New with questions

[Guest guest]

Hello,

Welcome to the group. My name is CarolG. and my son Dominick measured

21mm of asymmetry at 4 months old,( you can see his pictures in his

file marked DOMINICK) he was considered severe.We receive treatment

through Cranial Technologies in ndale, Virginia. Wait for

measurements from cranifacial clinic to be more sure as sometimes the

PTs can be off a little.Cranial Technologies has a website where you

can look at assessmnet charts to try an see if you can tell how bad

she is. It is www.cranialtach.com and you can post pics of your

daughters head and we can all throw our two cents in if you'd like.

Put them in a folder with your daughters name under " our plagio kids "

in the photo section. Take the pictures looking down on the top of

her head. You can also look in there at other pictures to see head

shapes and severity of the other babies. You can see how well

treatment has worked for many of our babies in the before and after

file( always makes you feel better). Take advantage of all the

wonderful info. on this site, an educated parent is the best link to

successful treatment. The younger you can get them into a band the

better and faster the results will be. You can receive excellent

correction at 9 months still, but time is of the essence, so just

make sure you stay on top of things and keep them moving until a band

is on her head should you decide to go with one. What is your

daughters name and yours as well. Look forward to hearing more from

you.

-- In Plagiocephaly , " kstavop " <kstavop@y...> wrote:

>

> Hi - My daugher is 9 months old with Torticollis. We just started

> physical therapy and have been referred to a Craniofacial clinic.

Our

> appt. is April 22 for measurements and evaluation. Her PT took her

> measurments and came up with 17(an estimate). Since some of you

sound

> like veterans with this, is this borderline to where she may need a

> headband? What were your children's measurements?

>

> I am all for the headband if it corrects the shape of her head.

>

> Thanks.

[Guest guest]

Hi and welcome to the grp. We are here to help in any way we can. We

did not have measurements taken. From what I understand, many times

it is up to the parents to decide if they want intervention with

helmet therapy for their child. Hopefully you will see a specialist

with all of the latest info. & research to help make the decision for

your little one. Good luck..

Sue

Colin F., 18 mos.

STARband grad

brachy

>

> Hi - My daugher is 9 months old with Torticollis. We just started

> physical therapy and have been referred to a Craniofacial clinic.

Our

> appt. is April 22 for measurements and evaluation. Her PT took her

> measurments and came up with 17(an estimate). Since some of you

sound

> like veterans with this, is this borderline to where she may need a

> headband? What were your children's measurements?

>

> I am all for the headband if it corrects the shape of her head.

>

> Thanks.

[Guest guest]

Hello and welcome to the group.

17mm would be classified as severe, and at your daughter's age repo

is not going to work anymore. I would def see about getting her

into a band for correction.

It's great that you guys started PT. That is soo important for the

torticollis. Keep us updated on your appointment.

Sandy Willow's Mom

>

> Hi - My daugher is 9 months old with Torticollis. We just started

> physical therapy and have been referred to a Craniofacial clinic.

Our

> appt. is April 22 for measurements and evaluation. Her PT took

her

> measurments and came up with 17(an estimate). Since some of you

sound

> like veterans with this, is this borderline to where she may need

a

> headband? What were your children's measurements?

>

> I am all for the headband if it corrects the shape of her head.

>

> Thanks.

[Guest guest]

Hello and welcome to the group.

17mm would be classified as severe, and at your daughter's age repo

is not going to work anymore. I would def see about getting her

into a band for correction.

It's great that you guys started PT. That is soo important for the

torticollis. Keep us updated on your appointment.

Sandy Willow's Mom

>

> Hi - My daugher is 9 months old with Torticollis. We just started

> physical therapy and have been referred to a Craniofacial clinic.

Our

> appt. is April 22 for measurements and evaluation. Her PT took

her

> measurments and came up with 17(an estimate). Since some of you

sound

> like veterans with this, is this borderline to where she may need

a

> headband? What were your children's measurements?

>

> I am all for the headband if it corrects the shape of her head.

>

> Thanks.

[Guest guest]

Sandy,

I do believe it would be in Kara's best interest to get the headband. She has some symmetry issues....larger cheek and eye, one ear closer to the shoulder, etc....

We had her follow-up PT appt. yesterday and they reviewed the streches with us and evaluated her motor skills. It's like she passed up an entire learning section due to her neck and I can't believe we didn't notice or realize that it was all connected.

Anyway, we are spending more time on the tummy and doing the streches every chance we get. Thanks for the reply and I'll keep you posted.

