Guest guest Posted December 31, 2007 Report Share Posted December 31, 2007 Ok, just wondering if there is anyone else like me. We lived in WA state when I was diagnosed, the meds worked great, I felt great, could do most anything, just all around felt good. So my husband who is navy was due to transfer, so he thought coming down south to MS would be great for me. NOPE, this has been the worst 3 yrs of my life. I can barely get thru a day anymore, cannot open things, swell, and am in constant pain, I take more pain meds now then when we were up north. When I talked with my doc about this he said that some people do better in the cooler weather vs the warmer and I am one that does horrible with the heat and humidity. I feel awful cause I cannot do anything outside with the kids if it gets to 70 or above and basically hold up in the house all summer. Of course hubby does not understand, he is from here and loves the heat and all. I was just wondering if there was anyone else who preferes the cold instead of the warmer weather Tammie In a message dated 12/31/2007 8:37:59 A.M. Central Standard Time, kguynn@... writes: While fatigue is part of this disease, you need to make sure their isn't something else in this puzzle. Please get your B12, ferritin, iron counts, thyroid (NOT just TSH Free T3 and Free T4 too) done on a regular basis. While the ferritin range goes down it like 9, when you research it out you need to be in the 60-90, some doctors like you around 120. Ferritin is you blood stores, where the body goes first. B12, range goes as low as 300....when you research it 500's where you need to be. Take care, Kate G Hashi's AS At 09:30 PM 12/30/2007, you wrote: >I was diagnosed in 2003 and the fatigue for me has only gotten worse. When >I told my rheumy that I needed 12 hours sleep per 24 hours I think he felt >that was excessive, but that is the way my life is. I am fortunate in that >I was able to sell my home a little over 1 year ago for an inflated price >and I relocated in a warmer climate with reasonable home prices. > >When I am very stressed, required more sleep than ever. The only time >that I feel " normal " is when I am on steroids. I don't require as much >sleep and my joints don't hurt as much. **************************************See AOL's top rated recipes (http://food.aol.com/top-rated-recipes?NCID=aoltop00030000000004) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2007 Report Share Posted December 31, 2007 Hello:) I live in Michigan and I do horribly in the cold weather and not so great in the humid weather either. i get extremely sick when visiting FL but did great when I visited CA. Any changes from cold to hot suddenly and I flare as well. --- spincity64@... wrote: > Ok, just wondering if there is anyone else like me. > We lived in WA state > when I was diagnosed, the meds worked great, I felt > great, could do most > anything, just all around felt good. So my husband > who is navy was due to transfer, > so he thought coming down south to MS would be great > for me. NOPE, this has > been the worst 3 yrs of my life. I can barely get > thru a day anymore, cannot > open things, swell, and am in constant pain, I take > more pain meds now then > when we were up north. When I talked with my doc > about this he said that some > people do better in the cooler weather vs the warmer > and I am one that does > horrible with the heat and humidity. I feel awful > cause I cannot do anything > outside with the kids if it gets to 70 or above and > basically hold up in the > house all summer. Of course hubby does not > understand, he is from here and loves > the heat and all. I was just wondering if there was > anyone else who preferes > the cold instead of the warmer weather > > > Tammie > > > > > > In a message dated 12/31/2007 8:37:59 A.M. Central > Standard Time, > kguynn@... writes: > > > > > While fatigue is part of this disease, you need to > make sure their isn't > something else in this puzzle. Please get your B12, > ferritin, iron counts, > thyroid (NOT just TSH Free T3 and Free T4 too) done > on a regular > basis. While the ferritin range goes down it like 9, > when you research it > out you need to be in the 60-90, some doctors like > you around > 120. Ferritin is you blood stores, where the body > goes first. B12, range > goes as low as 300....when you research it 500's > where you need to be. > > Take care, > > Kate G > Hashi's > AS > > At 09:30 PM 12/30/2007, you wrote: > >I was diagnosed in 2003 and the fatigue for me has > only gotten worse. When > >I told my rheumy that I needed 12 hours sleep per > 24 hours I think he felt > >that was excessive, but that is the way my life is. > I am fortunate in that > >I was able to sell my home a little over 1 year > ago for an inflated price > >and I relocated in a warmer climate with > reasonable home prices. > > > >When I am very stressed, required more sleep than > ever. The only time > >that I feel " normal " is when I am on steroids. I > don't require as much > >sleep and my joints don't hurt as much. > > > > > > > > > **************************************See AOL's top > rated recipes > (http://food.aol.com/top-rated-recipes?NCID=aoltop00030000000004) > > > [Non-text portions of this message have been > removed] > > ________________________________________________________________________________\ ____ Be a better friend, newshound, and know-it-all with Mobile. Try it now. http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2007 Report Share Posted December 31, 2007 I have found that the humidity affects me far more than the temperature. I do much better on a very cold but dry day in Minnesota than I do on a damp winter day in Southern California. People think I'm a bit strange, but I prefer to spend winter in Minnesota and summer in SoCal! Gentle hugs and hope for a pain-free day, On Dec 31, 2007 7:22 AM, <spincity64@...> wrote: > Ok, just wondering if there is anyone else like me. We lived in WA state > when I was diagnosed, the meds worked great, I felt great, could do most > anything, just all around felt good. So my husband who is navy was due to > transfer, > so he thought coming down south to MS would be great for me. NOPE, this has > been the worst 3 yrs of my life. I can barely get thru a day anymore, > cannot > open things, swell, and am in constant pain, I take more pain meds now then > when we were up north. When I talked with my doc about this he said that > some > people do better in the cooler weather vs the warmer and I am one that does > horrible with the heat and humidity. I feel awful cause I cannot do > anything > outside with the kids if it gets to 70 or above and basically hold up in > the > house all summer. Of course hubby does not understand, he is from here and > loves > the heat and all. I was just wondering if there was anyone else who > preferes > the cold instead of the warmer weather > > > Tammie > > -- South Pasadena, CA / Lilydale, MN You can see my galleries at http://www.pbase.com/arenared986 M. Schulz - " All you need is love. But a little chocolate now and then doesn't hurt. " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2007 Report Share Posted December 31, 2007 Ditto.... I live in Florida. The humidity makes me miserable. It is not the temperature I react to. Overell <patricia.overell@...> wrote: I have found that the humidity affects me far more than the temperature. I do much better on a very cold but dry day in Minnesota than I do on a damp winter day in Southern California. People think I'm a bit strange, but I prefer to spend winter in Minnesota and summer in SoCal! Gentle hugs and hope for a pain-free day, On Dec 31, 2007 7:22 AM, <spincity64@...> wrote: > Ok, just wondering if there is anyone else like me. We lived in WA state > when I was diagnosed, the meds worked great, I felt great, could do most > anything, just all around felt good. So my husband who is navy was due to > transfer, > so he thought coming down south to MS would be great for me. NOPE, this has > been the worst 3 yrs of my life. I can barely get thru a day anymore, > cannot > open things, swell, and am in constant pain, I take more pain meds now then > when we were up north. When I talked with my doc about this he said that > some > people do better in the cooler weather vs the warmer and I am one that does > horrible with the heat and humidity. I feel awful cause I cannot do > anything > outside with the kids if it gets to 70 or above and basically hold up in > the > house all summer. Of course hubby does not understand, he is from here and > loves > the heat and all. I was just wondering if there was anyone else who > preferes > the cold instead of the warmer weather > > > Tammie > > -- South Pasadena, CA / Lilydale, MN You can see my galleries at http://www.pbase.com/arenared986 M. Schulz - " All you need is love. But a little chocolate now and then doesn't hurt. " Raniolo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2008 Report Share Posted January 3, 2008 I think my body is definitely reacting to Michigans 10 degree weather and 19 inches of snow at the moment!! --- " bigbear4x4@... " <bigbear4x4@...