Re: Polycythemia vera-help!

[Guest guest]

I am a RD and my husband was diagnosed with it 2 years ago. He gets

phlebotimized regularly to keep his HCT at 45. No other diet rx needed, just

don't be excessive with iron intake. The idea is to keep him slightly

iron-deficient. It's not a cancer, but it CAN lead to leukemia for some ppl.

One day, he may have to take an anti-cancer pill, like hydrea, if his platelets

go real high, but they are also working on new drugs for the near future.

Hope this helps.

Judi

>

> Does anyone know anything about Polycythemia vera and any potential dietary

implications? It's a rare disease that is classified as a blood cancer. I'm

seeing the pt to help manage his Crohn's but was trying to see if there are any

diet recommendations specific to Polycythemia vera, too.

>

> Thanks so much.

>

> Best,

> Cheryl , MPH, RD, LD

> Whole Health

> 3345 Duke Street, andria, VA 22314

> 9675-A Main Street, Fairfax, VA 22031

> www.harriswholehealth.com

>

> fax:

> Follow me on Twitter @cherylharrisrd

>

[Guest guest]

I had to chuckle, Cheryl, when I saw it was you posting the request, since

the only Polycythemia Vera (PCV) patient I've worked with was a LEAP

client. ;-)

This one patient asked about LEAP testing for his horrible itching, which

is a side effect of PCV. I clearly told him I had no history of LEAP

helping PCV, no experience, and no indication it would help.

He was miserable and desperate enough, and knew it had helped somebody with

urticaria, so was willing to try. I offered NO promises!

Well, his relentless itching reduced about 80% if I recall (it was years

ago) - and I've not followed up with him to know his cancer progressed -

it's a very slow progressing type of cancer if I recall.

Regardless, he was one of my happy LEAP clients! ;-)

(I don't have his files on my new laptop - but I do see in my notes that

this is one condition that may cause falsely elevated B-12 levels.)

Jan Patenaude, RD, CLT

Director of Medical Nutrition

Signet Diagnostic Corp.

Telecommuting Nationwide

(Mountain Time)

Fax:

DineRight4@...

Certified LEAP Therapist and specialist in food sensitivity for IBS,

migraine, fibromyalgia and multiple inflammatory conditions. Co-author of the

Certified LEAP Therapist (CLT) Training Course.

In a message dated 7/4/2011 3:49:12 A.M. Mountain Daylight Time,

rd-usa writes:

_Polycythemia vera-help! _ (http://groups.yah

oo.com/group/rd-usa/message/26494;_ylc=X3oDMTJzam80MWVxBF9TAzk3MzU5NzE1BGdycElkA\

zEwMDM1NTQ3BGdycHNwSWQDMTcw

NTA2MTIwOQRtc2dJZAMyNjQ5NARzZWMDZG1zZwRzbGsDdm1zZwRzdGltZQMxMzA5NzcyOTUx)

Posted by: " cherylharrisrd " _cheryl@... _

(mailto:cheryl@...?Subject= Re:%20Polycythemia%20vera-help!)

_cherylharrisrd _ (http://profiles.yahoo.com/cherylharrisrd)

Sun Jul 3, 2011 7:02 pm (PDT)

Does anyone know anything about Polycythemia vera and any potential

dietary implications? It's a rare disease that is classified as a blood cancer.

I'm seeing the pt to help manage his Crohn's but was trying to see if there

are any diet recommendations specific to Polycythemia vera, too.

Thanks so much.

Best,

Cheryl , MPH, RD, LD

Whole Health

3345 Duke Street, andria, VA 22314

9675-A Main Street, Fairfax, VA 22031

www.harriswholehealwww.ha

fax:

Follow me on Twitter @cherylharrisrd

[Guest guest]

I had to chuckle, Cheryl, when I saw it was you posting the request, since

the only Polycythemia Vera (PCV) patient I've worked with was a LEAP

client. ;-)

This one patient asked about LEAP testing for his horrible itching, which

is a side effect of PCV. I clearly told him I had no history of LEAP

helping PCV, no experience, and no indication it would help.

He was miserable and desperate enough, and knew it had helped somebody with

urticaria, so was willing to try. I offered NO promises!

Well, his relentless itching reduced about 80% if I recall (it was years

ago) - and I've not followed up with him to know his cancer progressed -

it's a very slow progressing type of cancer if I recall.

Regardless, he was one of my happy LEAP clients! ;-)

(I don't have his files on my new laptop - but I do see in my notes that

this is one condition that may cause falsely elevated B-12 levels.)

Jan Patenaude, RD, CLT

Director of Medical Nutrition

Signet Diagnostic Corp.

Telecommuting Nationwide

(Mountain Time)

Fax:

DineRight4@...

Certified LEAP Therapist and specialist in food sensitivity for IBS,

migraine, fibromyalgia and multiple inflammatory conditions. Co-author of the

Certified LEAP Therapist (CLT) Training Course.

In a message dated 7/4/2011 3:49:12 A.M. Mountain Daylight Time,

rd-usa writes:

_Polycythemia vera-help! _ (http://groups.yah

oo.com/group/rd-usa/message/26494;_ylc=X3oDMTJzam80MWVxBF9TAzk3MzU5NzE1BGdycElkA\

zEwMDM1NTQ3BGdycHNwSWQDMTcw

NTA2MTIwOQRtc2dJZAMyNjQ5NARzZWMDZG1zZwRzbGsDdm1zZwRzdGltZQMxMzA5NzcyOTUx)

Posted by: " cherylharrisrd " _cheryl@... _

(mailto:cheryl@...?Subject= Re:%20Polycythemia%20vera-help!)

_cherylharrisrd _ (http://profiles.yahoo.com/cherylharrisrd)

Sun Jul 3, 2011 7:02 pm (PDT)

Does anyone know anything about Polycythemia vera and any potential

dietary implications? It's a rare disease that is classified as a blood cancer.

I'm seeing the pt to help manage his Crohn's but was trying to see if there

are any diet recommendations specific to Polycythemia vera, too.

Thanks so much.

Best,

Cheryl , MPH, RD, LD

Whole Health

3345 Duke Street, andria, VA 22314

9675-A Main Street, Fairfax, VA 22031

www.harriswholehealwww.ha

fax:

Follow me on Twitter @cherylharrisrd