Kim, Mom to Kara Sandy <samipa74@...> wrote:

Hello and welcome to the group.17mm would be classified as severe, and at your daughter's age repo is not going to work anymore. I would def see about getting her into a band for correction.It's great that you guys started PT. That is soo important for the torticollis. Keep us updated on your appointment.Sandy Willow's Mom> > Hi - My daugher is 9 months old with Torticollis. We just started > physical therapy and have been referred to a Craniofacial clinic. Our > appt. is April 22 for measurements and evaluation. Her PT took her > measurments and came up with 17(an estimate). Since some of you sound > like veterans with this, is this borderline to where she may need a

> headband? What were your children's measurements?> > I am all for the headband if it corrects the shape of her head.> > Thanks.For more plagio info

[Guest guest]

Sandy,

I do believe it would be in Kara's best interest to get the headband. She has some symmetry issues....larger cheek and eye, one ear closer to the shoulder, etc....

We had her follow-up PT appt. yesterday and they reviewed the streches with us and evaluated her motor skills. It's like she passed up an entire learning section due to her neck and I can't believe we didn't notice or realize that it was all connected.

Anyway, we are spending more time on the tummy and doing the streches every chance we get. Thanks for the reply and I'll keep you posted.

Kim, Mom to Kara Sandy <samipa74@...> wrote:

Hello and welcome to the group.17mm would be classified as severe, and at your daughter's age repo is not going to work anymore. I would def see about getting her into a band for correction.It's great that you guys started PT. That is soo important for the torticollis. Keep us updated on your appointment.Sandy Willow's Mom> > Hi - My daugher is 9 months old with Torticollis. We just started > physical therapy and have been referred to a Craniofacial clinic. Our > appt. is April 22 for measurements and evaluation. Her PT took her > measurments and came up with 17(an estimate). Since some of you sound > like veterans with this, is this borderline to where she may need a

> headband? What were your children's measurements?> > I am all for the headband if it corrects the shape of her head.> > Thanks.For more plagio info

[Guest guest]

Welcome Kim!!!

My dd also has tort - but it's on the left - after PT we are barely seeing it at all - her shoulder was tight too! But now it's loose! If your dd has right tort keep an eye on the back leftside of her head. Try to keep her off the back of her head as much as possible. You will find repo tips in the files section.

There are great parents here who can answer your questions and give support!!!

JEN

Mommy to 4...and 1 more!!!!

Luli - Tort/Plagio - Hanger Band - CA

"Luli"

www.babiesonline.com/babies/j/jens5th/

[Guest guest]

My son used to hike up his shoulder before his tort was resolved. Our

PT worked a lot on getting him to relax it. It's caused by the child

compensating for the tort by raising the shoulder. Even though she's

holding he head straight, the SCM muscle may not be totally stretched

out yet. It could also just be a habit. Either way it's important to

treat it. Our PT did use some taping on his shoulder blade and neck

to remind him not to hike it up.

Connor (PPO helmet grad 8/04, tort resolved, mild craniofacial microsomia)

>

> Hi guys! My name is Kim and I'm new here. My daughter has

> torticollis and I'm looking for some support and information from

> others who have been where I am.

> She is almost 4 months old and has been going to PT for almost 2

> months now. She is now able to hold her head up straight and turn to

> the right - which she was unable to do at all before. So I feel that

> great strides have been made. The physical therapist is concerned

> that my daughters right shoulder is often pulled up. Her head used to

> tilt on the right and point toward the left. Has anyone else dealt

> with the shoulder pulling up after the head is held upright? I

> assumed this was normal until my PT stated that she was puzzled by

> it. Now I'm a little concerned to say the least.

> I look forward to getting to know some of you and having an

> experienced group of moms to talk to about my worries!

> Kim

>

[Guest guest]

Donna - Welcome! What a wonderful Grandma you are educating yourself like this!!!

to answer your questions -

Luli took about 1-2 weeks to become completely adjusted to the band, they get sweaty and can get frustrated - but it passes quickly!

Our ortho has Luli wear it 23 hrs/day with 1 hour off for bath and cleaning the band.

I can't answer your last question - but I will say that the reason we chose to band is that we didn't want to have regret for not trying everything we could to help her when we could. The window for correction is small and we wanted to at least try.

JEN

Mommy to 4...and 1 more!!!!

Luli - Tort/Plagio - Hanger Band - CA

"Luli"

www.babiesonline.com/babies/j/jens5th/

[Guest guest]

He needs to see a developmental pediatrician who has experience with

Apraxia. My son was only saying maybe 5-7 words all of which were the

ending of the words and was behind expressively and age appropriate

cognitively. He was diagnosed at age 3 y.o. at the Children's Hospital in

Mountainside, NJ...

" alilvrs "

<isHMS@...>

Hi, my name is is, and my son Simon is turning 3 in early

December. He is very behind in expressive speech. He hardly tries to

say anything and no one but me can guess what he is saying, (sometimes

not even me) We took him for a hearing and speech evaluation a few

months ago, but all they could tell me was that he has an expresssive

speech delay, because he wouldnt cooperate or talk for them. He says

only the ending or just the vowels in any word he may try to say. He

is very bright and makes good eye contact, he knows shapes numbers and

the alphabet but cant say all the words jsut point. he can make almost

all the letter sounds but not put them together. I suspect Apraxia the

more i read about it, but i have to go back and get more referrals

from my regular pediatrician who told me to " wait until after he is

three. "

I was wondering what kind of specialists to take him to to in order to

get a diagnosis and if anyone in northern New Jersey can reccomend a

hospital or Dr. that was especially good.

