Guest guest Posted December 10, 2007 Report Share Posted December 10, 2007 Hi my name is Orietta, I am from Australia and am 38 years old. I have been diagnosed with RA for about four years now. I have been on Sulphasalzine initially and it turned out that I was allergic to sulphur based drugs. I was very sick. Went for a little while with no meds due to needing to give my body a break from drugs. I then went onto Methotrexate and arava. I was allergic to the arava. Then onto Plaquanil. But lucky me allergic to that too. For both arava and plaquanil I was on it for about 8 months and then came off only taking Methotrexate and anti-inflamatory meds and occasionally prednislone. So to add to everything I then developed an allergy to the methotrexate. I developed alot of stomach pains. I also developed a rash all over my body. After a long wait I went onto Humira. Was on that for 8 months with no relief so I am now on Enbrel. Fingers crossed that will work. I am also about to start up Methotrexate again but this time an injection. The Dr thinks I will be able to " stomach " that. I have two daughters my oldest is nearly 12. I do triathlons and am part of a women's tri group where i try and train on a daily basis. I did a tri on the weekend and placed second in my age group and third overall. I work at a hospital and also at a univeristy. I am also studying and trying to complete my masters. I have read quite a few of the posts and I understand all the things people have been talking about. I suffer from fatigue and very sore joints. My ESR and C-reactive is always perfect so it makes it difficult to justify changes in meds. But my joints are visably swollen and am always falling over due to muscle mass lost. My question is more about coming to terms with RA. I find it very hard to tell people that there are times where I am not well. People generally think I am lying as it looks like I do so much and I generally look fit and healthy. The worst person is my mother in law and she thinks I don't have RA and am just trying to get out of house work. Now I know I should just ignore these people but it does get depressing especially when all the tests I have come back as normal. Has anyone else had similar experiences and how do they manage? Cheers Orietta Quote Link to comment Share on other sites More sharing options...
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