Guest guest Posted July 13, 2003 Report Share Posted July 13, 2003 Hi Liz, Reading, WOW!! I live right above Macungie in the mountains. I know Fleetwood pretty well. Nice town. I am looking forward to getting to know you better. Hugs, babs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2003 Report Share Posted July 19, 2003 hello . you wonder how i can go on with out pain meds. it is not easy. i think i have built up a high tolerance for pain. every time i try a pain killer i either go into cardiac or respatory arrest. no thank you. some times i wish i had a chain saw. then no more pain in my body. i cry a lot and fuss a lot. i go into bad depression because of it . have tried block, acupuncture, relaxing techniches, and anything else out there with no relief. some day it is harder than other. right now i am in humoungous attact. this is how i cope. my webbieis my contact with other people that have this monster. they understand. my family does not. so you guys are hear for me. thanks for caring. cathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2003 Report Share Posted July 19, 2003 hello . you wonder how i can go on with out pain meds. it is not easy. i think i have built up a high tolerance for pain. every time i try a pain killer i either go into cardiac or respatory arrest. no thank you. some times i wish i had a chain saw. then no more pain in my body. i cry a lot and fuss a lot. i go into bad depression because of it . have tried block, acupuncture, relaxing techniches, and anything else out there with no relief. some day it is harder than other. right now i am in humoungous attact. this is how i cope. my webbieis my contact with other people that have this monster. they understand. my family does not. so you guys are hear for me. thanks for caring. cathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2003 Report Share Posted July 19, 2003 HI , Nice to meet you. We are always here for you and anyone else who needs us. I totally understand what you are going through. It is so hard when no one in your family understands or cares. RSD is very hard to deal with by yourself. Hang in there. Take care Hugs, babs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2003 Report Share Posted July 19, 2003 HI , Nice to meet you. We are always here for you and anyone else who needs us. I totally understand what you are going through. It is so hard when no one in your family understands or cares. RSD is very hard to deal with by yourself. Hang in there. Take care Hugs, babs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2003 Report Share Posted July 19, 2003 HI , Nice to meet you. We are always here for you and anyone else who needs us. I totally understand what you are going through. It is so hard when no one in your family understands or cares. RSD is very hard to deal with by yourself. Hang in there. Take care Hugs, babs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2003 Report Share Posted July 20, 2003 babs, what type of spine surgery did you have may i ask? I know ive had a few surgerys that have caused the spread of my rsd. Eve >From: tinstime@... >Reply-To: RSD-CRPSofAmerica >To: RSD-CRPSofAmerica >Subject: Re: Re: expanding symptoms reply leann >Date: Sun, 20 Jul 2003 21:45:59 -0400 (EDT) > >Hi Eve, nice to meet you. I saw what you wrote to Leen and I just >wanted to tell you how sorry I am that your RSD spread from your >surgery. This has been my experience too. I already had RSD full body >when I had to have surgery on my spine. Up until then I did not have >the RSD in my face or scalp. Well the surgery did it. The bad was >really bad and I still have burning pain in my scalp when I brush and >blow dry and wash my hair. It is a terrible place to have the RSD. My >face drooped on one side from the RSD there. So I completely >understand. It is a great chance we take when we have surgeries. > >Take care > >Hugs, >babs > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2003 Report Share Posted July 20, 2003 HI Eve, I had two discs removed that were crumbled. I also had part of a bone removed from my vertebrae that was pressing on a nerve in the same operation. I had it done at Jefferson hospital in Philadelphia, PA. about 22 years ago. I stayed in the hospital for 2 weeks and then when I came home I had to be in a hospital bed at a 30 degree angle for 3 months. That was the longest three months of my life. And that was just the beginning of my spine problems. They won't do any other surgeries on me though. I now have three herniated discs and degenerative disc disease. I have two spinal cord stimulators which help with the pain. Take care Hugs, babs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2003 