things are fine with 's tube and I hate to 'rock the boat " ... We're going tomorrow if anyone has any advice... Barbara, mom to 20 months Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation. For information about the CHARGE Syndrome Foundation or to become a member (and get the newsletter) please contact marion@... or visit the CHARGE Syndrome Foundation web page at http://www.chargesyndrome.org 6th International CHARGE Syndrome Conference, Cleveland, Ohio, July 25-27, 2003. Information will be available at our website www.chargesyndrome.org or by calling 1-. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2002 Report Share Posted June 20, 2002 s g-tube(mic-key) just started doing this too his doctors said try putting more water in the ballon if it still leaks he needs to goto the next size up........hope this helps http://community.webtv.net/maryechick12/ http://community.webtv.net/maryechick12/pets Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2002 Report Share Posted June 20, 2002 aahh I see what do they use on adults?? http://community.webtv.net/maryechick12/ http://community.webtv.net/maryechick12/pets Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2002 Report Share Posted June 20, 2002 24fr? Wow! just had her MicKey out at the end of Jan. (and the stoma surgically closed in early Feb.). is just now hitting 50 pounds (at almost 10 yrs. old) and her MicKey button was a 2.5 cm 24 fr.! Seems like I see a lot of kids have smaller than 's was. I sort of wonder why they went so big on her? She had that size almost right away, even with the Bard button. And we got the first button when she was only 6 months old and really tiny - like only around 15 pounds! Just a little retrospection! Friends in CHARGE, Marilyn Ogan Mom of Kenny (12, ADD) and (9, CHARGE+) Wife of Rick Re: changing gtubes > we alrady put 7 cc's of H20 in. they said they dont like to put much more in > b/c it makes the balloon more likely to not last. they aldo told us they > generally dont go up much bigger, and that if hte problem persists, they will > take it out and let the whole close up a little. is 45 lbs and is in a > 2.0 14 fr. > > > Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter) > please contact marion@... or visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > 6th International CHARGE Syndrome Conference, Cleveland, Ohio, > July 25-27, 2003. Information will be available at our website > www.chargesyndrome.org or by calling 1-. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2002 Report Share Posted June 20, 2002 24fr? Wow! just had her MicKey out at the end of Jan. (and the stoma surgically closed in early Feb.). is just now hitting 50 pounds (at almost 10 yrs. old) and her MicKey button was a 2.5 cm 24 fr.! Seems like I see a lot of kids have smaller than 's was. I sort of wonder why they went so big on her? She had that size almost right away, even with the Bard button. And we got the first button when she was only 6 months old and really tiny - like only around 15 pounds! Just a little retrospection! Friends in CHARGE, Marilyn Ogan Mom of Kenny (12, ADD) and (9, CHARGE+) Wife of Rick Re: changing gtubes > we alrady put 7 cc's of H20 in. they said they dont like to put much more in > b/c it makes the balloon more likely to not last. they aldo told us they > generally dont go up much bigger, and that if hte problem persists, they will > take it out and let the whole close up a little. is 45 lbs and is in a > 2.0 14 fr. > > > Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter) > please contact marion@... or visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > 6th International CHARGE Syndrome Conference, Cleveland, Ohio, > July 25-27, 2003. Information will be available at our website > www.chargesyndrome.org or by calling 1-. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2002 Report Share Posted June 20, 2002 24fr? Wow! just had her MicKey out at the end of Jan. (and the stoma surgically closed in early Feb.). is just now hitting 50 pounds (at almost 10 yrs. old) and her MicKey button was a 2.5 cm 24 fr.! Seems like I see a lot of kids have smaller than 's was. I sort of wonder why they went so big on her? She had that size almost right away, even with the Bard button. And we got the first button when she was only 6 months old and really tiny - like only around 15 pounds! Just a little retrospection! Friends in CHARGE, Marilyn Ogan Mom of Kenny (12, ADD) and (9, CHARGE+) Wife of Rick Re: changing gtubes > we alrady put 7 cc's of H20 in. they said they dont like to put much more in > b/c it makes the balloon more likely to not last. they aldo told us they > generally dont go up much bigger, and that if hte problem persists, they will > take it out and let the whole close up a little. is 45 lbs and is in a > 2.0 14 fr. > > > Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter) > please contact marion@... or visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > 6th International CHARGE Syndrome Conference, Cleveland, Ohio, > July 25-27, 2003. Information will be available at our website > www.chargesyndrome.org or by calling 1-. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2002 Report Share Posted June 20, 2002 In a message dated 6/19/02 4:45:38 PM US Eastern Standard Time, rbwarter@... writes: << uses the Bard feeding tube and likes it. >> Barbara, Both my sons have Bard and I love them. We have had Mickey's before and I hate them as they come out to easily. The Bard's never come out on their own. Debra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2002 Report Share Posted June 20, 2002 In a message dated 6/19/02 4:45:38 PM US Eastern Standard Time, rbwarter@... writes: << uses the Bard feeding tube and likes it. >> Barbara, Both my sons have Bard and I love them. We have had Mickey's before and I hate them as they come out to easily. The Bard's never come out on their own. Debra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2002 Report Share Posted June 20, 2002 In a message dated 6/19/02 4:45:38 PM US Eastern Standard Time, rbwarter@... writes: << uses the Bard feeding tube and likes it. >> Barbara, Both my sons have Bard and I love them. We have had Mickey's before and I hate them as they come out to easily. The Bard's never come out on their own. Debra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2002 Report Share Posted June 20, 2002 I agree with Debra, the BARD button is great. My daughter has had the same button for 6 years now and not a single problem with it. Wonderful!!