> wrote: > I love WA too. I didn't understand it either but I > felt great up > there. I am in Texas and breathing is even a chore. > Ich! Cassy--- > In , spincity64@... wrote: > > > > Ok, just wondering if there is anyone else like > me. We lived in WA > state > > when I was diagnosed, the meds worked great, I > felt great, could do > most > > anything, just all around felt good. So my husband > who is navy was > due to transfer, > > so he thought coming down south to MS would be > great for me. NOPE, > this has > > been the worst 3 yrs of my life. I can barely get > thru a day > anymore, cannot > > open things, swell, and am in constant pain, I > take more pain meds > now then > > when we were up north. When I talked with my doc > about this he said > that some > > people do better in the cooler weather vs the > warmer and I am one > that does > > horrible with the heat and humidity. I feel awful > cause I cannot do > anything > > outside with the kids if it gets to 70 or above > and basically hold > up in the > > house all summer. Of course hubby does not > understand, he is from > here and loves > > the heat and all. I was just wondering if there > was anyone else > who preferes > > the cold instead of the warmer weather > > > > > > Tammie > > > > > > > > > > > > In a message dated 12/31/2007 8:37:59 A.M. Central > Standard Time, > > kguynn@... writes: > > > > > > > > > > While fatigue is part of this disease, you need to > make sure their > isn't > > something else in this puzzle. Please get your > B12, ferritin, iron > counts, > > thyroid (NOT just TSH Free T3 and Free T4 too) > done on a regular > > basis. While the ferritin range goes down it like > 9, when you > research it > > out you need to be in the 60-90, some doctors like > you around > > 120. Ferritin is you blood stores, where the body > goes first. B12, > range > > goes as low as 300....when you research it 500's > where you need to > be. > > > > Take care, > > > > Kate G > > Hashi's > > AS > > > > At 09:30 PM 12/30/2007, you wrote: > > >I was diagnosed in 2003 and the fatigue for me > has only gotten > worse. When > > >I told my rheumy that I needed 12 hours sleep per > 24 hours I > think he felt > > >that was excessive, but that is the way my life > is. I am > fortunate in that > > >I was able to sell my home a little over 1 year > ago for an > inflated price > > >and I relocated in a warmer climate with > reasonable home prices. > > > > > >When I am very stressed, required more sleep > than ever. The only > time > > >that I feel " normal " is when I am on steroids. I > don't require as > much > > >sleep and my joints don't hurt as much. > > > > > > > > > > > > > > > > > > **************************************See AOL's > top rated recipes > > > (http://food.aol.com/top-rated-recipes?NCID=aoltop00030000000004) > > > > > > [Non-text portions of this message have been > removed] > > > > > ________________________________________________________________________________\ ____ Be a better friend, newshound, and know-it-all with Mobile. Try it now. http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2009 Report Share Posted January 5, 2009 I agree the heat and humidity drain me a old saying the bear can get us in heart beat with heat and humidity too. Now the cold damp day's hurt me to the bone too. Now Sue if you come down let me know too Stanley and I can meet up with you and her spouse and see the horses too that would be great.I would have to stretch some riding up there too. But yes heat and humidty drain me to. heidi > Sue, > > I'm trying to think ... I can't honestly think if the heat " hurts " me, but it is draining if it gets too hot. I don't do too much work in the heat. I would say that the cold actually hurts me more, especially those " wet cold " days that seem to go right to the bone. > > () > > > > > > > From: Urbanczyk <featherednst@...> > Subject: Re: [HeidiLiane] Support Group- brenda > HeidiLiane > Date: Monday, January 5, 2009, 6:26 PM > > > > > > > > > > > > , I have a question. How does the heat in the summer affect your pain and exhaustion? Since it is so humid does that bother you? I was wondering what it was going to do to me. > > Soak in some warmth for me today. It's cold, cold, cold. > > hugs, > Sue > > > - > > > > > Quote Link to comment Share on other sites More sharing options...
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