Also at what age were your children diagnosed, i know it is better the

earlier you catch things but its so hard to convince Dr's to listen

sometimes or for them to be patient with a scared, shy little boy.

Thank you for being here and good luck to all of you!

-----------------------------------------

This transmission may contain information that is privileged,

confidential, legally privileged, and/or exempt from disclosure

under applicable law. If you are not the intended recipient, you

are hereby notified that any disclosure, copying, distribution, or

use of the information contained herein (including any reliance

thereon) is STRICTLY PROHIBITED. Although this transmission and

any attachments are believed to be free of any virus or other

defect that might affect any computer system into which it is

received and opened, it is the responsibility of the recipient to

ensure that it is virus free and no responsibility is accepted by

JP Chase & Co., its subsidiaries and affiliates, as

applicable, for any loss or damage arising in any way from its use.

If you received this transmission in error, please immediately

contact the sender and destroy the material in its entirety,

whether in electronic or hard copy format. Thank you.

[Guest guest]

p.s. do not wait until after 3 y.o.! My pediatrician told me the same thing

and I made him give me a referral for a speech evaluation and she clearly

told me he was very behind and recommended the book " Late Talker " by

Geng and Marilyn Agin. She also told me about the Early Intervention

program which ends at age 3 where if you qualify is picked up by your

local school district....don't wait...time is not on your side in these

cases.

----- Forwarded by Myra Bauza/JPMCHASE on 11/14/2006 02:44 PM -----

Home Mortgage Secondary Marketing - Tel 732-452-8795 Fax 732-452-8055

Myra Bauza

11/14/2006 02:41 cc:

PM Subject: Re:

[ ] New with questions(Document link: Myra Bauza)

He needs to see a developmental pediatrician who has experience with

Apraxia. My son was only saying maybe 5-7 words all of which were the

ending of the words and was behind expressively and age appropriate

cognitively. He was diagnosed at age 3 y.o. at the Children's Hospital in

Mountainside, NJ...

" alilvrs "

<isHMS@...>

Sent by: cc:

@yaho Subject:

[ ] New with questions

ogroups.com

11/14/2006 01:08 PM

Please respond to

Hi, my name is is, and my son Simon is turning 3 in early

December. He is very behind in expressive speech. He hardly tries to

say anything and no one but me can guess what he is saying, (sometimes

not even me) We took him for a hearing and speech evaluation a few

months ago, but all they could tell me was that he has an expresssive

speech delay, because he wouldnt cooperate or talk for them. He says

only the ending or just the vowels in any word he may try to say. He

is very bright and makes good eye contact, he knows shapes numbers and

the alphabet but cant say all the words jsut point. he can make almost

all the letter sounds but not put them together. I suspect Apraxia the

more i read about it, but i have to go back and get more referrals

from my regular pediatrician who told me to " wait until after he is

three. "

I was wondering what kind of specialists to take him to to in order to

get a diagnosis and if anyone in northern New Jersey can reccomend a

hospital or Dr. that was especially good.

Also at what age were your children diagnosed, i know it is better the

earlier you catch things but its so hard to convince Dr's to listen

sometimes or for them to be patient with a scared, shy little boy.

Thank you for being here and good luck to all of you!

-----------------------------------------

This transmission may contain information that is privileged,

confidential, legally privileged, and/or exempt from disclosure

under applicable law. If you are not the intended recipient, you

are hereby notified that any disclosure, copying, distribution, or

use of the information contained herein (including any reliance

thereon) is STRICTLY PROHIBITED. Although this transmission and

any attachments are believed to be free of any virus or other

defect that might affect any computer system into which it is

received and opened, it is the responsibility of the recipient to

ensure that it is virus free and no responsibility is accepted by

JP Chase & Co., its subsidiaries and affiliates, as

applicable, for any loss or damage arising in any way from its use.

If you received this transmission in error, please immediately

contact the sender and destroy the material in its entirety,

whether in electronic or hard copy format. Thank you.

[Guest guest]

I recently met a woman who took her daughter to see Dr. Agin, i am

hoping to find a Dr. closer to me and easier to get an appointment

with! thank you for your advice!

>

> p.s. do not wait until after 3 y.o.! My pediatrician told me the

same thing

> and I made him give me a referral for a speech evaluation and she

clearly

> told me he was very behind and recommended the book " Late Talker " by

> Geng and Marilyn Agin. She also told me about the Early Intervention

> program which ends at age 3 where if you qualify is picked up by your

> local school district....don't wait...time is not on your side in these

> cases.