Report Share Posted July 20, 2003 wow, i also have degenerative disc disease also and scoliosis. Eve Working together for RSD awareness and the Dream of Never Again. www.forGrace.org >From: tinstime@... >Reply-To: RSD-CRPSofAmerica >To: RSD-CRPSofAmerica >Subject: Re: Re: babs >Date: Sun, 20 Jul 2003 22:51:02 -0400 (EDT) > >HI Eve, I had two discs removed that were crumbled. I also had part of >a bone removed from my vertebrae that was pressing on a nerve in the >same operation. I had it done at Jefferson hospital in >Philadelphia, PA. >about 22 years ago. I stayed in the hospital for 2 weeks and then when >I came home I had to be in a hospital bed at a 30 degree angle for 3 >months. That was the longest three months of my life. >And that was just the beginning of my spine problems. They won't do any >other surgeries on me though. I now have three herniated discs and >degenerative disc disease. I have two spinal cord stimulators which >help with the pain. > >Take care > >Hugs, >babs > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2003 Report Share Posted July 20, 2003 Hi Eve, Do you have alot of pain in your back? I used to have so much pain until I got an SCS in. I also have RSD in the area of my tailbone and in my neck. My back is really a mess but I guess as long as I can walk they don't want to mess with it. For the last couple of years my back tends to go out of place. If I sit for a long period of time and then try to get up sometimes my back goes out of place. When that happens a terrible pain comes on and I have to sit back down again. I usually wait a few minutes and then try again. Usually it is ok then. I don't know why it does this. The dr thinks that maybe there is another disc that is crumbled. I had no back problems until I got RSD. I am just thankful that I can still move. BEfore they did the operation I had numbness in both legs. I could not walk at all. I took a chance with having the operation but I wanted to have the chance to walk again. Of course that was not guarenteen. AFter the operation I still could not walk because of the RSD but I got the feeling in both legs back again. My left foot is atrophied from the RSD and I have alot of muscle depletion in my left leg also. Once I got the SCS in for my lower body and went to physical therapy I could walk again. I still have bad flares of the RSD and that is when my dr gives me the epidural injections. Usually three of them 3 weeks apart does the trick. Its terrible to say but this is the only good thing about having RSD for so long; my dr really knows exactly what kind of treatment works and it is done promptly when I need it. TAke care Hugs, babs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2003 Report Share Posted July 20, 2003 yes i have horrible pain in my back i also forgot to mention i may have also been told twice i might have spinal stenosis also but they are still not sure. i never thought back pain could be so bad. sounds like you have been through alot. eve >From: tinstime@... >Reply-To: RSD-CRPSofAmerica >To: RSD-CRPSofAmerica >Subject: Re: Re: babs >Date: Sun, 20 Jul 2003 23:28:37 -0400 (EDT) > >Hi Eve, Do you have alot of pain in your back? I used to have so much >pain until I got an SCS in. I also have RSD in the area of my tailbone >and in my neck. My back is really a mess but I guess as long as I can >walk they don't want to mess with it. For the last couple of years my >back tends to go out of place. If I sit for a long period of time and >then try to get up sometimes my back goes out of place. >When that happens a terrible pain comes on and I have to sit back down >again. I usually wait a few minutes and then try again. Usually it is >ok then. I don't know why it does this. The dr thinks that maybe there >is another disc that is crumbled. I had no back problems until I got >RSD. >I am just thankful that I can still move. BEfore they did the operation >I had numbness in both legs. I could not walk at all. I took a chance >with having the operation but I wanted to have the chance to walk again. >Of course that was not guarenteen. AFter the operation I still could >not walk because of the RSD but I got the feeling in both legs back >again. >My left foot is atrophied from the RSD and I have alot of muscle >depletion in my left leg also. Once I got the SCS in for my lower body >and went to physical therapy I could walk again. I still have bad >flares of the RSD and that is when my dr gives me the epidural >injections. Usually three of them 3 weeks apart does the trick. Its >terrible to say but this is the only good thing about having RSD for so >long; my dr really knows exactly what kind of treatment works and it is >done