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Re: Digest Number 1279

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Hi Liz:

Sorry to meet you under these circumstances. However, it is wonderful not to

feel alone. I originally started with a neurologist in Huntington who told me

that I had a Motor Neuron disease and referred me to Dr. Halperin, North

Shore Hosp. in Manhasset. He referred me to Dr. Hiroshi Mitsumoto at Columbia

Presbyterian to see if I might be able to participate in his research. One of

the many tests done there was by Dr. Gooch, who you mentioned. There is

still no definite diagnosis either slow progressing ALS or PLS. I use Dr.

Halperin as my primary neurologist because he is involved in ALS research,

was recommended on the ALS website and was listed in the New York magazine as

one of the best doctors in NY in 2001. I live in Commack LI. I am relatively

new to the PLS community as I was diagnosed with MND on June 6, 2001

Where are you located...maybe we might talk.

Bebe Leon Social1997@...

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