>

> ----- Forwarded by Myra Bauza/JPMCHASE on 11/14/2006 02:44 PM -----

> Home Mortgage Secondary Marketing - Tel 732-452-8795 Fax 732-452-8055

>

> Myra Bauza

> To:

> 11/14/2006 02:41 cc:

> PM Subject: Re:

[ ] New with questions(Document link: Myra Bauza)

>

>

>

>

> He needs to see a developmental pediatrician who has experience with

> Apraxia. My son was only saying maybe 5-7 words all of which were the

> ending of the words and was behind expressively and age appropriate

> cognitively. He was diagnosed at age 3 y.o. at the Children's

Hospital in

> Mountainside, NJ...

>

>

>

> " alilvrs "

> <isHMS@...> To:

> Sent by: cc:

> @yaho Subject:

[ ] New with questions

> ogroups.com

>

>

> 11/14/2006 01:08 PM

> Please respond to

>

>

>

>

>

>

> Hi, my name is is, and my son Simon is turning 3 in early

> December. He is very behind in expressive speech. He hardly tries to

> say anything and no one but me can guess what he is saying, (sometimes

> not even me) We took him for a hearing and speech evaluation a few

> months ago, but all they could tell me was that he has an expresssive

> speech delay, because he wouldnt cooperate or talk for them. He says

> only the ending or just the vowels in any word he may try to say. He

> is very bright and makes good eye contact, he knows shapes numbers and

> the alphabet but cant say all the words jsut point. he can make almost

> all the letter sounds but not put them together. I suspect Apraxia the

> more i read about it, but i have to go back and get more referrals

> from my regular pediatrician who told me to " wait until after he is

> three. "

> I was wondering what kind of specialists to take him to to in order to

> get a diagnosis and if anyone in northern New Jersey can reccomend a

> hospital or Dr. that was especially good.

> Also at what age were your children diagnosed, i know it is better the

> earlier you catch things but its so hard to convince Dr's to listen

> sometimes or for them to be patient with a scared, shy little boy.

> Thank you for being here and good luck to all of you!

>

>

>

>

>

>

> -----------------------------------------

> This transmission may contain information that is privileged,

> confidential, legally privileged, and/or exempt from disclosure

> under applicable law. If you are not the intended recipient, you

> are hereby notified that any disclosure, copying, distribution, or

> use of the information contained herein (including any reliance

> thereon) is STRICTLY PROHIBITED. Although this transmission and

> any attachments are believed to be free of any virus or other

> defect that might affect any computer system into which it is

> received and opened, it is the responsibility of the recipient to

> ensure that it is virus free and no responsibility is accepted by

> JP Chase & Co., its subsidiaries and affiliates, as

> applicable, for any loss or damage arising in any way from its use.

> If you received this transmission in error, please immediately

> contact the sender and destroy the material in its entirety,

> whether in electronic or hard copy format. Thank you.

>

[Guest guest]

Most of the spots providing therapy have long, LONG waiting lists.

Tell your ped you want a referral for therapy NOW because you don't

want to have to wait until he's 3.5-4 to be seen. If he refuses,

ask him what the benefit is - besides financial - to waiting. If he

still refuses, in all honesty, you need a new ped. Dev peds are

great, but in the real world, you need a regular ped who is a bit

more " up " on issues like this. Mine won't really comment on my

son's development, but gives me any and all referrals I've ever

asked for. Without question. Clearly states that I know more than

he on the subject.

Good luck -

M

>

> p.s. do not wait until after 3 y.o.! My pediatrician told me the

same thing

> and I made him give me a referral for a speech evaluation and she

clearly

> told me he was very behind and recommended the book " Late Talker "

by

> Geng and Marilyn Agin. She also told me about the Early

Intervention

> program which ends at age 3 where if you qualify is picked up by

your

> local school district....don't wait...time is not on your side in

these

> cases.

>

> ----- Forwarded by Myra Bauza/JPMCHASE on 11/14/2006 02:44 PM -----

> Home Mortgage Secondary Marketing - Tel 732-452-8795 Fax 732-452-

8055

>

> Myra

Bauza

> To:

> 11/14/2006 02:41

cc:

> PM Subject: Re:

[ ] New with questions(Document link: Myra Bauza)

>

>

>

>

> He needs to see a developmental pediatrician who has experience

with

> Apraxia. My son was only saying maybe 5-7 words all of which were

the

> ending of the words and was behind expressively and age appropriate

> cognitively. He was diagnosed at age 3 y.o. at the Children's

Hospital in

> Mountainside, NJ...

>

>

>

> " alilvrs "

> <isHMS@...> To:

> Sent by:

cc:

> @yaho Subject:

[ ] New with

questions

>

ogroups.com

>

>

> 11/14/2006 01:08

PM

> Please respond

to

>

>

>

>

>

>

> Hi, my name is is, and my son Simon is turning 3 in early

> December. He is very behind in expressive speech. He hardly tries

to

> say anything and no one but me can guess what he is saying,

(sometimes

> not even me) We took him for a hearing and speech evaluation a few

> months ago, but all they could tell me was that he has an

expresssive

> speech delay, because he wouldnt cooperate or talk for them. He

says

> only the ending or just the vowels in any word he may try to say.