promptly when I need it. > >TAke care > >Hugs, >babs > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2003 Report Share Posted July 20, 2003 Hi Eve, Yep, I have been through alot but then I have had this a long time. How long have you had RSD? Spinal Stenosis is very painful I've heard. Do you have any problems with your eyes? Hugs, babs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2003 Report Share Posted July 20, 2003 well i have been diagnosed since 99 but injury was 98 but they think that i have had it longer but not really sure how long ive had it. yes a have some problems with my eyes. eve Working together for RSD awareness and the Dream of Never Again. www.forGrace.org >From: tinstime@... >Reply-To: RSD-CRPSofAmerica >To: RSD-CRPSofAmerica >Subject: Re: Re: babs >Date: Sun, 20 Jul 2003 23:53:16 -0400 (EDT) > >Hi Eve, Yep, I have been through alot but then I have had this a long >time. How long have you had RSD? Spinal Stenosis is very painful I've >heard. Do you have any problems with your eyes? > >Hugs, >babs > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2003 Report Share Posted July 20, 2003 I have been wanting to mention my eyes but I was afraid that I would scare some of the people here. I have been having trouble with my eyes for about 4 years now. My left eyelid also droops from having theRSD in the left side of my face. TAke care Hugs babs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2003 Report Share Posted July 21, 2003 Hi Tonia, Well at least your mom was looking out for you. How are you doing today? Are your kids driving you crazy yet? Hugs, babs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2003 Report Share Posted July 21, 2003 Hi Tonia, Well at least your mom was looking out for you. How are you doing today? Are your kids driving you crazy yet? Hugs, babs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2003 Report Share Posted July 21, 2003 Hi, Lois here from New Zealand i,m really interested in spinal stinous.Can you tell me about it please. My daughter has problems with her eyes since about a year after injury.In 3 months she went from no shortsightedness to being able to read only top line on eye chart.The optomistrist asked if she had had RSD because the eye rate of deteriation was very rapid. I hope your day is a warm happy day with laughter and blessings. regards LoisEve wrote: well i have been diagnosed since 99 but injury was 98 but they think that i have had it longer but not really sure how long ive had it. yes a have some problems with my eyes. eve Working together for RSD awareness and the Dream of Never Again. www.forGrace.org >From: tinstime@... >Reply-To: RSD-CRPSofAmerica >To: RSD-CRPSofAmerica >Subject: Re: Re: babs >Date: Sun, 20 Jul 2003 23:53:16 -0400 (EDT) > >Hi Eve, Yep, I have been through alot but then I have had this a long >time. How long have you had RSD? Spinal Stenosis is very painful I've >heard. Do you have any problems with your eyes? > >Hugs, >babs > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2003 Report Share Posted July 21, 2003 Hi, Lois here from New Zealand i,m really interested in spinal stinous.Can you tell me about it please. My daughter has problems with her eyes since about a year after injury.In 3 months she went from no shortsightedness to being able to read only top line on eye chart.The optomistrist asked if she had had RSD because the eye rate of deteriation was very rapid. I hope your day is a warm happy day with laughter and blessings. regards LoisEve wrote: well i have been diagnosed since 99 but injury was 98 but they think that i have had it longer but not really sure how long ive had it. yes a have some problems with my eyes. eve Working together for RSD awareness and the Dream of Never Again. www.forGrace.org >From: tinstime@... >Reply-To: RSD-CRPSofAmerica >To: RSD-CRPSofAmerica >Subject: Re: Re: babs >Date: Sun, 20 Jul 2003 23:53:16 -0400 (EDT) > >Hi Eve, Yep, I have been through alot but then I have had this a long >time. How long have you had RSD? Spinal Stenosis is very painful I've >heard. Do you have any problems with your eyes? > >Hugs, >babs > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2003 Report Share Posted July 21, 2003 Hi, Lois here from New Zealand i,m really interested in spinal stinous.Can you tell me about it please. My daughter has problems with her eyes since about a year after injury.In 3 months she went from no shortsightedness to being able to read only top line on eye chart.The optomistrist asked if she had had RSD because the eye rate of deteriation was very rapid. I hope your day is a warm happy day with laughter and blessings. regards LoisEve wrote: well i have been diagnosed