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2002 Report Share Posted June 20, 2002 I agree with Debra, the BARD button is great. My daughter has had the same button for 6 years now and not a single problem with it. Wonderful!!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2002 Report Share Posted June 20, 2002 I agree with Debra, the BARD button is great. My daughter has had the same button for 6 years now and not a single problem with it. Wonderful!!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2002 Report Share Posted June 20, 2002 Hi Barbara, My daughter has the Bard button and has had it ever since she was about a year old. We have hardly ever had any problems with hers. We love it! The last button was put in in 1996 and we still have the same one. Works great! I personally wouldn't trade it for anything! Tia (mom to ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2002 Report Share Posted June 20, 2002 Hi Barbara, My daughter has the Bard button and has had it ever since she was about a year old. We have hardly ever had any problems with hers. We love it! The last button was put in in 1996 and we still have the same one. Works great! I personally wouldn't trade it for anything! Tia (mom to ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2002 Report Share Posted June 20, 2002 Hi Barbara, My daughter has the Bard button and has had it ever since she was about a year old. We have hardly ever had any problems with hers. We love it! The last button was put in in 1996 and we still have the same one. Works great! I personally wouldn't trade it for anything! Tia (mom to ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2002 Report Share Posted June 20, 2002 erika is not 24 fr.! its a 2.0 cm, 14 fr. cathie! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2002 Report Share Posted June 20, 2002 erika is not 24 fr.! its a 2.0 cm, 14 fr. cathie! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2002 Report Share Posted June 20, 2002 erika is not 24 fr.! its a 2.0 cm, 14 fr. cathie! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2002 Report Share Posted June 20, 2002 Debra, How do they not come out for you???? Kennedy's popped out continually!!!?! ~ Weir Mom to Kennedy, 4yr old CHARGEr, 12, 11, and wife to Graeme New Brunswick, Canada Visit the Weir Website: http://personal.nbnet.nb.ca/gweir ICQ# 1426476 Re: changing gtubes In a message dated 6/19/02 4:45:38 PM US Eastern Standard Time, rbwarter@... writes: << uses the Bard feeding tube and likes it. >> Barbara, Both my sons have Bard and I love them. We have had Mickey's before and I hate them as they come out to easily. The Bard's never come out on their own. Debra Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation. For information about the CHARGE Syndrome Foundation or to become a member (and get the newsletter) please contact marion@... or visit the CHARGE Syndrome Foundation web page at http://www.chargesyndrome.org 6th International CHARGE Syndrome Conference, Cleveland, Ohio, July 25-27, 2003. Information will be available at our website www.chargesyndrome.org or by calling 1-. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2002 Report Share Posted June 20, 2002 Sorry. Mistyped! I was surprised at the 14fr since 's was a 24fr. Friends in CHARGE, Marilyn Ogan Mom of Kenny (12, ADD) and (9, CHARGE+) Wife of Rick Re: changing gtubes > erika is not 24 fr.! its a 2.0 cm, 14 fr. > cathie! > > > Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter) > please contact marion@... or visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > 6th International CHARGE Syndrome Conference, Cleveland, Ohio, > July 25-27, 2003. Information will be available at our website > www.chargesyndrome.org or by calling 1-. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2002 Report Share Posted June 20, 2002 Sorry. Mistyped! I was surprised at the 14fr since 's was a 24fr. Friends in CHARGE, Marilyn Ogan Mom of Kenny (12, ADD) and (9, CHARGE+) Wife of Rick Re: changing gtubes > erika is not 24 fr.! its a 2.0 cm, 14 fr. > cathie! > > > Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter) > please contact marion@... or visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > 6th International CHARGE Syndrome Conference, Cleveland, Ohio, > July 25-27, 2003. Information will be available at our website > www.chargesyndrome.org or by calling 1-. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2002 Report Share Posted June 20, 2002 Sorry. Mistyped! I was surprised at the 14fr since 's was a 24fr. Friends in CHARGE, Marilyn Ogan Mom of Kenny (12, ADD) and (9, CHARGE+) Wife of Rick Re: changing gtubes > erika is not 24 fr.! its a 2.0 cm, 14 fr. > cathie! > > > Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter) > please contact marion@... or visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > 6th International CHARGE Syndrome Conference, Cleveland, Ohio, > July 25-27, 2003. Information will be available at our website > www.chargesyndrome.org or by calling 1-. > > > Quote Link to comment Share on other sites More sharing options...
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