He

> is very bright and makes good eye contact, he knows shapes numbers

and

> the alphabet but cant say all the words jsut point. he can make

almost

> all the letter sounds but not put them together. I suspect Apraxia

the

> more i read about it, but i have to go back and get more referrals

> from my regular pediatrician who told me to " wait until after he is

> three. "

> I was wondering what kind of specialists to take him to to in

order to

> get a diagnosis and if anyone in northern New Jersey can reccomend

a

> hospital or Dr. that was especially good.

> Also at what age were your children diagnosed, i know it is better

the

> earlier you catch things but its so hard to convince Dr's to listen

> sometimes or for them to be patient with a scared, shy little boy.

> Thank you for being here and good luck to all of you!

>

>

>

>

>

>

> -----------------------------------------

> This transmission may contain information that is privileged,

> confidential, legally privileged, and/or exempt from disclosure

> under applicable law. If you are not the intended recipient, you

> are hereby notified that any disclosure, copying, distribution, or

> use of the information contained herein (including any reliance

> thereon) is STRICTLY PROHIBITED. Although this transmission and

> any attachments are believed to be free of any virus or other

> defect that might affect any computer system into which it is

> received and opened, it is the responsibility of the recipient to

> ensure that it is virus free and no responsibility is accepted by

> JP Chase & Co., its subsidiaries and affiliates, as

> applicable, for any loss or damage arising in any way from its use.

> If you received this transmission in error, please immediately

> contact the sender and destroy the material in its entirety,

> whether in electronic or hard copy format. Thank you.

>

[Guest guest]

hi, you can call Early Intervention yourself in Jersey. They will do

an assessment for free (therapy is often not free though). Warning -

I found that they were very resistant to diagnosing apraxia, though

with persistence they did agree in my dd's case.

I will hold off judging my current developmental pediatrician (not

sure I'd recommend her though she is nice enough), but I'm interested

in knowing of others in north/central Jersey if anyone has names.

[Guest guest]

He needs to see a developmental pediatrician who has experience with

Apraxia. My son was only saying maybe 5-7 words all of which were the

ending of the words and was behind expressively and age appropriate

cognitively. He was diagnosed at age 3 y.o. at the Children's Hospital in

Mountainside, NJ...

" alilvrs "

<isHMS@...>

Hi, my name is is, and my son Simon is turning 3 in early

December. He is very behind in expressive speech. He hardly tries to

say anything and no one but me can guess what he is saying, (sometimes

not even me) We took him for a hearing and speech evaluation a few

months ago, but all they could tell me was that he has an expresssive

speech delay, because he wouldnt cooperate or talk for them. He says

only the ending or just the vowels in any word he may try to say. He

is very bright and makes good eye contact, he knows shapes numbers and

the alphabet but cant say all the words jsut point. he can make almost

all the letter sounds but not put them together. I suspect Apraxia the

more i read about it, but i have to go back and get more referrals

from my regular pediatrician who told me to " wait until after he is

three. "

I was wondering what kind of specialists to take him to to in order to

get a diagnosis and if anyone in northern New Jersey can reccomend a

hospital or Dr. that was especially good.

Also at what age were your children diagnosed, i know it is better the

earlier you catch things but its so hard to convince Dr's to listen

sometimes or for them to be patient with a scared, shy little boy.

Thank you for being here and good luck to all of you!

-----------------------------------------

This transmission may contain information that is privileged,

confidential, legally privileged, and/or exempt from disclosure

under applicable law. If you are not the intended recipient, you

are hereby notified that any disclosure, copying, distribution, or

use of the information contained herein (including any reliance

thereon) is STRICTLY PROHIBITED. Although this transmission and

any attachments are believed to be free of any virus or other

defect that might affect any computer system into which it is

received and opened, it is the responsibility of the recipient to

ensure that it is virus free and no responsibility is accepted by

JP Chase & Co., its subsidiaries and affiliates, as

applicable, for any loss or damage arising in any way from its use.

If you received this transmission in error, please immediately

contact the sender and destroy the material in its entirety,

whether in electronic or hard copy format. Thank you.

[Guest guest]

p.s. do not wait until after 3 y.o.! My pediatrician told me the same thing

and I made him give me a referral for a speech evaluation and she clearly

told me he was very behind and recommended the book " Late Talker " by

Geng and Marilyn Agin. She also told me about the Early Intervention

program which ends at age 3 where if you qualify is picked up by your

local school district....don't wait...time is not on your side in these

cases.