since 99 but injury was 98 but they think that i have had it longer but not really sure how long ive had it. yes a have some problems with my eyes. eve Working together for RSD awareness and the Dream of Never Again. www.forGrace.org >From: tinstime@... >Reply-To: RSD-CRPSofAmerica >To: RSD-CRPSofAmerica >Subject: Re: Re: babs >Date: Sun, 20 Jul 2003 23:53:16 -0400 (EDT) > >Hi Eve, Yep, I have been through alot but then I have had this a long >time. How long have you had RSD? Spinal Stenosis is very painful I've >heard. Do you have any problems with your eyes? > >Hugs, >babs > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2003 Report Share Posted July 21, 2003 lol, not yet.....only have seen them for about 20 minutes so far! Otherwise, they've been with their dad, away from the house! hehehehe. Petey hasn't said much either.......he's either been playing with his toys, or sleeping! I love them at this age.....can't talk, walk, or mouth off yet! Tonia -- Re: Re: Babs Hi Tonia, Well at least your mom was looking out for you. How are youdoing today? Are your kids driving you crazy yet?Hugs,babs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2003 Report Share Posted July 21, 2003 lol, not yet.....only have seen them for about 20 minutes so far! Otherwise, they've been with their dad, away from the house! hehehehe. Petey hasn't said much either.......he's either been playing with his toys, or sleeping! I love them at this age.....can't talk, walk, or mouth off yet! Tonia -- Re: Re: Babs Hi Tonia, Well at least your mom was looking out for you. How are youdoing today? Are your kids driving you crazy yet?Hugs,babs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2003 Report Share Posted July 21, 2003 lol, not yet.....only have seen them for about 20 minutes so far! Otherwise, they've been with their dad, away from the house! hehehehe. Petey hasn't said much either.......he's either been playing with his toys, or sleeping! I love them at this age.....can't talk, walk, or mouth off yet! Tonia -- Re: Re: Babs Hi Tonia, Well at least your mom was looking out for you. How are youdoing today? Are your kids driving you crazy yet?Hugs,babs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2003 Report Share Posted July 21, 2003 Hi Lois, Nice to meet you. So sorry that your daughter has RSD. About the eye problems; I have had RSD for 23 years and it is full body. During this time I have had many problems with my eyes. At first my eyes just got blurry quite a bit. Then I was bothered by seeing double from time to time. The vision in my eyes has gone down rapidly. I have to get my glasses changed about every 4 to 6 mos. There are many people with eye problems that have RSD. My optomaligist says that the problems with my eyes comes from RSD. at RSDhope has many eye problems and is very good at explaining them. if you go to the RSD hope site you can email him and ask any questions you might have. I hope I have helped you. Hugs, babs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2003 Report Share Posted July 21, 2003 Hi Lois, Nice to meet you. So sorry that your daughter has RSD. About the eye problems; I have had RSD for 23 years and it is full body. During this time I have had many problems with my eyes. At first my eyes just got blurry quite a bit. Then I was bothered by seeing double from time to time. The vision in my eyes has gone down rapidly. I have to get my glasses changed about every 4 to 6 mos. There are many people with eye problems that have RSD. My optomaligist says that the problems with my eyes comes from RSD. at RSDhope has many eye problems and is very good at explaining them. if you go to the RSD hope site you can email him and ask any questions you might have. I hope I have helped you. Hugs, babs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2003 Report Share Posted July 21, 2003 Hi Lois, Nice to meet you. So sorry that your daughter has RSD. About the eye problems; I have had RSD for 23 years and it is full body. During this time I have had many problems with my eyes. At first my eyes just got blurry quite a bit. Then I was bothered by seeing double from time to time. The vision in my eyes has gone down rapidly. I have to get my glasses changed about every 4 to 6 mos. There are many people with eye problems that have RSD. My optomaligist says that the problems with my eyes comes from RSD. at RSDhope has many eye problems and is very good at explaining them. if you go to the RSD hope site you can email him and ask any questions you might have. I hope I have helped you. Hugs, babs Quote Link to comment Share on other sites More sharing options...
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