----- Forwarded by Myra Bauza/JPMCHASE on 11/14/2006 02:44 PM -----

Home Mortgage Secondary Marketing - Tel 732-452-8795 Fax 732-452-8055

Myra Bauza

11/14/2006 02:41 cc:

PM Subject: Re:

[ ] New with questions(Document link: Myra Bauza)

He needs to see a developmental pediatrician who has experience with

Apraxia. My son was only saying maybe 5-7 words all of which were the

ending of the words and was behind expressively and age appropriate

cognitively. He was diagnosed at age 3 y.o. at the Children's Hospital in

Mountainside, NJ...

" alilvrs "

<isHMS@...>

Sent by: cc:

@yaho Subject:

[ ] New with questions

ogroups.com

11/14/2006 01:08 PM

Please respond to

Hi, my name is is, and my son Simon is turning 3 in early

December. He is very behind in expressive speech. He hardly tries to

say anything and no one but me can guess what he is saying, (sometimes

not even me) We took him for a hearing and speech evaluation a few

months ago, but all they could tell me was that he has an expresssive

speech delay, because he wouldnt cooperate or talk for them. He says

only the ending or just the vowels in any word he may try to say. He

is very bright and makes good eye contact, he knows shapes numbers and

the alphabet but cant say all the words jsut point. he can make almost

all the letter sounds but not put them together. I suspect Apraxia the

more i read about it, but i have to go back and get more referrals

from my regular pediatrician who told me to " wait until after he is

three. "

I was wondering what kind of specialists to take him to to in order to

get a diagnosis and if anyone in northern New Jersey can reccomend a

hospital or Dr. that was especially good.

Also at what age were your children diagnosed, i know it is better the

earlier you catch things but its so hard to convince Dr's to listen

sometimes or for them to be patient with a scared, shy little boy.

Thank you for being here and good luck to all of you!

-----------------------------------------

This transmission may contain information that is privileged,

confidential, legally privileged, and/or exempt from disclosure

under applicable law. If you are not the intended recipient, you

are hereby notified that any disclosure, copying, distribution, or

use of the information contained herein (including any reliance

thereon) is STRICTLY PROHIBITED. Although this transmission and

any attachments are believed to be free of any virus or other

defect that might affect any computer system into which it is

received and opened, it is the responsibility of the recipient to

ensure that it is virus free and no responsibility is accepted by

JP Chase & Co., its subsidiaries and affiliates, as

applicable, for any loss or damage arising in any way from its use.

If you received this transmission in error, please immediately

contact the sender and destroy the material in its entirety,

whether in electronic or hard copy format. Thank you.

[Guest guest]

I recently met a woman who took her daughter to see Dr. Agin, i am

hoping to find a Dr. closer to me and easier to get an appointment

with! thank you for your advice!

>

> p.s. do not wait until after 3 y.o.! My pediatrician told me the

same thing

> and I made him give me a referral for a speech evaluation and she

clearly

> told me he was very behind and recommended the book " Late Talker " by

> Geng and Marilyn Agin. She also told me about the Early Intervention

> program which ends at age 3 where if you qualify is picked up by your

> local school district....don't wait...time is not on your side in these

> cases.

>

> ----- Forwarded by Myra Bauza/JPMCHASE on 11/14/2006 02:44 PM -----

> Home Mortgage Secondary Marketing - Tel 732-452-8795 Fax 732-452-8055

>

> Myra Bauza

> To:

> 11/14/2006 02:41 cc:

> PM Subject: Re:

[ ] New with questions(Document link: Myra Bauza)

>

>

>

>

> He needs to see a developmental pediatrician who has experience with

> Apraxia. My son was only saying maybe 5-7 words all of which were the

> ending of the words and was behind expressively and age appropriate

> cognitively. He was diagnosed at age 3 y.o. at the Children's

Hospital in

> Mountainside, NJ...

>

>

>

> " alilvrs "

> <isHMS@...> To:

> Sent by: cc:

> @yaho Subject:

[ ] New with questions

> ogroups.com

>

>

> 11/14/2006 01:08 PM

> Please respond to

>

>

>

>

>

>

> Hi, my name is is, and my son Simon is turning 3 in early

> December. He is very behind in expressive speech. He hardly tries to

> say anything and no one but me can guess what he is saying, (sometimes

> not even me) We took him for a hearing and speech evaluation a few

> months ago, but all they could tell me was that he has an expresssive

> speech delay, because he wouldnt cooperate or talk for them. He says

> only the ending or just the vowels in any word he may try to say. He

> is very bright and makes good eye contact, he knows shapes numbers and

> the alphabet but cant say all the words jsut point. he can make almost

> all the letter sounds but not put them together. I suspect Apraxia the

> more i read about it, but i have to go back and get more referrals

> from my regular pediatrician who told me to " wait until after he is

> three. "

> I was wondering what kind of specialists to take him to to in order to

> get a diagnosis and if anyone in northern New Jersey can reccomend a

> hospital or Dr. that was especially good.

> Also at what age were your children diagnosed, i know it is better the

> earlier you catch things but its so hard to convince Dr's to listen

> sometimes or for them to be patient with a scared, shy little boy.

> Thank you for being here and good luck to all of you!

>

>

>

>

>

>

> -----------------------------------------

> This transmission may contain information that is privileged,

> confidential, legally privileged, and/or exempt from disclosure

> under applicable law. If you are not the intended recipient, you

> are hereby notified that any disclosure, copying, distribution, or

> use of the information contained herein (including any reliance

> thereon) is STRICTLY PROHIBITED. Although this transmission and

> any attachments are believed to be free of any virus or other

> defect that might affect any computer system into which it is

> received and opened, it is the responsibility of the recipient to

> ensure that it is virus free and no responsibility is accepted by

> JP Chase & Co., its subsidiaries and affiliates, as

> applicable, for any loss or damage arising in any way from its use.

> If you received this transmission in error, please immediately

> contact the sender and destroy the material in its entirety,

> whether in electronic or hard copy format. Thank you.

>

[Guest guest]

Most of the spots providing therapy have long, LONG waiting lists.

Tell your ped you want a referral for therapy NOW because you don't

want to have to wait until he's 3.5-4 to be seen. If he refuses,

ask him what the benefit is - besides financial - to waiting. If he

still refuses, in all honesty, you need a new ped. Dev peds are

great, but in the real world, you need a regular ped who is a bit

more " up " on issues like this. Mine won't really comment on my

son's development, but gives me any and all referrals I've ever

asked for. Without question. Clearly states that I know more than

he on the subject.

Good luck -

M

>

> p.s. do not wait until after 3 y.o.! My pediatrician told me the

same thing

> and I made him give me a referral for a speech evaluation and she

clearly

> told me he was very behind and recommended the book " Late Talker "

by

> Geng and Marilyn Agin. She also told me about the Early

Intervention

> program which ends at age 3 where if you qualify is picked up by

your

> local school district....don't wait...time is not on your side in

these

> cases.

>

> ----- Forwarded by Myra Bauza/JPMCHASE on 11/14/2006 02:44 PM -----

> Home Mortgage Secondary Marketing - Tel 732-452-8795 Fax 732-452-

8055

>

> Myra

Bauza

> To:

> 11/14/2006 02:41

cc:

> PM Subject: Re:

[ ] New with questions(Document link: Myra Bauza)

>

>

>

>

> He needs to see a developmental pediatrician who has experience

with

> Apraxia. My son was only saying maybe 5-7 words all of which were

the

> ending of the words and was behind expressively and age appropriate

> cognitively. He was diagnosed at age 3 y.o. at the Children's

Hospital in

> Mountainside, NJ...

>

>

>

> " alilvrs "

> <isHMS@...> To:

> Sent by:

cc:

> @yaho Subject:

[ ] New with

questions

>

ogroups.com

>

>

> 11/14/2006 01:08

PM

> Please respond

to

>

>

>

>

>

>

> Hi, my name is is, and my son Simon is turning 3 in early

> December. He is very behind in expressive speech. He hardly tries

to

> say anything and no one but me can guess what he is saying,

(sometimes

> not even me) We took him for a hearing and speech evaluation a few

> months ago, but all they could tell me was that he has an

expresssive

> speech delay, because he wouldnt cooperate or talk for them. He

says

> only the ending or just the vowels in any word he may try to say.

He

> is very bright and makes good eye contact, he knows shapes numbers

and

> the alphabet but cant say all the words jsut point. he can make

almost

> all the letter sounds but not put them together. I suspect Apraxia

the

> more i read about it, but i have to go back and get more referrals

> from my regular pediatrician who told me to " wait until after he is

> three. "

> I was wondering what kind of specialists to take him to to in

order to

> get a diagnosis and if anyone in northern New Jersey can reccomend

a

> hospital or Dr. that was especially good.

> Also at what age were your children diagnosed, i know it is better

the

> earlier you catch things but its so hard to convince Dr's to listen

> sometimes or for them to be patient with a scared, shy little boy.

> Thank you for being here and good luck to all of you!

>

>

>

>

>

>

> -----------------------------------------

> This transmission may contain information that is privileged,

> confidential, legally privileged, and/or exempt from disclosure

> under applicable law. If you are not the intended recipient, you

> are hereby notified that any disclosure, copying, distribution, or

> use of the information contained herein (including any reliance

> thereon) is STRICTLY PROHIBITED. Although this transmission and

> any attachments are believed to be free of any virus or other

> defect that might affect any computer system into which it is

> received and opened, it is the responsibility of the recipient to

> ensure that it is virus free and no responsibility is accepted by

> JP Chase & Co., its subsidiaries and affiliates, as

> applicable, for any loss or damage arising in any way from its use.

> If you received this transmission in error, please immediately

> contact the sender and destroy the material in its entirety,

> whether in electronic or hard copy format. Thank you.

>

[Guest guest]

hi, you can call Early Intervention yourself in Jersey. They will do

an assessment for free (therapy is often not free though). Warning -

I found that they were very resistant to diagnosing apraxia, though

with persistence they did agree in my dd's case.

I will hold off judging my current developmental pediatrician (not

sure I'd recommend her though she is nice enough), but I'm interested

in knowing of others in north/central Jersey if anyone has names.

[Guest guest]

Hi my name is Bev. I have mixed connective tissue disease, hemiplegic migraines

and vasospastic angina. Has anyone found that the pain levels increase after

ovulation and stay that way until the end of the bleeding days? I am on

Plaquenil, prednisone,methotrexate and celebrex for 2nd half of my menstral

cycle. I keep becoming anaemic and have small ulcers in my small bowel so I have

to take it as least as possible. My rheumo is happy for me to use it wisely but

my GP is not. I am on Lyrica which helps reduce the level of the pain. I took

myself off it and boy was I in trouble pain wise, but I am back on it now. The

migraines are also hormone related. Thanks for letting me join your group. I am

from northern NSW Australia. Cheers Bev

---------------------------------

Be a better friend, newshound, and know-it-all with Mobile. Try it now.

[Guest guest]

I think the CT consult will help a lot. They can tell you the

severity. Our specialist recommended banding at 10 mm of asymmetry or

more. There is really know way to know how much the head will round

without banding,so I don't think you should ignore it, while you have

the chance to band. Also I would ask for a referral to a PT familiar

with tort to assess your child.

-christine

sydney 2.5 yrs starband grad

>

> Hello all! i know you were all in my position at one point in time.

> This is my first baby and he has flattening on one side of his head,

> his cheek is puffier on one side, his ears are off from each other.

> He liked looking to the right and still does to some extent, but will

> look to the left. Dr. said not tort. He also said it would fix

> itself - but reluctantly gave us information on it. We had made an

> appt. between our 4-6 month appts at 5 months to talk to him about it

> again. We mentioned it at the 4 month check-up. Again same response,

> said if it was his kid he wouldnt band him. So that made my husband

> feel better, but not me. The whole " should " get better doesn't sit

> well with me. I am a factual person. So to the point of my question

> (s). We are going in for a first visit with Cranial Tech - any

> opinions about that? especially in Charlotte? - and I wanted to know

> what questions you felt were important to ask or things to state?

> Also has anyone had any luck with insurance (especially from SC

> BCBS)? Also the asymmetry - what type of numbers were your children

> to see how off he is when the measure him. i do apologize for so many

> questions. but i am so scared and nervous about it all. I dont want

> to band him for no reason, but i also dont want to not band him and

> him have a misshapen head forever. I just thought the best place to

> get answers would be from those who have and are going through the

> same things i am. Any help is greatly appreciated and welcomed!

> Thanks again!

>

[Guest guest]

Our pediatrician also said that we wouldn't need to treat our son's

head tilt (mild tort) but he gave us a card for a PT for a second

opinion if we wanted. Like you, I couldn't get the whole thing off my

mind, so I went with my gut and called her. She said that many peds

have that wait and see approach, but the problem is that you are

missing very important treatment time. So I figured what could it

hurt to have her look at our son. Sure enough, she thinks, even

though it's very mild, that he should be in therapy. The tort is

often the cause for the plagio, so if you think it needs to be

evaluated, I would say go with your gut and get the opinion of a

therapist. At 6 months, the bones start to harden, so it's important

to address both issues I think. This is precious time you don't want

wasted. Our therapist even told us that she would not recommend a

helmet under 6 months if treatment could reverse the changes that have

already ocurred. Of course, I don't know how bad the plagio is for

you guys, but the head tilt can make it worse.

>

> Hello all! i know you were all in my position at one point in time.

> This is my first baby and he has flattening on one side of his head,

> his cheek is puffier on one side, his ears are off from each other.

> He liked looking to the right and still does to some extent, but will

> look to the left. Dr. said not tort. He also said it would fix

> itself - but reluctantly gave us information on it. We had made an

> appt. between our 4-6 month appts at 5 months to talk to him about it

> again. We mentioned it at the 4 month check-up. Again same response,

> said if it was his kid he wouldnt band him. So that made my husband

> feel better, but not me. The whole " should " get better doesn't sit

> well with me. I am a factual person. So to the point of my question

> (s). We are going in for a first visit with Cranial Tech - any

> opinions about that? especially in Charlotte? - and I wanted to know

> what questions you felt were important to ask or things to state?

> Also has anyone had any luck with insurance (especially from SC

> BCBS)? Also the asymmetry - what type of numbers were your children

> to see how off he is when the measure him. i do apologize for so many

> questions. but i am so scared and nervous about it all. I dont want

> to band him for no reason, but i also dont want to not band him and

> him have a misshapen head forever. I just thought the best place to

> get answers would be from those who have and are going through the

> same things i am. Any help is greatly appreciated and welcomed!

> Thanks again!

>